St. Jude Medical Pacemakers & ICDs

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Posted by nonischemic on 2015-08-29 00:58. 1 comments. 30 reads
 
Just got the results from my echocardiogram report. My EF is now 40-45% 17 months post implant! A substantial gain since 20 months ago having a 15% EF and being diagnosed with non-ischemic, LV Dilated Cardiomyopathy. The LV has returned to normal size, the mitral valve now has only mild to moderate (was severe) regurgitation. A far improved heart report card than I did 20 months ago when diagnosed.

I'm pacing at 98.8%. Looks like the Medtronic Viva XT CRT-D, meds, exercise, and lower stress job is the correct path!

Looking forward to an EF of 50%+ by my 59th birthday early 2016.

Dave


Posted by Fluff87 on 2015-08-28 17:58. 3 comments. 62 reads
 
Hi all,

Next week I will be getting my first pacemaker placed. I'm not going to lie, I'm nervous as heck, but really am looking forward to the possibility of feeling better. I've been passing out for about 10 years now. I've tried multiple medications to try and stabilize my HR and now it's come to this. I'm only 28 years old so the idea of a pacer is rather frightening but I have confidence in my Dr that this is the right choice. Here's to pacing and feeling better!

Posted by Josullivan on 2015-08-28 04:22. 2 comments. 83 reads
 
Hello
On June 10 of this year at 54 had pacemaker put in, not what I had planned for my 54 th year.. No meds have had AF about two or three times a year lasting any where from a few hours to the longest 2 days for the past 15 years. And then in June had about 10 episodes on feeling not so good, went to hosp. and they caught last episode on ekg and Dr. stated you get to have a pacemaker. Any way reason for posting, I have had one appointment with Cardiologist and two with pacemaker clinic, I get an odd feeling like a full feeling from my diaphragm up, never had it before and now get it at least once every day, they advanced AV delay, and said after power levels drop in 120 days that might do it, last time in I had only been pacing .02...


Posted by SwimmerRon on 2015-08-27 11:13. 9 comments. 193 reads
 
My regular cardiologist sent me to an EP who reviews all of the tests and he recommended that I have a CRT-D device implanted.

When I first was diagnosed with CHF, it was in an ER and while in the hospital the first ECHO showed an EF of 15. It has now been 2 years, and I am still very weak. My EF has only come up to 25. I'm on carvedilol, lisinopril, furosemide, spironolactone & Eliquis. I've been diagnosed with CHF, CAD, A-Fib. I have responded well to these meds & my bp is always low & I never gain any weight (I'm underweigh).

I just joined this wonderful group. I have so many questions, and I'll post a couple of them now.

The EP who did the diagnosis sent me to a cardiologist who has done thousan...


Posted by hopefulheart on 2015-08-26 14:18. 2 comments. 109 reads
 
I have a hypothetical question please. I do not ever see me doing this as a choice, but it has crossed my mind what if it became best for whatever reason. I know I have read a few thoughts about it on here before. If a device were to be removed and not replaced, would there not be issues with muscle, tissue, skin and possibly vascular changes in the abandoned space?
hopefulheart

Posted by Jane21 on 2015-08-26 07:23. 11 comments. 347 reads
 
As I have now survived a whole 6 weeks of life with my pacemaker, I thought I'd share some of the highs and lows! Here is a lighthearted look at just some of the issues I encountered :-)
Leaving Hospital.
24 hours post implant it was declared I was now fit and healthy and ready for home. Feeling far from it I telephoned home for someone to collect me. Husband at work, so the responsibility falls on my son. Spot his car at the top of the car park and struggle up the hill with overnight bag feeling somewhat mortal. Greeted with 'Hi Mum, you ok now? Can I borrow 20 quid till next week?' Heyho, back to the real world. In my weakened state I give in.
The Cows.
I admit, this isn't a problem many of you will have com...


Posted by Val-8 on 2015-08-25 19:59. 3 comments. 141 reads
 
So lucky me I have the awesome (joking) riata lead on my pacemaker/icd. The riata is really really separated and I'm hoping it doesn't cause a shock before I make it to the lead specialist on the 1st...I have to have leads removed because I'm completely full (7 leads total, 3 in use) BUT my pacemaker/icd isn't ready to be replaced as it still has 1.5 years.So my questions is this, Will they replace pacemaker now or just do the wires and go back in again in 1.5/2 years? If they don't replace pacemaker/icd now then that would mean 3 surgeries in 4 years!!! Anyways anyone experienced with this? I'd like to go in at least a little mentally prepared ...

Valerie
Pacemaker #8 (6-27 AND 6-28-2013. )
8 pacemakers -last 3 had...


Posted by Artist on 2015-08-25 18:49. 6 comments. 200 reads
 
I am so excited! The members of the PM club have discussed that fact that many people with cardiac rhythm problems and pacemakers also seem to suffer from sleep apnea. Ever since getting my PM in Nov., 2015 I have wondered if preventing my heart from beating so slowly at night might also have had an impact on my diagnosis of sleep apnea. My logic was that if my heart rate was previously falling in the range of 30 to 40 beats at night (and sometimes lower) that condition might possibly have contributed to the fact that I stopped breathing an average of 15 times every hour and was diagnosed with sleep apnea. I truly felt like the bionic woman with my Merlin Monitor sitting on my night stand along with my CPAP machine puffing away at nig...


Posted by Dave H on 2015-08-25 16:01. 5 comments. 137 reads
 
On the treadmill the other day I noticed a "stinging" sensation around my PM/ICD area. It did not feel anything like what was described in the Medtronic literature --- it felt more like a tiny pin was poking me in that area. EP nurse later stated my PM can move around in that pouch just under my skin, and it may have ended up in an area that irritated some nerves. I got off the treadmill, and onto other equipment with no recurrence of the pain.

--Dave--

Posted by busrider on 2015-08-25 14:51. 4 comments. 238 reads
 
This was written in another comment recently.

Comment posted by Cabg Patch on 2015-08-24 23:04.
Busrider ~ Perhaps we should just post a big flashing "Call your doctor" sign, turn out the lights and all go home...I frankly don't understand why you reply when by your own volition you don't know squat except call the doctor.
****
I've thought long and hard about what was written, and have several thoughts I would like to express.

When I went into my latest interrogation I spoke about being on this site and how much I had learned about how others reacted and managed their lives post-PM.

She was very sympathetic but told me strongly that should I have any real problems with my PM or any problems...


Posted by IAN MC on 2015-08-23 10:24. 9 comments. 371 reads
 
Every Sunday morning I run with my local running club

- Nothing strange about that !

This morning after the run an old friend started quizzing me about pacemakers and ablations , It turns out that he is booked in to have an ablation and may need a pacemaker

- Nothing strange about that !

He asked me the sort of questions you would expect ;-

- did you have a general or a local ?
- did you feel it ?
- was there much pain ?
- how long did the op last ?
- what limitations are there on your sporting activities ?
- how do the settings on a PM work ?
- do I need take drugs ?
- do electrical appliances interfere with the PM ?
- any bad ...


Posted by Grateful Heart on 2015-08-21 23:37. 4 comments. 211 reads
 

My HR hit a new high today at 222....3-4 minutes AFTER exercising ended. Suddenly it shot up and took about 6-7 seconds to come back down. Of course it felt a lot longer as I was staring at my HR monitor as it rapidly flashed the numbers. It's been pretty humid here all week but I'm always drinking water.

Been taking it easy ever since....feeling a little off tonight. Just a reminder to all to stay hydrated.

Grateful Heart

Posted by gertrude on 2015-08-21 21:21. 16 comments. 420 reads
 
Hello! I'm new here and about to officially join the club next week! I'm 31 and receiving a dual chamber device for Tachy-Brady syndrome.
Looking for expert advice on preparing for surgery and things that helped your recovery. Anything at all from preparing your house beforehand, reducing anxiety or gadgets that helped you after (seat belt covers, bra strap pads, etc.) any other words of wisdom welcome also! Thanks!

Posted by jwbarber on 2015-08-21 11:54. 6 comments. 254 reads
 
Since fall and winter is almost on us. I wanted to ask the question if it's ok to get in the hot tub. I've had my pacemaker for 6 weeks now.

Posted by nateshelton on 2015-08-18 15:04. 3 comments. 147 reads
 
Hi thanks for this forum it helps out alot knowing there a place I can go to and ask questions I couldn't ask my friends. I just received my pacemaker August 17, 2015 so I'm not only new to this group I'm new to the experience of wearing a pacemaker as well. Thanks again so much for this forum and thanks for your time.

Posted by busrider on 2015-08-17 15:45. 5 comments. 252 reads
 
Problem no. 1 with me. Breathlessness going up stairs, walking faster than a turtle and going up hills, and other times I just can't remember well now. BUT-------------I remember this: I often felt that same breathlessness pre-PM.

A lot of the really minor problems I have are often the same ones I probably had and totally ignored before I got the PM, but now that I have this computer in my shoulder, I'm aware of ever stitch, ever pinprick, every little thing as if it were a pending disaster if I DON'T pay attention.

AND---------I'm inclined to say I'm overweight, but my doctor would be on the floor howling with amusement as I'm classified as obese by her medical records. AND---------I'm facing the fact that altho...


Posted by starzyed on 2015-08-17 12:34. 1 comments. 104 reads
 
Had dual lead Medtronic two months ago never felt better. Had third degree heart block heart stopped twice.59 year old male hang in there everybody gets better. Starzyed

Posted by roborbob on 2015-08-15 20:32. 5 comments. 312 reads
 
I just had a PM put in 4 days ago and I am male 57 years old and I thought I was good shape. Two weeks ago I was fine no problems and then all of a sudden I could hardly walk without gasping for air and dizzy heart pounding so hard. I was ok if I just sat still or lied down. I finally go to the Dr. and he says pulse is at 30 and I am going to the hospital now. I am like you must be talking to someone else because that is not me. I am in hospital and my heart stops --good thing I was there I guess--so it was later at night so they put a temporary PM on me which is on the outside of the chest. I then get a permanent one in 2 days. I am still in a state of shock that this happened to me as I am sure everyone else is who has a PM.

I...


Posted by joanpucherelli on 2015-08-15 15:09. 2 comments. 138 reads
 
I am writing this for my 88 year old mother. She has a pacemaker for slow heartbeat. She calls in once a month for her pacemaker check up with no problems.
Over the past several weeks she has been experiencing episodes of dizziness and generalized weakness. She is a very healthy 88 year old who until recently walked the dog every day, she does her own laundry and light house work and cooking. Is there anyone here with NEW ONSET ATRIAL FIBRILLATION WITH AN EXISTING PACEMAKER, I was considering atrial fibrillation as the problem. She recently saw her Internist and he didn't mention Atrial Fib as a possible diagnosis. Is there anyone with experience here with this problem

Posted by Tabby on 2015-08-12 16:56. 9 comments. 271 reads
 
Has anyone noticed more hair loss than usual since pacemaker was installed?



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