St. Jude Medical Pacemakers & ICDs

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Posted by rnff2 on 2014-09-16 00:56. 1 comments. 26 reads
 
I have lived with my heart "issues" since age 14. Open heart surgery at age 14 and again at 37 with mirtal valve repair and diagnosis of HOCM, and pacemaker at 40. My brother (age 49) who has lived with diabetes since age 13 had a heart attack last November, no previous cardiac issues prior to the heart attack and to make a long story short had 10% heart function after the heart attack and he ended up listed for a transplant and received a new heart on July 1st only 10 days after being listed. He is now feeling better than ever as far as energy and cardiac function. He has had a few bumps in the road and lots of other things that go along with getting a transplant..but he received such an amazing gift. I have always said I would never...


Posted by my4turtles on 2014-09-13 16:55. 6 comments. 112 reads
 
After talking with the Dr the other day he said he was going to add a 3rd lead to my pace maker as I have pace maker syndrome. I just got my surgery info emailed and it says BI-V pacemaker upgrade .. Does this mean his adding a 3rd lead or a new device .im going to call on Monday but until than I thought I could get some input

Posted by Harm on 2014-09-13 12:20. 1 comments. 86 reads
 
Recently my heart has been racing. Lasts a couple of minutes several times a day. No pain, just scared

Posted by justice on 2014-09-11 20:32. 1 comments. 72 reads
 
Just had a pacemaker installed. It was a breeze until 24 hours later when pericarditis raised its ugly head. Wow, I never felt pain like that before and I am 68.

Must pulse dropped to 20 bpm. and I was advised that I essentially lost electrical connection between the atrial and ventricular nodes.

All is well no, 3 weeks post installation and I am Glad to be here and not 6 ft under.


justice

Posted by Ves on 2014-09-11 20:22. 2 comments. 107 reads
 
I do quarterly transmissions of the pacemaker and get response from the doctor. Usually I ask for some information each time such as predicted longevity of the battery, Atrial and Ventricle pacing percentages, etc. For the last 2.5 years all has been stable but the last reading I got a shocking news. My Ventricle pacing was hovering around 4% - 5% but the last reading the Ventricular pacing was 96%. The nurse said that at the next office visit in November she will check the settings and not to worry for now. I am very concerned that something had degraded in my heart. I do not have any adverse symptoms but want to know if somebody may have an explanation of this big jump.

Thanks


Posted by beachman on 2014-09-11 19:37. 4 comments. 123 reads
 
I have been in afib for 24 hrs with bp running around 88/59 and hr around 130.Went to dr today he took ekg and said I was for sure in afib and to up coreg doasge and it was not better to come back tomorrow. Does anyone know a better way to pull out of it. THANKS

Posted by Robert122085 on 2014-09-11 19:36. 6 comments. 189 reads
 
I am active duty military and make good money.... But now I have a pacemaker and will be kicked out and am reading that a pacemaker is only 30% disability at best... When I can't do the things I use too or won't be able to do most things and can't live off 100 dollars a month SOMEONE PLEASE HELP......

Posted by kirkmanmj on 2014-09-10 19:36. 1 comments. 98 reads
 
Back story: 61 year old male, athletic, run half marathon, good shape

Problem: 2 years ago started having ventricular tachycardia (VT) for no apparent reason. Did all the known heart tests. Heart and circulatory system normal. Doctor said it was genetic.

Solution: Started taking 120 mg sotalol. This worked for about a year. VT returned and more frequent. Ablation #1 could not get my heart into VT. Installed a single lead ICD.

Six months later multiple VT occurred tried with Abaltion #2 but VT focus identified on outside of the heart. Three days later Ablation #3 was an epicardial ablation. Focus was identified and ablated. Very painful but worth it.

Two months later: multiple ...


Posted by jongomez on 2014-09-10 05:24. 3 comments. 118 reads
 
Hi friends!
I've had a PM for 3 years and now I need to have surgery for prostate cancer and the Dr wants to use the Da Vinci Robot technique. I feel anxious and was wondering if there's anybody out there who's had to have surgery not related to the PM and what precautions the Dr should make.Thanks!

Posted by Greenhemi on 2014-09-10 01:01. 3 comments. 92 reads
 
Thanks for all of your input. I know some of you are worst off than me. I've had to retire and was restricted from driving for 6 months.
It's been hard accepting the fact that I have heart problems. I have had therapy but wasn't very helpful. Therapist ended telling me his problems. How can I improve my EF? I have cardiomyopthy but no blockages. Clean arteries. The ICD is implanted for when the heart goes too fast or to slow. Been having all kinds of skipped beats lately . It's making me very nervous . Not set for pacing yet. It's a St. Jude's duel lead. Thanks again for your support. Wish I had known about this site 2 years ago.

Posted by belle on 2014-09-09 14:43. 2 comments. 104 reads
 
OK EASIER FOR ME TO TYPE IN CAPS. I WAS LUCKY ENOUGH TO GET CHF FROM A VIRUS. WHEN I WAS DIAGNOSED MY EF WAS ONLY 10. OKAY FAST FORWARD 8 YEARS, I HAD TO GO FOR OTHER SURGERY AND MY DOCTOR IS THE TYPE IF YOU HAVE EF HE DOES NOT WANT TO DO ECHOS. BUT I HAD TO HAVE ONE DONE. I WALKED INTO HIS OFFICE AND HE TOLD ME COME WITH ME HE HOOKED ME UP TO THE MACHINE, I ASKED WHAT IS GOING ON?? HE SAID LISTEN YOUR EF IS 45 NOW. I SAID WHAT???? HE TOLD ME HE HAS NO IDEA IF IT WAS THE DEFIB THAT STRENGTHENED MY HEART. I HAD A NEW DEFIB LAST YEAR. ANY COMMENTS PLEASE.

Posted by anitaslater on 2014-09-08 22:26. 1 comments. 99 reads
 
I have begun in the last 2 months to have major pain in and around where my pacemaker was implanted! Is this normal?
It's gotten so bad that I am in constant pain. As bad as after it was first put in!

Posted by admin on 2014-09-08 20:24. 4 comments. 148 reads
 
We received the following request via email...

I’m writing an article to be published next week, on what to expect after getting a pacemaker. While I’ll be interviewing medical experts, the story also needs the perspective of someone who actually lives with a pacemaker and can describe their experience.

Please circulate this request among your members so I can include one or two of their voices. Our phone interview would take about five minutes. The interview would have to take place by Friday, Sept, 12.

Thank you for considering my request!

Sincerely,

Lisa Esposito | Patient Advice Reporter
U.S. News & World Report | 1050 Thomas Jefferson St., NW
Washington, DC 20007...


Posted by Duke Heart Patient on 2014-09-08 09:46. 3 comments. 148 reads
 
I have posted this before but since I just turned the big 40 I wanted to post again for encouragement to you all ! :)

The Shock of My Life
Being born with a heart defect was just a blessing from God. At 2 months old I underwent transposition of the great vessels (Open Heart Surgery - Transposition of the great vessels (TGV) is a group of congenital heart defects(CHDs) involving an abnormal spatial arrangement of any of the great vessels: superior and/or inferior venae cavae(SVC, IVC), pulmonary artery, pulmonary veins, and aorta. CHDs involving only the primary arteries (pulmonary artery and aorta) belong to a sub-group called transposition of the great arteries (TGA) at Duke Hospital. Growing up having to watch my own self...


Posted by Tattoo Man on 2014-09-08 06:13. 2 comments. 82 reads
 

.....Hi All........
I have just installed an Induction Cooktop ( Hob) and after over a week can confirm NO adverse effects on my St Jude PM.

There still seems to be some confusion between manufacturers litigation clauses in information and the practical fact that a pacemaker is extremely unlikely to be affected by these brilliant appliances.

Picture,..back in 1973 when Westinghouse marketed its first Induction Cooktop at a colossal $1500 !!!.....who would have thought that 40 years on , here in the UK you can get a decent one for £230.

Best wishes to all !!

Tattoo Man

I had a great day out on Sat 6th at Hampton Court Palace...visiting the 3rd Concours de Elegance car show....


Posted by trish on 2014-09-08 00:39. 4 comments. 169 reads
 
I will be flying tomorrow for first time since pm. Shall I just walk through scanner as usual with ID card in hand? That seems to be simplest plan, have any of you done that. Trisha

Posted by nattbell369 on 2014-09-08 00:29. 3 comments. 112 reads
 
Hello. I'm 19. And a HUGE pitbull lover. I want to get a tattoo of My dog on my left thigh, I have a pacemaker/defibrillator on my left side of my chest. Would it affect anything if I got it on my thigh? It's probably gonna be bigger than a softball but not much. And do not tell me not to get it that I will regret it , because I won't regret it. My dog is like family. Oh and not to mention, I have 2 tattoos already that I've gotten while I've had the pacemaker/defib. One is on my foot and the other on my left wrist. I've read places talking about talking with your doctor, but I've gotten these before without consulting him. Let me know what you think. Thanks so much. :)

Posted by steffenme on 2014-09-07 09:53. 5 comments. 185 reads
 
Hello!

I am a 35 yo woman fitted 9 days ago with a dual chamber pacemaker after months of complications due to vagal bradycardia. I have suffered for months from extreme dizziness and near fainting, and I was so hopeful that the pacemaker was going to make that go away.

However, I am still getting dizzy when I stand up. I had a blackout episode a few days ago that landed me back at the doctor's office for a setting adjustment. However, I am still experiencing dizziness that hits me hard and fast.

Truth is, I'm scared to death that this will never go away or that they will treat it with medication. My experience with medication is not good as I didnt tolerate meds to raise my blood pressure very well.<...


Posted by Woodworker on 2014-09-07 09:16. 4 comments. 156 reads
 
I had PM implanted about a month ago. Since then I have not been able to sleep as well, either waking up at 2am or not being able to get to sleep. I take ambien to help but do not want to be dependent on that.

i am 54

Anyone else experience this and does it go away.

Posted by jessie on 2014-09-07 02:44. 5 comments. 187 reads
 
i am just plain tired and depressed from living with someone with heart disease. sometimes i feel like this has been going on for so long that i don't know what normal is any more. but i continue on at this thankless time of my life. there is no support whatsoever except maybe this group. any ideas? jessie



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At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!

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