Posted by Poppet on 2014-03-11 16:39. 0 comments. 13 reads
It's been a long while since I've used the site for support and encouragement but, when in need, here I am again hoping that someone may help me better understand my situation.
I had a St Jude's pacemaker implanted in 2007. In December 2013 I was told the battery life was 9-15 months and that it would need checking again in three months time. I've been again today and it's down to 6-12 months battery life - as expected. I'm to go back again in three months. The staff are great and I have no complaints. I do wonder though at what point they may decide the next pacemaker is needed. How close to the wire re battery life do they go is what I am wondering? I'm pacing at 65-68% of the time for a heart block and the pacemaker...
Posted by jessie on 2014-03-11 16:09. 3 comments. 29 reads
for those of you know me you will know of the struggles with heart disease and poor circulation my husband has struggled with for years. well now he is having laser to help with the circulation to the eyes. the other day he went blind in one eye for about two hours. the doctor has said that he is not getting blood supply to his optic nerve. i never would have thought that this might happen but hey why not? apparently in eastern european heritage it is a trait some inherit from their parents very small capilliaries carrying the blood to different areas of the body. i am a bit shaken but to-morrow he will have laser surgery to try and arrest this and facilitate better circulation to this area. he has a good attitude and this really helps. je...
Posted by wjs1954 on 2014-03-11 16:09. 0 comments. 4 reads
Does anyone know how difficult it may be to switch office's. The office i go to just seems a little rude. Not only to me my insurance called me and said the office staff was rude a hang up on them. Had to have insurance fax the form to my wife's office so i can bring it Thursday to yhem to fill out. I know switching is probably no big deal but this is my first post op visit. Just hate to have to rip the pacemaker out of my chest if they get me mad ; ). Okay not really, but i am not expecting things to go well. Good thing i am 59 7/12 and have had to deal with """"" people before. Ok i feel a little better now. Life is good.
Posted by draegompf on 2014-03-11 14:26. 0 comments. 10 reads
Hi, How long does the medication Flecainide acetate take to leave the system? I am scared to take this medication because I do not know if I am having a palpitation for sure. I have a pacemaker this was placed in august of 2012. I was wondering if you feel a skipped beat or fluttering if you have SVTs? I do not ever feel my heart racing. I just feel chest pain. So, I felt fluttering the other day so It my med how the label said to do. I took 2 100 mg tablets the first day and then I am supposed to take 1 two times a day for 48 hours. I only took one yesterday and I am going to take one today. I do not want to take two. This med makes my body feel weird and y pupils dialate to a pin point. can anyone please give me some advice.
Posted by 3030wyatt on 2014-03-11 13:27. 0 comments. 10 reads
thanks for your replies on my last post.it has been a great help.since i'm new to having a pacemaker i have a lot of questions.
how do you know if you are getting interference to the pacemaker?
is there a way i can monitor this interference and the effect it's
having on my pacemaker?my heart rate is 60,should it be higher
and can it be programed and changed in my pacemaker?
thanks again tom
Posted by Heatherjane7 on 2014-03-11 13:04. 2 comments. 16 reads
Hi everyone, I've olny just found this club! Have had my Pacemaker for 6 years after finally being diagnosed with 2nd and 3rd degree heart block and it has truly changed my life..... I'm 47 now. I still have a few problems, at the moment I am feeling my pacemaker zapping me particularly at night which causes me some discomfort - does anyone else experience this? Otherwise on the whole life is good and happy to still be here!! :)
Posted by SirPedro on 2014-03-11 12:58. 2 comments. 33 reads
Hi Everyone! I'm coming up on having my pacemaker next month. Its been a very interesting year. I just wanted to drop by and say hello. I don't know anyone else in person that I can talk to about these things so I hope to talk to al you fine people here. :) Is there such a thing as a "Pacemaker birthday" if not, I plan on having a party!
Posted by Emmaline33 on 2014-03-11 09:50. 0 comments. 14 reads
I had my pacemaker fitted on 10th February this year and for the last 2 weeks have been getting some very sharp jabbing pains in my chest at the pm site which are gradually getting much worse and more frequent.
I have been back to the hospital at least three times but have been told that this is normal and just given stronger painkillers.
I do wonder whether this is perhaps because one of the bottom leads has not been positioned correctly which was discovered when it was tested immediately after the operation and at the time I was told that they would consider redoing the procedure.
I would appreciate any comments on the matter as I am extremely worried about it.
Posted by wdrsam on 2014-03-11 05:45. 3 comments. 66 reads
MY MOM HAD A PACEMAKER PUT IN ABOUT 5 MONTHS AGO. WE WERE OUT SIDE MOST OF THE DAY RACKING AND BURNING LEAVES. WHEN SHE WENT TO BED SHE HAD TO GET BACK UP DUE TO FEELING JITTERY, SHE GOT UP AND TOOK HER BLOOD PRESSURE AND IT WAS UP AND IT SHOWED HER HEART WAS/HAD BEEN OUT OF RHYTHM . HAS ANYONE ELSE HAD ANY PROBLEMS LIKE THESE. THANKS & GOD BLESS,
Posted by mehriar66 on 2014-03-11 01:05. 4 comments. 102 reads
My mother living in Iran and she had heart surgery .she has peacemaker in her chest.every 6 month she have to go to hospital for charge the battery.last week her doctor told her "pacemaker’s battery is not working and she has to find another battery but because of Economic sanctions against Iran she could not find good battery in iran.I want to buy a battery for her from Canada or USA and send it to her.I am Canadian Citizen.I am living in Vancouver.I don’t know how and where I can buy it.could you please give me some information about good battery and where I can buy it. Please contact me via a Private Message
Posted by Alan88 on 2014-03-10 23:09. 2 comments. 45 reads
Hello: I had a pacemaker/defibrillator implant in September. Lately I've had some pain in the area. Hard to describe - anyone else have pain 6 months after surgery? Also - I've been having some mood swings. I have a cardiologist appointment next week, so I guess I'll ask him, but just curious what others have experienced. Thanks -
Posted by JD50 on 2014-03-10 22:40. 5 comments. 112 reads
Hi. In oct. Of 2011 I thought I had the flu. Body aches, no energy, dizziness, etc. for the whole weekend. By Monday, I finally went in to the dr and by then , my heart rate was down to 30. I passed out and woke up in an ambulance, passed out again, woke in the ER. The next morning they put in a pacemaker. The bad part is they could find NO reason for my heart problem. I don't do drugs, nor do I drink alcohol. I do smoke cigarettes. My thing, is even after all this time, I find myself afraid I won't wake up in the morning. I have sick sinus rhythm . What ever that means . Sometimes I obsess about not living long enough to see my grandkids grow. I'm only 49. Sometimes I worry I may die on the way to the store. My pacemaker will n...
Posted by 3030wyatt on 2014-03-10 20:55. 3 comments. 84 reads
i just got my pacemaker last week and have been told i can't
work on a running engine.my hobby is restoring old cars and i
would like to continue doing this.does anyone know how i can
get around the this problem and still work on my car
Posted by brokenheart on 2014-03-10 15:33. 2 comments. 86 reads
Hello every one and God bless. I was just stopping by today to say hi and update you on whats been going on. I have not been on this site in a long while. Have had my ups and downs. I got my pacemaker replaced a year ago now. Still not doing so good. This is my third pacemaker. Still having times of dizziness and shortness of breath. Now my blood pressure is high all the time and makes my chest hurt more and more. Just got out of the hospital about a week ago. Almost passed out again. Same old. Now they say I may have heart failure if my heart continues to go so fast. My thyroid is also messed up. I am seeing plenty of docs soon lol. But even with all this going on I cant help to be thankful to God that I am alive and that everything happe...
Posted by IAN MC on 2014-03-10 15:15. 16 comments. 252 reads
I am in my 3rd year of having a PM which was fitted for Sick Sinus Syndrome and I have had Rate Response turned off most of the time as my HR seemed to be increasing adequately with exercise.
I am now wondering if I should have it switched on again as I believe that my sinus node is deteriorating . Easy question you may think ! Some facts I have picked up after loads of reading :-
- Chronotropic Incompetence ( i.e heart rate not increasing appropriately with exercise ) can be progressive and can worsen with time. If you have it, you need RR switched on ! One paper suggests that :-
- at implant, 42 % of PM patients show signs of C.I. and could benefit from RR being switched on
- after 2...
Posted by kcy48 on 2014-03-10 14:21. 1 comments. 51 reads
On DRUGS. COM it indicated that there may be a reaction (heart palpitations) to CIPRO if one is currently taking fluoxotine (Prozac). Has anyone experienced this?
Posted by jimm on 2014-03-10 13:46. 7 comments. 78 reads
I had my b-v pacemaker installed in November 2013. 5 weeks later the leads moved and so my Dr. had to do a reposition surgery 3 weeks ago. I just found out that for reasons they don't understand, the leads moved again. Is anyone aware of having the leads repositioned more that once? I have private insurance through my employer, will insurance continue to pay for multiple repositioning surgeries?
Posted by quickclick on 2014-03-10 13:04. 2 comments. 39 reads
Going for my first PM checkup Wed. Any suggestions for good questions that I can ask? I don't know if my examiner is a EP or not since this is all new to me. I will be sure to ask that question for sure.
Posted by BPM on 2014-03-10 06:52. 6 comments. 96 reads
Hi. I am about to have a PM implanted, this CLS does not seem to be frequently used, would appreciate info on this device, advantages, problems, reasons for choice of same, any one with this care to comment? :) Thanks!
Posted by Kriskent on 2014-03-10 05:06. 5 comments. 81 reads
Had a pacemaker put in December 10th. Since then things are better ( finally, it was a slow recovery for me). However the skin area between and just inside my left armpit right next to the pacer site is still somewhat swollen and it gets pretty itchy from time to time. It seems to get worse after there is friction, say from tighter fitting arm holes in my tops. The itching is more surface itch on the skin. There's no bump and not really any pain but it does feel a little tighter and more tender in that area then the other arm. My cardiologist thinks maybe it's from the healing in the pocket area. Maybe the scar tissue from the pocket site. She didn't seem that confident in that answer though. She seemed kind of puzzled. Has anyone else exp...
Posted by Unexpected Changes on 2014-03-10 04:55. 7 comments. 75 reads
I have had my pacemaker .. dual lead Boston Scientific .. for 15 months and all going well. I walk for exercise but wondered how others go by lifting weights etc at a gym ??? Appreciate feedback,. Patricia
Posted by beckyjo on 2014-03-10 02:51. 0 comments. 24 reads
Its been almost a yr since i had my pm placed. It feels badly bruised. Itches around the sight. It feels like its stabbing me. I feel it when it goes off everytime. I also have nerve damage on the side were i had it implanted that is my arm n leg. Nowim beeing sent wed. For an eeg. Due to this wht do i do? Im helpless right now. I cant work without feeling like im gonna passout or just cant keep movin without falling over. Im on 6 different medicines. I need disability. Im scared idk wht to do. Will i qualify for it???
Posted by kitkatrussell on 2014-03-10 01:49. 2 comments. 26 reads
To parents of kids with abdominal placement - for those of you who allow your kids to play sports, which protective gear do you use...padded undershirts? My 7 yo is starting baseball & has abdominal placement. We found what looks like a really good padded undershirt with pads covering the abdomen...now I'm thinking ideally we'd have one that covers his chest too. Our son's frame is so skinny, his heart is just as close to his back, and what I'm envisioning to help him would be like a vest to cover front & back! Would be pretty bulky.
Any suggestions from seasoned moms & dad's? Our son's PM was implanted 4 months ago & he has been doing much better with it!
Posted by Sethun on 2014-03-09 23:23. 13 comments. 201 reads
I have just been told by my doctor that he recommends a pacemaker for my low heart rate, 38 to 43 average, and then occasional spikes. I am 55, exercise daily, am not overweight and have not had any symptoms (no fainting, light headedness, etc). I saw a cardiologist due to other seemingly unrelated temporary issues, suspected virus, and was stunned to get this diagnosis. I am just miserable even thinking about the prospect of having a pacemaker implanted at such an early age. I am getting a second opinion and have started researching options as they pertain to devices and follow up. It's a bit daunting right now. Your comments and shared information is very helpful. Thank you.
Posted by Haleydl on 2014-03-09 20:44. 2 comments. 127 reads
Hi all. My mom recently had a pacemaker out in and has been hearing opera music off and on ever since. Has anyone else ever experienced this?
Posted by mytrose43 on 2014-03-09 19:49. 0 comments. 10 reads
I just looked at my bio and noticed it was not complete i know i did it many years ago but i just did it again since i was noticing several posts where people have not completed this ,Just so you all know it is very easy to complete only took about 5 min,So if anyone cares mine is current again lol, Just a quick thanks to all the kind folks on this board that take the time to answer so many questions and make people feel better , I read the new posts almost everyday and it never ceases to amaze me how much great info some people know and share ,Thanks Valerie
Posted by Janey L on 2014-03-09 19:21. 5 comments. 178 reads
Hi. For those that know me, I have a 5 year history of arrhythmias, ablations, PM....so I know when a heart rhythm is abnormal.
Hubby has no history of arrhythmias. He had pericarditis when he was 21, a result of glandular fever.
So tonight (UK) he has told me he has been feeling unwell since 11am this morning with palpitations. He was at work (at a hospital!!) & I was out all day...so we have only just caught up with each other tonight.
I have checked his pulse & shocked to find a very strange rhythm. Best way to describe it is.....it feels ok, suddenly goes fast, then goes really slow, misses a beat....it's all over the place. I've been checking it on & off for an hour & it is continuing. He feels unwell ...
Posted by energized on 2014-03-09 15:45. 7 comments. 80 reads
I had a pm implanted 2 weeks ago to treat bradycardia and so far am doing very well. I'm starting to realize just how tired I had been for the last year or 2.
Posted by trish on 2014-03-09 13:29. 3 comments. 93 reads
Have had pm 8 weeks controls bradycardia but now have runs of SVT and a fib in addition to increased PVCs. Was prescribed Rythmol Friday . Is any one else taking this drug? Trish
Posted by Tgirl77 on 2014-03-09 12:18. 10 comments. 253 reads
I am still having pain after 2 1/2 months from my pacemaker installment. Sometimes when I'm just sitting still, it feels like needles sticking me in my scar. Then when I move around the skin in that area feels tight. It just started a week ago from today(March 9, 2014). I don't know what to do! I don't have insurance! I am already 30,000+ in debt from having the pacemaker. I don't want to go to the doctor and have them
1. Put me more in debt
2. Tell me I have to go through this crap all over again(the healing, the surgery itself, which sucked in the first place, and laying up for 6 wks again)
I want to shut it off and be done with it. A couple of days ago I took 10 bayer aspirins all at once, and still had pain. I was hopin...
Posted by mrhanchang on 2014-03-09 08:52. 4 comments. 112 reads
My Medtronics dual chamber PM was implanted in 2005. I was told very likely I will need a replacement this year, 2014. My questions are
1. If I stay with same manufacture's product, do the leads need to be replaced?
2. If I switch brand, say Biotronics, do the leads need to be replaced?
Posted by lisa123 on 2014-03-09 01:40. 2 comments. 112 reads
I guess this is both about coping and getting checked out. I have a pacemaker check up this week and it's the 10 year mark bar a few months after I had it put in. I am scared for a couple of reasons. I only got it checked last year and there was still plenty of battery life there but now I've been feeling increasingly tired and my heart rate is lower than the set rate (about 40 rather than 50) which is way better than before I ever got the pacemaker. The thoughts of getting the battery replaced fills me with dread. People say it's a minor procedure and I'm aware that it's less than the first as presumably I won't need the leads replaced but honestly I am only recently recovering from the first implant, I found it traumatising, painful, an...
Posted by mother73 on 2014-03-08 20:44. 4 comments. 228 reads
We found out accidentally in February 2012 that our daughter has 2:1 (secondary degree) heartblock. She was 5+ years old at that time and is now 7+. She did not have any symptoms until recently. She has 2:1 block but occasionally she gets 1:1 (normal beat) conduction.
One week ago she complained of having pain on the left hand side of the chest area. We took her to A & E and after examining her and checking her heart beat (ECG) they told us that she had pulled a muscle and sent her home.
Her pain got better and she went to school over the last two days. Tonight before she went to bed she cried but said that she was not having any pain. We are not sure what's going on with her...
She is active and bright most of...
Posted by golden0072 on 2014-03-08 18:39. 4 comments. 169 reads
I am very grateful for this forum. I wish I could have contributed more, but I haven't had much time to myself lately. I have a quick question.
I had a dual chamber pacemaker implanted in early December. Initially, I had some complications with my incision, i.e. the stitches fell out on one end, and the knot on the other end had to be removed. I thought that the incision had finally healed and haven't given my pacemaker much thought. Two days ago, I started experiencing pain in the incision site. Periodically, I get a sensation like a pin or needle is piercing the area around the incision. I was curious, so I looked at the incision site, and I noticed a small red bump.
Upon closer scrutiny,...
Posted by Lindegard on 2014-03-08 08:44. 6 comments. 188 reads
I had few episodes of arrythmia a week ago and in hospital awaiting defib implant in 4 days. Having 2nd thoughts, fearful of shocks, dont think i can go thru with this. Would pacemaker suffice? Do not qualify fo like vest because episodes not ling enough.
Posted by Gigi200057 on 2014-03-08 07:47. 7 comments. 179 reads
Good Morning, I am getting ready to fly to Europe. very happy and excited. I had a Cardiac Arrest and by the grace of God I am here and with a brand new Pacemaker since Nov. 23rd. 2013. I feel great and would like to know about this telephone look alike home monitoring. I have a Cardio Messenger II, and would like to know if I should take it on my trip as well. I called the Dr.s Office and the nurse, with a heavy southern accent said no, but I was wondering, if this products would work well overseas. The key questions is probably, would it make any difference. Anyways hope someone can give me a good advice.
Posted by fender on 2014-03-08 06:48. 4 comments. 127 reads
Hi everyone, just wondering if anyone has a similar problem, i have sick sinus syndrome. dual pacemaker. have had an ablation for atrial flutter which was a success ,but then got afib really bad, went for a pvi but a blood clot was dicovered in the left atrium,went back three months later, blood clot had dissolved and pvi was done 31st oct.2013 ,but seem to have more trouble more afib ,severe chest pain, even when in sinus rythym heart feels as if its going to bounce through my chest ,cardioligist says everythings okay, yhat im getting ectopic beats but its been over 4 months and i am still suffering, i take sotalol 120mg morning and afternoon ,160 mg at night ,doesnt seem to be doing anything.Any ideas, cheers Fender.....
Posted by Dangerman on 2014-03-08 06:28. 10 comments. 176 reads
Posted by Ksturtz1 on 2014-03-08 02:11. 5 comments. 123 reads
Hi Getting my first pacemaker next week :-)
Any comments about this ?
Posted by Mooserunning on 2014-03-08 01:18. 1 comments. 98 reads
I recently had my second pacemaker (Boston Scientific) implanted about 2 months ago. About 2 weeks after implant I started having palpitations, flutter, and tachycardia is the latest which lasted for 34 seconds. The tachycardia makes me cough to get my heart back in rhythm. Doctor put me on medication to help with the arrythmia but doesnât seem to be helping. I had another arthymia that made me cough today. I sent the information through my Latitude but it didnât pick up on the irregular heartbeats. I am not sure why this is happening. My pacemaker is set with the rate response (DDDR). Has anyone else have/had the same problem? I have experience with the extra heartbeat but not these tachycardia and irregular heartbeats that I am havin...
Posted by AsphaltDr on 2014-03-08 01:16. 2 comments. 104 reads
You should see the expressions on peoples faces when I tell them my cardiologist put in a 3-wire PM; one for the top of my heart and one for the bottom and one to charge my iPhone.
It's something between shock/disbelief & how can I get one of those ;-)
Posted by Tgirl77 on 2014-03-07 22:39. 2 comments. 164 reads
It has been two months now and I am still having some discomfort in the scar area. Just a week ago I started having this sharp pain, like needles sticking me in the scar area. Have anyone else experienced this? How long does it generally take for the scar to fully heal?
Posted by manaman on 2014-03-07 18:11. 0 comments. 15 reads
Had breathing test today (at cardiologist request) to check out lung scarring. Results were minimal airway obstruction and caused by 25 years of heavy metal. exposure.
anyone know a good lawyer!
Posted by johnnyc on 2014-03-07 17:29. 6 comments. 118 reads
At my 2 week checkup for a pacemaker and two lead wires I was told to continue shoulder rolls and do slight left arm swings forward/backward.
The do nots include, lifting anything over 10 pounds with right arm (nothing in left) and do not raise left elbow above shoulder.
Is it normal to be very tight in the surgical area? Should I try to lift left arm out from body to at least waist level to loosen up?
Is there anything else I can do before that 8 week mark when I can resume normal activities?
Posted by mara324 on 2014-03-07 15:18. 4 comments. 68 reads
6 weeks post op, finally ran into something that caused minor intereference - my barbers 120V electric clippers. momentary light headed feeling, nothing severe.
6 week checkup removed all restrictions?
Headed to nuclear (chemical) stress test on 3/10, as my episode caused increase in Troponin - hoping for clean biil of health.
Posted by LisB on 2014-03-07 14:05. 7 comments. 214 reads
I'm at my primary care doctor's office and the nurse comes in to take my vitals. While she is taking my pulse on my right wrist, I tell her that I have a pacemaker. She drops my wrist and moves over to my left wrist and says, " Do you have a pacemaker on this side, too?" I didn't know whether to laugh or cry.
Posted by lizzie on 2014-03-07 12:55. 9 comments. 102 reads
Hi, I have a Medtronic Relia RESR01 which was fitted last year. Im have pains which I am convinced are linked to my gallbladder and I was wondering if anyone knew which kind of scans etc were safe if I were to go for investigations. I know and MRI is completely out of the question for any tests but what about other types of xrays?
Posted by Ericc123 on 2014-03-07 12:42. 8 comments. 150 reads
I am a 54 year old male who had been in Atrib-Fib consistently since Oct. 2007. I have been diagnosed (2007) with heart failure (cardiomyopathy), a low EF (20-25%) and an enlarged heart. In addition, my a fib has been having premature ventrical/atria contractions (PAC's, PAC's) with rapid heart rates greater than 170 bpm sporadically after wearing a 24 hour heart monistor. I have been cardio-verted twice in 2008 with no success and been on every known heart medication known. I have been extremely leary of have the ablation procedure performed because of success rates and the not being a good candidate for success. Recently, my cardiologist said it was time to talk with the firm's EP specialist and take some action. After a great deal o...
Posted by drew on 2014-03-07 12:29. 1 comments. 74 reads
Had my device put in yesterday. Discharged at 430pm. Only feeling the pain from the. At 6&9pm the device alarm went off. Again at 4&8am today. Contacted the Drs office. They will get back to me within 2hrs. Any ideas on what is going on?
Posted by ROBO Pop on 2014-03-07 12:16. 6 comments. 169 reads
I love all you guys and gals who post how you always ate right, exercised daily, abstained from caffeine, shunned smoking, and so on. Now you are here asking, why me.
You make me feel so good to know I didn't waste my life by partying all night, drinking, smoking, carousing, and eating whatever I wanted. We are in the same sinking boat, except I had a lot more fun getting here.
Posted by Rosie on 2014-03-07 06:38. 2 comments. 111 reads
Hi..! Am 35 years old and have had my pacemaker for just over 8 years and have no problems really but the last couple of weeks a haven't been feeling to good been very tired and getting a lot of palpations and chest discomfort I have been to see my GP and they have said that it sounds like the left side of my heart is struggling a wee bit! I was just wondering if there was any1 out there have maybe had the same problems in the past? Am hoping that it's just my pacemaker needing replaced and not anything else going on with my heart!.
Posted by youngheart on 2014-03-07 05:20. 3 comments. 57 reads
I have just had a Pacemaker fitted, I have been reading up on what I can do and what I should avoid. One point that stuck out on me was area's with high radio fields. I work in custody and as you can imagine there is alot of equipment in there that requires radio transmitters. Will this effect my pacemaker and does anyone have any experiance with this?
Thank you in advance!
Posted by sappy35 on 2014-03-06 23:12. 3 comments. 91 reads
Ok so i have a clot now which i am being treated with blood thinners but heres my question. I guess i grew new veins due to the one being blocked and i hate them, their all over the shouldet and chest on the side of pacemaker, saw the doc today and stated that once my vein clears that those veins should go away. Has anybody else had this happen and if so did urs disappear with time? I know this sounds silly but the appearnce of them really bother me.
Posted by Grateful Heart on 2014-03-06 22:56. 13 comments. 200 reads
My ICD is programmed DDDR. My question is....When your device is interrogated, does it automatically shut off Rate Response? I did a search on the forum and in the manual but can not find this addressed.
I have no energy lately and difficulty "catching" my breath just walking. Had a device check and the battery still has plenty of juice (happy for that).
I saw only DDD at the beginning of the test. I thought the problem was solved. I thought the rep forgot to turn the RR back on after my colonoscopy in December......at least that would explain it. My NP said when I saw DDD it was in test mode for the interrogation at that point. When it was completed, it did show DDDR again and I still have no energy.
Posted by kmom on 2014-03-06 22:28. 2 comments. 44 reads
I think i'm at least one step closer as to what's going on--Had a good conversation with the monitor lady this evening. They are getting my readings in on a daily basis and have had at least a couple of documented instances where my heart rate has dipped into the low 40's during the day! she was actually surprised and thought it must have been while I was napping--unfortunately I don't get to nap during the day! This final week she said to trigger, trigger trigger any and all instances for more documentation! They should have the final results within a couple of weeks if my dr. doesn't call before then. I'm so ready to move on! Thanks for all your support and sorry I'm such a whiner
Posted by nato on 2014-03-06 22:08. 3 comments. 63 reads
I know i had post this already but I need some additional clarification.
Can my son use one of those Motorized 6V/12V cars,the one that you sit inside and drive around without causing any interference to his PM?
Appreciate your response..
Posted by taylorsmom on 2014-03-06 19:24. 2 comments. 97 reads
Well we went to the children's mercy cardiologist.
It is the neurocardiogenic sncope. However she told us to tank up on salt and water. She wants her to do that for a month before she does the tilt table test. SHe stated she was sure Taylor would not do well on the tilt table so she wanted to wait. The echo came back fine and so has the majority of test. However,I am so frustrated with doctors that say well at tleast her test are normal. Yes,normal so whats wrong???? So when you finally find one that let's you know youare not crazy it is a breath of fresh air. This doctor told me she had not had someone that up on their childs care or educated on what coud possibly be wrong. I told her I am tired of my daughter going through this and ...
Posted by chuck on 2014-03-06 13:26. 1 comments. 60 reads
was not clear in my post yesterday trying to get an idea what oyther people are charged by clinics for merlin at home services
Posted by MRVista on 2014-03-06 10:59. 2 comments. 74 reads
I posted a few weeks ago and have seen the DR since. No improvements to my breathless and tiring easily.
He is having me come in today . A rep from Boston Scientific will be there. Hopefull like so many posts ive read here an adjustment can make a difference.
I am 85 and in good condition other then this. I have a veggie garden to get in, but it knocks me out. I don't mind paying for some help. I just don't last long out there
Posted by fishfighter on 2014-03-06 05:28. 5 comments. 151 reads
Just checking in. Doing somewhat ok, but having some real bad chest pains even right now. Been having a hard time sleeping due to the fact I been waking up not being able to catch my breath. Still doing the weekly Dobutamine infusions. They added more potassium and magnesium for me to take even though I been eating things that are high in both. Something about my body not extracting it normal. Just another side effect of HF. Of course when I wake up, the chest pains are supper high. Of course I been keeping this info to myself. I just don't want to put the wife under anymore stress. So I just pop a few niro's and hope I get some relieve.
My transplant team has been good, but I think they are starting to give up all together on m...
Posted by kitkatrussell on 2014-03-06 03:34. 0 comments. 29 reads
UCSF just gave me this info. for padded undershirts with pads for either chest & abdominal pacemaker placement:
Our son had his pacemaker implanted in Oct. & was just cleared for baseball!
Posted by etetski on 2014-03-06 03:10. 4 comments. 170 reads
Brand new medtronic pacemaker for sale 200k php only.
Posted by drew on 2014-03-06 01:56. 2 comments. 29 reads
Off to the hospital tomorrow to have my CRT-D surgery. Everyone keeps asking me if I'm nervous. I'm not nervous, just looking forward to getting it done. Have been waiting since June 2013. Have been off work since Sept 2012. After this is done back to cardiac rehab after 6 weeks. Then I think I need a long vacation. With other health issues, I'm doing things at my speed.
Posted by jdeezel on 2014-03-05 22:25. 10 comments. 176 reads
Hello, I'm 43, athletic, been a personal trainer for more than 15 years and healthy..I thought? Its a month today that my life changed. I had a PM installed due to Bradycardia. I haven't yet been cleared to work or workout, my concerns are there going to be limitations to my workouts. My workouts keep me sane! Opinions and thoughts.
Posted by dsgatti on 2014-03-05 19:09. 2 comments. 167 reads
It's been a while since I have been on site.
I am 64 years old in pretty good health considering
My pacemaker history: 20 years 100% paced on my fourth pacer
I have had 6 ablations for afib/flutter
After each ablation I would be OK (in sinus rhythm) for up to one year but each time Afib - Aflutter would come back.
I am done with ablations. I figure there is not much left of my upper chambers as I have been burned as high as 90 times during these procedures.
I am back in flutter right now and with that comes a lot of anxiety. I mean panic attack anxiety. I feel alone and ashamed that I cannot control my emotions. I am not sure what to do. I just went through 2 days of hell.
I do take Xanax .25 mg once a ...
Posted by wjs1954 on 2014-03-05 18:37. 1 comments. 25 reads
Pacemarker 02-24, 3.3 mile walk with the wife outside today. Getting ready for a 5K in 12 days, Just walking it most likely but it will feel good. Here is the link to today's walk with data thanks to garmin 305xt. Life is good ; )
Posted by WYknitter on 2014-03-05 17:18. 2 comments. 57 reads
I thought the upcoming Cleveland Clinic Health Chat would be of interest to PM club members. Registration is required (it's free), and registered participants can submit questions.
Web address: chat.clevelandclinic.org
Heart Arrhythmias and Device Therapy Chat
Take this opportunity to learn more about arrhythmias, including device therapy such as pacemakers and defibrillators, and have your questions answered by electrophysiologists Bruce Wilkoff, MD, and Bryan Baranowski, MD. Join us on Friday, March 21, at 2 p.m. Eastern Time.
Â» Learn more or register now
Â» Find more upcoming chat events
Â» View previous chat transcripts
Posted by Crowls on 2014-03-05 17:07. 1 comments. 104 reads
hi Guys. In hospital in Panama waiting for a PM to be in stalled.
HR 35-45bpm over past two years but first time a doc did an ecg and questioned it.
Anyway I am told I am getting a dual chamber boston PM. Not sure what model but assuming S603.
My questions are about geting back into exercise afterwards. Was always active and played comp sport till 45. Then mainly gym and cycling until it all got too hard.
Love the interval training for cardio and gym. what will happen when I go spinning or doing 1m intervals on treadmill?
I know I have to take it easy on the upper body for a few weeks until the injury heals. what else can I expect
Wayne - 54 yr old working in Panama
Posted by sportygirl on 2014-03-05 14:57. 5 comments. 124 reads
It has been 7 months since having my dual pace maker. I have frozen shoulder as a result from my last fall to the surgery. I did a lot of damage with no time to heal, hair line fracture to my sternum to severe whiplash and jaw injury to name just a few.
Please don't get me wrong l am grateful, but l feeling so down. I can not lift nor even reach for something for l can not put my arm out straight. Been to many Doctors and they all say the same thing, frozen shoulder and you'll have to wait it out. I do physiotherapy when l can afford it, for insurance ran out. Can anyone please tell me if they have experienced this. how long did it last? How did you cope? I am not doing well, I am getting more depressed as the days go...
Posted by chuck on 2014-03-05 13:24. 4 comments. 111 reads
i am charged 350.00 each time my clinic test and never get results
Posted by Mojo on 2014-03-05 12:50. 2 comments. 66 reads
Hi all! I am the lady that complained of dizziness yesterday and asked for suggestions. I managed to get into my cardiologist yesterday. They always squeeze me in when I call my wonderful heart doc's office. You were right Donr, it most likely is a sinus type infection or vertigo problem for which he gave me a prescription. I always think heart right away as I am still like a babe in the woods as it's only been 9 months since implantation. You all are so encouraging and put my mind at ease. Thanks for all the suggestions. And I am so thankful for all of you. Have a blessed day.
Posted by normsky on 2014-03-05 12:03. 3 comments. 76 reads
I had an ICD placed 12-31-2014, When I sleep on my right hand side I feel my device move in place as I move upward, as anyone had this happen before? It's the second time it happened. Is it normal or should I call my doctor? I don't feel pain or get any shocks.
Posted by pilarnusa on 2014-03-05 10:26. 7 comments. 108 reads
I have to tell you that I am been feeling much better, I am in 3 weeks since I got my PM third degree block.
Everything is starting to feel normal except for a very annoying feeling at night.
When I am asleep, it feels like the air is forced into my lungs and I wakes me up, normally my HR is fine, is just that extra breathing sometimes is only two short ones but sometimes is Long kind of painful.. Has anyone experience something similar to this?
Other than that.. no complains..Don any ideas?
Posted by kennedyg on 2014-03-05 01:05. 4 comments. 162 reads
So I'm at a hookah bar and they have non nicotine and non tobacco products that's fine right??
Posted by ejs on 2014-03-04 18:10. 4 comments. 112 reads
My heart checks out as okay. I had five vessel open heart surgery and there is only one small area that may not get adequate blood. The pacemaker is for brachacardia
You know the feeling when they turn up your pacemaker to see if it works, I seem to get that a good portion of the time. I wonder if the voltage is set too high. Recent changes, I have trouble getting my heartrate over 120 and just had the MV setting turned on.
7/11 Stroke, lost use of left hand and leg, while an inpatient they kept asking me if I was an athlete, my heart rate would go below 50 and that is when the machine beeps. While learning to walk and use my hand, fatigue, had real trouble getting heartrate to go over 100. I was 58 and was...
Posted by Stark on 2014-03-04 15:35. 7 comments. 89 reads
I had a follow up with my cardiologist last week and all restrictions have been lifted that I had to adhere to from the PM procedure back in January. He actually lifted them two weeks earlier then planned.
I returned to CrossFit on February 27th exactly seven weeks after the procedure and have had three WODS since then with one of them being a Team WOD with my wife. I have had to scale back the weights, reps, etc; but have had no problems otherwise. I'm not ashamed to admit that my first day back I RXed the WOD by using the female RX weight.
Posted by millerlana on 2014-03-04 13:13. 1 comments. 120 reads
I got my pacemaker in late December 2013 and am having residual throat problems. When I woke up after routine placement surgery I couldn't take a deep breath and swallowing was difficult. No anesthesia was used so I couldn't figure out what was going on. It slowly improved somewhat over the next weeks, but since then my throat has alternately felt "mushy."
I finally went to the ENT after weeks of pain in my trachea worsening with deep breaths or bending over. He seemed reluctant to relate it to the pacemaker insertion and suggested reflux or that allergies had caused my muscles to overwork in my throat. He used a scope to look down my throat and determined that my voice box and vocal cords are swollen. He sent me home wi...
Posted by 1977Scout on 2014-03-04 12:57. 5 comments. 206 reads
I was out in the desert this last weekend, and all of a sudden, I got a bunch of "flutters" and then a couple of real BIG heart thumps. I got light headed also. Got real scared, enough to call my wife to come out a 100+ miles to pick me up. I went to emergency, they put a monitor on, did a EKG, that showed tthese "bigeminies". I stayed in the hospital for two days so they could determine what the cause could be. Very scary.
Any input would be appreciated.
Posted by Mojo on 2014-03-04 11:19. 6 comments. 130 reads
Just wondering if anybody has an idea as to why I have been experiencing dizzy spells. I had a dual-chamber Medtronic Pacemaker implanted last June. I still experience -fib also. But the last week I have had these weird spells where it feels like a shade is going down over my eyes and I feel like the room is spinning. Sometimes I have a slight headache with it, but the dizziness is what bothers me the most. I am on Lisinopril for high blood pressure also, but on a low dose of it. The upper back of both thighs hurt also. Maybe I just need Spring to come a little quicker than it wants to, because it sure is cold here in Chicagoland. Anyway, just wondering if anybody has some ideas for me. Thanks all.
Posted by sue uk on 2014-03-04 10:48. 5 comments. 146 reads
Hi, just thought l would say a quick hello to everyone. Sorry l haven't been on the site lately, been very busy since December. We moved house & l now have my little country cottage, l love it out here,so peaceful but we did have flooding which is pretty common apparantly (now they tell us) but l had loads of sandbags at the doors which made getting in & out a bit like an assault course but it made me feel more secure.
Health wise l am doing okay & l am hoping all my friends here can say the same.
Well Tat & IAN hope you two are behaving (Not really it would only worry me if you were) l miss the banter we used to have but l am sure you have managed to replace me, but do they have SHEDS thats what you need to consider ? Now l ...
Posted by Sylvia1 on 2014-03-04 04:51. 0 comments. 38 reads
When you have VT ablation can they tell if it is a success straight away or do you have to wait till you have your ICD checked to see if you had less VT episodes?tks
Posted by Royale on 2014-03-04 01:16. 6 comments. 160 reads
I know this is a popular topic and thanks to Donr for his previous explanations - a wimpy beat followed by a strong one. Just curious though - does anyone experience them so strongly while lying on their back that their torso literally leaves the mattress by what feels like about 6 inches. Feels like what you see when they use a defibrillator on someone in tv shows and their body arches up. Has woken me from blissful sleep previously and happened to me while having a ct scan yesterday. My heart just wouldn't behave and I couldn't keep still for a few minutes as it kept whacking me (don't know how else to describe it). I put it down to nervousness about the iodine contrast, but that would usually just manifest as rapid heartbeat for me, no...
Posted by ginc on 2014-03-04 00:11. 1 comments. 76 reads
My mom has had her pacemaker for a couple of years now. A couple of days ago suddenly doesn't "feel well". Weak, seems confused, says she's in severe pain. Is in hospital now, all blood tests and xrays are normal. Can this be related to her pacemaker? Just wondering what any of you think.