St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by fjj17332 on 2016-02-08 23:01. 1 comments. 31 reads
well guys here we are 10 days after implanted defibrillator. doing GREAT, a little sore but THANK GOD. it is over and i got alot
of energy back. able to exercise, climb stairs. a whole NEW MAN here. thank you all for your help and comments during this difficult time for me. PEACE

Posted by Saugrenue on 2016-02-08 17:28. 2 comments. 64 reads
Hi All, Happy Chinese New Year (I wrote books about such things) After the installation of my pacemaker, my cardiologist told me to hold off on exercise. Nothing strenuous and above all don't lift heavy things.

Before the AFib and Pacemaker, I was at the gym 3 times a week with a trainer. Now I am a blob. During the Afib I was in hospital for 6 months trying different meds to slow my heart. As a result my muscles have melted. Now it hurts to walk.

Has anyone had a similar experience and come out the other side with more stamina? I wonder about a treadmill or some other mild exercise to get started.
Thanks, Suzanne White

Posted by Msskye on 2016-02-08 17:19. 1 comments. 32 reads
there is an android app for smart phones it lets you put in medical information and is accessible even if your phone is locked, it can be found on Google play store here is a URL to take you to the same place.
OH I am brand new to the group.

Posted by Radders on 2016-02-08 09:37. 2 comments. 80 reads
I am 70 year old fairly fit new boy who had a pace maker/defib fitted last Monday. I like to walk briskly but am nervous about getting my heart rate too high. Also when I set off walking, I puff a bit for the first 5 minutes and then am OK. I worry about the defib firing off if I have to chase my granddaughter

Posted by frozenrope on 2016-02-08 09:29. 2 comments. 107 reads
Hello, I'm a 35 year old male, diagnosed with SA node dysfunction/sinus bradycardia(same thing I think). My resting heart rate is typically 40-41bpm, but I've seen it as low as 36 while awake.. I was instructed to document my HR when I'm feeling especially symptomatic. I've got a HR/BP machine at home.

I've probably had this problem since birth, I've always had a low pulse. When I was a kid, I remember passing out many times after standing up too quickly, maybe there's some orthostatic hypotension, not sure. BP has always been on the low end of normal. I've kind of learned to work around that, but I'm know if I got up too quickly, stretched and yawned I'd be out within seconds. I've had a few of these episodes recently.

Posted by genroberts on 2016-02-07 22:01. 2 comments. 68 reads
So I am 6 days post surgery implant of a new pacemaker and I am experiencing sharp shooting pain in my lower forearm and wrist when I extend my arm and try to use it. It doesn't happen all the time but frequently enough that I wonder what might be happening related to the surgery? anyone experience pain like this? how did you resolve it? how long? I called my doctor and she said that I should give it 24-48 hours to see if it gets better.

Posted by jsne on 2016-02-07 16:38. 5 comments. 185 reads
Does a 24hr monitor pick up PMT and or Wenckebach, Had numerous monitories before PM incursion and supposedly nothing really showed up, the same back in the summer when I needed a treadmill and 12lead test to get a diagnosis then my settings sorted.
But I am gutted to being back to square one again, zero exercise tolerance and all the tightness and discomfort in the chest, lack of sleep etc .Concerned that nothing will show up. Going to 'phone the technician in the morning and see if she can give some help.
Has anyone felt really good then reverted back again? not on any meds as they haven't helped so far.
Can't stop crying, My next appointment is July and not sure if I have the energy to keep trying to "get on with it any ...

Posted by fox30 on 2016-02-07 14:23. 3 comments. 100 reads
I have a Medtronic CRT PM and apparently every night at 1:oo am the system get data from my Pm and send it I think to the local PM Center. Does anyone know exactly what type of info is sent and what red flags are there for some action level?

Posted by braveheart on 2016-02-07 13:46. 2 comments. 88 reads
I had pacemaker put in 11 months ago, overall, I have been feeling alright but occasionally I feel lightheaded, dizzy and when I exert, sometimes I feel woozy. Cardiologist suggested to put IDC. Right now, I am given beta blocker but i feel very tired and check pain.

Does anyone has similar experience? What the consequence if I put ICD?

Thanks so much for your comment.


Posted by odonicola on 2016-02-07 00:07. 6 comments. 167 reads
Hi guys, I'm 18 years old and had a pacemaker installed 4 days ago due to complete heart block. My normal heart rate before the pacemaker was 39, and with the pacemaker it is around 80, which is amazing. But every now and again I have extreme palpitations, I am just wondering is this the pacemaker doing its job or should I be worried about something?

Posted by Walpea on 2016-02-07 00:03. 1 comments. 46 reads
I had my pacemaker fitted in January 2015 and since then have pain in my left shoulder and elbow and tremor and weakness in my left arm and hand. Can this be nerve damage

Posted by odonicola on 2016-02-07 00:03. 2 comments. 84 reads
Hi guys, I'm 18 years old and had a pacemaker installed 4 days ago due to complete heart block. I'm feeling quite dizzy and lightheaded every now and again and it's not just when I'm walking, it happens when I'm sitting doing nothing as well. I just want to know is this just my body getting used to having a normal heart beat or is it something I need to worry about?

Posted by turtle on 2016-02-06 13:44. 11 comments. 167 reads
Question: Has anyone had the experience of having their running watch give an incorrect heartrate because of interference from the pacemaker? My Garmin forerunner 225 jumped from 120 bpm to 175 bpm and wouldn't correct until I removed it and then put it back on. I am going to see if wearing it on the other wrist makes a difference.

Posted by mg on 2016-02-06 12:51. 7 comments. 153 reads
I`ve been diagnosed now with etopics which seen to come and go in runs . This appears to have been the problem that's been making me feel really rubbish some days and do not feel like exercise. For some reason they have not been reported by the Techs at my regular check ups.
I was suppose to have had bigeminy rythms some time ago but could never feel it when checking my pulse.
Now however I can feel regular missed beats when feeling bad.
My question is why do I have missed beats when surely the PM is set to deliver a regular ones?
Thank for any

Posted by aug2012 on 2016-02-06 11:59. 4 comments. 111 reads
A quick question - I had a crt-d put in 8 days ago and my left arm has felt achy each day. In the last 3 days though my left arm changes colour to a dusky red colour as well as ache. Will this likely settle down or should I report it to the pacing clinic first thing next week?

Posted by BetsyQ on 2016-02-06 05:50. 1 comments. 147 reads
My pacemaker was interrogated today and even on metoprolol and diltiazem the tachycardia episodes are continuing. They have upped the dosage of diltiazem hoping it will help. I have also had shortness of breath with any exercise at all, including plain walking since my implant. At my EP's office when you leave your appointment you're given a printout of diagnoses, medications, next apps., etc.

As I was reading it when I got home, a new diagnoses of congestive heart failure II had been added to my diagnoses. No one said a word to me about it! I'm shocked. I am not overweight, just turned 56 this week and had no health issues other than a very low heart rate and blood pressure which led to the pm last summer. Now I have hig...

Posted by ab1016 on 2016-02-06 01:38. 3 comments. 113 reads
Hi all, ok so it's been 3 weeks since my pm implant, it's a biotronik and I finally received my monitor today, but I'm confused because I could have sworn my doctor said I would have a small device that I would take with me when I went out but no such device came, am I mistaken, does anyone have a device they take with them when they go out? If not than I guess this doesn't monitor you 24 hours a day. Again I'm very confused about all this, I did read the pamphlets, but still confused. Any help would be greatly appreciated! Thank you!

Posted by Patmellis on 2016-02-05 23:06. 1 comments. 102 reads
Had my pm implanted on 1/28. Everything went great and I recovered very quickly. Feeling much better. Then i started having thumping in my chest - it would start and stop. Before the day was out it just never stopped thumping. I went to hospital and it turns out the ventricular lead was not in place and apparently the pm was trying to do its job. Just kept trying thinking my heart was not doing its job. It was a bit scary. They stopped the programming to that lead for now and Tuesday I go in for a lead revision surgery. Now I'm just depressed. I did no exercising,didn't lift my arm above my shoulder or lift anything. Is this common?


Posted by tessenne on 2016-02-05 21:01. 2 comments. 92 reads
Hello all, it's been awhile since I came in here. I have a very vague question. At my appointment today, my EP changed a bunch of settings on my pacemaker. One was vrrp or something like that. I missed it exactly. That's not a lot to go on but does anyone know what thus is? Or what it sounds like? I did a Google search but I'm not sure I have it right. Could be a 'p' and not a 'v'. I'm sorry, I understand if no one can figure what I'm talking about. He also changed some thresholds? I don't know what the means either. He explained some but I did not retain the information. Any and all help is appreciated!

Posted by you_can`t_bring_me_down on 2016-02-05 19:32. 0 comments. 33 reads
For my Civics project, I have to take political action. I want my political action to be writing to our government and department of defense to get the word out that people like us can join the armed forces. I am looking for specific stories to encourage this to get far and I am willing to include anything you guys believe strongly about.

Posted by jwilson on 2016-02-05 18:23. 2 comments. 53 reads
I got a pacemaker in 2015. It was a 2 hr. surgery. No problems. Went home the same day. No overnight stay. A little sore @ the incision site but felt good. Only about 2 weeks recovery time I took it easy, then normal routine. I have more energy now. don't feel like I'm going to faint anymore and am not as short of breath as I used to be. I still take BP meds and a blood thinner but feel very good. No complaints. Do everything I did before. I am 70 years old and feel 50. I still get AFIB once in a while but usually can't feel it, but it shows up on the Merlin monitor I have beside my bed. I keep a very positive attitude and hope the Pacemaker will last 9 years like they predict.

Posted by lady4law on 2016-02-05 17:50. 0 comments. 122 reads
I have had my PM for about 10 years, but it's been moved 2 times, left to right side of chest -then back - right to left, due to Breast cancer. Shortly after my 2nd relocation, it was removed and replaced (along with the lead (wires) in my heart) with a MRI compatible PM. However shortly after that surgery I was involved in a car accident and my cardiologist called Medtronic and they recommended I NOT have the MRI as the new PM was having issues when patient went under the MRI machine.
Over the last year, about 12 months after the surgery, I have developed unbelievable pain in and around the area of the PM, including my ribs and shoulder. I am being scheduled for a PET scan to check for breast cancer mets, but my oncologist thinks, ...

Posted by Topaz on 2016-02-05 16:13. 2 comments. 90 reads
Hi Everyone! First post - pacemaker done 1/6/16 Age 79 have not got energy back yet. Had one visit with cardiologist - saw some surgical site swelling and some above collar bone which they say is of no concern. I am 4 weeks post surgery and they say 8 weeks total before i can raise my left arm above my head.
Mainly would like to know how others have progressed with getting their energy back. Thanks a lot. .....Topaz

Posted by lady4law on 2016-02-05 16:13. 1 comments. 75 reads
I may have to have radiation to my chest, and was wondering if any one here is a cancer survivor and undergone radiation to the area of the pacemaker. I am concerned the PM may burn out, short circuit, or something worse, during or because of the treatments

Posted by dottodot on 2016-02-05 15:20. 4 comments. 137 reads
I've had my pacemaker since 2009 and have had intermittent episodes of paroxymal atrial fibrillation. With pretty much maximum medication I had done very well for quite a while and now having increased burden of PAF with more symptoms. The EP is talking about possibly doing an AV node ablation because of symptoms but would not change the medications I'm on because of my complex rhythm issues. I have sick sinus and episodes of VT which have also increased. He has never been willing to look at at a complex ablation for atrial fib. Does anyone in the club have information to share. I'm reluctant to go for av node ablation right now because I'm only in atrial fib about 2% of the time but am symptomatic when it occurs. I'm in the stage of colle...

Posted by MaryAnn on 2016-02-05 14:42. 3 comments. 69 reads

I would like to have my spider veins removed using an IPL laser. It does not have radiofrequency. The medical spa where I am thinking of having it done does not know if it is safe for people with pacemakers. Does anyone know if it is safe to have this procedure done with a pacemaker?

Posted by Suz2015 on 2016-02-05 13:22. 15 comments. 338 reads
Wondering if most folks with a PM wear a med alert "charm' ...not sure if I should...

Posted by on 2016-02-05 11:03. 0 comments. 26 reads
I had a defibrillator inserted in May last year, my left ventricle is damaged so I had to have it put in. I get very sharp pains all the time, it looks bruised and the wires are poking up on the side, they also say I have a pulled pectoral muscle, but can not go on pain meds, only paracetamol, which does nothing at all. Saw cardiologist in December and he is referring me to the Cardiologist who deals with Pacemakers to have a look at but I am getting nowhere with this. All I want to do is rip it out. Can anyone help me with ideas

Posted by IAN MC on 2016-02-05 08:47. 13 comments. 305 reads
There is an interesting report in the UK press this morning where comments from two UK cardiologists are reported.

Both state that the business model for PM manufacturers is not working in the best interests of pacemaker patients.

Batteries used in PMs last usually between 6 and 10 years, then the PM is replaced and that is where the manufacturers make their money. The manufacturers are refusing to use batteries with a much longer life ( and these are available apparently ) in their pacemakers/ ICDs because they have no financial incentive to do so.

These two cardiologists state that it is wrong that patients are being exposed to surgical risk by far more frequent PM replacements than is necessary. <...

Posted by Bernard on 2016-02-05 06:02. 5 comments. 123 reads
Over the past few months my heart has been beating at up to 84bpm when at test, even though my pm is set at a minimum of 60 bpm. My GP read my pulse at 84, thought this was strange and sent me off for an ecg, which showed 68. And I was sent to see the Cardio. The pm was tested and declared OK. I tried to get an explanation about the high readings, and was told that these may be due extraneous factors, such as a possible virus. Generally however the pm was working very much within the normal range. Prior to these high readings, my pulse was pretty much always at around 60 at rest.
Anybody had similar experiences or, clues as to what might be going on?

Posted by Brendan24 on 2016-02-05 03:02. 4 comments. 185 reads
I’m kind of new to this but I figured I would post something. When I was little I grew tired all the time, but never while playing the game I love. Baseball. Eventually doctors decided it was time for me to get a pacemaker when I was nine, and asked me what my dream was. I said I wanted to play college baseball. The doctor looked me and my parents in the eye and said that was unlikely with your condition, and will be risky as the level of play increases. That’s when I decided, that I was going to do it. To a nine year old a pacemaker was an odd thing, and even more odd as I grew, with my shoulders exceeding the length of my wires. Turns out my wires began to crack and no longer had functioned, causing me to sleep everywhere I went, ess...

Posted by anniesu on 2016-02-04 21:56. 4 comments. 174 reads
I have a comment I have had a ICD for about 3 doing great..I had to change heart doctors as mine passed question is about the fact I'm doing really well on taking troprol xl once a the new dr decided to put me on spironolactone 1/2 tablet a day and also Lisinopril 2.5 once a day..I always have a very low blood pressure so if I take these other meds I'm sure it will drop way down..I don't understand when you are having no problems and feeling good why do drs decide you need more meds...if they lower my blood
pressure any lower than 118 over 62 I wont be able to get around...why do they do this and I'm thinking I'm not going to do anything any different..what is everyone opinion of this ?I just turned 76 la...

Posted by memme on 2016-02-04 14:20. 5 comments. 157 reads
I had a pacemaker implant summer 2015 (with adjustment in October 2015), including a defibulator and a synchronizer. The last 2, 3 months I noticed my blood pressure on the rise. I have been taking lisinopril to regulate my BP for several years, but now it doesn't seem effective. The upper number bounces around 160-200, and the lower number is mid 90's. Any suggestions or explanations?

Posted by cam on 2016-02-04 02:00. 2 comments. 328 reads
I had a blackout on October 28th 2015, my 23rd birthday and the worst birthday ever!! I have only ever fainted twice in my entire life. Once two years ago when they discovered I had an irregular ECG and the second on my birthday. Other than on these two occasions I felt perfectly fine and had no health problems what so ever, growing up I had a good immune system too. Following my second blackout that I've ever had I was admitted to hospital due to having a very low heart rate and low Bp.. Little did I know that I was going to be told I couldn't leave the hospital without a pacemaker! This was the ultimate shock of a lifetime for me, you never think it's going to be you but when it is you want the floor to swallow you up and never bring yo...

Posted by davstecut on 2016-02-03 23:21. 4 comments. 193 reads
I have an occasional back problem and I like to hang from a bar, supposedly to stretch my back, and I have wondered recently whether this hanging with my full weight on my arms might be harmful to my pacemaker.

Posted by res519 on 2016-02-03 17:53. 5 comments. 276 reads
Hi all. I was so happy to find this group. I had my pacemaker implanted at the end of November. Physically, I feel great. Better than I have in months/years. Emotionally I'm a wreck. I'm so anxious about the device all the time - whether it's going to stop working or whether the leads will fail ....... Any time I feel different or sick, I attribute it to my pacemaker functioning incorrectly. I have never had cardiac problems in my life nor did anyone in my family. The symptoms I had were always attributed to something else as my slow heart rate was intermittent for some time. Nobody ever caught it when it was happening. When it was finally discovered I was in complete heart block - scared to death. Are my feelings "normal"? Ha...

Posted by Tnquiltqueen on 2016-02-03 16:50. 3 comments. 209 reads
Hello, I had my pacemaker/defibrillator implanted Friday. Friday through Sunday I thought I was completely cured and all was back to normal. Then Monday night I went out and the huffing and puffing returned. I was devastated and totally bummed out. A little history - 2013 for the year chemo then radiation for breast cancer then kidney removal for cancer and recovery. Had problems with shortness of breath and figured I was out of shape. It continued throughout 2014 and into 2015. By spring it was full force. Insurance would not pay for device. I literally sat in my chair in front of tv and got out of breath going to bathroom. Finally Jan 2016 my ejection fraction dropped enough I got my device. I guess I know my stamina is shot. Can someone...

Posted by adverme2 on 2016-02-03 16:40. 4 comments. 104 reads
I just got a pacemaker, about 2 months ago. I have some anxious moments, seems like my heart is pounding, little light headed, and then it fades. It seems like I get these under some stress, large stores, tight spaces with lots of people, complicated maneuvers with a school bus. Any ideas? I have several of these per day and they last for 30 seconds to less than a minute.

Posted by glennagain99 on 2016-02-03 12:45. 1 comments. 57 reads
Since I received my pacemaker 2 months ago my blood pressure is higher than it always had been. Not a whole lot But higher. Is that normal?

Posted by Grateful Heart on 2016-02-03 02:38. 2 comments. 96 reads

Below is a link to a youtube video made a few years ago by AHA and Elizabeth Banks (a comedy actress) on women ignoring warning signs for a heart attack. She does it with humor but the message is "Listen to your body".

I would think this should apply to men as well.

Grateful Heart

Posted by Sallychurch43 on 2016-02-02 18:49. 4 comments. 129 reads
Has anyone experienced pain in the esophagus and a pressure in the throat and chest I have a pacemaker defibulator

Posted by madbeach on 2016-02-02 15:06. 5 comments. 190 reads
Is it save to use a bathroom scale that measures body fat with a pacemaker?

Posted by tommiker70 on 2016-02-02 05:58. 4 comments. 246 reads
Well I just got an email with the results to my stress test. This is the test among others, that led to the implantation of my pacemaker on 12/4/2015. Does any one read the medical lingo? I don't. Does this sound like I was in need of a pacemaker right away. I know to late to second guess. But I can not help it. I went from the stress test to the ER, then the hospital for the pacemaker. No time to think it over. Her is what it said. "With exercise the patient developed high grade AV block with 4:1 AV conduction and ventricuular rate in the 30's with sinus tachycardea". OK I did have one instance of a near blackout, riding up hill on my bike. That is what lead my PCP to send me to a cardiologist. This pacemaker being put in has been a rea...

Posted by my4turtles on 2016-02-02 02:56. 6 comments. 484 reads
The last several months I have told my Heart Dr and pacemaker clinic I'm having chest pains and AFib.. They tell me to either come in to the pacemaker clinic or Transmit .. Same old story, oh everything looks good , nothing is showing up". . I have been telling them I know what I'm feeling but what can you say or do when they have a computer right in front of them .. It makes me look like a crazy Person.. Finally I was able to capture some AFib episodes on live AliveECG app and scanner on my phone the Dr had me get and I sent them to him.. He agreed I'm having Afib, and had me go into the pacemaker clinic.. As soon as I sat down it started up and they tell me ' oh everything looks great" no need to worry.. That's when I pulled up my app a...

Posted by Lindermae on 2016-02-02 01:49. 1 comments. 86 reads
Hello All, I was admitted to the hospital in February 2015 with v-tach. After all the testing, no cause has been determined. I had a Boston Scientific ICD placed and I take 75 mg. of metoprolol per day. Since around April I started getting shortness of breath on mild exertion. It has since gotten much worse, it can happen with no exertion. After many more tests, the doctors can see that my oxygen sat is tanking, but again no cause has been found. I was wondering if anyone in the community here has experienced this or knows someone who has similar issues. Thanks!

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