St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Support Groups Forum



Posted by mehriar66 on 2014-03-11 01:05. 7 comments. 416 reads
 

Hello
My mother living in Iran and she had heart surgery .she has peacemaker in her chest.every 6 month she have to go to hospital for charge the battery.last week her doctor told her "pacemaker’s battery is not working and she has to find another battery but because of Economic sanctions against Iran she could not find good battery in iran.I want to buy a battery for her from Canada or USA and send it to her.I am Canadian Citizen.I am living in Vancouver.I don’t know how and where I can buy it.could you please give me some information about good battery and where I can buy it.  Please contact me via a Private Message
Best regards
Mehriar



Posted by 3030wyatt on 2014-03-10 20:55. 5 comments. 273 reads
 
i just got my pacemaker last week and have been told i can't
work on a running engine.my hobby is restoring old cars and i
would like to continue doing this.does anyone know how i can
get around the this problem and still work on my car



Posted by JuneBug on 2014-02-17 20:43. 8 comments. 691 reads
 
I have had my PM for 3 & 1/2 weeks now, Still have about 3 more weeks to go before I can raise my left arm above my head, So I have a nurse's aide coming in helping me with my shower & washing my hair. I am doing everything I have been told to do so the leads wont come loose.
I am only able to sleep on my right side, the Medtronic guy told me last week it could take a year before I can lay on my left side......
I feel like I should be doing more and have more energy than I do, but would like some 'Feed Back'..........of how long it took others to start feeling better, or back to normal, or do we ever get back to normal? I have never met anyone with a PM before, so I would appreciate any feed back and support you can give me.......


Posted by Bonevans on 2014-02-16 13:20. 3 comments. 385 reads
 
If any one could help me I would very much appreciate it. I am going to be homeless at the end of this month and I don't know what else to do my kids are trying to get me to move back to TN I feel stranded and stuck I also caught staph infection with my last trio to hospital I have been in twice since surgery I'm not trying to get rich as some people set goals much higher I just wanna go home.......
http://www.gofundme.com/6v1ge0?pc=tw_f_m


Posted by olivia.walker87@yahoo.com on 2014-02-15 22:37. 11 comments. 684 reads
 
hi my name is Olivia, and I am 12 years old I just got a pacemaker on January 6th 2014. before I got the pacemaker I used to be full of energy and play sports then I fell and died 5 times. when I went to the hospital and the doctors told me I would need a pacemaker I was scared at first but after I got the pm I went home and now I only shut myself in my room I get home from school and I lock myself in my room. does anybody feel like this or felt like this?

Posted by BillRussell on 2014-02-05 16:36. 6 comments. 535 reads
 
My DH had his first "interrogation" I think you call it today of his pacemaker implanted January 3, 2014. I'll have to admit that I was totally ignorant as to what they do. I could tell that there was a problem when the tech called in one who was seemingly more knowledgeable than she was and there was quite a bit of low-tone discussion between them. When the doctor came in, he was quite confused for which he later apologized. He had said that my husband had had a defibrillator implanted because of his congestive heart failure and blah, blah, blah. He apparently had him confused with another patient. I called his attention to the fact that he did not have congestive heart failure. I am not sure what he was trying to say except that p...


Posted by kc on 2014-02-01 23:04. 7 comments. 434 reads
 
Hi group...I wanted to learn about lives of folks with pacemakers. My Mom, who is 83, is currently 300 miles away in a hospital. Her husband just called me to let me know that her doctors found her heart is sometimes dropping to 30 beats per minute and that they'd like to put in a pacemaker. She's my best friend and I'm worried. You guys should know...do ya think, if her health is otherwise good, that she should do well? Thanks very much,
Worried Daughter of Greatest Mom Ever

Posted by looloo on 2014-01-05 14:37. 8 comments. 747 reads
 
I am 36 and had my pacemaker fitted just over 2 years ago now, I feel so depressed having it at such a young age and feel like it's aged me , does anyone else out there feel like this?


Posted by Jaolmi on 2013-12-30 19:13. 2 comments. 278 reads
 
Is there anyone that can tell me if my single lead can be identified as being implanted in the atrium or ventricle of the heart.
I honestly don't know.
I have a Boston Scientific S601 and my card has a section mentioning ventricle ?????
Thank you for any advice

Posted by lilyarrr on 2013-12-28 01:00. 4 comments. 240 reads
 
my father recently had a pacemaker placed but he didn't attend the orientation. What can we expect or where can we go to get another orientation?

Posted by Shaanhbxo on 2013-12-26 20:35. 6 comments. 522 reads
 
I'm 17 and I recently received a pacemaker. Having this pacemaker and being in a ward full of older patients it made me wonder about other teens in my situation. I thought that I haven't seen any charitable events for those with pacemakers. I want to change this. I want there to be at least an annual event or an occasional fundraiser for young people with heart conditions or pacemakers that feel different or have low self esteem from their scars or the pacemaker itself. I know that it would benefit me. If you don't mind checking out the Facebook page www.facebook.com/youngpacedhearts and giving it a like and share I would really appreciate it. I have contacted British Heart Foundation because I would like them to consider this. Thank You

Posted by libbyluflutesrule on 2013-12-22 04:58. 3 comments. 403 reads
 
Hey after I posted my first message I realized that there should probably be a Facebook group or page for teens with pacemakers to connect.....if any teens (12-18) are interested at all in this comment and let me know

Posted by Sophia2982 on 2013-12-21 16:42. 1 comments. 224 reads
 
Anyone know of scholarship foundations for students with pacemakers?????

Posted by smokeyweinrick on 2013-12-15 23:34. 0 comments. 122 reads
 
Received my second pacemaker in 2012, from a biotronik to a ST Jude Medical, for past year i have had a rash on my arm, and itch all over, depends on my angle of my left arm i receive tingle in my fingers. Upon reading some of the members which also have different problems, I am reaching out to see if anyone has had these, and if so what should be done.

Posted by LGP on 2013-12-15 21:06. 15 comments. 750 reads
 
Hello, my name is Lauren. I am 20 years old, and I recently found out that I am going to have to get a pacemaker next month. I have never had surgery before. I am worried about getting put to sleep, and I am still a little hesitant about getting a pacemaker in general. Any information about pacemakers that I can get will be extremely helpful and appreciated.

Thank you,



Lauren

Posted by Marianyork on 2013-12-10 01:36. 16 comments. 621 reads
 
Hi everybody,
Just wondering if anybody is from Australia,on this site this is such a good site and has been my constant place of reference when things bothered me, I usually have my fears dispelled by knowing I am not the only only going through this. Thank you all for your words of encouragement to members and for your very informative post.

Maz

Posted by 78+ on 2013-12-04 12:28. 6 comments. 395 reads
 
I, too received a pacemaker in 2008 and have experienced all of the anxiety, fear, the ups and downs, the terrible affects of the medication for high blood pressure, irregular heart beats. I am thankful that it saved my life and has helped the other organs in my body to receive the oxygen and etc. to keep them healthy. I continued to mow my yard, till my garden, exercise, and all the things that I did before I received it. I do everything in moderation, eat a low salt, low cholestrol, low acid, low fat, chicken and fish diet and believe it is necessary to keep the heart functioning well. I do know that I will not live one moment longer than God wants me to live, pacemaker or no pacemaker. God grant all of you peace and enjoy every minute t...


Posted by Dcapelli on 2013-10-30 10:23. 11 comments. 745 reads
 
Hi, my name is Danielle. I am 25 years old and just received my first pacemaker two days ago (10/28/13). It was an emergency surgery and wasn't expected on my part. I knew a pacemaker was a possibility in my future after having two ablations, just wasn't expecting it Monday. I went in to my EPs office to discuss some results of a heart monitor and next thing I know I'm being told my heart is stopping for more then 6 seconds at a time along with being in junctional rhythm almost always. I was told to go straight to the hospital and they'd get the pacemaker in ASAP.
Non of this has completely sunk in yet. I got home yesterday. I'm in lots of pain (i can feel the PM rubbing against the skin, incision, muscle and chest bone) but just wan...


Posted by grateful on 2013-10-28 02:03. 2 comments. 311 reads
 
I have three concerns: (1) I must move a lot in my sleep, because the battery pack shifts, sometimes it's side ways. I'm afraid to reposition it for fear I may twist it. (2) I'm in the ministry so I'm in constant need of my laptop. However, I get so many strange sensations and ultimately fatigue. I stopped using it and turned to my Kindle Fire. How do the rest of you handle this situation? (3) Last, is there a Support Group in the Chicago area? If not, are any of you interested in being a part of such a group? I've had my pacemaker for nearly three months.

Posted by Mabe on 2013-10-27 17:08. 9 comments. 452 reads
 
My pacemaker was implanted a month ago. I have had several episodes today. Hard to describe, certainly not the feelings of fainting but weird. It's almost like I would be experiencing the same symptoms on they stop short. I am assuming it's because the pacer does it's job. Is this normal as it's early in the process, I have recorded this for reference if I need to describe at some point. Thanks!



Member Login
email:

password:



Who's Online?
We have 1313 visitors online.

Members online:
  jimb
  momhead4
  vbLa59
  skipvice
  PeteFindlay
  deeheart
  Tattoo Man
  TJ319
  TraceyE
  kmom
  cropduster
  gleesue
  bluebowtye

You're Wired When...
You can shop longer than the Energizer Bunny.

Member Quotes
We are very lucky to have these devices.

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.