St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by Buckeye on 2014-09-20 22:50. 0 comments. 11 reads
 
Would appreciate if any members have had any experience with Cefaly which is a headband used for headaches. After ordering it, I started to wonder if it could hurt my pacemaker. Please respond if you have heard anything.

Posted by carolinagirl27 on 2014-09-20 15:00. 3 comments. 53 reads
 
Hi,
I just had my first PM implanted on Tuesday and have had a lot of inflammation from the leads since surgery. I found out today I now have pericarditis and am in horrible pain. My physician has given me a new medicine to treat it and so I hope to have relief soon. He told me this was pretty rare to happen but was wondering if anyone else experienced this after implantation?

Thanks for any input....

Posted by sstorck on 2014-09-20 12:00. 4 comments. 68 reads
 
I received my Medtronic Advisa Pacemaker in April of 2014. since then, there are times the pain is so intense in my left arm and chest rea right above the pacemaker and sharp I cant use my arm. trying to lift anything above my head produces a tugging feeling and feeling as if I am being shocked. we checked the pacemaker, it is working fine, my doc said its just part of the healing process that the lead may have moved and is sitting on a nerve. all I know is OW. it hurts like heck. I cnt take NSAIDS due to kidney disease. any ideas what this could be? or a cause?

Posted by KauaiBeachgrl on 2014-09-19 19:44. 3 comments. 79 reads
 
I'm 49 with a 7 year old dual lead medtronic pacemaker. I have had shortness of breath followed by weakness increasingly over the past few years. Doctors told me initially it was anxiety which I knew was "bunk" and then they said acid reflux and when I totally changed my diet to all natural and exercise, I still get it. Even more so lately with more intense working out. The Cardiologist medtronics techs have played with my settings for years. My heart is 100% dependent in the atrium and lately my ventricle changed from 3% to 50% pacing. It's set at 60 base. I only have bradycardia...I'd like to hear from others who may have had similar issues.

Posted by emily99 on 2014-09-19 16:47. 2 comments. 57 reads
 
Hi everyone. New to the sight. I received my PM about 2 months ago. My heart and pacing are doing fine I think although I do feel it kick in. Fortunately it only paces 20% of the time so it is not too bothersome. Before receiving PM I didnt realize for a long time what was causing my shortness of breath and several syncopes. The dr thought it was virus related cause it would come and go for about a year maybe longer. I was diagnosed finally in June of this year with 2nd degree heart block. While waiting for PM implant which was about a month I was very anxious and developed muscle twitches. I was told it was just anxiety. After surgery the twitches went all over my body sometimes actually cause a limb to jerk. I have no muscle weakness but...


Posted by Midwestmama9 on 2014-09-17 00:16. 2 comments. 93 reads
 
site of my implant is hurting for the last 2 weeks I've had the pace/defib two and a half years now

Posted by Marine8914 on 2014-09-16 23:55. 2 comments. 107 reads
 
I just recently had a dual chamber pacemaker implanted to help combat atrioventricular heart block which would cause bradycardia and hypotension which then resulted in pain, syncope and cardiogenic shock. Every time my pacemaker paces my ventricle, Vpaces, I feel it and it hurts. It feels like a horse is kicking me in my chest with every pace. I am also still going in and out of heart block and sometimes the pacemaker will pace me and sometimes it does not. Sometimes it paces when it's not supposed as well. Has anyone else had any of these issues as well? I have been to multiple cardiologists and electrophysiologists and every time it have to prove to them that I can actually feel the heart block and feel when the pacemaker paces. Every do...


Posted by goralski.chris on 2014-09-16 18:52. 9 comments. 162 reads
 
hello friends-
enter cardiologist-
pacemaker surgery august 26-
surgeon punctured my lung-
lung collapsed-
chest tube-
10 days in hospital-
dr removes stitches-
incision opens-
get restitched-
take off dressing today and entire sight is bruised and marks like blood under the skin-
haven't been seen yet-
but nurse suggested infection-
i want different dr-
clinic doesn't want me switch-
there is constant pain at the the sight-
have not slept thru the night since surgery-
i battle depression-
and i am breaking-




Posted by dragon on 2014-09-16 16:11. 2 comments. 73 reads
 
Hi

I have just had my dual chamber fitted 4 days ago and apart from the soreness in my left harm I am finding when I stand up I feel very unwell has any one else had this and how long does it last i'm 46 And feel life's changed drastically at the mo.

Posted by Rebecca611 on 2014-09-14 22:20. 2 comments. 104 reads
 
My grandmother has a St Jude pacer, Merlin at home transmitter. She is in a nursing home, they are telling me we can't set this up, because to many phones lines in the building, even though she has her own phone. Is that true ?

Posted by starlight on 2014-09-13 10:18. 5 comments. 254 reads
 
Is there anything out there to prevent solar flares from disrupting our devices? I've wrapped my chest in aluminum foil however I don't know if this works or not. Any solutions? Thanks, Starlight

Posted by howdoyoumendabrokenheart on 2014-09-11 21:22. 1 comments. 186 reads
 
Hey all,

I am wondering if the geomagnetic storm that is coming in a few days due to the solar flare eruptions on 9/10 and 9/11 will be cause for us to worry?

If it can disturb GPS systems and all I am praying it will not have any affect on PM's or ICD's. ("Geomagnetic storms can temporarily disrupt GPS signals, radio communications and power grids, as well as intensify the beautiful auroral displays known as the northern and southern lights.")

Anyone know anything about this? Thanks.

Posted by miller1 on 2014-09-11 17:55. 5 comments. 186 reads
 
Hi all I have not been here in a long time, I am not feeling well. About two years ago I received my pacemaker due to Brady Cardia, Last September I had Massive open heart surgery due to a walnut size blood clot in the heart on a lead, while they were in there they repaired my aorta, fixed a merma, found a tumor in one of the chambers. A 4 hour operation lasted 8 hours and 6 hour recovery went to 72 hours in a coma. A six day hospital stay turned into 17 days.

Well it's a year later and I just found out that I had a silent heart attack and they also just found out that I have a right bundle blockage. Nobody told me that this is pacemaker life. Right now I am weak and very tired all of the time, I have a hard time doing the stair...


Posted by Blackbird on 2014-09-11 16:27. 1 comments. 80 reads
 
A brief history of my illness had heart attack 2006 (luckily in Drs surgery!) went through all the usual stages of medication then had to have a by=pass eventually AF so bad put down for a pacemaker Was given a dual lead but within 3 days one lead had come detached, doctors wouldnt reconnect said in case of infection. For those 3 days felt quite a lot better, but since have gone steadily downhill finding life very much of a strain. I admit I feel peeved that the lead wasn't replaced and friends say if I didn't need the dual PM why was it put in in the first place I'm 83 so can't help wondering if age is a factor.

Posted by UKRecovering on 2014-09-11 03:00. 2 comments. 104 reads
 
Dear all,

I had a dual chamber pace maker fitted a fortnight ago (thank you for all the messages of support beforehand - they made a genuine difference in keeping me calm).

I have two questions that I would be grateful for any comments on.
(1) Over the last 24hours, I've noticed that when I lay on my right hand side I get an occasional 'thud' on the right near the top of my ribs - it doesn't hurt, just like a little thud/ kick from inside. Could this be pacemaker related?
(2) I'm on my third day of a phased return to work and surprised at how tired I am. It's a fortnight since the op and doing four hours in the office. How long have others found post op tiredness has lasted?

Thank you,
Nicola

Posted by doso1161 on 2014-09-09 14:27. 0 comments. 105 reads
 
I have written before about my son's Brugada. Last week he was at a friends house and had one of his spells. It was one of the worst he has ever had and had to be resuscitated. If it haden't been for a nurse who just happened to be there he would not have made it. His PM never went off. After several days in ICU they are sending him to the Mayo Clinic because they feel there is more going on than just the Brugada and can't figure why his PM did not show any activity but checking, it was working. Just not when he needed it. So we're off to the Mayo Clinic, an 1100 mile trip. Don't know how we are going to be able to afford to get there but at this point we have no choice. I'm sure God will find a way to get him there and provide the doctor ...


Posted by mikewallace on 2014-09-09 11:05. 2 comments. 72 reads
 
I've had chronic asthma for 50 years, using Ventoline about 10 times per day on poor days. Play golf twice a week and many other sports without too much problem.
I thought my asthma caused me to breathe badly, but then after fainting on the golf course, the doctors found my heart beat too low and installed a pacemaker. 2 weeks later I can walk about but breathing is laborious, Ventoline helps but not as well as before.
Any one out there with similar conditions? Comments and advice would be welcome.

Posted by NHeather on 2014-09-07 02:30. 1 comments. 131 reads
 
I have had a pacemaker for 1 month. Last week I started feel thumping on my right side near my waist, I could also see my shirt moving. Went to the cardiologist and the pacemaker rep did some adjustment, went away. Come back a few hours later, almost unbearable. Exhausting. Did not stop, happened every couple of second. back to the drs office early next day. Adjusted again, came home started up again. This was friday afternoon, called dr, got answering service, put me through immediately. He said to come in Monday will adjust again. The weekend has been horrible, Goes away when I walk but the minute I sit down it is back. Any suggestions...

Posted by Sonja on 2014-09-05 07:39. 3 comments. 125 reads
 
I have had my PM since May, 2014. Initially I had arm pain that went down to my hand. It seemed to subside, however, it has been back with a vengeance for several weeks. It seems to affect the muscle in the arm. I find myself rubbing my arm frequently. It wakes me up. It comes and goes and seems to move around all through each day.

Posted by skaggsoak on 2014-09-02 00:47. 1 comments. 106 reads
 
Crtp implant about 4 weeks ago since first programming a week ago been doing great. Then tonite while watching tv heart kicked in like extreme heart pounding mode almost taking my breath. I had not had one of these episode since my crt implant. Has lasted for about 1 1/2hours. Heart not out of rhythm just extreme pounding. Dont have my new box to send in report yet wife wanting to go to er. Whats anybody thinking. I've been energetic and working on house lately but just sitting here hr at 60 but a 60 thats about to blow my head off. Makes me a bit nervous it's lasting so long.



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