St. Jude Medical Pacemakers & ICDs

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Messages From Last 7 Days

Posted by BABlocker on 2015-04-28 01:15. 0 comments. 14 reads
i have had a biventricular pacemaker for the past 10 years. For many years, pacemaker interrogation showed AS at 99%/VP 100% (had AVN abation in 2005) During the last 3 pacer checks, my atrial pacing has increased from sensing my intrinsic beat 99% of the time to 80% during today's pacer check. I was a fib free after a successful ablation in 2008, until 3 months ago, when I began paroxysmal a fib in short bursts, as well as occasional atrial tachycardia. My question...what would cause the increase in atrial pacing (not due to programming). My cardio says I could be developing bradycardia, or SA node disease...I am 58, BTW. Comments? I take Ranexa, which suppresses PACs, and Verapamil for BP control and arrhythmia control, but have been on...

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Posted by PovisGirl on 2015-04-27 18:06. 3 comments. 90 reads
Hello. My boyfriend had a pacemaker put in 1.5 years ago. I met him roughly a month after he had it, so I was not able to be there during the process. He is only 51 and he told me it takes time to adjust (understandably)...My concern is that he doesn't seem to want to live life. He does work and he will occasionally hit golf balls at a driving range, for which I am grateful. He often expresses feeling sad that he can't do the things he use to do, but from what I read, and what he has said, he has no restrictions. I am hoping to hear from those of you who may be having a similar experience. I try to be patient and understanding as I don't have any idea what it would be like and I love him. Thank you in advance.

Posted by Claret on 2015-04-27 14:24. 12 comments. 177 reads
The pacemaker information that I have been told to always carry with me is a couple of sheets of paper in a cheap plastic wallet that doesn't fit into a credit card slot in a standard wallet.

Even driving licenses are now credit card sized and carry just as much information as my pacemaker information.

It probably just hasn't been thought through by people who wear pacemakers, so nobody is blame, but we can provide feedback to the manufacturers so that they can improve.

Posted by Claret on 2015-04-27 14:18. 0 comments. 22 reads

I am from England but hate rugby, however I have found that a "Gilbert Ladies Rugby Vest" provides perfectly placed padding (I am male). You should find them if you do an internet search. It is great for football/soccer. "Decathlon" do a man's rugby vest with front padding that just covers the implant.

I have also found some really light-weight body armour that I use for mountain biking - search on "ten ounce racing". I can actually wear the armour and vest together quite comfortably for challenging/dangerous mountain biking.

Posted by ChrisD on 2015-04-27 13:57. 2 comments. 33 reads
To anyone newbies out there worrying, depressed, and wondering if things will ever "be normal" again, I would just like to say that I just missed my April 25th anniversary....that is to say...I don't think about my PM every waking minute and that is because things are back to normal. Just providing a little boost to someone who might need one.

Posted by Tabby on 2015-04-27 09:40. 3 comments. 80 reads
Can someone with a pacemaker wear an apple watch?

Posted by Newfie1980 on 2015-04-27 07:57. 4 comments. 93 reads
Just a quick question for you all when you all had your pacemaker put in did you all find not being able to use your left arm at all that yhe shoulder would crack?

Posted by andyfowler on 2015-04-27 07:35. 3 comments. 48 reads
Hi all I was just wondering if anyone knew when the next ICD support meeting is at Wythenshawe. I haven't been to one since iv been running on batteries and was hoping to catch one soon. Iv looked on the web page and cant find it.

Thanks Andy.

Posted by Theknotguy on 2015-04-26 20:32. 3 comments. 189 reads
I sit next to John in church. John is a 90 year old WWII veteran who has a pacemaker. I tease him that we synchronize our pacemakers like they used to synchronize watches in WWII. We have the same EP, get to tease one another about pacemaker events, compare notes on our EP, and commiserate about pacemakers and life in general.

About four weeks ago, John's battery in his pacemaker was dropping voltage. Not out of line as the pacemaker was about nine years old. John was using his remote call in device to monitor the voltage and was getting concerned because the voltage was heading for two volts.

About three weeks ago John started to have dizzy spells because the pacemaker voltage had gone down to just over two ...

Posted by 0300hours on 2015-04-26 18:27. 5 comments. 116 reads
I had a pacemaker implanted 2 1/2 weeks ago and am going back to a desk job tomorrow. I feel better than I have in ages.

I feel ready and am tired of being home but I have been taking a nap every day and still sleeping well at night. Is it typical to have an increased need for sleep? Has this been a problem for others?

Any comments would be appreciated.

Posted by jjiggers on 2015-04-26 18:24. 2 comments. 86 reads
I had a PC installed 3 weeks ago for low heart rate. I feel my incision has healed nicely, but I am still having the same symptoms...the feeling that I am going to pass out... I was told when I got my staples out last week, that I will see the tech to check my unit, in two weeks. My hear rate has slowed to below 50 a couple of times and I feel exhausted at times.

Does this sound normal? Should I just chill and wait for my check up? Will it get better?

Thanks for your input.

Posted by Peppo on 2015-04-26 17:53. 1 comments. 46 reads
MRI of lumber spine with 15year old dual lead pacemaker completed without any problems of any kind arising.
Cardiologists London Hospital managed procedure heart ECG monitored during scan,pacemaker re set to pre scan normal settings again without any problems.
CT did not provide detail reqd, ( Rock and the Hardplace)
Thanks members comments re my previous posting.

Posted by TartanTiger on 2015-04-26 14:57. 5 comments. 160 reads
Yesterday was hubby's birthday, the sun was shining and it should have been a happy day.... and it was till the postman came!!!! I open it to find a copy of a letter sent from the hospital to my GP, calmly announcing I don't have sleep apnoea (lovely Consultant told me this at appointment in sleep clinic) but have heart issues - a fast sinus rate and ventricular standstill and he is arranging for me to be fitted with a pacemaker "in the near future"!!!!
Good Grief!!! talk about a mean way of telling U!!!!
Years of my old GP saying "oh everyone gets little fluttery feelings in their chest now and then". New GP has it diagnosed in under 6 weeks!
Sorry but I felt this was one heck of a way to find out and am now wondering what...

Posted by csvh on 2015-04-26 14:36. 1 comments. 59 reads
I was wondering if any women out there have a combined defibrilator and pacemaker and if you ever had a biopsy done near the implant.
I recently had a 3d mammorgram done in which they see architectural distortion but no mass. The ultrsound didn't show anything. Since i had radiation treatments in the eighties, they consider me to be high risk and want to do a biopsy on my left breast very close to where my pacemaker/defibrilator is.
I haven't scheduled it yet because they are waiting for insurance approval. I practically had to beg them to consult with my cardiologist. They said they would.
Anyway, if anyone has had a similar experience and went through with the biopsy I would like to know how it went.
Thank you!

Posted by Betty on 2015-04-26 13:25. 0 comments. 31 reads
It has been a long time since I've been on, had my pacemaker for two years in June seems like all is ok check-ups are fine from what they say and how I feel ,just wanted to ask if anyone has throbbing in your neck area? I do also take a beta blockers to slow my beats and of course the pm to keep it at 60 bpm When this happens I'm not pushing myself or working hard...

Posted by islandgirl on 2015-04-26 09:38. 3 comments. 101 reads
I have a Advisa DR MI SureScan Medtronic PM implanted about 10 weeks ago sub pectoral for bradycardia and sick sinus syndrome. My atriium lead is working 98.7% of the time and the ventricle around 15%. He increased the voltage for the atrium lead when I was at my appt.
My pm made a two-tone single beep this morning while I was still in bed reading. This is the 3rd time since implantation.
Anybody know anything about this? I will send CareLink today with an email to my dr's office. My appt. a few weeks ago showed no arrhythmias lasting longer than 3 min. I go back to the ep in about a month.

Posted by stevet on 2015-04-26 09:03. 2 comments. 80 reads
I have had a symptomless form of Afib for 6 years and my heart heat will take a 2-3 second break a few hundred times a day. Recently I passed out so the cardiologist recommended a PM. When I went for a second opinion, I was told I was a good candidate to go into a trial for the new St Jude leadless PM. While only in the trial stage in the US, I understand this has been approved in several European countries. Have others looked into the leaderless PM verse the traditional? Which did you choose and why?
I just found this site yesterday. Looks like a great site.

Posted by trishas on 2015-04-26 08:53. 1 comments. 146 reads
I came across this blog while searching for information about
Betapace. My step children's mother who was just 68 years old died suddenly as a result of this drug. She never smoked, never drank, went to the gym weekly, ate all vegetarian and healthy foods. She had a bout of AFIB once a year that they got back into rhythm using meds or shock. For some reason this year the doctors at the hospital decided to put her on Betapace. She stayed in hospital for several days while they monitored the affects of the drug. They said it was ok and released her. She did not have a pacemaker just once a year AFIB. She was home for 2 days when she collapsed and went into cardiac arrest. Emergency people came intubated her and she was put on life supp...

Posted by dave58 on 2015-04-26 07:53. 0 comments. 37 reads
Hello I have had my pacemaker fitted nearly a year now .
My pacemaker is of the type vdd. My recovery has been slower than expected I thought I would have fully returned to normal life. I AM THANKFUL FOR HAVING THE PACEMAKER FITTED AS IT SAVED MY LIFE AND IT IS KEEPING ME ALIVE. But I cannot walk briskly i walk at a much slower pace than I was used to before. I have periods of feeling very tired throughout the day and walking up steep hills
are not a good thing for me. I have had futher tests from hospital and they cannot find any problem with the pacemaker.
Or any other heart issue.

Posted by Sharynday on 2015-04-26 05:01. 1 comments. 121 reads
I would dearly love to use an i pad or i phone but they do make me feel unwell. I thought maybe it was my imagination, but it has happened when my son has left his i pad on the kitchen bench and I was unaware it was there. I became breathless and felt awful.

Posted by Charlotteis on 2015-04-25 23:15. 3 comments. 124 reads
Hi there, I am wondering if anyone has any input/experience with a decision that I have to make:

I received my PM in Dec when my ablation for SVT caused a heart block. For awhile I was going in to see the EP every few weeks to have him tweak the PM as my heart still felt funny. It got to the point where he said I was doing so well that he believed I probably wouldn't even need the PM in a year. The last time I went in as I was feeling funny again - and yes, funny doesn't describe anything, but it is always different, and basically it feels like when they lay the magnet on the PM, but all the time, and there's some jumping around of HR and a I feel a little gaspy, the EP said that it looks like I have arrhythmia and that my op...

Posted by AFJONES on 2015-04-25 21:56. 0 comments. 32 reads
Received 3rd pacemaker (2006/2013/2015) to add another lead. Felt good for couple of days and then "toothache" like pain in area of pacemaker and in my back. No redness or infection. Continuous pain. CDU pacemaker check in 3 days. What could be the problem.

Posted by Juliajambutty on 2015-04-25 12:01. 7 comments. 206 reads
Hello ,
I am a 45 yr old woman who had a monitor on due to extra beats , turns out - the extra beats are not the problem heart keeps stopping for 4/5 seconds and re starting . I was told on Thursday I need a pacemaker .. I don't know what type or why my heart is stopping ? The Dr didn't say if I had heart disease or if it is congenital , just I need a pacemaker .
I suppose I just would like to know if anyone else has had this experience .. I realise I am lucky to have discovered this problem instead of just not waking up !! However I do feel conscious of every heart beat now and feel relieved to wake up in the morning ! Anyone have any info ?

Posted by SUPERSALE on 2015-04-25 09:00. 2 comments. 119 reads
sometime my pacemaker is not on or pacing what it should anybody has that before??

Posted by Sanune on 2015-04-25 08:39. 5 comments. 164 reads
Hello everyone,

I'm new and searching for some feedback from those who are willing to share their experiences about what's really happened to them or what to expect in the future.

Two years ago my 48- monitor was 80,000 and as of 4/24/15 I find out my 2 days found 68,000 (pvc). I'm 42 F and I feel left in the dark because, I've had the echo stress test with injections and echo cardio and more blood work ups.

Nobody wants to answer my questions until they get this test back or that test back. It's driving me crazy! I feel them all the time. I can't even sleep on my left side due to the pounding and does anyone have sharp "electrical pains" that spread like lighting and take your breath away? and then its ...

Posted by lisa123 on 2015-04-25 01:27. 2 comments. 136 reads
I'm waiting on a battery and lead change and have had a very stressful week as was supposed to be getting it done next week but they've decided to wait another two months until the battery goes down further. Yes, I probably should want to get it over with but I also wanted to run out the door and not come back. My underlying ventricular rhythm was 49 the other day when they checked which is good for me because apparently sometimes I'm pacemaker dependent. I wasn't sane enough I think to ask enough questions of the cardiologist who came in while I was getting the pre-admission stuff done but looking back he horrified me by saying if he couldn't get a new lead in one side they would do it on the other. I'm a woman and already feel like the b...

Posted by daisy0388 on 2015-04-24 23:48. 3 comments. 109 reads
It has been awhile since I have posted and quite a bit has happened. Long story short got diagnosed with IST about 3-4 yrs ago, I have had 8 ablation for the IST, junctional tachycardia and svt the came back after ablations. I have had also 2 pocket revisions due to pm's moving. I started out with just single lead pm, then biventricular and now since I have diaphragm still from the right ventricle lead my dr at mayo clinic (which is amazing) added a 3rd lead in the left ventricle so after its stable they hope to turn off the right lead which leads me to the CRT-P that I have now. Now for my questions...Even though I'm pacer dependent, as I do not have anything left of my sinus or av node at this time, my heart rate stays right about 70 whi...

Posted by TJ319 on 2015-04-24 19:52. 5 comments. 110 reads
Hi I've had my PM since November 2013. The primary reasons were Bradycardia and AV block. I'm paced about 90% of the time in both chambers. I've had Atrial Tachycardia frequently during the past few months and now am scheduled for an ablation next week. The doctor put me on Cardizem for a month but, as he predicted, I don't want to live on it. It does not completely control the Tachycardia and makes me very sluggish. Does anyone have experience with the Ablation procedure?


Posted by ww4321 on 2015-04-24 19:12. 4 comments. 203 reads
went for a checkup and was told I had had an incident on 2/25/2015.

What does that mean?

Posted by golden_snitch on 2015-04-24 14:44. 9 comments. 182 reads
Something interesting for my "CLS buddies":

Spoke to a Biotronik technician today, because I keep getting rate drops while exercising. They either happen in the beginning, or after 20-25 minutes of running. When they happen in the end, the rate will not go up again, no matter what I do. It drops from 160 to around 120, and there simply is no way to increase the rate again.

So, now the tech explained to me that the CLS sensor has a kind of safety feature: If the rate stays at the upper sensor rate limit for some time, the sensor "thinks" that this just cannot be right, and therefore reduces the heart rate. This is based on the presumption that pacemakers are for the elderly people, who are not that active, and who do ...

Posted by Tabby on 2015-04-24 11:45. 3 comments. 125 reads
I got my pacemaker 2 weeks ago and was wondering if I will eventually be able to lift weights again

Posted by momhead on 2015-04-24 09:18. 2 comments. 86 reads
I am 9 months out from having my pacemaker implanted and have had no big problems so far....but the last few months I have had a lot of neck/shoulder/ear/jaw pain on the side of the pacemaker. Am just wondering if anyone else has experienced this??

Posted by freedom1 on 2015-04-24 09:07. 1 comments. 117 reads
Does anyone know why I went from 35% to 90% in one year for the bottom part of my PM?

Posted by Kurlybean on 2015-04-23 21:04. 3 comments. 180 reads
Hi, all! Just happened upon this forum and joined. I had no idea it existed. Received my first pacer at 17. Now, at 42, I am ready for #5 and new leads. My existing leads are roughly 20 years old and have some noise. Very nervous every about the lead extraction. Anyone been there, done that?

Posted by irish_jessi on 2015-04-23 14:28. 4 comments. 161 reads

1. a person whose physiological functioning is aided by or dependent upon a mechanical or electronic device.



We are so much cooler than regular people, lol

Posted by irish_jessi on 2015-04-23 09:50. 11 comments. 273 reads
Only a few times have a gotten the really big shocks from my ICD, but I get smaller corrective shocks a lot. They are very uncomfortable. Feels like somebody is hitting me in the ribs from the inside and I can't breath.

My situation is this.....

The smaller shocks are happening everyday on my way to work, at the same point in my drive. It's a small two-lane road. There are no underground scales or nearby power stations. I drive the same road home and it doesn't happen on my way home. But on my way to work, as soon as I hit that dip in the road in the Eastbound lane, my ICD starts shocking me and won't stop. It takes everything I have to get the the nearest point that I can pull over. I pull over, turn off my truck, an...

Posted by ma_ku on 2015-04-23 09:07. 4 comments. 198 reads

I have had a pacemaker for a couple of years now for AV block type 2. Rate response is off and I am using the pacemaker about 8% of the time apparently.

Last week, I had an episode of syncope that resulted in some significant facial injuries. I cut and broke my nose (it now points due East). I was on holiday in Japan at the time and was unable to get my pacemaker checked out there. I did have an interrogation done as soon as I returned to the UK. The pacemaker checked out OK and had not recorded any significant incidents.

I have just received a call from the pacemaker clinic and they have offered to turn on the "rate drop" feature of my pacemaker. I understand that it means that the pacemaker will incre...

Posted by Perry on 2015-04-23 06:38. 3 comments. 110 reads
I'm a 28 year old male who has a trade as a boilermaker. I haven't been welding since I've had my pm but am wondering if anyone knows if there is any real problem if I do? I'd love to be able to do my trade again. Thanks

Posted by Jardiniere on 2015-04-22 12:19. 7 comments. 261 reads
Hi all:

I've had an uneventful several months since my pacemaker was installed for Bradycardia. We winter in Florida and I play a lot of golf. I have noticed since the temperatures have risen in April as has the humidity, that I feel somewhat breathless and just a little woozy. Has anyone has these symptoms? It also feels as though the pacemaker is actually starting up. Mine is set to not allow the rate to fall below 60 but I was told it could go as high as I wanted during exercise, etc.

Posted by shagood35549 on 2015-04-22 10:55. 6 comments. 161 reads
Has anybody had a maze procedure?

Posted by NiceNiecey on 2015-04-22 05:19. 2 comments. 312 reads
I am a very fortunate woman. My husband was seated on a plane right next to the Medtronics Chief Cardiologist over North America and Europe just after I got my device. He was able to ask the guy lots of questions and got great answers and advice.

On Sunday, we were on a flight together and this time I was seated next to a man that's a military nurse in the reserves and also used to be a Medtronics EP rep. (He's now working for a laser company.)

He gave me a really good explanation of how/why 2nd degree Mobitz Type 2 can quickly become Complete Heart Block. I was naively asking whether it was a chicken or an egg situation. But he explained that I was 'predestined' to develop Complete Heart Block. However, when on...

Posted by gaman on 2015-04-21 19:50. 5 comments. 266 reads
Is it recommended to take a dose of antibiotics an hour or so before dental cleaning or other dental procedures if you have a single or dual lead pacemaker? I've heard some Dr's recommend it to protect against possible lead or pocket infection but not sure it's an issue.

Posted by Sharynday on 2015-04-21 19:27. 5 comments. 203 reads
Does anyone experience problems with Smartphone effecting their pacemaker.

I experience discomfort/interference when too close to a smart phone (particularly androids)

Posted by SUPERSALE on 2015-04-21 14:03. 6 comments. 219 reads
don't ride the in mud , dirt , gravel

Posted by Sheepwash on 2015-04-21 11:08. 10 comments. 333 reads
Hi I haven't been on this site for some time but would like to know if any ladies have any information on the following.

Normally I have Gel nails at the Nail Bar but was thinking of changing to Shellac does anybody know if this is OK if you have a pacemaker.

Many thanks

Posted by gulliver80 on 2015-04-21 10:31. 4 comments. 155 reads
Hopefully everyone is doing well, it's been some time since I ducked my head in and it's great to see some of the familiar people who are the stalwarts of this wonderful site - not to mention all the newbies who have joined. It's literally getting to the stage where I totally forget I have the ICD (obstructive cardiomyopathy - near death experience got me inducted into this wonderful club!) the first couple of years were tough with the device firing off (character building!) getting the correct settings, crawling before i could walk (metaphorically speaking!)but thankfully everything has settled down. I am back to full training, cycling, running - so for those who may feel worried about the future and what it may hold remember this, we hav...

Posted by MaciesMomma on 2015-04-21 04:19. 3 comments. 237 reads
Has anyone heard of this new pacemaker its the size of a pill and its wireless. It goes into the heart..sounds amazing! Anyone know anything about this??

Posted by terrymac12345 on 2015-04-21 01:18. 1 comments. 115 reads
Three months and pacemaker feels it is too confined like a a two pound cantaloupe in a one pound opening. Soreness is almost always there. Any one else have this happen?

Posted by Wolf on 2015-04-21 00:02. 4 comments. 116 reads
First goes.
I just had my 2nd icd implanted 3/2/15. I'm 100% VP and never had an issue with slow heart rate before. Twice now in the last 2 weeks my bpm dropped into the 35-40 range for several minutes. Low range on the device is set to 50 so first time went to ER, second time went directly to EP office. Both times they increased the output- 1st time to 3V second to 5V. Leads tested good and EP said no oversensing or other issues with device. Does this sound familiar to anyone?

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