St. Jude Medical Pacemakers & ICDs

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Messages in Support Groups Forum



Posted by michael.stinson on 2015-08-12 01:28. 7 comments. 308 reads
 
Hello group. My wife had her pacemaker implanted on 7/30/15. She is extremely uncomfortable with it and is very emotional about it. She stats that she can feel the pacemaker kick in when it does and gets furious with me and extremely upset when I cant understand what it is feeling like.

I am looking for an actual face to face support group for new pacemaker patients in the Glen Burnie, Md area. Any help would be greatly appreciated.

Mike

Posted by ShirleyJune2015 on 2015-07-18 16:39. 3 comments. 324 reads
 
I can't find a support group in Saint Johns County. My husband is a laryngectomee and we belong to Nu Voice of Daytona Beach. It has helped us a lot but now we need a pacemaker club. Thanks.

Posted by atia on 2015-07-09 11:00. 0 comments. 230 reads
 
Hi,

I'm new and wanted to find out if there are any groups in Northern New Jersey (around Essex County)

Thanks,
Atia

Posted by chip-almost-human on 2015-07-04 18:35. 2 comments. 235 reads
 
anyone ever get zapped and then NOT like being around the loud booming fireworks, because they remind you of being zapped... they make the exact same sound. (almost)

Posted by andyfowler on 2015-04-27 07:35. 4 comments. 422 reads
 
Hi all I was just wondering if anyone knew when the next ICD support meeting is at Wythenshawe. I haven't been to one since iv been running on batteries and was hoping to catch one soon. Iv looked on the web page and cant find it.

Thanks Andy.

Posted by Peppo on 2015-04-26 17:53. 2 comments. 350 reads
 
MRI of lumber spine with 15year old dual lead pacemaker completed without any problems of any kind arising.
Cardiologists London Hospital managed procedure heart ECG monitored during scan,pacemaker re set to pre scan normal settings again without any problems.
CT did not provide detail reqd, ( Rock and the Hardplace)
Thanks members comments re my previous posting.

Posted by LuLu on 2015-04-13 10:23. 5 comments. 442 reads
 
Hello. I'm new to the website and so glad I found it. I wish doctor's would address the emotional side as well as the medical issues. I have a question. While driving over bumpy roads my pacemaker goes into high gear and my heart rate goes up. Does anyone else have this happen to them? Thanks.

Posted by Ellen on 2015-04-02 07:27. 4 comments. 444 reads
 
I have a CRT-Pacemaker with Atrial Fib and CHF which causes trouble breathing with the least bit of exertion. Is there a support group on this website for this. I would love to be able to talk and share stories with others that are affected by this. Thank-you.

Posted by dawnali on 2015-03-03 17:19. 5 comments. 622 reads
 
Hello-

My name is dawnalib. I am 51 and have had a dual chamber pacemaker for two years d/t sick sinus syndrome. I am looking for a support group that invites those who work out and possibly those who have sick sinus syndrome. Any ideas? Thanks!

Posted by claudes on 2015-02-19 20:50. 3 comments. 431 reads
 
Just diagnosed. Irregular pulse, will need PM, decisions next week. Have been in 2 cancer support groups. They were great. Now beginning PM research.

Posted by Janec on 2015-02-02 14:20. 9 comments. 728 reads
 
I'm a 26 year old female. I'm scheduled to have a pacemaker put in on Thursday (2/2/2015) and I have to admit I'm not handling it very well.

The bandage hasn't even come off from when they put in the implantable loop recorder. I passed out the day after they put it in and they said that my heart "paused" for 10 seconds. After that I got a bit dazed and I don't even remember what they said I had. It had atrial in there somewhere I think.

I'm trying to do research so I can go into this knowing as much as I can and so I know what questions to ask but it seems like every time I think about it I get emotional and I start crying and I can't seem to stop. Which is ridiculous, being upset won't help anything and I know that...


Posted by patticake on 2015-01-12 10:45. 5 comments. 1150 reads
 
had mine implanted dec 30, still recuperating, a little sore but much better, hardest thing for me is not to overdue, very active, like to cook and lift heavy lots and pans...looking for a cool nickname for my pacer, any suggestion, want a really funny one...help

Posted by DFM on 2015-01-07 17:41. 4 comments. 517 reads
 
Was suppose to have battery replaced in September but had to post pone due to my mother getting ill. Next thing Im told that my Dr. was going to a new location and I would be receiving a letter to pick a new Dr. Never came so I called and asked what's going on. Had me come in (its now December) and checked out my Battery life. Was told it should have been replaced in October, but not to worry because I pace so little. I was implanted in 2003.Its now January and I meet with the new Dr. on the 20 to discuss the replacement. Should I worry that this battery runs out?

Posted by Lee24 on 2014-12-30 04:13. 12 comments. 814 reads
 
Hi guys I'm Lee I'm 25 years of age. I just had a pacemaker implant June 2014. It has been a stressful procedure as I complicated during the procedure. Then shortly after I had syncope episodes which were ocurring everday. They have stopped now though, I'm tire of all this. And the problems surrounding me are just to much. Sometimes I don't feel like getting out of bed. I feel depressed and sometimes suicidal, I don't know what to do. My heart just feels tired literally I'm really hopeless. Please I need help, I feel overwhelmed

Posted by funone on 2014-12-24 17:34. 0 comments. 378 reads
 
It would seem that the American Heart Association and the American Red Cross would be a very good resource of information
as well being a supporter for any one that has gone thru heart surgery as well getting a pacemaker implant. Let just say this there were no support here in Phoenix, either there was messages left for them with no call backs, or a person is given a different number to call, as still get voice mail, with no call backs.
Spent endless hours truly tying to get the support one needs after having such post traumatic operation - an still no call back.
Thanks for hearing me Vent - BTW: on a personal note don't donate to these charities, for the most of the money goes to the CEOs and not where it should go ...

Posted by FiremanBob on 2014-12-02 16:07. 8 comments. 819 reads
 
I'm 34 year old male Firefighter/Paramedic. I am new to the career. I have dizzy spells about 3 times a year. I have had a whole workup done on me and have been diagnosed with "Neurocardiogenic Syncope." or "Vasovagal Syncope." I am told I need a pacemaker even though I can pass every stress test and the doctors can't find anything wrong with my heart. It is unexplained why I get dizzy or sometimes pass out but due to a positive Tilt Test with a little Nitro my heart stopped for approximately 40 seconds and my friend Atropine helped bring my heartbeat back. I now am faced with telling my job next week and will have a pacemaker put in in three weeks. The cardiologist said I can go back to work full time so prob, no restrictions. My job is a...


Posted by vwkimmy on 2014-11-25 15:14. 3 comments. 482 reads
 
Hi to all,
I have been 100% surgically induced paced since August 1990 and have had 5 pacemakers since with several leads. I mean that I am surely wired for sound. I worry that a wire will come loose and kill me, I have no heart rhythm without my trusty pacemaker! I was born with WPW, has anyone out there had this experience? As far as I know I was one of the only people to have the experimental surgery done who survived. Does anyone have a similar story? Thanks, Kim

Posted by Batteries_icluded on 2014-11-16 22:28. 3 comments. 468 reads
 
Hello clubers! I was just wondering if there are any women here from Womenheart? I hope everyone has a great week!

Posted by KK on 2014-11-09 08:59. 3 comments. 590 reads
 
I have had a loop recorder for the last 12 months, I will be receiving a pacemaker in a few weeks. What is the suggested gown, tshirt, button up, etc. to wear in the hospital?

And the most comfortable tops to wear the first few days?

Posted by laur14 on 2014-11-04 08:13. 8 comments. 1032 reads
 
hi everyone..my husband had a pacemaker inserted in january 2014 and he is on beta blockers for life..
after his pacemaker insertion he has no interest in sex and even if i try he cant even get hard anymore..it has been a yr and there is no sex i read that betablockers do give u decrease sexual drive and erectile dysfunction..he is refusing to tell his doctor about it..
the worse part is i found out now he has been having an affair behind my back and he is having sex with the other lady..i found out that he stops his meds up to 2weeks when he is seeing her and i am assuming he even takes viagra to get it to work with her..he says she means nuthin..i dont knw how to save this relationship or how to save him and help him..




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