St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by 7pacersandcounting on 2015-05-28 17:23. 0 comments. 9 reads
After my sixth pace maker at age 56 my left arm started to swell
The Dr. said lasering out an old wire that was in the way of blood flow would help the problem. That was the biggest mistake. post op the arm was so swollen I couldn't move it, then I was told I had three brachial plexus blood clots and went on war fin for about a year. the swelling went down as my body made new veins to go around the clogged ones. They say the clots are gone, the arm was always still a bit bigger then before. Just in time for pace maker seven the LV wire stopped working so it had to be turned up "voltage". so I needed a new pacemaker. Now they said the sub claivain vein is totally occluded . so they couldn't get the new wire in and I didn't want laser. ...

Posted by goshenPacer on 2015-05-28 17:02. 0 comments. 3 reads
Pacemaker: Medtronic; 17 years; on 2nd pacemaker

My current cardiologist is board certified in electrophysiology. I will soon be moving to a new city and will need to find a new cardiologist. Should I make sure that the new cardiologist is a board certified electrophysiologist or is a (regular) cardiologist who is not a board certified in electrophysiologist but has worked extensively with pacemakers okay? Opinions?

Posted by busrider on 2015-05-28 14:08. 1 comments. 15 reads
I just returned from my first check up of the PM, one week after it was inserted.
Apparently everything is doing very well, and thanks to you all and your comments, I had a 2 page list of questions that were answered to my satisfaction. Without this site, I seriously doubt I would have thought of 3/4ths of them.
The incision is clean, no redness, and is not to be covered anymore, but I'm unsure if that is a good idea for sleeping. Will see if sheet bothers me at that spot.
So, onward and upward I suppose, although I'm still dragging a bit and when I go in for my 3 wk checkup, hope to be less 'draggy'.

Posted by wills57 on 2015-05-28 06:11. 1 comments. 21 reads
just now for the last few day i have felt like a muscle twich i have just had my pacemaker fited it is a 3 lead one

Posted by mytrose43 on 2015-05-28 01:54. 2 comments. 56 reads
Hi all long time no talk to ,not since I got my new pacemaker in Nov. since getting this st jude's I have been doing pretty good they changed my setting to 60/120 from 70/130 and I have barely needed the pacemaker maybe 5% with it on higher i was pacing 93% quite the change anyway my question today is I am scheduled for total a total knee replacement om 6/17/15 I asked about having a pacemaker and all they said was it was not a big deal that if anything they would just use a magnet to turn it off or what ever that does just seemed a bit odd to me has anyone had a total knee replaced and how did the surgery go ????? Thanks in advance.Valerie wishing everyone well

Posted by Marine1 on 2015-05-27 23:24. 2 comments. 26 reads
I had a 2 Lead Medtronic Pacemaker inserted just below my left shoulder 4 years ago next month June. I have been fortunate, in not having any problems at all. Having been A Combat Marine in Korea, I didn't have any fearful moments but some real concerns, at first. If there are any Marines out there, I'd like to hear about their experiences.

Posted by mnewtonsr2 on 2015-05-27 23:05. 1 comments. 36 reads
I went in for a check up and adjustments were made and now I'm having sharp pains in my left side of ny neck. Didn't have any problems prior to the visit, I think there were adjustments made, because I was feeling the pulse in certain positions, but the neck pain is worse than the anoying pulses once in a while. The neck is becomming a pain in the neck. Any comments

Posted by Debbie1956 on 2015-05-27 21:09. 5 comments. 152 reads
Has anyone ever had or heard of a pacemaker being installed with no anesthetic. Thank you

Posted by adinnin on 2015-05-27 17:08. 3 comments. 86 reads
Hi There,

So.. 43 years old and just had my first PM fitted... it was all a bit of a shock and then very rushed.. but it's happened.. it's in..

So I had the op last Monday 18th May.

It's sore. but that is to be expected.. I've got a lump underneath my armpit which is causing me discomfort.. I'm assuming this isn't normal..

Has anyone got any experience of this ?? I suppose I need to go to my GP, but that will take a week to see anyone !!

kind regards


Posted by SuzieQ1959 on 2015-05-27 15:12. 2 comments. 55 reads
does anyone know can we were a active edge bracelet with a pace maker ?? I just got my pace maker put in 3 weeks ago, and was wondering ?? Thanks Suzie

Posted by busrider on 2015-05-27 14:00. 3 comments. 98 reads
if the pacemaker actually works? For example, I often would find myself a bit breathless when I leaned over to tie my shoes and credited it with my age, weight, anything else I could imagine.
Today, I put on my shoes for first time in a week (sick of being a mess decided to get dressed and out of PJs) and since I'm still old, overweight and have to bend to tie my shoes, I found myself doing it without a single moment of breathlessness. It felt rather strange.

Is that the pacemaker working?

BTW, if I'm becoming a bit of a pest with all my questions, please let me know. I'm 6 days into having the pacemaker in, and find I have so much to learn.

Posted by Dannyboy on 2015-05-27 09:28. 2 comments. 101 reads
Newbie question:

I have a St. Jude 3 wire ICD. The RV wire is defective and needs to be replaced after just over 2 years use, which I'm told will be difficult because of scar tissue. My heart responded well to pacing during those years, going from a 20 EF to 55 EF and I never had the shock therapy.

My electrophysiologist wants to replace the ICD with a 3 wire pacemaker when he replaces the wire and I don't fully know why. (Aging memory?) He says my heart is stronger now and it's unlikely that I will need the defibrillator function in the future, plus it's a smaller device in my chest and will have longer battery life.

Why not just leave the ICD in place and change the battery, in case I need the defibril...

Posted by samie8276 on 2015-05-27 08:33. 1 comments. 72 reads
My mother is a week into her CRT-D implant. The "minor surgery" lasted 4 hours. Surgeon was not able to connect 3rd lead wire during surgery. At week check-up (today), Surgeon wants to schedule 2nd surgery to connect 3rd lead wire from a cut under rib cage on left side. My mother will not have 2nd surgery because she is in excruciating muscle pain. Pain started on left side of neck above shoulder and continues around and above ear. Yesterday, E.R. doctor took x-rays, and told her it was the muscles that were traumatized from the surgery. He gave her Valium. However, Valium and Ibuprofen are not relieving her pain. Today the pain has spread to the right side. Mom is 74 and can tolerate pain, but this is ridiculous. How ...

Posted by C130 on 2015-05-27 08:32. 1 comments. 63 reads
Hello to all out there!
Today sitting on bed about 6 ft. away from Boston Sci. Monitor the Latitude light that always stays a steady green went to a blinking yellow for about 10 seconds and the and the the whole monitor lit up like a Christmas tree for 2-3 seconds and turned to a steady green again and that was it. Didn't do it any more. Since I have had it in January it has never done that before. Has any one else had this happen before??. Didn't feel as though there was a problem with PM or heart. Just sitting there talking to wife.I have a regular PM I think a 6280 Boston Sci.
Thank you' Floyd

Posted by Mywingman on 2015-05-27 01:17. 2 comments. 70 reads
I am starting in to Aerobatic training. I have a two lead PM for a 2nd degree heart block type II. Is there a g limit on PM's

Posted by rebar1982 on 2015-05-26 23:59. 2 comments. 80 reads
Hello, I am new to this forum. I was told by my Doctor I would be receiving a remote device to monitor my pacemaker.I have not received this device yet, but I'm assuming it will be a 1150 modem. I do not have a landline in my home. I use cell phone only, but I do have a cable internet modem with WIFI.
Is there a modem available from St. Jude Medical that will work with WIFI, or will I be forced to install a landline just for remote monitoring of my pacemaker.
Thank you

Posted by Mama5a on 2015-05-26 21:14. 4 comments. 147 reads
Hello All,
I am new here and have been following a lot of the posts. I have a few question myself.... A little about my self, in 2013 I was diagnosed with Cardiomyopathy. It did not worsen until mid 2014 thats when I needed to get several surgeries after falling back in and out of Atrial- Fibrillation.

Then in February the Cardiologist decided I need a pacemaker/ Defibrillator. I received the new pacemaker and I knew something was wrong afterwards and they said I had fluid build up around the heart (they said it was nothing). A week later I went to the ER and they said a lead punctured my heart, and now I have been in and out of the hospital on a weekly basis, and I can no longer work.

Question One: Could a lea...

Posted by peach on 2015-05-26 20:52. 2 comments. 91 reads
All that I have read about pacemaker implants talks about slow heartbeat. I have atrial fibrulation. Is a pacemaker right for this problem? I have had 2 ablations.

Posted by Tattoo Man on 2015-05-26 19:34. 2 comments. 54 reads

...........I have just received a PM from Barry 1954....


..Well..Barry lives about half a mile from where I live...Cardio Mates....does anyone out there in PM Land have a PM Buddy that close ??

I knocked on his door this morning...he was out..I am no stranger to his kitchen table..

Barry is a Top Lad...

My best to you all

Tattoo Man..just down the road from Barry 1954

Posted by cody1975 on 2015-05-26 18:50. 9 comments. 132 reads
- and I am freaking out. Last one was 8.5 yrs ago, and this one is with a new doctor. I am a big huge baby about anything anesthesia (even locals at the dentist). They said I can be awake with four local shots, but the pocket itself won't be numb. Or conscious sedation, which means giving up any (false) sense of control. Somebody tell me you've been there!!

Posted by DanielSnedden on 2015-05-26 18:26. 2 comments. 132 reads
I had a similar thing happen to me. Statins drain the body of CoQ10 which is required for a healthy heart. I was on no medications when my family doctor put me on atvorstatin. After six months I became diabetic. After 3 years I had total heart block which continues to get worse. I am only 56 years old. No history in the family of heart problems. My family doctor is just a pimp for the drug companies. My LDL has never been over 163 but he said it should be under 100. It was 36 when I developed V-Tach and the doctor said to cut the pills in half. I had to have a different pacemaker implanted. The drug companies have known about this problem since the beginning. Had I known about the nutritional deficiency problem I could have stopped the st...

Posted by Merielle on 2015-05-26 08:28. 4 comments. 132 reads
Hello everybody!

My name is Merielle and I'm new here. Not new to pacemakers, but you know what I mean. I was 13 when i had my first implantation surgery (2008), and I really never used the thing. The battery lasted 6 1/2 years, and I just got it replaced with the fancy Metronic model this past march. Here is where things get weird: I've had this new PM for 2 months now and every night at 1 AM it paces me. Like a noticeable, uncomfortable, palpitation like feeling. Maybe it's the new model, but has anyone ever had this problem? It is SUPER annoying, and I hate it. Anyone??


Posted by NiceNiecey on 2015-05-26 00:52. 9 comments. 188 reads
Hello All.

I hope you're enjoying a relaxing day thanks to the many thousands we remember today.

I take a very low dose of Lasix (25 mg once a day) and wanted to buy some potassium to prevent any problems. I was surprised to see how many varieties there are! Potassium Citrate, Potassium Gluconate, Potassium Chloride and more. Does anyone have a suggestion on what type I should be taking? The doctor's office just said to take some but they weren't specific.

Thanks in advance for your help.

Posted by Kristine on 2015-05-25 22:22. 5 comments. 214 reads
I got pacemaker 7 years ago. Have about a year left. Do not plan to have replacement. What happens as battery dies?

Posted by Mazza on 2015-05-25 22:15. 4 comments. 128 reads
Hello. I'm new on here so please bare with me I had a PM fitted in February this year in Australia whilst on holiday. I've felt great until the last two weeks when I've gone from having loads of energy to feeling ill because I'm so exhausted all the time. I went for the PM check last Wednesday and was told by the nurse I have a state of the 'heart' PM but they don't use this model here and they will have to get the Biotronik person to come and show them how to deal with it. She told me they will probably tweak it to make me feel better? Any clues on this? Not only do I feel utterly washed out I'm also very nervous. Apparently the monitor box that I have by my bedside to send Data to where ever is not doing that at the moment. I'm not re...

Posted by berniewernie on 2015-05-25 19:50. 4 comments. 119 reads

Hello everyone I had a pacemaker revision on 11 May, so two weeks ago. The scar is fab hardly visible but I have a hematoma on one side and a smaller one the other.... the larger one is so very painful and my consultant has looked at it and said it should go down in 3 weeks... if not have to go back to him. I am taking pain meds 4 hourly and sometimes sooner as the pain is so bad. If I do absolutely nothing at all its not so bad but if I try and go about daily activities, within reason for post op, its unbearable. Any ideas as to what I can do to help me cope with the pain? I have read cold ice then warm towel but I am scared to do this as dont want to make it worse. Is it dangerous this hematoma? My consultant didnt seem over c...

Posted by nm on 2015-05-25 19:40. 1 comments. 92 reads
Can you have a Pet scan with a pacemaker?

Posted by RioAltar on 2015-05-25 18:06. 6 comments. 170 reads
I am a 73 year old woman, Barb, who has both bracycardia and atrial fib. My wound is healing beautifully-do feel like my pacemaker is gong to, by gravity, exit my body in the morning!!!!

My question is: My percentage of time my pacemaker works is 70% of the time. That just sounds like a lot to me and I was shocked when I learned this at my first checkup a week after the placement. Does anyone have anything like this number?

Posted by donr on 2015-05-25 16:30. 5 comments. 132 reads
...who will never come home. They are principally located in France, Belgium, the Netherlands, The Philippines and The UK. I know that there are more than a few in Germany & an unknown number in the Former Soviet Union.

They are American Soldiers, Sailors, Marines & Airmen buried in those lands from the days when we could not bring them home.

OTOH, we are hosts to many British, French, German & Italian dead from way back in history (well, at least the mid-late 1700's) when they participated in wars on our soil.

It's "Memorial Day" in the US, a relatively recent holiday when we stop for a day to remember those who have died serving their country. Every one of us reading & writing in this site have a...

Posted by jfasoneholder on 2015-05-25 15:44. 3 comments. 167 reads
I have a rate response Medtronic pacemaker which was implanted over a year ago for bradycardia. I have a basic understanding of the limits of RR and wish I had known before implantation so that I could have asked for one that has minute ventilation but that's history. I am a very active 62 year old female. I have had my PM adjusted numerous times to help me get more juice when exercising. I'm currently set at 55 for my lower rate and 160 for my higher rate with a daily living rate of 115. I have also continued to have them adjust the rate at which my HR goes up and I'm now at a 4 out of 5 on both lower and upper limit.
I have noticed over the course of the year that my HR rarely gets above 130 - 140 anymore, yeti used to when my PM ...

Posted by busrider on 2015-05-25 11:55. 5 comments. 191 reads
a shock from the PM and how would one know if it was a shock?

I had a sort of flutter and realized I was holding my cell phone directly in front of my PM (learning to break that habit) and as soon as I removed phone all was well. Was that a shock?

I have had several slight sharp stinging sensations in the area of my breast directly under the PM. Is that a shock?

PM site looking quite good when I have bandage changed, but shoulder and arm still aches without using Tylenol,

Posted by Chooka on 2015-05-25 10:18. 4 comments. 137 reads
I originally posted this on the Complications page, but maybe it should be here???

Hi all, I can't remember the last time I posted here (if I posted at all), but it would have been some years.

I have been pacemaker dependent for 30 years, since the age of 17 after having AV node ablation and removal of the SA node and I am now 47 years old. I have been on a single chamber pacemaker for the whole duration.

Last year I was implanted with Boston Scientific Vitalio (blended sensor) and it hasn't worked well since the day it was implanted. The minute ventilation sensor does not work and when it is switched on, also inhibits the accelerometer from working.

The only explanation I have been from BS has...

Posted by Chooka on 2015-05-25 10:12. 1 comments. 67 reads
Hi all, I can't remember the last time I posted here (if I posted at all), but it would have been some years.

I have been pacemaker dependent for 30 years, since the age of 17 after having AV node ablation and removal of the SA node and I am now 47 years old. I have been on a single chamber pacemaker for the whole duration.

Last year I was implanted with Boston Scientific Vitalio (blended sensor) and it hasn't worked well since the day it was implanted. The minute ventilation sensor does not work and when it is switched on, also inhibits the accelerometer from working.

The only explanation I have been from BS has been that they made changes to their device design which "affect a small number of patients". ...

Posted by islandgirl on 2015-05-24 23:22. 2 comments. 159 reads
I am 3 months post implant with a Medtronic Advisa DR MRI SureScan pm. Bradycardia with 6 second pauses and SSS made the pm an emergency. No heart disease. I've had 7 ablations over the last 11 years for 6 hereditary arrhythmias. I am an active 58 y/o female.
My last appt at about 6 weeks showed my pm atrium at 98.7% and ventricle around 12%.
I had a vibrating feeling from my pm the other morning before I got up. It lasted several seconds and felt like a vibration from a cell phone. It was very pronounced and strong.
I've had 3 episodes of 2-tone pairs of beeping since implant.
I called Medtronic about the beeping and they told me my pm was not capable of audible sounds and check with my md.
I will return for...

Posted by SAMMY on 2015-05-24 22:09. 1 comments. 119 reads
I'm a 70 year old male, both my father and brother had AFIB, I started having AFIB in '95, I've had two ablations (1st in 8'02 and the 2nd in 9'14) and got a pacemaker in 2011 because my HR was too low, the ablation & pacemaker both worked but beginning late in '14 I started having 'flutter' - the first round lasted a week and the second so far has lasted 3 weeks - I'm on meds but so far no luck

I'm pretty sick and tired of not knowing what tomorrow will bring and with all the meds.

I'm considering becoming 100% dependent on the PM and wanted your input.

I've read most of the blogs on this site and would truly appreciate your thoughts and comments.

Thanks - Sammy

Posted by turretshot on 2015-05-24 18:08. 6 comments. 141 reads
Hello my fellow mechanical cardiac citizens,

I will not lie, this sitting around waiting to heal rreeeaallly sucks rotten eggs. But the alternative is worse I guess. Had my pacer put in May 6th 2015. I understand the need keep from raising my arm above my shoulder it just is a real pain because I do most things with my left time. Even though I am right handed. I cannot wait to when I can begin exercising again, by walking to start. I enjoy being mobile, I am going on a family trip to Tahoe soon and do not want to disappoint my wife by not being able to hike and see the different sites. I have never been there before. Hope to hear back from others soon


Posted by Chris2015 on 2015-05-24 16:37. 2 comments. 124 reads
Having these episodes for over a week now, it starts with sudden dizziness and instant fatigue where I have to stop what I am doing it starts in my lower body goes to my head than down my back and ends with chills. I had bloddwork, chest xray, halter monitor test and the PM checkout out by St. Jude Tech, everything came back unremarkable. Have had the dizziness and fatigue in the past and it has always been an adjustment to the pacemaker, and went back to normal.
They have been saying I will need a new PM next year. One of the leads have been acting up, but they have been able to compensate with adjustments to the PM.
But they say all is well with the PM, and they suspect vertigo, due to a virus or something, I am ...

Posted by Darse on 2015-05-24 16:07. 6 comments. 104 reads
Do the straight spikes on an ECG show when it is pacing or does it show sensing too? At my post op checkup the ECG showed sharp straight spikes and the print out had medical implant rhythm - abnormal rhythm on it (not sure of the exact words, I do not have a copy of it) I am not PM dependent, it is on demand.

Posted by PMMom on 2015-05-24 08:01. 6 comments. 195 reads
Hi everyone! I'm new to the PM life, implant of my Medtronic Dual Lead MRI Sure Scan on March 27, 2015 which puts me a little over 8 weeks postop. The site is still very tender and I am experiencing sharp shooting pains all around the pacemaker and into my left shoulder. There is also a stretching or ripping feeling at times when moving my left arm. It is still very difficult to lay on left side or stomach. In addition to the pain, I cannot sleep. I haven't slept through the night more than 5 or 6 night since the surgery.

I am 40 yrs old and the PM surgery was decided after I fainted and fell causing extreme back pain. ER admitted me due to damage to the back and ended up with an 8 day stay in the hospital for bradycardi...

Posted by Bilbo on 2015-05-24 01:35. 5 comments. 146 reads

I am trying to train for the 40th MCM on 10/25/15. I had my pacemaker implanted 10/31/12 after over 15 years of Afib whch was finally brough under control after multiple ablations. it is my understanding that I am only paced about 20% of the time, so i still some function of my SA node. The last time I saw my cardio the St. Jud rep tweaked my PM so it would kick in quicker. she made it sound like that was about the limit.

Here is the situatuion. I have been exersizing for over a year, doing cardio/weights. I can get heart my rate up into the 130s on the treadmill, but get very winded very easily, especially on the track. After all this time and exercising, I can not run 1/4 mle without having to stop a...

Posted by busrider on 2015-05-24 00:14. 11 comments. 262 reads
I listened to my GP and my cardiologist and agreed that they probably were correct in that I needed a pacemaker and would have to us blood thinner medication.

HOWEVER----the more I read these comments the more anxious I am becoming, worrying now about things I wasn't told or even knew could happen, such as all the things that could go wrong and that cause distress and discomfort to so many of you.

With all the comments I've read I've managed to make a list of things that I will ask my cardiologist when I have my first check=up next week, and for that I thank you.

For those of you who have had long experience with pacemakers and have been able to lead reasonably normal lives, would you please comment on h...

Posted by Runningmama on 2015-05-23 23:42. 4 comments. 171 reads
Yes, I did it! Took me six months, but the impatient part of me finally took over and I slipped behind the little gadget detectors at the grocery store....he he he...the people would just not hurry I had an apple for lunch to buy and they needed to move it move it.

So, while going around the little gadget detector thing I hear this BEEP BEEP BEEP, he he he..I of course was coming into the store, so I'm not stealing that was obvious.I also don't look like a pacemaker having person and I have a Micra TPS which there is evidence of (less you see my card and xray pic on my phone)...

It was fun to hear the sound, thought I'd share my laughs, gotta get our kicks where we can!!!

AND, speaking on doctors, I am si...

Posted by jjiggers on 2015-05-23 23:02. 2 comments. 141 reads
I have a dual lead PM and just had my 6 week check with the EP. She reported that all was well and I was pacing at 66%. I reported that I am still having exactly the same symptoms that I was having before the PM...the feeling that I am going to pass out, that only lasts a few seconds. I started logging my "spells" so I could report them to her...she checked and saw that these were PVC's, and suggested medication. I thought the reason I had the PM installed was because the med's weren't working.

The "spells" don't really keep me from doing anything...I just slow my walk, or whatever I'm doing for a few seconds and it's over. It was just scary! That's why I went to the cardiologist to start with...The EP says, now that I have the ...

Posted by PAMMY on 2015-05-23 19:59. 2 comments. 80 reads
Happy Birthday Tat Man - now officially an OAP!! Hope you've had a good day. Keep on running!!

Posted by raiderralph on 2015-05-23 19:36. 4 comments. 117 reads
Any ideas reducing creatinine levels I was 1.47 slightly elevated and od does it fluctuate when you have CHF? As usual any information will be helpful

Posted by anniehall on 2015-05-23 14:56. 1 comments. 85 reads
We have a My Weigh Phoenix TBF 440 Talking Body Fat Scale which we have used for many years as a weight scale only. My husband had a pacemaker implant a few months ago I just noticed that one is not supposed to use above in that case. My question is since we never activated the body fat scale by setting up the measurements etc and there is nothing on the scale that indicates that this is active, is this feature still active by simply turning on the power????? Please respond if anyway have any experience with this issue. Thanks Annie

Posted by amlanda78 on 2015-05-23 14:09. 4 comments. 188 reads
I had my pacemaker replaced on March 9, 2015. I now have a Medtronic Dual lead MRI Sure Scan Pacemaker. I have been having some issues with it. I have been up all night with it shocking me. It hurts/shocks me in the same location. I can actually point to the spot on my chest with one finger. It hurts on the inner left side of my chest, where the leads are connected to the generator. It is even swollen a little. I do not know what to do. When it shocks me the pain is a 10. It is a holiday weekend so I am kind of stuck. Should I go to the ER? What can they do for me? Is it an emergency? I am wondering if the lead is fractured or if it is just on a nerve. If I lay on my side it shocks the heck out of me. I do NOT have a difibulator. I know if...

Posted by disova on 2015-05-23 12:51. 7 comments. 184 reads
I had a medtronic pacemaker implanted just two weeks ago. Soon after, I started monitoring my BP and pulse using the Omron HEM7114 monitor. After a few days and after some light exercise I noticed that the pulse indicated by the monitor was 37 when my PM range is 60-120 bpm. I went to my cardiologist and he had a PM interrogation done. Everything seemed to be OK except for a slight Arrhythmia, which he corrected by increasing the lower PM end to 70 bpm and some anti arrhythmic medication. Although I haven't had any symptoms when I use blood pressure monitors (I have two now) bpm are still at around 37 and only sometimes they get to indicate the set pacemaker rhythm. Are digital Blood Pressure monitors compatible with PMs? Should I be conc...

Posted by gordon on 2015-05-23 08:38. 2 comments. 99 reads
does anyone else have this problem as soon as I eat a normal meal l get very dizzy and lightheaded l am 84 and had my pacemaker fited last January and l never feel really fit got to
Have it tested next week at least I am still alive!just?,all the best Gordon

Posted by ironpacer24 on 2015-05-22 15:42. 4 comments. 192 reads
Hi everyone!
I'm new to this website, and I really look forward to interacting with people that have pacemakers just like me! First, when I was four years old, I went into cardiac arrest, and was told that I had a third degree congenital heart block that would need a pacemaker. I'm currently 22 years old, and I just received my 4th pacemaker in April 2014. Ever since I had this pacer put it, I've noticed that I'm not feeling like myself. After the surgery, I was in the emergency room twice. Once was for a severe rash all over the left side of my body, and the second time for severe pain. Since last year, I have developed severe fatigue, muscle aches and pains, blisters on my mouth even though my dentist says my teeth and gums are heal...

Posted by Chappel on 2015-05-22 14:50. 7 comments. 236 reads
I've invented a product for us with implanted pacemakers. Please e-mail this link to as many members as possible. If everyone on donates a few bucks, we may be able to get this project off of the ground. Please check out the link. And yeah, that's me in the video. God Bless.

Posted by yishathapa on 2015-05-22 14:14. 5 comments. 155 reads
Hi, i am 22 yrs old.i had my first pacemaker implantation in 2007. how long will the first pacemaker last?. I am living a normal life..i have to use computers and mobile phone every now and then at work. I heard use of gadgets lessens the pacemaker life. When and how will i know that i need a replacement?? Plz help me out. I am really worried these days. Thank you so much.

Posted by busrider on 2015-05-22 13:24. 4 comments. 236 reads
I have A-Fib and up until last week, just sort of ignored it, when heart raced and became exhausted I just went to bed, slept, and woke up okay. Thought of it as result of heavy work in yard and my advanced age and excess weight. Never bothered to discuss it with my doctor. (stupid, yes)

Last week, had terrible A-Fib attack, and for first time had excessive dizziness that would NOT go away. After a couple of hours I took BP and the lowest was 56/41 and pulse over 120. It finally rose to 88/56 and pulse 147. Finally decided I probably needed to call doctor, sent to ER, and it took until next morning to bring everything into proper line.

Apparently my heart stopped for seven seconds and other periods during heart...

Posted by Tattoo Man on 2015-05-22 10:48. 2 comments. 155 reads

.......This morning I received an invitation from my local hospital to attend a clinic next month to be screened for Abdominal Aortic Aneurism..

This service is offered only to men over 65...not women. It seems that 1 in 70 men will be found to have an AAA are SIX times more likely to be affected than women...( Why ?? ).

Risk increases with age and if family members have been affected. My Dad had a 'terminal' aneurism at a similar age to myself and had emergency surgery that kept him going for another 12 years or so.

When I had open heart surgery 8 years ago they also gave me an Aortic Wrap..( essentially a bandage ) round my aorta as it leaves the heart so maybe I have a propensity tow...

Posted by Spunky_1 on 2015-05-21 15:41. 8 comments. 238 reads
Good morning fellow pacers!

Quick question for my European friends - My EP has me on 4 drugs to slow my rhythms (Dixoxin, Cardizem, Pindolol and Flecainide). The only one I feel ever truly did anything for me was the flecainide.

Since Ivabradine was just approved here in the states last month my EP wants me to try it. I am game, but the issue is my EP has taken me off the flecainide - which has been working REALLY well for me - and left me on the other 3 drugs that I really dislike in order to try the Ivabradine.

I think I remember reading that some people take flecainide and Ivabradine together. Is this true?

I have a call into my EPs office begging him to put me back on Flecainide - just ne...

Posted by kennyg on 2015-05-21 12:39. 6 comments. 177 reads
Had the pacemaker replaced in December. The actual would, although it looks good, seems to be causing minor problems. Running my fingers over it is ok until I get to one point where it feels like a pin prick. Occasionally when I move I get a feeling like that of a scab not healing. Doctor is over 2000 miles away.
Except for that, all is well.

Posted by johnnyc on 2015-05-21 11:37. 2 comments. 204 reads
I have had a pacemaker for one year and 3 months. Recently I have experienced light headedness. In the last week, once on two days and three times on one day. My pacemaker setting is at 40 and only has to work only 2-3 % of the time. The pacemaker clinic want me to go to my family doctor and schedule an ECG. They will not check my pacemaker without an ECG since I just had the pacemaker checkup in January.
Does this sound logical?
Thank you

Posted by Chuyita on 2015-05-21 07:19. 4 comments. 207 reads
Hi, So im a Zumba Insctructor, im 25 and had the pacemaker surgery two weeks ago. I was wondering if anyone else has had way much more energy and more active in regards to cleaning, gettting things done etc...? Also if anyone has had any problems with going back to workingout afther their 6 week recovery, im so ready to get back to my Zumba Classes?

Posted by patrick_g on 2015-05-21 03:00. 1 comments. 168 reads
I am interested in being able to safely arc weld with no problems with my pacemaker/defibrillator. I have read the info put out by Medtronic but want more info, especially any info regarding commercial off the shelf protective clothing with shielding functionality.

I have read several posts in various locations regarding welding with a pacemaker ranging from DON"T DO IT!!! to I do it casually with no problems as verified by doctor downloading the pacemaker history file. I believe there is a truth somewhere in between these extremes.

I have read about people using lead vests ala the dental X-ray, people claiming copper is a good thing and on and on tantamount to garlic and holy water to deter vampires.


Posted by PaulFromSydney2 on 2015-05-21 01:32. 3 comments. 132 reads
For those with a Biotronics PM using CLS.
I had my 1 year check up yesterday. I told them that I couldn't get my heart rate over 130 even when running up hills. They had previously set my max heart rate to 160 so this was strange.

On examination they adjusted the max CLS rate to 155 (from 120) and I think the responsiveness? to high. I didn't understand there were 2 max setting.

Will see how it goes.
Still adjusting to the change (tired - felt deadful all yesterday) as the reprogramming loses the previous history / learnings. I hate how it does that.

Posted by rjsully on 2015-05-21 00:27. 3 comments. 217 reads
I haven't posted for quite a while. I have a dual chamber pacer now for aprox 6 months. I feel a lot better now that I have it. Way more energy, less dizziness, almost no "fluttering". My issue was bradycardia (rates in 30's/40's) with vasovagal episodes. I had SOB when I exerted myself (running) and would nearly pass out anytime I pushed myself or stood up "too fast". current issue is I have been trying for several months to "get back to my running" and I just can't get past 4 or 5 miles. I don't have the fluttering/dizziness anymore or even feel so much SOB. I just physically feel like I have to stop. I don't get this when I do other types of exercise (hot yoga/Vinyasa Flow/playing sports). I want to feel strong again ...

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