St. Jude Medical Pacemakers & ICDs

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Messages in Surgery & Recovery Forum



Posted by j2m1h2 on 2016-03-09 02:04. 1 comments. 203 reads
 
Because of my awesome insurance plan I am having to foot a lot of my medical costs, a friend of mine encouraged me to start a GoFundMe page and as much as I hated to be in the situation where I needed to beg for help I started one. Does anyone know of any support pages or groups where I can post my link in order to hopefully get some help? If so maybe message me some links if you can't post as a reply.

Posted by j2m1h2 on 2016-03-09 01:43. 5 comments. 320 reads
 
My PM surgery ended about 6pm on 3/2, I got tomorrow for a 1wk follow up but I am still experiencing quite a bit of pain, is this normal? A lot of people I saw said they were fine a few days later.

Posted by Worried on 2016-03-07 23:26. 10 comments. 287 reads
 
Hi...my daughter was diagnosed with 3rd degree heart block at 5 months. They are not sure why! Anyways she has been getting regular check ups every 3 months and today I was told that her sleep lowest rate has dropped to 32/min and she had a few pause for 3 sec. They want to put a pace maker that runs only when she needs it. Any one with little kids who went thru this? How is the operation? Recovery? Any complications? I guess I'm still in shock!!' Thanks

Posted by shellybean on 2016-03-04 10:52. 1 comments. 265 reads
 
im a 33year old female who has had 6 surgeries already and been diagnosed with many diseases.i dont think any of them have been right thus far tho.after repeated imaging thier saying they see 2mass in my abdomen that they think are ovaries.the issue is i had both of mine removed because they were imbedded in my body over 3 years ago.my pain is severe and never stops.i was diagnosed with gastroparesis withtin months of my ovary removal. i also started to get sores all over my body that have localized to my head since then.theydont have answers for any of it,my speciailst now thinks surgery is to risky.but living like this isnt a fun option,anyone who has wny suggestions please help.i wondered if what thier seeing where my ovaries were could...


Posted by dummyup on 2016-03-02 13:18. 12 comments. 612 reads
 
Hello,
I am new to the club and hoping for some info that will help calm my nerves a little. I am 59 years old, and will be receiving my PM this Friday. I have had a lot of the anxiety and apprehension that I have read about from other folks. I have been diagnosed with bradycardia. I am wanting to know from some of you on what to expect in the first 6 to 8 weeks. What general symptoms, good or bad. I am still trying to come to grips with this, and like many, probably not dealing with it very well. I know this procedure is performed to help, but part of me says what if it does not and I have made a mistake. I know it is probably the best thing, but when doubt creeps in sometimes, it allows for very negative thinking. Thanks fo...


Posted by Chinswimmer157 on 2016-03-02 06:36. 3 comments. 249 reads
 
Hello everyone,

So next week I have my S-ICD implanted and I'm a little nervous because I don't like needles and the fact that I'm going to be cut. So when you have the surgery did anyone feel a lot of pain? How long was recovery? And how long do you stay in the hospital?
Any insights would be great.

Posted by HeartbeatsNharmony on 2016-02-29 04:37. 6 comments. 231 reads
 
Are there any people around my age that have some type of equipment for their HEART or in it ? I started having Vtach episodes and passing out when I would go into VTACH so my cardiologist diagnosed me with prolonged qt syndrome cause still unknown. We're currently waiting on genetic test results. I just had a dual lead defibrillator pacemaker combo put in 7days ago. I was just wondering if any other younger bionic hearts are on this forum. I look forward to talking with everyone on Here.
ASHLEY

Posted by Bill3937 on 2016-02-27 17:29. 6 comments. 358 reads
 
I have been using a dual chamber pacer for 15 years. Recently my doc believes I would benefit going to a Bi Ventricle 3 lead pacer. I had surgery yesterday and he was unable to insert the third lead due to only one area open. Other veins are apparently damaged when I had open heart surgery back in 1998 with a valve replacement. So now I have my third pacer and still no Bi Ventricle pacing. Current doc admits that he does not have the skill to insert in the correct place due to my unique anatomy but knows another who can. The doctor is at another hospital. My current doctor is very experienced and has done hundreds of pacer and lead insertions. My question should I wait another 6 - 10 years and have someone else try to insert then or go for...


Posted by Longqtmom on 2016-02-27 05:57. 1 comments. 254 reads
 
I had a dual chamber pacemaker and difib implanted yesterday. I'm feeling great on my incision spot but I keep getting this fluttering feeling in my chest. Is that normal? It doesn't hurt but raises my anxiety which probably doesn't help.
I am so terrified of getting an internal shock after having so many external in the hospital.

I don't want to call my doc all the time for nothing but it's making me uncomfortable.

Thank you.

Posted by zee on 2016-02-25 17:09. 5 comments. 395 reads
 
Hi guys,

I was hoping anyone has suggestions or advice for me. I just found out that I have a complete heart block which is congenital. I have visited the cardiologist, and although I am asymptomatic he recommends I get a PM put in just in case I do start showing symptoms or in the advent of complete heart failure.

This condition has never really affected my life, it was a fluke that I discovered it too. I am 29 years old and feel like getting a PM, at this age especially since I don't have any degeneration symptoms, is necessary. Of course the cardiologist said it is completely my decision and he can only recommend and he understands why I feel the way I do, but insists I should think about it.

Is there an...


Posted by momsie2 on 2016-02-23 08:48. 4 comments. 285 reads
 
I was wondering if it is ok for my pace maker to be moving around while I bend over and/or turn over, while in bed. Also, while the pacer is moving about, can that cause the leads to disconnect? I am new at this, since February 2016 and quite worried and concerned! So if someone can get back to me, a.s.a.p., I would greatly appreciate it, since my post doctor appointment is not for another six weeks, I believe!!!!!

Posted by odonicola on 2016-02-22 11:37. 2 comments. 267 reads
 
Hi all, I'm 18 and had a pacemaker put in 3 weeks ago due to complete heart block. My symptoms were dizzyness, weakness and a resting heart rate of 42. I'm 3 weeks over the surgery and I'm feeling extremely dizzy, lightheaded and weak. Any ideas on what this could be? I had to leave college early today due to these symptoms :(

Posted by smiling_kid on 2016-02-18 09:31. 9 comments. 329 reads
 
I can't imagine myself in this situation, I am extremely nervous about my PM implantation in about a week. Apparently I have a 3rd degree HB, and asymptomatic Brady. I feel my life is never gonna be the same. I want to cry but can't seem to find time in between the nervousness. I feel like I'm broken. Is that normal? I feel like I'm not going to be me. Obviously I'm having a hard time coming to grips with the reality of its finality. My denial helped me a lot until it had to pat me on the back and go, "Dude, can't do nothing else for you". Like I'm only in my early thirties.....man this sucks.

Posted by leigha on 2016-02-16 18:24. 3 comments. 407 reads
 
So I'm 35 years old and was told 10 years ago I needed a pacemaker. I ended up asymptomatic for the last 10 years but symptoms returned and here I am 1 week post op.
I'm wondering about a couple of things. When they say don't lift arm up, how far do they mean? Like a 90 degree angle to my body or over my head? Can I use my left arm to push or pull? Also can I sleep on my left side?
I'm also having quite a bit of discomfort still. The md says its incisional pain but it's more sharp shooting pain into my breast. I'm thinking more nerve. I'm finding that wearing my bra constantly is helping alleviate some pain but md told me not to wear my bra. Any insight would be helpful. I have a 7 year old do it's just hard to sit and do nothin...


Posted by Cindymahe2016 on 2016-02-15 18:58. 5 comments. 333 reads
 
My husband just had a pacemaker put in January 17,2016. Since then he has been complaint of being so cold. Why would this be?

Posted by rick33949 on 2016-02-14 15:19. 2 comments. 253 reads
 
So after only 1 year of having my pacemaker and figuring out the Doctor who put it in screwed up, they are going to do a pocket revision and move my device under the muscle, I know many of you have had this doen can any give me a guess on how the recovery will be from this?

Posted by arbnor85 on 2016-02-12 07:54. 4 comments. 259 reads
 
Dear all,

3 weeks ago I had a surgery, implantation of ICD (dual chamber, left side). I felt pain in the first week and it eventually did go away. It has been more than 3 weeks from day of surgery and now I feel a heartburn (my chest is burning, when I take a deep breath the pain is even worse) as well as this feeling of burning in my throat.

List night I also almost vomit.

Is this something normal that happens to few people or do I have to check with any gastro doctors? Before implantation of the ICD I didn't have any of these symptoms.

Thanks

Posted by ceekay92 on 2016-02-11 15:02. 5 comments. 345 reads
 
Hello, ive had 3 surgeries before and all were good from what i remember... but 3 weeks ago i had a pacemaker change and the recovery process is different from what i remember... not sure is it because of the surgeon? or the operation process... it seems to be more painful and slower to recover... i am only 23, female...

also ive noticed this time that there is a lot of dried up blood compared to previous. I dont remember having so much blood stuck to me last time I had a pacemaker change when i was 15.

does anyone have the same problem? because the dried blood is actually stuck onto my skin and i cant really peel it off... and it doesnt wash off either.

Ive tried peeling the dried blood off that isnt as...


Posted by brandi_karl on 2016-02-10 19:44. 2 comments. 264 reads
 
Hello
This Friday will be 1 month since surgery for myself. Lately my shoulder area where my pacemaker was inserted has been very tender, sore & I've had pain. The pain would best be described as being punched really hard in the arm & feeling a bruise set in. Is this normal recovery pain? I also had the flu during recovery & that really wore me down & caused lots of chest pain from vomiting. I'm just unsure if maybe I pulled something in that whole process.

Posted by fjj17332 on 2016-02-08 23:01. 2 comments. 180 reads
 
well guys here we are 10 days after implanted defibrillator. doing GREAT, a little sore but THANK GOD. it is over and i got alot
of energy back. able to exercise, climb stairs. a whole NEW MAN here. thank you all for your help and comments during this difficult time for me. PEACE



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