Hello, everyone.

While I don't have my pacemaker yet, I've joined this website because last week I was told that I will need one very soon. I have recently diagnosed with Vaso-Vagal (Neurocardiogenic) Syncope, and both my specialist and GP are strongly suggesting a pacemaker as treatment -- especially considering that my 46 year old mother has recently undergone surgery for one after going into cardiac arrest after a syncopal episode.

I'm here because I'm freaked out about all this. My episodes have been a fairly benign (if inconvenient) part of my whole life -- I've been carted off to the hospital more times that I can count, but I've always recovered well and haven't considered this as a legitimate medical issue -...

 

Any comments on refusal to have battery replacement
as patient is in 80s and does not wish to continue
this procedure.

 

I NEED INSURANCE HAVE NO JOB HOW CAN I MAINTAIN CARE WITH MY PACER

 

any groups in NYC?

 

Hi
i was wondering if there was any groups in Columbus Ohio

 

hello i am jenice1 i am new to site i have a pacemaker and defib since april 2011 i am experiencing pain in my glands,neck and lots of sore pressure in my chest my doc says not related 2 heart but i had this same feeling before i had surgery however i really need someone 2 talk 2 that can relate 2 what im going through someone please help.

 

I have P.O.T.S and NCS I'm on my 2nd PM and still having major issues I'm just looking for someone who can relate to some of my problems or anyone who can tell me how they got through it I'm not about to have a pitty party but I wasn't able to go to hs I got pulled out half way through freshman year I have been a dancer for 14 years and am unable to do that and really can't go out much with my parents I just need to know someone has gotten through this and is okay on the other side of it (this was the short vision of my story it took 3 yrs just to get diagnosed)

 

Is there anyone out there who want to be in the military but cant due to pacemaker? I am looking for people who do not require medication and have no limitations due to there PM.

The reason I am asking is because I am trying to feed this info to the Department of Defense to try and have the medical requirements mended a little bit for people with pacemakers.

I believe the we are no greater risk that any other soldier and I want to prove it somehow.

Thank you for any support.

Jamie Waddington

 

My son is 17 yrs old and just had his first tilt-table test. The doctor (sports medicine) called me today and told me that he flatlined for over 15 seconds during the test. When I went in to see him after the test, he had a very hard time trying to recover. It took upwards of 45 minutes. We now have an appointment with another cardiologist for next Friday. The SM doctor told me up front that a PM may have to be installed. I don't know much about it, but I really am kind of freaked out about a very active, very fit 17 yr old boy having such a procedure. Unfortunately I've roamed the internet all day and have found several different articles that I've read. One thing that really has made me think is that when he was 7, he started pass...

 

Hi, Folks. Not sure how to start. New member today, male age 64 next month. First experienced rapid heartbeat age 11. Diagnosed by military cardiologist age 19 with paroxysmal atrial tachycardia, a condition not readily mentioned in my current research. Was advised would "probably need to take something for it by age 35". Around this age was put on minor tranquilizer. At age 47 suffered heat exhaustion and condition was exascerbated. Had EKGs, stress test, holter monitor. Only finding was extra heartbeat. Primary's nurse said :they never find anything with the holter monitor. Been on anti-depressant and anti-anxiety meds since. Was put on beta blocker last year and HR was in 40s, so was discontinued. Follow-up w/primary small town rural DO...

 

Hi there,

I am a new member and waiting to have my PM in August, There has been long delays getting to a cardiologist and I am now on the semi urgent list. I would love to hear from others about how they coped with the surgery and how long it took them to recover. I am rather anxious about surgery also another stress is that I have to travel to christchurch which is still getting daily aftershocks from the big quakes it had earlier in the year. There is so much damage in the city with thousands of buildings having to be demolished. I am 64 and also have a moderate mitral valve prolapse and reguritation which they are happy to leave at the moment. Look forward to hearing from you.
Regards Jane32

 

Just got my pm a couple of months ago. After two weeks I started feeling much better. Had a hell of a year after they told my I had heart failure. A year with severe depression and anxity. things are better but have been looking for a supportgroup so found this and it great to be able to feel I am not the only one in this wordl with a pacemaker.

 

I saw a cardiologist today as a follow-up visit after the standard test given for a slow heart rate. He told me I was borderline for a recommendation for a PM and pretty much left it up to me to decide if I wanted it or not at this time. I am a 59 year old male and I have lost 240 lbs in 22 months and wonder if my slow rate may be due my heart just not having to work so hard. Any ideas about what my next step should be?

 

Hello everyone,
Just want to share how I'm feeling and if I'm not the only one..I had my pm implanted last January of this year. Right now I still feel out of breath even just doing a little physical activity like a short walk to the park. Last Nov. 2010 before I had the implant I used to jog for an hour, then in December I felt like I was out of breath and had dizzy spells. Then after all the tests, the doctor found out that my pulse rate was very slow, because my heart's electrical nodes weren't functioning anymore, that a pm needs to be implanted. I was hoping that I should be feeling better by now, but I'm not..still out of breath and getting tired very easily. I'm 55 years old, male..Every time I mention this to my doctor..she ke...

 

Hi There,
Just wondering if there are any members from Switzerland or Germany in here? I myself live in Switzerland and I have yet to meet (or even talk to) someone with a PM in person. I would love to meet someone face to face to talk about it.

Unfortunately, there seem to be no support groups for pacemaker recipients in my region, which is odd, because some of the best pacemaker doctors and facilities in the World are 15 miles away.

 

I just got my pacemaker last week. Still getting use to having one. Do support groups (in person ) help?

 

Hi! My name is Laura. I'm 23 years-old. I'm on my second device. I received my first pacemaker at the age of 11 and my second when I was 15. I've recently learned that I will need to have it replaced again. I'm not sure what I'm looking for. Support, I suppose? Or maybe just people to talk to who know what I'm going through! Thanks and I hope everyone has a nice day!

 

I'm sure thinking about how your appointment went with the new super surgeon? Was he cute? Did he find that parathyroid tumor? I sure hope you are doing ok.
pg

 

Wanda here in Las Vegas, NV. I have come to realize that there is only 1 support group here in Las Vegas, NV for parents with children that have heart problems. However they only seem to meet 1x a month and really I do not see how that is enough for a lot of parents here in Nevada as not everyone will be able to make a group session on just 1 night per month.

I am interested in starting a support group that meets maybe 2-3 times a month if not more. If anyone else in Las Vegas, NV is interested please let me know, maybe we can get together and get something set up. I am planning on speaking to my daughters Cardiology office and see if they have any ideas.

Thank you

 

I am so thankful to find this site! It is really wonderful to find a place to share the fears and concerns and joys that come with going through a heart health issue and ending up with a pacemaker.

I had a fainting spell two years ago, and then again in early May which landed me in the ER and this time the spells were witnessed by doctors. They diagnosed it right away as Bradycardia caused by Sick Sinus Syndrome and the answer was a pacemaker. I was in shock and not entirely sure I wanted to agree to have it done, but my cardio electrophysiologist said that I couldn't drive anymore if I didn't have it. So - I really had no choice.

It's been about three weeks and I am feeling a lot better than I was during the first tw...