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Our purpose is to help cardiac pacemaker and implantable cardioverter defibrillator (ICD) recipients meet, share information and support each other. 

Membership is free and over 10,750 pacemaker & ICD patient and loved-one strong. The spirit of the club is caring active members. So make a difference and get involved!

A special edition of the Pulse Newsletter is now available to celebrate our 10th anniversary. 

View the most recent messages posted or browse each forum by topic.

Posted by heartu on 2010-03-19 08:15. 0 comments. 4 reads
 
Piggybacking off a previous question, ladies, how long did you wait after your devices were implanted before you had your mammograms?

I had my PM implant on 2/24 and I will be due in late July, making it 5 months. I will ask my doctor, but I'd rather ask those with first hand experiences...Thanks.

Posted by alboyett on 2010-03-19 00:35. 4 comments. 23 reads
 
I am not a pacemaker recipient (yet), my question is will I also be using Warfarin when do go to a pacemaker? I am a bradycardia patient.

Posted by ted on 2010-03-18 23:16. 7 comments. 61 reads
 
On February 25, 2010, the U..S. Justice Department charged Guidant, a wholly owned subsidiary of Boston Scientific, with criminal violations. The Justice Department announced that Boston Scientific would pay $290 million.
According to the charges filed in U.S. district court in St. Paul, Minn., Guidant concealed information from the FDA regarding catastrophic failures in some of its ICD's. Assistant Attorney General Tony West said "The government charges that Guidant committed serious crimes by undermining the FDA's role to guard the American public against potentially dangerous medical devices"
In 2002, Guidant became aware that its Ventak Prism 2DR was prone to electrical arcing rendering the device inoperable. Guidant chan...


Posted by chas on 2010-03-18 22:50. 2 comments. 31 reads
 
I'd like to get a tattoo for pacemaker. Does anybody have any suggestions.

Posted by ECB on 2010-03-18 22:27. 2 comments. 27 reads
 
I have had my pacemaker for approximately six months. I will
need to go and have a mammogram next month. Is there something I should do before going for this mammogram, or
should I wait longer. I am doing fine otherwise, atleast so far.

Posted by brooke1803 on 2010-03-18 21:52. 1 comments. 12 reads
 
Well an update here for ya'll...I went to the Doc today, just to be on the safe side, and they had the EKG..and monitors...did an Xray..all is very well. They saw the pacer marks..very very often!!! Which means my pacer is of corse working for me (when i had the PM implanted and the EP did my first check it was working @ 48% of the time) and this proved it. I kept dropping to 56-59 and the PM jumped right on in and paced me back to 60. My BP was a perfect 98/58 I was very proud to see this. I feel much better now, and I really think it is what I have reading..."i just need tweaks" So glad I went!!!!!! I go tomorrow for my wound check and make all my follow up apt. With the EP & Cardio. I cant wait. :)

Havea great night...


Posted by mnm61275 on 2010-03-18 19:28. 3 comments. 45 reads
 
hi all! so i'm scheduled for my 1st replacement surgery for my icd on april 12th. it's a boston scientific and since all that stuff is going on with them and the fda regarding some incomplete documentation, i may wind up getting a medtronic device instead if it's not all settled by my surgery date. my question is if i do get a medtronic would the leads have to be replaced as well or could they just use the 3 i have now?


thanks!!!! =0)

Posted by mrestis on 2010-03-18 18:02. 6 comments. 92 reads
 
Tomorrow will be 13 years that I've had the same (1st) pacemaker. I had it put in when I was 15 years old, and for the past 3 years all of my doctors tell me is that it will need to be replaced somewhere between 1 week and 9 months. apparently that's the best estimate they can get on such an old model. So for the past 2 years I've been putting about 3 grand in my FSA account expecting to have my PM replaced. And for the past 2 years I've gone to Wal Mart towards the end of December and bought a life time supply of Tylenol so that I don't just lose the money.
I've had my doubts since day one about having my PM replaced now that I'm old enough to make my own decisions. And now it's not just because of the way I feel about ha...


Posted by mofarmer on 2010-03-18 17:27. 2 comments. 19 reads
 
Hi my name is moira I had my pacemaker fitted in Dec 08 I went for my second check up on Monday and they said they think one of my leads have moved but not too worry and to come back in 6 months to check it the had to do a bit of adjustment on the pacing of it. I am a keen runner but since having it fitted I have pain in the area after exercise has anyone else had any of these problems as you can imagine it is stressing me out . Regards Moira

Posted by rdelvis07 on 2010-03-18 17:01. 1 comments. 15 reads
 
Well I havent posted anything for a while. been kinda busy with a newborn. I actually went into heart failure. They said it wasnt due to the pregancy. Meds didnt help get my ef back up so they had to replace my two lead pacer with a three lead pacer. I dont really know much about it or the differance. All the things that have been going on are kinda hard to keep up with. But i still dont feel any better!! I have had the change now for a lil over a month and i feel the same. I also keep noticing things really strong flutter feeling close to the outside of my chest. Anyone know what this is? Hope to hear from you soon!!



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