St. Jude Medical Pacemakers & ICDs

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Messages in Surgery & Recovery Forum



Posted by Simmonsles on 2014-04-13 02:23. 1 comments. 31 reads
 
Hi all, new to the forum, had a CRTD fitted in early April. I have cardiomyopathy and AF so desperately needed something to improve my quality of life. Over the past 18 months I have been retaining water to the point I had gained over 1 stone 7 pound in weight and my ankles looked like elephant legs! Well, four days after fitting I have now lost 7 pounds, I can see my ankles and I am starting to feel like a human being again. The pain in the shoulder is also starting to abate now but it's going to take some time to get used to having this alien machine under my skin.
To anyone out there who is preparing to have a device fitted I can only say that my experience was far less traumatic than I imagined so be confident and good luck.

Posted by Ces58 on 2014-04-12 08:15. 7 comments. 189 reads
 
Hi. I am very new to all this. I had a pm placed just over a week ago and although I have had cancer surgery, complicated neck surgery this wound seems more painful than the lot! People say you forget about pain and maybe I have it wrong but the site where the pm is was incredibly bruised - it has gone down a lot but the wound site is still really painful. Is this normal? My implantation had to be done twice because they found one of the leads did not respond properly - this was straight after surgery. So it was done again immediately even though I had already been sewn up. Could this be why it is so sore? Everyone I know said this would be so straightforward. I have a heart block so the pacer only works when it is needed. As yet I don't r...


Posted by stbird on 2014-04-09 20:35. 5 comments. 120 reads
 

I'm in my second week of having a pace maker. When I don't have a bra on like at night and I get up my breast pulls down and causes pain. I would like to know how long this will last?

Posted by pbrannin on 2014-04-09 09:06. 3 comments. 74 reads
 
Received my PM March 25. Wondering how long for the swelling to go down? Had my first check up last Friday and the doctor said it looks good.

Posted by Sethun on 2014-04-09 07:18. 7 comments. 179 reads
 
Well, a second diagnosis later I've decided to go ahead with the surgery. My new pacemaker, who btw I've named Julia (love my girlfriends, right?), is being implanted next Thursday, on the 17th. Prayers are especially appreciated. The second doctor was much nicer, great bedside manner but he was so "informative" it scared the crap out of me. My husbands look of relief when I said "ok" was all the validation I needed.

I'm scared to death. I've heard about no going back, being linked to doctors for the rest of my life and experiencing the pain of surgery and recovery. Who wouldn't be concerned? But, as always, the risk of not doing anything far outweighed the benefits.

I've been reading on this forum, thank yo...


Posted by kushanku1976 on 2014-04-09 06:47. 1 comments. 75 reads
 
Hello.

Im 37 years old, am about to have my pacemaker repositioned under the muscle as presently under the skin it has moved and it almost popped out.

I was wondering will i be able to feel it or see any bumps once done.

I am 6ft 1 and normal build.

Im guessing if you push on it you will always be able to feel it, but I am unsure what to expect as a Man with a fairly thin chest.

Thanks in advance fro the advice,


Posted by amylh87 on 2014-04-09 06:06. 5 comments. 110 reads
 
Hi,

I had my pacemaker on the 2nd January this year, my scar is still quite painful, and the area where the battery is, is also quite sore.

I just want to know if this is normal? I have been back at the gym now for almost 4 weeks, I am doing weights, but nothing that causes pain.

Thanks,

Amy.

Posted by zatt2m on 2014-04-08 22:42. 6 comments. 114 reads
 
Hi folks,

Just reaching out to see if anyone can relate to or offer support with something I'm experiencing with my most recent pacer replacement.

Has anyone experienced pain/discomfort with body movement due to the size of their pacer? Specifically with the pacer rubbing/jutting into ribs and collarbone or having to "reach around it?" Has anyone been able to get their pacer replaced for these reasons?

I am eight days post-op from getting my third pacer implanted. While the brands differed, my first two pacers were almost identical in size and shape, both being about 8cc in volume size, and fit nicely into the same place in my chest - just under the incision. My new, third device is considerably larger, bei...


Posted by cheshirealice on 2014-04-08 19:52. 3 comments. 107 reads
 
Just checking in! I'm currently 2 weeks post-op with my third PM. I was 17 when I had my first one placed. My second was placed in Nov2013 but had to be replaced due to lead failure and now at 27 I have my third.

I had a check up today to look at incisions and they're looking great! I had the abdominal PM taken out and the leads capped. I chose to have a sub-pec PM placed and the whole surgery took about 4.5hours with a night in the hospital.

I was lucky enough to get the chief of Plastics to sew me up. He told me to start massaging the incisions gently with whatever I want. It can be expensive vitamin E, my favorite lotion, or Crisco for all he cares but to massage the incision. This is will make it heal faster...


Posted by offcut on 2014-04-08 12:04. 2 comments. 85 reads
 
HI

First post I am awaiting a date for me to have a Pacemaker fitted and then 2 months later to have my sinus node removed to make me pacemaker dependent. I have a lung condition also so exercise is out, should I see an improvement to how I feel straight away or does it take time?

Posted by ozzier on 2014-04-07 22:45. 5 comments. 188 reads
 
Hi all,

My mother is 59 years old and was advised to get a Pacemaker as her heart rate was up and down (to mid 30's).

Last Friday she got her Pacemaker inserted. The procedure took about 1.5 hours as she was the last one in. The surgery went extremely well with no complications whatsoever. There is no lump or anything apart from a small incision on the left of her chest. Seems to have been put in place quite well

The surgery was done via local anesthetic. When she got out of the surgery she had a bit of an upset stomach and some difficulty breathing, but nothing too major.

The same night they took an X-Ray to ensure there as no movement or anything wrong with the device. She left the hospital ea...


Posted by Diamond Jules on 2014-04-07 14:04. 16 comments. 228 reads
 
Hi everyone, I am doing well after 18 months but I am thinking back again to the actual op (which I had to have twice due to a loose lead!) and how PAINFUL & UNCOMFORTABLE it was!!! I thought I would feel some tugging but I felt I was being wrenched open...both ops! I can tolerate pain well but did have a little scream and everyone looked shocked, gave me more sedative and I think doc injected me with more of the local anaesthetic BUT still no relief!

Anyone else experienced this? What is YOUR story? I am dreading the battery change in years to come :-(

Posted by divergent1 on 2014-04-07 02:43. 16 comments. 369 reads
 
My pacemaker has been in place almost a month now. I'm sleeping probably 18 hours a day. Each day I tell myself, today I'm going to get moving, but an hour on my feet I crawl back into bed and sleep another 4 hours of absolutely exhausted sleep.
Today I slept until 2 pm. Took a relaxed slow paced walk for 40 minutes, came home, couldn't stay upright, and slept until 9:30 pm. I've been up an hour, worn out and am going to sleep again a few minutes. Last year at this time I could walk 5 miles at a brisk pace and put in a full day of hard work.

My reports of exhaustion to my doctor make absolutely no difference. Quality of life, maintaining employment has all gone away and my frustration that this doesn't seem...


Posted by Jackiemckee1 on 2014-04-06 20:53. 3 comments. 130 reads
 
I have had my new pacemaker for one week now. The healing process seems to be going well. I am a thin lady, so it is going to show. And I seem to have a larger one than some I've read about on here. That is not a bother to me. It is located right below my collar bone and, so far, protrudes out more than my collar bone. What I do wonder about is how the pm rolls up and onto my collar bone when I raise my elbow. Is this normal? It kind of hurts my collar bone... Being very new with this, I really appreciate your input. Thank you!

Posted by Hookslice on 2014-04-06 13:07. 5 comments. 146 reads
 
Recently had a pacemaker replacement (leads were ok). I was instructed to leave the sealed-by-tape bandage on for a week and no showers for a week. The sealed bandage is still on after 4 days but shouldn't the bandage be changed? Also, is there a way to shower w/o getting the site wet?

Posted by divergent1 on 2014-03-30 20:54. 5 comments. 170 reads
 
My pacer has been in 3 weeks now. The chronic headaches I had before it was placed are gone. My toes are no longer bluish so I see some changes. But, I'm sleeping non stop because I feel so incredibly weak and tired. Granted I began to feel really bad the last few months to the point I knew something was terribly wrong. I expected though that putting the pacer in fixed the problem and I should be up and moving and not so fatigued and exhausted. I used to be an extremely active person, I feel like I'm 80 now and I'm only in my 50's.

Has anyone experienced this, initially feeling worse before starting to feel recovered? If so was there a secret to finding some energy?

Posted by M. on 2014-03-24 20:57. 6 comments. 172 reads
 
Hello, I'm having my first pm installed in a couple of days. I'm a 62 year old female. My doctor offered me the option of installing the pm underneath muscle, rather than just under the skin, so it's less visible. He said that there would be just a little more discomfort while the site recovers, but because I am lean this would be less visible. Has anyone opted for this? thank you, M.

Posted by lizzie on 2014-03-23 15:34. 4 comments. 162 reads
 
Can anyone tell me what happens is you need surgery with a general anaesthetic eg gallbladder operation when you already have a pm fitted. Is it just a case of paying special attention to you during surgery or does the device have to be switched off.
I'm pacemaker dependant and got my third device fitted Last year and had a bad time for a few months post op with palpitations and getting it programmed correctly. I may be due to get gallbladder op and dont relish the prospect of going thru all that again if they have to tamper with the settings during surgery.

Posted by LitLady on 2014-03-21 23:30. 8 comments. 222 reads
 
You are wonderful!! I so appreciate all of your comments/experiences with bras and with sleeping those first weeks. Like one of the responders, I don't know what to expect. Never even THOUGHT about the bra thing until I got online. Did not expect a lot of pain either but I guess there is a fair amount of discomfort. How long did it last? What are the biggest lifestyle changes you have had to make? Does using a cell phone or iPad cause you problems? What has been unexpected? How is the pacemaker working out for you? Any and all information that was/is helpful for you, will be great appreciated! I'm a little scared about this life-altering step (4/3) but...not a lot of options! Having information helps. I tell my kids, "Knowledge is power!"

Posted by LitLady on 2014-03-21 17:45. 11 comments. 233 reads
 
Can I get some suggestions for what bras work after a pacemaker is installed? I don't know exactly where the pacemaker even goes. My surgery is 4/3. I am big-busted and older, so I do need support for comfort, appearance and so that I don't damage the site. I doubt strapless bras will work very well on an old lady! What kinds of bras have you found? Do the straps need to be far apart, wide, underwire, no wire? I'm at a loss. The only people I know with pacemakers are men. Also, were how were you able to sleep the first couple of weeks? It seems like it would be uncomfortable. Did you use a recliner?

HELP!



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