St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Support Groups Forum



Posted by Lucy on 2013-08-21 08:09. 9 comments. 862 reads
 
Hello. I would just like to introduce myself, and say I am glad to have found this site. I am hoping for advice and support in an upcoming decision to have a Crtd implanted.
I live in Ireland, am fifty seven years old and six months ago was diagnosed with non ischemic cardiomyopathy, and an ejection fraction of 10. That has improved with medication and now my EF is 25. I also was diagnosed in 2008 with left bundle branch block and hypertension.
I have been advised by my cardiologist to have the crtd unless there is more improvement in September, when I a scheduled to have a repeat echo, and EKG.
I cannot say I am having many symptoms at the moment Thank God. I am tolerating the medication quite well. I have some dizzine...


Posted by ItsmeWayne on 2013-08-19 11:25. 14 comments. 729 reads
 
Hi All,
Just wanting to say, I find this forum very hard to navigate. I am on several forums for health issues and this one tops the list for difficulty on finding info. The search function helps somewhat, but I find the site lacks personality.

This site is very important to many of us here and I would like to see it improved!
Itsme Wayne ... Medtronic Advisa DR MRI pacer

Posted by godzillaeyes on 2013-08-11 09:45. 9 comments. 778 reads
 
I'm turning 40 in six months. I had my PM put in on July 1 for 3rd degree heart block. I had open heart when I was 30 due to an ASD that no one knew I had until then. I was told that because my ASD repair was so close to the electrical node, it isn't surprising that it eventually failed.

So I think I'm having a midlife crisis. ;) In many ways I feel like I'm still a kid and I've never really grown up, and now another part of me feels like I'm at the point where I should be prepared to die. Like I'm at the end of my life. I'm only going to be 40! I know it's ridiculous. I think the PM has something to do with it, the weirdness and newness of being dependent on a machine for the rest of my life, but I know that it is prolonging m...


Posted by alan4heidi on 2013-07-29 03:55. 6 comments. 817 reads
 
Hi. after having a pacemaker op 5 days ago I have just removed the dressing and there is bruising around the stiches and 6 inches lower but feels ok.on discharge from hospital I was diagnosed as bradicardia and SSS [sick sinus syndrome] which still makes me feel dizzy and unable to walk far in a straight line, also big headaches are still there as they were 2 weeks before the op..this morning my pulse rate was only 29 /31 until I got out of bed .it goes back up to around 60 on walking about, is this normal . I am 79 years old ,thank you alan

Posted by 5822Classy on 2013-07-27 13:18. 3 comments. 295 reads
 
Thanks to all of you for your encouraging words. My pacemaker will be inserted Aug 16 and I am actually looking forward to it.


Posted by kanemcauliffe on 2013-07-23 20:46. 5 comments. 471 reads
 
Hello everyone! I am so glad I found this site. I am 30 years old and had my dual chamber pacemaker installed on May 16, 2013. It was not an expected procedure at all! It started when I was diagnosed with an ASD at 24 yrs old. I had traditional open heart on Sept. 30, 2009 to close the hole, and all was well...I thought. Turns out they say I "short circuited" my electrical system. Still not quite sure what that means. I had about 3 ablations and was told I would need a pacemaker "someday". I became used to dealing with the low energy and fatigue. I would still workout and run the best I could. Then a few months ago I realized I was getting lightheaded and dizzy much more often. I went to see my new cardiologist who put me on a holte...


Posted by Classylady on 2013-07-22 11:50. 10 comments. 890 reads
 
I am getting a pacemaker aug 16. My legs are very heavy , I get completely fatigued easily,I have AFib flutter and syncope. I also had back surgery. Now I read I can't have an MRI but would a CT Scan be ok?

Posted by WILLI on 2013-07-19 12:35. 4 comments. 460 reads
 
Two days ago i had a pacemaker fitted, and i was advised not to raise my leftt arm above my shoulder. Oops i forgot and the next day my wife found me with my left arm above my shoulder whilst sitting watching the tele. This is something i have done since i was VERY young. could this lapse of concentration have any detrimental effect on the wires ETC

Posted by Betty on 2013-07-16 21:15. 8 comments. 596 reads
 
Can anyone tell me if you notice when the pacemaker kicks on, I can't or I'm not aware of it.

Posted by franko1966 on 2013-06-29 18:21. 0 comments. 620 reads
 
i found a good group,transplantfriends.com,if you already had a heart xplant or going to have one its a good sight

Posted by brandi88 on 2013-06-27 15:24. 18 comments. 543 reads
 
My name is Brandi i am 24 and i have had 5 pacemakers and i received my first implant when i was 1 1/2. I know your thinkin shes 24 what does she know. Well remember i have had 5 implanted and I am here if anyone needs anything or someone to talk with. I'm thankful for having a pacemaker. I have been told numerous times im not gonna make it another day. First they gave me 1 day than, 2 months, 3 years, 8 years, she wont make it to graduation. Well now its i wont make it to 25. I got news for them im here to kick butt. Im here for a reason just like everyone else is. If anyone needs someone to talk to whether its someone who just received a implant or is fixin to. Just holler at me.

Posted by mr2debbie on 2013-06-23 18:00. 3 comments. 566 reads
 

My family is in need of prayer as my son Dion King is in need of a replacement pacemaker, his journey all began when he was 16 yrs,old. He recieved his 1st pacemaker on Feb 14th, 1997 which saved his life.So Valentines Day was really a day of Love for us. Dion again received another Pacemaker at age 24 in March of 2005, both times he was covered by insurance, Dion is in need of a 3rd Pacemaker by the 2nd week of August and that is pushing it..and he has no insurance at this time...Dion's pacemaker was suppose to last another 18mos but these things happen. Dion is a family man with big responsibilities, hes has a Fiance of 3 yrs and my 3 adorable grandsons. Brooke has not beable to find work so they rely mainly on Dions income to live...


Posted by howie on 2013-06-22 23:33. 4 comments. 503 reads
 
Hello to everyone from Howie and Rose.
Yes we have a cardiologist and a EP. the 3D cardiogram showed 36% and my blood pressure was 98 over 70. The halter monitor has to be on me for 48 hours so I haven't had it on long enough to give you an answer as to the results. We'll know Monday the 24th in the evening.
I was told that using a electric drill or any saw can through off the pace maker because of the vibration and it may not work properly after that and you won't really know it. That is what the P.A. for the P.E. told us, and I can't jump start a car because the alternator and I can't go near any large magnets. A cell phone is alright but us it on the right ear. Please let me know what you think and is your information that ...


Posted by howie on 2013-06-22 12:16. 6 comments. 843 reads
 
Hi I'm Howie, My Girlfriend of 2 years Rose who is very dedicated to me went to Long Island Jewish Hospital in New Hyde Park, New York on Thursday to have a angiogram, and back on Friday to have a special Echo Cardio gram 3D. The specialist said I need a Pacemaker. I have cardio myopathy and I'm experiencing PVC which I don't even feel. we were sent home with a halter monitor to check on my heart 48 hours, to see how many PVC I experience in that time. We also got a diary to jot down all of my activities. I'm a carpenter and a woodsman sawing down trees fixing the roof on my house, I'm constantly on the go. I'm 64 years old. My parents also had enlarged hearts my Dad lived until 87 my Mom until 82 without the help of a pace maker. I'm re...


Posted by AntonioS on 2013-06-18 13:05. 2 comments. 388 reads
 
Interested in the discussion about pacemaker Y/N. Wife's bp has been systol over 200, now controlled mainly via atenonol and anxiety pill. Wife's pulse usually low 50's sometimes high 40's. When bp controlled (130/77 - sometimes 120/65) she has headaches and generally feels lousy. I believe raising her pulse via pm would increase tremendously her quality of life.
(She was born 1935 in Nebraska.) (Her mother lived to 100, so I don't want her to have many years of substandard life). (Her physician has been negative re pm.)
Your thoughts and recommendations!
AntonioS

Posted by Iris Pennock on 2013-06-03 14:58. 10 comments. 592 reads
 
I am 2 weeks into my pacemaker use. I have felt like I am not me.
Does anyone else have that reaction?

How long does it take to feel normal again?

Thanks for any input it will be helpful
Iris


Posted by BStanding56 on 2013-06-02 15:57. 2 comments. 317 reads
 
It says t here are so many people in the chat room, see names there but no chatting ? Is it that they have not logged out?
Betg

Posted by NWAKAEGO on 2013-05-25 20:02. 1 comments. 274 reads
 
need insurance that is affordable but do not know how to go about it.help.nwakaego

Posted by Duke Heart Patient on 2013-05-21 15:24. 1 comments. 692 reads
 

The Shock of My Life

Being born with a heart defect was just a blessing from God. At 2 months old I underwent transposition of the great vessels (Open Heart Surgery - Transposition of the great vessels (TGV) is a group of congenital heart defects (CHDs) involving an abnormal spatial arrangement of any of the great vessels: superior and/or inferior venae cavae (SVC, IVC), pulmonary artery, pulmonary veins, and aorta. CHDs involving only the primary arteries (pulmonary artery and aorta) belong to a sub-group called transposition of the great arteries (TGA) at Duke Hospital. Growing up having to watch my own self was what I did. Taking medicines everyday was the normal routine for me. Visits to Duke twice a year, tes...


Posted by Duke Heart Patient on 2013-05-21 11:21. 10 comments. 497 reads
 
What is everyone's "mental status' with all these life changing events with your heart going on ? How do you feel mentally ?


Michael - NC



Member Login
email:

password:



Who's Online?
We have 725 visitors online.

Members online:
  dphoenix
  pacingdiva
  thrill2retire
  Daisho
  pattie
  donb
  bluebowtye
  -AWL-
  ballydhanoa

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
You always run anti-virus software.

Member Quotes
The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.