St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in General Posting Forum



Posted by www.thepad.pm on 2014-07-02 11:14. 10 comments. 302 reads
 
Hello everyone,

I just thought I would let people know that I have finally finished my Pacemaker Book!!
It is aimed at people with Pacemakers, using plain English to explain in depth how pacemakers function.

The book is over 100 illustrated pages and also includes an explanation of what happens at your follow up appointments and advice to get more from your appointments.

The book goes on sale in August on Apple Ibooks and the Kindle Version will be out shortly after that.

So if you are interested keep an eye out its called 'Pacemakers Made Easy' by Carl Robinson

Any one who subscribes to the site will receive a 50% discount and advanced sales. You can subscribe at www.thepad.pm a...


Posted by ohiolaura on 2014-07-02 08:02. 7 comments. 144 reads
 
Well, today I am proud to say it is my 2nd anniversary with my 1st Pacer.
I can say that I do not dwell on the fact that I have this small computer in my chest anymore,and can say life is quite good.
For all who are new to this,believe me,you can get thru this,I did,and so can you.
Again,thanks for all the help Ive received over the past 2 years on this journey,esp from Donr,who has been a floatation device for me,keeping me from going under in the beginning!
I had 4 days to wrap my head around the fact that I had a defective electrical system before the actual surgery,and was released from the hospital with only basic info,thus the reason I am so appreciative for this site,and its members.
I am thankful for life,w...


Posted by azviking on 2014-07-01 17:49. 0 comments. 60 reads
 
79 years. PM implanted 8 weeks ago.

Yesterday the doc said I had AFIB for 40 hours, 4 weeks ago. I had walked seven miles, some of it uphill. I do not remember the temperature, but it was warm and dry. Typical for Arizona in early June. I did not notice any abnormal heart action then or the day thereafter.

Is this unusual? AFIB initiated by physical stress?

He prescribed Propafenone and scheduled a stress test next week.



Posted by daisydunn on 2014-07-01 17:32. 1 comments. 144 reads
 
Hello,
I'm knew to the Pacemaker Club. I had a Biotronik ICD (3 wire) device implanted on 5/17/14. I'm 65,, female, but had no indication of heart issues until November 2013. I was diagnosed with severe CHF, LBBB and an ejection factor of 11% and left ventricle cardiomyopathy. I was admitted to hospital to bring edema under control and determine the cause of my heart condition. I underwent a angiogram and no evidence of cardiovascular disease was found. My hospital stay was 7 days before doctor felt it was safe for me to return home. Doctors best guess is the cause of the cardiomyopathy was a virus, but that is not certain because only the left ventricle is dilated. So I'm a mystery case it appears. I got discharged with a Zo...


Posted by jane32 on 2014-07-01 04:34. 3 comments. 163 reads
 
Hi there,

I havn't been feeling great for a couple of weeks so wasn't surprised when my GP said I am in afib, I knew my heart beat was very irregular, he suggested I get in touch with pm clinic and get an appointment with them. They did say one of my leads is not working and they had been keeping a close watch on it. How do others cope with being in afib.

cheers Jane

Posted by Lizzie on 2014-06-30 23:45. 3 comments. 117 reads
 
Hi everyone,
Do any of you have home monitors or the ones that attach to a mobile (cell)phone to tell if you are in Afib or not?
Seen them for sale of Amazon and free in USA. Are they worth the $100 or so $'s I would have to pay?
I think I know when I am in Afib but it would be nice to be sure.
Still having problems re medications clashes.
Rheumatoid arthritis meds do not go well with anti coagulants. At the moment still using Flecanide 50 (pill in pocket) approach another if needed and I take a soluble aspirin in hot water at same time.
Dr's all arguing as what to do re new anticoags or Warfarin or nothing.....yet. Any advice appreciated.
thanks
Lizzie

Posted by @Heartthrob on 2014-06-30 21:14. 2 comments. 78 reads
 
I feel kike the artery on my neck left side is stretching or tight. Noticeable sticking out

Posted by Shell on 2014-06-30 16:08. 2 comments. 89 reads
 
Went for my mammogram today. (my 2nd one) I told the technician I had a pacemaker and she was shocked saying that I'm too young for one (I'm 42) and asked why I had it. Felt like telling her that plenty of people younger than me have one and there's no age requirement but I didn't. At least the left side didn't hurt as much as the right being done. Glad I got it done today too because Wednesday I'm going in for a replacement (new brand and a new lead) so I would have had to wait a little otherwise.

Posted by Texstr on 2014-06-30 15:57. 5 comments. 136 reads
 
I have a St. Jude pacemaker with 2 leads. It is about 4 months old. I could have sworn I just heard it screech sound from it. Not a beep and screech.

Do pacemakers make a noise for an alert? I may be crazy but just checking.

Posted by @Heartthrob on 2014-06-29 08:59. 2 comments. 90 reads
 
Can I wear a Synergy Fit watch now that I have a PM?

Posted by candy9 on 2014-06-28 22:20. 0 comments. 50 reads
 
Thank you for your very informative reply. I am going to take you advice. Again thank you very much. Christine

Posted by candy9 on 2014-06-28 10:34. 1 comments. 125 reads
 
I have been having treatment, but on having compression traction and something I can only describe as horses homes going over my back my blood pressure shot up to over 200 and 111. On visiting him we managed to bring it down to a point that I came home rather than go to the ER. However not happy with results and my pacemaker is aching. Has anyone else experienced anything like this and advice please. My pressure is now 159/96. Thank you

Posted by fishfighter on 2014-06-28 07:05. 2 comments. 136 reads
 
Just checking in. Really no big changes with me other then dealing with the heat. I'm still hanging in there. Had another echo done. Good thing is my EF hasn't gone down any. The bad thing is that I look at things with not much future or plan anything more then a day or two in advance. That in itself is really pushing me deeper into depression. I been taking Zoloft for a few years, but it really not working anymore. I guess I need to call my doctors on this soon. The 4 walls are closing in on me very fast the last two weeks. I did tell my wife, but I guess that flew over her head.

Well, I hope everybody is doing good.
Take care and God Bless,
Paul

Posted by stormynw on 2014-06-28 01:51. 5 comments. 176 reads
 
Soooo six weeks out and the pacemaker is still painful not the incision but the actual pacemaker. :( Comments?

Posted by stormynw on 2014-06-28 01:28. 6 comments. 197 reads
 
Hello Again. I am six weeks to the day post-op and my pacemaker is pacing away. My atria is beating on it's own 100% and the ventricular lead is pacing 91% of the time. However the issue that started this whole journey has not been resolved at all! I am still short of breath every time I climb stairs or when I bend over and sometimes just reading a book out loud to my little granddaughter. I also have a heavy feeling in my chest pretty much all of the time and I am just really tired of it all. I saw my PCP Wed and he is sending me to a cardiologist. While at his office my BP was really high and I usually have pretty good BP so the nurse looked at my chart and said that it had never been that high before so she rechecked it and it was stil...


Posted by jillybird on 2014-06-27 17:38. 7 comments. 228 reads
 
It's been awhile since I posted but I am continuing the journey of trying to get help for my syncope. I had a horrible follow up appointment with an EP today. I won't go into a long rant, but he was so condescending and arrogant, I ended up sobbing right there in the exam room. Even then he didn't change his robotic demeanor. I having been looking forward to this appointment so I could discuss the possibility of having an implantable loop recorder, in order to try and catch a syncopal episode since they are so sporadic and unpredictable. He shut me down right away, and snidely said, (I'm summarizing):

"You have classic vasovagal syncope. I won't consider a loop recorder, it won't do any good. And I won't consider a pacem...


Posted by ltrivone on 2014-06-27 14:26. 5 comments. 166 reads
 
Hi guys,

It's been a long time since I have been on this website but I can really use your advice.

I was told a couple of days ago that I need a knee replacement on my left knee. I have a Medtronic Secura ICD. I plan on going to the Hospital for Special Surgery which is a specialty orthopedic hospital in New York.

I have so many questions. I know the doctor said they are going to use a ring to turn the ICD off during the surgery. Is that ok to do? What will keep my heart pacing? Without it, my pulse can drop to 39 or below.

I live in Staten Island, NY where my cardiologist and EP doctors. The orthopedic doctors in Staten Island are terrible which is why I want to go to the Hospital for Sp...


Posted by Nursejane on 2014-06-27 13:58. 0 comments. 81 reads
 
I have had pacemaker for 30 years. I am new to site and think it is a good resource. I have had 2 bad out comes after the first battery replacement . I did change doctors. I have now had a recent battery replacement and a new lead 2days ago. I see there is better post op instructions and am confident this time I will avoid complications

Posted by Pastel on 2014-06-27 08:47. 3 comments. 201 reads
 
First, may I thank the club and their regular contributors for all the advice and encouragement they offer for people like myself who spend most evenings on the internet reading the latest comments.Thank you all most sincerely.
I had a St.Judes 5826 Zephyr XL DR PM,fitted in October 2010 and after numerous problems everything seems to be working fine.However, I am now consulting a Maxillofacial specialist regarding a restriction in my parotid gland and to my horror, he said he requires a MRI scan before undertaking further treatment. Having read your site so often and remembering that my PM is not a surescan, I said that I could not have one. He said he would make enquiries and that there would be specialists standing by who could tur...


Posted by joy.full.home on 2014-06-27 03:54. 2 comments. 116 reads
 
I know it doesn't really matter, but as I explained before... it does to me. Anyway, I got my diagnosis. SSS with Asystole. In the hospital my pacemaker was "pacing" between 75%-90% of the time. Today it was only 5%!!! He said that except for the fact that my last "pause" was 18 seconds, they may have waited a bit to implant. He also said that with my history I was probably born with it. I have had vasovagal syncope my whole life and he suspects that my body overreacted by adding pauses. So, for me it feels good to understand the details. I'm also thrilled that he gave me the go ahead to get back into Zumba and yoga (without my left arm for a few more weeks).

As far as I'm concerned... today couldn't have gone any better! Thanks...




Member Login
email:

password:



Who's Online?
We have 840 visitors online.

Members online:
  Tattoo Man
  Marinade
  mrsdlp
  mgwatson

You're Wired When...
You play MP3 files on your pacer.

Member Quotes
I am a 58 year old woman, race cars, ski at 13,000+ feet, work out daily, have become a second-degree black-belt in Karate, run a business - no limitations.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.