St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Off Topic Forum



Posted by rhymeandreason@knology.net on 2014-06-18 21:51. 1 comments. 262 reads
 
Be all you can be
And then some more,
Because its only you
That you will adore.

Adore the good times
Along with the bad,
Cause we have help
To keep us from being sad.

So keep your chin up
And your good to go,
Make every moment count
To put on a really big show.
Written by: Jackie H. Caylor

Posted by rchard on 2014-06-17 07:22. 4 comments. 274 reads
 
I was diagnosed with LV cardiomyopathy in April, shortly before my 46th Birthday. I have an EF of 18% and have been building up the dose of medications I have been prescribed, gradually since then.

My resting heart rate prior to taking the meds was in excess of 100/bpm, and is now in the region of 80/bpm on a regular basis. My blood pressure is also within normal range again.

As an added complication I have had re-current DVT's in the past and as such have been taking anticoagulants daily for several years. Despite this it was noticed during scans and the angiogram that I have a 1cm blood clot in the apical of my heart.

My cardiologist is unable to ascertain whether or not I have had a heart attack in ...


Posted by rhymeandreason@knology.net on 2014-06-13 19:19. 0 comments. 185 reads
 
Anyone interested in reading any more of my poetry go to poetry poem.com and look for Jackie Caylor should be some interesting reading. Going for my Cardiac ablation July 11 wish me luck

Posted by donr on 2014-06-06 07:53. 11 comments. 428 reads
 
.....of an event that affected all of the "Western World."

What is becoming a lifetime ago, my family was standing around a very large granite carving in a Munich Park. It was a young German infantryman, laid out on a catafalque in great coat, boots & steel helmet of WW-I. Our younger son, Eric (about 12 or 13) asked me "Dad, what's this memorial about?" The best answer I could generate was "Eric - the losers also mourn their dead." For a 12 yr old, it was apparently correct, because he showed appropriate reverence for the fallen.

Today we collectively reflect on the terrible cost of 6 June 1944 on the beaches of Normandy. That was 70 yrs ago & there are very few of the participants still alive - from any of the...


Posted by DANRAINES on 2014-05-23 01:44. 2 comments. 219 reads
 
June is almost here and soon after near the end of August I will celebrate my 1 year... Am I being over sensitive by saying that my little friend was the best thing to happen to my health in the last 10 years I have been alive?

I truly want to thank you all. Those of you that put up with my ranting on how the VA is taking forever (actually VA is slower than my bradycardia ever was) and how I feel lost and scared.

IAN
DONR
JAY4
TraceyE
and many more of you!!!!

THANKS SO MUCH!

Posted by garydiamond on 2014-05-17 18:31. 4 comments. 672 reads
 
http://www.examiner.com/article/walter-williams-alive-man-wakes-up-body-bag-after-pacemaker-kicks-back-in

Walter Williams is alive today because he kicked his legs inside a body bag as morticians were getting ready to embalm him. That’s right, 78-year-old Williams was just minutes away from the embalming process with workers getting ready to unzip his body bag and put him on the table, according to the Huffington Post on Feb. 28. So what went wrong and how did this happen? How was Williams pronounced dead when he was still alive?

Family members said their good-byes to Walter “Snowball” Williams and watched as the coroner zipped him into a body bag and solemnly whisk his body away. Hours went by when the family g...


Posted by Annafooks on 2014-05-08 16:00. 2 comments. 292 reads
 
Hi guys,

I had a pacemaker fitted back in 2009 and now I'm studying at the Northern School of Contemporary Dance. I'm in the 2nd year of my degree and I'm making a piece of choreography on the 'heart'. I was just wondering if any of you would be willing to talk to me about your own personal experience for my research?

Thank you!

Posted by Glyn on 2014-05-08 13:43. 5 comments. 257 reads
 
Always been curious as to the benefits of driving on the left/right, reading a couple of messages today I realise that in terms of having a pacemaker the lefties have it ok if you are driving.

Best wishes to everyone in the club

Glyn

Posted by raiderralph on 2014-04-18 17:18. 2 comments. 249 reads
 
Wishing all my PM and CRT friends a very Happy Easter. I feel blessed and hope that you fell well and stay strong

Posted by gshegedus on 2014-04-13 09:52. 8 comments. 542 reads
 
I've had my ICD for a year due to ventricular tacchycardia. The night I was brought into the ER, the doc told my wife no caffeine or alcohol for me...ever....again....it's toxic.

Haven't had either but it would be nice to have a glass of wine on a holiday or birthday...I'm not talking every night or every week, but on a rare occasion.

Over the last year, the docs have said it would be OK to have a glass on a rare occasion but I am petrified, thinking my heart and ICD will go berserk.

Not asking for a medical opinion, just personal experience and I realize everyone's physiology is different.

I was at a party where the only thing I could drink was water or orange soda. After a liter and a half, I f...


Posted by DANRAINES on 2014-03-29 12:37. 0 comments. 222 reads
 
Someone develop an App for the Pacemaker Club. Complete with chat and message forum support please...

Posted by kennedyg on 2014-03-05 01:05. 5 comments. 516 reads
 
So I'm at a hookah bar and they have non nicotine and non tobacco products that's fine right??


Posted by Theknotguy on 2014-03-01 21:08. 1 comments. 345 reads
 
I've told people on this forum you have to be your own advocate. Or, if you can't, get someone to be your advocate.

I'm finishing with cardio rehab at a place I'll call Malleys. They've done a wonderful job and deserve all the credit. But in case someone takes this posting the wrong way, they'll remain nameless for the moment.

So I'm finishing with cardio rehab. Malleys says I have to have another stress test and blood work. Where to go? Malleys says they'll be happy to do it. But the last time I did work with them only God knows where my records went. No one at Malleys seems to know what happened. Not to mention the vampire, blood draw lady took 2 1/2 attempts to get blood. They're only supposed to try twic...


Posted by kennedyg on 2014-02-28 15:58. 4 comments. 472 reads
 
How many watts does to it take to effect a pace maker? Like how much bass can my pass maker stand??


Posted by olivia.walker87@yahoo.com on 2014-02-15 22:56. 6 comments. 454 reads
 
does anybody else feel since you got the pacemaker you feel to many people don't want anything to happen to you well that's me. when I shut my bedroom door and lock it all horror breaks loose everybody's like are you okay I mean like I am okay I just wanted to sit In my room but no you cant do this you cant do that I mean ahhhh! well if anybody feels like that please help

Posted by Kdalton on 2014-02-09 23:16. 3 comments. 350 reads
 
Just curious if anyone has a pm because of tachycardia, I had my pm implanted at age 15 because my heart would literally just stop beating (not skipping beats, just stop) and my resting heart rate was upwards to 140 bpm just wondering if anyone else had a similar experience :) thanks!!

Posted by RonR on 2014-02-04 13:31. 11 comments. 579 reads
 
I was checked yesterday at French hospital in San Luis Obispo and was told I needed a new battery. My Medtronics is pumping out for 4 leads and has lasted just three years. I think they gave me a used one to have run out so quickly.

I asked the cost for a new one and she told me $200.00. My 20% I paid on the spot. I guess it's another used one.

I am worried though. First implant took almost 6 hours. Doc said the leads kept coming loose. I taught the doc some new swear words he said.

I love that Doc. I think he saved my life, and will again. No more swear words I hope. God Bless you all.

Posted by Vmurph on 2014-02-03 23:07. 9 comments. 390 reads
 
Hey Guys, I thought this would be the perfect place to reach out and see what kind of awareness we would like to bring to the world about cardiac issues, pm, icd, etc.

I am a writer and my debut novel Heartless is coming out in March. My Heroine has a few heart conditions because I'm tried of reading about people with perfect lives and all their struggles are only surface deep. So I wrote a lot of my experiences into her story to make it real.

As part of my release, I want to raise awareness about what it is we live with. Things that challenge our lives. I think there are a lot of misconceptions out there that need to be corrected. For starters, only "old" people have pacemakers. Hah. I was 26 when I was paired up w...


Posted by Bevof NC on 2014-01-30 12:47. 5 comments. 296 reads
 
My husband was the love of my life..He was the one who died .Harley, the dog was allowed to go through the entire day with us. Sorry that I didn'make myselfclear...still addled! Ha Bevof nc

Posted by Bevof NC on 2014-01-30 12:05. 7 comments. 269 reads
 
The love of my life died last week...We had a beautiful funeral with wondefuBev of ncl family and friends. They allowed the Collie...Harley to be with me through the whole funeral and at the cemetery, Bev of Nc








Member Login
email:

password:



Who's Online?
We have 1171 visitors online.

Members online:
  Mervyn
  Theknotguy
  KlavPacemake
  chica1051
  wired retiree
  barwon

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
“Batteries not included” takes on a new meaning.

Member Quotes
We are ALIVE! How wonderful is modern medicine.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.