St. Jude Medical Pacemakers & ICDs

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Posted by funone on 2014-12-24 17:39. 3 comments. 193 reads
 
It would seem that the American Heart Association and the American Red Cross would be a very good resource of information
as well being a supporter for any one that has gone thru heart surgery as well getting a pacemaker implant. Let just say this there were no support here in Phoenix, either there was messages left for them with no call backs, or a person is given a different number to call, as still get voice mail, with no call backs.
Spent endless hours truly tying to get the support one needs after having such post traumatic operation - an still no call back.
Thanks for hearing me Vent - BTW: on a personal note don't donate to these charities, for the most of the money goes to the CEOs and not where it should go ...

Posted by Daisho on 2014-12-24 12:30. 2 comments. 167 reads
 
Enjoy this holiday and congrats to all of us who are still here and operating due to our little implanted friends and a quiet reflective thought for those who are not. We have much to be thankful for if we simply take the time to see that.

Wishing you all the best and keep pacing.

Pat

Posted by jojobonnie on 2014-12-15 13:56. 3 comments. 258 reads
 
HI All,

Does any body have days when they just feel totally exhauated? I'm on my second pm now since Jan 2010

Posted by Cabg Patch on 2014-12-12 11:49. 9 comments. 457 reads
 
This morning while walking the dogs, I found my mind wandering into that dark realm again, and pondering a lingering question.

Like many of you, I'm sure, my expiration date is long past according to the expert soothsayers (doctors). People with my issues at the advanced stage of heart failure rarely make it as long as I have.

As I've mentioned several times, I am the topic of discussion for my Cardiologist and his team. To quote, "We can't figure out how somebody can do so much with so little". They ponder what I'm doing right in hopes of helping others extend their life while maintaining quality.

I am convinced it's 90% attitude. I make light of my medical travails and don't take myself too seriously.


Posted by Cabg Patch on 2014-11-26 10:50. 5 comments. 300 reads
 
Tomorrow is once again the Thanksgiving holiday here in America. Many of us refer to it as Turkey day as that is the favored meal for this celebration, an estimated 46 million turkeys will be served tomorrow.

In keeping with this tradition, as well as my own, I'll ask again this year. Anybody have a good recipe for ICD roasted turkey? Will I need to worry about it coming back to life on the table if I use my ICD to cook it? Where should the leads be inserted? Well you get the idea.

All advice appreciated.

Posted by Cabg Patch on 2014-11-14 11:04. 7 comments. 466 reads
 
I believe in one of Blake's past survey's here, it was established that one of the most frequently asked questions, if not the top one is whether a computer will affect our electronic pocket pals. In fact there's one posted just a couple before this post.

Lately I've noticed that the PaceMaker Club has been having some issues and been down, in fact yesterday I couldn't log into the site.

Suddenly it dawned this morning over coffee...All this time we've been worried about the impact of interference from the computers and net on our devices when in fact it's the internet that's at risk when we are all on-line.

Maybe there should be a warning about too many pacemaker recipients congregating together at one ...


Posted by bstrong on 2014-10-25 08:44. 5 comments. 539 reads
 
== Begin quoted message ==

I am 38 and have had a pacemaker since I was 16. I was diagnosed with sick sinus syndrome and was told I needed this pacemaker because my heart rate got into the low forty beats per min when I sleep. I started to try to understand my situation more and some things didn't add up. My pacer was set at 75 beats per min and when he checked it one day I asked what my natural heart rate was. He said 65 and we found out that the sinus node in my heart is working. After doing some research it appears that sick sinus syndrome is not reversible. The dr said that my heart was healthy and I didn't need a pacer anymore. He wouldn't answer any questions and would not discuss whether he thought I ever needed it or not...


Posted by Duke Heart Patient on 2014-10-21 16:22. 7 comments. 392 reads
 
Who do you think will win ? SF or KC ?

Posted by pattie on 2014-10-18 01:13. 3 comments. 327 reads
 
Hello im new to all of this and its hit me like a brick!! Ive got tons of questions but I'll start with can i get a tattoo 2-3 weeks in the area area of the pacemaker? And 2nd question, how am i supposed to feel after a pacemaker? Im 47 and i dont know how this happened, one minute im told i have HCM then my cardiologist says i also need a pacemaker..... and my emotions are all over the board!

Posted by Skyking on 2014-09-26 14:05. 0 comments. 283 reads
 
Got an LVAD last month and STILL have my ICD.

Posted by highdesert on 2014-09-22 17:03. 6 comments. 367 reads
 
Just wanted to share a picture of my new friend Max... a 9 week old miniature schnauzer. Stop by the member photo gallery and say hello!! Gary

Posted by genevie94 on 2014-09-21 23:35. 2 comments. 267 reads
 
I've seen many pictures with people getting tattoo near the pacemaker incision. would that be ok?

Posted by jobecky33 on 2014-09-19 20:52. 4 comments. 222 reads
 
Is it the curse of the name...so far I have found 5.

Posted by Cabg Patch on 2014-09-17 12:31. 10 comments. 655 reads
 
How to do this, good bye, so long, farewell, adieu, au voir, Adios, hasta la vista, see you in the hereafter. Yep it's time to wish you all well and go on my way.

Who knows what new adventures lie ahead for me in the nether world? But I will be there when you guys show up. Now some are thinking this morbid and tasteless thing to post, but the fact is I've never been accused of having good taste, well except in the case of my wife of course.

Anyhow, if this offends, please feel free to move on to another posting and stop letting it eat at you, there's enough to worry about in this life. But I did want to take this time to bid farewell to my friends here.

So my friends, all this time, the past 7yrs 7mos and ...


Posted by ricky84 on 2014-09-11 18:52. 5 comments. 330 reads
 
Does anyone know if the solar storm will effect my pacemaker tommarow I'm kinda worried

Posted by KAG on 2014-09-05 22:20. 3 comments. 338 reads
 
So how did your big event go? I went to the HOF website and didn't see any pictures from it.

Hope it went well and you survived it. Looking forward to you being back on this site again.

Missed you.
Kathy

Posted by Duke Heart Patient on 2014-09-04 12:04. 7 comments. 271 reads
 
I just turned 40 ! ! ! ............. What a life I have lived ! ! ! Thank you God ... Open Heart Surgery at 2 months old (1974) ... Jeremiah 29:11

Posted by Lurch on 2014-08-25 14:42. 5 comments. 276 reads
 
Have your named your device?

I figure since it is so much a part of us, we should probably be on a first name basis!

I was considering Filbert, but am not sure yet....

Posted by valley01 on 2014-07-29 17:43. 4 comments. 550 reads
 
I've had 2 different doctors say things to me recently that almost offended me until I realized what they meant was not the way it came out of their mouth and then I laughed. Just wondering what funny things your doctors may have said to you?

1. At a trip to my cardiologist I mentioned that my PM was sticking out and "rubbing" against my skin. He took a look at it and very seriously in his accent said "If you were just a little bit fatter it wouldn't stick out so much." Nice!

2. At a follow up for my adrenal surgery the surgeon's PA came to get me from the waiting room herself as they were short nurses. She stopped at the scale to get my weight. As I stood on the scale I was thinking everything looked really good and ...


Posted by Cabg Patch on 2014-07-17 15:21. 4 comments. 637 reads
 
I survived. As you can tell, my voice is several octaves higher, but that was planned part of the gender relocation surgery. No Ian, you still can't have a date.

I learned a valuable lesson yesterday, for sure. I was my usual charming self earlier this week when finalizing details with the surgeon's staff. They asked a million questions, one of which - what I was having done, and well, you guys know me I had to smart off and tell her a sex change. She shot back an equally flippant response about unless I had my head up my derriere they would be a long way from there.

Anyway, when I got to the clinic and checked in yesterday they were all smirking. Had me sign a bunch of disclaimers and placed a surgical ID on my wris...




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