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Welcome to Pacemaker Club



Our purpose is to help cardiac pacemaker and implantable cardioverter defibrillator (ICD) recipients meet, share information and support each other. 

The Spring 2008 edition of the Pulse Newsletter is now available.

Here’s the ten most recent messages posted in our forums. 

 

Posted by Jackie French on 2008-07-23 20:38. 0 comments. 5 reads
 
How did they find out you needed apace maker what were your systems before it was inserted

Posted by LIVE_STRONG on 2008-07-23 20:01. 0 comments. 0 reads
 
Thank you...I sent you an e-mail regarding placement.

Posted by LIVE_STRONG on 2008-07-23 14:51. 2 comments. 49 reads
 
My EP plans to put it in under my breast...he did mention going in from the side or the top.....I thought the side might hurt more and get in the way of an underwire......he said it was up to me.

ANY thoughts as to which might be better? The EP doesn't seem to care which I chose.

Is your in your abdomen? Hmmm....not sure which would be best.

Thank you, Holly

Posted by PacerMom on 2008-07-23 12:39. 2 comments. 32 reads
 
My 18 mos old had her pacer checked yesterday and the doc did some adjustments. He said everything looked good but that he had increased the voltage.

Last night she had a real rough night. Could it be because of the new settings?

Posted by carismendez on 2008-07-23 10:45. 1 comments. 17 reads
 
Hi all,
I am going in this afternoon to meet with a high-risk ob/gyn specialist for a 'pre-conception consultation' to assess my risks for pregnancy with my condition and pacemaker, etc. My hubby and I want another child (ours are 10 and 9) but we had been waiting a long time to get my fainting spells with my NCS/VVS under control, etc. The pacemaker one year ago has been a lifesaver!!!! It is great to have a pulse and oxygen to my brain!!! Now that I am 'under control' with the pacemaker, we are hopeful that there won't be any problems with trying again. Anyways, wish us luck, we are getting very excited!!!

Posted by shazza40 on 2008-07-23 10:08. 2 comments. 57 reads
 
Hello Everyone, I am new to this club and have now realised how little I know about my condition and why I have my pacemaker. I was born with congenital hypertrophic cardiomyopathy of the left ventricle. Up until I had my 3rd child I never really experienced any difficulties with my condition until about 20 years ago. I started to get arrythmia and was commenced on Flecainide twice daily which seemed to keep the arrythmia at bay. When this stoppped being effective I had a pacmaker implanted as my cardiologist said that it would help stop the progression of the cardiomyopathy and stop my arrythmia. I have now had 3 devices implanted in the last 11 years and conitnue to take Flecainide 100 mg twice daily and 50 mg daily. I have been told th...


Posted by enileal on 2008-07-22 23:35. 5 comments. 93 reads
 
I had a pacemaker installed in January 2008. Can anyone tell me how to make the scar less noticeable?

Posted by scadnama on 2008-07-22 23:13. 4 comments. 74 reads
 
I have been taking beta blockers for the last 2 weeks to blunt my natural heart rate so that the pacemaker has to do all of the work. As far as my heart is concerned I am feeling great, but I have really low blood pressure while taking the beta blockers. With my doctors advice, I have tried lowering the dose, and lowering the frequency of the dose. So far, that hasn't worked, when I try to take a smaller dose, I start to get palpitations, chest pain, shortness of breath...all of those horrible things that we were trying to avoid with the beta blocker. When I take enough of the beta blocker to keep my heart under control (only 25 mg 2 x a day), I get low blood pressure (sometimes as low as 75/35). The irregular heart rates were causing me t...


Posted by Blueaustralia on 2008-07-22 21:39. 1 comments. 44 reads
 

It is hard to believe we have been here in Victoria nearly two weeks. I had my cardio checkup at Geelong Hospital yesterday with the specialist there. My PM check is on 1st September. I happened to mention if they checked Ela PM's and he said "NO" good job I mentioned it as they have made arrangements for the tech to come down to the PM Dept that day.

The sp was really good said my heart was in good cond and gave me some BP tabs with a diuretic in. I had been complaining to my GP about a swollen ankle and leg and that I found it hard to bend etc. Also that in an effort to get to the phone quickly the other night I was left puffed. The sp told me that high BP can make one feel breathless. There is no reason at all ...


Posted by LIVE_STRONG on 2008-07-22 21:20. 10 comments. 105 reads
 
Sorry, I don't quite get the settings. I think I get the lower setting.
BUT..the high set point.....is that the one that they set at like 170 and if your heart beats to fast it will slow it down? I thought thats what the dual chamber did.
I have sick sinus syndrome.My biggest problem is that at rest...this includes any time I am not actively moving..my HR is around 34...and pretty much stays there until I get up and move or get upset....something to raise it. It then stays at a good rate..60s to 80s. HOWEVER if I go jogging or exercise..it will shoot up to 170-180 in one minute..and I feel like I am going to pass out..and get short of breath.
So the doctor was going to put in a dual chamber PM.
Then he mentioned I woul...




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