St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by bexy on 2014-04-20 14:21. 3 comments. 26 reads
Im 44, female and last december was taken into hospital after a suspected heart attack. Luckily it wasnt, but after having the 24 hour monitor the results came back saying that at one point my heart paused for 3.9 seconds and a few hours later it registered 4:1 heart block.
I am waiting to see a cardiologist who at the moment is being very unhelpful in answering the questions i have, thank god i have a fantastic GP.
I have been told i will need a pacemaker, but id like someone who has been through this to explain it all very simply to me if possible. Thank you :-)

Posted by Ronniecolorado on 2014-04-20 12:19. 1 comments. 14 reads
Good morning,

Anyone with an ICD/CRT-D have experience with hernia surgeries?

I've been stalling for quite awhile because of my CRT-D; my EP doesn't see a problem…other than the CRT-D will be turned off during surgery…with paddles on standby…and of course turned on by a Boston Scientific technician who would be present.



Posted by Dizzytiltingwoozy on 2014-04-20 11:52. 0 comments. 9 reads
I just finished reading a Poll on another site I frequently visit. The Poll was in regard to how many people have Sleep Paralysis, I was surprised by the answers.

Several people had what sounded like sleep apnea. Several people had sleep paralysis as children but had it happen less often as they matured.

I know I have had sleep paralysis happen to me when I first wake up I can not move. Very upsetting to me, especially now that I have had a Stroke. I have had Sleep Paralysis since I was a kid.

I am very curious how many people in our group have had such things happen to them. I wonder if it is connected to Sleep Apnea, our cardiac conditions. Doctor's seem to think it is harmless, I am not sure what it ...

Posted by kmom on 2014-04-20 10:59. 3 comments. 39 reads
Kinda of a stupid question but on our vacation we were thinking about going out to Hoover Dam and touring the dam/power generation areas again--is it a problem with a pacemaker? I'd read somewhere where it's not a good idea to be around power generating equipment or high tension power lines. When I told my husband he was surprised that this could affect me. what's the scoop on that?? (I have sss and am pacing at 64%)

Posted by pp on 2014-04-20 09:30. 1 comments. 25 reads
I have had three pacemakers, the most recent Dec. 2010. The first pacemaker got infected, treated with vancomycin iv for six weeks. This failed to work and pacemaker removed, old pocket filled with antibiotic and J P drain. Two weeks in the hospital, then a second device installed. Now the most recent device is swollen and red. I am scared of this!

Posted by Grateful Heart on 2014-04-19 22:57. 2 comments. 30 reads
For heart failure patients. This is great news! Cardiac Rehab is a wonderful program that has helped so many, including me. I truly feel Cardiac Rehab should be mandatory for heart patients who are able to exercise.

If you read the Cleveland Clinic article below, a final decision will be made after a period for public comment.

Here is the link:

I hope this will help some of you who have Medicare.

Grateful Heart

Posted by cherismoak on 2014-04-19 22:07. 1 comments. 86 reads
I am 57 and have a pacemaker for SVT. I have been having some issues for a few months and attributed it to pacemaker battery going down (will need to be replaced this year, in Jan. had 9-15 months left). Not so sure anymore and due to no insurance since 2009 have no regular cardiologist.

Symptoms – fullness in throat, headache, pain between shoulder blades, fluttering feeling maybe a pressure/tightness but hard to describe in my chest, sorta like I felt prior to PM.

I have been to ER just Thursday and they said no heart attack as blood tests were fine. Before that went to a family doctor and she sent me to the ER after listening and doing a ECG that stated abnormal.

I ask my PM doctor and was told it did ...

Posted by Terrytica on 2014-04-19 20:11. 0 comments. 42 reads
Old PM: Actros DR
New PM Evia DR-T
So my hubby is experiencing severe shortness of breath and dizzyness with minor exertion, especially getting up from sitting/lying or bending over.
None of this was a problem with his old pacemaker, so I started comparing settings.
Starting with the diagnosis (Symptom)
Old: B1 Syncope. this is his correct diagnosis along with B2 fibrosis of the conduction system and normal sinus rhythm and can happen at any time not just resting as in the case of Bradycardia
New: B3 Bradycardia I think this is similar but not the same!

On the old PM, the nocturnal programing was turned off but the PM was set to "kick in" at anything less than 70bpm.
On the new one his Basic r...

Posted by BillMFl on 2014-04-19 18:08. 0 comments. 9 reads
Just don't kick as hard, haha. Had my 72nd birthday last weekend. Actuarial tables say 12.4 more years. Hmmmm. We'll see. Probably need a couple new pms along the way. Feeling great, hitting the gym three times a week. Got up to 135lbs on the lat pull downs. Still 35lbs max on the dumbells. Delts, triceps and pecs getting pumped. Look out Arnold you fat old gas bag. No belly here! :) Lots of new faces. Don and Tracey holding up the fort. Heading for Maine in a couple of weeks. Hope spring gets there before me! Good luck to you all.

Posted by Bramlore on 2014-04-19 15:38. 7 comments. 113 reads
Hi everyone, I am a 59 year old female and after having dizzy spells and palpitations for about six years I have been diagnosed with complete heart block and had a pacemaker fitted three days ago. I got really scared today when I had another dizzy spell and I just feared that it has not worked. I am really scared of pulling the wires out of my heart. I know it all sounds silly but if someone could please give me some reasurance I would be so grateful. I just need other people who had problems when they had theirs fitted to help me please xxx

Posted by depreal30 on 2014-04-19 15:18. 2 comments. 42 reads
I am moving to Alabama and looking for referrals for a good cardiologist. Any one know of a good one??

Posted by Catherine on 2014-04-19 12:02. 5 comments. 126 reads
Hi, I have just gotten a PM 2 days ago. After 2 syncope episodes within 1 week I was scheduled for a tilt table test. After 40 minutes in the vertical position (no drugs were administered) my heart stopped and I flatlined for 45 seconds. The doctor(electro physiologist ) insisted I needed a PM and within a few hours had installed the device. So now I am just wondering if this will fix the problem. Before they said that when I fainted I woke up because the blood could get back to my head because I was horizontal. I am now told that I fainted because my heart stopped. He also put me on a beta-blocker which I am not thrilled about. This is all so new I need much more information.
Altho I am 65 yrs old I am extremely healthy, not overwei...

Posted by sueshe1958 on 2014-04-19 06:26. 3 comments. 122 reads
I am moving to Spain permanently in a few weeks time. Having just had my Pacemaker fitted 10 weeks ago, I am aware the scar tissue is still fresh, but has anybody any suggestions about the sun and pacemakers, as naturally I can not sit inside all day.

Posted by kruddick on 2014-04-18 20:37. 3 comments. 88 reads
I am thankful for a place to share from other who've gone farther down the path after getting a pacemaker. I got mine 6 months ago and what I read on this site made it so much easier.
A couple of days ago I began having symptoms like a pinched nerve coming from above my pacemaker and going into my shoulder in a couple of places. It is much worse when I take a deep breath. The pain moves accross my shoulder to my neck. The muscle from my abdomen to left shoulder has been tender since the pacemaker surgery but I have been in PT for that.
Has anyone experienced this. It came on suddenly while I was sleeping.

Posted by raiderralph on 2014-04-18 17:18. 1 comments. 28 reads
Wishing all my PM and CRT friends a very Happy Easter. I feel blessed and hope that you fell well and stay strong

Posted by ljohnson on 2014-04-18 15:16. 6 comments. 164 reads
I'm new to this site. This is my fist post. I read a lot of post about pacemakers beeping. I woke up around 3:30 am one day last week and I heard a high pitch beep. I would beep about every 3 seconds. I finally figured out if was my pacemaker after putting my head under the covers to listen. It beep about 3 hrs and quit. My doctor said he didn't know why it did it because my reading says everything is ok. Just found this interesting. Does anyone reoccurring atrial fibrillation? What treatment are you getting? ljohnson

Posted by porrgirl on 2014-04-18 14:10. 5 comments. 134 reads
I'm 13 and just came home from the hospital yesterday after getting a pacemaker for my diagnosis of Complete Heart Block. My left side doesn't hurt really where they cut me, but the most pain I am having is that my heart seems to beat SO HARD that it hurts most of all. I can feel it inside and you can see it beating when you look at my skin. It really hurts bad. What is this and has anyone else had this pain before? I'm worried. My mom is taking me today to see the Dr. again, but I feel like he will say its all part of this. Is it really?

Posted by naplesbear on 2014-04-18 14:06. 1 comments. 45 reads
Thank you for the positive words of encouragement. Each day I am getting a bit stronger and feeling more at ease with my new heartbeat. I had my post op visit monday staples removed and all looked and went well. The doc did turn on a second lead that wasn't activated at time of implant, no issue at the office. It was that night when laying down that the strong thump thump that rocked my body and i must say freaked me out a bit. The technician did tell me that i may experience something like this, i was just not prepared for it to be so powerful i went back the next day where the tech was soooo wonderful, understanding and did dial the impulse back a bit. I am now able to sleep at night and that is most def improving my mental and physical...

Posted by mandana on 2014-04-18 09:23. 2 comments. 48 reads
I want the hemo-compatibility and biocompatibily tests which are used for a pacemaker device before entering to clinic. I'd be thankful if someone could kindly help me :)

Posted by Stillrunning on 2014-04-18 00:37. 4 comments. 188 reads
A quick update for those who have not followed my postings.
I have had PM since is June 27 this past year. Fairly successful and returned to my running career (40 yrs of running) and had some success early, 24 min 5k after about 8 wks. This has been followed by a steady downward spiral and many clinic follow up visits with adjustments to tweak the settings on my Medtronic Adapta PM. I eventually got to a point where I was told they had done about all they could. I received a lot of support from many people on this site and continued to push with questions and research. Eventually at my suggestion I was sent to another dr a electrophysiologist yesterday. He and his nurses took one look at my device on their monitors and all started fro...

Posted by purple03 on 2014-04-17 22:30. 0 comments. 42 reads
I guess I will follow suite, I am new to the site and didn't realize it even was even available. I am 53, I have a Metronics Defibrillator that was implanted May 4, 09. The only issue I have had is that my breast implant ruptured shortly after. In Nov 2013, I went for routine mammogram, had ultrasound and biopsy Dec 2013 and then on Jan 2, 2014 I was told Stage 1 cancer. I had left breast tissue removed March 2014 and they implanted a tissue expander. I have had several episodes of Beeping, my plastic surgeon is now telling me that she will not add to expander, wants me to wait until she does permanent implant. I also need defibrillator replaced and have asked that both be done at same time. Has this happened to anyone ...

Posted by Kelseyhickman on 2014-04-17 16:51. 7 comments. 132 reads
just joined today because I have been searching for an answer to a question I have online and came upon this group that I never knew existed! Happy to join - I am 41 and on my 2nd first was at 27 y/o.
This is my question: I have been having severe lower back issues the last several months that are getting worse. I had a CT scan and I just know that they'll *want* an MRI, but that's obviously not going to happen. I like to be informed before I see the doctor and there HAS to be another alternative to getting more info about back/spine issues than an MRI. I remember several years ago I had a procedure on my back when I was having an acute issue because they couldn't do an MRI but cannot remember what it was...

Posted by adairwic on 2014-04-17 16:19. 2 comments. 64 reads
Hi everyone thanks so much for yesterday's support, I got a phone called and e-mail from my doctors about what is coming up for me on Wednsday 23rd of April; I am having a Inotropic therpay or in other name is heart pump medication; their are putting in a intravenous catheter line with a infusion pump, because of my heart being so weak, I am one step from a heart transplant, I have gone into stage 4 heart failure, to ensure my life this must be done. These are the medications their are going to use;
dobutammine (dobutrex)
Milrinone (Primacor) just wanted to share this, thanks again for all the love prayers and support from all of you kind folks, God bless each and everyone here. Love Carolann

Posted by Ally86 on 2014-04-17 13:02. 2 comments. 116 reads
Just wondering if anyone on here ever had surgery with Dr. Byrd at Broward General Medical Center in Fort Lauderdale, FL OR with Dr. Carrillo at University of Miami hospital in Miami, Fl?? Dr Byrd put my device on the right side then put the leads in using the "purse string" procedure. I had multiple issues with the generator being on my right side-it wouldnt stay in the pocket. Finally, it was moved back to the left, but the leads were left because they felt it was too dangerous to pull the ones on the right out of my heart because they were actually screwed into the heart... well...these leads ended up causing many issues and last may I had surgery with Dr. Carrillo and he lasered them out-but I am still in SO MUCH PAIN! Just w...

Posted by bluebowtye on 2014-04-17 12:03. 1 comments. 100 reads
Hi Everyone,

Today is my 2 month PM implant anniversary. I am happy to say I am doing really well and almost back to 100% of where I was before my surgery. Since I had no symptoms prior (no shortness of breath, no extreme fatigue, no exhaustion while exercising - NOTHING) except 2 syncope episodes one evening, I really don't feel much different and since I just have 2nd degree heart block my Dr. told me it would be that way. He said since I was in good health to begin with my recovery should go fairly easy and it has. My scar is healing nicely and other than some occasional minor discomfort at times, I hardly know it's there, although I do think about it all the time. I have been doing lots of hiking and walking and am s...

Posted by Tao on 2014-04-17 11:34. 9 comments. 158 reads
I was wondering if anyone has experienced having a lead yanked out. If so, what caused it, what were the symptoms, and what was done about it?

I love riding my horses, but have been told I cannot fall, becuase of the fact I could yank out a lead in the fall. Of course, I don't usually fall off the horse, but I am terrified I might!

Posted by Ally86 on 2014-04-17 10:36. 3 comments. 67 reads
Hi, Everyone!
I am scheduled to go into the cath lab tomorrow morning for a pacemaker revision- My surgeon is going to get rid of some scar tissue that is causing issues and move/repocket my pacemaker since it has moved a little and I can feel it "lift/pop" when I use my arm.
How long do you think the recovery will be? The Dr. says 2-3 days, but I am really nervous it will be longer. He is not doing anything to the leads.


Posted by maureen.coxsey on 2014-04-17 09:14. 2 comments. 42 reads
Hi I have had a PM for 15 years, recently I get a ticking/jumping feeling over my Pm, it feels like a nerve jumping , no pain just annoying anyone else get this ? I don't want to run off to the hospital for some thing so small, just want reassurance .

Ta Moe

Posted by sheil60 on 2014-04-17 09:05. 8 comments. 152 reads
Anyone know if and when you can give blood after a pm implant? Just wondered if I can still donate. Cheers.

Posted by Tobster on 2014-04-17 08:30. 2 comments. 66 reads
had pacemaker fitted Nov 2012 turned over in bed from left to right oacemaker shifted up to collar bone I pushed it back into place No symptoms no pain pulse rate as set .Is this normal ??? has anyone experienced this ?

Posted by IAN MC on 2014-04-17 05:25. 2 comments. 158 reads
We all know the theory of altitude-training where top-level athletes train at high altitudes. They go off to somewhere like the Great Rift Valley in Kenya where their bodies become accustomed to low levels of oxygen. They then run like crazy when they return to lower altitudes for their athletic events.

My pacemaker gurus, in their infinite wisdom quickly identified that :-

i) I am not a top-level athlete and
ii) I cannot fly over to Kenya because my wife says the house needs decorating !

So, in a flash of sheer brilliance , they came up with a cunning plan :-

They deprived me of oxygen for over two years by not giving me the correct settings on my PM . This was their version of ...

Posted by Jay4 on 2014-04-16 21:28. 12 comments. 191 reads
Question to all of you experts out there: I am getting out of the Military and losing my life insurance policy. I went to USAA today and they won insure me due to my ICD, the military's version of our current life insurance policy balloons to 1800 a month at 75 for 400K of term. I was wondering, what options do we have in regards to life insurance for people with an ICD? A recommendations on companies?

Posted by adairwic on 2014-04-16 20:49. 7 comments. 160 reads
Hi again this is Carolann, been gone again for a while not feeling very good, one up date my low blood oxygen problem is all heart related, and I am still throwing pvc's all the time, also I will be put in the hostipal this next Wednsday, to have a medication change done, never had this done before, update also I had stress test, it was very abnormarl, had heart cath done, 3 weeks ago this Thursday, no blockages and no plague of any kind, Have any of you folks had a hositpal stay for what my heart dr. called medication change? I have be kept there for over 24 hrs. would anyone know what is involve in this.? again I have ICD/CRT-D, the last 15 months my heart has gotten very very weak, also I not sure I have share this, my heart doctor...

Posted by Helenbuble on 2014-04-16 14:50. 5 comments. 216 reads
Hey I'm Helen twenty nearly twenty one had my pacemaker fitted recently after passing out since the age of thirteen I never thought anything of it until October last year it caused me to crash my car since then I was under going investigations for epilepsy the tests came back negative this dis heartened me as I still didn't know the cause and I was passing out at least three times a month if not more which it was beginning to affect my life more and more neurology then passed me to cardiology who did a 24 hour tape this showed I had an irregular heart beat which because it stopped between 3.2 and 3.5 seconds at a time caused them to want to do more tests I then had three blackouts within a week and my gp admitted me to hospital over ten da...

Posted by Ces58 on 2014-04-16 14:23. 4 comments. 115 reads
I had a pacemaker fitted just 10 days ago for 2-1 heart block which showed up on a tread mill test. Shortly afterwards I noticed that I had a tightness across my throat rather like indigestion. I have since spoken to the pacemaker clinic who said the problem was not related to the pacemaker. I was asked if I had angina? I said not as far as I knew and I certainly had not been told that I had anything other than the heart block. I queried the suggestion that the tightness might not be due to the pacemaker saying that I did not have this before the pacemaker was fitted. I was told that my heart may well now be being made to work harder and that I should contact my GP. I asked if it could wait until I saw my consultant in 6-12 weeks. He sugg...

Posted by PacingGranny on 2014-04-16 13:05. 9 comments. 228 reads
Hi, I am a new member as of today, had my pacemaker/ICD put in two months ago. This was my new year's surprise. I definitely feel better, but am having a hard time coping with the fatigue. I have good days and probably over do things, like errands or chores, then I am knocked off my feet and fall into a hole of fatigue and it takes days of climbing back out again. Yesterday was the worst. On Saturday I had energy and did errands, cooking, etc. Sunday I fell into the hole and could hardly do anything. Monday I took off from work to do things I had appointments for, but asked myself all day, should I really be doing this? Well, I did it anyway. Yesterday I went off to work tired, then shortly after that I became sweaty, pale and just wanted ...

Posted by annie21 on 2014-04-16 10:52. 10 comments. 195 reads
put on these 3 weeks ago, started having chest pain, feels like electric shocks, chest feels tight, i think it could be side effects. Should i bother doctor

Posted by kmom on 2014-04-16 09:35. 0 comments. 15 reads
Warmest wishes, prayers and good thoughts go with you today as you get your PM word of advice--remember to ask for ice pack when you get back to room. It will really help! You'll be ok and feeling sooo much better!! at least that was my experience!!

Posted by Sharron46 on 2014-04-16 07:54. 4 comments. 137 reads
I'm new to the group and would like some advice please
My pacemaker was fitted last November
I went to pacemaker clinic in December to be told I have a fault on a lead and the specialist would be in touch
I had a 2nd appointment in March I be told the lead has been switched off and I am having extra beats
And the specialist will see me the following week
I've seen the specialist and told him I am feeling just the same as before having the PM fitted and asked why the lead is turned off just leaving the 1 I was informed that as I'm 46 I don't need it yet may do in 10yrs and it's standard to fit both even though not needed ?
As for the extra beats I've now developed since having the PM the specialis...

Posted by koolaid on 2014-04-15 22:46. 9 comments. 240 reads
Hello all,
Here's my story: Since February (for 3 mo), I've been experiencing sporadic shortness of breath. I was told it was a lung virus. Then, a month later and seemingly unrelated, the chest pain started, scaring me enough to go to the ER. There, they told me I had chest wall irritation and sent me home. The EKG and blood tests were fine.

A week later the chest pain got even worse, and I went to the ER again. What followed were: 3 EKGs 1 ECG, a treadmill stress test, blood work, and 24-hour monitoring. ALL TESTS showed nothing wrong. However, the nurses seemed concerned that my heart rate would beat irregularly, first rapidly then slowly, dropping as low as 40 one time. They released me telling me I was fine and to fol...

Posted by MelodyMarch on 2014-04-15 22:33. 3 comments. 179 reads
From my EP's PA, who is a wonderful and very helpful woman. This was out of the blue to me. She asked me how I was feeling on Saturday night. I told her, okay, tired, since we were in the last evening of the musical at my school and I was conducting the pit orchestra.

She told me that when I transmitted that night (I'm fully wireless since I'm the proud host of a St. Jude 2210) they flagged a very fast rhythm of over 200. She said it was fairly short duration, about 15 minutes, and the rhythm itself was not overtly dangerous, and was basically a run SVT that originated in the Sinus node.

She is ready to chalk up this episode to a bit of extra stress, but she says if I get more of these episodes that they are pro...

Posted by daynanestor1 on 2014-04-15 19:36. 4 comments. 87 reads
I am halfway through my PT for my shoulder/neck area. I was doing all the exercises (maybe too much--because I want to get better quickly) and my chest started hurting really bad so I called my doctor and of course, GO TO THE ER and get checked. Did that yesterday and everything is well with the Pacemaker/heart(not on any meds except Advil). I had a bad muscle spasm in my upper back which caused the chest pain and was given muscle relaxers and sent home. I followed up with my doctor and he said to try Celebrix and gave me some samples to try for the inflamation in the shoulder/back. I read the side effects and they are not too good--do I take this or not? I will discuss it with my PT and see what he says. Any other advice?

Posted by amhehl on 2014-04-15 16:17. 1 comments. 170 reads
Almost two years ago my husband's ICD/Pacemaker was reporting that the units battery was depleting and would need to be replaced within the year. A month or so after receiving this ICD report he was involved in an automobile accident which required him to be transported to the hospital. The bottom line was he had some back problems, neck problems, and whiplash to which he would need further treatment.

Five days after the accident, he transmitted his devise on his normal schedule. Within a couple of hours, he received calls from the pacemaker clinic and his heart doctor's office saying that the devise's battery was in end of life and he needed to schedule to have the unit replace right away. He had the unit replaced 9 day...

Posted by Kaitland on 2014-04-15 12:39. 10 comments. 146 reads
Well, tomorrow is the big day-I go to the hospital to get my PM! This site has been so helpful. I have asked for implanted vs. just under the skin and have made it clear that cycling/spinning is my main cardio activity and that I need a PM that will allow me to get my heart rate up. All those pointers came from reading postings on this site.
I plan to be up and walking around my neighborhood straight away and heading back to spin class ASAP!

Posted by Duke Heart Patient on 2014-04-15 12:17. 10 comments. 273 reads
Do any of you ever ask yourself "Why Me?" ... I have lived all my life with CHD. I was born September 3, 1974. I had open heart surgery when I was 2 months old. I have lived dealing with the constant concern of my heart and life. Back in 2012 I was refereeing basketball and my heart rate shot up to 240 for over 3 hours. I ended up back at Duke , 7 days , packermaker implanted. Now I take 3 pills twice a day. I just don't understand why I was picked to live this way ? What does God want me to do ? I am a Christian and saved. I wonder what my purpose in life is sometimes. I am a good husband and father of 2 kids. I just get depressed sometimes thinking about it. I am in good shape and walk and run alot. How do you cope ? Do you talk to anyon...

Posted by Aprilburns on 2014-04-15 10:56. 0 comments. 96 reads
Hi all,
It was discovered over the summer that I developed a junctional rhythm hidden in a dead zone that they could not adjust settings to fix. So it was recommended that I live with it, as ablading my AV node would risk heart failure. I have a dual chamber Revo due to sinus node ablation for serious SVT. The SVT still appears above 140-180, but below 140 my sinus note stops working and the pacer does all the work. I am 99% top lead and 2-4% bottom lead. So thats my background... now for the new problem.

A few months ago I woke up with my chest vibrating.. it was brief maybe 20 seconds but enough to wake me.. I thought the massage setting on my bed was accidentally turned on.. but it was coming from my heart. This h...

Posted by natlat on 2014-04-15 07:23. 6 comments. 163 reads
Hello, New here..39 year old very athletic female, never had problems in the past other than a near syncope episode in Jan, then actually fainting after a 7 mile run which landed me in the ER and the one this past week-end when I was taken by an ambulance and found to have a heart rate of 240 (scariest thing that ever has happened to me!) - I could not see, nor breathe, this was nearing the end of my 7 mile run. For the previous syncope episode I did a stress and holter and they found nothing so said it was low electrolytes. This past week-end, I had catheterization and an EP study and they said they really taxed my heart in the EP study and still could not find the cause of the VT. I am so frustrated! I now have to have a cardiac MRI,...

Posted by wingwang on 2014-04-15 04:35. 4 comments. 112 reads
Hi everyone, happy to have found this site. It's really relieving to read the messages. I am 38 and just had my pacemaker implantation last March 5th. Days before my procedure I have browsed the postings here and was well-informed on how it is to become a "wired" individual and it gives me enough courage to face it. My recovery is doing great and just had my 2nd interrogation last week. The wires are stable and still have 13.5 years...

Posted by Tick-tock on 2014-04-15 01:07. 0 comments. 28 reads
I had my staples removed today. I feel like I'm doing surprisingly better than I had inticipated. My last surgery I really struggled with. This lead removal, ablation, and pm revision, has been much more tolerable. I am 10 days post op today, and am ready to start taking on the world. Ji still have some discomforts, but wrapping myself in ice seems to do the trick. My groin area hurts the most, but this to shall pass. Hope everyone else is on the mend. I look forward to attempting some future 5ks.

Posted by capecod on 2014-04-14 22:26. 3 comments. 56 reads
hi all
met with my physiologist today. i will be having crt-d procedure within 1-2 weeks. trying to stay calm:)

Posted by foxy on 2014-04-14 19:19. 2 comments. 98 reads
Hello everyone, was just fitted with my new St. Judes Pacer, but my son has the flu does any one know if I should be worried?

Posted by jimb on 2014-04-14 15:58. 3 comments. 153 reads
I suffered sudden cardiac death feb 6th, Thank god there was a gentleman there that performed cpr on me untill the rescue squad got there. The rescue squad zapped me 4 times on the way to the hospital, the hospital put me into an induced coma for 5 days to lower my body temp, had internal brain bleed from the fall. I woke up feb 11th to be told I had to get a pacemaker or I would die, that was quite a shock because I did not have any symptoms prior to this. I am since doing much better, even back to work, but having some trouble dealing with the enormity of it all. Any suggestions would be appreciated.

Posted by Cupcake40 on 2014-04-14 11:18. 6 comments. 212 reads
Hi At 43 I learned that I had congenial third degree block and was told I needed a pacemaker. Before the pacemaker I was so much happier. I felt good, had more energy and was very active. It has only been 4 weeks since the surgery but I feel crappy and worse. My back hurts and I have nausea everyday. I have gained 5 pounds and tell the doctors that I feel terrible. They tell me everything looks fine. Right now I will take any advice. Thank You.

Posted by Luq on 2014-04-14 05:03. 7 comments. 164 reads
Hello there.
Am scheduled for a c-section tomorrow morning at week 35 preg after difficult weeks of the entire pregnancy. I had uncontrolled svt and increased pvcs throughout my pregnancy. I'm not on any medication right now..metroprolol was stopped at the beginning of the 3rd trimester. My doc has prescribed ceftriaxone 1mg half an hr prior to my surgery to decrease the risk of infection to the heart since I v a pacemaker. Anyone with similar experience? Am very worried about the whole procedure since my pulse rate cannot behave now. My resting heart rate ranges from 120 to 170 sometimes. Any positive though will be appreciated.

Posted by nonischemic on 2014-04-13 21:16. 2 comments. 117 reads
Hello Everyone,
Just turned 57 in February and had a Medtronic DTBA1D4 CRT-D with Pacing lead implanted March 19, 2014. I was diagnosed with nonischemic viral cardiomyopathy with a dilated left ventricle and a moderate to severe regurgitating mitral valve. My EF was only 15% when diagnosed (Nov 2013) and increased to 20-25% pre-implant using meds.
They also discovered I had bundle branch block LV and RV out of synchronization.

After seeing four Cardio Doctors they settled on a CRT-D. I’m now 3 weeks post implant. No pain, no complaints. Just a wait and see if the 3rd lead helps increase my EF.
I'm back to my morning treadmill “fast pace walk” of 3.8 - 4.2 MPH for 35 minutes and just break a sweat with no S...

Posted by xhiker on 2014-04-13 21:05. 2 comments. 114 reads
I had a Medtronic ADDR01 put in last November. It is doing fine but I have had shoulder and neck pain ever since the surgery. Is this common? I also have two small bumps that show on the top side of the device. What are they. thanks.

Posted by judy on 2014-04-13 20:58. 5 comments. 234 reads
Thursday I went 45 minutes away to see a new cardio. She (I liked the fact it was a woman) was also a DO. These are medical folks who tend to treat the whole person, not just the diseased part. So I was very excited and hopeful. Well, this woman comes in, does not sit down (present cardio always sits) gives me ten minutes of her time (did I mention this was my FIRST visit?) and asks me hardly any questions. I was still trying to tell her more as she walked out of the room. She also decided I needed a stress test (because I never had one) and an echocardiogram. There are not reasons for this. I think she just wanted to justify my visit, perhaps pacify me by ordering tests and get home. I was so sad when i left I started crying and took a wr...

Posted by Gina2 on 2014-04-13 19:42. 2 comments. 103 reads
For medical reasons my pacemaker was removed and the lead left in my chest wall. This was in 2009 and have had no need for replacement.

My question is - Has anyone had an MRI done with the PM/and or leads in? Any problems with procedure?

I am needing a neck MRI. Other xrays do not visualize effectively.

Thanks for your thoughts.

Posted by kathy11 on 2014-04-13 19:23. 7 comments. 110 reads
I got a pacemaker due to heart block in Nov 2013. Heart test are all normal. I had pain in heart area when lying or bending(post surgery)... discomfort kind of pushes up to throat ..also some pain on deep inspiration. Did lead revisions 3 wks ago.
Apparently going thru all same symptoms again. The revisions did not help symptoms, but I am hopeful with time will improve.
Anyone ever experience anything like this? I am a small person.

Posted by Catteacher on 2014-04-13 17:09. 3 comments. 116 reads
I have a question, it maybe just my imagination. but I'm feeling a 'lump' to the left of my PM. Could it be fluid? I'm being treated for 'lymphademia' right now. Doing compression on my legs, forcing lymph to b forced up through my system. anyway, this spot, about the size of an egg is just something I'm aware of through feeling it internally. it's not visible. Thank-u all.

Posted by Glyn on 2014-04-13 14:25. 2 comments. 99 reads
Hi. Just had a wisdom tooth out, give me PCI procedures - 5 stents total and a Medtronic CRT-D anyday! Due for 6 month check soon, all going well. At 62 and still working that's OK with me!

Looking back it is surprising how quickly one adapts to having a PM as a friend. At 6 months According to the literature my heart will have positively remodelled about as much as it will, though so far my recovery from a serious anterior MI 7 years ago still continues. I was told I would not be able to fell walk again and hills would always be a problem. Now fells ok though have to get breath on steep hills, no problem walking 15 miles and I can run a decent distance again.

For the Uk members if there is anyone interested in f...

Posted by shannon on 2014-04-13 13:34. 3 comments. 113 reads
my question is if anyone has any experience with this! my husband is now 43 and had 3 degree heartblock and a pm put in in2008.. now developed pm induced cardiomyopathy with ef at 20 percent...has had a biventricular pacemaker with a defibulator put in... the ep doc has said sees this in a handful of patients.. we went to see a cardiologist that's for heartfailure and is doing a echo in a month... anyone had there ef return to normal ?

Posted by leopoet on 2014-04-13 13:02. 4 comments. 103 reads
Is having a pace maker making it hard for me to gain weight I also take fluid pills as well could that be a reason too. Ijs I'm tired of looking like string bean lol

Posted by jfasoneholder on 2014-04-13 11:49. 4 comments. 166 reads
I had my PM installed in January. Had bradycardia, HR in low 30's and shortness of breath. Am 61 year old female, no other meds, incredibly active and fit. Had a medtronic RR pacemaker put in- have had a couple adjustments. Current HR range is 55-155 which works well if I'm on a treadmill, swimming, doing Pilates, etc. If I spin, it is horrible. I bang on it repeatedly to get it up and I can't get it above 105ish ( My daily living setting) If I get it up momentarily, in seconds it falls back down. I'm going back to my tech but would appreciate any advice on what setting needs to be adjusted so I can spin and not be dying or pounding the whole time?

Posted by gshegedus on 2014-04-13 09:52. 8 comments. 268 reads
I've had my ICD for a year due to ventricular tacchycardia. The night I was brought into the ER, the doc told my wife no caffeine or alcohol for's toxic.

Haven't had either but it would be nice to have a glass of wine on a holiday or birthday...I'm not talking every night or every week, but on a rare occasion.

Over the last year, the docs have said it would be OK to have a glass on a rare occasion but I am petrified, thinking my heart and ICD will go berserk.

Not asking for a medical opinion, just personal experience and I realize everyone's physiology is different.

I was at a party where the only thing I could drink was water or orange soda. After a liter and a half, I f...

Posted by golden_snitch on 2014-04-13 03:57. 2 comments. 83 reads

Medtronic has a website where all their device features are explained, just thought this might be interesting for some of you:

If you go back to:
you can also browse by type or model.


Posted by Unexpected Changes on 2014-04-13 02:43. 4 comments. 173 reads
Last night not long after I went to sleep I woke up with sort of numb arms, I went back to sleep and didn't have a repeat of that feeling.

Today when I was driving my car, I had been driving for over half an hour when I suddenly felt like I was going to pass out. My vision was all wavey in front of me. I was on a four lane highway but luckily was able to get to the kerb and turn into a side street,

My heart was thumping wildly and I still felt like I might faint, even though I was sitting in the car.

I had my dual lead pacemaker implanted Jan 2013 and all seems to be going well.

I don't know if my heart was thumping because of the shock of nearly passing out in traffic or whether the thumping ma...

Posted by Simmonsles on 2014-04-13 02:23. 1 comments. 41 reads
Hi all, new to the forum, had a CRTD fitted in early April. I have cardiomyopathy and AF so desperately needed something to improve my quality of life. Over the past 18 months I have been retaining water to the point I had gained over 1 stone 7 pound in weight and my ankles looked like elephant legs! Well, four days after fitting I have now lost 7 pounds, I can see my ankles and I am starting to feel like a human being again. The pain in the shoulder is also starting to abate now but it's going to take some time to get used to having this alien machine under my skin.
To anyone out there who is preparing to have a device fitted I can only say that my experience was far less traumatic than I imagined so be confident and good luck.

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