Hi Everyone,

Nearly 5 years ago this website helped me find some answers when my 8 year old daughter passed away suddenly from CPVT. When we actually found the cause of her death 7 months later, we were told that an implantable defibrillator could have saved her life.
With this knowledge and the desire to help others, we created a foundation to help spread the word about CPVT and raise funds to support research. Check us out at SmileWithHannah.com
I wish for good health to all of you.
Glenn Wernke

 

 

Great site, Glenn. Sorry about Hannah. You are definitely helping to get the word out there to help others. Thanks for sharing.

Kim

 

That site is great! Great job being proactive! Keep up the good work! So sorry for your loss. Thank you! ~Jessi