St. Jude Medical Pacemakers & ICDs

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Posted by godzillaeyes on 2013-08-11 09:45. 9 comments. 770 reads
 
I'm turning 40 in six months. I had my PM put in on July 1 for 3rd degree heart block. I had open heart when I was 30 due to an ASD that no one knew I had until then. I was told that because my ASD repair was so close to the electrical node, it isn't surprising that it eventually failed.

So I think I'm having a midlife crisis. ;) In many ways I feel like I'm still a kid and I've never really grown up, and now another part of me feels like I'm at the point where I should be prepared to die. Like I'm at the end of my life. I'm only going to be 40! I know it's ridiculous. I think the PM has something to do with it, the weirdness and newness of being dependent on a machine for the rest of my life, but I know that it is prolonging m...


Posted by alan4heidi on 2013-07-29 03:55. 6 comments. 807 reads
 
Hi. after having a pacemaker op 5 days ago I have just removed the dressing and there is bruising around the stiches and 6 inches lower but feels ok.on discharge from hospital I was diagnosed as bradicardia and SSS [sick sinus syndrome] which still makes me feel dizzy and unable to walk far in a straight line, also big headaches are still there as they were 2 weeks before the op..this morning my pulse rate was only 29 /31 until I got out of bed .it goes back up to around 60 on walking about, is this normal . I am 79 years old ,thank you alan

Posted by 5822Classy on 2013-07-27 13:18. 3 comments. 291 reads
 
Thanks to all of you for your encouraging words. My pacemaker will be inserted Aug 16 and I am actually looking forward to it.


Posted by kanemcauliffe on 2013-07-23 20:46. 5 comments. 464 reads
 
Hello everyone! I am so glad I found this site. I am 30 years old and had my dual chamber pacemaker installed on May 16, 2013. It was not an expected procedure at all! It started when I was diagnosed with an ASD at 24 yrs old. I had traditional open heart on Sept. 30, 2009 to close the hole, and all was well...I thought. Turns out they say I "short circuited" my electrical system. Still not quite sure what that means. I had about 3 ablations and was told I would need a pacemaker "someday". I became used to dealing with the low energy and fatigue. I would still workout and run the best I could. Then a few months ago I realized I was getting lightheaded and dizzy much more often. I went to see my new cardiologist who put me on a holte...


Posted by Classylady on 2013-07-22 11:50. 10 comments. 867 reads
 
I am getting a pacemaker aug 16. My legs are very heavy , I get completely fatigued easily,I have AFib flutter and syncope. I also had back surgery. Now I read I can't have an MRI but would a CT Scan be ok?

Posted by WILLI on 2013-07-19 12:35. 4 comments. 452 reads
 
Two days ago i had a pacemaker fitted, and i was advised not to raise my leftt arm above my shoulder. Oops i forgot and the next day my wife found me with my left arm above my shoulder whilst sitting watching the tele. This is something i have done since i was VERY young. could this lapse of concentration have any detrimental effect on the wires ETC

Posted by Betty on 2013-07-16 21:15. 8 comments. 591 reads
 
Can anyone tell me if you notice when the pacemaker kicks on, I can't or I'm not aware of it.

Posted by franko1966 on 2013-06-29 18:21. 0 comments. 617 reads
 
i found a good group,transplantfriends.com,if you already had a heart xplant or going to have one its a good sight

Posted by brandi88 on 2013-06-27 15:24. 18 comments. 541 reads
 
My name is Brandi i am 24 and i have had 5 pacemakers and i received my first implant when i was 1 1/2. I know your thinkin shes 24 what does she know. Well remember i have had 5 implanted and I am here if anyone needs anything or someone to talk with. I'm thankful for having a pacemaker. I have been told numerous times im not gonna make it another day. First they gave me 1 day than, 2 months, 3 years, 8 years, she wont make it to graduation. Well now its i wont make it to 25. I got news for them im here to kick butt. Im here for a reason just like everyone else is. If anyone needs someone to talk to whether its someone who just received a implant or is fixin to. Just holler at me.

Posted by mr2debbie on 2013-06-23 18:00. 3 comments. 559 reads
 

My family is in need of prayer as my son Dion King is in need of a replacement pacemaker, his journey all began when he was 16 yrs,old. He recieved his 1st pacemaker on Feb 14th, 1997 which saved his life.So Valentines Day was really a day of Love for us. Dion again received another Pacemaker at age 24 in March of 2005, both times he was covered by insurance, Dion is in need of a 3rd Pacemaker by the 2nd week of August and that is pushing it..and he has no insurance at this time...Dion's pacemaker was suppose to last another 18mos but these things happen. Dion is a family man with big responsibilities, hes has a Fiance of 3 yrs and my 3 adorable grandsons. Brooke has not beable to find work so they rely mainly on Dions income to live...


Posted by howie on 2013-06-22 23:33. 4 comments. 497 reads
 
Hello to everyone from Howie and Rose.
Yes we have a cardiologist and a EP. the 3D cardiogram showed 36% and my blood pressure was 98 over 70. The halter monitor has to be on me for 48 hours so I haven't had it on long enough to give you an answer as to the results. We'll know Monday the 24th in the evening.
I was told that using a electric drill or any saw can through off the pace maker because of the vibration and it may not work properly after that and you won't really know it. That is what the P.A. for the P.E. told us, and I can't jump start a car because the alternator and I can't go near any large magnets. A cell phone is alright but us it on the right ear. Please let me know what you think and is your information that ...


Posted by howie on 2013-06-22 12:16. 6 comments. 807 reads
 
Hi I'm Howie, My Girlfriend of 2 years Rose who is very dedicated to me went to Long Island Jewish Hospital in New Hyde Park, New York on Thursday to have a angiogram, and back on Friday to have a special Echo Cardio gram 3D. The specialist said I need a Pacemaker. I have cardio myopathy and I'm experiencing PVC which I don't even feel. we were sent home with a halter monitor to check on my heart 48 hours, to see how many PVC I experience in that time. We also got a diary to jot down all of my activities. I'm a carpenter and a woodsman sawing down trees fixing the roof on my house, I'm constantly on the go. I'm 64 years old. My parents also had enlarged hearts my Dad lived until 87 my Mom until 82 without the help of a pace maker. I'm re...


Posted by AntonioS on 2013-06-18 13:05. 2 comments. 382 reads
 
Interested in the discussion about pacemaker Y/N. Wife's bp has been systol over 200, now controlled mainly via atenonol and anxiety pill. Wife's pulse usually low 50's sometimes high 40's. When bp controlled (130/77 - sometimes 120/65) she has headaches and generally feels lousy. I believe raising her pulse via pm would increase tremendously her quality of life.
(She was born 1935 in Nebraska.) (Her mother lived to 100, so I don't want her to have many years of substandard life). (Her physician has been negative re pm.)
Your thoughts and recommendations!
AntonioS

Posted by Iris Pennock on 2013-06-03 14:58. 10 comments. 585 reads
 
I am 2 weeks into my pacemaker use. I have felt like I am not me.
Does anyone else have that reaction?

How long does it take to feel normal again?

Thanks for any input it will be helpful
Iris


Posted by BStanding56 on 2013-06-02 15:57. 2 comments. 315 reads
 
It says t here are so many people in the chat room, see names there but no chatting ? Is it that they have not logged out?
Betg

Posted by NWAKAEGO on 2013-05-25 20:02. 1 comments. 270 reads
 
need insurance that is affordable but do not know how to go about it.help.nwakaego

Posted by Duke Heart Patient on 2013-05-21 15:24. 1 comments. 686 reads
 

The Shock of My Life

Being born with a heart defect was just a blessing from God. At 2 months old I underwent transposition of the great vessels (Open Heart Surgery - Transposition of the great vessels (TGV) is a group of congenital heart defects (CHDs) involving an abnormal spatial arrangement of any of the great vessels: superior and/or inferior venae cavae (SVC, IVC), pulmonary artery, pulmonary veins, and aorta. CHDs involving only the primary arteries (pulmonary artery and aorta) belong to a sub-group called transposition of the great arteries (TGA) at Duke Hospital. Growing up having to watch my own self was what I did. Taking medicines everyday was the normal routine for me. Visits to Duke twice a year, tes...


Posted by Duke Heart Patient on 2013-05-21 11:21. 10 comments. 494 reads
 
What is everyone's "mental status' with all these life changing events with your heart going on ? How do you feel mentally ?


Michael - NC

Posted by Worried on 2013-05-12 14:56. 7 comments. 468 reads
 
Hello All, we just found out that our little baby girl (she will be turning 10 months next week) has complete hearth block. Her resting heart rate is about 59/min. she was diagnosed with first degree block when she was 4 months and has been monitored periodically since then. Before 4 months she was just fine, well at least her heart rate was up 140/min. they don’t know why it happened as they could not find any genetic link. At four months I took her off breast milk (and I am talking thyroid medication for hypothyroid). I wonder if she had the heart block before then but somehow my medication would go thru her system and increase her heart rate and since heart rate was ok they never checked to look for blockage? Drs say this is not ...


Posted by alexandra101 on 2013-05-11 15:19. 1 comments. 252 reads
 
how do I replay to messages from people...some are private. Want to respond to them but am new and don't know how



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