St. Jude Medical Pacemakers & ICDs

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Posted by libbyluflutesrule on 2013-12-22 04:58. 4 comments. 445 reads
 
Hey after I posted my first message I realized that there should probably be a Facebook group or page for teens with pacemakers to connect.....if any teens (12-18) are interested at all in this comment and let me know

Posted by Sophia2982 on 2013-12-21 16:42. 1 comments. 253 reads
 
Anyone know of scholarship foundations for students with pacemakers?????

Posted by smokeyweinrick on 2013-12-15 23:34. 0 comments. 145 reads
 
Received my second pacemaker in 2012, from a biotronik to a ST Jude Medical, for past year i have had a rash on my arm, and itch all over, depends on my angle of my left arm i receive tingle in my fingers. Upon reading some of the members which also have different problems, I am reaching out to see if anyone has had these, and if so what should be done.

Posted by LGP on 2013-12-15 21:06. 15 comments. 803 reads
 
Hello, my name is Lauren. I am 20 years old, and I recently found out that I am going to have to get a pacemaker next month. I have never had surgery before. I am worried about getting put to sleep, and I am still a little hesitant about getting a pacemaker in general. Any information about pacemakers that I can get will be extremely helpful and appreciated.

Thank you,



Lauren

Posted by Marianyork on 2013-12-10 01:36. 16 comments. 692 reads
 
Hi everybody,
Just wondering if anybody is from Australia,on this site this is such a good site and has been my constant place of reference when things bothered me, I usually have my fears dispelled by knowing I am not the only only going through this. Thank you all for your words of encouragement to members and for your very informative post.

Maz

Posted by 78+ on 2013-12-04 12:28. 6 comments. 421 reads
 
I, too received a pacemaker in 2008 and have experienced all of the anxiety, fear, the ups and downs, the terrible affects of the medication for high blood pressure, irregular heart beats. I am thankful that it saved my life and has helped the other organs in my body to receive the oxygen and etc. to keep them healthy. I continued to mow my yard, till my garden, exercise, and all the things that I did before I received it. I do everything in moderation, eat a low salt, low cholestrol, low acid, low fat, chicken and fish diet and believe it is necessary to keep the heart functioning well. I do know that I will not live one moment longer than God wants me to live, pacemaker or no pacemaker. God grant all of you peace and enjoy every minute t...


Posted by Dcapelli on 2013-10-30 10:23. 11 comments. 785 reads
 
Hi, my name is Danielle. I am 25 years old and just received my first pacemaker two days ago (10/28/13). It was an emergency surgery and wasn't expected on my part. I knew a pacemaker was a possibility in my future after having two ablations, just wasn't expecting it Monday. I went in to my EPs office to discuss some results of a heart monitor and next thing I know I'm being told my heart is stopping for more then 6 seconds at a time along with being in junctional rhythm almost always. I was told to go straight to the hospital and they'd get the pacemaker in ASAP.
Non of this has completely sunk in yet. I got home yesterday. I'm in lots of pain (i can feel the PM rubbing against the skin, incision, muscle and chest bone) but just wan...


Posted by grateful on 2013-10-28 02:03. 2 comments. 327 reads
 
I have three concerns: (1) I must move a lot in my sleep, because the battery pack shifts, sometimes it's side ways. I'm afraid to reposition it for fear I may twist it. (2) I'm in the ministry so I'm in constant need of my laptop. However, I get so many strange sensations and ultimately fatigue. I stopped using it and turned to my Kindle Fire. How do the rest of you handle this situation? (3) Last, is there a Support Group in the Chicago area? If not, are any of you interested in being a part of such a group? I've had my pacemaker for nearly three months.

Posted by Mabe on 2013-10-27 17:08. 9 comments. 488 reads
 
My pacemaker was implanted a month ago. I have had several episodes today. Hard to describe, certainly not the feelings of fainting but weird. It's almost like I would be experiencing the same symptoms on they stop short. I am assuming it's because the pacer does it's job. Is this normal as it's early in the process, I have recorded this for reference if I need to describe at some point. Thanks!

Posted by jayd0204 on 2013-10-21 13:39. 1 comments. 310 reads
 
My mother had the PM3210 pacemaker place in her back in 2013, but to this day she still feels the area where the pacemaker is placed tender. Is this common?
This past weekend she went to the ER because she had severe chest pain. Dr. in the ER said her vitals were normal and she didn't have a heartattack, however, she still feels some pain around the area where the pacermake is placed. Has anyone out there experience this type of problem? If so, what did the doctor tell you about it? What can be done to aleviate the pain?

Posted by anroh on 2013-10-16 22:56. 1 comments. 292 reads
 
hi I m Rohan and I desperately need help on my father's condition.He is 70 years old. He needs a pacemaker, single chamber, but we dont have that money to purchase one. I am the eldest in the broad of 2 girls, I want my dad to live more years, but we cannot do anything, the wages that I received from my job is only fit for our basic needs. It will cost around 300,000 here in the Philippines, and we cannot afford it. I already go to NGOS, and government offices that deals with it but none have I gotten. They only discourage us and they said no funds will be allocated.

Please help, I want my dad to live more. Please



Posted by hgladney on 2013-10-03 18:32. 5 comments. 445 reads
 
Is there a picnic or coffee meet or any such thing for the clubbers?

Posted by halfpint on 2013-09-29 10:35. 5 comments. 3164 reads
 
hello I am Yvette and my question today is I do not have a landline for my Merlin@home transmitter for my pacemaker but the hospital has giving me an adapter to plug in to the back of the transmitter because i only have an i-phone so is the set up the same way as if i did have a landline

Posted by Texasgirl72315 on 2013-09-19 16:04. 10 comments. 666 reads
 
I am 34 yrs old and was just diagnosed with Sick Sinus Syndrome. I am still in a state of shock about it. I have three beautiful kids, 13, 11, and 9. And tonight I get to tell them about this. I am scared I will not be able to see them grow up, graduate, marry and have kids. My heart is breaking for them.
I am changing cardiologists this week and have not discussed a pacemaker except with my family doctor. But I do know that I am tired of feeling like this. I am tire of being sick. I am supposed to be in my prime and I can't even walk up the stairs.

Posted by CF-XDB on 2013-09-17 14:04. 5 comments. 1418 reads
 
I had my pacemaker implanted in March this year. In July I noticed my left arm swelling. I can no longer wear my watch. Tests show no infection or no blood clots in the vanes. I am assuming the swelling has something to do with the pace maker. Anyone else had this problem?

Ray

Posted by Bevof NC on 2013-08-31 21:49. 1 comments. 217 reads
 
Sanger Heart and Vascular Institutehas scheduled a support group meeting in Charlotte, NC for Thursday, September 12th, 2013 AT 2:30 pm. Hope to meet some of you there...I've had an ICD for 8 and 1/2 years and this will be the first I have known about. Bev PS: I sure hope it is OK to post this!!! Forgive me please if it is against any rules.

Posted by lisarichards on 2013-08-26 18:35. 1 comments. 389 reads
 
I received my PM late April. It was set at 80BPM - I have three leads - I was told I would get used to it and I think I was getting used to it - except for the shortness of breath on occasion and not sleeping, only with a sleeping aid. I read that they can set a rest # and when I went in for the adjustments two + weeks ago the rep set me at 70 (for rest also) and also adjusted a sensor rate for motion. This was uncomfortable and I went in last week for another adjustment. The third lead was turned off and I was set to 80 again with a rest of 70 and they bumped my motion sensor. Well. this was even more uncomfortable and today - I noticed that while not doing much of anything I would check my BPM and was up to 85 or 95. I went toda...


Posted by Lucy on 2013-08-21 08:09. 9 comments. 802 reads
 
Hello. I would just like to introduce myself, and say I am glad to have found this site. I am hoping for advice and support in an upcoming decision to have a Crtd implanted.
I live in Ireland, am fifty seven years old and six months ago was diagnosed with non ischemic cardiomyopathy, and an ejection fraction of 10. That has improved with medication and now my EF is 25. I also was diagnosed in 2008 with left bundle branch block and hypertension.
I have been advised by my cardiologist to have the crtd unless there is more improvement in September, when I a scheduled to have a repeat echo, and EKG.
I cannot say I am having many symptoms at the moment Thank God. I am tolerating the medication quite well. I have some dizzine...


Posted by ItsmeWayne on 2013-08-19 11:25. 14 comments. 704 reads
 
Hi All,
Just wanting to say, I find this forum very hard to navigate. I am on several forums for health issues and this one tops the list for difficulty on finding info. The search function helps somewhat, but I find the site lacks personality.

This site is very important to many of us here and I would like to see it improved!
Itsme Wayne ... Medtronic Advisa DR MRI pacer

Posted by godzillaeyes on 2013-08-11 09:45. 9 comments. 762 reads
 
I'm turning 40 in six months. I had my PM put in on July 1 for 3rd degree heart block. I had open heart when I was 30 due to an ASD that no one knew I had until then. I was told that because my ASD repair was so close to the electrical node, it isn't surprising that it eventually failed.

So I think I'm having a midlife crisis. ;) In many ways I feel like I'm still a kid and I've never really grown up, and now another part of me feels like I'm at the point where I should be prepared to die. Like I'm at the end of my life. I'm only going to be 40! I know it's ridiculous. I think the PM has something to do with it, the weirdness and newness of being dependent on a machine for the rest of my life, but I know that it is prolonging m...




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