St. Jude Medical Pacemakers & ICDs

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Posted by Iris Pennock on 2013-06-03 14:58. 10 comments. 607 reads
 
I am 2 weeks into my pacemaker use. I have felt like I am not me.
Does anyone else have that reaction?

How long does it take to feel normal again?

Thanks for any input it will be helpful
Iris


Posted by BStanding56 on 2013-06-02 15:57. 2 comments. 336 reads
 
It says t here are so many people in the chat room, see names there but no chatting ? Is it that they have not logged out?
Betg

Posted by NWAKAEGO on 2013-05-25 20:02. 1 comments. 296 reads
 
need insurance that is affordable but do not know how to go about it.help.nwakaego

Posted by Duke Heart Patient on 2013-05-21 15:24. 1 comments. 710 reads
 

The Shock of My Life

Being born with a heart defect was just a blessing from God. At 2 months old I underwent transposition of the great vessels (Open Heart Surgery - Transposition of the great vessels (TGV) is a group of congenital heart defects (CHDs) involving an abnormal spatial arrangement of any of the great vessels: superior and/or inferior venae cavae (SVC, IVC), pulmonary artery, pulmonary veins, and aorta. CHDs involving only the primary arteries (pulmonary artery and aorta) belong to a sub-group called transposition of the great arteries (TGA) at Duke Hospital. Growing up having to watch my own self was what I did. Taking medicines everyday was the normal routine for me. Visits to Duke twice a year, tes...


Posted by Duke Heart Patient on 2013-05-21 11:21. 10 comments. 510 reads
 
What is everyone's "mental status' with all these life changing events with your heart going on ? How do you feel mentally ?


Michael - NC

Posted by Worried on 2013-05-12 14:56. 7 comments. 488 reads
 
Hello All, we just found out that our little baby girl (she will be turning 10 months next week) has complete hearth block. Her resting heart rate is about 59/min. she was diagnosed with first degree block when she was 4 months and has been monitored periodically since then. Before 4 months she was just fine, well at least her heart rate was up 140/min. they don’t know why it happened as they could not find any genetic link. At four months I took her off breast milk (and I am talking thyroid medication for hypothyroid). I wonder if she had the heart block before then but somehow my medication would go thru her system and increase her heart rate and since heart rate was ok they never checked to look for blockage? Drs say this is not ...


Posted by alexandra101 on 2013-05-11 15:19. 1 comments. 266 reads
 
how do I replay to messages from people...some are private. Want to respond to them but am new and don't know how

Posted by Duke Heart Patient on 2013-05-03 11:21. 4 comments. 585 reads
 
Laying in the ER of Wake Med wasn't what I planned on doing that Saturday night December 10, 2011. I started my day off as normal , got ready to call basketball with my buddy Chris Mitchell like we always do, 4 games at our local high school in Princeton, then coaching a game for Jaxson's 6under team at 3. After the 4th game I officiated that day I just felt a little wore out. Normally I can run about 7 or 8 games on a Saturday but this day was different. I just felt like I wanted to throw up. I couldn't feel a pulse. I was hot. Jaime showed up at the game and asked if I was ok and went on inside the gym. Jaxson sat out there with me while I was trying to rest. I remember him saying "Daddy if your gonna puke do it in that corner" ... After...


Posted by bladepaul on 2013-04-23 06:30. 6 comments. 349 reads
 
Hi, anyone in my neck of the woods ? my home city is sheffield and the cardiology unit i am under is the northern general.
Are there any other members under that hospital, i had my st.Jude fitted in may 2012 and had a AV Node Ablation done in January, everything went really well and after my visit to the cardiologist yesterday (22/4/2013) got the news everything is well and going to plan.
Hoping to hear from someone.
Paul.

Posted by Nicole33 on 2013-04-12 12:47. 3 comments. 377 reads
 
Hello. This forum is wonderful but I am actually interested in looking for a support group that physically meets in person. I live in the Atlanta, Georgia area. Anyone know of one close by? I am interested in ICD or PTSD areas.

Thanks.

Nicole33

Posted by lmart58 on 2013-04-08 15:18. 6 comments. 431 reads
 
Hi I just got my pacemaker a week ago and I am afraid to do anything that could race my heart. I don't know too much about a pacer yet and I want to learn as much as I can. I am 54 years old and have a Medtronic pm because my heart suddenly slowed down. How long does it take to get active again?

Posted by zinat111 on 2013-04-02 14:59. 3 comments. 307 reads
 
Hi,
I am 54 and I am new to PM world. I have a genetic heart disease, Hypertrophic Cardiomyopathy. I ended up in ER in California on March 20, 2013 and I got a pacemaker that day. I am recovering now. I have more energy than before and hoping to feel better soon.

Posted by lindasue101 on 2013-03-30 19:31. 2 comments. 446 reads
 
PM is only 6 days old. . . no 1st post hospital tech check up. Invited to travel an hour out of town and 2 hrs away from hospital. Safe to go? surgery site is great. Vitals super. You folks in the know, do we go to Easter Sunday afternoon event ? Be sitting around BS ing. . . . .

Posted by trish4851 on 2013-03-22 10:08. 4 comments. 481 reads
 
In September of 2012, I had my PM replaced; I'd had it for 8 years. I knew from the get-go that something wasn't right. My daughter is a nurse and when she changed the dressing, she too, knew it wasn't right. It was extremely high and the pain was unbelievable. When I went back two weeks after for my post-op checkup, the NP said it looked like I would have to have a pocket revision "but let's give it a few months". The pain was unbelievable; couldn't raise my arm up, couldn't be on my left side, itching beyond belief. I went back in Dec. 2012 and they did a pocket revision. Something happened during the procedure, which we believe was an antibiotic given in which I am allergic. It's now March and I am still having problems...mostly palpit...


Posted by abankos19 on 2013-03-10 21:27. 5 comments. 753 reads
 
During our 22 week check up to see if my baby was a boy or girl the doctor walked in with the worst news anybody could ever have given me my son had congenital heart block. Another shock he laid on me was the reason he had congenital heart block is because I have lupus. My life was changed instantly. The first 24 hours I cried my eyes out, but then I realized I have to be strong and not put added stress on the baby. The rest of the pregnancy I was on steroids and plaquenil ( lupus medicine), I was at the doctor 3 times a week for ultrasounds, and going to philadelphia every week which is about 2 hours from where I live. It was a long pregnancy, my son was born August 3, 2012 5 weeks premature soon after birth he had a pacemaker put in at ...


Posted by sherg on 2013-03-05 23:56. 6 comments. 577 reads
 
Hello, Pacemaker Club community. I am a new member. I decided to join because what I really am looking for is support and I suppose communicating with others who I can relate to.

In 2009, I was told that I had just survived what was believed to be viral myocarditis. It involves a virus attacking the heart. I was only 19 at the time and had just had a baby about three months before. I thought I had a bad case of the flu, but it turned out to be more. My sickness became worse and I had to be rushed to the emergency room one day where I nearly passed away more than once. Miraculously, I pulled through, but I later had a pacemaker implanted because my heart's function was pretty damaged.

Today, I do normal activities, but...


Posted by cb on 2013-03-03 18:45. 3 comments. 465 reads
 
Just got a pacemaker one week ago.....just checking (because the cardiologist said it was "between my ears", but is it normal to FEEL this thing firing? Sometimes it feels like a clock in my chest...tick, tick, tick...it is disconcerting. Sometimes I am not aware of it at all. Then a few times it has felt like something FLICKED at me! one very noticeable snap. And not between my ears.

Posted by dryburgh on 2013-02-23 08:43. 6 comments. 482 reads
 
I would like to correspond with other elderly pacemaker recipients for chats and friendship.

Posted by DOG72 on 2013-02-15 14:28. 0 comments. 285 reads
 
Thank you so much Tracy and Robert. I was a little apprehensive about that because the only symptom i have right now is that i get tired.. well 2 more weeks to go,, stay well, Elle

Posted by hayzach on 2013-02-14 02:53. 1 comments. 281 reads
 
I recently has my PM put in on 1/28 still in a lot of pain. Went today to have staples removed today and they decided to take lots of x rays. The one thing she mentioned was that my shoulder was manipulated during surgery and that could be causing my pain. My concern is I have already had 3 shoulder surgeries in the past and was wondering if anyone else out there has been in my shoes? I'm still having to take pain meds and not sleeping well.

Thanks in advance



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