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Messages in Complications Forum



Posted by westies2803 on 2013-05-23 07:49. 2 comments. 63 reads
 

All

I have been advised that I require the above for a Paragangioma of the neck. I am still waiting to hear from my Cardiologist as to whether it is ok to have this procedure. It has always been my undrstanding that having a PM stopped you getting an MRI Scan. My PM is a Metronic Sensia SEDR01 if anyone could give me any information on the subject, it would be very much appreciated.

Posted by Stephanie3 on 2013-05-22 21:55. 2 comments. 63 reads
 
Hey guys! Since the weather is starting to get warmer.. I have been experiencing some dizziness and sob.. I have been really good lately.. The only time I have felt horrible is when it starts to get hot out. I called the doctor to let him know I haven't been feeling good and he thinks its low blood pressure and being on a beta blocker makes your blood pressure even lower. I never had a problem with low blood pressure even had a title table testing done and it was normal .. I have been drinking tons of liquids and trying to eat some salt when I feel like I'm about to go down but it doesn't seem to help .. Does anyone experienced this? If so what other things can you do to prevent feeling this way or at least help it? I feel selfish trying t...


Posted by DOG72 on 2013-05-22 13:00. 4 comments. 63 reads
 
Had my P.M. Mar. !st. and was doing well.. But this last weekend i had the chills so bad that i could n,t stop shivering for the whole day plus achyness.. I wonder if any one has experienced this.. thanks for looking,Elle

Posted by Judewah on 2013-05-22 12:20. 5 comments. 71 reads
 
I'm a 48 yr old woman who was diagnosed with Lupus sle in 1985. Had a heart murmur since 1978. Had my spleen removed in 1985 while 5 months pregnant with a baby that had a complete heart block. They called what I had ITP. Then in 2002 I had complete renal failure and spent 3 months in hospital. Was released with a bilirubin of 21.7. After a few years of recuperation I started to lose weight rapidly and had frequent chest pain and abnormal selective swelling. Like one muscle i my leg or arm and knees. I went from 230 lbs to 130 lbs in 6 months. I went to the ER 18 times from April to October of 2009. Repeatedly I was sent home with pain meds and steroid pills. Finally I begged them to keep me and I soon found out I was in stage 5 lupus Nep...


Posted by sueg815 on 2013-05-20 12:16. 3 comments. 78 reads
 
Hi, I have had a pacemaker for a few years now, apart from the initial upset at having it fitted I am accustomed to it. Does anyone out there know anything about Induction Hobs, we have to have a new one this year and I would like to buy Induction as it seems to be quicker (we have no gas in our village so have to have electric) and better but have heard adverse reports about pacemakers, although I go through security at airports with no problem at all. Any advice or help would be greatly appreciated.
Sue Gallagher

Posted by bmurphr1 on 2013-05-18 10:09. 9 comments. 234 reads
 
This is my first post to this site, and for the most part I have been fantastic after receiving my Medtronic Revo pacemaker. I had a syncopal episode in January of 2012 where I was unconscious for a brief period of about 30 seconds, and doctors had no idea what the reasoning for my episode was. Several tests and doctors later, I had an EP study with subsequent ablation performed for SVT which helped with a lot of the palpitations I was feeling at the time. As time went on though I continued to have random drops in my pulse rate, dipping as low as 32bpm. Now, I'm only 28 years old and had considered myself to be in the very best of shape, so I would have never thought in my wildest dreams that I would be on the receiving end of a pacema...


Posted by JessiWay on 2013-05-17 16:41. 0 comments. 66 reads
 
Hi everyone,
I haven't been on here in quite some time. I had my PM implanted in February of 2010 for bradycardia & a 2nd degree AV block. A little background- In 2001 I had an ablation for v-tch, it would go up into the 200's & stay until I went to sleep. I hung in with it for 3 months (pregnant) & had the ablation following the birth of my boy. It went pretty well, though we aren't sure that the scar tissue caused by it wasn't the cause of the AV block that I developed. I'm 33, normal weight & optimal health according to my cardiologist.


I have been dizzy, fatigued, & light headed with chest pains for a few months. I went into the doc for a follow up appt & was informed that I've been having episodes of V-tach f...


Posted by angelsdoexist on 2013-05-17 08:40. 5 comments. 101 reads
 
Hi, i had my first PM fitted 3 days ago without any pain releif, wrong choice! i felt every injection and it hurt when they were inside pulling and tugging, it all went wrong and took 2 and half hours to put in a dual pm, next time i will ask for something to knock me out, although its very sore and painful i do feel more energetic, but i still feel breathless and my throat and next area feel a bit restricted and sore, im not sure if this is normal or if it will go away, has anyone else had these problems

Posted by saintseanlee on 2013-05-17 01:12. 2 comments. 64 reads
 
I was scheduled for a simple pacer change back on april 23rd but on april15th something happened. i was out shopping with wife when it happened i got dizzy and almost passed out my wife rushed me to the ER and instead of a quick pacer change i had to get a Defrib. It was the worst day of my life. I'm only 35 years old and i didn't think this would happen so eairly in my life. It is a big change but i know it had done. My only advise to any of us with pacers is "my name is Sean and i will most likley die of heart failure but NOT TODAY, NOT TODAY"

Posted by varmit on 2013-05-16 21:59. 5 comments. 94 reads
 
Just had my pm (double lead, on demand) re-installed for the 4th time, actually 5th time counting the first operation. What is going on? Each time healing gets closer and I feel better, then on a check up the wound is found to be a little bit open -- Dr. could see metal, etc. -- and it's a fast trip back to the or, with of course a month or so of re-healing.

I talked my Dr into inserting it into/under a muscle after hearing that this was an accepted procedure for another Dr. My Drs say it's their normal procedure to set it just under the skin. What are the norms?

Posted by MBPrissy on 2013-05-16 11:38. 4 comments. 148 reads
 
Looking for reassurance! My pacemaker was implanted on 4/4/13 for the first time due to bradycardia. Had to have lead displacement surgery on 4/26/13 and again on 5/13/13. Doctor said the hook in the lead had straightened out both times and needed to be placed in the hook position again. If the last surgery does not get the "hook to hold", he said I would need major surgery to attach the leads to the outside of the heart chambers. Can anyone give me any info or advice about what is happening with my leads and what my options may be if this does happen? Thank you!

Posted by csukhai on 2013-05-14 23:45. 4 comments. 160 reads
 
Female. Pacemaker installed around 2006. Itching from head to toe all hours while awake. Can't find relief. Diriving insane. Poor quality of life because of constant itching. Does anybody know what I can do to get some relief?

Posted by medic502 on 2013-05-14 22:09. 3 comments. 156 reads
 
I am posting for my mom (biotronik pm) ...She was telling me since the last adjustment that was made due to problem when she was on a bumpy road that she has another issue. For the past 2 weeks each night at precisely 945pm that her heart starts racing for about 40-45 seconds. Well last night I hooked her upto the cardiac monitor (I am a Paramedic) and at exactly 945 with her sitting quietly in the chair her Pacemaker fired up and the monitor went crazy and showed a Pacemaker Rhythm at 150 plus for about 40 seconds. I counted the strip I printed and I counted the rate at about. 80...monitor shows 150. So is this some kind of daily self test or what... I have not heard of this and the Dr is seeing her in. 2 days. Anyone else have this ...


Posted by Bobbi on 2013-05-14 20:49. 6 comments. 107 reads
 
For the past few weeks, after placement of my pacemaker (I call her PacieMay), I feel like I have a nervous condition. It feels like "butterflies in your stomach" only it is in my chest area. It would only happen once a week...but this last episode has lasted 3 days.

When I asked the tech at the clinic, she said it was because I can feel my heart beating. No. I don't think so. I am nauseated from it. It doesn't happen when I am sleeping. Only when I am awake.

I plan on seeing my cardiologist this week, but I just wanted to know if anyone else has felt like this.

Thanks for any help you can give.

Posted by zas on 2013-05-14 15:02. 5 comments. 139 reads
 
My daughter is 10 yrs old. She has congenital heart disease (tetralogy of fallot) underwent repair surgery when she was 9 months old ! Subsequently had a pacemaker installed at 6 yrs .

She was perfectly fine and then suddenly developed high fever went into cardiac failure and was diagnosed with endocarditis. ..vegetation on the lead. I was shattered and thought I had lost her.
Moved her to one of the good hospitals of India. ..she is currently on high dozes of antibiotics and has come back to her normal self.

The issue is that the lead needs needs to be removed and there is this fear of the vegetation getting dislodged. Thus many were considering open heart surgery !!!
Doctors are meeting tomorrow and ...


Posted by charunetra on 2013-05-14 03:00. 5 comments. 116 reads
 
Hi, my name is Mercy. I've had a Cardiac Pacemaker ever since i was 2 years old, n even over ther years its still hard getting used to the fact that u get limited things to do.. and still @ 29 years old i still have issues getting the symptoms correctly... my last implant was on 1999 thirteen years ago, this past few weeks i been having dizziness n vertigo on and off, should i be concerned n go to the er? This hasnt happened to me bfore, i usually just have blackouts for signs of a new device to be inserted.. can anyone give me an advice..
Thank you
Merz

Posted by Joaurora on 2013-05-11 16:25. 5 comments. 152 reads
 
Didn't get message finished. Is shakiness common after implant? I felt great yesterday, two days after, today feel shaky inside, everything vibrating inside. Pulse is good at 60 but I feel awful

Posted by Joaurora on 2013-05-11 16:19. 0 comments. 35 reads
 
I have had my pacemaker just three days and today feeling awfull shakiness

Posted by Heartbless on 2013-05-11 11:18. 5 comments. 95 reads
 
Hello there. . hope this finds you all coping and well. I have now had my PM for 9 months and had been feeling really good, once the rate had been increased from 60bpm to 75bpm after my 3 mth checkup.
Unfortunately, in the past 2 weeks I have suddenly developed this stiffness at the base of my neck which in turn makes it difficult to turn my head fully to either side. It also causes at least 2 headaches a day. . . The end of my shoulders are also tender, especially if I "squeeze" into the muscle around the arms. Most irratating and I would appreciate it if anyone else could reply who has had these symtoms and what might be the cause???? Thanks guys.


Posted by tigerlily on 2013-05-09 11:13. 8 comments. 150 reads
 
I had a pacemaker implant 3 months ago and am having terrible pain at the site as well as my shoulder, down my arm and along the leads. Dr. says he has no idea why and he's done all he can do except take it out. Anyone else experienced this? I'm new to this club and feeling desperate.



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