Our purpose is to help cardiac pacemaker and implantable cardioverter defibrillator (ICD) recipients meet, share information and support each other.
Membership is free and over 9,000 patient and loved-one strong. The spirit of the club is caring active members. So make a difference and get involved!
Posted by wrholder on 2009-07-04 00:40. 0 comments. 2 reads
I performed a LT test today with a LT of 180bpm and max HR of 185bpm; over year off the bike, two weeks back on the bike, and two months after pacemaker implant! Racing in July. Inspiration to ALL and a big thanks to everyone HERE!!!!
Posted by Lizzie on 2009-07-04 00:33. 0 comments. 0 reads
Hi everyone,
Had my pm implanted Thursday. Kept in 24 hours and no problems, (other than sciatica....bad timing!!)
My cardio put it on my left side as I play top level croquet here and we thought that would suit my sport better as I'm a right hander. It is a St Jude Zephyr dual lead, set at 70 and 120. I really don't feel much different, just a bit faster pulse.
Thanks for all the great information and support I received from the members of this special club. It really made a difference.
Looking forward to 4 weeks time when I can do more with this left arm. (like lift and swing a 4lb croquet mallet) & put my hair up properly!! :-)
Lizzie
Posted by Fatigue1 on 2009-07-03 22:59. 2 comments. 14 reads
Hello fellow pacers. Great informative club,Ive learned a lot. very positve attitudes.
I have a sleep problem since Feb28-2005 day of implant. found next to impossible to get any medical assistance from medtronics tech, cardiologist, doctor etc. lunesta, tylenol pm plus trazodone gets me 11pm to 3am per night, nap is impossible. Ive requested pm settings, bpm change and was informed by many medtronics techs over the years now that settings are not available.
desperate. any suggestions please. also any one know of any legal action that could force a solution from medtronics ?
sorry to complain but, work, home and personal life can not degrade any more due to fatigue.
Posted by belly321 on 2009-07-03 19:21. 2 comments. 29 reads
i had pm resited ten months ago deeper into muscle all was well for a few months but since purposly losing four stones i have developedd problems i am now able to feel pm under skin which i can understand due to weight loss but more worring if i move my arm i get dizzy and palpitations and can feel pm move which is annoying im not due for pm check till october and have had problems in the past with pm technicions telling me i fuss too much so im scared to contact them before october so any help or reassurance from any of you guys would be helpful thanks
Posted by Cabg Patch on 2009-07-03 16:59. 0 comments. 38 reads
You were enquiring about clinical studies, and I thought you might be interested in the following in the Associated Press.
Heart patients in big alternative medicine study not fully told of risks, probe finds
07-02-2009 2:33 PM
By MARILYNN MARCHIONE, AP Medical Writer
(Associated Press) -- A federal investigation has found that heart attack survivors enrolled in a study of a controversial alternative medicine treatment were not told enough about potential dangers from the drug being tested, including death.
The study is testing chelation _ infusions of a drug that in this case has been removed from the market for safety concerns. A different type of chelation is used to treat lead poisoning.
Posted by Loopy Lou on 2009-07-03 16:41. 0 comments. 7 reads
WAHOOO!
So.... I've booked my flight from U.K.... and I have now registered for our fab weekend!!!!!
Love & hugs, Loopy Lou xxxxxxxxxxxxxxxxxx
Posted by jessie on 2009-07-03 16:29. 2 comments. 16 reads
to all my american friends from coast to coast. i pray everyone i know has a safe and happy holiday! jessie
Posted by Gellia2 on 2009-07-03 15:40. 2 comments. 12 reads
Hi,
I have a dual chamber pacemaker for complete heart block (rate response off). Years ago (before dual chamber pacemakers came out) I had a single chamber (ventricle) demand pacer set at a rate of 72 bpm.
If you had the option of having your dual chamber pacer set without the atrial wire function (single chamber demand), or have open chest surgery to have it removed and replaced, what would you do?
I did very well with a single chamber pacer and having the wire removed is extremely risky for me due to other health issues.
My age is 60.
I really could use some opinions.
Thanks!
Gellia
Posted by dcsubburb on 2009-07-03 14:08. 1 comments. 37 reads
I've recently received my pacemaker/defib 2 weeks ago and when i get active my heart seems to be doing the cha cha i can feel a very strong beat in my chest i've been interrogated and its perfect does anyone else have it i've been told i have to get use to it its unnerving to say the least and it scares me to death........
Posted by RonArmstrong on 2009-07-03 09:55. 3 comments. 45 reads
To Frank & Smitty,
Thanks for your comments. I know for a fact I have a lead that is barely connected via my doctor. We decided to not 'fix' it because I was functioning OK and why fix something when it is working. I've heard the panic theory and there is merit to that but this happens when I am sound asleep and I wake up from it. When I held my breath I was essentially doing the paper bag trick and it worked. But it also happened when I do any sort of excertion such as walking up the stairs. My exam did reveil that I had a bladder infection and I'm not taking meds for that. Last night I only had a couple attacks but they were mild. Supposed to see doc next week. I did the pacemaker test yesterday and transmitted to his office. ...