St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by Grateful Heart on 2015-01-26 19:28. 2 comments. 7 reads

So the east coast of the US is experiencing a blizzard. The snow is coming down now and we are expecting 2-3 feet of snow before it's over.

So tomorrow there will be snowmen cropping up all over town.

My dilemma is.....what do I use for the PM on my snowman? I don't have a spare.

Any suggestions?

Grateful Heart

Posted by Sarah3 on 2015-01-26 18:36. 1 comments. 16 reads
That is what the technician has determined. First allow me to say that Mercury is most indeed retrograde. I was not able to see my EP today so the tech did her thing. Knew it was going to be interesting when she fat fingered the keyboard and put my pm in OMG emergency bells and whistles thumper mode. From there it was keystone cops déjà vu. It included a call to the manufacturer to see if they could load the settings remotely or if there was a button she could push or icon to click to recapture what she had just wiped out... ha! Finally she did a tag team approach with another tech and I was able to resume breathing normally.
Long story short, none of the issues I brought up are due to PM. Said I need to go to primary care fo...

Posted by Sparkie on 2015-01-26 16:52. 0 comments. 2 reads
Hello Everyone,

I found an article on a study that exercise light exercise for the shoulder after surgery is good and stops people from being in pain. I have no idea why do not implement it. Seems very easy to do. The reseach article is long but if you are in pain as I am will try the exercises.


Preventing Shoulder Pain After Cardiac Rhythm Management Device Implantation.

I hope this helps !!! I sure wish I knew!

Peace and healing,


Posted by risser on 2015-01-26 13:57. 2 comments. 60 reads
Hello! I just found out I am pregnant a few days ago. This is my first pregnancy and I am five weeks along and other than being incredibly shocked and scared I am wondering about what others have experienced with pregnancy and pacemakers. What makes being pregnant so complicated for me other than the abdominal pacemaker is that I have had a prior fontan procedure. I also have ASD, VSD, L-transposition, and a murmur. I have my pacemaker in my abdomen, although I've had pacemakers all my life (since 3 months, now I am 22), this one was implanted in April 2013 so I'm not worrying about the battery life.

I'm more worried about how a pregnancy may impact someone who has also had a fontan procedure as a child since I have CHD. I can't...

Posted by mara on 2015-01-26 13:09. 1 comments. 34 reads
3rd AV block 1/23/2014 = St Jude pacer. Now experiencing light headedness, deep breaths, some chest " fluttering". Everything fine for exactly 1 year & now experiencing issues!

Posted by jbjlll on 2015-01-26 12:47. 3 comments. 40 reads
I had my first pacemaker implanted in 2003, Hardly ever knew I even had it. That one lasted almost 9 years and then was replaced with the second device. In early 2014 Dr. detected some evidence of fluttering/fibrillation and implanted a Defibrillator. All units were Medtronic. With both Pacemaker I was able to be very active and until the Defibrillator was implanted I could walk 15 to 20 miles a week. After the Defibrillator implant I never could get back to the old energy level and have had much more difficulty with shortness of breath. Medtronic tech says the unit is operating as it should be and I do have a bedside wireless monitor. However, I still feel much worse than with the Pacemakers. Has anyone else had a similar experie...

Posted by cjmccu2640 on 2015-01-26 11:33. 3 comments. 43 reads
Hello, I have a pacemaker in bother m chest and stomach. The pacer in my stomach is inactive and has been for about ten years. When I sneeze sitting down, or stretch the wrong way the stomach pacer moves. It isn't unbearably painful, but today I stretched in class and the pacer moved, and I could feel pulsating for a time. I am having flutters in my chest, but I can't be sure if I am just anxious or if it is the pm. I don't feel nervous, but it could be that I just don't realize it???? I don't know, is it normal for a pacer to move this often--about once a fortnight? Also, is what I am feeling a normal reaction to that? I would prefer not to do a pm check.

Posted by winesa on 2015-01-26 11:06. 2 comments. 57 reads
I was fitted with a PM 7 weeks ago, and have recently decided to wear a silver cross on a silver necklace. Will this have any effect on my device, please.

Posted by fishingmema on 2015-01-26 10:21. 3 comments. 70 reads
Hello everyone! I've looked at a lot of messages but none are answering my question. I had a dual chamber pacemaker put in one week ago. Is it bad to bend over at the sink to get my hair washed? Also can you feel when your PM kicks in? Thanks in advance! Charlene L.

Posted by bobv on 2015-01-26 08:42. 2 comments. 38 reads
I am a 54 year old male who, on 12/16/14, got a Metronic pacemaker implanted at the Cleveland Clinic. Today, I go for my first interrogation. I have ordered a shirt that has a protective device that is supposed to protect my pacemaker. The docs at the CC have told me after 6 weeks, no problem with playing basketball. I have been biking and next week, I start swimming again and then I move to basketball. Any help/comments would be welcome. Thank you.

Posted by dbaileyway7b on 2015-01-26 08:23. 5 comments. 66 reads
Is it possible to pick up audio through a pacemaker from some other device? Radio, TV, or Ham radios, cell phones. Thank You for any help.

Posted by Mentok on 2015-01-26 07:44. 5 comments. 93 reads
Hi all,

My names Josh and I had my pacemaker installed two weeks ago. I am usually very upbeat and have never let and health issues get to me as I have many. I had 4 ablutions while still in the military and recently had to get the pacemaker due to bradycardia. I am now having panic attacks and crying at night when I hav no one around to hide these feelings from. This is not who I am as a person. I am the type to not get sad or ever have these types of feelings. Last night I cried for a full hour and just had a deep sense of dread. I've read that this is common but as I have never really felt with any sort of depression I would love some advice or support. I am 24 years old and honestly I feel like I want it out of me.

Posted by duckblossm on 2015-01-26 01:20. 3 comments. 72 reads
I would like to hear success stories from people who got pm's because they had a-fib. Did it help? Thanks so much!

Posted by duckblossm on 2015-01-26 01:17. 4 comments. 67 reads
I am planning to have an AV ablation plus a pm.
I have heard that it is possible to have the procedure under only local anesthesia.
I have myalgic encephalomyelitis, also know as Chronic Fatigue Syndrome. There is no evidence, only anecdotes, but many docs say be sure NOT to use certain classes of anesthesia as a safeguard, because some pts have been seriously affected by anesthesia.
How do I get through to the ep? He refused to talk to me on the phone. Actually I think I need to talk to an anesthesiologist.
Does anyone know anything about any of this. There is not a big choice of electro guys in this area.

Posted by hatetheidea on 2015-01-25 21:57. 5 comments. 117 reads
At the age of 50 I was told that I had a low pulse (at rest lowest 31), irregular heartbeat, & some fibrillations. I went through a battery of tests, had 2nd & 3rd opinions & was told that my heart was strong, it corrected itself & I would need one someday. That was 10 years ago. I do not take any medications for my heart, originally did, but did not like how it made me feel. Have worked out pretty strenuously at the gym 3-4 times a week - full body workouts - for the past 4 years. Recently had an alleged TIA and now my cardiologist is pushing hard for me to get a PM. I cannot take coumadin-but take baby aspirin. Basically saying I will need one someday so why not now since alleged TIA. Anyone deal with clots and PM. I am highly r...

Posted by Sarah3 on 2015-01-25 21:23. 5 comments. 74 reads
I have an appointment tomorrow for a regular checkup. My concern is this. My head is not working clearly enough for me to figure out how the heck to say how I am doing. Some days are better than others. Fatigue is still a problem so is shortness of breath.... racing fluttering feeling that comes and goes with or without provocation. Christmas was a fog for me. Could not think straight and now remember little of it. I am really good at denial. Is that enough information for them to go on? My concern level is really getting up there. Initially I did really well energy and clarity were much improved. Lately, not so much. Any words of advise or encouragement would be appreciated.

Posted by Roys on 2015-01-25 18:37. 0 comments. 13 reads
I have two blood reports from Pathology, one says Mild normocytic anaemia, the other says Moderate anaemia. the results are the same, Haemoglobin 106 g/l. which correct, is it moderate or mild.
My Doctor does not think it needs treatment.
Cheers Roy

Posted by splendid1 on 2015-01-25 18:21. 5 comments. 81 reads
I have an implantation coming up.
1. Can someone tell me what to expect the day of and in recovery?
2. What brand of double lead PM do you recommend; which one to avoid?
3. Tell me about the process of regulating the PM after procedure.

Posted by philco on 2015-01-25 13:59. 4 comments. 122 reads
have had pacer since 12/9/2014 for sinus bradycardia and irreg. heart beats.. now have irregular heart beats today. didn't think I would have them after pacer >?

Posted by tenett on 2015-01-25 10:00. 0 comments. 25 reads
Has anyone had trouble with their St. Jude leads?
My first set broke in the first year and now the second set has failed.

Posted by lizs101 on 2015-01-24 22:38. 2 comments. 122 reads
My diagnosis is A-Fib and flutter. I have had two ablations and several Cardioversions. I have a problem taking antiarrhythmic drugs due to the side effects. The latest one tried was Tikosyn which I started last week without severe side effects but have felt absolutely lousy since I started it. I went in Thursday for a 1 week follow-up EKG and the Doctor's office called Friday expressing concern because the pause between my heartbeats is continuing to increase in length. They do not feel the Tikosyn is working or right for me and want to do an AV Ablation and pacemaker. It is probably irrational on my part but this scares me. I have no idea what to expect and am looking for some information.

I guess I am looking for any ...

Posted by T.T. on 2015-01-24 21:41. 2 comments. 62 reads
Have anyone had a cardiac ablation and if so, has it bettered your condition at all???

Posted by T.T. on 2015-01-24 21:33. 4 comments. 61 reads
Hi everyone I am new to this site and just which to say HELLO!!!!

Posted by coach6 on 2015-01-24 20:33. 12 comments. 169 reads
Hi everyone I am new to this club, but I am glad I found it. I am 51 years old and very active with running, martial arts and weight training. 20 years ago I had a right coronary arterial wall tear which caused me to have a heart attack. this left me with a left bundle branch block. Even with this I continued to compete in elite level sports, However recently I have developed a heart block that seems to occur when I get to 85-90% of my max HR so my cardiologist suggested a pacemaker. I am getting this in one week so I am wondering about the settings, as I have no problem unless I am exercising at a high level, but want to continue to do so. My resting HR is 56-58...any suggestions for me?



Posted by Cartman on 2015-01-24 18:50. 1 comments. 45 reads
I have been on metoprolol, sotalol, and veraparmil with limited success for ventricular tachycardia. I started taking Ranexa 6 weeks ago. I went from having V-tach once or twice a day to none in the past 6 weeks. This is a miracle drug for me.

Posted by PaulD on 2015-01-24 16:38. 4 comments. 91 reads
I am thinking of getting a recumbent excercise bike with magnetic resistance. Should I be concerned with it affecting my pacemaker? I tested it using a compass and there was no needle deflection at all.

Posted by Kg on 2015-01-24 15:44. 2 comments. 53 reads
I am thankful to have a forum that might help answer some concerns. I was put on Xarelto for three clots that developed after my surgery in October, 2014. That is a three month treatment for me. My left arm still remains about 1 inch larger than the right. My hematologist said I have a chronic clot. She is referring me to another cardiovascular surgeon. Has anyone been diagnosed with a chronic clot? I would appreciate knowing some options and their outcome. At this point I am really questioning the need to go to another surgeon and the expense just to be told my veins are coping around it.

Posted by lahbigbro6 on 2015-01-24 15:01. 3 comments. 73 reads
I do not understand ...I have been doing hand weights for about 2 years or more biscep definition ! Why ? Is it the weight amount ?

Posted by JoshM on 2015-01-24 13:50. 9 comments. 135 reads
Hello Everyone,

First of all I'm glad I found this site. Many people here give honest and positive information. In particular I have enjoyed reading responses from TracyE and the knotguy. I'm sure there are other great people here too, I'm just getting started. I just had a single lead pacemaker implanted 1-20-15. I am 37 years old and I felt great until 6 weeks ago when I fainted. I have always had a low heartrate, but after many tests my EP recommended I get a pacemaker. The past 6 weeks have been very scary, surreal, etc.

1. Does anyone with a pacemaker here shoulder press and bench press? I used to bench press 275lbs for reps and shoulder press over 205lbs for reps. I want to get back to...

Posted by zawodniak2 on 2015-01-24 13:48. 1 comments. 86 reads
I am scheduled for my 1st replacement in two weeks after 7 1/2 years of success with rate responsive Medtronic Versa.. They tell me I am 100% dependent. I am now in the ERI mode and being paced at 65 bpm. I notice my bpm does not go above 65 even with moderate exercise. Is this because the pace maker won't let my heart beat any faster even with exercise or is it because my heart can't beat faster on it's own? Feeling somewhat more fatigued than normal but still can function.

Thanks for any input,
Rodger Zawodniak

Posted by cathieflorida1 on 2015-01-24 13:47. 1 comments. 70 reads
Just thought I'd share.

On my last visit with my cardiologist, he asked me if I had ever been tested for lyme disease since it has been discovered to cause conductive heart disease in some. Since my condition has been from the teen years (40 years ago), I doubt it is mine.

However, I am very lyme-literate due to one of our adult daughter's having chronic lyme. It is debilitating if not caught early on (acute lyme), and not curable. In my research, I knew that if it settled in the heart, it would cause severe complications. Being tested (40% false negative rate on the AMA approved test) is a start, but one must often pursue additional testing for appropriate diagnosis and care.

I was just thrilled and encou...

Posted by kmom on 2015-01-24 12:47. 2 comments. 68 reads
No good! At least for me. Good news was that I think I was starting to feel better on that medication. Bad news was that 3 days later had an ekg and my qt was over 512 so I was immediately taken off the drug with explicit instructions that if I got into trouble call immediately or go to er. Iam fine by the way just bummed out that my body couldn't tolerate the med because I was finally beginning to feel better hands weren't swollen when I woke up and could actually go up and down stairs without SOB. And heart racing oh well back on the rhythmol as most know taking that for afib/ flutter and PSVT.

Posted by glowiegirl on 2015-01-24 10:11. 7 comments. 155 reads
I have a 2 lead pacemaker now (ST. Jude). Very faint, EF at 25%--so doc decided to put in a 4 lead (CRT-D. How big will it be? How much time till the pocket will not be painful? How painful is it if I get a shock? I have been told it hurts for days afterward. I heard they test it while you are on the table and your muscles will cramp and the pain will stay with you for the time it takes to heal.
Wouldn't a 3 lead pacemaker be just as good? I guess I just need some stories from you guys to see if I want to go through with this. The operation is on FEB 6 Thank you

Posted by Ronniecolorado on 2015-01-24 09:57. 4 comments. 131 reads
Good morning,

I'm curious as to how many of us are currently taking/or have taken Amiodarone long term...and if any have experienced adverse side effects.

I'm coming up on two years at 200mg with no side effects...and monitored regularly.



Posted by cathieflorida1 on 2015-01-24 09:07. 21 comments. 290 reads
I chose to have my pacemaker's wifi turned off when the new one was implanted on 1/15/15. The nurses and other staff had more questions why, as well as judgmental responses, than the doctor did. (Maybe he saved it for when I was out during the surgery? ;o) )

They seem to forget that these batteries last a long last one lasted 12 years. Just a brief search online will show all the technical advances during that time frame. According to an article in Forbes magazine, back in 2012 it was discovered the ability to hack them had occurred. No one has had that done yet, but it doesn't take too much out-of-the-box thinking to come up with scenarios within the next 10 years that could cause a lot of havoc and harm to people wit...

Posted by cathieflorida1 on 2015-01-23 23:54. 5 comments. 75 reads
My recent pacemaker replacement surgery incurred the difficulty of tissue growing around my lead and pacemaker connection. Being that the surgery was being done in the cath lab (don't get me started!), they didn't have the needed instruments to separate them. After running to surgery and locating the needed instruments, they accomplished their goal. My tenderness seems to be more and lasting longer than my previous replacements (I've had a pacemaker for 40 years), so I am assuming the internal cutting added to the discomfort. Anyone else experience this?

Posted by mytrose43 on 2015-01-23 15:06. 4 comments. 195 reads
Just a quick question i have a st jude pacemaker am i understanding you right that you should not let anyone use a wand on you .i on occasion have to do to the local courts and i either can walk thru the metal detector or use the wand i usually have them use the wand so i am a bit confused what is safe and what is not?

I read another post that i am questioning the wand I thought it was safe

Posted by Jenniferlee48 on 2015-01-23 11:34. 6 comments. 174 reads
I am a mother of a 15 year old girl who was just diagnosed with Third Degree Heart Block in May and had her pacemaker implanted on July 2. They had to go back the next day because one of the leads had dislodged. Anyway she is a Track & Field sprinter at her High School and is happy to be back running again. This past week however the coaches have asked her to also compete in Long Jumping because she was in the top 3 girls at her school on her distance jump. My question and concern is if this is a safe thing for her to be doing. I realized that it doesn't count as a contact sport but is the repeated hard landing safe? I am worried that this may once again cause a lead to dislodge. Anyone have any experience and or advice here?


Posted by Olena on 2015-01-23 09:27. 1 comments. 71 reads

Patients with a new internal defibrillator (ICD) can safely undergo an MRI, says a small study of the first patients with the devices

The location and design of the new S-ICD, which does not have leads into the heart, make it safe for magnetic resonance imaging, says lead researcher Dr Jiri Keller from the Na Homolce Hospital in Prague.

The new device, which is fitted under the skin rather than in the heart, is particularly suitable for young people who are very active but thought to be at risk of having a cardiac arrest. But the device cannot pace the heart so is not suitable for people who need pacing for a slow heart beat or to help the heart pace in a...

Posted by Grateful Heart on 2015-01-23 09:00. 1 comments. 52 reads

Good luck today with your's almost over.

Let us know how everything went, you'll be fine.

Grateful Heart

Posted by valley01 on 2015-01-23 08:01. 4 comments. 146 reads
I went back to see my EP yesterday. They had 2 Representatives from Biotronik there to investigate and help reset my PM. I took my Relief Band to the appointment with me. From Tuesday's appointment they were able to send the files of data they collected from the PM to Biotronik. On Wednesday the Biotronik Engineers reviewed the files which were all the components of the PM self checking and they determined the PM was operating properly, that it did not malfunction. Also, my home monitor finally was able to download Wednesday morning so they were able to piece back that the PM went into safe mode on 1/6 (the day I flew to Florida). They said my PM detected something on the 6th and put itself into safe mode which is what it is programmed to ...

Posted by sunshinewishes on 2015-01-22 20:36. 0 comments. 51 reads
If you go online and type in "overweight and heart failure", you will find several interesting articles to read. sunny

Posted by sarastribling on 2015-01-22 11:38. 9 comments. 217 reads
Can you tell when your pacemaker kicks in ? I have low heart rate. My heart this morning just sped up for about one minute. Then subsided.

Posted by murphyda on 2015-01-22 08:03. 3 comments. 112 reads
Hello all
it's nearly 6 weeks since i had my pacemaker fitted. I still get numbness and loss of colour in my left hand when any pressure is put on the PM site. I am also still getting some pain from where the incision was made. there appears to be 2 lumps, one either end of the incision which are still very tender
has anyone had similar experiences

Posted by Darine on 2015-01-21 22:26. 3 comments. 110 reads
Hi ,I just had a pacemaker and I am very concerned on how it is going to affect my job.My job is very physical .I am a massage and skin care therapist .does anyone know people in the same field with pacemaker?thank you

Posted by Mandi on 2015-01-21 20:49. 5 comments. 188 reads
I have a 2 lead pacemaker for bradycardia. I use an iPad whith a magnetic closer, my question is would this cause me any problems and if so at what distants will the problem be noticed? Lately I have been having some dull pain around my left breast. It is not always there, but often enough I have to wonder about it.
Any advise is appreciated. Thanks

Posted by Vinnie on 2015-01-21 19:30. 3 comments. 120 reads
Check it out


Posted by Gotrhythm on 2015-01-21 16:11. 2 comments. 108 reads
Today I learned I might need an MRI, but the orthopedist doubted if any hospital in my small NC city would be up to the task. My PM is not MRI compatible.

I know it can be done at Johns Hopkins and I would travel there if necessary, but I'd rather stay closer to home if I can. Does anyone know if Duke, UNC or Bowman Gray have MRI capability for PM patients? Or somewhere else--in Virginia or the Carolinas, even Georgia?

BTW the dr was really impressed at how much I knew about MRI and PMs. I didn't tell him I learned it all at the PM Club.

Posted by sprysenior on 2015-01-21 14:06. 5 comments. 155 reads
First PM implanted in December. How long does it take for the site to become less sensitive? Can't let the bra strap touch it because it gets sore. Any suggestions?

Posted by scotia on 2015-01-21 13:41. 9 comments. 121 reads
Hi guys

It has been awhile since my last post. I have myself booked to do Mudderella in July. It is a 6 mile obstacle course. Has anyone here ever attempeted one of these? How did it go? My concern is mostly doing the pulling with ropes over walls. And the army crawl under barb wire. I think it should be ok but just wondered if anyone else has tried.


Posted by BizRunner on 2015-01-21 12:22. 0 comments. 50 reads
Will have this device implanted next week. Any experience with the device? Have any idea of its cost? Thanks

Posted by Kira on 2015-01-21 04:30. 7 comments. 258 reads
my name is Clareyne de Vries and am currently working on a report that entails the history and product phases of the cardiac pacemaker for a subject in the University of Twente.
It should include a part about the changes in price over the years (since 1950's), however, there in lies my problem. I cannot find anything on prices about pacemakers, even after contacting musea.
I was hoping some one here could give me some insight, especially from the older generations.
It doesn't have to be precise or much...quite frankly I would be glad with anything at the moment.
I would truly be greatfull.

With hope and best regards,

Posted by tessenne on 2015-01-21 01:26. 12 comments. 203 reads
My doc used super glue to hold my outermost incision together. I am one week out from the procedure and it is peeling off in large strips. Underneath is dry and no blood or pus or anything to suggest it is not healing quite well. Should I just let it come off as it chooses, even if it is all gone by end of week? Or should I call the EP and ask if he wants to look at it?

Posted by MaryJaneSparks on 2015-01-20 20:04. 8 comments. 200 reads
I moved to MI Oct5, 2013 for safe access to Medical Marijuana. While in MI I required a 4th ablation to treat SVT, that left me Brady, requiring a PM. Dr. Ip approved me as a Nanostim recipient, knowing that I'm a MMJ pt (documented by him), which I received 7-10-14. I've relocated back to KY two moths ago. Two st jude medical sites have refused to assume my care under the trial. No reasons given. I've been told to return to ?MI to be interrogated every 6 months.
Last month I had sustained Brady with Nanostim, still no answers, no willing doctor in the state.
What to do? I need to be interrogated by feb. 6th for the study, but I have 36 bucks for the gas tank.
So frustrated by my zip code. Has anyone else particip...

Posted by mrhanchang on 2015-01-20 19:42. 3 comments. 203 reads
I have a Medtronic dual chamber PM implanted in 2005. After 9.5 years I was told in a checkup yesterday that my battery is running out. Meanwhile one of the two leads goes bad. I was told the data collection part quit working because of this. But the pacing still works by the other lead. But I found out my maximum hearteat is 50 now which is lower than 6 months ago.

My questions are
1. How could a lead suddenly go bad after 9 years?
2. Could a low battery affect the lead life?
3. Is there a chance that the PM box side have a problem and made a false bad lead alarm?
4. Can I ask the surgeon to double check whether the lead condition before he insert a new one?
5. If they insert the new leads and keep...

Posted by etmichelleh on 2015-01-20 17:46. 1 comments. 65 reads

I just got back from my doctor's appointment. I'm very lucky to have a great cardiologist. He is very patient and answered all my questions.

Many thanks to all the support I got from this club here. Just want to leave this post to let the new comers know that you've come to the right place!


Posted by philco on 2015-01-20 17:16. 2 comments. 121 reads
my last post was not clear, my heart rate NOW is in the 60s, not 40s as it was before the pacemaker, current blood pressure 97/55 heart rate 61 is my pressure still too low to feel good, and should I have a pacer check before 2 months ? thanks,

Posted by valley01 on 2015-01-20 15:55. 5 comments. 174 reads
I have a Biotronik Evia DR-T dual lead pacemaker installed a little over a year ago for bradycardia. Today I went in for my routine annual check-up with my EP. When he tried to perform an interrogation he kept getting an error message. After an hour on the phone with the manufacturer tech support they found out my pacemaker had gone into backup mode.My last home monitor transmission was 1/6/15. I flew to Florida that day and returned on 1/11/15. From what I was told when a pacemaker goes into backup mode it should reset itself in 24 hours. Mine did not. Only 2 things that I am aware of could have caused this. 1) Airport security scanner which I highly doubt as they are supposed to be very safe and I have been through this exact one before...

Posted by EdG on 2015-01-20 13:55. 2 comments. 58 reads
My Medtronic PM was put in January 2014 and there has been a problem with pounding heartbeat every since. This is a problem that I never had with the previous Medtronic PM in the 8 years it lasted. The doctor says the PM is working as designed and has made a couple of adjustments, but the strong beats make it difficult to get to sleep or back to sleep in the middle of the night. It takes very little exertion to bring on shortness of breath and noticeable pounding. (Note: my aortic valve was replaced in June 2014 with a TAVR ; that is an animal tissue valve in a stent. An echo shows it is working satisfactorily.)
Has anyone had similar problems with and did a voltage adjustment make any difference in the pounding?

Posted by philco on 2015-01-20 13:11. 1 comments. 94 reads
hi, have had a 2 lead pacer for 6 weeks. have sick sinus with very low heart rate in the 40's. now very weak legs and shakey. don't go back to Dr. for 2 months.

Posted by Cabg Patch on 2015-01-20 12:56. 4 comments. 310 reads
Those who know me might be surprised that I am not always upbeat and light hearted as it were, but can also struggle with this monster we call heart disease. Well, here I sit this morning struggling with a decision that I was told last night needs to be made sooner than later.

I have known for some time the direction things were going, and even before the results of my latest echo were in I knew that things were degrading to critical levels. When bending down to tie your shoe laces results in a struggle for breath and getting up from a seat causes that light headed sensation so many of us enjoy, and Angina as a constant companion, it is fairly obvious things are not going as well as we would hope.

So last night after ...

Posted by Suz on 2015-01-20 12:19. 7 comments. 165 reads
Hi-New member here. I'm a 43 year old female who had her first pacer implant this past Friday (1/16/15) for symptomatic bradycardia and multiple syncopal episodes. Recovery is going well so far, but I'm still unclear on how high I can raise my arm on the implant side? Can I raise my upper arm to a 90 degree angle to my body? The nurse just said, "not above your head for two weeks", but I'm seeing conflicting info on the internet. Thank you all. I am glad this forum is here!

Posted by mg on 2015-01-20 11:28. 3 comments. 126 reads
Hi all ,
I was just wondering while the PM techs are trying to fine tune my setting am I chasing something that is drug related and not really a PM problem. Could my odd feelings be brought on by medication as I`m sure we are all on some sort of drug because of the PM or heart related problems ?
I`m particularly interested in peoples reaction to Furosemide?
I`ve been active in sports all my life(now 67) and wonder why I`m prescribed this duretic when now fairly healthy and active and not over weight.
Cheers mg

Posted by kmom on 2015-01-20 10:16. 1 comments. 94 reads
Thinking about trying Sotalol AF for afib. It's much less expensive than the Propafenone that i'm on and even though i'm up to the max dose i'm still having some issues with SOB, and tachy rhythms. the NP that works with my dr. I saw back in Dec said I could try it if I wanted to. and said I didn't need to go to hospital like i'd heard. anyone taken the drug and what are the side effects?? no plumping problems (ie heart attack etc.) mine just seem to be purely electrical SSS tachy brady but have PM now to help with the brady. I'm sick of being out of breath and having my heart race every time I climb my stairs or walk across a parking lot.

Posted by TessyBear on 2015-01-20 09:41. 9 comments. 249 reads
Hello =)

Being new to all this PM lark, I wonder whether it's worth getting a medical alert bracelet or necklace made. I'd appreciate any views and advice.

Stay healthy,

Posted by exshatlad on 2015-01-20 09:07. 1 comments. 90 reads
Hello all, this is my first post on here I have just had a pacemaker fitted, Got a letter on dec22 2014 to say i had been booked for an urgent appointment to have a pacemaker fitted on the 15-1-2015
it was a shock as no body had told me why I was fitte with a reveal device a year ago and had no issues for the first three downloads but the fourth aparently showed total heart block,
I booked a week off work and went for the implant came home last saturday but i feel awfull i can nor ride in my wifes car as the motion makes me feel ill and today I walked to the postbox and felt just as bad, Is this normal.
it feels like something is in my heart and it hurts.
any advice will be most welcome.

Posted by Lkrager on 2015-01-19 23:20. 5 comments. 175 reads
I'm 23. I got my pacemaker when I was 21 because my heart randomly stopped for 16 seconds. I'm otherwise healthy. I have a dual chamber pacemaker, not a defibrillator. And everything has been relatively fine except for the new-to-pacemaker-jitters I had the first few months.

Lately I've been getting little shocks. They don't hurt at all. They kind of feel like rhythmic little pricks right around where my pacemaker sits in my chest. I don't know what they are. But when I get them I think my anxiety kicks in because I get really nauseous. It's just worrying me. Has anyone else ever had this?

Posted by mytrose43 on 2015-01-19 21:10. 2 comments. 79 reads
Well i got my merlin home thing today ,I set it up and should be all set to go it is hooked up thru a cable phone line not a hardwire one in the wall reading the info they sent me it sayd it might work with the cable box all went as it was supposed to when i set it up ,My question is will it be making those beeping sounds when it does its testing at night its pretty loud lol .how has this worked out for other people they said it will detect any problems but it will only take a reading about every 3 months kinda cool to bad the wifi in the pacemaker wouldn't run a hotspot lol
Thanks Valerie

Posted by my4turtles on 2015-01-19 20:24. 6 comments. 135 reads
I have a Medtronics BIV pacemaker which I got in October ... My 3rd pacemaker .. I went in today for my pacemaker check and was told I have used almost 5 years of the battery life all ready. I Was surprised how quick It has been used up.. I'm pacemaker dependent so I don't know if that uses more battery.. I was told the BIV only have 4-6 year battery life is that true?

Posted by lahbigbro6 on 2015-01-19 20:20. 5 comments. 141 reads
I have a pilates machine and they added a pull up bar you can add. I would be lying down on the pilates machine and pulling up with my arms. The impact is only power cords for resistance. Does anyone use pull up bars ?

Posted by etmichelleh on 2015-01-19 19:33. 6 comments. 207 reads
Hi, it's me again. :)

The more I read the posts here, the more I think I overlook the whole thing. All I knew before was that I am to get a device and I won't be afraid of fainting when driving ever again. It seems I should have been more prepared but I'm not.

I'm going to have a pre-op consultation when my surgery date approaches, but I managed to squeeze in another appointment with my cardiologist tomorrow. Any suggestions on what questions I should ask my doctor?

I am going to ask him if he's going to secure my device with stitches. My device is going to be Medtronic. It's going to be the MRI tolerable one. My doctor knows I would like to play competitive badminton again so he mentioned something ...

Posted by djwhite1978 on 2015-01-19 08:39. 3 comments. 127 reads
I am 5 weeks post my first dual lead pacemaker implant. I am a 36 year old female. I was told I could begin a walking regimen at the 4 week mark, which I did. I now have what feels like a knot between my left arm and the beginning part of my left breast and it is very sore. I'm a little concerned but don't know if this is typical? I will call my EP office later today but wanted to get some insight if any of you have experienced this.

Posted by on 2015-01-19 03:58. 3 comments. 140 reads
wanted to know if anyone has had problems/death from model number PM2210. How do I find out what type of leads, have model and serial numbers.... thanks for any help or feedback.

Posted by tessenne on 2015-01-19 02:28. 9 comments. 367 reads
If I were to die from a non heart realted issue, such as a car accident, would my pacemaker have to be turned off before I was clinically 'dead'? Like, would it keep my heart beating regardless of the state of my brain or other organ function?

Posted by hopephil on 2015-01-19 02:12. 1 comments. 108 reads
I had a dual chamber implanted on 3.11.14, and from that day I have experienced daily episodes of heavy almost mechanical beats, slightly faster than normal (75 instead of 60), which last for 1-2mins. Curiously these episodes occur at 10mins to the hour, but at different hours each day eg. Fridays at 3.50p.m., Saturdays at 12.50p.m., Sundays at 9.50a.m. Sometimes they might occur at other times as well, but always at these times. My cardiologist (very experienced - about 2000 implantations) has never heard of my experience, and the technician at my first check-up looked and sounded puzzled as well. It was suggested that I might be particularly sensitive to my heart (all my life I have been able to feel my heart beating, so perhaps they...

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