St. Jude Medical Pacemakers & ICDs

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Posted by capecod on 2014-04-10 19:21. 1 comments. 75 reads
 
hi all
I have received many comments regarding my questions - this site is a blessing! thank you.
could someone tell me about a home communicator? how far a range does it cover? does insurance cover the cost? etc etc
thanks.

Posted by kmom on 2014-04-10 12:47. 5 comments. 178 reads
 
Before my pacemaker my resting HR would be in the 40's 50's range--now sitting here it's averaging about 68--my PM is set to pace if I go below 60 --does that mean that when I feel my pulse at 68 that it's my own heart that's doing it??(without PM intervention??) I do have rate response and ADL at 95 what ever that means. I was just curious--I almost can't wait until next week when i'm interrogated for the first time to actually see what it's doing for me--I do know that i'm feeling better and my heart rate is up where it needs to be and I know it wasn't doing that before the PM.

Posted by kathyk on 2014-04-10 02:05. 4 comments. 96 reads
 
Out of surgery 1 week ago. Feel something like a heartbeat inside body under left breast. What does this mean? No pain

Posted by rver on 2014-04-10 00:24. 3 comments. 84 reads
 
Had my Dual lead Pacer placed Feb 6, 2014. Today I had my first Pacer check-up (2 months). I learned that the Pacer was working 88% of the time (a lot more then I had anticipated!). My low setting is 64 and high is 130. I mentioned the problem I am having with shortness of breath and wondered if it could be the settings, or the Sotalol I'm on since the Pacer implant. I was told adjustments could be made, which he did, so now I'll see if that helps. What experiences have others had with this? I have had AF for 3+ yrs now although only 3 episodes in that time as meds seemed to keep it in check (Digoxin & Diltiazem). My lungs tested excellent. I am a female and over 75.

Posted by WayneO on 2014-04-09 16:04. 5 comments. 105 reads
 
After ten years of meds for A-Fib, two catheter ablations and a Total Thoroscopic Maze, followed by four cardio versions, my EP is suggesting that I consider an AV Node ablation and installation of a PM. Not sure I am ready for this, and would like to know others experience with decision making and if there are any significant drawbacks to being active, like playing tennis, golf and working out at this gym. Will be 65 this fall, and CHAD score may support the decision since I also have hight BP. Any thougths? Thanks.

WayneO

Posted by gshegedus on 2014-04-09 09:04. 4 comments. 86 reads
 
Hello, I have had my St Jude ICD for a year now due to a massive VTC incident. A few months later, they also found SVTC but took care of that with Sotalol. Was also diagnosed with pulmonary sarcoid which is what spread into the heart and caused the scarring, leading to the tachycardias. Around November, I started feeling pressure on my chest. I feel it just walking around, climbing stairs, and trying some light exercise. It feels horrible. It then discourages me from doing more exercise. It hasn't limited my day to day. I have been hooked up to the St Jude monitor twice and the cardiologists say everything is normal. Any idea what this pressure is? Could it be some type of atrophy? Do I just need to power through.

Posted by Jody on 2014-04-09 01:12. 6 comments. 185 reads
 
I had a pacemaker installed in February and two subsequent checkups showed that I was being paced at less than 1 percent. Prior to the installation of the pacemaker, I had four dizzy spells in a two week span I actually passed out briefly on the last episode. I was wearing a heart monitor at the time (I got it that morning) and the complete heart block episode was caught on the monitor. Two days later I had a pacemaker. The doctors said it is too dangerous to walk around without protection..I could hurt myself or someone else. I am only 51 and am in perfect health otherwise. Did I act too hasty or did I have to get the pacemaker?

Posted by Tick-tock on 2014-04-08 22:52. 3 comments. 120 reads
 
Just wanted to send out a follow up from my surgery on Friday 4/4. I had an ablation, lead extraction, and pacemaker revision. I am happy that I was under general anesthesia again:) my EP started with the ablation, then moved up to the pacemaker. The entire procedure only took 5.5 hours. Afterwards I had a bit of trouble waking up. I was on bedrest for 6 hours after, laying flat on my back. The worst part was having to void, and not being able to get out of bed. I ended up needed to be cathed, but that's no biggie. I was in a lot of pain after, took morphine once- was not effective. Switched to oral Percocet which was a bit better. I had trouble sleeping, the nurse ended up giving me toradol, which was amazing. She said that with the ablat...


Posted by mom0f6 on 2014-04-08 19:00. 7 comments. 143 reads
 
So, this morning before 8am, I get a call from the pacer clinic that my nightly monitoring showed I may have dislocated my right lead! (HUH?) I didn't think that was possible after 5 1/2 months.
Thankfully, I did not, but they were saying words that I just didn't get. new 2:1 heart block. Atrial Fib. Wenchbak and others I can't remember. They reprogrammed my pm and sent me on my way. I did google the above but that just confused me even more!
Anway, is it possible to pull leads out this far after surgery?

Posted by Tattoo Man on 2014-04-08 13:32. 17 comments. 278 reads
 

................Hi everyone......on the 10th it will be a whole year since we lost Electric Frank...
I have spoken with Blake ( Admin ) and he was ok with me raising the topic. I just know that Frank was so special for so many people here in PMC and a kind of anniversary will bring back the great memories that he left us with.

For the Newbies who will not have had the good fortune to have received his wit and wisdom ,...get his name up on Member List (top left in red)....this will enable you to read his 'back catalogue' and learn more about this exceptional man.
PMC is a poorer place without him.

My very best wishes to all out there in PMC land.

My very best wishes to his son John.


Posted by kmom on 2014-04-08 13:12. 9 comments. 123 reads
 
The procedure went fairly well. A little pain when they were pushing and tugging but tolerable. I think i'm feeling a tad bit better although i'm tired and kinda weak they say just from sitting in bed so long. This morning when they interrogated the PM they said I was still in A-fib so he's bumped up my rhythmol but my heart rate is MUCH steadier and the nurses and everyone said it was definitely needed! my chest area is of course a little sore but really no restrictions other than the lifting and raising above shoulder/head. Thanks for all the support and sorry it took me so long to post. it was too hard to try to type one handed on my cell phone last night.

Posted by capecod on 2014-04-07 19:22. 8 comments. 175 reads
 
I am reading a lot of comments on this site regarding anxiety after implantation of a device. is this common?

Posted by WendyC on 2014-04-07 19:12. 8 comments. 214 reads
 
Hi, I have had a pacemaker for 3.5yrs now and after some recent issues I stumbled upon this site....thank goodness.
I was given a pacemaker for Bradycardia (21bpm at rest) at the age of 48. Since then I took up running, lost a lot of weight and live a very healthy active lifestyle. In August I had my bi-annual checkup, ecg, echo etc and went home. By the time December rolled around my exhauastion was worse than it had ever been before the pacemaker was inserted. A visit to my GP resultedin blood tests which found I was very low in iron, but not enough to cause such exhaustion. January saw me sitting in my lounge room with 3 paramedics ( one MICA) looking at a 12 lead ECG telling me that the pacemaker wasn't pacing. My heart rate dropp...


Posted by capecod on 2014-04-07 19:10. 1 comments. 60 reads
 
many, many thanks to those of you who sent messages regarding my concerns for resynchronization therapy and icd. I meet with my surgeon next week and have added some of your thoughts to my list of questions. I have also read posts by members on this site who are experiencing complications/pain, etc. it is so difficult to make a decision. your comments, however, are comforting.

Posted by katbell on 2014-04-07 18:58. 3 comments. 87 reads
 
My questions is that has anyone ever heard the story that a person has to wait until the leads have a chance to mature in a patients body before any pacemaker settings can be changed?

Posted by Grateful Heart on 2014-04-07 10:26. 3 comments. 102 reads
 
Today's the day! I just want to send good thoughts and Prayers to you and your Doctor this morning.

I see you are on the site right now and I'm sure you are nervous and can't wait until it is over. BTDT

Almost there....you can look forward to feeling better now, it's been a long wait for you.

Grateful Heart

Posted by capecod on 2014-04-06 22:48. 8 comments. 166 reads
 
hi all
my first time on this site. my doctors have recommended resynchronization therapy with a defibrillator. I am most anxious about this. I have been reading recent studies and the success rate appears to be 50/50. I have also read about possible complications. I would like to hear from those of you who have cardiomyopathy, low ejection fraction, left branch bundle block, and qrs about 140. wow! I can't believe I have all of these - looks dreadful on paper.
I would love to hear about your experiences.
thanks.

Posted by kcy48 on 2014-04-06 17:05. 4 comments. 201 reads
 
How many members are there in the Pacemaker Club?

Posted by robo-ver on 2014-04-06 15:22. 7 comments. 211 reads
 
Hi,
Haven't been on for a while so just wanted to wish everyone well and hope everyone is healthy and happy!

I have been having a total nightmare and I wont bore you with too many of the details but it has involved having to take a year off work due to ill health, my migraines becoming chronic (5 times a week) and having nerve block injections in my head (ouch) as well as a new cocktail of meds (yey) I have also been diagnosed with ME which is also loads of fun! And all just in time for my 30th Birthday this summer! But one should not dwell on the negatives.....I do have a year off work after all so its not all doom and gloom!

I do have a pacemaker related question for you, I wonder if someone can help? I had my ...


Posted by tonympainting on 2014-04-06 15:15. 4 comments. 118 reads
 
Since getting my pm my left hand and sometimes my arm is swollen, went to heart dr. tested for clots every thing ok went to family dr he said he has no idea why my hand is swollen, he put me on antibotics for a week. Any one else have this problem? Thanks



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