St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Complications Forum



Posted by Aprilburns on 2014-04-15 10:56. 0 comments. 57 reads
 
Hi all,
It was discovered over the summer that I developed a junctional rhythm hidden in a dead zone that they could not adjust settings to fix. So it was recommended that I live with it, as ablading my AV node would risk heart failure. I have a dual chamber Revo due to sinus node ablation for serious SVT. The SVT still appears above 140-180, but below 140 my sinus note stops working and the pacer does all the work. I am 99% top lead and 2-4% bottom lead. So thats my background... now for the new problem.

A few months ago I woke up with my chest vibrating.. it was brief maybe 20 seconds but enough to wake me.. I thought the massage setting on my bed was accidentally turned on.. but it was coming from my heart. This h...


Posted by xhiker on 2014-04-13 21:05. 2 comments. 83 reads
 
I had a Medtronic ADDR01 put in last November. It is doing fine but I have had shoulder and neck pain ever since the surgery. Is this common? I also have two small bumps that show on the top side of the device. What are they. thanks.

Posted by kathy11 on 2014-04-13 19:23. 3 comments. 72 reads
 
I got a pacemaker due to heart block in Nov 2013. Heart test are all normal. I had pain in heart area when lying or bending(post surgery)... discomfort kind of pushes up to throat ..also some pain on deep inspiration. Did lead revisions 3 wks ago.
Apparently going thru all same symptoms again. The revisions did not help symptoms, but I am hopeful with time will improve.
Anyone ever experience anything like this? I am a small person.
Thanks!


Posted by dserranow on 2014-04-12 17:19. 5 comments. 176 reads
 
Hi, My name is David and I have a few questions to ask but first let me put a little history about me. One day around November 2010 I was working and felt very dizzy. I told my supervisor I wasn't feeling right and asked him to see if I can go to the E.R. He said ok and to keep him posted. The doctors told me that I needed to get a pacemaker because my top of the heart wasn't communicating with the bottom of the heart. ever since I had this pacemaker I been feeling weird pain on my chest right where my pacemaker is located is at. also been feeling light headed and very dizziness. I gotta add on that both of my legs became numb. I explain this to my primary and my cardiac doctors that I would have to deal with it. I don't know what to do an...


Posted by Jody on 2014-04-10 22:58. 3 comments. 165 reads
 
Thanks everyone for responding to my message doubting my decision to get a pm. Haha...like there was really any choice. I am relieved that I won't hurt myself or anyone else. Once I realized I was in danger, I felt uncomfortable doing anything..I was so worried. now I barely think about my pm. So...I guess it's my new reality.

I know this sounds ridiculous but being so young, 51, I wonder if I am going to have issues with scarring in my veins..since the pm is going to be with me for longer than the average person who gets a pacemaker. .I asked the doctor and he did say there could be complications. Anyone have such complications from having the leads in so long?

I am a worrier..sorry if this is a dumb thing to ...


Posted by zatt2m on 2014-04-08 22:58. 1 comments. 104 reads
 
Hi folks,

Just reaching out to see if anyone can relate to or offer support with something I'm experiencing with my most recent pacer replacement.

Has anyone experienced pain/discomfort with body movement due to the size of their pacer? Specifically with the pacer rubbing/jutting into ribs and collarbone or having to "reach around it?" Has anyone been able to get their pacer replaced for these reasons?

I am eight days post-op from getting my third pacer implanted. While the brands differed, my first two pacers were almost identical in size and shape, both being about 8cc in volume size, and fit nicely into the same place in my chest - just under the incision. My new, third device is considerably larger, bei...


Posted by planetmars46 on 2014-04-07 19:02. 2 comments. 96 reads
 
I have a CRT-D which was implanted 12/02/2013 on the left ventrical. It works great, fantastic blood flow and i can breath again. My energy has come back and i feel like a new person.
Concidering i had open heart in 1996, I feel blessed.
I am a 67 year old male in extremely good physical condition.
My question is. Has anyone experianced any body changes?
The left side of my body, especially my leg is bigger than my right. Calf and ankle area mostly.
I'm scheduled to see my cardioligist and will inquire then but am curious if anyone else has seen or heard of this side effect.
Thanks

Posted by Kala on 2014-04-04 22:41. 2 comments. 139 reads
 
Hi All

I'm Kala, I've registered here for my mum actually... Dad has passed away 30 years ago and she is the sole breadwinner in the family, taking care of 4 of my siblings.. It's been a tough order for a 32 year old women, with no working experience at all to take care of us, but she did a remarkable work raising us.. We all are in good positions in life now, because of her.. So I would want to have the best for her now..

She is 61 now and had an EF (Ejection Fraction) of only 17%, upon getting examined by our top local cardiologist in Malaysia, they have hv advised that the cause of the low EF is due to her thyroid and her diabetes..

They have highly recommended a CRTD to be implanted. Mum and all of hav...


Posted by aspen on 2014-04-04 22:12. 18 comments. 326 reads
 
Hi
I am a new member and am an endurance athlete. My pacemaker ceases pacing (and i fall into my junctional rhythm) after 20-25 minutes of moderate exercise. I have medtronic MRI safe 5086 leads with a Boston Scientific Ingenio 173 generator.

Anyone else with a similar experience?
Anyone heard of a reasonable explanation for this occurence?

thanks, Aspen

Posted by jokannar on 2014-04-04 10:31. 2 comments. 169 reads
 
I am a 64 year old male, was a vigorous tennis player, no health problems except bradychardia (HR 40). First pacemaker in 2001 at age 52. Now my 3rd pacemeker S606 put in June 2012. Since then, when I try to play, even at the first point running up and down, I get serious shortness of breath/chest tightness, and I can't run. Wait a few minutes, I am fine. No wheezing. Several settings were tried, no change. Setting is at 60, Holter monitor with event monitor was done, normal findings, Stress Echo done, normal findings through stage 4.
I can run on a tread mill slowly increasing speed from 2.5 to 4.5 miles mph and stay at that speed for 10 minutes without any discomfort. So, my shortness of breath/chest tightness (no pain or dizziness)...


Posted by jaybe630 on 2014-04-03 08:04. 2 comments. 145 reads
 
Goodevening people;

Just wondering if any one who has a biontronic dual lead pacer has had any issues re complications with meds after a while.
I had my op in Feb 2013 and at first had some issues with settings etc and fast beats but after seeing my cardiologist a few months ago who has me now on a low dose of digoxin, I think 65mg) little blue tablets which I take two of each day along with cartia to help stop clots possibilities.

Over the last 2-3 weeks have been getting a little dizzy at times, not enough to fall over but is starting to give me some thoughts as to long term use maybe of this medication and if it maybe affecting my BP?..I know he tried to explain to me in terms I understand that my pacer stops...


Posted by buttercup on 2014-04-03 03:25. 4 comments. 150 reads
 
Does anyone else suspect they are getting interference from a nearby microwave repeater station/transmitter? Every night except Sundays, between 7pm and 7.30pm, I experience a sensation that feels like a palpitation, but don't generally have them since getting my PM. It's always about 7.15 to 7.20pm - so too regular to be me. We have a transmitter tower atop a university building about 2 blocks away and in line-of-sight to our house. My StJude PM is wifi enabled, but the Merlin does not light up when this happens.

Posted by georgeazarmitchell on 2014-03-30 20:06. 1 comments. 180 reads
 
I am posting this information so that maybe it will save another needless pain and suffering .I had my ICD device implanted while on a 3 day vacation to Jekyl island near Brunswick ,Ga.
I was taken to the emergency room at local hospital due to my rapid heartbeat 225 beats per minute .After they shocked me successfully to get my heart back to a normal rhythm .this was done very easily and quickly .It was then recommended that I have an ICD device implanted in my chest before I returned to our home in Atlanta,,Ga. so I gave the ok. and the next day it was implanted .I thought all went well but I was mistaken !! I was released the next day and my wife of 42 years drove us home .On the road I experienced a sharp pain near the uppe...


Posted by daynanestor1 on 2014-03-30 14:00. 2 comments. 198 reads
 
For anyone getting a Pacemaker here is an article I found! Why don't the doctors have a plan in place for PT after the PM procedure so this does not happen to people (LIKE ME)! I am in PT now and hopefully it will relieve my pain! If anyone has any other news to share, please do!

The number of pacemaker implants done per year now exceeds 1.5 million done around the world.
They are currently mostly implanted subcutaneously in the subclavicular fossa using transvenous leads.
The shift from epicardial systems (how they used to implant them) to transvenous systems inserted into a subcutaneous pocket (What I had done ) has been accompanied by shorter surgical times and less complications.
However, now other probl...


Posted by Commando42 on 2014-03-30 07:49. 4 comments. 212 reads
 
Hello all,
I am wondering if anyone can share their thoughts, advice and experience regarding an issue I had today whilst running.
I am 33 and had my medtronic mri proof battery implanted 7 weeks ago for sss, symptomatic brady (20bpm) escape bigeminy and sinus pauses.I am paced atrially with aai-ddd setting, and no av issues. I have been recovering well and have been running for the last week/ lifting weights, after a 6 week hiatus. Previous to my implantation, I was unable to train more than 1 day per week for several months due to fatigue, dizziness and sob, I was puffing and panting walking up and down the stairs.
Yesterday I went for my 4th run since implantation, and it all went dreadfully wrong. Within a 1/4 mile I ...


Posted by msbrnskin on 2014-03-29 18:09. 4 comments. 135 reads
 
Im 46yrs and just had a pacemaker put in 3wks ago and im still in pain most of the time and some good days. I was just wondering what is the turn around time to feeling less pain and getting back to normal. Still some shortness of breath, sharp pain around the pacemaker, arm, neck and shoulder.. Doctor gave me no pain meds when i left the hospital and said to take motrin or tylenol. They give pain meds at the dentist here i had surgery and no pain meds, just until 1 wk ago they finally called some in.
this takes some getting use to , but sure hope to feel better soon truly working my nerves!!

Posted by TDJ on 2014-03-27 12:17. 2 comments. 145 reads
 
Hi. I am new, having just found the site while googling my situation last night. Here's my story. I had progressively worse a-fib starting in 2005, that led to 2 ablations, numerous meds and a mini-maze surgery by early 2007. All unsuccessful. I had a 3rd ablation in August 2007 that also failed. During this time frame I was cardioverted, by my wife's count, 24 times. By September 2007 my EF was down to 30, and I submitted to the ablating of the A V node and implant of a bi-ventricular pm/dif. The battery wore down 5 years later, and the right lead was involved in a recall, so in Oct. 2012 I had the lead retracted and replaced, and the current pm implanted. It is a medtronics Protecta XT CRT-D. Everything was fine for the first y...


Posted by NMWanderer on 2014-03-25 23:17. 14 comments. 199 reads
 
I had my pacemaker/ICD implanted in February. The pain has mostly gone, but there is a lot of discomfort above the implant, and it feels like there is something under the skin that is not present on the right in the same region. The area feels similar to what a large tendon would feel like. Is this usual? Whatever it is, it is extremely uncomfortable.

Any information would be helpful.

Posted by titanium12 on 2014-03-25 14:17. 0 comments. 52 reads
 
Thanks to all for earlier replies about balloon procedures in veins with pacemaker lead. My question is whether anyone who has had a clot come back, if you got symptoms like needing more sleep in day or aching in clavicle neck arm area? I know i still got some chronic clot but aching pain getting worse and so is my fatigue. I am not taking coumadin or other meds and the center I am at don't seem concerned. Id surely like to hear from people who have had clots and problems with pm's! Head feels full more easily too and I still have ongoing issues with my left arm. Just wondering if anyone has had similar and whether it was clot recurrence?

thank u all.

Posted by RTO on 2014-03-24 13:06. 7 comments. 181 reads
 
Hi all,
I am 31 years old and had my PM 3 years ago. I am currently 31 weeks pregnannt and my pregnancy has been going really good with no issues at all. I was wondering if anyone had been pregnant with a PM and did it cause any issues during delivery. My ob and cardiologist dont think I should have any issues, but they wanted me to get a consult with the anesthesia deparment where I am giving birth (I am guessing that's because the epidural lowers bp).

thanks.



Member Login
email:

password:



Who's Online?
We have 232 visitors online.

Members online:
  howdoyoumendabrokenheart
  Dizzytiltingwoozy
  bluebowtye
  runearth
  annie21
  TraceyE
  Pace-babe
  Tattoo Man

You're Wired When...
You are always wired and full of energy.

Member Quotes
I am no expert, but I believe that without the defibrillator that I have, I would be dead.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.