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Welcome to Pacemaker Club



Our purpose is to help cardiac pacemaker and implantable cardioverter defibrillator (ICD) recipients meet, share information and support each other. 

Membership is free and over 10,750 pacemaker & ICD patient and loved-one strong. The spirit of the club is caring active members. So make a difference and get involved!

A special edition of the Pulse Newsletter is now available to celebrate our 10th anniversary. 

View the most recent messages posted or browse each forum by topic.

Posted by kmf0318 on 2010-03-11 21:35. 2 comments. 23 reads
 
I had a pacemaker put in 12/1/09, I have since been in the hospital again 1/25/10 for 4 days. I am still having fainting spells, I thought this would have all been done by now. It is so depressing, I dont know what to do anymore. I almost fainted again today, I felt very light headed more than once, my coworkers told I got very pale and looked like I would pass out but I didnot. They have checked me for seizures, which I dont have and have put me on a beta blocker when I was in the hospital in January. Here I am almost 7 weeks later and it is happening again. I am under a lot of stress, could that be a factor. I appreciate anyones thoughts, has anyone had this happen to them also. Thank you Kathy

Posted by Charli on 2010-03-11 21:09. 0 comments. 16 reads
 
Hi, i'm only 15 and I had to have a pacemaker fitted on the 31st of December 2009 because I passed out randomley several times in a year. I had to get checked out as I don't want to pass out behind the wheel in a few years time! I had a 24 hour monitor on a first which told me I dropped beats at night, then from that I had to have it on for a week! They still couldn't figure it out so I then had to have an implant to monitor my heartbeat for up to 2 years, the main aim was to see what happened when I passed out. Anyway I did and got the information downloaded. It turns out my heart slowed from 110bpm right down to 40bpm in about 30 seconds before stopping for 4 seconds then having a beat then a further 19 seconds then a couple of beats and...


Posted by sam78 on 2010-03-11 20:07. 4 comments. 27 reads
 
Ok so with my recent hospital visit, and the nice anaphylactic reaction that I had to the CT contrast (even with being pretreated with steriods and benedryl)... I have been told to get my butt busy and get my ID bracelet. So now I have apparently two things that need to go on it... one that I have a pacemaker and two that I am allergic to IV dye. So.... I was wondering what people actually have ON their bracelet. Do you just have "pacemaker"? I am trying to decide what to put on the bracelet.. most have 6 lines.

Posted by tsimbrow on 2010-03-11 18:54. 2 comments. 26 reads
 
Hi everyone,
I'm sick of being in the hospital which should be a sign that I'm getting better, but I'm not getting out of here any time soon. They have had a cardiologist see me today to assess the need for a pacer and according to him I do. They were originally going to send me to the hospital where my cardiologist is, but i really don't want to move again now that I'm stable. I'm comfortable here and this is a top notch cardiac facility that has all the stuff my hospital would have. I questioned this a lot since I do trust my cardioloigist and I know following me after pacer would be easier if I just had it done there, but the doctor here said that even if they do iut, I would have to come back to the hospital here for physio and re...


Posted by breezy on 2010-03-11 18:45. 5 comments. 43 reads
 
Hi all :)
I was wondering what you all thought of Beta Blockers
being used with our PM conditions.
I have been having some problems with my heart racing
The Dr put me on a low dose of Beta Blockers...and I have to say it has really helped...after getting my PM tweeked a bit
and seeing him on Monday...having all the test backs and all okay..I was still getting the racing heart...sooo with my anxiety and me complaining...he said okay we will try the Beta Blockers
my pulse stays around 60-67 my BP is around 130/80 or so
I haven't had any problems with anything since the Beta Blockers. But I just wanted to ask and see if any others might have a comment or are taking a small does. I have had my PM for 4 mon...


Posted by DanaT on 2010-03-11 18:23. 1 comments. 11 reads
 
I've been getting lightheaded in the middle of the night on occasion. I would just kind of wake up, laying in bed feeling faint! I called my cardiologist and she said that it wasn't my heart or my pacemaker but more likely my blood pressure is getting too low at night. It did drop A LOT since my pm. I am on high blood pressure medicine and the lowest it's ever been while take the medicine is like 135/85. Now my bp is down to 117/85. I'm going to my doctor tomorrow to have the dose lowered or maybe even stopped who knows! Before my pm and before bp meds my blood pressure used to be around 150/90. I'm just glad it's getting lower and not higher! Just thought I'd let you guys know and see if this has happened to anyone else?

Posted by Krissysmum on 2010-03-11 18:08. 3 comments. 33 reads
 
My daughter is 4 and had her pacemaker placed in April 09. She has done so much better with her pacer. She used to pass out 6-7 times a week. Her heart was struturally normal at the cardiologist so he ordered a Holter Monitor and after 2 days she passed out again while getting out of the car. The monitor showed that her heart stopped for 30 seconds. They tried medication but she was allergic to it. Then they placed her pacer in her abdomen. It is a dual chambered epicardial pacer with a high and low setting plus a drop setting (if her heart rate drops suddenly it will start pacing). She came home from the hospital after a week and still had fevers. They called it Post Pericardialotomy Syndrome. We live an hour and a half from the hospital....


Posted by franko1966 on 2010-03-11 17:38. 3 comments. 28 reads
 
just wondering,when does every body out there take mag,is best to take at bedtime or after a meal,i know when iwas in the hospital,they give you everthing all @once.i.m takeing my for my art afib and flutter,just courios,and what is the best form of mag,thanks

Posted by Cabg Patch on 2010-03-11 16:01. 5 comments. 36 reads
 

By my estimation, we have 10,783 members. 10,781 of whom have stated categorically they have the top Cardiologist in the world. Who's the other member besides me whose doctor is at the bottom in Cardiology?

Enquiring minds want to know

Posted by simplicity2378 on 2010-03-11 13:44. 3 comments. 52 reads
 
Hi all,

My mom had a pacemaker put in July 2009, and mostly everything is good. Recently however, shes has gotten these weird bludges around the scar. She tells me that when she is active, the area feels like its burning. The doctor tells her that it's likely scar tissue buildup or fatty tissue build up. But that really doesnt tell us anything.

So my question is, Has anyone else had this happen to them? and if so, have you had surgery to get them removed?

Thanks in advance



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