St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in General Posting Forum



Posted by WendyC on 2014-04-07 19:12. 8 comments. 215 reads
 
Hi, I have had a pacemaker for 3.5yrs now and after some recent issues I stumbled upon this site....thank goodness.
I was given a pacemaker for Bradycardia (21bpm at rest) at the age of 48. Since then I took up running, lost a lot of weight and live a very healthy active lifestyle. In August I had my bi-annual checkup, ecg, echo etc and went home. By the time December rolled around my exhauastion was worse than it had ever been before the pacemaker was inserted. A visit to my GP resultedin blood tests which found I was very low in iron, but not enough to cause such exhaustion. January saw me sitting in my lounge room with 3 paramedics ( one MICA) looking at a 12 lead ECG telling me that the pacemaker wasn't pacing. My heart rate dropp...


Posted by capecod on 2014-04-07 19:10. 1 comments. 60 reads
 
many, many thanks to those of you who sent messages regarding my concerns for resynchronization therapy and icd. I meet with my surgeon next week and have added some of your thoughts to my list of questions. I have also read posts by members on this site who are experiencing complications/pain, etc. it is so difficult to make a decision. your comments, however, are comforting.

Posted by katbell on 2014-04-07 18:58. 3 comments. 88 reads
 
My questions is that has anyone ever heard the story that a person has to wait until the leads have a chance to mature in a patients body before any pacemaker settings can be changed?

Posted by Grateful Heart on 2014-04-07 10:26. 3 comments. 103 reads
 
Today's the day! I just want to send good thoughts and Prayers to you and your Doctor this morning.

I see you are on the site right now and I'm sure you are nervous and can't wait until it is over. BTDT

Almost there....you can look forward to feeling better now, it's been a long wait for you.

Grateful Heart

Posted by capecod on 2014-04-06 22:48. 8 comments. 167 reads
 
hi all
my first time on this site. my doctors have recommended resynchronization therapy with a defibrillator. I am most anxious about this. I have been reading recent studies and the success rate appears to be 50/50. I have also read about possible complications. I would like to hear from those of you who have cardiomyopathy, low ejection fraction, left branch bundle block, and qrs about 140. wow! I can't believe I have all of these - looks dreadful on paper.
I would love to hear about your experiences.
thanks.

Posted by kcy48 on 2014-04-06 17:05. 4 comments. 202 reads
 
How many members are there in the Pacemaker Club?

Posted by robo-ver on 2014-04-06 15:22. 7 comments. 213 reads
 
Hi,
Haven't been on for a while so just wanted to wish everyone well and hope everyone is healthy and happy!

I have been having a total nightmare and I wont bore you with too many of the details but it has involved having to take a year off work due to ill health, my migraines becoming chronic (5 times a week) and having nerve block injections in my head (ouch) as well as a new cocktail of meds (yey) I have also been diagnosed with ME which is also loads of fun! And all just in time for my 30th Birthday this summer! But one should not dwell on the negatives.....I do have a year off work after all so its not all doom and gloom!

I do have a pacemaker related question for you, I wonder if someone can help? I had my ...


Posted by tonympainting on 2014-04-06 15:15. 4 comments. 120 reads
 
Since getting my pm my left hand and sometimes my arm is swollen, went to heart dr. tested for clots every thing ok went to family dr he said he has no idea why my hand is swollen, he put me on antibotics for a week. Any one else have this problem? Thanks

Posted by Grateful Heart on 2014-04-06 14:47. 15 comments. 241 reads
 
My Husband and I took the class yesterday. It was a very good class, informative and fun, I highly recommend it. We took the class through the American Heart Association, a GREAT organization. It also covered child and infant CPR and First Aid....just about everything.....but NOT everything.

I asked in the beginning of the class if they talk about CPR on someone with a pacemaker/ ICD. The Nurse/ Instructor said yes they will. We went through the whole class and watched numerous videos, then applied what we learned on practice dummies...adults and infants for part of the test as well as a written test.

After the testing, I asked again about CPR on a person with a pacemaker/ ICD. The Nurse then acknowledged that t...


Posted by sunshinewishes on 2014-04-06 12:38. 0 comments. 43 reads
 
Good morning! Paul, You have always inspired me with your good morning wish to all no matter how bad the day for you. I have not been on site for a few days until this morning. You were not feeling very well the last post of yours I read. As I scrolled down the posts this morning, I did not notice one from you. I know there are many of us who would like to hear from you. Thinking of you. sunnywishes

Posted by Kaitland on 2014-04-05 16:54. 7 comments. 198 reads
 
I am having a PM implant on April 16th. I am left handed but have a monitor implant on my left side that will have to come out when PM implanted.
Trying to decide whether I should just have the PM implant on left side since I will have to be cut on that side anyway and I understand the left side is easier for the Doctor to work from.
I have an old rotator cuff injury on my left side which really flared up when they put the monitor in last year and that is also a factor I am wondering about. How bad is it on the shoulder the PM goes in? I as assuming this is going to be more invasive than the monitor implant.

Also, considering whether to push for implant under the muscle. I am active and reading on this site it ...


Posted by kmom on 2014-04-04 19:00. 10 comments. 158 reads
 
Monday I go in for a PM! Little scared but he said I would feel SOOO much better!! Bring it on! I guess!! I guess that's what I get for my month long Monitor! I'm still in Afib as well but they can't give me any more drugs to treat that until the PM because the Rhythmol is already decreasing my heart rate too much. as far as ablating he said he really couldn't do that because of the heart surgery I had when I was 25 to repair ASD --he doesn't want to go thru to the other side of heart where he thinks the problem is.

Posted by johnnyc on 2014-04-04 16:52. 4 comments. 115 reads
 
I had a pacemeker installed 7 weeks ago. There is only one, on demand setting which is for it to activate if my heart beat goes below 40 per minute. I feel good with no dizziness or threat of fainting which were my problems before the pacemaker was inserted. I am doing some light physical activities but no lifting with left arm over 10 pounds and do not put left elbow over my head.
Does playing billiards (8 ball) constitute raising your elbow over your head? Should I avoid it?

Thank you,


Posted by 48cs on 2014-04-03 20:36. 4 comments. 105 reads
 
Just joined and have a relatively new pacer-any other women have discomfort over insertion site from bra strap and any type of bra that is really comfortable over the site?

Posted by Sociald13 on 2014-04-03 20:31. 8 comments. 217 reads
 
I got my Pacemaker a few days after my 4 3rd bday and now going on two years with it...When at the hospital I was told to stay away from microwaves well at Fort was very careful but now sometimes I forget and I'm in the same room when it's on...I don't stand directly in front of it but I am in the same room....am I safe by doing that or should I just stay clear away...

Posted by kidsmemaw on 2014-04-03 18:15. 1 comments. 55 reads
 
Thanks for all the help I have a Doctor appointment tomorrow and will see what he has to say

Posted by Cupcake40 on 2014-04-02 20:34. 2 comments. 131 reads
 
2 weeks post pm for third degree heart block. I had the settings adjusted so I could actually sleep but now I'm experiencing a light dull ear ache n sore throat on the same side as the PM implant. It comes and goes and is not that painful. Any information will be greatly appreciated.


Posted by lscarberry on 2014-04-02 20:10. 6 comments. 161 reads
 
I have a Boston Scientific pacemaker/ICD and I think I got zapped the other night in my sleep.... felt like a big thud in my chest. Has anyone had this happen to them?


Posted by kidsmemaw on 2014-04-02 19:16. 8 comments. 192 reads
 
I am new to this group just had my pacemaker put in Feb 17 now I am having shortness of breath and my legs are swelling a lot I take an 80 mg water pill every day and it does not seem to help question is this a normal part of recovery or something I should be worried about Thanks for any help

Posted by TraceyE on 2014-04-02 10:33. 15 comments. 228 reads
 
I've been thinking about how to commemorate 20 years of pacing and finally came up with something good! I was leaning toward a paintball party or maybe the new zipline course I heard about but I signed up for my very first 5K. I really hate running. I do it every day but it's a struggle, so this will be a good challenge for me. One of my kids is doing it with me and my gym has a huge team, which means it'll be a fun party. And we get cute shirts.



Member Login
email:

password:



Who's Online?
We have 141 visitors online.

Members online:
  jimb
  Dizzytiltingwoozy
  Shell
  Tattoo Man
  kmom

You're Wired When...
A thirty-day guarantee is not good enough.

Member Quotes
Thank you technology! My life is much improved.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.