St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by Tinkergirl on 2014-10-25 17:25. 2 comments. 22 reads
I am 2 1/2 weeks out from getting my PM and all is pretty good until this afternoon I bumped the edge of the PM, the part closest to your underarm. Man did that hurt and now it is pretty sore. Has this happened to anyone else? I am surprised at how sore it is making my PM pocket feel. It actually took my breath away.

Just curious as I hope bumping it was not a big boo boo.

Posted by APgirl on 2014-10-25 14:35. 1 comments. 54 reads
So- having had a fabulous new lease of life with my pacer in the last 4 years, I have been feeling tired, breathless and puffy recently. I ignored it, as most of us do. You would think I would have learned to listen to my body by now!

On Monday, feeling awful, I managed to get past the pesky receptionist and see a doctor. For those of us in the UK, it appears that the receptionist's primary purpose is to prevent you seeing a doctor. So I get in and see a locum, who transfers me straight into the hospital with my Bp dangerously high and Afib.

The wonderful NHS staff checked me from head to toe and the reason becomes apparent, Having had perfect plumbing, just dodgy electrics up to now, I now have an enlar...

Posted by jkdutta on 2014-10-25 12:23. 1 comments. 20 reads
I am having Pacemaker , Biotronik make Evia DR T since 6th June 2011. On 26th October 2014 Doctor has put " Rate Drop Response " ON. Will it have any effect on balance battery life ?
What will be expected balance battery life of the Pacemaker ? What is normal battery life of a Biotronik make Evia DR T pacemaker ? If it is required to change battery then only battery will be changed or the existing one has to be replaced with new pacemaker ?

Posted by danfss03 on 2014-10-25 11:32. 0 comments. 34 reads
Had my first pacemaker implanted in 2009, and I thought everything was going great. This was a two lead device, and the lower lead went bad a couple of years ago. We continued to monitor the device, both at home and physical visits at the doctor's office. Two months ago I did my home device check, and two weeks later I got a call from the doctor for an appointment, and since I didn't have one scheduled, I almost refused. Well went in, and the Medtronic Specialist did her thing, and the doctor came in for a chat. Well it appears my device was not pacing as required Not only was the lower lead not working, but the upper lead was pacing on a part time basis, and I didn't feel a thing. The doctor showed me the EKG and the heart had been skip...

Posted by kittykat48 on 2014-10-25 09:02. 7 comments. 72 reads
Hi, I'm having my PM fitted on 27/10/14 and as I was only told I needed one yesterday I'm still reeling.

Ive found this site very helpful in answering some of my questions but I still have one or two.

Does the PM device protrude from shoulder?
Is it uncomfortable and how long does it take, on average to get used to it.

When its healed is it possible to wear suntops in summer or is it too noticeable?

I'm used to sleeping on my tummy, I guess that won't be possible at first, but how long before I can sleep normally?

I know some of these questions seem insignificant but its what is going round in my mind at the moment.

I would welcome your advice as you have already g...

Posted by bstrong on 2014-10-25 08:44. 3 comments. 85 reads
== Begin quoted message ==

I am 38 and have had a pacemaker since I was 16. I was diagnosed with sick sinus syndrome and was told I needed this pacemaker because my heart rate got into the low forty beats per min when I sleep. I started to try to understand my situation more and some things didn't add up. My pacer was set at 75 beats per min and when he checked it one day I asked what my natural heart rate was. He said 65 and we found out that the sinus node in my heart is working. After doing some research it appears that sick sinus syndrome is not reversible. The dr said that my heart was healthy and I didn't need a pacer anymore. He wouldn't answer any questions and would not discuss whether he thought I ever needed it or not...

Posted by Enrique on 2014-10-24 20:58. 4 comments. 59 reads
I had a dual chamber pacemaker implanted 10 years ago. This was due to A/V block and sick sinus syndrome. I have had no problems with it, I am physically active. I am 66 years old.
During the last check-up they told me that I had a minimum of 4 months of battery life left. This is in addition to the 3 months of “reserve mode” that kicks in when the main battery is too low.
I am quite dependent on the pacemaker. When I first had it implanted my natural heart rate was in the 40’s. Now it is below 30’s, but it is not clear how much lower. At the clinic they didn’t want to test to find out.
The hospital folks told me that there are two ways to handle this:
1) Aggressive: wait until the last moment before replacin...

Posted by johnnyc on 2014-10-24 20:27. 4 comments. 49 reads
I had a pacemeker installed on February 18, 2014, approximately 8 months ago. Pacemaker is working fine, on demand setting and activates only 2% of the time when my heartbeat goes below 40 per minute.

I am still uncomfortable/tight in the pacemaker site but that will probably be something that I willl have to live with.
Prior to the pacemaker (I am age 67) I did 20 pushups a day and used my rowing machine twice a week for 15/20 minutes a session.
Rowing and pushups will put considerable pressure on the pacemaker site.
Does anyone have experience with these two excercises and how they might affect the scar tissue and 2 lead wires?
Thank you,

Posted by jue on 2014-10-24 16:43. 5 comments. 80 reads
Hi All,
I will be 9 days post pacemaker replacement surgery tomorrow.
As I have been good and not lifting my arm, my hair is a total mess.
I am planning to have a wash and blow at the hairdressers tomorrow to make myself feel better.
Is anyone aware of any issue with using a hair dryer straight after replacement?
Thanks peeps x

Posted by Eliprz52 on 2014-10-24 15:36. 3 comments. 38 reads
well after waiting many weeks i got the pacemaker.its one made by biotronik in lake oswego was done very fast.i remember talking the the people then woke up after they were was crazy cause i could feel some pain but i somewhat out.thestaff at kadlac were very i just have to adjust to living with the pacemaker.from reading the posts here it should go wife and family have been very supportive and can feel luck about that.

Posted by rolson on 2014-10-24 14:03. 7 comments. 116 reads
This has been a difficult year for me. My mother, who I was very close to passed away on November 8, 2013. I live clear across the USA from her so getting there was a challenge and I barely go there in time to say good bye to her. I have been plagued with stress ever since. I thought it was due to that loss. I have gained fear of driving and what I thought was panic attacks and any given moment. I fainted at work on September 3 2014 and thought it was due to stress as my job was going through LOTS of changes and I guess I do not handle change well. After 2 months of tests and trips to the emergency room for neck pain, back pain, chest pain Thyroid nodules, biopsies of said nodules and heart monitors, it seems I have both a very low (35) be...

Posted by IAN MC on 2014-10-24 13:11. 13 comments. 212 reads
I thought that would get your attention, especially all you dog-owners !

As a runner , I like to get out every few days and take the PM for a spin, test its Rate Responsiveness and enjoy the fresh air .
So I was happily doing my usual 3 miles through the local woods this morning when an old woman and a DOG appeared !

" It won't hurt you " she said as the love-of-her life came bounding towards me and started growling and jumping up and pawing me. It was fortunately a smallish dog so couldn't reach pacemaker level but it DID hurt me. In fact it sunk its teeth into my right knee .

To cut a long story short, I have just returned from the local hospital where I have had 5 stitches !!

So I genuine...

Posted by ballydhanoa on 2014-10-24 10:06. 0 comments. 30 reads
hello friends m/20 on my second pm replaced 2 month before. from few days i am feeling my heart sometimes is beating in disorder. in a day when i am in resting position it beats in disorder for 2,3 days for 15,20 minutes then after that it start beating in order. is this is some serious problem or normal? i am CHB patient having medtronic kappa 400 dual chamber DDDR mode type. my question is this disorder is normal ? i feel my heart is beating in disorder Any suggestions ?

Posted by iforget1 on 2014-10-24 10:01. 5 comments. 91 reads
So here is my basic question:

Has anybody ever applied for SOC SEC disability based on the fact they have Bradycardia,A/Vblock. Falling down but never a "passing out" under age 47?

My job entails basically the same things as an automotive mechanic plus teaching in auto shop classroom. Its very stressful and physically demanding.
Mind you I also have a very elevated diaphragm on my left side and looks like the lung is not working at full capacity.
And history of B-Celllymphnoma.
My job basically says when and i,f I comeback they don't want me back in the shop and I'm already finding they are making things difficult for me. My superior told me over phone I should try to get SOCSEC disability.

Posted by J00ney on 2014-10-24 07:26. 4 comments. 83 reads
Hello all,
Just seeking some advice please.
Had a 2 lead PPM Implanted in January 2014.
Recovered well with a new lease of life with all the energy I have.
Last saw Cardiologist in Sept. He said the interrogation showed I was using the atrial lead 80% of the time.
Told him that every so often I get like a twitching sensation which at times is uncomfortable. It is sort of just to the left of the sternum half way down. I guess it is the ventricular lead which, although on is not firing at all.
I asked the Cardiologist if it was the lead sort of floating around but he said 'no' as the lead would be endotheliased which I take to mean that it is imbedded within the blood vessel wall. I did have this same sensati...

Posted by Lizzie on 2014-10-23 23:47. 1 comments. 27 reads
Hi everyone,
Just had my yearly check. Noticed on print out that AFib suppress mode was off. I have a lot of trouble with AF.. Asked for it to be on.
Short story, two days later 8 hour bout AFib. Made no difference at all. I have St JudevZephyr in snce 2009.
Anyone else get help from Afib with their PM?

Posted by iforget1 on 2014-10-23 20:10. 4 comments. 92 reads
I had a Biotronik dual lead installed about 9-20-14 on my R side due to complications in getting leads in L arteries.

This was done because I had SOB,dizzyness,falling,and can't climb stars. Went to hospital and they found a heart beat of 40 and lower chambers only beating every other beat sometime and sometimes not at all!. Basically they found a A/V heart block and i think its called sinoscope.along with an abnormal thyroid. I did pass two lyme disease tests but think i should get checked again by some specialist for lyme again??

For today I'm just wondering does anybody have random dull/sharp pains in chest near heart? Its very random sometimes happens if I'm stressed but often times happens if I'm simple sittin...

Posted by mrdredge on 2014-10-23 16:48. 8 comments. 87 reads
I have a St Jude Pacemaker/Defibrialtor and was wondering if I could scuba dive and what the restriction would be?

Same questions for piloting an aircraft for pleasure? Recent laws have given flexibility for those folks with ICDs.

I know CA DMV will not allow a Class A commercial license with my installed unit anyone else have any input or thoughts on thiese topics?


Posted by AnastasiaR on 2014-10-23 16:40. 3 comments. 81 reads
I had pm surgery on Friday 17th. Have found it very painful but just about bearable. INR was low so have been having blood thinning injections twice a day as well as taking warfarin. After having quite a good day today,i'm back in a lot of pain and as well as the pain being all around the wound site, neck/shoulder/chest, i am experiencing pain down the middle of my chest. Is this part of the healing process? I'm starting to get worried.

Posted by davstecut on 2014-10-23 16:00. 6 comments. 89 reads
Anyone had any experience wearing a backpack? I am going to do some serious hiking, and I would like to know if I need to be worried that the shoulder strap will go just about over my pacemaker.

Posted by dkburnes on 2014-10-23 14:42. 3 comments. 82 reads
Never joined a group before. I have a Metronics pacemaker due to sick sinus syndrome. My heart rate was between 35-38. I have recently had the rate adjusted to 65 for day and 50 for night, which has helped me sleep a little better. When I wake up, I still feel like someone has been sitting on my chest and I get short of breath showering and drying my hair. I have had headaches for weeks and a real tenderness to my neck and shoulder on the side where the pacemaker was implanted.

I feel a pulling in my chest sometimes, too. How long does it take to trust that the pacemaker is working?

Posted by my4turtles on 2014-10-23 13:29. 14 comments. 188 reads
I had my pacemaker replaced almost 3 weeks ago. Thinking back now while in the hospital I was asking for more pain Meds 1-2 hrs after I had got a dose. I have awful pain from the front to the back of my shoulder blade. On a 1-10 scale way over 10!! To the point I'm in tears. I have double my hydrocodone taken it with Aleve as well as ibuprofen 800mg and it does nothing for the pain. This is my 4th pace maker and I have never had pain like this. And I can take pain I had 3 kids all natural and would do it all over again , that was easy compared to this pain. I went in and they took X-rays as they were thinking my shoulder might have got separated in surgery as well as my pacemaker might be infected again. They said the X-rays look good. We ...

Posted by Vikisez on 2014-10-23 13:24. 2 comments. 36 reads
I'm so glad I found this site. I'm a 68 year old female and I had aortic valve replacement in 2006 and now am preparing for a pacemaker due to irregular heartbeat. I have a consultation appointment with a doctor my cardiologist referred me to next Tuesday.

After reading some of the posts here, I know I've come to the right place. I'm nervous about the procedure and would like any suggestions any of you may have.

Posted by Suledan on 2014-10-23 12:45. 3 comments. 71 reads
I'm having a PM put in next month and I'm wondering about the recovery - what I can and can't do or expect to be able to do.
When it says you can't lift your arm up - does that extend to just wearing button up clothing post op ? If so for how long ?
Also I have 6 Labradors ( I'm an exhibitor ) - how long before I can take the dogs out on lead ? I use my left arm to hold the lead and they can sometimes pull on the lead if they see another dog.
Sorry if these are silly questions but I don't know what to expect.
Thanks Lesley

Posted by bhayward on 2014-10-23 12:33. 1 comments. 70 reads
Yesterday I went for my first 'Stress Test' since having the pacemaker impacted July 18th, 2014.

The Nurse monitoring the test had to call the Doctor over to explain a readin. Oh, he says, that is just the pacemaker firing off...

Still getting that sinking feeling after hearing some more reality.

Do not get me wrong, the place doing the test is the REHfit Centre in Winnipeg, one of the only certified medical/fitness centres in Canada - so I kind of feeling lucky to live here.

One thing is that they are not quite sure why I flat-lined. I eat ok (I do not nor ever have liked processed foods (They did not exist when I grew up) - I have vision problems, so I walk a lot. Having said that I work in...

Posted by Duke Heart Patient on 2014-10-23 10:09. 6 comments. 140 reads
So what are some of the funniest things you have heard about having a pacemaker or seen people with a pacemaker do ?

Posted by wjs1954 on 2014-10-23 09:21. 3 comments. 45 reads
just a update.
Surgery scheduled for 11-4. Doctor said because of PM surgery has to be done in hospital rather than OP Center. Also requires a cardiologist check prior, going today for that check up. looks like
no running or biking till after thanksgiving.Oh well could be worse, doctor said other than meniscus which will be fixed and a little arthritis of the knee i am good to go....

Posted by jangi1992 on 2014-10-23 08:25. 0 comments. 29 reads
I have severe hand and body tremor since 3 years ago, while i was having problems of low BP and trachycardia . after that I implanted with pacemaker. i want best medicine from this group of people to help me out. and have no any other physical complication. plz help

my age 72 years
weight 60 kg.

thanks in adavance

Posted by lahbigbro6 on 2014-10-23 07:15. 0 comments. 23 reads
Any pacer ladies use microcurrent facial machine ? Is it safe ?

Posted by Chelley on 2014-10-22 22:21. 8 comments. 131 reads
I am 43 yr old female, had a pm after finding out that I had a low heart rate during another surgery 8 weeks ago. I had shortest of breath several months ago ( respiratory infections). Other than that no health issues , no meds. Yesterday and today, I feel shorter of breath after walking, light head ach. I have an appointment with my cardio and the pm rep. I am very active, wondering if anyone has figured this out? I have read so post and I have not read many positive post. I feel very overwhelmed.

Posted by limey42 on 2014-10-22 22:04. 2 comments. 72 reads
Hi gang,
Had my ICD implanted 8/8/14 felt great until last Saturday, Saturday could not breath worth a darn, spent Saturday & Sunday laying around the house.

Monday back to normal feeling great ever since, shortness of breath was one of my biggest problems prior to having my ICD.

Any body out there ever had the same experience? if so did you ever find out why this happened.

Limey 42

Posted by Chazz on 2014-10-22 20:29. 1 comments. 101 reads
My Cardiologist mentioned a sack would form around my recently implanted pacemaker and I regret not questioning him about the remark. I would be grateful if anyone can
explain what he was reffering to.


Posted by Grateful Heart on 2014-10-22 16:40. 4 comments. 108 reads

Prayers for our friends in Canada.

Stay safe all: citizens, soldiers and law enforcement.

Grateful Heart

Posted by gleesue on 2014-10-22 14:22. 1 comments. 140 reads
Might want to search this:

US government probes medical devices for possible cyber flaws

The news media creating more hysteria.

I don't think we need to worry but here is just a bit of the article:

The DHS is also reviewing suspected vulnerabilities in implantable heart devices from Medtronic and St Jude Medical, according to two people familiar with the matter.

They said the probe was based in part on research by Barnaby Jack, a well-known hacker who died in July 2013. Jack had said he could hack into wireless communications systems that link implanted pacemakers and defibrillators with bedside monitors.

Medtronic spokeswoman Marie Yarroll said in an email that the company ...

Posted by bmom91 on 2014-10-22 13:07. 2 comments. 81 reads
Hi just wondering if any of you know what would cause multiple pvc's and my ventricle pacing percentage to over double. I have had a dual chamber pacemaker for 12 years and am having trouble with pvc's to the point of going to the ER while there pacer interrogation showed my ventricular pacing went from 22% to 50% in a 8 month period just wondering if any of you know what that means since er doc couldn't answer and neither could pacemaker tech.

Posted by LisB on 2014-10-22 11:33. 7 comments. 164 reads
My friend recently went in for a colonoscopy. While she was waiting for the procedure, her heart rate soared to 150 and she was admitted into the hospital for several days. Now it appears she has a-fib full time. She has been taking medication and blood thinners also. Previous to this, her heart was fine. I had a conversation with two of the nurses in the endoscopy unit. Both mentioned that it is not unusual for patients to get a-fib because of the colonoscopy prep. It is usually temporary, but not always. One has seen it happen what she called frequently. It has to do with the sudden loss of fluid and electrolytes. There are other factors, but I don't know them. I went online and did some research and found many mentioned of the prep caus...

Posted by natlat on 2014-10-22 11:27. 3 comments. 103 reads
Anyone not on beta blockers and have a device (ICD) for tachycardia and are you active regularly and doing well?

I had a sustained vt in April 2014, which docs believe to have been caused by a bout of Myocarditis. I have an ICD and on Sotalol 80mg. I have been running regularly and monitoring my HR with a HRM. I no longer run intensly nor race, just go out for easy runs of 3-5 miles a pop. My pace is slow, endurance sapped and fatigued from the damn things. Regardless, my docs think I will do well in general. They want to wean me from the meds in a few months, and hopefully begin the process next month.

I would love to hear from others who are NOT on medication and doing well - no shocks, no events. Hope to h...

Posted by IAN MC on 2014-10-22 07:27. 3 comments. 75 reads
Good morning Doctor.

Ah, good morning. Are you a patient?


Oh good, I have to pay my golf subscriptions this month.


Posted by ballydhanoa on 2014-10-22 03:53. 2 comments. 71 reads
hello i am male/20 with IPG medtronic kappa 400 DDDR. my question is that sometimes i feel my heart beat is fluctuating. it is not in proper rhytm. the heart beating is in disorder i feel this every 3,5 days then after 30,50 minutes everything goes fine. i am patient if CHB. US THIS FLUTUATIONS ARE NORMAL ? or should i visit doctor ? i feel heart beats sometimes two beats together

Posted by ShaD. on 2014-10-22 00:46. 2 comments. 68 reads
Thought I joined this group; several weeks back.
Paid by Paypal for a pacemaker keychain. Their adress shown as Pacemakerclub; later as,
Today, I could not connect---my first try, here ; so I "Re joined".
I have rec'd keychain, shipped from Canada.
Could someone give me any info?

Posted by belljn on 2014-10-21 20:20. 3 comments. 183 reads
I just spent a month touring China. I've had my pacemaker for 4 years and am 71.
Security in China is very high. Most of the sites we visited required walking through metal detectors. Lots of fun trying to get across that I could not walk through the detector. Next time I will have a note written in Chinese saying that I cannot go through the metal detector.
I've traveled through North America and Europe and every time I was patted down it was done by a man. I always ask to have a cute lady do it but no luck. In China they don't care. Several young ladies did the search which gave me bragging rights to my wife.
It was a great trip but the next time I will bring a note, laminated, written in the language of the country exp...

Posted by Grateful Heart on 2014-10-21 19:43. 9 comments. 176 reads
I had a Doctors appointment today because my "good hip" and opposite knee have suddenly become worse. I usually just push through it but this past week the pain has been off the charts for some reason.

The official diagnosis: I want to quote the Doctor so I get it right..... I have "crappy arthritis genes". That's the medical term.

He has a crystal ball too. He said there is more metal in my future. (Trying to hold off on that prediction).

According to the X-rays, I have bone spurs in both knees that look like a snaggletooth. When he rotated my leg, my knee sounded like sand rolling around inside. He made an awful if he was in pain??

Oh yeah, I also have a lateral m...

Posted by Duke Heart Patient on 2014-10-21 16:22. 7 comments. 191 reads
Who do you think will win ? SF or KC ?

Posted by ODIN on 2014-10-21 08:29. 5 comments. 222 reads
Got a PM 8 weeks ago. It is a dual PM attached with hooks. Got it because I had Lyme which became Carditis. Yesterday they turned off the PM and the Doc said my heart was was working perfect. So he set it at 60 and said if I have no issues in 4 weeks it can come out. I had issues last night. Felt like my heart was working hard. Anyways much better this morning. WOndering if anyone has had their PM pulled and how it worked out. Thanks

Posted by Aniubh on 2014-10-20 23:28. 2 comments. 122 reads
Hey Iam 22 implanted a ppm 1 and half year back after a couple of days of surgery I started gymin wieght lifting now I don't have major problem. My trainer now suggest me to take some protien supliments which contain creatine .. Should I take such suppliments ,, does creatine will effect the stability of pacemaker?
Desperately waiting for ur knowledgeable comments

Posted by MonicaNYC on 2014-10-20 22:01. 4 comments. 190 reads
Hi Ladies,
I am just over my 3 month mark of my PM surgery. I have been back to working out (running and yoga) for just about 6 weeks. I find that anything touching my scar or over my PM is very irritating. Is this normal? Will it eventually go away? I unfortunately have to wear a rather supportive bra, especially when run, but I find that my scar gets even more irritated during my yoga practice even if nothing is touching it, between the constant standing and folding, and heart opening poses. It makes it very hard to get my zen on. Any suggestions on how to cope with the irratation, and any hopefully tales of how this will all pass with time would be much appreciated. Thanks Monica

Posted by neff on 2014-10-20 17:09. 6 comments. 181 reads
Morning I was wondering if there is a way a pm act at the end of it's life. Maybe sometimes just stops? Or maybe shocks ? oh ,I have sss.
Thanks for any help.

Posted by cookenzopy on 2014-10-20 16:46. 7 comments. 218 reads
Does the rate response setting of a dual lead pacemaker affect sporting? My PM rate response is set between 60 and 140 bpm. When I am cycling I have the feeling that 140 bpm is too low. It is not my maximum heartrate because I am not running out of breathe at that rate. At least 150 bpm should be better but I don't know if that upper setting of RR at 140 bpm is limiting my max heart rate during cycling. Is there anyone who could explain the effect of rate response and sporting to me?

Posted by thrill2retire on 2014-10-20 11:08. 5 comments. 206 reads
Good Morning,

I am a newbie to a pacemaker. (4 days) Just looking for information and what to expect in these first weeks. So far, I have had waves of nausea, light headedness, metal taste in my mouth. Does the rate your pacemaker is set at cause any problems or adjustment. It feels fast (60) since I was used to about 45. I am here and listening to any information. Thanks so much and I look forward to your words of wisdom.

Posted by on 2014-10-20 10:05. 3 comments. 136 reads
PART 2! Your Help Is Needed

The first questionnaire suggests that many pacemaker and ICD patients may have liked more support and information at implant. As a result I have some more questions (I am really sorry) but if you do have the time to fill this in it may lead to more consistency in the information and support offered to people with ICD's and Pacemakers in the future! Thank You in advance

Link to take survey below :)

N.B. It is an independent survey that if results show discrepancies in information and support provided by healthcare centres and manufacturers this will be fed back to them. I do not work for any pacemaker or ICD company. I do...

Posted by Cynthia56 on 2014-10-20 08:51. 6 comments. 190 reads
I've had a pacemaker since March, I'd like to ask all of more experienced pacers if soaking in a heart tub is harmful?
Thanks in advance for info.

Posted by sportygirl on 2014-10-19 21:12. 7 comments. 216 reads
Hi everyone, Just would like to thank all for the support l have received over the year. Things have been going good, would like to ask one question. I have swelling and tenderness around pacemaker pocket. The pain is around a 7 and you can see the area is swollen. This all started today. Any advice?
Thanks, Sportygirl

Posted by anewheart11 on 2014-10-19 20:36. 2 comments. 144 reads
Just need to know if its normal. I am only 5 days out and just showered for the first time. I was towel drying it off, patting it off and it was making squishy sounds. Need to know if i need to call medtronic or my surgeon. Please help.

Posted by cabinboy on 2014-10-19 16:48. 4 comments. 109 reads
Have funny bone tingling from arm down to hand and fingers. Had a Medtronic ICD implanted over a month ago and along with the above tingling, also have small amount of pain at incision and more pain around back of shoulder and vicinity. No more driving restrictions however have a few more weeks before I am allowed to raise hand/arm above head. Disturbing that I have this arm & hand feeling (kind of like arthritis in hand). Emailed it to my electrophysiologist but his return email didn't comment. Will see him this week (4 hour drive) for follow up appt. Finally stopped the Oxycodone and use Acetaminophen if the shoulder/arm pain gets worse. Am starting sleep apnea therapy at same time. Wonder if the one caused the other?

Posted by Bebie on 2014-10-19 12:20. 3 comments. 143 reads
Hi everyone. I just had my PM implanted 3 months ago. Currently, I feel like my heart is tight unlike before where I just dint even notice that I have a heart problem like the fib that was recently diagnosed right after my stroke. Is this a normal feeling? I also have difficulty of sleeping. Is there anybody there who can assure me that everything is normal and I have nothing to worry about my PM? Thanks a lot for your concern.

Posted by on 2014-10-19 10:41. 8 comments. 270 reads
Hi everyone I am 2 months into my pacemaker. Is it normal to still have some episodes that you can feel but they do go after a few minutes? I mean I can feel my heart actually going into something but it comes back is that normal to feel it? Also I can not relax and I am very upset at times. I have talked to my cardiologist but she says she is not good at this sort of thing she only is good at her particular job she told me to talk to my family doctor. Is there anything I can do to help me relax I am tired of crying and tired of feeling lost. People don't understand even the doctors. My doctor thinks is just something I have to get used to and just bide my time how can I when I cant relax. Please any advice would be great. Thank yo...

Posted by on 2014-10-19 10:41. 1 comments. 70 reads
Hi everyone I am 2 months into my pacemaker. Is it normal to still have some episodes that you can feel but they do go after a few minutes? I mean I can feel my heart actually going into something but it comes back is that normal to feel it? Also I can not relax and I am very upset at times. I have talked to my cardiologist but she says she is not good at this sort of thing she only is good at her particular job she told me to talk to my family doctor. Is there anything I can do to help me relax I am tired of crying and tired of feeling lost. People don't understand even the doctors. My doctor thinks is just something I have to get used to and just bide my time how can I when I cant relax. Please any advice would be great. Thank yo...

Posted by IAN MC on 2014-10-19 08:10. 2 comments. 187 reads
We go through life accepting that some things are certain and will never change . When things do suddenly change we think is this the end of life as we know it ? :-

-- The Pope is always Catholic

-- bears will always sh*t in the woods

-- Tattoo Man is ALWAYS online at the PM club

One of these has suddenly changed ( and no, the Pope has not suddenly become a Buddhist and , no, donr will probably confirm that the defaecation habits of bears are unaltered ) what is going on ? Tattoo Man , where are you ?


Posted by Lee24 on 2014-10-19 02:24. 2 comments. 152 reads
Guys I have a dual chamber pacemaker. Since last night 12:20 pm I've been having syncope events every 5min till now. I called boston scientific. They say my pacemaker is fine. The cardiologist says he doesn't know what to do. What could be wrong with me ? Can't afford to be sick at this moment

Posted by kathyk on 2014-10-19 01:13. 3 comments. 98 reads
Has anyone had to use the PaceMaker transmitter (mine is Merlin@Home)--and use a Heart Event Monitor, too?

If so, why is this?

Thanks so much

Posted by TailLight on 2014-10-18 21:26. 2 comments. 165 reads
Hi. Im new here, so forgive me if this post is in the wrong area!

My husband recentlyt had his pacemaker battery replaced, in August. He noticed some "pauses" in his pulse, i.e. 2-3 beats, then pause, then 2-3 beats. He had it checked with a phone check and they told him they were benign extra beats, but have his electrolytes tested, just in case. All lab work was fine. He's going in on Monday to get the pacemaker checked, but over the phone someone told him it's not the pacemaker, and they want to give him a stress test, etc. He swims a mile practically every day and gets his heart rate up to about 155. So he told them that.
He says this never happened with his old pacemaker. A different surgeon operated this time.

Posted by TalkinCardio on 2014-10-18 15:39. 4 comments. 167 reads
Hello everyone! I just thought I would check in with this wonderful group that gave me such needed support over the years. I am still doing good, some bumps in the recovery road but nothing I cant handle. I went through a pulmonary rehab class and I am now in Cardiac rehab. It's taking a long time to get my muscle and strength back but it is coming along. It will be a year on December 5th, since I got my new heart.

Does anyone know how Paul (fishfighter) is doing?

Take care, Cathy

Posted by deefromcalifornia on 2014-10-18 14:50. 4 comments. 168 reads
Yesterday I received a small electrical shock from a shop vac. I have a boston dual chamber pacemaker. Is this a problem with pacemakers? Thank you!

Posted by Skd62 on 2014-10-18 14:31. 8 comments. 256 reads
Hi, I'm posting on my mothers behalf. She's 83 and blind and had a pacemaker installed this past Monday. Although her vitals are good she is not wanting to eat, walk, bath, or talk. She says she sick to her stomach. She is on her usual BP meds with 2 new ones added for blood thinner, and 2 antibiotics. She was put thru the ringer in hospital and got an UTI. They also found the beginning of pneumonia on chest X-ray. I know some antibiotics can make you nauseous, but should she be so lethargic. My sister is waiting on her hand and foot. We have had this problem before after her stroke which there was no lasting effects, but she refused to get up and do for herself or take direction from her daughters. The drs told me to get her back ho...

Posted by Shagood on 2014-10-18 14:24. 5 comments. 134 reads
I'm 1 week and 2 days out from pm being put in. The journey started with episodes of A fluter and just jumping out of rhythm. Was started on multaq and tolerated that for about 2 weeks before I started having shortness of breath and various other side effects. I was on nothing for about 2 more weeks and was back out of rhythm in just a few days with sky high heart rate. Then started on amerodone and scheduled for cardio version. When I went in for that my heart was back in rhythm but was having severe sob and let pain. Turns out my heart rate was in the low 40's. So then enters the pm. So now I have a pm and am on rhythmol. I still feel sob but I think maybe it's because I still have inflammation from the pm being implanted.
What is ...

Posted by wbarellano on 2014-10-18 14:23. 4 comments. 204 reads
Hello All!
My name's Wendy and i'm 20 years young and a college student living with roommates in an apartment for school.
I've had my pacemaker for about 5 years now. I got it implanted on June 19, 2009, due to cardiac arrest.
So i got my health insurance taken away from me, and i've applied and applied and for some reason i get denied and can't get covered.
I havent gotten my heart checked for almost a year already because i have no health insurance.
Does anyone have information on how to get insured or something?
Thanks in Advance!

Posted by cwalsh on 2014-10-18 12:09. 5 comments. 156 reads
i had my dual pacemaker put in two weeks ago, I had a lot of soreness as the surgeon found it had to make the pocket for it, the last few days I've had this funny/weird feeling (hard to explain it ) like as if your heart is not beating properly, I did have it all the time I only get it now if I go move, has anybody else had an experience like this, I had my pacemaker checked and they said it's working fine, has anybody else had an experience like this, my base rate on my PM is 60 and I'm 46 yrs old. Thank you.

Posted by wjs1954 on 2014-10-18 11:08. 3 comments. 136 reads
Had my MRI yesterday, Medtronic advisa PM
Rep showed up did her thing, had the MRI. The rep did whatever they do. No problems what so ever.. Well except they are not reading the MRI for a few days : (, oh well have to wait and see if i get yet another surgery to add to my list of many... guess no running or biking for a bit.......

Posted by golden_snitch on 2014-10-18 09:33. 7 comments. 208 reads
Just in case there is anyone here, who used to be a member of the forum at I have set up a Facebook group with the same title to bring together the "old gang" as the forum software for implantable quit its job a while ago. Of course, other patients are welcome to join, too :-) It's by request/invitation only, not an open group, but I'll add you, if you apply.

This is not to lure anyone away, and I'll definitely continue to post/comment here, too. It's just that some of the implantable-folks were missing each other - we used to be a rather small, but great community there -, and so the FB group is an attempt to bring people back together.


Posted by jue on 2014-10-18 03:29. 14 comments. 271 reads
Hi All,
Had PM replacement on Thursday, all went well and was told in theatre my leads were ok.
On post op pacemaker check, they found abnormal readings.
Consultant came back and checked, told me that atrial lead is fractured and making a noise the pacemaker doesn't like.
I have been sent home with a 48 hour monitor on and then they will make some decisions.
I am so fed up it wasn't found in theatre.
So does anyone know, will I have to go back in immediately now to have the lead sorted?
Thanks guys

Posted by pattie on 2014-10-18 01:13. 3 comments. 144 reads
Hello im new to all of this and its hit me like a brick!! Ive got tons of questions but I'll start with can i get a tattoo 2-3 weeks in the area area of the pacemaker? And 2nd question, how am i supposed to feel after a pacemaker? Im 47 and i dont know how this happened, one minute im told i have HCM then my cardiologist says i also need a pacemaker..... and my emotions are all over the board!

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