I wanted to thank everyone who responded to my frantic questions concerning the implantation of my CRT-D under the pectoral muscle. I had this done on May 3 and did very well. With the exception of the doctor saying I had a high tolerance for the sedation, all went well. I am still sore but can work (except the muscle in my neck kill me by EOD). I am hoping next week will improve even more.

For those who have had this done, can you tell me when you were back to 100%.

 

Did you know Iron man is a member of our club? If you see the latest movie "Iron Man 2", there is a line, where Pepper the assistant said "Not everyone runs on Batteries".

At that point, I turned to my wife and said, there are lots of us out here that are running on batteries!

Way to go Iron man!! Cheer up folks, we are in good company!

 

Hello to my new friends.

I am nominating Gretchen and Melissa as my famous members for their quick response to my problem. I was worried that I could not sleep on my stomach or side with a defibrillator and so had put off the implant. I will set it up now that I know it can be done. Thank you so much!

Daniel

 

The Pacemaker Club

A great place to find support and comfort, especially in our darkest hours of difficulties. When the doctor's office is close this place is always open. Just when we think we have been locked in our sufferings, a shine of hope pierces through, giving us hope on something we once knew, good health. May we never forget our place in this wonder family of hearts, "The Pacemaker club."

May all be bless with good health in these upcoming
Holiday Seasons!

I know I speak for everyone when I say,
"We love you Blake for giving us a place to stay!"
THANK YOU FROM ALL OF US! ...

 

I performed a LT test today with a LT of 180bpm and max HR of 185bpm; over year off the bike, two weeks back on the bike, and two months after pacemaker implant! Racing in July. Inspiration to ALL and a big thanks to everyone HERE!!!!

 

to-night is our special dinner for peter nash and debbie. we are havingprime rib and a lovely wine from australia. our son will attend because he knows how special you people are to me. so kind thoughts and words for peter and debbie and their families. we had such good times laughing. your p.m. friend still here. love jessie blessings and good wishes for you and your families

 

Pacer Girls , your favorite hunk is in Africa with Ann Currie of NBC. I don't know if they are sharing the same tent. Naw. Not George cause he's -------y. lol

 

Does anyone have or know someone that has a Phrenic Nerve pacemaker? (the phrenic nerve controls your diaphragm, which is the muscle necessary to breathe)
My doc in Atlanta was telling me about it the other day. It doesn't sound like anything I would want. Just curious to see if there's anyone out there. Probably not, but thought I might as well try.

Angelie

 

Hello Folks,

How you have had a MUGA? I had about 1/3 of one Thursday and would like to know if any of you have had anything like the experience I had.

I got the radioactive substance injection and went to the scanner. They got me all wired up with the 3 leads and she next thing I hear is "something is wrong, I'm getting a heart beat of less than 30 BPM and it must be above 30 to do the scan." Over the next 30 minutes, or so, they replaced the electrode pads, repositioned the pads, sand papered (literally) the spots where the electrodes were to be attached, all to no avail. Finally, one of the nurses said they were going to ask the doctor what they should do now and the next thing I'm told is "the doctor said we ...

 

back in chat. jess

 

We must keep records of everything.

’If somebody has a bad heart, they can plug this jack in at night as they go to bed and it will monitor their heart throughout the night.  And the next morning, when they wake up dead, there’ll be a record’

-Mark S. Fowler, FCC Chairman

 

hi michele susan here havent been on in awlie went to doctor today because my pacemaker has noved causing terriablr pain i have had my pacemaker for almost two years now found another haert doctor love him he said the doctor who put my pacemaker in for synvcope because of passimg out my new doctor ran tests and said that it isnt stoppnig my passing out and because i have been in sevre pain since my implant he thinks and wants me to have it taken out for good because it causing me severe pain and and really isnt helping if threr is anyone out there that had thiers removed for good please write me back would like to know about complications and how you feel now without it i am in so much pain and want it out so i can have relief would rather...

 

I had my pacemaker check at the Geelong Hospital yesterday. They don't implant Ela's in Geelong so they got a technician to come down from Melbourne to the Cardiology Department. He was a really nice guy and knew my Technician in Hobart. He did make some comment about my pacemaker being set low. It is on 50 min - 132 max rate. It was set at this a couple of years ago when I felt a kick in the ribs each time the pacemaker started. If I was sitting down I would have to get up and walk around.

Lately I have been getting a bit puffed if I move quickly or am very active. The cardio put me on a blood pressure tab with some diuretic in it. It has made a bit of difference but I am beginning to feel like a blob again and my fing...

 

wow!! i love the utube video!! great is all i can say! it really touches my pm! hehe (cause it touches my heart) sorry lol

 

Hi, I am Susie I live in Missouri. I have a small farm with horses & chickens, etc... I have had my pacemaker since Dec 18, 2000. I was diagnosed with sick sinus sydrome also known as sudden death syndrome, and tachy-brady syndrome. I wish they would make up their minds. Just wanted to introduce myself. Q

 

Reading an aricle today about the new autobiography by former Guns n' Roses guitarist Slash (called "Slash") in which it mentions that he's been fitted with an ICD. Aparrently his heart stopped for eight minutes which I think was down to substance abuse. I haven't read the book but presumably the episode is covered in some detail. I've never seen his name crop up when well known people with ICD's are mentioned. As a musician myself I would be interested if it's had any impact on his live performances/musical output and his relationship with large sound systems/amplifiers. Suggest he joins the group! Steve

 

Hey! randrews i tried to answer you and the chat room kept. Going away. I am back there now come on by. Or any one else here now. bowlrbob

 

The Hospital for Sick Children cardiology department is having their annual gathering in September 2007. We would love to host a guest speaker who is also a famous (or not-so-famous) pacemaker recipient. We are looking for a sports person or a singer or someone who tends to be inspiring. We usually host a guest speaker, last year it was a magician, illusionist.
We have about 100 children and their families who attend. It is run by the fabulous medical team at HSC.
Is there any way to get in touch with someone who might be interested???
signed
Mechanicalme's mom

 

I'm writing this posting to everyone. I thank you all for being in my life. I know I'm not perfect, but my Lord is. I hope that when you guys read something that I write and you don't agree with it, you'll understand I'm not doing things to hurt anyone. I really enjoy all that I read and continue reading here on this wonderful web site. You've all have been a part of my life for some time and I hope we can continue to help one another get through this stumbling block. Thank you for being who you are and I'm here if you need someone to write to.

I'm really thankful for the fact that I have a pacemaker. If I hadn't, I would not have known you all. Take care and God bless you.

...

 

We stand underneath the same winds and skies that our God has given unto the first man. The very waters that man has been given is still here today. The sun that God has commanded to be will not fail to give us it's shining light. The seasons that never fall out of order continue to show us that God's word is still being obeyed. The stars will stand in their places to guide us in the night. What would we do if God's word were not real. How could we control the wind? How could we change the sky? How could we keep our water from disappearing? How could we hold a flaming ball of fire in its place? How could we keep the seasons coming in there rightful order? How could we keep the stars from running away into the night? HOW COU...