Posted by tigerlily on 2013-05-25 22:40. 3 comments. 25 reads
Has anyone out there had a pacemaker inserted on your dominant hand side? I've had a PM on the left for @ 4 months with terrible pain and left shoulder impingement. A different dr. wants to take it out and move it to the right side. The leads are causing pain, too. He thinks this change MIGHT help. I rest on my right side and am concerned about being able to lie on that side after re-placement.
Posted by flyboy on 2013-05-25 22:13. 1 comments. 10 reads
I have had my PM for two weeks, and naturally have lots of questions.
I read lots of good postings about vigorous exercise...amazing to a newbie like me.
My question concerns the g loading during acrobatic flying. Clearly the shoulder harness issue has to be addressed, but what about the sustained g loads, e.g., 10-15 seconds at +4 times your body weight?
My doctors said avoid jaring for 3 months, which I plan to do. But what then?
Posted by debbiedsd on 2013-05-25 20:38. 2 comments. 22 reads
I just had my pacemaker/ defib implanted on Wednesday and I am still in a lot of pain. It is worse today than it was yesterday and just wandering if that is normal? Thanks!
Posted by NWAKAEGO on 2013-05-25 20:11. 1 comments. 24 reads
DO THINK IT SAFE TO FLY 18000MILES TO AFRICA.HAD PC FEB 14TH 2011
Posted by NWAKAEGO on 2013-05-25 20:02. 1 comments. 16 reads
need insurance that is affordable but do not know how to go about it.help.nwakaego
Posted by Janey L on 2013-05-25 19:35. 3 comments. 84 reads
I'm still on a "high" after getting my new job yesterday!
So, this other news may be a bit of a shock to all. It certainly is to me!
On Thursday, the day of my job interview, I received a copy of the clinic letter my EP has sent to my GP....following my clinic appt with him on 13th May. Here in the UK they send the patient a copy of all clinic letters.
Fortunately I got the letter after my interview!
I had an echo scan in Feb. In this clinic letter my EP has written that the echo scan showed I have "mild diastolic dysfunction".
I had no idea what this meant as my EP had not told me about it in my clinic appt BUT he was reading the echo report on the computer for quite some ...
Posted by maryj on 2013-05-25 15:22. 8 comments. 101 reads
Hello everyone :-)
My name is Mary and I just was given a pm for bradycardia and syncope. I was perfectly fine until last friday when i thought i was having a heart attack and my heart rate never went back above 45bpm. I recieved the dual chamber pm on my 32nd birthday this last thursday. I am so glad i came across this site since no one i know has a pm(friends tell me about their parents and grandparents experiences) and i dont know what to expect with recovery really. Oddly enough the one question i really need answered is When can i put on a bra? Seriously, i feel like national geographic here just swinging.....i know tmi. I would like to go outside and attend church but, you know, the bra issue. Also, any tips on helping with rec...
Posted by shardlow2005 on 2013-05-25 09:44. 5 comments. 85 reads
Hi everyone my name is Sarah I live in the UK I have a son Sam who has recently turned 10 who has a rare Congenital Syndrome in which some require a pacemaker due to AV block and pauses over 3 seconds . Sam had his pacemaker fitted 5 weeks ago and he is doing both fantastically physically and mentally but I am a wreck inside . I know in my heart he is safer than he was before but my head is still in shock that he had to have one fitted . Sam is also Ventilated at night and has been so since he was born and I have coped dealing with medical equipment and even had to deal with a tracheostomy for 8 years until he switched to mask 2 years ago so why do I feel so awful about it all inside , I was wondering if anybody else has felt like this . ...
Posted by admin on 2013-05-25 07:54. 4 comments. 71 reads
Hello, attached below is a link to a short graduate research project by a student at the Medical University of South Carolina. The 5 question survey is in regards to pacemaker / defibrillator recall terminology. You may participate or choose not to participate in the survey. Thanks for your consideration!
Posted by heather1723 on 2013-05-25 01:36. 2 comments. 30 reads
Well I survived with no issues with my PM. We traveled to Denver, Gypsum, Beaver Creek, Avon, Vail, Leadville, Minturn, Camp Hale, Wolcott and Glenwood Springs, Co.
We even made the trek to the top of Independence Pass with an elevation of 12,095 feet above sea level.
I didn't have any issues at all, the PM worked like a charm and I made sure to drink plenty of water while out in CO.
I just wanted to thank all my fellow PM Club members who gave me plenty of great advice to handle the altitude.
Posted by Snlp on 2013-05-24 23:50. 6 comments. 80 reads
I had my PM 7 weeks ago and feel great. We were thinking about taking our boys to either Six Flags over Texas or Hurricane Harbor (Water Park) this weekend. Is it too soon for me to ride roller coasters or the slide and tube rides at the water park? Just not sure.
Posted by vleveille on 2013-05-24 19:30. 0 comments. 17 reads
New facebook group page for pacemaker peeps :)
Posted by SG9ordie on 2013-05-24 17:53. 1 comments. 41 reads
Has any one done any traveling buy car and used
their Merlin while on the road?
I realize the unit needs power and active phone line.
What problems did you have?
Posted by Janey L on 2013-05-24 13:43. 19 comments. 182 reads
I have VERY exciting news for you all......I've just heard that I got the job I applied for at our local hospital. Wow, I am SO pleased!!
I applied to join the Staffbank (bank staff, so you work when needed) a few weeks ago.....they want people for admin roles within the hospital. On the "bank" you can choose the admin jobs you want, some last a week, some a month, some several months. You don't get holiday pay or sick pay, but the salary is enhanced to reflect this. When one job ends, you can take on another. It is very flexible.
My hubby joined the Staffbank last month, as a domestic. So now we will be working in the same place (but different hours).
It is quite a long recruitment process. ...
Posted by BStanding56 on 2013-05-24 11:46. 11 comments. 156 reads
I have suffered with Af forthe past 4 years, had cardioversions and two ablations he last one was 16 months ago Recently I have been collapsing so it was decided that I need a Pm I am having a three lead pacemaker fitted in little over a week, I am confused as some people seem to recover reasonably quickly and others seem to be unwell months later. These may seem stupid questions but would appreciate some indication of what to expect. How soon after my pacemaker fitted will I feel like going out to do the weekly shop? not carrying it. Do I need someone to come in and do the cooking and cleaning. Am I likely to be in bed for a few days or up and about. I have an elderly husband who will help what he can but it would be helpful to have some...
Posted by CGW60 on 2013-05-24 10:48. 2 comments. 76 reads
You probably won't remember me but I used to be an avid member here back in 1977-1978 after receiving my PM and having some difficulties getting things adjusted. As things usually go, I adjusted to having the PM and life was good and little by little life took over and I just kind of faded off into the sunset.
Now, I'm having some trouble again and hoping you will accept me back and offer your sage advice that I value so much. Here goes:
Has anyone experienced anything like this? I started having increased PACs about a year ago. Very annoying to say the least. Had holster moniter, labs, of course PM interrogated several times. All my E P suggested was to increase tenormin dose. Didn't help so I ...
Posted by 3POD on 2013-05-24 01:26. 4 comments. 60 reads
Hi everyone, hope the world is being good to you. I am now 6 weeks pm insert. Am now anemic and unable to find where it is originating from. Has anybody else had this problem post op? Would appreciate any thoughts. Donna
Posted by jeanlancour on 2013-05-24 00:53. 2 comments. 56 reads
Always good to see what cardio doc has to say. Have afib and aflutter, will most likely always have it. Keep taking meds, if afib gets uncomfortable go to ER. How uncomfortable is to much, listen to your body, you'll know. When I come back from visiting my daughter, he wants me to go to cardio rehab to see if different levels of activity put me into afib. Apperently aflutter is just a basic part of my life. All in all I'm in good shape for the shape I'm in. He beleaves I should do anything I want to do, good thing cause thats what I do. My daughters don"t always agree, I told them even if I was wrapped in cotten batting everything ends, that also is a part of life. I also take warfarin, so don't worry about strokes. Most things that are be...
Posted by pacing94 on 2013-05-24 00:25. 8 comments. 135 reads
Brand new here. I'm 57, male, have a wife and 6 kids. 18 years ago I contracted endocarditis (sp) from some dental work. I had an aortic valve implant and 10 days later a pacemaker implant.
My pacemakers seems to last about 6 years. 2nd one in 2000, 3rd one is 2006.
I now have been told by cardiologist I need to upgrade to Bi-Vent AICD because my EF is at 20%. I'm very nervous and don't know what to expect on how I will adjust to the upgraded features (being shocked). Their literature is very unsettling, talks about shocks that feel like kicks, I could randomly feel dizzy.
I don't want shocks and symptoms of dizziness. I ride motorcycles, surf, very active at work. Doctor can't predict how the pacemaker will fun...
Posted by pkachel on 2013-05-23 22:39. 12 comments. 182 reads
Hi everyone :)
I just found this website and I am very thankful as I am not sure who else to get advice from except my cardiologist!
Recently I was diagnosed with complete heart block. I am 34 years old and have never had any symptoms (no dizzy spells/fainting/lethargy, and my job is very active). My cardiologist told me yesterday I should make a decision as to whether I should get a pacemaker or simply carry on with life without one - but I could suddenly 'drop dead' if I don't get one. You could imagine my husband's reaction sitting next to when when he heard that!
So, I am trying to start a family and I have a husband, which is swaying me towards getting one put in... but, if I have never had any symptoms is this too ear...
Posted by ANGRYSPARROW on 2013-05-23 20:38. 2 comments. 81 reads
On Memorial Day way back when, my parents lost everything in a flood. My mother and I were floating on our roof, a man with a row boat cam and helped us off the roof, into his boat.
The Salvation Army, gave my parents food furniture, helped them find a place to live. Every year this time I give thanks to the Salvation Army for a job well done. I know the donations I make to them go where I intend the money to go.
My birthday is coming up along with the anniversery of that huge flood. I still have a dresser the Salvation Army gave my parents back then. In those days people did not have renters insurance like we have today to cover such events.
P.S. I still will not live where I might risk b...
Posted by TheMagichatter on 2013-05-23 16:41. 5 comments. 175 reads
First off, let me say that I was absolutely relieved and elated to find this site. A lot of my questions have been answered yet I know I can come here in the future when other questions arise.
Anyway, I'm 31 years old, run/ride bike daily and had a pacemaker installed on May 17th.
Since the age of 5 years old, I would pass out and convulse with the onset of extreme pain or the sight of my own blood. For many years the doctors believed it was a form of epilepsy as it runs in the family. Through many tests, they never could prove this diagnosis.
Fast forward a month ago when I passed out after getting up in the middle of the night to go to the bathroom. My girlfriend took me to the ER were I was then a...
Posted by MWilson on 2013-05-23 16:26. 6 comments. 126 reads
I read a thread earlier this week about a member looking to get a tattoo over the ICD area and i figured i would ask my own specific question. Im 22 Years old, athletic build, and not 100% reliant on my PM. In fact, my main lead detached while playing hockey when i was 18 (i received permission to play puck from my cardiologist) and i didnt know it happened until i went for my monthly check up! I recently graduated from a 4 year school and i asked my parents if my grad gift could be a tattoo. I explained i wanted it to be religious and involve most of my upper chest (to cover the icd scar which has keloid) They didnt have a problem as long as i could convince them it wouldnt cause problems down the road.
Posted by ford truck guy on 2013-05-23 15:56. 3 comments. 32 reads
Hello All... just found this site and figured I should join.. Was looking online to see how bad an electrical shock could mess up my pacer and found it.. Just dealing with.. dual chamber pacer..A-fib,,C.O.P.D. and feel like *&$@.. not bad for under 50! well any way got a good jolt of 120V in the right hand to the left arm yesterday... rate is usually high so it still is..I assume all is ok? just had sopme tingeling earlier in left chest but all is ok now..
Posted by fishfighter on 2013-05-23 12:32. 3 comments. 102 reads
Just a quick update. Had the right heart cath done late yesterdays afternoon. Good new is that my heart output is fairly close to my numbers from last year. Not great, but making me hang in there. I'm still waiting for my crazy doctor to come in today to rub that in her face.
Now a bit of bad new if anyone here is on Medicare and ever needs to be placed on Dobutamine. Even though I been on it for the pass 16 months, for Medicare to approve it for me, they had to do that right cath to show how much I improve with it. So, I will most likely have to come back in a few weeks, get off the Dobutamine for a couple days and then do another right heart cath. Medicare will not take the test from more then 6 months.
I would of ...
Posted by sue uk on 2013-05-23 08:15. 8 comments. 149 reads
My heart rhythm is more irregular than usual today (permanent Afib) so much so l am not going into work (not like me)
l don't like giving in to it but l think it is probably sensible to let it have the upper hand now & then.
Just made me think about hospital appointments that l have not had this year.l had my valve replaced 25yrs ago & every year in January l have an "echo" to check its doing its job but no appt' this year so far, no appt to see cardiologist either just my PM check in July. l have tried to chase these missing appts' but my cardio' has retired & its impossible to get any answers from anyone, maybe l will try again today or maybe more sensible to wait until l feel up for the "Fight" :-)
The other thing that ha...
Posted by westies2803 on 2013-05-23 07:49. 2 comments. 77 reads
I have been advised that I require the above for a Paragangioma of the neck. I am still waiting to hear from my Cardiologist as to whether it is ok to have this procedure. It has always been my undrstanding that having a PM stopped you getting an MRI Scan. My PM is a Metronic Sensia SEDR01 if anyone could give me any information on the subject, it would be very much appreciated.
Posted by firstname.lastname@example.org on 2013-05-22 23:13. 3 comments. 70 reads
Recently read about Senior Body Building Champion, Ray Moon. He lifts weights, runs and competes. I had my implant Jan 18 and fear weight training because of the many cautions received from professionals. I am 70 trained for 22 yrs. I turn the page and there is R. Moon and photos with his PM clearly in view. Any comments please respond.
Posted by pacjer on 2013-05-22 22:44. 2 comments. 59 reads
I have just received a bivalve defibrillator in May of 2013 replacing a defibrillator I had put in in 2011. To think after all the yrs of muscle building and on and off weight training that my heart would have gotten the damage it did from a so called viral infection that also affected my kidneys.
Well it comes down to my weak heart caused my kidney function to falter to the point of being on dialysis for a time. I was taken off 3 yrs ago. Then they tied off the fistula in my arm cause of the size of it and it being somewhat of a strain on my already weak conditoned heart.
It's a bummer with all the thoughts I'm dealing with about being on the edge of impending doom and trying not to think about it. Simply due to the in...
Posted by Stephanie3 on 2013-05-22 21:55. 2 comments. 81 reads
Hey guys! Since the weather is starting to get warmer.. I have been experiencing some dizziness and sob.. I have been really good lately.. The only time I have felt horrible is when it starts to get hot out. I called the doctor to let him know I haven't been feeling good and he thinks its low blood pressure and being on a beta blocker makes your blood pressure even lower. I never had a problem with low blood pressure even had a title table testing done and it was normal .. I have been drinking tons of liquids and trying to eat some salt when I feel like I'm about to go down but it doesn't seem to help .. Does anyone experienced this? If so what other things can you do to prevent feeling this way or at least help it? I feel selfish trying t...
Posted by Grateful Heart on 2013-05-22 19:08. 1 comments. 49 reads
How are you?
Posted by Candykim143 on 2013-05-22 16:56. 1 comments. 27 reads
I'm 33 years old - had a pacemaker implanted in 2012 for bradycardia after my 4th cardiac ablation for tachycardia - my tachycardia is now back and I'm wondering if anybody else ever experienced this ???
Posted by 28sedan on 2013-05-22 15:50. 5 comments. 142 reads
Has anyone had a lot of sweating from the head and face. Shortness of breath all from a little physical work and some times at night I wake up all wet and quite hot. And have you been cured of this problem. I have done lots of searching on here and cant find some one who found out why. I have a dual lead and SSS
2 years now with the pacer
Thank you guys love this site
Posted by gcballard on 2013-05-22 14:55. 3 comments. 70 reads
Is it safe to use a chainsaw?
Posted by mytrose43 on 2013-05-22 14:44. 1 comments. 81 reads
Hello all been awhile since i posted just wanted to say hello and check in ,also wanted to say how much i miss reading electric franks post may he RIP. I just had my pacemaker checked yesterday seems all is well except i had 29 events of afib one of which lasted 7 hours and i don't even recall feeling it and my battery is good for a while longer its at 2.92 volts have until 2.81 volts before they think about changing it does not give a amount of time left i have a medtronic enrythum pacemaker. I seem to always change the amount of pacing anywhere from 80 % to this time 24.1 % which seems strange to me the difference but i guess the less I am pacing the better i guess that means my heart is doing a better job than it was before . Well thank...
Posted by Bikram on 2013-05-22 13:16. 4 comments. 144 reads
Hi everyone! I wanted to post this positive information, hoping it might help someone else who is having issues with their heart pounding. I had my PM installed in July of 2012 and ever since, I've had this incredibly uncomfortable pounding of my heart. Not all the time but off and on. Of course, it was really noticeable at night when I was trying to go to sleep. I was taking a Xanax every night otherwise I would not have been able to sleep. I went back to the PM tech a dozen times. I had my EP and another EP in this office changing the settings to try to bring me relief. Nothing. I got tired of taking Xanax because I know it's addictive so I stopped taking it because the tech told me to prop myself up on pillows and it might brin...
Posted by DOG72 on 2013-05-22 13:00. 4 comments. 70 reads
Had my P.M. Mar. !st. and was doing well.. But this last weekend i had the chills so bad that i could n,t stop shivering for the whole day plus achyness.. I wonder if any one has experienced this.. thanks for looking,Elle
Posted by Judewah on 2013-05-22 12:20. 5 comments. 107 reads
I'm a 48 yr old woman who was diagnosed with Lupus sle in 1985. Had a heart murmur since 1978. Had my spleen removed in 1985 while 5 months pregnant with a baby that had a complete heart block. They called what I had ITP. Then in 2002 I had complete renal failure and spent 3 months in hospital. Was released with a bilirubin of 21.7. After a few years of recuperation I started to lose weight rapidly and had frequent chest pain and abnormal selective swelling. Like one muscle i my leg or arm and knees. I went from 230 lbs to 130 lbs in 6 months. I went to the ER 18 times from April to October of 2009. Repeatedly I was sent home with pain meds and steroid pills. Finally I begged them to keep me and I soon found out I was in stage 5 lupus Nep...
Posted by lubro on 2013-05-22 08:49. 10 comments. 268 reads
just curious... anyone hear how things went for donr? haven't seen anything posted...
Posted by Chels on 2013-05-21 22:44. 1 comments. 60 reads
Hello all, just checking in to say I'm still alive and kicking after surgery. They extracted both leads, got two new ones and new generator. One lead totally fell about but doc got all but about an inch of it out. They accessed femoral artery and had some problems getting that to stop bleeding, got a couple units of blood and ended up in ICU for a night but things are going good now just sore.
One question for others who have had the femoral artery punctured- they said to watch for hard spots as that could be blood collecting internally. Well I have a couple lumps but they are not getting bigger so I'm not concerned but my stomach seems to be bloating and groin area uncomfortable. How did others feel and what post op symptoms d...
Posted by Mikerezzy012 on 2013-05-21 17:43. 9 comments. 133 reads
Hi I am 20 y/o I had surgery Friday I had a dual chamber pacemaker installed I don't feel mentally strong yet I get dizzy when I walk or when I'm up is this still normal It's not all the time only when I'm trying to do something fast I need severel opinions I just want to make sure I'm okay I have the bad av nodes by the way I just need help with my question will it get easier or better over time as I heal ?
Posted by fishfighter on 2013-05-21 15:48. 7 comments. 206 reads
I'm back on the Dobutamine as of yesterday. Today they put a picc line in. They are afraid of putting a hickman back in due to it might blow out the main vein it goes in.
Of course I had words with my crazy doctor and it still is not going good there. It really pissed me off. Yesterday, when I showed up for my appointment for 11am, she walks by me at 12pm and back again at 1pm. Around 1:30, a nurse happens to come by me and asked who I was to see. I told her and sure as hell, my doctor forgot about me.
Well, it goes that way again today. She crawfishes her butt again and again. God, I'm at my ends. Just unreal.
Now the bad side of things. Now that I'm under Medicare, I have to jumped thru all kinds of hoop...
Posted by God is Good on 2013-05-21 15:24. 1 comments. 92 reads
The Shock of My Life
Being born with a heart defect was just a blessing from God. At 2 months old I underwent transposition of the great vessels (Open Heart Surgery - Transposition of the great vessels (TGV) is a group of congenital heart defects (CHDs) involving an abnormal spatial arrangement of any of the great vessels: superior and/or inferior venae cavae (SVC, IVC), pulmonary artery, pulmonary veins, and aorta. CHDs involving only the primary arteries (pulmonary artery and aorta) belong to a sub-group called transposition of the great arteries (TGA) at Duke Hospital. Growing up having to watch my own self was what I did. Taking medicines everyday was the normal routine for me. Visits to Duke twice a year, tes...
Posted by Blue on 2013-05-21 15:17. 3 comments. 62 reads
As I have quite a few outstanding messages to answer to I decided to let everyone know the of my progress by posting this.
I flew to Melbourne for the day last Monday and saw the surgeon who will operate to do a biliary reconstruction on 12 June. The best new is that my eldest son will fly down from Queensland for acouple of days. My daughter will fly over later in the week to help my husband bring me home, hopefully, on 20 June.
Thanks to everyone for their support and good wishes.
Posted by sally thiele on 2013-05-21 14:21. 2 comments. 63 reads
I have been running 30 minutes with my pc. I am a 71 yr. old woman and have been running most of my life. Since the PC, when I run I experience pain in my arms and chest. It goes away half way through my run. Cardiologist suggested running in the cold, might be a cause but the temperature does not matter.
Posted by TraceyE on 2013-05-21 11:31. 9 comments. 178 reads
The latest on leadless pacemakers. Exciting!! It doesn’t work for anyone with existing leads or is dependent at this time, but this is a huge first step.
(edited to add link)
Posted by LiamD on 2013-05-21 11:25. 3 comments. 125 reads
Hi...This is my first post. I am 39 years old and was informed last week that I have total heart block and need a PM fitted. I was very surprised when informed as I feel as if I have never been fitter in my life.I Cross-fit daily and partake in numerous other sports.Does anyone else partake in Cross-fit and if so has there been any limitations in your training and level of intensity post OP??
Any advice would be welcome!!
Posted by God is Good on 2013-05-21 11:21. 10 comments. 181 reads
What is everyone's "mental status' with all these life changing events with your heart going on ? How do you feel mentally ?
Michael - NC
Posted by kjb on 2013-05-21 08:49. 3 comments. 67 reads
things are getting better :) pm fitted 2 weeks on wednesday and each day i do a bit more ive had a day at the seaside on sunday which was lovely to get out of the house after being stuck in for 6 months and also to walk ive been stuck in wheelchair for 2 months so things are getting there for me :) i do seem to struggle with the stairs it wacks me out when i get to the top for a few seconds and i get few flutters also sometimes in bed hearts fluttering a bit but apart from tht things are goin well im still waiting to get cardioversion done asap to sort afib side of things ... scars healing excellently hardly any bruising and soreness is easing too.. just a case of getting my confidence back i havent been out alone yet really scared about t...
Posted by conchfm on 2013-05-20 21:24. 11 comments. 181 reads
I am looking for answers to several questions.
Has anyone out there had Atrial Catheter Ablation?
I just had this procedure done 3 weeks ago.
My questions, how long did it take you to recover?,
I am totally out of breath with everything I do.
I am TIRED and EXHAUSTED all the time.
My doctors say this is normal and give it time, you had a major
procedure done, give yourself a little time to recover.
Anybody else had this done? How long to recover?
Posted by billylittle on 2013-05-20 16:23. 2 comments. 84 reads
Rate response is a tricky thing to get set correctly. I had to go for my second interrogation within a month of implantation. They said my device was very sensitive. I think they got it this time. Now I can feel a couple of beats that feel like they stumble when I come off pacemaker and back onto my SA Node. It only does it for two or three beats and then the pacemaker kicks back in. Its annoying!!!
Posted by punkie71947 on 2013-05-20 13:13. 4 comments. 193 reads
It has been a while since I had my PM put in (April 2010). I have struggled with it and finally got used to it. I a tired all of the time and I thought that it was because of the Afib & the PM.
Last Thursday night I felt very bloated, could not get a good breath and was extremely weak.
I saw my doctor Friday morning and he said that I was in congestive heart failure. He prescribed lasix & potassium, sent me for blood work and a chest x-ray. Today I have a heart echo and the veins in my neck check.
My question is.......can congestive heart failure be cured or control? I never have a good day and I am only 65. I feel like that I am losing this battle. In my profile I posted my heart history if you would li...
Posted by francine1 on 2013-05-20 13:02. 7 comments. 135 reads
Had my original pacemaker 2/2013.Long story short the first EP botched the surgery. My regular cardiologist ignored,signed off when there was a lead warning,and blew me off even after 7 appts with him and the Medtronic people over a 4 month period. I sought help at the Cleveland Clinic where I was not ignored, I was treated with respect, they listened, they validated my symptoms and more. On 5/1/2013 I was scheduled for an atrial lead extraction and replacement but when they saw all of the damage they extracted both leads,replaced them and placed a new pacemaker. What a difference in care and technique! I wish and pray for all of you have to have similar procedures the same quality and level of care that I had this second time around. Do y...
Posted by sueg815 on 2013-05-20 12:16. 3 comments. 84 reads
Hi, I have had a pacemaker for a few years now, apart from the initial upset at having it fitted I am accustomed to it. Does anyone out there know anything about Induction Hobs, we have to have a new one this year and I would like to buy Induction as it seems to be quicker (we have no gas in our village so have to have electric) and better but have heard adverse reports about pacemakers, although I go through security at airports with no problem at all. Any advice or help would be greatly appreciated.
Posted by davidtcpa on 2013-05-20 10:29. 4 comments. 132 reads
Is it me, or is it normal...
Every time I take my shirt off after a day of wearing it, I hear (and sometime see) the snapping from static electricity in my shirt. I have tried everything, Bounce sheets, fabric softeners, etc. No one else in my family experiences it except me.
Is it the pacemaker? Although it was implanted in 2006, I started noticing this a few years ago.
Anyone else experience this?
Posted by paperboy31 on 2013-05-20 09:41. 3 comments. 90 reads
Received my first PM 3 weeks ago after experiencing 3rd degree heart block. Very scary having never having a medical emergency in the past. Still trying to understand and accept the idea of living with my device. Should I be concerned about any restrictions physically, and how soon would be considered normal again.
Posted by fishfighter on 2013-05-20 07:26. 3 comments. 94 reads
I will be heading to New Orleans today. I have to meet up with one of the transplant team doctors. The one that gave me 6 months to live and the one that is a pain in the rear end. She is working the hospital side, but will come into the clinic to meet with me. She has some terms that she will demand before getting me back on Dobutamine. No telling what her demands will be, but if she tells me I have to go into hospice care, we will have a fight. LOL If her terms are reasonable to me, she will then put me in the hospital for the Dobutamine. That can be anywhere from 3 days to a week. I will keep y'all updated.
Take care and God Bless,
Posted by edejesus on 2013-05-20 04:55. 2 comments. 150 reads
So I just wanted to give my story and maybe throw out a recommendation. I just got my 2nd pacemaker implanted April 2nd of this year after having my old one for almost 9 years. I'm 23 and extremely active with sports and fitness and what not. So this time around I got this pacemaker sub pectoral. And I have to say it was one of the best decisions I have ever made. I can already notice a difference of it not being in the way and cosmetically it's awesome because its completely invisible. The scar is there sure but it doesn't bother me. The recovery wasn't as bad as I thought and had heard but the muscle was sore until about a week ago. I'm back to lifting again already and everything. I am completely happy with this and would recommend a su...
Posted by MsM on 2013-05-20 01:27. 2 comments. 89 reads
I know I haven't posted in a long time, but I do read the posts. I was implanted with a St Judes CRT-D in June of 2009, and have done very well, none of the issues that seem to be consistently discussed in this forum.I have no pain, no shocks, no worries! I recently went to see my cardiologist in Salt Lake City and miracles of miracles, he was able to turn off my pacemaker! My LBBB had DISAPPEARED! MY EF was up to 62% from 28%! So now I'm just on hold I suppose-battery has about a year left or more now that I'm not paced 100%. I think my doctor, for whom I have the greatest respect and confidence in, was surprised as well. I think the secret (at least for me) is consistency in medications and mild exercise ( I scour the desert looking for...
Posted by terrifreuler on 2013-05-19 21:06. 9 comments. 137 reads
Just wondering if anyone has the new Revo Medtronics MRI compatible pacemaker. They have my heart rate max set on 150 awaiting software upgrade approval from the FDA. Meanwhile it is hard to exercise (run or bicycle hills or sprints). My heart rate average during pretty intense exercise used to be in the 170's. Now when I hit 150 it splits and drops to 130 and eventually to 80. Anyone else experiencing this problem?
Posted by Tucker on 2013-05-19 20:55. 0 comments. 19 reads
i am 57 yo male post PM implant 3 mos. I have an unclosed PFO. I have experienced 3 episodes of AF post PM. Does anyone have any experience with the Watchman LAA Closure system to remove the need for anticoagulants to prevent stroke. Or anyone have an Amplatzer cardiac plug to close the LAA.? What about an Amplatzer Septal Occluder or Helex to close a PFO?
Posted by joyunderhiswings on 2013-05-19 20:04. 1 comments. 57 reads
I need to find another physician to manage my pacemaker, which had significant loss of battery life over my last two three month checkups. Does anyone recommend any cardiologist in the Lansing, MI area? I prefer NOT to go to Thoracic Cardiovascular Institute. Thanks alot!
Posted by goldenoldy on 2013-05-19 13:47. 4 comments. 135 reads
Hi all, my pm is working fine and seems to be doing all that's required. However it appears to now be nearer the surface than when fitted. My cardiologist thinks it may be because I've lost weight in that area, I'm not sure of that. However he has offered to re-site it deeper, behind the muscle? Has any one had this done? it has healed up really well and I don't want it to be a complication prone move, Its very tender in the area and the lead junction to the pm are very defined and sore to touch. Advice and thoughts welcome. Thanks. Brian
Posted by Hope on 2013-05-19 12:30. 12 comments. 206 reads
My fortunate time with my heart issues and device came to an end Fridy night. I am in the hospital getting lots of tests. Was lying down, and when I tried to sit up, the upper partof my.body felt.as though it was rocking intensely. I knew my surroundings, but everything was distorted and.moving. I fell back on the bed, and after several minutes of several episodes, I asked my husband to call paramedics. This was not a light headed medication event.from rising too quickly. Has anyone experienced this, please. I am usually pretty cool, but this is.scary
Thank you. Hopeful Heart
Posted by Loney on 2013-05-19 04:02. 1 comments. 100 reads
I have a St Jude model 5386 pacemaker implanted in 2004 and want to know if my device will sound an audible alarm when the battery gets low. My husband said he heard a beeping noise for a few seconds last night as I was sleeping. We are wondering if any of you know if it could possibly be my pacemaker. I was told on my last visit last week that I have about 3 months left on the battery and will now be getting checked monthly. However, my question is whether this model will sound an alarm? Thank you.