St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by shine on 2014-08-20 20:13. 5 comments. 76 reads
Can anyone offer any words of encouragement? This is my first posting but I have been reading the post for a few months now. This site has been very confronting but now that my procedure is in the morning I am on edge. I am a 39 year old female with cardiomyopathy and my EF has been between 17-25% for the last year or so and I have a bundle block. I am looking forward to my new life after the ICD is implanted but I have to admit I am scared of the pain because the device will be placed under my muscle which tends to be painful from what I am told. I just want to get the procedure over with so I can start healing and get on with my life. My husband and I have been married for 4 years and dream of having a child/kids and I hope that th...

Posted by DEAN on 2014-08-20 18:06. 3 comments. 47 reads
Hello Everyone
Thanks for all the help and support.
Dose anyone compete in Motorcycle Observed Trials or know anyone who dose with a PM.
My Doc says no but it's hard to give up something you love so much.

Posted by studamir on 2014-08-20 16:37. 0 comments. 31 reads
i just get my PM implant quite two months. after this i was an active sport practizer in many sport diciplines track and fields ( 400m) karting , basketball taekwondo martial art ...then due to my job i stopped doing anything for about 7 years even jogging i was so busy working.
so four months ago i was diagnose low heart beat 27per mn and the doctor said pacemaker implant, the placed my pm quite 2 months now , thank God thing happened well.i stay 2weeks in hospital just lie down , since i had to check with the dentist for extractions which i defenitely didn't after my implant surgery i can feel some palpitation when i am walking and when sleeping and i have very strong stomach ache.
can someone help me with ...

Posted by UKWorried on 2014-08-20 14:50. 9 comments. 127 reads
Dear all,

I've had funny turns over the years where I've felt unwell and lost consciousness. I have been diagnosed with vasovagal syncope plus had an implantable loop recorder put in my chest to record my heart.

I've just had another episode and my loop recorder recorded the episode - showed my heart slowing, a fifteen second pause (flat line) and then some erratic activity before going back to normal.

I'm seeing my cardiologist consultant on Friday (to talk about the pros/cons of a pacemaker) but in the meantime was hoping for some reassurance. The thought of my heart totally pausing for fifteen seconds has really freaked me out.

Thank you in advance.
41 year old female

Posted by Caity858613 on 2014-08-20 14:26. 5 comments. 89 reads
This is my first time posting or ever joining a group. I am 28 yo female who had to get my first pacemaker this week after being diagnosed with sick sinus syndrome and my heart rate staying in the 20's.My question is what will I feel the first week after having a pacemaker? is it normal to be more tired? This is all so new to me and with my age don't know anyone my age with a pacemaker and I am the first in my family, thank you guys!

Posted by Louiselily on 2014-08-20 13:28. 6 comments. 98 reads
So I'm 17 years old and you're probably thinking its a bit young for me to need support but I just need a friend to talk to. I was 7 months old when I first had my pacemaker fitted and I have had 3 operations and I am schedueled for another replacement next year. I lost my brother due to congenital heart block, which is what I also have. None of my family or friends have a pacemaker or know anyone with a pacemaker, and I always feel alone about it as if I'm different because there are a lot of activities that I have missed out on due to operations. I always feel guilty that my brother passed away and I lived because I have the same problem and I feel like its my fault, I just wish he was here so I could talk to someone because I sometimes ...

Posted by jimb on 2014-08-20 13:15. 1 comments. 52 reads
Good article on the dangers of antibiotics for cardiac patients.

Posted by Heartmate on 2014-08-20 06:16. 2 comments. 92 reads
I live in NJ and have been told by my doctor that i must now wait six months before I can drive again .
Is there an actual law?

Posted by azkaren on 2014-08-20 01:59. 3 comments. 87 reads
I had my pacemaker put in June 14. I have atrial fibrillation and very low heart rate. I'm healing well and adjusting to the new life. My heart rate can't be below 60 and reading other posts I understand that's just about standard. 135 is my maximum. I'm 68, a widow and I live alone.

Pretty much unexpectedly I find myself in a position where I need to know about having sex. My owner's manual suggests it is something to bring up with the dr., I don't see the dr for another 4 weeks or so and sure don't want to give a cold call to the staff. Are there specific guidelines I need to be aware of? Thank you for any help, truly. Karen in Az

Posted by Grateful Heart on 2014-08-20 00:37. 2 comments. 77 reads

You have been missed. When is the big event? We look forward to having you back full time.

Hope all is well with you.

Grateful Heart

Posted by Robert122085 on 2014-08-19 22:32. 1 comments. 37 reads
I just got my PM back in November and they are doing the MEB thing and I was wandering what I get for a rating through the va

Posted by phillyd on 2014-08-19 19:58. 2 comments. 102 reads

I developed palpitations & I have a pacemaker now They want to change it to anouther type >>>Because of the palpitation..Does anyone know what type they may put in...

Did anyone have the palpitation problem
Thanks in advance

Posted by Robind78 on 2014-08-19 19:46. 2 comments. 57 reads
Hi all. My husband has a st. Jude crt-d. It was implanted in June 2014. It was originally set at a low rate of 60 and a high rate of 120. The rate response is on. He was interrogated yesterday and they turned his heart rate up to 70 bpm because he was only being paced at 88%, not 100%. They want him paced at 100%. The technician said that My husband's heart looked better with an increased heart rate. He is now feeling light-headed at times. Is this normal? Will it just take a little time for his heart to adjust to the new rate? His voltage was also turned down to save battery life. Thanks for any information you can provide me.

Posted by doso1161 on 2014-08-19 13:05. 1 comments. 106 reads
My son has been passing out since he was 12. He is now 38 and has had his pacemaker for 9 years. That is how long it took then to figure out what was wrong with him. They told him he had Brugada, (Sudden Death Syndrome) and was lucky to have surrvied for 15 years before they found it. He has worked at a manufacting company for 18 years and the new doctor at Duke says if he wants to live he can't keep working there because the machines create so much electricity currents in the air and because of all the static electricity, it could stop his pacemaker from working and could not save him if he needed it. I might add that he has had it go off 6302 times in the last 3 months and has had his defibulator go off several times at work. They can't...

Posted by ID on 2014-08-19 10:53. 4 comments. 59 reads
Hello I'm a basketball player, I'm French, I was born like that sorry, and I want protection to protect my pacemaker when I play my favorite sport. I'm 47 and I'm in the competition at a small level. It's very nice to read and I hope someone can give me a run for my research. thank you in advance. David

Posted by Tattoo Man on 2014-08-19 04:45. 0 comments. 20 reads

....................Hi Pooks..I have tried to PM you and you don't seem to have picked it up.

I had an attachment on my computer that I cannot open. Try me here on PMC.

I hope you are ok.

TM x

Posted by ettmayr on 2014-08-19 02:55. 2 comments. 123 reads
Anyone heard of the new pacemaker that's the size of an antibiotic? Seemingly inserted in a patient in the UK and there are no leads as it fits right into the heart.

Posted by ettmayr on 2014-08-19 02:53. 0 comments. 29 reads
Hi all...I had my Medtronic pacemaker renewed at the beginning of July this year. All went well

Posted by ettmayr on 2014-08-19 02:51. 13 comments. 175 reads
I get frozen to the bone even on warm days. Is this due to my heart failure ?

Posted by ksybr10 on 2014-08-19 00:13. 2 comments. 116 reads
Hi everyone.

I'm 21 and had a pacemaker put in about a year and a half ago due to extreme complications with SVT. Basically, my heart rate would go up in the 200 beats and then I would pass out. Several ablation done thinking that would cure it, but unfortunately it did not. Several trial runs with medications, also did not work. So he thought it would just be best to go ahead and put a pacer in. Which it has done wonders! I haven't passed out! Although, my rate still gets a bit high.

Last few months we've had to change the settings a bit to find what would be best for me rate wise. Last go around really helped but now I'm still winded very easily. He said there's a possibility that the heart tissue grew up back and w...

Posted by Rooboy31 on 2014-08-18 22:32. 1 comments. 64 reads
Hi everybody , recently had my 3rd aortic valve replacement and this time needed a pacemaker also put in , just wondering if anyone on here has done bikram yoga with a pacemaker ?? I've done it for a cpl years and hope I can continue to do it ... Appreciate any feedback I can get thank you so much Steve

Posted by tennis4some on 2014-08-18 10:45. 3 comments. 128 reads
Last Monday I went in for an ablation. Then Tuesday a pacemaker was put in also, surprise!!! Then home on Wednesday and lots of pain and wondering what the ????
Finding your club is giving me some hope. I cannot go braless and I don't want to stop my tennis & active life. The comments by members concerning the bra strap and what to do is very helpful. So as I am recovering from all the soreness & just having this foreign thing in my body, I hope to discover what is best for me so that I can be back on the courts in 8-10 weeks.
I am sure the location of the pacemaker is necessary, but a man definitely cannot appreciate what women have to put up with to hang properly or maybe they do understand!

Posted by Jackw on 2014-08-17 23:41. 4 comments. 184 reads
If I have a slow rate, say 40 and I have a PM set with a 60 minimum, what happens when the PM fires because I'm running slow? My heart is still running at 40 so it will fire again soon after. Why don 't I wind up with an irregular cadence and a rate closer to 100? (40 plus 60?)
Maybe a dumb question.

Posted by Cincygirl28 on 2014-08-17 21:57. 7 comments. 200 reads
I have known about my heart condition (hypertrophic cardiomyopathy) since I was born. I was told about two years ago that getting an ICD would be good for me to get. I decided then I didn't want to get it because of the life changes and fear of it miss firing. I was never told prior to that, that I would need one. I was told this by a new doctor. I changed doctors because of my age. I had my yearly doctor appointment and he informed me that my heart muscle had gotten thicker and is strongly suggesting I get the ICD. I have never passed out and don't have chest pains really the only reason he seems to be suggesting this is because of the thickness. I understand this is not a good thing but I am afraid that if I decide to get this and I don'...

Posted by emilpacemaker on 2014-08-17 21:54. 2 comments. 128 reads
The doctors gave me metroprolol cardiosel 50mg and its twice a day... My blood preasure going 110/70 many times... But my problem is increasing of anxiety I dont know if its anxiety I feel hard to breath and always need deep braething... I have anxiety yes after my pm but its so different to now I feel week every day after I take this med... Also taking xarelto.....

Posted by Heartoheart on 2014-08-17 21:12. 1 comments. 65 reads
Mom (89 yrs old) had a pacemaker implanted a few weeks ago. All went well but she complains of shortness of breath and dizziness. She has been taken to ER twice and has seen her cardiologist several times. All tests and exams show no issues. Now she is afraid to be alone at all. Anyone have a similar experience?

Posted by Goo5e on 2014-08-17 19:34. 2 comments. 203 reads
Hi Everyone

I didn't expect to be joining the pacemaker club but here I am. I'm looking for some advice as am having a few problems. To give a bit of background...

I'm 41 years old and have suffered with ectopic beats for about 15 years which were managed with beta blockers until about 2 years ago when they improved to the point I was able to come off the meds.

2 months ago I had an episode with an erratic heart beat with pauses lasting up to 6 seconds and low heart rate - about 38 BPM. These symptoms were completely new to me and I was feeling very unwell. After putting up with them for a few days I went to A&E as was getting quite anxious.

After ECGs, bloods and x-rays I was told I probably ne...

Posted by Vinnie on 2014-08-17 14:36. 0 comments. 45 reads
Hi Inga, I sent you a "private message" of thanks hope you got it ---( first time I'm using it ). Thanks again.

Posted by gdb on 2014-08-17 01:22. 0 comments. 90 reads
Hi, I'm new to the club and have a few questions. Here is my situation. Seventeen years ago at age 54 I had five bypasses. Fortunately I did not have a heart attach. I regularly have both radiation or treadmill stress tests.
I have had PVCs for years and they don't really bother me, but now they have increased to 38% of my heart beats. Sometimes three in a row. The doctors are concerned. This week they attempted to ablate them and were unsuccessful. When mapping the ventricle they found a number of small site but the main number of PVCs appeared to be coming from an area where the a valve muscle attached and didn't want to disturb the valve. While they were in there my heart rate dropped to 30bpm. Normally my rate is in the 50s and ...

Posted by beantownrob on 2014-08-17 01:04. 0 comments. 113 reads
I got my first PM about a year and a half ago at the age of 45 to deal with a sudden 3rd degree AV block and the associated bradycardia. At that time my heart was otherwise healthy.

Shortly thereafter, I was diagnosed with Sarcoidosis (and am getting treatment). I'm lucky to be in Boston (which has a sarcoidosis center) and literally have teams of specialists working on my case, but in the last year and a half, despite treatment, my heart is enlarging and my EF has reduced from 70% to 38%. A few weeks ago they replaced my PM with a CRT-D because of the reduced EF and concerns of potential V-fib.

Since installing the CRT-D I'm having more frequent palpitations, light-headedness, lack of energy and difficulty c...

Posted by webguy on 2014-08-16 19:16. 3 comments. 215 reads
My wife has had a pacemaker installed. Several months ago, because of her lifting, gardening, etc she called in for a checkup when feeling weird. The doc said rather than just re- calibrating the device (normal), he recommended a new lead wire be inserted. He told us he would simply wrap the old lead wire around the pacemaker to prevent infection potential. Sounded kind of weird to me, but we went with this. He said if a new lead was put in, the potential of infection would be greatly increased. My wife did experience healing and the device is working great, however the complication is the swelling around the surgery cut site. About the size of an earthworm, and it gets irritated at times. What should I do at this point. Not ready to sue a...

Posted by OTANGEL3 on 2014-08-16 19:12. 0 comments. 55 reads


Posted by sunshine on 2014-08-16 18:42. 3 comments. 169 reads
Am new to a PM, just 3 weeks past. And has been an emotional time as my daughter (single mom) was moving to a new house. I was busy as can be this past week this past week and today the PM hit me, pretty good. Was glad to find this site and know that depression can be a normal thing. It was purely by chance that they discovered the low heartbeat - otherwise would have been on a plane for a board mtg and who knows what would have happened. Seems my body had been adjusting all along so never had symptoms. Still trying to get my head wrapped around what happened and the fact that I'm alive today because of the PM. THAT'S difficult. Have family history of SADS but not a clue as to what I should look for or tell doctors. And got diagnosed w...

Posted by DEAN on 2014-08-16 17:25. 2 comments. 100 reads
Hello Everyone
Hope Y'all feel as good or better than I. I've had my PM nine months now and thank the Good Loard every day.
What do Y'all know about arc welding with a PM. I have an Airco AC stick weder which I have need to use. My Doc said I should be OK to weld but so far I've been chicken to try.

Posted by Sheepwash on 2014-08-16 13:34. 0 comments. 89 reads
I have had my pacemaker for 5 years and 7 days ago had my yearly check up and was told that I have 15 years battery life left as it only kicks in occassionaly however I am getting like a tingling sensation on the opposite side of the pacemaker and sometimes get it in my arm is this normal?

Posted by cabbie on 2014-08-16 13:18. 3 comments. 102 reads
Hi I just got a crt-d two weeks ago and joined this club a few days ago. I would like to order a few items from the store. It says that worldwide shipping is available. I just wanted to confirm this because the USD8 shipping charge for manila seems a bit low. On paypal there was no button for international shipping though my address was clearly indicated. Thank you.

Posted by cabbie on 2014-08-16 02:10. 0 comments. 82 reads
Thank you Angry Sparrow for your response. I had actually written you a detailed reply but then pressed the back button by mistake and it's all gone now! Anyway I have to go for now so I will write longer another time.

I am pasting the cost of treatment packages from the Philippine Heart Center.
They have a new Medical Director so I am not sure if the prices will change. Other hospitals you may want to check online are the Makati Medical Center, St. Luke's Medical Center Global City, the Medical City and the Asian Hospital. These are all internationally-accredited hospitals which accommodate medical tourism. I am not very familiar with the last two hospitals on the lis...

Posted by flutetooter on 2014-08-15 23:08. 2 comments. 112 reads
After a winter season of unexplained lightheadedness and feeling occasionally out of it, I embarked on 6 months of doctor visits and a PM for bradycardia in Feb.; 6 "rec room" procedures [hysterectomy, hernia, & various prolapses] done in one surgery in July, and am now flying high and happy - having passed all my post-op checkups with flying colors.

I am now walking up the road hills in the dunes every day, starting core exercises, and going back to hydro strength classes at the gym. I fit in all my slacks, can reach down and paint my toenails, can go out for a walk without having a"babysitter" go with me, and am at my college weight. Modern medicine is wonderful!

I celebrated also by buying a Polar simple FT1 he...

Posted by Jackw on 2014-08-15 22:48. 6 comments. 185 reads
First post.
68 years old in good shape. Run, ski, hike. Still working.
Have 2x aflutter and also slow rate sometimes in the 40s.
Aflutter is generally under control with beta blocker but also take Xeralto blood thinner. Doc says I am stable so no rush but my HR will probably slow to an unacceptable rate in a few years.
So what do I do?
Doc recommends ablation and PM when I am ready.
The upside is I get off the drugs, esp the blood thinner.
He makes no promises that I will have more energy but I would hope so. I get a bit tired in the afternoon but seem to get over that later.

Anybody have experience with this situation?

Posted by Vinnie on 2014-08-15 20:07. 1 comments. 100 reads
Hi everyone. I need a little help. I'm trying to understand the Rate Response on my CRT-P. My AV-NODE is ablated and I have a Consulta CRT-P. My rate response is set at "medium" and the Mode is set at V V I R. PROBLEM: When I walk at at steady pace after about 10 minutes I get fatigued and really don't feel like walking any more, I'm not out of breath; just fatigued. The same thing happens when I walk up a flight of stairs, about 20 steps. The CRT-P has settings of LOW, MEDIUM & HIGH on it. Since I"m now set at MEDIUM If I have it reset at HIGH would that help? Also what is Mode V V I R? The CRT-P is set at 60 BPM on the low & 130 BPM on the high. Any help would be appreciated. Thanks.

Posted by Acrising on 2014-08-15 18:34. 3 comments. 133 reads
Dear Pacemaker Club,

I received a biventricular pacemaker/defibrillator at the end of June. Beginning the evening of my surgery and continuing to this day, I feel a "flicking"', "ticking" kind of spasm in my left breast. I have told every medical person I have come into contact with and they say my device is pacing normally and it's probably just a temporary muscle spasm. Temporary, my butt! I still feel it and it is mid-August. Any one else experience this? I am tired of medical professionals making me feel like a nutcase. Help!

Posted by Rhansen1 on 2014-08-15 13:06. 5 comments. 185 reads
First off, thanks to all the folks that make this site possible. I just now came across it and so nice having others that can relate. I am a 44 y/o male on my third pacer device. The last 2 are and were icd's with the pacer function. My first regular pacer was implanted in 2000. In 2008 I was suffering from extreme fatigue and chest pains. I had just moved and made an appointment with a new Cardiologist. In short, I was informed I had several Heart Attacks, enlarged Heart, EF of 24% and I officially was diagnosed with CHF. The Dr immediately replaced my regular pacer with an ICD. 3 hort years after that it had to be replaced and new leads installed. Apparently the battery went quick due to some high settings and a shorted lead in...

Posted by ironmanjon on 2014-08-15 04:50. 9 comments. 249 reads
My consultant cardiologist has written to my GP following my last appointment with him. The letter includes:

"I chased up the details from his previous pacemaker check (when he was an inpatient) and this showed an atrial fibrillation burden of 9% ie pretty low. Interestingly he also had a bit of atrial flutter during the pacemaker check at which point his pacemaker was pacing at the maximum tracking rate. This was managed by reducing the post ventricular atrial blanking period and changing the pacemaker to DDIR mode."

I understand AF. I think I understand maximum tracking rate. The final sentence defeats me. Can anyone help please?

What is DDIR mode and what mode would I have been on previously?


Posted by slarnerd on 2014-08-15 01:23. 9 comments. 238 reads
Both of my kids have pacemakers and we do a routine Carelink check every 3 months, plus as needed if something seems off. On my old insurance, I never saw a charge for Carelink - not in a hospital bill or even on an Explanation of Benefits from insurance company. With my new insurance (still Blue Cross PPO but different plan through different employer), I have co-insurance obligations of 15% and I'm seeing Carelink bills. The hospital is charging $980 (per child) for each Carelink reading. I do not understand why this is so expensive - an in-office pacemaker interrogation and adjustment is billed at under $200. The few people who use Carelink that I have asked have reported lower costs on their EOB or not being billed at all for it.

Posted by bacquito on 2014-08-15 01:18. 3 comments. 116 reads
I recently had a Pacemaker implanted (3 weeks ago) and want to return to kayaking. I am not a white water kayaker but I kayak in a 17 ft. touring kayak. I kayak mainly to view marine life and kayak in a casual manner.
I know that my cardiologist is concerned about free style swimming because of shoulder rotation.
What experience have any of pacemaker members had with kayaking has I have describe it.

Posted by azviking on 2014-08-14 19:24. 2 comments. 184 reads
A website says PM leads are the size of cooked spaghetti. Wow. Without restricting normal blood flow in the veins?

Is the lead "screwed in" to the outside of the atrial, as someone told me? Are any attached to the inside of the heart? How?

It is difficult to imagine a doctor turning one end the spaghetti - even if it is stiff- so that after 30 inches of twists and turns it firmly attaches the other end to a muscle.

Is there a website that describes the mechanics of pacer implants?

My three month old pm is doing its job and my next appointment is in six months - so these questions are to satisfy my curiousity.

Posted by Oldbrit on 2014-08-14 16:51. 0 comments. 56 reads
My son sent me this last week and it was an amazing piece of info

Sound only-no video

I just got another pacemaker last year so maybe by the time it needs replacing this type will be available. Still lots of testing left but the Doctor at Cedars Sinai said maybe it will be available in 3-4 years.

Posted by cabbie on 2014-08-14 15:48. 1 comments. 118 reads
Hi. Just wanted to say that I had a CRTD implanted almost two weeks ago for HF with DCM. Still feeling sore at the implant site but it's much better than it was than last week. Freaked out at the thought of the leads getting dislodged and have been trying best not to move my left arm above the shoulder. I had cardiac cachexia before I agreed to the implant and so I am quite skinny at the moment and I can see and feel the implant beneath my skin.
Anyway I'm just glad to find this forum. I'm from the Philippines and here we pay out-of-pocket for cardiac devices so not many people get CRTDs. I feel fortunate to have one and I hope it will help me a lot. I have a Biotronik CRTD and am thinking of getting the CardioMessenger bedside moni...

Posted by Music on 2014-08-14 15:28. 2 comments. 97 reads
Hi guys, just husband had a "challenging & difficult" (doctor-speak) cataract surgery the other day, which in the end is a successful one, but I'm curious as the nurse told me the pacer function of his defibrillator kicked in during surgery...wonder why?

Posted by shirley d on 2014-08-14 15:01. 1 comments. 109 reads
I had my PM removed in Jan of this year due to staff infection. It left a mass of 4cm by 2 cm which has now disappeared after intravenous cloxicillan and oral rifampicin and levofloxin. My r atrium is now 3cm in diameter.
Just wondering: What is the normal size of a R atrium?
Resting pulse hovers around 46 bpm but could not lift it beyond 111 bpm, This isn't the end of the world, though I won't be running any marathons soon, so holding off on reimplanting.

Posted by Raw on 2014-08-14 14:59. 2 comments. 84 reads
Iam only 22 male implanted a device a year ago on July 3rd
I do gyming from past 3-4 months gained a bit of muscle
I have a little doubt if I continue to do gyming with some whey proteins powder is there any way that would harm me in fluctuating the heat rates or
Weather of disturbing the device from its place
You know I have to live long em 22

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