St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by lady4law on 2016-02-05 17:50. 0 comments. 133 reads
 
I have had my PM for about 10 years, but it's been moved 2 times, left to right side of chest -then back - right to left, due to Breast cancer. Shortly after my 2nd relocation, it was removed and replaced (along with the lead (wires) in my heart) with a MRI compatible PM. However shortly after that surgery I was involved in a car accident and my cardiologist called Medtronic and they recommended I NOT have the MRI as the new PM was having issues when patient went under the MRI machine.
Over the last year, about 12 months after the surgery, I have developed unbelievable pain in and around the area of the PM, including my ribs and shoulder. I am being scheduled for a PET scan to check for breast cancer mets, but my oncologist thinks, ...


Posted by memme on 2016-02-04 14:20. 5 comments. 164 reads
 
I had a pacemaker implant summer 2015 (with adjustment in October 2015), including a defibulator and a synchronizer. The last 2, 3 months I noticed my blood pressure on the rise. I have been taking lisinopril to regulate my BP for several years, but now it doesn't seem effective. The upper number bounces around 160-200, and the lower number is mid 90's. Any suggestions or explanations?

Posted by cam on 2016-02-04 02:00. 2 comments. 339 reads
 
I had a blackout on October 28th 2015, my 23rd birthday and the worst birthday ever!! I have only ever fainted twice in my entire life. Once two years ago when they discovered I had an irregular ECG and the second on my birthday. Other than on these two occasions I felt perfectly fine and had no health problems what so ever, growing up I had a good immune system too. Following my second blackout that I've ever had I was admitted to hospital due to having a very low heart rate and low Bp.. Little did I know that I was going to be told I couldn't leave the hospital without a pacemaker! This was the ultimate shock of a lifetime for me, you never think it's going to be you but when it is you want the floor to swallow you up and never bring yo...


Posted by my4turtles on 2016-02-02 02:56. 6 comments. 497 reads
 
The last several months I have told my Heart Dr and pacemaker clinic I'm having chest pains and AFib.. They tell me to either come in to the pacemaker clinic or Transmit .. Same old story, oh everything looks good , nothing is showing up". . I have been telling them I know what I'm feeling but what can you say or do when they have a computer right in front of them .. It makes me look like a crazy Person.. Finally I was able to capture some AFib episodes on live AliveECG app and scanner on my phone the Dr had me get and I sent them to him.. He agreed I'm having Afib, and had me go into the pacemaker clinic.. As soon as I sat down it started up and they tell me ' oh everything looks great" no need to worry.. That's when I pulled up my app a...


Posted by Lindermae on 2016-02-02 01:49. 1 comments. 94 reads
 
Hello All, I was admitted to the hospital in February 2015 with v-tach. After all the testing, no cause has been determined. I had a Boston Scientific ICD placed and I take 75 mg. of metoprolol per day. Since around April I started getting shortness of breath on mild exertion. It has since gotten much worse, it can happen with no exertion. After many more tests, the doctors can see that my oxygen sat is tanking, but again no cause has been found. I was wondering if anyone in the community here has experienced this or knows someone who has similar issues. Thanks!

Posted by rwja@comcast.net on 2016-01-31 19:53. 1 comments. 139 reads
 
I have had my pacemaker since Dec. 2013. I just wanted to ask if anyone on here ever get sicks, tired, weak, upset stomach since you have had your pacemaker put in ? Thank you

Posted by Tadpole on 2016-01-31 13:04. 8 comments. 202 reads
 
Has anyone worn a device that truly limits arm movement so the elbow won't go above the shoulder? To be clear, a sling does not limit movement of the elbow above the shoulder. I made a device that hooks to my belt and works pretty well. Has anybody done a similar thing? If such a device were available on the market, would you buy it and use it to avoid lead displacement?

Posted by ab1016 on 2016-01-29 01:46. 3 comments. 168 reads
 
Hi again, will 2 Weeks since pm in and still in pain and pm area very swollen, had bandage off today and nurse didn't seem concerned, but looking at it, it is very swollen, is this normal, also at doctors my pulse was 36 doctor adjusted pm higher and made sure leads didn't come off, he said my heart has an extra beat that is not being picked up by pulse reader, sounds weird to me, but my monitor should be in soon so hope that will make me feel more at ease. Just feel lousy tonight, this is going to take some getting use to I guess.

Posted by my4turtles on 2016-01-28 17:55. 2 comments. 215 reads
 
Hi everyone, short history .. I'm on my 3rd pacemaker BIV many ablations AV node and Sinus as they keep growing back. I started having issues again with near passing out a couple weeks again as well as the last couple month I'm having symptoms of A Fib .. I think once you have been dealing with this crap long ENOUTH you know. My Doctor had me get a Alive ECG monitor for my phone so I can take EKG readings. I have sent them to my Doctor and he agrees I'm having AFIB..
He said he was going to get me into the pacemaker clinic as when I transmit from home the clinic always tells me that nothing will shows up on transmitals which he says is weird .. I have been transmitting the last couple months every time this is happening .. I'm so Fr...


Posted by restll@aol.com on 2016-01-25 16:26. 5 comments. 232 reads
 
The reason I found out I needed a pacemaker was I was very tired all the time, and short of breath if I did anything above sitting at computer, also lots of dizzy spells. I had a pacemaker surgery due to slow heart beats of 41 a minute and heart stopped beating for 3.7 seconds. This was 12/16/2015 and the pacemaker protrudes and all over aching, and frequent sharp pains in chest. I have a friend that has just had one inserted in Aug and you cannot see or feel hers and she is having no problems (other than once in awhile a tiny shock)
Does this indicate that the pacemaker has moved out of the pocket and is the pains telling me something is really wrong.
thank you
Rebecca

Posted by cheesedoffjock on 2016-01-23 14:37. 5 comments. 288 reads
 
Hi Everyone

I wonder if anyone can help. I'm actually messaging on behalf of my ex husband, bizarrely, but he's in his 70s, in hospital and doesn't have anyone to fight his corner, if indeed it needs fighting.

He suffered a cardiac arrest in December. Was admitted and had a pacemaker fitted. Then on Christmas Eve he was back in with a stroke. Apparently he should have been prescribed warfarin, but wasn't. He is still in hospital. He was transferred to a rehab unit but is now back in the main infirmary because the leads to his pacemaker - only fitted a month ago - are loose.

I have no experience about this, but it seems a bit of a fiasco. I'm going to find out a bit more and see what the complaints pr...


Posted by Ayan on 2016-01-23 08:44. 2 comments. 150 reads
 
My mother has right bundle heart entirely blocked pacemaker was implanted back in 2011 the battery of the pacemaker was checked few days back doctor said that its ok and will go for another year but my mother is still faceing a lot of issues like she is not able to walk longer distance and not able to walk the stairs as when ever she does that her head spins so much that she is barely able to stand and her preassure jumps to sys mmhg 220 and DIA mmHg 87 with detection of hypertension pulse is 59 or 60 /min we're in this cold weather she is having to take a bath. Please help


Posted by judyo on 2016-01-22 08:27. 3 comments. 190 reads
 
hi. i just found this site ---and have a question. i have a st. jude pacemaker for about a month, and have the merlin@home transmitter in our bedroom. this is weird: i read a lot, and do so in the bedroom, and when i am in there i get terrible cramps in my hands, legs.

when i leave the bedroom, no cramps.

i wonder if there is any connection between the cramps and the transmitter? does anyone else who uses the transmitter have a similar side effect? or could it be the pacemaker? or could it have nothing at all to do with either of those?

thanks in advance.

Posted by ccryer42 on 2016-01-20 14:14. 3 comments. 231 reads
 
its been a month since I had my pacemaker put in place.. however for the last few days I have been having heart palpitations for some reason.. I called my cardiologist and he want me to come in at 2:30 this afternoon for a interrogation of my pacemaker...

Posted by mlanphere on 2016-01-19 03:30. 2 comments. 220 reads
 
I went to my cardiologist early Nov. 2015 because I was having chest pains. I had previously had stents because of clogged arteries in my heart so the chest pains were familiar to me. After a heart cath and because of a ulcer on the main artery entering my heart he scheduled a double by-pass. After the double by pass my heart rhythm was off and after six weeks he suggested a pacemaker. I've given a little history to see if anyone else has experienced this. For the six week after the by-pass I was progressively feeling better, after the pacemaker I'm having chest pains like I did before I went through all of this. I have to take nitro to get relief 1 to 3 times a day. My cardiologist says it must be indigestion and suggest I see a gastro Dr...


Posted by KevMc on 2016-01-18 05:49. 2 comments. 274 reads
 
Has anyone gotten or know someone who has gotten an urinary tract infections after having their pacemaker replaced?

My father had his procedure Friday afternoon and seemed to be groggy on the next day. Then on Sunday was very weak and unresponsive for a minute or two. I was thinking perhaps the anesthesia had not completely worn off.

He was admitted into the hospital and was diagnosed with a urinary tract infection.

Perhaps it was the combination of the two issues?

He was prescribed Keflex (Cephalexin) to be taken three times for ten days. He took the fourth one shortly before leaving for the hospital. Apparently the antibiotic is not able to treat the infection he possibly contracted after the s...


Posted by stoneygreek on 2016-01-16 15:11. 3 comments. 193 reads
 
received pcmkr/defib two days ago. Have some pain in incision area and arm. very hard to sleep as I can hear my heartbeat in my lower right side. I also feel jittery and a lot of anxiety. weirdest thing is I feel emotional! I laugh very easily and feel like crying for virtually no reason. did they make me into a woman in menopause? ( no offense to women in menopause) Just wondering if that is normal. my Heart was around 30 to 35 went i went to doctor. Now when I lay down to sleep I feel like I just drank a pot of coffee. Long post I know but I'm kinda new here.

Posted by philfut on 2016-01-14 18:37. 2 comments. 293 reads
 
What am I doing wrong, is it me. I was diagnosed with a 2:1 heart block in the AV node. I have always been an athlete Soccer since 5 (travel, CSL, OFSAA) took up weight training in high school, lamented not playing football, and then took up crossfit a while ago and have since ceased as my affiliate is a poor environment. So to my question, i went for a check up on nov 22, they noticed my sensing lead was damaged(the outer portion i believe something about a coil) the technician consulted a doctor who consulted the surgeon who implanted the last two who said since he is asymptomatic we shall send him home for 10 weeks with the orders to not lift heavy not to press outwardly rotate my arm do handstands or things that will crush the lead. It...


Posted by kghazari on 2016-01-13 06:01. 4 comments. 279 reads
 
Hi everyone, I've had pain in my pec, collar bone area and down my left shoulder and arm since my ICD device was implanted in Feb. 2015. I am fairly fit and tried to go back to yoga and weightlifting but the nerve pain keeps stopping me. Does anyone have any suggestions about what could be going on?

The only suggestion my EP specialist (who implanted my device) said was to see a neurologist or just learn to deal with it. Unfortunately it is affecting my workouts, daily work (since I work on a computer more often than not) and my sleep (it's hard to sleep on my sides). I thought it would eventually go away but there has been no change nearly a year later.

Thanks for any ideas or recommendations for how I can improve/...


Posted by jcoledds on 2016-01-09 05:08. 3 comments. 232 reads
 
I just had a single lead pacemaker placed for bradycardia. My preop pulse was consistently in the mid to low 30's. I am 68 yrs of age and have exercised heavily all of my life (running, triathlons etc.) . I noticed immediately after it was placed a dramatic spike in my BP. I have never taken any BP meds in my life. I asked the cardiologist about it prior to being discharged and he said he had placed over 2500 of them and never seen it alter BP.He said not to worry about and he would check it at my post op visit next week. My BP after my first post-op walk was 163/103!! I went into the ER and they started me on Norvasc 10 mg which has brought it back to normal. Has anyone else out there in pacemaker land had this experience???



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