Here is a cut and paste from my most recent exchange with Paul. It seems that online donations are not possible. But all if any would greatly be appreciated:


Thank you, I called U.S Bank and they said the person has to go to a branch in order to make a donation. My mom thought you could do it online but I guess not. If someone does not live by one they can send a check written out to the paul beckelhymer foundation to my mom's or to someone who lives by a U.S Bank for them to deposit. My mom lives at; 694 woodthrush drive cincinnati ohio 45244.

Thank you,
Wendy

 

Hi Everyone,

Nearly 5 years ago this website helped me find some answers when my 8 year old daughter passed away suddenly from CPVT. When we actually found the cause of her death 7 months later, we were told that an implantable defibrillator could have saved her life.
With this knowledge and the desire to help others, we created a foundation to help spread the word about CPVT and raise funds to support research. Check us out at SmileWithHannah.com
I wish for good health to all of you.
Glenn Wernke

 

Thanks to all who answered my question about airport security. Since I haven't flown since getting my new "little friend" in my chest, I was a bit apprehensive, but you all have made me more comfortable about facing the big bad TSA people.

California Carolyn

 

THANK YOU; INGA - CAROLYN,G - PATCH - POOKIE - and LENORA - i feel better already just knowing you're out there - and you took the time to share your info - BLESS YOU ALL
'still waiting for dermatologist appt. - web has too much info - ie.
aloe vera/warfarin/bad .... 'won't worry so much now -
............ HAPPY TRAILS
........................................... ruthy9

 

hello out there in cyberland !
can anyone help me with what moisturizing lotion is most warfarin friendly ? how about laundry detergent? bar soap?
'found out i'm now very allergic to soap - 'covered in hives for a year ... 'felt like lice .... good to know it's not, but still unsure about what i can use with warfarin ...
thank you !
...................keep the faith
.................................................ruthy9

 

Feeling any better today? The show was good. We went to see "Girls Night Out." It was funny. I don't drink often at all, if at all (especially on the meds) so watching all the girls get drunk was even funnier!

My doctor called this morning. My blood work came in. My thyroid levels are on the high side of normal! That "might" explain the tach. How great would that be! That would just be a pill adjustment and then off the beta blockers. But he said wait another month and he will test again. But at least I am FINALLY moving in the right direction.

Hope you are feeling a little better. :-)

 

I wanted to allow anyone with a PM to find me on Facebook for questions, just to be a friend, or to send messages to and from. Look me up by email with repwork@gmail.com.....

 

I've just been told I need a PM (see my post in coping forum) and would like someone to touch base with because I've not made a decision yet on what to do.

Thanks for any good ideas any one has.

 

Hello all,

I was wondering how many people out there recieved there pacemakers at a very young age and have lived almost their entire lives with a pacemaker.

Personally I was 10 and a half months old when I recieved my first pacemaker and the only people I really know that have pacemakers other than myself are much older or very new to having an implanted pacemaker.

Just wondering maybe there are some interesting stories out there that other people would enjoy reading about.

Love the site, cant believe I just found out that there is a site out there like this.

 

I was diagnosed with Idiopathic Cardiomyopathy in December of 1996. But doctors stabilized me with medication, found my arteries were clear, and cardioverted me back to a normal heart rythym.
For 9 years I was in generally good health, walking regularly and feeling good mentally and physically, with only occasional dips into atrial fibrillation.Cardioversion always brought be back out.

But four years ago, I slipped into atial fib and cardioversion no longer worked. Since then, I've gone slowly downhill. I was recently hospitalized and doctors discovered my 24 hour heart rates ranging from a low of 25 to a high of 190. I am 68.

After retesting, a doctor at the Heart Institute here said i didn't need a pace...

 

Hi everyone,
Just checking in! Celebrating my 7th consecutive day of sanity since the pm was implanted!

I got an iPhone and downloaded some excellent relaxation applications that do an amazing job. I highly recommend it for anyone who needs a moment of calm from time to time.

I start therapy on Thursday....looking forward to it. My husband also switched around a lot of his police tours so he is home more when I am. Every little bit helps! :-)

Thanks again to everyone who is cheering me on! It's so great to have friends here that truly understand!

xoxoxoxoxox

 

Are there any support groups in Alaska?

 

Hi All,

Iam 28 from india(kerala). HAd a pacemaker implanted in may 2009.I have few questions can we go through a anti theft system. Iam happy I found a website where people are caring and get answers for all questions.

Hope Everyone are fine
kannan

 

Greetings to all.
Certainly there is a lot to be thankfull for this thanksgiving weekend,and if I may be so forward ,that goes for many of us pacemaker /defib or shall we say peacemaker wearers.
To come to the point I had a St Judes latest model implanted 4 weeks ago.All went very well no problems
The reason my effusion ratio I guess they call it is 25,had a bypass and mitral valve done 15 years ago.
Than out of nowhere had a cardiac arrest 3 m ago however they revived me so to say .All my faculties are intact a smile is due here.
To not have another episode my doc said an pacemaker /defib is the way to go.
So now with a 3.125 x 2 a day coreq here I go.
.I am an anxious person by nature also very curiou...

 

Anybody here from Idaho, Nevada, or Utah? Or know of any support groups... or camps for kids with pacemakers.

 

If there is anyone out there wanting to help me start a support group in this area, please email me at mustangblue2@yahoo.com, directly because I dont check this site every day as I do my email. I would love to start a support group and help others that will or may have walked in our shoes.

Patty

 

Is there anyone here in the New Jersey/New York area?

 

HELLO TO ALL,

I REALLY NEED TO GET A ANSWER TO THIS. I HAVE HAD A PACEMAKER SINCE SEPTEMBER 03, THE FIRST ONE WAS PLACED IN MY LEFT BREAST......

ANYWHO'S AFTER I HAD MY FIRST PACEMAKER PUT IN I STARTED TO NOTICE THAT AT TIMES MY BOOB WOULD VRIBRATE IT SEAMED.

WHEN THEY DONE THE FIRST PACEMAKER SURGEY THEY WERE NOT ABLE TO GET BOTH LEAD TO WORK RIGHT, BECAUSE OF THE OPEN HEART SURGEY I HAD WHEN I WAS A BABY (AS I HAVE BEEN TOLD) SO I ONLY HAD THE ONE LEAD THAT WORKED...

SO I'M NOW WORKING ON MY THIRD PACEMAKER. SINCE 03 THEY HAVE MOVED IT UNDER MY CLONERBONE. I STILL GET THE (VIBRATING) IT IS TO THE PIONT WERE YOU CAN LOOK DOWN AT WATCH IT JUMP, THEN IT WILL STOP, THEN START RIGHT BACK UP. AND ...

 

Come join a new heart group on Windows live at HeartSmartAdvice@groups.live.com
We have been around for a while and want to grow our membership.
Real nice group owner and friendly people. We sure would like to see you there!
JimB

 

There will be a support group for women with heart disease starting in Lower Westchester County, Ny at the end of October. It is sponsored by the National Coalition for Women with Heart Disease. Please let me know if you have any interest in attending.