St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by Rogue427 on 2015-09-03 21:46. 1 comments. 34 reads
I'm a Industrial Electrician and have been working with my ST. Jude ICD for over two years.
Do I tell the new employer about the ICD or keep quiet? I fought for 3 months with current employer to get my job back. After two years and no problems I'm looking to move.

Posted by MAZZAROO on 2015-09-03 18:34. 4 comments. 59 reads
Pacemaker fitted 28.9.12
Atrial fibrillation for 60 years.. Getting more attacks .. History of hyperthyroidism and graves disease.
Sotalol doesn't seem to do its job anymore and I'm convinced something is causing the AF . feel ill most of the time and live with breathlessness, with or without AF.
Told only option left is ablate and pace, this is worrying me, has anyone got any input on this procedure, have other health problems and I'm beginning to feel low and frightened.
The choice of hospital is Sheffield or Leeds?

Posted by dhusemann on 2015-09-03 08:46. 3 comments. 34 reads
need suggestions on ICD manu's
I work in the semiconductor industry and am
routinely working around 480 3 phase, 240 2 phase,
a few motors. typically only work on live circuits
of less than 50 v.

Living in the USA, any good options for MRI capatable
devices. ??


Posted by Runningmama on 2015-09-03 00:27. 4 comments. 107 reads
I accidentally (okay I did it forgetting about my device) on top of my pacemaker while I was exercising. Does anyone know what the reprocussions are if any? I have a Micra TPS for AVBlock 2/2.


Posted by greyfox on 2015-09-02 23:47. 4 comments. 94 reads
I've had a dual chamber Medtronics PM since 2008. In 2010, I received a catheter ablation, which leaves me atrium 100% paced from 70-130bpm. I have normal in-heart electrical pathways between upper and lower chambers. My issue is cycling, which I took up about a year ago. Most of our riding is road bike on paved roads. Bottom line is I get very little rate increase as we ride. I rarely see the rate rise above 104 bpm. On hills as I climb, the PM will actually slow me to 90-94 bpm when I need to do just the opposite. Coming out of the saddle sometimes helps, but that's a huge energy waster. If we are on gravel, I fare a little better. But... on those hills, my legs frequently run out of gas and I'm watching everyone pull away as I slowly cl...

Posted by Happiness88 on 2015-09-02 21:09. 5 comments. 92 reads
I've been having various tests regarding arrhythmia, syncope, dizziness etc. Yesterday I was told that my heart rate was recorded as having stopped for 11 seconds while beating at 39 beats per minute, with several shorter pauses when my heart rate was 36. I am having a transthoracic echocardiogram next week to check for damage to my heart. I am still waiting for the electrophysiology to be done. Is there any way of preventing these sinus pauses in the meantime? I am really worried.

Posted by golden_snitch on 2015-09-02 19:11. 0 comments. 55 reads
I have written three blog posts on new research results that were presented at this year's European Society of Cardiology's congress (ended today). One covers the new data from the St. Jude Nanostim LEADLESS II trial, the other two deal with studies in the field of catheter ablation to treat atrial fibrillation. If you are interested, please visit my blog at:

Best wishes!

Posted by Tattoo Man on 2015-09-02 18:55. 1 comments. 28 reads of the best Edinburgh Fringe jokes goes like this......
" What is the difference between a Hippo and a Zippo ??"


" A Hippo is really heavy..whereas a Zippo is a little lighter "

No ??...well you do your best, eh ?

Tattoo Man

Posted by Sonnyboy on 2015-09-02 17:39. 1 comments. 70 reads
Eddy 10 days after my recent upgrade to a St. Jude CRT. My first two wire PM occurred in 2006. I am now 84 years old. The division to upgrade was based a diagnosis of increasing likelihood of HF even though countering medications failed to increase my EF. A QRS of approximately 190 and echograms solidly indicated de synchronization of the ventricals.

The operation was long, far exceeding normal switch outs, but was painless. Although I'm now restricted with what I can do for the next couple of weeks, the results far exceed what I was prepared for. Although I don't yet know what improvement has been made to my EF, or the QRS, my balance, breathlessness, and physical endurance are markedly improved. Overall, I think I'm back at l...

Posted by BevBabe on 2015-09-01 23:22. 0 comments. 38 reads
Anyone ever have a clot form on the atrial lead??

Posted by Helotail on 2015-09-01 18:36. 3 comments. 162 reads
Hi Everybody,
I have had my pacemaker almost 3 weeks for Sick Sinus Syndrome. I am a 46 year old female who exercised a lot before by pacemaker and was encouraged by my cardiologist to exercise on a regular basis. I have been doing some low-impact cardio, like the elliptical and indoor cycle. The problem I have is that I get very dizzy after I stop exercise.

Has anyone else had this problem? I thought the pacemaker would stop the dizzy spells.
Thank you in advance!

Posted by Lisamaruna on 2015-09-01 07:39. 4 comments. 206 reads
Hi I am 42 year old mom of 4 and restaurant owner. Needed a pacemaker because rate was in the 30's and heart was stopping 3.5-5 seconds at a time. My EP basically didn't give me much of a choice. It is now 10 days post pacemaker and I still don't feel right . I have pvs's which he is now trying to control with blood pressure meds. I am also taking hydrocrodone for my pain in my left and Xanax for anxiety.
Tonight I took my meds plus the blood pressure med and I cannot take a deep breath.
I am so tired of not being able to get comfortable and feeling my heart do funny things. They already adjusted my pacer to 70 but it didn't seem to help. I haven't returned to work, am tired probably because of the meds and I also have 4 little ...

Posted by Alma Annie on 2015-09-01 04:29. 5 comments. 169 reads
I have only just found this out but since having pm 4 years ago, sometimes when I use my hairdryer the front doorbell rings. No one ever there. I don't hear it but my husband does, and has only just thought to tell me. I wonder if there is any connection to PM or just an electrical phenomenon?!!

Alma Annie

Posted by Synch on 2015-09-01 02:58. 4 comments. 139 reads
Hi all,
I have a dual lead pm and will have a stress test in a month. At the time of the stress test I will be three months post implant ( for very low heart rate). I am fearful of treadmill test because of generalized fatigue etc and am not really back to normal. I don't think I could tolerate Treadmill any time soon. ( I had treadmill test fifteen years ago without incident; however, many changes have taken place since that time). My cardiologist will perform Regadenoson (Lexiscan) Nuclear Stress Test. Has anyone had this test post pm and, if so would you share your experience or any information u have? Thanks for your feedback!

Posted by jfer73 on 2015-08-31 23:03. 1 comments. 94 reads
I've had 3 episodes of pericarditis since my pacemaker was implanted 7 months ago. Anyone else have this level of frequency? What did you doctor do? It's so painful and I don't like that it is recurring when I'm still on the colcrys... Thanks!

Posted by freddyv on 2015-08-31 20:22. 6 comments. 191 reads

Posted by berniewernie on 2015-08-31 20:07. 4 comments. 135 reads

Hello fellow pacers,
I posted up a couple of weeks ago but now things have changed. I had my original pacer n October last year and that turned into a big bulge very uncomfy so my consultant did a re-burial. At first (May) it seemed ok but as the months have passed its gotten more and more bulging and sore burning and itchy... plus now the leads are all tangled on the top of the unit! Now the surgeon wants to take the thing out plus the leads and give me a new one on the other side of my chest. I am worried it will be just the same. After all I am the same thin skinny person on the opposite side! Ive mention ed that but he just said he would bury it deeper!! Do I want to go all through this again? Not really. But the ...

Posted by Jane21 on 2015-08-31 17:17. 4 comments. 205 reads
Hi. This might sound a bit odd, but I wondered if anyone else has had the same symptoms.
I am just over 6 weeks PM fitted and have settled into a much easier routine. Going back to work (teaching) tomorrow as the new term starts.
But, had a couple of strange incidents this afternoon.
Sat in husbands truck, he was driving. Suddenly started to feel unwell and heart rate went sky high 164. Felt very uncomfortable until got out of truck Went on our walk with the dog and things settled down - perhaps a bit more breathless than usual up the hills.
Got back in truck and set off to come home and hey presto exactly the same thing happened.
Is there anything in the pickup which could trigger this?
I have been driving m...

Posted by Hartje5 on 2015-08-31 12:57. 9 comments. 168 reads
Hi everybody,

At the end of May I had a Biotronik Eluna 8 DT-R with two leads implanted after an hybrid ablation because of persistent afib. The ablation was successful in stopping afib but unfortunately it became clear I have sick sinus syndrome and normal sinus rhythm did not return.

In the last few month I have been recovering from surgery. My minimum heart rate was set to 60 en the maximum at 120, CLS was set to 'normal'.

Unfortunately I now have a lot of PVC / VES and before my check up had trouble climbing the stairs, walking up hill or cycling at a normal speed. I was out of breath all of the time. My maximum heart rate was about 88 when climbing the stairs or cycling. But my resting heart rate was...

Posted by Pinkie on 2015-08-31 06:18. 0 comments. 44 reads
I had a Boston Scientific pacemaker inserted 23 June. No problems until yesterday, 29 August. I have a tingling sensation almost like a twitching although I can not see any movement. It is in my left arm. Friday I had a PICC line put in my right arm and it was done under radiology. Hope it did not do anything to damage the pacemaker. Thank you for any feedback, just concerned.

Posted by corazon on 2015-08-31 02:22. 2 comments. 110 reads
A few days ago I woke up and my heart was pumping very fast. I thought it lasted for about a minute. When I went to the doctors office my pacemaker was interrogated and it show my pulse had gone up to 140 for about 20 minutes but beats were regular. My doctor thinks it's nothing but he is still going to do a 24 hour holster monitor. Has anyone experienced this?

Posted by garydiamond on 2015-08-31 00:53. 3 comments. 136 reads

Posted by Sue125 on 2015-08-30 12:53. 8 comments. 241 reads
Hiya I am 46 and have had a pacemaker fitted 3 weeks ago. I teach in a primary school and am due back in a couple of days. I have had no advice as to if I should go back or take some more time off. Not sure what to do. Any advice anyone.

Posted by jsne on 2015-08-30 09:53. 3 comments. 124 reads
Since my EST and PM adjustment I really feel as if at last I have turned a corner. Managed to paddle down a river last weekend, lots of bad words as I thought I was going to capsize but survived!!, good to be out again . Arm/shoulder, wound all great after the paddle.
Still getting short bouts of palps ? PM induced but they stop very quickly. The main thing that still feels wrong is my heart rate still seems too high when not doing very much (90) however when settled feel great. Maybe in time things will settle more.
Going on holiday next week for 2 weeks to Austria/Italian Alps and have been organising what days I can walk and when I can use buses and meet up with folk at the end of the day. Don't want to over do it.
See ...

Posted by Donkong on 2015-08-30 06:23. 3 comments. 135 reads
I had an AICD implanted June of this year, after 3 bouts of receiving a shock, my medicine has seemed to smooth things out. When I do anything physical, walking around, climbing stairs, I feel strange. Sort of light headed, sometimes some shortness of breath. Has anyone else had similar issues? Just wondering how normal this is

Posted by Chdmoms on 2015-08-29 22:54. 4 comments. 170 reads
Hi everyone,I posted the other day about my daughter that has SSS from a cardiac ablation from a few weeks ago. She is in a junctional rhythm 40-47 per day and 30's ( low was 31) in the night. My daughters sinus node was not working perfectly before the ablation due to open heart surgery she had when she was a baby. Her last recent holter ( prior to ablation) was mid 60's average. The thought is the most recent ablation damaged ( unintentionally- and I am so mad, but that is a whole different story) her sinus node. She does have some symptoms from this junctional rhythm, a little more fatigue and sometimes short of breath. She feels fine with exercise and she is able to get into sinus rhythm with exercise when HR is over 90. One doc...

Posted by AnnaT on 2015-08-29 21:52. 4 comments. 185 reads
I want to purchase a bracelet or pendant medical alert. Which do you recommend? Is one better than the other?

Posted by AnnaT on 2015-08-29 21:50. 3 comments. 136 reads
I wear a security access card when at work, one that allows me to hold against the door lock & have it scanned to unlock the door. Does this interfere with my PM and do I need to wear it away from my PM area?

Posted by islandgirl on 2015-08-29 20:49. 0 comments. 123 reads
I am now 6 months post pm implant with a Medtronic dual lead for sss. I've been having odd problems such as getting shocked when entering numbers for 3 different electronic gate openers (I now get out of my car to punch in the numbers), a short-lasting tone that happened most recently a couple of mornings ago, and occasional vibration from the pm that feels like the cell phone vibration. Most recently I took a photo of a bank check to deposit and the screen on my iPhone was jumping, correlating to my pulse. I took the photo about 5 minutes later with no problem. And yesterday, the same thing happened when I was using my iPhone in the field for work. It only happened once out of about 15 photos. I'm also getting an occasional minor sh...

Posted by zumbajanie on 2015-08-29 17:59. 0 comments. 41 reads
Thank you all for your help I'm going to have to be patient

Posted by SwimmerRon on 2015-08-29 13:41. 0 comments. 107 reads
Can someone help me understand the role that having a-fib has when considering having a CRT or CRT-D device implanted?

I've read several places that having A-Fib can actually worsen the situation, meaning complications such as inappropriate shocks due to the A-fib &/or worst. Does a device that paces the lower ventricals also (?) affect or pace the upper chamber where the A-fib starts?

As for me specifically...I have a-fib, and it is constant, although I do not feel anything. My a-fib is very consistent apparently (whatever that really means). I only found out I had a-fib because I needed an EKG for clearance for a minor inguinal herhia surgery.

Ironically, I had a-fib with no symptoms for 9 months bef...

Posted by wonderboy on 2015-08-29 07:42. 2 comments. 159 reads
any relation to inability to sleep more than 3 to 4 hours and having a pm/df?

Posted by jtrainer37 on 2015-08-29 05:15. 3 comments. 109 reads
I had an RV PM installed last February when my EF had declined from 57 to 40, over a year's time. Six months later my EF declined to 30. I was referred to a Heart Failure Specialist who put me on Losartan 25mg. (Six months ago I was put on Lisinopril 50mg but had to DC it because my BP dropped to 80/50). I am tolerating the ARB OK which is good because the doctor says the insurance insists on a medication trial before replacing my RV PM with an ICD, which won't be until Thanksgiving. He said my current RV PM might be doing more harm than good.
My concern is that, with a weakening heart, this PM may be wearing it out faster, kinda like beating a dying horse - he's just going to die quicker. What do you guys think?

Posted by zumbajanie on 2015-08-29 02:56. 7 comments. 157 reads
If i had surgery last Friday would it be ok if i go riding on a motorcycle

Posted by lahbigbro6 on 2015-08-29 01:51. 2 comments. 134 reads
I want to get a fitness tracker, can anyone tell me how the Fitbit Charge is or the Fitbit Charge HR is ? Thanks, Laurie

Posted by nonischemic on 2015-08-29 00:58. 2 comments. 114 reads
Just got the results from my echocardiogram report. My EF is now 40-45% 17 months post implant! A substantial gain since 20 months ago having a 15% EF and being diagnosed with non-ischemic, LV Dilated Cardiomyopathy. The LV has returned to normal size, the mitral valve now has only mild to moderate (was severe) regurgitation. A far improved heart report card than I did 20 months ago when diagnosed.

I'm pacing at 98.8%. Looks like the Medtronic Viva XT CRT-D, meds, exercise, and lower stress job is the correct path!

Looking forward to an EF of 50%+ by my 59th birthday early 2016.


Posted by racerjon on 2015-08-28 18:39. 5 comments. 198 reads
I'am wondering if anyone has ever had this problem. I just got my pacemaker two days ago on Wednesday, August 26th. In the two days I've had it, I have been experiencing a shortness of breath and trouble breathing. Has anyone else ever had or heard of this? I would appreciate any feedback.

Posted by Fluff87 on 2015-08-28 17:58. 4 comments. 142 reads
Hi all,

Next week I will be getting my first pacemaker placed. I'm not going to lie, I'm nervous as heck, but really am looking forward to the possibility of feeling better. I've been passing out for about 10 years now. I've tried multiple medications to try and stabilize my HR and now it's come to this. I'm only 28 years old so the idea of a pacer is rather frightening but I have confidence in my Dr that this is the right choice. Here's to pacing and feeling better!

Posted by Chdmom on 2015-08-28 05:05. 8 comments. 240 reads
Hi everyone, I have a 16 year old daughter who had an ablation that damaged her sinus node. She now needs a single lead pace maker to pace the atrium only. Just wondering if anyone has experience with this? What are long term side effects?? So worried!!

Posted by Josullivan on 2015-08-28 04:22. 3 comments. 163 reads
On June 10 of this year at 54 had pacemaker put in, not what I had planned for my 54 th year.. No meds have had AF about two or three times a year lasting any where from a few hours to the longest 2 days for the past 15 years. And then in June had about 10 episodes on feeling not so good, went to hosp. and they caught last episode on ekg and Dr. stated you get to have a pacemaker. Any way reason for posting, I have had one appointment with Cardiologist and two with pacemaker clinic, I get an odd feeling like a full feeling from my diaphragm up, never had it before and now get it at least once every day, they advanced AV delay, and said after power levels drop in 120 days that might do it, last time in I had only been pacing .02...

Posted by nato on 2015-08-28 02:22. 1 comments. 107 reads
Hi All,

My son is 3 yrs old and had his pacemaker when he was at 8mths old.Recently he had an echo done and the results are as follows;
Normal dimensions,normal function,trivial tricuspid regurgitation and normal right ventricular pressure.

With regards to trivial tricuspid regurgitation I have done some research online and it's proven to be nothing serious and of little importance.

Can someone on the club please share their knowledge who had a case like this and what was the outcome.

Thanks and appreciate your feedback.

Posted by pezzypooh on 2015-08-28 01:06. 1 comments. 118 reads
Hi there! I had a recent ECG that was abnormal. I have a follow up with my cardiologist, but not for a few weeks, so I am just curious if anyone can help me understand the results at all? Here they are:

Ventricular Rate 100 BPM
Atrial Rate 100 BPM
P-R Interval 212 ms
QRS Duration 80 ms
QT 350 ms
QTc 451 ms
P Axis 45 degrees
R Axis 13 degrees
T Axis -8 degrees

Atrial-paced rhythm with prolonged AV conduction
Abnormal ECG
When compa...

Posted by Synch on 2015-08-28 01:01. 1 comments. 97 reads
Hi all,
I know my pm is set not to go below 60 pulse/heart rate...are they set not to go above a certain rate. Perhaps being redundant here but...not below 60 and not above 90? Experiencing heart rate in 90s this evening with no difference in activities....however, have been lifting arm higher. Now 8.5 weeks post implant. Thanks for your input.

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