St. Jude Medical Pacemakers & ICDs

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Posted by kidsmemaw on 2014-04-02 19:16. 8 comments. 192 reads
 
I am new to this group just had my pacemaker put in Feb 17 now I am having shortness of breath and my legs are swelling a lot I take an 80 mg water pill every day and it does not seem to help question is this a normal part of recovery or something I should be worried about Thanks for any help

Posted by TraceyE on 2014-04-02 10:33. 15 comments. 228 reads
 
I've been thinking about how to commemorate 20 years of pacing and finally came up with something good! I was leaning toward a paintball party or maybe the new zipline course I heard about but I signed up for my very first 5K. I really hate running. I do it every day but it's a struggle, so this will be a good challenge for me. One of my kids is doing it with me and my gym has a huge team, which means it'll be a fun party. And we get cute shirts.

Posted by Bree_Logan on 2014-04-02 07:56. 3 comments. 130 reads
 
Hi everyone!

I currently don't have a pacemaker, however I have SVT.
I was taking medication which has caused my heart rate to lower to much and is causing more complications. And is very painful!!
It seems every doctor/specialist/surgeon says that a pacemaker can be fitted to help with the condition yet no one seems to want to put one in.
Just wondering if any of you have/ had SVT and know if pacemakers are used to fix it?
I wouldn't mind if I was to got one, I just want something done to help me!

Thank you, :)


Posted by johnedward on 2014-04-01 23:15. 6 comments. 105 reads
 
Hi,
I have just discovered this site and look forward to reading and taking part when I can.

Cheers,

John.

Posted by SofiaBombieri on 2014-04-01 07:00. 7 comments. 164 reads
 

Dear parents!

I am now 24 and have had a pacemaker from age 2. I was born with complete heart block and my heart rate eventually decreased to around 17 beats per minute.

I am completely healthy now, but my mum recently told me how terrifying it was for her to find out the diagnosis.

Please feel free to contact me via PVT MSG if you want to set up a call or if you have any questions about what its like to actually grow up with a pacemaker (its awesome - you get out of things when you realllly want an excuse, but can actually do absolutely everything. I’m training to run a half marathon)

 



Posted by Grateful Heart on 2014-03-31 16:09. 3 comments. 94 reads
 
This one was called R.I.P.P.E.D. A little different than Body Combat and I was able to keep up. It involves cardio, endurance and strength. The upper body portion includes pushups and dumbbells, 5 lbs. each. I was able to do it all without stopping or modifying anything for the upper body.

I did need to modify the lower body movements...constant moving but no jumping for me. My new, year old hip was so strong! My old, arthritic hip and lower back survived the first class so we (my friend and I) went again 2 nights later.

My HR monitor recorded 240 for the high limit at the end of the class but it doesn't record how long at that rate. Couldn't have been long because my defib did not fire. Some sort of adjustm...


Posted by jillybird on 2014-03-31 14:30. 2 comments. 85 reads
 
Can anyone recommend a good cardio/EP in the Seattle/Tacoma area? I am trying to get into the UW EP lab but have no knowledge of who is considered the best in the region for my type of issues - no conditions found in echos, EKG's, Holter, but still have vasovagal syncope + low BP. Any recommendations would be welcome!! Thanks!

Posted by bluebowtye on 2014-03-31 12:05. 6 comments. 149 reads
 
Hey Everyone,

I can't believe it has been 6 weeks today since I got my PM. My how time flies! I am doing a lot better. I am finally starting to feel like I was before. My biggest issue is trying to get back in shape. I have been walking about 2 miles most days and one day last week I rode my exercise bike for about 20 minutes and on Saturday went for about an hour and half hike at a little park close to my house. That felt really good. I am hoping this week to start lifting some light weights. I need to get off the 8 - 10 pounds I put on while recovering. I occasionally have a little discomfort and weird feelings around the PM site, and sometimes feel a little pulling on my incision but it is much better than it was. <...


Posted by Bas on 2014-03-31 05:59. 2 comments. 108 reads
 
I had a RF Ablation last November! All went well although I experienced a few what I call "tremors" since then. I had a check up recently with the cardiologist and Pacemaker Technician. The result was an episode of Pacemaker-Mediated Tachycardia...has anyone else heard of this or experienced it?

Posted by 2219kg on 2014-03-30 22:32. 8 comments. 216 reads
 
My CONGENITAL 3rd degree heart block was diagnosed at 3 weeks old. Until the last year (I am almost 32) I have lived a completely normal life with no major symptoms or complications. Over the past year and a half I have started feeling exhausted, have had headaches and an overall, general "icky" feeling every once in a while. I have finally decided to get a pacemaker on 4/25. My Dr. has told me with my condition, I'll only need one lead and those with the same condition PREFER one lead. That being said, people who have my same condition, would you agree?

Posted by jillybird on 2014-03-30 22:11. 6 comments. 203 reads
 
Hello all, I've been lurking on and off but decided to register as I'd love to have some support and bounce ideas off others who can relate to me! Here is my story - I don't have a pacemaker as of now but feel like things are heading in that direction. I am 36 years old, married mom of 3, and have always been active and healthy. I have had a tendency to pass out here and there, and low-normal blood pressure all my life. The passing out could almost always be tied to a trigger - blood draw, stomach flu, etc. But I had a really bad episode in 2009 where I fainted repeatedly, and even in the ER they were trying to discharge me when it happened again and my HR dropped extremely low so they scrambled to get it up then admitted me for a cou...


Posted by Lady Kate on 2014-03-30 14:39. 4 comments. 138 reads
 
I have a complicated history as can be read in my bio. I have had a pacemaker for 10 years and since my epicardial pacemaker have had no problems until it was changed over a year ago.
My EP said he hadn"t replaced many in the abdomen, which was to me very clear afterwards when I found it to be so close to my ribs that every time I bend it clicks on my ribs. He didn't really have an answer other than trying to move it myself.
(My first was done by a cardiac surgeon)

Anyway... 2 weeks ago I developed a bruise around the site.so thinking maybe it had moved closer to my ribs I thought I should have it checked, waited for the appointment, saw the nurse tech, she told me I have no padding there, if I was fatter it wouldn't...


Posted by billylittle on 2014-03-30 11:07. 2 comments. 192 reads
 
I started passing out in 2010. On 9/11/12 i got fired from my job because I could no longer perform. I applied for disability in 3/12. In 4/12 I was on my third ablation and they burnt so much heart material that I am totally dependent on a pacemaker at this point. To make a long story short, after all these surgeries I am in worse shape than I was before the pacemaker. I have lost everything I own and according to social security if you have a pacemaker it will fix all of your problems, ( wrong ). I have been before a judge and was still denied. I know two people that claim they have back problems that have disability, and one works on a farm full time and draws disability. The point I am trying to make here is disability people think if ...


Posted by Marie12 on 2014-03-30 10:45. 2 comments. 96 reads
 
Recently had an ICD check up. Only my second since implant. There was an "episode" where my heart rate went up to 170 for 30 seconds. No shock or therapy, the ICD just monitored. I never felt a thing. My resting heart rate is usually 65 and only goes beyond 100 during very strenuous exercise. Never beyond 115.

Finding this out has been a mixed bag of feelings. Amazing that they can tell me the exact day and time of the event which was only two weeks ago so I know what I was doing that day. A little disturbing that there was an event at all but again, amazing that I had something in me that could take care of things if necessary.

So in summary, not happy an event occurred, happy the ICD was there to detect it and...


Posted by mytrose43 on 2014-03-29 23:39. 2 comments. 135 reads
 
just wondering last night about 8pm while sitting doing nothing i got what felt like a shock in my chest area and in the general area of the PM i checked my pulse and blood pressure pulse was about 125 and bp was 143/88 which is not so bad,But through out the night i could feel my heart was beating iradictly(spell?) and still fast so i assumed it was a bout with afib however never feeling thisk shock thing before I decided to call my Dr and they got me right in thank god for small towns lol anyway a PM rep was there and checked it out for me and i was right i was in afib but apparently had been most of the day but at about 8pm my heart rate went way up so while i was talking with the Dr he came back in and said he wanted to check one more ...


Posted by donr on 2014-03-29 23:39. 2 comments. 88 reads
 
This is an open letter to EVERYONE!

I've seen several members using their e-mail address as a screen name.

VERY BAD PRACTICE! Nasty people troll these kind of web sites to find just such screen names & addresses out in the open.

What they do with them is anyone's guess - but you can safely bet that it is NOT anything that the owner appreciates after the fact.

Strongly suggest that if you are among these folks that you go into the admin section & edit it to delete your address.

Donr (Moderator)

Posted by ksig on 2014-03-29 16:24. 8 comments. 251 reads
 
I had an interesting experience last weekend and want to know how the mechanics of my pacer handles such an event.
Here goes: I went to hear/see the Blue Man Group on Saturday. They played in a Civic Theater which seats about 1200 and is normally used for plays, musicals and ballet. I was seated in the 20th from the stage, dead center. There were many large to huge speakers rigged around the stage. The act opens to a very low bass sound that swelled to a roaring rumble that vibrated my chair, me, my chest, my hair, etc and I began to feel bad. I felt like my pacer was in a different rhythm. Once the loud sound subsided, I was fine again. This was repeated many times during the course of the concert/show. If I sat forward, t...


Posted by lizzie on 2014-03-29 11:35. 5 comments. 166 reads
 
Hi can anyone advise if there is a UK based site that provides nice gold pendants for pacemaker patients. im going abroad and would feel safer wearing a pendant than relying on someone finding my id card if i was incapable of telling them any info.


Posted by nomof2 on 2014-03-29 11:23. 2 comments. 73 reads
 
First post, but have been getting quite an education here since my emergency pacemaker installation 11/7/13. I just wanted to thank everyone for the information and giggles during my recovery.

Now, for my question. I'm wondering if anyone has had aortic valve replacement AFTER having a pacemaker. There is plenty of info about getting a pm after valve replacement, but nothing about the situation I find myself in now. I found out I had a bicuspid aortic valve 6 years ago when I was 39. Although my stenosis is still moderate, I'd like to be better prepared for the valve replacement than I was for the pm.

Thanks in advance for any help.

Posted by Sylvia1 on 2014-03-29 10:12. 0 comments. 35 reads
 
Do shocks from ICD's cause any damage at all to the heart if you had them often?



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