St. Jude Medical Pacemakers & ICDs

Read Messages

Messages From Last 7 Days

Posted by ozzysue on 2015-11-27 22:12. 0 comments. 9 reads
Has anyone else had successful surgery only to be tested months later and started to have problems. 10 months of great health post surgery, went for a check to see if all was well and never been the same since, worse now than before surgery :(
I'm asking around to try and find others who have had the same problems and if so ....does anyone know why? The doctors wont admit that anything was actually done during the check ..... but it is quite obvious that something is not right.

Posted by Madamski on 2015-11-27 17:36. 1 comments. 23 reads
Hey. I just got my first PM 2 weeks ago for SSS and I´ve just started to realize that I´ll have it for the rest of my life. I´m still having troubles with that. Im 30 years old and I really didn´t see this coming.
One of the reasons is: Doctors told me that with a PM I could do almost anything but martial arts. I´ve been practising Kung Fu zwice a week for 2 years now and I really don´t want to stop that. I´ve had problems for with my joints 13 years so there´s a lot of things that don´t work for me (basically everything with running) and Kung Fu has become really important for me. It´s just the perfect combination of Workout, moves, selfdefence and dealing with stress. Does anyone of you have experience or any suggestions ...

Posted by health on 2015-11-26 18:02. 2 comments. 108 reads
Heart rate
39 minimum, 59 average, 106 maximum , 4 beats in tachycardia(>=100 bpm) <1% total , 53160 beats in bradycardia(<=60 bpm) 63% total , 2.3 second Max R-R.

Ventriculars (V,F,E,I}
439 isolated, 4 couplets, 0 bigeminal cycles, 2 runs totalling 8 beats, 5 beats longest run 102 bpm 06:14:33 15 September , 5 beats fastest run 102 bpm 06:14:33 15 september.

Supraventriculars (S,J,A)
63 isolated, 14 couplets, 0 bigeminal cycles, 2 runs totalling 15 beats , 11 beats longest run 60 bpm 14:41:29 14 sep , 4 beats fastest run 144 bpm 23:25:12 14 sep

24 hrs holter monitoring revealed a basic sinus rhythm with prolonged episide of sinus bradycardia, the max HR is 106 bpm & min ...

Posted by sunshine94 on 2015-11-26 10:00. 2 comments. 135 reads
August 2015 I got the pacemaker (bradycardia, sinus arrest, pause, nodal rhythm) due to damage to the sinus node because I had five ablation. After the operation was complicated and I got pnevmatorax. I got a pacemaker under the skin. After one month, my wound is infected. They found the bacteria Streptococus aureus. Treatment was carried out in the hospital with antibiotics into a vein for 4 weeks and remove the infected pacemaker. Then the new pacemaker inserted on the other side. Again, inserted under the skin. Two weeks ago, I had a kind of epileptic attack. Then I obrrnil pacemaker. The electrodes are changed, and the position of one electrode is stuck in the shoulder. Even the battery is no longer fixed. Surgeons have decided...

Posted by slickmv on 2015-11-26 03:10. 9 comments. 175 reads
Amongst the plethora of helpful advice I've gleaned from this online support group was that giving a nickname to one's implanted device would help one adapt.

Unfortunately, my personal creativity doesn't seem to extend to naming things. I hope I'm not as bad as George Foreman (five sons, all named George!), but the best I've been able to come up with for my BS CRT-D is "Tock," with "Buzz" on a distant second.

So I'm exposing my weakness in the prospect of getting some assistance: what names do you use, or have heard of, or can think of?

Help me Pacemaker Club, you're my only hope!

Posted by Carlee on 2015-11-26 02:33. 2 comments. 47 reads
Hi Everyone
I take care of my mother. She has a pacemaker with a defibrillator. It was this year, in March that it was implanted.. recently she has been getting more dizzy (she always has had dizziness because she had a stroke several years back) and her stomach hurts/sick to her stomach. I was thinking it was her medications but now I see there are others that have this problem and it's related to her pacemaker! It seems to be getting worse.. what could the dr. do/ give to alleviate these symptoms? This is very worrisome. Thanks for your advise and help!

Posted by ariashabb on 2015-11-26 02:05. 2 comments. 31 reads
If i lay on my left side I get sharp pains in my chest. I have had them so bad that it wakes me up in the middle of the night and its hard to breathe. Anyone have any idea what this could be?

Posted by Madamski on 2015-11-25 21:49. 2 comments. 66 reads
I got my first PM 2 weeks ago and I´ve recovered pretty well so far. 3 days ago (the day I started working again) I got a stinging pain in the middle of my chest and it has been getting worse. I think it´s right on the spot where the leads (or one of them) touch my heart. Does anyone else know this or has suggestions what it could be? and is it also just part of the healing process or should I go back to the hospital? Happy for any suggestions. and thanks a lot!

Posted by heckboy on 2015-11-25 18:52. 1 comments. 40 reads
Wasn't feeling great while climbing stairs or walking uphill, so I went in for an impromtu PM check. It turned out my HR wasn't getting much higher than 70 BPM with my low rate set at 60. My rate response had previously been off because I had normal sinus rhythm once upon a time. They tweaked my rate response and had me run around the building and up and down the stairs for five minutes and I noticed an instant improvement. Gonna test drive the new settings this weekend and report back to them in Tuesday for a follow up.

Posted by Bionic Beat on 2015-11-25 18:22. 5 comments. 142 reads
Seems I haven't posted since 2010!

My concern is that my doctor called to say he has had 'an alert' from Medtronic and they are going to remove the whole she-bang
in January.

He told me to not stress over this, okayyyy. Why do they not just call the week or two days before??

I have tiny veins and it took forever for them to get an IV to put the pacemaker in so I am dreading the very idea of surgery.

Has anyone else had their Medtronic InSync 3 removed?

Posted by Cabg Patch on 2015-11-25 16:33. 5 comments. 124 reads
Help! I find myself in a panic.

I got this brand spanking new CRT-D, three wire device. Now, I knew how the ole 2 lead ICD worked, and in fact after 8 + years marriage to it, I had operation down to a science. Now I find I'm confused, and have no clue how to proceed with this new device, and beginning to panic.

Do you know what to do with that extra lead when cooking a turkey with the CRT device?

Where do I stick the third lead?
Does this mean I can turn down the voltage to save battery life?
Will the extra lead result in extra crispy skin?

Tomorrow's turkey day, and I’d hate to ruin everyone’s dinner. – Enjoy your Holiday

Posted by ariashabb on 2015-11-25 15:50. 7 comments. 55 reads
I decided to just try again at the gun range. Went yesterday and it was a success!! It wasn't that busy and im a pretty good shot.... Lol

Posted by Grandadbren1 on 2015-11-25 09:53. 2 comments. 90 reads
Hello can anyone tell me when my st Jude pm has been interrogated and adjusted where is the information stored that has been downloaded is it possible for future technicians (if I had to go elsewhere say on holiday etc ) to view what has been happening from say 6months ago ?

Posted by sewblessed on 2015-11-25 02:37. 2 comments. 131 reads
Hello, I wish I could talk with someone rather than use this machine because I talk better than type. But its okay. I am glad that there are others who post mesages, it is comforting to know I am not alone with things that are so strange and new to me. I had my Medtronic pm installed in January. I thought things were getting better and I was feeling good until about a month ago. My pm or pocket hurts on the left side of it. Sometimes it feels like something is poking. I have a pain under my breast. A couple of nights ago my heart started beating erratically, really hard and fast. It only lasted about a minute. Since then feel unsettled. There isn't anything visible wrong so I don't think the doctor would find anything looking at it. Wo...

Posted by TiffG on 2015-11-25 02:16. 1 comments. 110 reads
Hi everyone! I just became a member about 5 minutes ago and I already have a question! My pacemaker was put in almost 4 months ago which means I am still get used to it. This evening after lifting plates for our dinner I started to feel a burning feeling in my chest. It is still there and gets worse when I move my arms. I could not lift my 5 year old son tonight. Is this normal? If so, I can tolerate the pain, but I just need to know. Thank you for time and reading this.

Posted by Vigjnani on 2015-11-24 22:08. 4 comments. 144 reads
During my recent pacemaker checkup, the technician observed that the impedence of the ventricular lead has increased from 1220 ohms (11-23-2014) to 1550 ohms (11-18-2015). The impedence was 730 ohms in 2013. The technician thinks that the increasing impedence means that lead may be going bad and wants to monitor it every 3 mos.

My question: 1) Is this something I need to be concerned about? 2) How common is this problem? 3) Is this a problem with the particular brand of pacemaker (Boston Scientific Insignia 1 Ultra 2 leads)?

I got the pacemaker in 2008. The remaining battey life is 2.5 years.


Posted by rolson on 2015-11-24 18:31. 3 comments. 140 reads
It's been a year now since I got my new friend on my shoulder. I never though I would feel as good as I do. I still have a few rhythm issues, but they are tiny and 90% controlled by meds. Some day I may have to have an ablation but for now I am enjoying life and the security that my heart is beating and my pacer is pacing and they have now become life long friends. I can not explain how much this club has ment to me. I have read postings all through many a long sleepless, counting every beat night. And you have all been an emotional life line as well as a wealth of information. I thank you do much. I do have one I don't know if there's an answer or not. My husband and I plan on becoming full time RVers by this time next year. Our ...

Posted by laupek9 on 2015-11-24 14:43. 10 comments. 197 reads
I am fitted with a Medtronic Dual Chamber pm with RR . The RR function gave me some issues; when sleeping if I shifted my body quite violently the RR kicked in and I could feel my heart beating quite heavily, when I was seated at the back of the car bumpy road conditions would trigger the RR and my heart was beating at around 90+ bpm causing me discomfort and anxiety. Yesterday visited the Medtronic clinician for a checkup and she removed the RR function. This morning I walked my usual 1.7 km walk. Reached home and took my hr it was 75bpm( after some 1 minute of rest). Can anyone advise if it is ok to remove the RR function and let my heart function on its own. I take micardis 40mg daily, flecainide 100 mg (b,d) and pradaxa 110mg (bd) . My...

Posted by Meredith76 on 2015-11-24 14:05. 4 comments. 158 reads
Hi there,

Just wondering whether anyone has been fitted with a Medtronic EnRhythm Pacemaker with Minvera software.

If so could people please share their experiences regarding it as I will be fitted with a Biventricular pacemaker with Minerva in 4 weeks time and what to know more from a "patients perspective".

Kind regards,


Posted by on 2015-11-24 13:45. 3 comments. 108 reads
I am going in tomorrow to have my battery changed for the third time. My initial placement was in 1998 when I was only 46. I really notice the difference this time, no energy, very tired, legs feel very heavy and stairs or hills are almost impossible, out of breat easily. I am hoping all of these symptoms go away after I get my new battery in. I do not have a cadiologists. Would anyone on the forum suggest that I see one on a regular basis. My mother suffered from angina and my father died from a heart attack at 83 years of age.

Posted by trudy on 2015-11-24 10:54. 0 comments. 51 reads
I'm scheuled for an epicardial ablation in January. I've had pacemakers for 25 years and a couple years ago had an ICD implanted. I was having episodes of ventricular tachycardia. It was a good decision because shortly after that I began having more episodes and syncopy with a shock. I'm on some pretty toxic meds and they want to see if they can get some of the scar tissue off my heart with this type of ablation. Has anyone else had this type of ablation?

Posted by BetsyQ on 2015-11-24 02:48. 2 comments. 100 reads
Just wanted to check in with all of you. I've been reading all of the messages that are posted but have been unable to log in until today for some strange reason.

You have NO idea how each of you have helped me over the past 4+ months since I got my pm in July. I was one of the lucky ones that had some complications during surgery that kept me in the hospital for several days. Recovery was frustratingly slow but steady. I can honestly say that days go by now without ever thinking about my device, unless I overuse that shoulder in some way, which causes the pm to rub on my clavicle as it continues to form the pocket.

Just about the time I was feeling better, I did something strange to my back. A whole new story wh...

Posted by Yone99 on 2015-11-24 02:44. 3 comments. 162 reads
It all started in one peaceful day , when i was happy and enjoying my life , i blocked out , and went to check a doctor , she said that i should implant my pacemaker as fast as i could , the second day i made my surgery it was my first time to go to hospital , i said it's okay nithing to worry about ,,, i was fat at that time , then after that time ,, i started to lose weight day after day my pacemaker appered under my skin bec i have lost a huge ammount of my weight ,, and the battry appered so the doc said i can't stay up with the apperance of the battry and they decided to get me into an emergancy surgery for the second time ,, then i went to the hospital and made my second surgery this time my doctor put inside my muscles ,, the i have...

Posted by webdragon on 2015-11-23 23:33. 14 comments. 248 reads
how long does it take to get over the fear of having a foreign object implanted into your body?

i'm growing tired of fighting the urge to cut it out.

Posted by MarkLeaG on 2015-11-23 22:48. 3 comments. 142 reads
My daughter had a dual chamber pacemaker inserted two years ago for complete heart block. She is pacer dependent and paces 100% of the time in her lower chamber. She now has developed a systolic murmur from mitral regurgitation. She does not have a lot of energy and gets very easily tired from physical exertion. When she is really active, she has left side numbness/tingling in her hands/arm and leg as well as dizziness and a feeling of breathlessness and like she's going to pass out. She also has been having a lot of high rate episodes and chest pain.

Has anyone developed mitral regurgitation from being paced? If so, what are the treatment options? We have an appointment with a new cardiologist in a few weeks, but I am feeling...

Posted by saraht1983 on 2015-11-23 19:14. 7 comments. 274 reads
There is not a lot of data on whether or not I have the right to have my pacer turned off by choice. So I am wondering if anyone has the answer to this. It basically boils down to law and ethics.

Almost two years ago, I had my pm implanted. I have experienced worse (yes worse) quality of life with my PM. I am 30, and I want more. I want this thing turned off.

It seems pretty logical to me to ask to have it turned off to see how well I can function without it. Seeing that I have more chest pain with it than before, my sleep patterns have been horrible, my energy levels at an all time low (I take b12 injections weekly) and I am just plain fed up with it.

On top of this, I am a single mother. I need...

Posted by techiej on 2015-11-23 16:32. 3 comments. 142 reads
Since having had surgery (hiatal hernia) earlier this year, I've been very tired, light-headed and had several episodes where I would feel weak and then break out into a cold sweat. These have lasted anywhere from 5 - 40 minutes. No tightness in chest, pain or other symptoms and haven't fainted or blacked out.

went to my pcp and after noticing that my heart rate went from high-50's during check-in to high forties a short while later did an ekg which showed my rate as running between 38 and 42. Did a referral to a cardiologist who put me on a holter for 48 hrs - my average was 47 with a low of 41.

Did the thyroid blood test and all was normal so had a referral to a Cardiac Electrophysiologist. Told me it was very l...

Posted by sharon46 on 2015-11-23 00:30. 7 comments. 117 reads
Hi there,
Just had my pacemaker put in about 4 days ago and was wondering if the pain I am having at the site is normal. I am pretty sore and not sleeping well because the pain wakes me up.
Didn't want to be a baby and take pain meds too often. Would like to hear from others about their experiences.
Thanks, Sharon46

Posted by rbowie on 2015-11-22 22:45. 9 comments. 212 reads

It's 22:45 in Scotland and tomorrow I join the club. Wish me luck.

Posted by looloo on 2015-11-22 20:22. 3 comments. 150 reads
Hi I had a dual chamber pacemaker fitted 4 years ago and it's been fine, but the last 2 days I have a pain and very sore to touch just to the right side of my breast. Can anyone shed any light on it for me please ?

Posted by dhusemann on 2015-11-22 13:14. 2 comments. 128 reads
today marks 11 days post op of implant of St Jude Fortify Assura ICD.

when I initially set up my short term paper work, I had set it up to return to work in 2 weeks.

Shoulder gets sore fairly quickly right now, (one I have arthritis in my left shoulder before the surgery but it never has hurt that bad. and since I can't lift my arm above my shoulder can't fully stretch.

never realized how much everything is connected, trip home from hospital went to point with my right arm, about fainted from the sudden intense pain in my shoulder. Oh well live and learn hoping doc will give me a note to allow another 2 weeks off of work, already talked to work and they said to take the time needed just need the note f...

Posted by bradycardiapacemaker on 2015-11-22 12:42. 3 comments. 124 reads
I am having pretty bad pain in the pacemaker site area after accidently getting it hit on the edge of a sliding closet door reaching on the floor to grab something.There is small bumps in the area and a small lump on the skin om top of the pacemaker.I called the clinic they said not to worry sonce there is no bruising.I never had pain like this in the area except fot after surgery.I am not worried the pacemaker isn't working because I know the pa cemaker isn't hurt .I know my ligament or skin must be torn since I feel buring pain.Who has this happened to and does it heal itself or dd you have complications.Who also has had to have the pacemaker taken out due to pain?

Posted by vincep on 2015-11-22 03:52. 2 comments. 126 reads
Been shopping and there are a lot of new ones out there. Microsoft Band 2, Fitbit Surge, Charge HR. You have to keep swiping, toggling to get HR. But I'm hoping the Mio Alpha 2 is going to have full time BPM display as default display. ALL the others now with their updates installed revert to a time display unless you are in a work out mode of some kind, which I assume depletes their batteries. Any thoughts or advice is appreciated.

Posted by TinkerSierra on 2015-11-22 01:56. 0 comments. 168 reads
First of all, thanks to everyone for all the positive posts and valuable sharing of your experiences. It has really helped during many days of uncertainty.
I've had cardiomyopathy for over 15 years and an Ejection Fraction of 38-40% for the past 3 years. In April of 2014 I began to experience low pulse rates (35-40 BPM). I was living in Panama at the time and later moved to Ecuador. The cardiologists there tried to correct it with medication and finally I got a pacemaker. That didn't work either. Apparently I had developed arrhyhmia that was overpowering the pacemaker. Went to Florida in April, 2015 and spent 7 days in ICU. Had an ablation to cauterize the source of the arrhythmia and replaced the pacemaker with an ICD. My Ejection F...

Posted by ariashabb on 2015-11-22 01:09. 8 comments. 160 reads
I want to learn to shoot a gun. I went to an indoor gun range but ended up having to walk back out as soon as i walked in. I felt a little like i was having the symptoms i had before my dual lead pacemaker was placed. Is there anything that may have caused this.

Posted by dmil7777 on 2015-11-21 12:51. 3 comments. 216 reads
I notice that I was easily getting winded with moderate physical activity, walking up a 10% hill at 6000 ft elevation, I felt hard heart beats, so I check my pulse, it was 65 BPM. It was very low for my activity, I would expect something in the 90 to 120 BPM range. I confirmed it later that day when roller skating, by increasing my speed to increase my heart rate, 65 BPM three test in a row of rest and speed. I am two weeks from a battery/generator change out. I was having increasing resistance in the upper chamber over two years. I think the Sinus Node lead may have failed leaving me in a Pacemaker alarm state of 65 BPM. This happened on a Friday night no Medtronic phone support, and I could not get thought the doctor after hour’s phone...

Posted by SlowBeats on 2015-11-21 10:12. 2 comments. 71 reads
As promised I wanted to let you all know how my 3 week follow-up visit with the cardiologist went. If you read my previous post you know I was having problems with my pacemaker taking off while riding in a car or running across a parking lot. The doctor turned off the accelerormeter, he doesn't feel I need it at my activity level. The doctor said I am pacing about 60% of the time but I think some of that was the accelerometer pacing when it wasn't needed. It will be interesting to see how much I am pacing at my next device check.

Posted by Leady1 on 2015-11-21 02:11. 4 comments. 202 reads
Hi, new member that just had a St. Jude CRT-D device implanted a week ago. This is my 5th device, over the years implanted, so I'm not new to the devices. I have had different brands, last one was a Medtronic ICD unit. I have total heart block and have suffered with V-tach episodes for a long time. That has been taken care of, now I stay in Afib for months at a time. I have had 2 strokes, due to Afib. My question is for anyone that would know why my heart rate was set at 60 in the hospital. I am used to about 85 - 100 heart rate, and feel now that I have !just bottomed out. So tired, no energy at all! Can or will they reset your settings up to a higher heart rate if you just ask them? A simple question that I am very serious abou...

Posted by lcw306 on 2015-11-20 17:54. 2 comments. 179 reads

I had a dual-lead pacemaker implanted this past August. I went to my check ups and everything is looking good! I had the pacemaker implanted for Heart block! I am only 25 years old a do not know a lot about pacemakers and was quite a shock to get one!

I have recently been experiencing a random, shooting/sharp pain that will last for a couple minutes at a time for maybe once or twice a day. I am not sure if this is normal or if there could be a reason why this happens. Also, would be nice to know if anyone else has experienced this! :)

Posted by jennk on 2015-11-20 01:28. 5 comments. 187 reads
Does anyone else have a headache after device is interrogated? If so, why does this happen?

Member Login


Who's Online?
We have 265 visitors online.

Members online:

You're Wired When...
You trust technology more than your heart.

Member Quotes
It becomes a part of your body just like any other part.

Bra Strap Comfort for Pacemaker Patients

Site content and design © 2000-2015 Pacemaker Club Inc.
All rights reserved.