Posted by sue uk on 2012-05-10 07:37. 3 comments. 78 reads
I have had my PM for over 12mths & it is doing what it needed to do (stops my slow HR) l also am in constant Afib have a metal valve & have had a couple of TIA's & am on warfarin.
l am going to see my GP next week about travelling, l would love to fly to S Africa later in the year but l am not sure about the journey with my health issues. l would love to hear what your thoughts are on this,are there any problems???
When l asked my cardio last time he said lets see what happens with the latest tests (which l presume were ok).
l still get tired (not as bad as before PM) & struggle with more than one flight of stairs or walking up hill but could walk on level ground pretty much all day l think (with some comfy footwear :) )
Posted by pmgirl on 2012-05-10 00:49. 1 comments. 42 reads
Hi Everyone,
I'm a 29 year old female with SSS and recently decided to apply for income protection as my husband and I will be looking to purchase our first home soon.
I've just heard back from my financial planner who has said that none of the insurance companies will cover me because of my SSS. I live in Australia and was just wondering if anyone has been successful in getting income protection..in Australia or anywhere else?
Thanks!
Posted by MSM on 2012-05-09 23:49. 5 comments. 115 reads
Has anyone else out there had trouble with heart medication? I had an upgraded pacemaker with three leads and defibulator. They talked like I really had to take the medications, but they made me feel so bad that I couldn’t stand to take them. I tried three kinds. The last one that he gave me has nitroglycerin in it. I seem to only last two days before I give up. I feel so weak that I can hardly stand up to get to the bathroom.
They found CHF in the left side of my heart with a 24% output. They hit my lung putting in the pacemaker. It has been a hard road. It has been 6 weeks and just now feeling that I might ...
Posted by DOEBI on 2012-05-09 22:56. 7 comments. 101 reads
I am a new member as of day one and I am bordering on computer illiteracy plus being very old. And chatting (or is it chattering?) will be a new experience at least online here.
My children would laugh at this last remark knowing their mother is a well known talkative woman all too well.
I apologize for my typing, all I can manage. I may try to improve, however.
Posted by Gemma_Connolly on 2012-05-09 16:05. 2 comments. 89 reads
Hi all,
Hope my mail finds you well. I've just found the pacemaker club online. Fantastic!
I had my pacemaker fitted 1 week ago, it was quite a shock, as I was generally fit and healthy, and youngish!
The operation found complications and unfortunately I received a punctured lung. On the plus side, I'm on the mend and looking forward to living a happy and long life, with a much healthier heart.
I hope you can help, I just have a few questions...
I've always been a keen squash player, is it just in the short term that the health professionals say not to play impact sports, or is that for the long term?
Also, Im in the uk and need to advise my DVLA that I now have a pacema...
Posted by DOEBI on 2012-05-09 14:52. 0 comments. 28 reads
I was born more recently, in 1923.This club looks to be very interesting,
Posted by Jennheart on 2012-05-09 13:06. 6 comments. 101 reads
Hello Everyone!
I am 24 years old, and on my 5th pacemaker. I had a pacemaker since I was one month old. I ALWAYS had a SINGLE CHAMBER! It use to be in stomach until the age of 6. At 6 years old my pacemaker was implanted under my left arm, behind the breast muscle. This is my 2nd pacemaker that has been in that same location. I am replacing my 5th pacemaker soon and i need advice about relocating it below my collar bone? I am small for my age, I am 4'10'' and i weight about 85lbs, i am also skinny. I am worried that if i move my pacemaker there, it will possibly stick out? I don't mind scars at all, i just don't know if I'm comfortable with the pacer sticking out. The doctor showed me a pacemaker and they are a lot smaller toda...
Posted by Angelie on 2012-05-09 12:38. 3 comments. 87 reads
April 2008, I went in for an ablation and my right phrenic nerve was cinged and left my right diaphragm paralyzed. Since then, I've been through 6 more ablation procedures, countless drug trials, 4 pacemaker surgeries, and numerous other hospitalizations. What a long strange trip the past 4 years have been!
Today I'm celebrating my birthday. Glad to be alive, and able to breathe unassisted. My pacemaker life isn't perfect, but I'm thankful for the technology since I'm 100% paced. I remember the many days I felt like an old lady trapped in a young body. Those of us with chronic health problems know the true value of those days where we feel alright, because we know what those days felt like when we felt poorly. I try not to take ...
Posted by searchingwoman on 2012-05-08 20:46. 3 comments. 95 reads
I am searching for my former pacemakers friends Gellia 2 and pacergirl...are they still here?
Posted by Janey L on 2012-05-08 15:45. 3 comments. 83 reads
Hi all
I saw the Prof this morning.The echo was fine but he said it is not very specific for myocarditis, it is more to check for heart failure & dilated cardiomyopathy etc which are complications of myocarditis. He said a MRI is much more specific as it shows the muscle inflammation but with my PM, even though it is MRI compatible, neither he or I want to chance doing the MRI yet!!
He is referring me to another Prof, who actually is one who works closely with my EP. This other Prof specialises in myocarditis & heart muscle problems & is in fact testing our Olympic athletes (which I knew). He is another expert in his field (just like my EP being an expert on arrythmias & the Prof I saw today being a World renowned expert s...
Posted by DANCER on 2012-05-08 15:00. 3 comments. 71 reads
hi all. my first posting, hope you can help me. i had my pm fitted on the 13th of april 2012. 2wk stay in hospital as my right side lung was accidently punctured. 2 days after discharge had to see g.p. for antibiotics as i had infection in the broncial tubes.( just finished them. ) i still have pain in the pm site and it feels swollen and also in my side were the tube was placed. my right arm movement is very difficult when i try to lift my arm say , to wash my face, the pm seams to be in the way if i place my arm across my chest, is this normal at this stage ?? almost 4 wks on ?? any one had this problem with the lung ? do i need to wait a while longer due the lung being punctured?? i only see the consultant on 30th july 12. thanks
Posted by shari51 on 2012-05-08 08:38. 2 comments. 74 reads
Yesterday I went to my Internalist and was told my CHF was at the high range point. Increased my Lasix to 80 mg in the morning and 40 mg in afternoon.Also my blood pressure was high and I was having chest pains. Was just wondering if anyone else with a pace maker has had this problem. I have felt so much better since getting my dual pacemaker up until now, I teach school and have 2 weeks left before summer break, but am beginning to wonder if I am going to make it until then. The Dr did mention that if by increasing the Lasix and that still did not remove all the fluid the I would have to be put in the hospital, that I do NOT want.
Thanks,
Shari
Posted by Janey L on 2012-05-07 16:25. 3 comments. 78 reads
Hi all
Seeing the Cardiology Prof tomorrow for the results of my echo scan last week. I am still very breathless on exertion & exhausted beyond belief all the time. Chest pain is intermittent. Occasional palpitations. Diagnosed with recurrance of myocarditis a month ago. I still feel quite rough & have no energy to do anything much. Still off sick from work.
Been looking into the possibility of taking early retirement from work. I work for the NHS (UK) & been there 32 years. I can retire from 50 (as I'm still on the old scheme pension). I'm 50 in August. Spoken to the pensions agency & they are sending me an estimate but that will take 6-8 weeks. Then I have to give 4 months notice if I do decide to go ahead.
Jus...
Posted by oldhippie on 2012-05-07 16:21. 0 comments. 28 reads
Anyone using a MagicJack and LATITUDE Communicator (Boston Scientific)?
Pro's?
Con's?
Posted by lexi66 on 2012-05-07 15:24. 6 comments. 99 reads
Does maderma really work?
Ive been using it on and off for a while and it hasn't really done anything except, dry the skin out and make it itch a lot and then oddly peel.
Any other suggestions for a raised and very irritated and sensitive pink scar.
Lexi
Posted by Ehoover105catchie on 2012-05-06 13:44. 10 comments. 210 reads
I am 76 yrs old and was told after a bettery of tests that I needed a pacemaker for slow heart beat.One was inserted on April1st with no problems.The problems started after a week when I started having anxiety problems and didnt want to eat or sleep at night.Ive always been a worrier and cannot get these symptons to go away.I am currently in counseling and am on adivant but it make me sleeping all the time and I stil dontw ant to do anything,Ive spoken with my private dr and he says they will go away I just havent adjusted yet.Its been 57 days and while the adivant helps it doesnt make me feel like me.Can anyone give me some ideas on what to do I feel like Im going crazy living this way.Ive considered removing the pacemaker but am afraid...
Posted by Jax on 2012-05-06 12:45. 6 comments. 162 reads
I am on this med 50 mg twice a day.
Is anyone the the medication and what doses are you taking.
I have one dr that wants to increase it and one that wants to keep it the same.
Posted by MonteCristo on 2012-05-05 22:02. 8 comments. 142 reads
Hi,
I am scheduled for my 3rd pacemaker change in 3 years on Tuesday. I was originally implanted with a Medtronic Versa in 2009 for an ablation that didn't go too well and I wound up with complete heart block. After a year of fighting with the doctors and techs I was finally able to continue training as a high level cyclist. After speaking with the doctor and telling him I was having some small problems he suggested that a Biotronik Evia would suit me better. I went in for the change in March 2011. Since then I have had a lot of problems with this pm and have not been able to go walking, let alone cycling. I have been to a quite a few doctors and many techs and engineers.
Right now it seems one of the problems...
Posted by Mongee on 2012-05-04 22:52. 6 comments. 130 reads
Does anyone know if you can buy a strapless bra without underwire? All the ones I have seen, seem to have wire in them. I know that can't be to good for my ICD. Compared to other question on this site, my concern is small, but I thought if anyone could help, it would be you guys. Thanks
Mongee
Posted by Jax on 2012-05-03 16:14. 10 comments. 147 reads
Is anyone on coumadin or pradaxa. Any problems.