My PM has been in for 3 weeks and I have had two severe episodes of AF very debilitating and lasting 18hrs eventually under control with 300ml Flecanaide 100 every 6 hrs. Makes me very washed out. Anyone else had this does it settle down?

 

Hi Everyone:) For those of you who know me & for those of you who notice I comment & post on this site quite frequently - I just wanted to let you know why I haven't been around lately. (One of these days - and I'm thinking of you Patch - LOL - I'll learn how to tell a story that's not so dam lengthy.)

I was due to have MY cardiac echo on January 31st, however, approximately 4:45am that morning my husband, Lloyd, awoke me very suddenly. I thought I had overslept and was going to miss my appointment but that was NOT the case. I was still half asleep, of course, and all I remember was him passing me the stethoscope saying "listen to this, I don't feel right". (We just happen to have a stethoscope in the house.) His heart wa...

 

Sometimes we all focus on the negatives of our diseases and the limitations that get placed upon us.. however I thought this was a wonderful story to share. Check it out!. Its a unique story about a girl who was forced to have a heart transplant after getting cardiomyopathy and in the span of 6 months has gotten healthy enough to go back to competing in her dream sport of gymnastics! With determination.. sometimes the impossible can become possible!

http://www.deseretnews.com/article/705398710/Utah-teen-defies-the-odds-competes-at-gymnastics-meet-with-a-new-heart.html?s_cid=s10

 

I am a healthy 53 year old. My friend is 44, a mom and a wonderful person. She needs a donor today, I spoke with her husband and found out the routine of getting her a heart. My question is... can I trade her my heart and take her pacemaker? From what I have looked up on the information on pacemakers, It would be best for me to live another 20 years and take my chances. Than, for her to die tomorrow. Please advise.

Tricia

 

Thank you, Laben, Melena and Fishfighter for your helpful comments. Great you have had no shocks, Fishfighter. Take care. Thank you, Paul, for your concern for my family after my daughter's death. I am so sorry your heart was attacked by a sneaky virus, also. I believe you mentioned more than once. I hope your medication continues to help you. Thank you Grateful Heart for asking about my daughter. Nothing family seems complete without her here, and the things that will never be just keep adding up, but I thank God for each and every year He shared his precious chlld with us. Hopeful Heart

 

I'm a returning member,greetings to all my fellows PM Sep 27,2011 I had a PM inplanted i"m steel trying to get used to it. For the past month I have been having tightnes in my chest and I feel like someone is choking me, and with it I get bouts of fast breading fallowed by regular breaths and then I start all over again.Because of it I was hospitalized for three days.They monitored my PM and told me that I have PVCs and those could cause the fast breading. I have not yet seing the Dott. that put the PM.in.If anyone has or had this problem please let me know.Does my Dott. need to adjust the PM,or I have something else to worry about.I'm tired I have not slept well in over a month as have those feeling when iI try to go to sleep. Thank you t...

 

Great, positive name! I am concerned about your incision difficulty. Could you possibly have an allergy/sensitivity to a product(s) in your device/lead(s)? Please continue to seek the answer to your difficulty. Wish I could be of more help. Hopeful Heart

 

I have just returned from a 3 day trip away, with me doing all the driving for the first time. My husband is unable to drive at the moment so I thought if we want to go anywhere I had better take over. We went to Moeraki which is a little fishing town which is famous for its boulders which are all rounded. We went about 360 km, we enjoyed a walk to the lighthouse and got some pics of seals.( I also got stuck down the bottom of a hill when we were walking but that is another story.) I am so thankful for my pm as I would never have been able to plan a trip before because my health was so unpredictable. Hope you are all doing well.
Regards Jane

 

I have just returned from a 3 day trip away, with me doing all the driving for the first time. My husband is unable to drive at the moment so I thought if we want to go anywhere I had better take over. We went to Moeraki which is a little fishing town which is famous for its boulders which are all rounded. We went about 360 km, we enjoyed a walk to the lighthouse and got some pics of seals.( I also got stuck down the bottom of a hill when we were walking but that is another story.) I am so thankful for my pm as I would never have been able to plan a trip before because my health was so unpredictable. Hope you are all doing well.
Regards Jane

 

I am a grateful heart! I am grateful for my ICD. I am grateful to God and for the great doctors who have helped me feel and function so much better. I am grateful for my husband and sons and their support. I am grateful for this site and the knowledgeable and kind people on it. I’m even grateful for the doctors I had to fire when they didn’t listen to me, since that led me to the great team of doctors I have now. I ask a lot of questions and try to educate myself about this amazing device.

I was diagnosed with cardiomyopathy due to a virus, SSS and left bundle branch block in May ’08; ICD implanted in December ’08. 18 days later, some fluid around the heart. After that was resolved, I was progressing nicely over the ...

 

CAN ANYONE TELL ME WHAT ITS LIKE TO GET A MAMMOGRAM WITH A PACEMAKER? I CAN TELL YOU GETTING ONE WITH A LOOP MONITOR IS PURE HELL!! OF COURSE WHEN I ASK MY EP IF IT WAS OK TO GET HE AGAIN I SAID "HE" SAID IT WOULD BE FINE!!!!!

 

I always read the posts' about feeling vibrations with a skeptical view. Well, I am now a believer because my left arm and hand are vibrating on a very regular basis. I never really understood what people were talking about before now.

For the last few days or up to a whole week, my left arm and left hand have been vibrating. At first I thought it was my phone. I couldn't hear it but I can feel it and finally figured out it is coming from my hand and arm!

So I have phoned the doc. they want to see me tomorrow morning and do a pacemaker check. I have the Merlin and he isn't doing anything special, like lights and noises, so I'm not too worried.

Because of this I do have a new found respect for people wi...

 

Well it has been awhile since I have been on here. The joys of returning to work in the ER. I have had no episodes of passing out but yet have had pre-sycnope episodes and chest pain with flutter/ palpitation feeling. I return tomorrow to the MD to have my PM interrogated and see him. Hope all goes well. Maybe he won't tell me I'm screwed up but hey the people I work with know I am lol

 

My pacemaker was implanted yesterday and I got to go home this morning. He put in a SORIN GROUP DR REPLY pacemaker. Dual chamber. I don't need the ventricular lead right now but it's there for when I may need it.

The whole experience was a very good one. They implanted it under the skin because the pacemaker is so small and I have a lot of room there.

There is very little pain. It's pacing now at 60 atrial pacing only. I feel nothing. The rep came in and interrogated it this morning and changed something (?Threshold?) that I did not like at all. He was just testing it out. He put it back to where it was. The leads are all in place and I am set to go.

Now I can safely take my beta blockers witho...

 

Hello Everyone
I have had a pacemaker now for 9 years,my ef is at 28 and i go in Monday to have a defibrillator put in ,I work for a telephone co.
do anyone know if there will be anything that i will not be able to work around other than up a pole were there is ac power

thank yall
and god bless u all
keith

 

As some of you know, I have a in line IV implant with a pump that pumps Dobutamine 24/7. Well last night around 1 am, I got woke up by an alarm from my pump. It was stating that the IV line was kinked. Well, it was clear. From there, I had changed out IV bags. Still the same alarm. From there, I had my wife go out to my truck to get my back up pump. I did get that sucker in service as fast as I could. At that point, I was feeling very bad, but within a hour, I started feeling better.

I did get on the phone and had called the people that supplyed the pump. She told me to call next time no matter what time it is and that if I couldn't get the pump running right within 5 mins, head to the nearest hospital fast. Nice to know that no...

 

Have a great 5 year anniversary !! Happy Birthday to your wife!!

 

Hi, All. Today I was in Costco & saw the Mayo Clinic 2012 Heart Book (or whatever they call it).

Thumbed through it, looked at Table of Contents & Index & came to the last chapter on "How the Heart Works."

Not the FIRST word about the electrical system.

Guess we are what a friend always called the "Red-headed Step Children" of the heart world! AND, we wonder why we can sometime find so little help & support from our cardio friends.

Guess that's why we trake care of ourselves in this support group.

Don

 

Hi all, I hope everyone is happy and healthy. I am due to have my pacemaker replaced on March 15th at Papworth hospital. Whilst I was walking to work this morning i experienced a really shocking pain. I have had chest pains before that are quick and sharp and just except them as I was told that you cannot have heart surgery and a pm implanted without some pain. However, the one I had this morning was ten times worse and felt like it was giving lots of little shocks over the pm area and going right across my chest. Is this because I am due for a new pm soon or has anyone else had this experience? Thanks for taking the time to read.

 

Just thought I'd share this quote that I came across:

Friendship is born at that moment when one person says to another: "What! You, too? Thought I was the only one."

by C.S. Lewis

Sometimes we feel pretty alone, but if you stumble across this great site full of compassion & support, you know you have landed in the right place:)

Take care,
Pookie