St. Jude Medical Pacemakers & ICDs

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Posted by 2219kg on 2014-03-30 22:32. 8 comments. 220 reads
 
My CONGENITAL 3rd degree heart block was diagnosed at 3 weeks old. Until the last year (I am almost 32) I have lived a completely normal life with no major symptoms or complications. Over the past year and a half I have started feeling exhausted, have had headaches and an overall, general "icky" feeling every once in a while. I have finally decided to get a pacemaker on 4/25. My Dr. has told me with my condition, I'll only need one lead and those with the same condition PREFER one lead. That being said, people who have my same condition, would you agree?

Posted by jillybird on 2014-03-30 22:11. 6 comments. 205 reads
 
Hello all, I've been lurking on and off but decided to register as I'd love to have some support and bounce ideas off others who can relate to me! Here is my story - I don't have a pacemaker as of now but feel like things are heading in that direction. I am 36 years old, married mom of 3, and have always been active and healthy. I have had a tendency to pass out here and there, and low-normal blood pressure all my life. The passing out could almost always be tied to a trigger - blood draw, stomach flu, etc. But I had a really bad episode in 2009 where I fainted repeatedly, and even in the ER they were trying to discharge me when it happened again and my HR dropped extremely low so they scrambled to get it up then admitted me for a cou...


Posted by Lady Kate on 2014-03-30 14:39. 4 comments. 139 reads
 
I have a complicated history as can be read in my bio. I have had a pacemaker for 10 years and since my epicardial pacemaker have had no problems until it was changed over a year ago.
My EP said he hadn"t replaced many in the abdomen, which was to me very clear afterwards when I found it to be so close to my ribs that every time I bend it clicks on my ribs. He didn't really have an answer other than trying to move it myself.
(My first was done by a cardiac surgeon)

Anyway... 2 weeks ago I developed a bruise around the site.so thinking maybe it had moved closer to my ribs I thought I should have it checked, waited for the appointment, saw the nurse tech, she told me I have no padding there, if I was fatter it wouldn't...


Posted by billylittle on 2014-03-30 11:07. 2 comments. 195 reads
 
I started passing out in 2010. On 9/11/12 i got fired from my job because I could no longer perform. I applied for disability in 3/12. In 4/12 I was on my third ablation and they burnt so much heart material that I am totally dependent on a pacemaker at this point. To make a long story short, after all these surgeries I am in worse shape than I was before the pacemaker. I have lost everything I own and according to social security if you have a pacemaker it will fix all of your problems, ( wrong ). I have been before a judge and was still denied. I know two people that claim they have back problems that have disability, and one works on a farm full time and draws disability. The point I am trying to make here is disability people think if ...


Posted by Marie12 on 2014-03-30 10:45. 2 comments. 100 reads
 
Recently had an ICD check up. Only my second since implant. There was an "episode" where my heart rate went up to 170 for 30 seconds. No shock or therapy, the ICD just monitored. I never felt a thing. My resting heart rate is usually 65 and only goes beyond 100 during very strenuous exercise. Never beyond 115.

Finding this out has been a mixed bag of feelings. Amazing that they can tell me the exact day and time of the event which was only two weeks ago so I know what I was doing that day. A little disturbing that there was an event at all but again, amazing that I had something in me that could take care of things if necessary.

So in summary, not happy an event occurred, happy the ICD was there to detect it and...


Posted by mytrose43 on 2014-03-29 23:39. 2 comments. 136 reads
 
just wondering last night about 8pm while sitting doing nothing i got what felt like a shock in my chest area and in the general area of the PM i checked my pulse and blood pressure pulse was about 125 and bp was 143/88 which is not so bad,But through out the night i could feel my heart was beating iradictly(spell?) and still fast so i assumed it was a bout with afib however never feeling thisk shock thing before I decided to call my Dr and they got me right in thank god for small towns lol anyway a PM rep was there and checked it out for me and i was right i was in afib but apparently had been most of the day but at about 8pm my heart rate went way up so while i was talking with the Dr he came back in and said he wanted to check one more ...


Posted by donr on 2014-03-29 23:39. 2 comments. 91 reads
 
This is an open letter to EVERYONE!

I've seen several members using their e-mail address as a screen name.

VERY BAD PRACTICE! Nasty people troll these kind of web sites to find just such screen names & addresses out in the open.

What they do with them is anyone's guess - but you can safely bet that it is NOT anything that the owner appreciates after the fact.

Strongly suggest that if you are among these folks that you go into the admin section & edit it to delete your address.

Donr (Moderator)

Posted by ksig on 2014-03-29 16:24. 8 comments. 254 reads
 
I had an interesting experience last weekend and want to know how the mechanics of my pacer handles such an event.
Here goes: I went to hear/see the Blue Man Group on Saturday. They played in a Civic Theater which seats about 1200 and is normally used for plays, musicals and ballet. I was seated in the 20th from the stage, dead center. There were many large to huge speakers rigged around the stage. The act opens to a very low bass sound that swelled to a roaring rumble that vibrated my chair, me, my chest, my hair, etc and I began to feel bad. I felt like my pacer was in a different rhythm. Once the loud sound subsided, I was fine again. This was repeated many times during the course of the concert/show. If I sat forward, t...


Posted by lizzie on 2014-03-29 11:35. 5 comments. 170 reads
 
Hi can anyone advise if there is a UK based site that provides nice gold pendants for pacemaker patients. im going abroad and would feel safer wearing a pendant than relying on someone finding my id card if i was incapable of telling them any info.


Posted by nomof2 on 2014-03-29 11:23. 2 comments. 75 reads
 
First post, but have been getting quite an education here since my emergency pacemaker installation 11/7/13. I just wanted to thank everyone for the information and giggles during my recovery.

Now, for my question. I'm wondering if anyone has had aortic valve replacement AFTER having a pacemaker. There is plenty of info about getting a pm after valve replacement, but nothing about the situation I find myself in now. I found out I had a bicuspid aortic valve 6 years ago when I was 39. Although my stenosis is still moderate, I'd like to be better prepared for the valve replacement than I was for the pm.

Thanks in advance for any help.

Posted by Sylvia1 on 2014-03-29 10:12. 0 comments. 39 reads
 
Do shocks from ICD's cause any damage at all to the heart if you had them often?

Posted by IAN MC on 2014-03-29 08:47. 9 comments. 276 reads
 
For some time I've noticed that women are different to men - you have a look next time you are in a shopping mall or a hospital or on a plane.

I've spotted that women are a different shape, they get more emotional and tend to be more bossy than men.

..but, it seems that there are other differences :-

A new study has shown that exercise affects womens' heart rates differently to those of men . The director of stress testing at the Mayo Clinic reviewed 25,000 stress tests and saw a significant difference between the sexes.

Because of these differences they have come up with a new formula :-

The maximum heart rate for women aged 40 to 89 should be 200 minus 67 % of their age; for men it s...


Posted by Sylvia1 on 2014-03-29 08:32. 1 comments. 71 reads
 
I am to have 3 teeth removed next week - the dentist at the hospital has said I will have an anti-coagulant injection after teeth taken out.My INR is at present 2.4 and they will do INR test at hospital before have work done.Has anybody had this injection and where do they inject you?Does it alter INR reading much?Any comments appreciated.tks


Posted by Hudmon3 on 2014-03-29 04:37. 7 comments. 137 reads
 
Hello all!
I just had a pm implanted a couple days ago in hopes of managing my a fib. I am learning the ins and outs of living with a pm. I do have a couple questions that I think a woman living with a pm can answer better than my cardiologist at the moment. I am a large breasted woman and I am worried about lingering pain after everything has healed will I be able to still wear a bra comfortably or while that cause undue pressure on my pm? Also I love to sleep on my stomach, the next six weeks are going to be really hard for me. However what worries me is that my breasts will pull and place extra pressure if I sleep on my stomach, anyone care to let me know their experiences? I am hoping you all might be able to answer these for me.

Posted by Carolyn65 on 2014-03-29 02:36. 4 comments. 130 reads
 
Does anyone know how the following electric lines affect PM?

I am not talking of the electric lines running up/down neighborhoods. I am wondering about the big, tall, broad, steel high voltage towers with the big coils of electric cable running from one to the other across country carrying the Big 'stuff'.

I have a chance to stay at a house indefinitely which has one of these big power lines running overhead. Back in May, 2009, when I joined this PM Club, I think I remember someone saying not to just stand/stay under the huge 'cross country' electrical power lines b/c of the PM.

Before I put some monies into this project, does anyone have any info on this? The power lines run almost over the house itself...


Posted by Carolyn65 on 2014-03-29 01:36. 11 comments. 188 reads
 
I have just signed on to PM Club after many, many months of my absence. So many new people have joined since I last was here. WHAT a Great bunch of people on PM Club ~ ~

For those of who did not know me before, I joined PM Club back in May, 2009 b/c a Heart doctor told me I had A-Fib, had tried meds, shocking my Heart, etc. and He suggested a pacemaker to help my heart remember to 'blip' when it paused for A-Fib! This scared me to death, I had no one to talk to about a PM, so I went online (computer dumb) and found this PM Club. The second I made a 'peep' on this Site, I had sooooo many wonderful members 'come right back at me' with love, advice, education, help of all kinds, people from all over the World who never knew m...


Posted by stump on 2014-03-28 15:26. 6 comments. 103 reads
 
Just got a Merlin for the home and now was told it will not work with my type of home phone service. Told the doctors office about the phone service before picking it up--now I will have to drive 110 miles one way. Looks like as much money they get for all the research the could come up will a better deal

Posted by melbee on 2014-03-28 14:23. 16 comments. 229 reads
 
Hi everyone. I just found out on Tuesday from my Cardiologist that I will probably be getting a Pacemaker. My heart rate has been staying in the 40's and he said a pacemaker is the only thing that will fix this. He is going to run some more test and decide then. I am really nervous and scared, but also relieved that I got a doctor to listen to me and my issues. Need someone who has been through this to say it will be better, I will feel better, and I will be able to live a normal life. I am only 42 and a little freaked out about it. I would love to hear about some positive stories and encouragement. Thanks

Posted by Janey L on 2014-03-27 18:52. 4 comments. 192 reads
 
Hi all
2 years after her symptoms started, my daughter finally saw our GP on Monday about them. She asked me to go with her, which I did. Our GP is lovely, a really good Dr.

She told him about her blackout, now daily palpitations (fast palps), the exhaustion she feels when she gets the palpitations.
At times the palpitations last for hours.

For those on here who don't know me, I have had 3 arrhythmias, 3 ablations & have a PM.

Our GP has arranged for our daughter to have an ECG and a week long Holter monitor, plus lots of blood tests. Once he has got all the results back, he will decide what the next step is.

I told him I had discussed both my son & daughter with my EP last year & that ...


Posted by kmom on 2014-03-27 16:55. 4 comments. 85 reads
 
For all those concerned just wanted to update you on what's going on. Finally heard from dr. office and they have scheduled me an appt. to go over the monitor results next week. I started a new diet that my daughter wanted me to go on (Herbalife) and am feeling somewhat better although right now i'm cursing spring because my allergies have kicked in full swing adding a little insult to injury but I survive!



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