St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by 7pacersandcounting on 2015-05-28 17:23. 0 comments. 9 reads
 
After my sixth pace maker at age 56 my left arm started to swell
The Dr. said lasering out an old wire that was in the way of blood flow would help the problem. That was the biggest mistake. post op the arm was so swollen I couldn't move it, then I was told I had three brachial plexus blood clots and went on war fin for about a year. the swelling went down as my body made new veins to go around the clogged ones. They say the clots are gone, the arm was always still a bit bigger then before. Just in time for pace maker seven the LV wire stopped working so it had to be turned up "voltage". so I needed a new pacemaker. Now they said the sub claivain vein is totally occluded . so they couldn't get the new wire in and I didn't want laser. ...


Posted by wills57 on 2015-05-28 06:11. 1 comments. 21 reads
 
just now for the last few day i have felt like a muscle twich i have just had my pacemaker fited it is a 3 lead one

Posted by Mama5a on 2015-05-26 21:14. 4 comments. 148 reads
 
Hello All,
I am new here and have been following a lot of the posts. I have a few question myself.... A little about my self, in 2013 I was diagnosed with Cardiomyopathy. It did not worsen until mid 2014 thats when I needed to get several surgeries after falling back in and out of Atrial- Fibrillation.

Then in February the Cardiologist decided I need a pacemaker/ Defibrillator. I received the new pacemaker and I knew something was wrong afterwards and they said I had fluid build up around the heart (they said it was nothing). A week later I went to the ER and they said a lead punctured my heart, and now I have been in and out of the hospital on a weekly basis, and I can no longer work.

Question One: Could a lea...


Posted by Merielle on 2015-05-26 08:28. 4 comments. 132 reads
 
Hello everybody!

My name is Merielle and I'm new here. Not new to pacemakers, but you know what I mean. I was 13 when i had my first implantation surgery (2008), and I really never used the thing. The battery lasted 6 1/2 years, and I just got it replaced with the fancy Metronic model this past march. Here is where things get weird: I've had this new PM for 2 months now and every night at 1 AM it paces me. Like a noticeable, uncomfortable, palpitation like feeling. Maybe it's the new model, but has anyone ever had this problem? It is SUPER annoying, and I hate it. Anyone??

Thanks,
Mer

Posted by berniewernie on 2015-05-25 19:50. 4 comments. 119 reads
 

Hello everyone I had a pacemaker revision on 11 May, so two weeks ago. The scar is fab hardly visible but I have a hematoma on one side and a smaller one the other.... the larger one is so very painful and my consultant has looked at it and said it should go down in 3 weeks... if not have to go back to him. I am taking pain meds 4 hourly and sometimes sooner as the pain is so bad. If I do absolutely nothing at all its not so bad but if I try and go about daily activities, within reason for post op, its unbearable. Any ideas as to what I can do to help me cope with the pain? I have read cold ice then warm towel but I am scared to do this as dont want to make it worse. Is it dangerous this hematoma? My consultant didnt seem over c...


Posted by Chooka on 2015-05-25 10:12. 1 comments. 67 reads
 
Hi all, I can't remember the last time I posted here (if I posted at all), but it would have been some years.

I have been pacemaker dependent for 30 years, since the age of 17 after having AV node ablation and removal of the SA node and I am now 47 years old. I have been on a single chamber pacemaker for the whole duration.

Last year I was implanted with Boston Scientific Vitalio (blended sensor) and it hasn't worked well since the day it was implanted. The minute ventilation sensor does not work and when it is switched on, also inhibits the accelerometer from working.

The only explanation I have been from BS has been that they made changes to their device design which "affect a small number of patients". ...


Posted by Chris2015 on 2015-05-24 16:37. 2 comments. 124 reads
 
Having these episodes for over a week now, it starts with sudden dizziness and instant fatigue where I have to stop what I am doing it starts in my lower body goes to my head than down my back and ends with chills. I had bloddwork, chest xray, halter monitor test and the PM checkout out by St. Jude Tech, everything came back unremarkable. Have had the dizziness and fatigue in the past and it has always been an adjustment to the pacemaker, and went back to normal.
They have been saying I will need a new PM next year. One of the leads have been acting up, but they have been able to compensate with adjustments to the PM.
But they say all is well with the PM, and they suspect vertigo, due to a virus or something, I am ...


Posted by amlanda78 on 2015-05-23 14:09. 4 comments. 188 reads
 
I had my pacemaker replaced on March 9, 2015. I now have a Medtronic Dual lead MRI Sure Scan Pacemaker. I have been having some issues with it. I have been up all night with it shocking me. It hurts/shocks me in the same location. I can actually point to the spot on my chest with one finger. It hurts on the inner left side of my chest, where the leads are connected to the generator. It is even swollen a little. I do not know what to do. When it shocks me the pain is a 10. It is a holiday weekend so I am kind of stuck. Should I go to the ER? What can they do for me? Is it an emergency? I am wondering if the lead is fractured or if it is just on a nerve. If I lay on my side it shocks the heck out of me. I do NOT have a difibulator. I know if...


Posted by ironpacer24 on 2015-05-22 15:42. 4 comments. 192 reads
 
Hi everyone!
I'm new to this website, and I really look forward to interacting with people that have pacemakers just like me! First, when I was four years old, I went into cardiac arrest, and was told that I had a third degree congenital heart block that would need a pacemaker. I'm currently 22 years old, and I just received my 4th pacemaker in April 2014. Ever since I had this pacer put it, I've noticed that I'm not feeling like myself. After the surgery, I was in the emergency room twice. Once was for a severe rash all over the left side of my body, and the second time for severe pain. Since last year, I have developed severe fatigue, muscle aches and pains, blisters on my mouth even though my dentist says my teeth and gums are heal...


Posted by Pacey on 2015-05-19 09:16. 1 comments. 181 reads
 
Seven months ago I had a pacemaker replacement. When I went to see the cardiologist I said I am still in pain. He said during surgery the previous pm was stuck in very hard scar tissue which they had to rip/rend/shred/tear to remove. I remember also the scalpel went way too deep causing excrusiating pain. I was given more local anaesthesia but still had pain during remainder of the procedure. He said give it time well I still have pain can not sleep from it, all small little household chores are painful and I can not do my craft hobbies etc I have given it time and I do not see any improvement or lessening of pain. They also implanted the new one deeper than the previous one and as I have big bust it also is an issue when the bust shifts. ...


Posted by jaybe630 on 2015-05-19 08:42. 2 comments. 159 reads
 
Hi everyone;
Just wondering if anyone can shed some light on Pradaxa 150mg.
As said before some time ago I was diagnosed with AF and have had a dual lead Biotronik pacemaker inserted, things have not been to bad and have been on cartia and Digoxin, but the other day lost some vision in right eye, peripheral, anyway went to hospital and was checked thoroughly and after some tests they reckon I had a Mini Stroke which is scaring me big time.
Went back for more tests today and now want me to go on Pradaxa and also Crestor as Cholestorol a bit high at 6.1. as said bit worried about this new drug and its bleeding possibility issues, does anyone out there know about it or are taking?, thank you and value any feedaback.
Kind r...


Posted by gordon on 2015-05-17 04:34. 4 comments. 163 reads
 
I had my pacemaker fitted five months ago no problem with the operation that was the easy bit l am eighty four and since then l feel tired all the time no energy and a problem with sleeping for more then a few hours l have been to the clinic three times for a checkup but still feel the same.l know it's not my age because a friend of mine who is a hundred copes better then me after having his pacemaker fitted at the same time has anyone else had this experience please let me know.all the best Gordon



Posted by Judy13 on 2015-05-15 22:31. 2 comments. 177 reads
 
What are the symptoms of a lead being pulled out?

Posted by NMWanderer on 2015-05-12 13:58. 3 comments. 236 reads
 
Hi all... I have not been in here in ages! All kinds of things keep happening, and I find myself worrying more about life in the real world, than about life in this strange cyber world.

So... Anyway... I have been offered 3 options by an electrophysiologist, after suffering with this horror story of a 3 lead, combination ICD/Defibrillator.

1. Leave the unit in - I was told it had never been implanted properly

2. Remove it and replace it. Why should I? So far I have yet to find a doctor I really trust, given 5 major surgeries since 2010 and all the problems that have come with them; or,

3. Have them remove it and take my chances.

There are definite pros and cons with each option, but ...


Posted by 1977Scout on 2015-05-12 01:40. 1 comments. 177 reads
 
my cardiologist recently informed me that I have a irregular heartbeat while at rest. I have a t. Jude 2210 two lead installed July 2011. He tells me that he would like me to try the drug route, then maybe ablation to cure the abnormal heartbeat. I only have the irregular beat at rest,when active, it goes away. Sometimes I have this "lumping" beat, or a flutter. Very scary sometimes. He wants me to wear a "holter" device to track the irregular beats.

I jog, bike, am very active. Don't know what to make if it.


What I'd like to know is: what are the negatives of ablation therapy? I will also go on the internet for discussion topics.

Any responses will help.

Posted by Sarahsverd on 2015-05-10 08:17. 3 comments. 166 reads
 
Could anyone help I had a duel chamber PM fitted in January 2015. I've been in pain ever since. My scare is burning and stinging all the time the area round my PM is painful to touch. I can't lay on my left side. Or lay flat on my stomach. The pain and burning is to be getting worse. The area around my PM is swollen in the mornings. Is this normal. 😔

Posted by statuesque on 2015-05-09 16:28. 5 comments. 327 reads
 
I know that many people feel that their PM's really helped them, unfortunately that is not the case with me. I was never able to return to the level of activity I had before it was implanted..before implant I reached a personal goal of 50 flights of stairs in one day after pacemaker 0. If I try to be active I get extremely tired very quickly and break out in a cold drenching sweat......I have been home bound since my surgery, no more pool or walking my usual 10,000 to 20,000 steps a day and 10 flights of stairs daily logged by my Fitbit.My new Doctors ran new cardiac test which all came back NORMAL and after lowing the settings to 40 bpm's my last check came back I was using it 1%, my cardiologist said it is just sitting in my chest........


Posted by Hays1946 on 2015-05-09 12:28. 4 comments. 216 reads
 
I had Biotronik will be 2 weeks Tuesday, I was just sitting in chair watching TV, and such a syncope feeling came over me like none before, I thought my head was going to explode, then it just eased off. Anyone have this happen, I thought this would keep me from having syncope?

Posted by IdkAname on 2015-05-08 18:05. 3 comments. 216 reads
 
Hi so I've had a dual chambered pacemaker since the age of 15. I had a ross/konno procedure done and they were too aggressive and caused me to get the pacer. My question is, My battery has finally ran out. And I can not afford a new device change. So what is going to happen? They are trying to rush me into getting a new device but I cant put myself in debt for it. I would just like to know if I can get by for now?

Posted by japandata on 2015-05-08 13:29. 2 comments. 208 reads
 
Just wondering if anyone has had this.

I'm about 9 months with my second pacer (Boston Scientific) and I'm experiencing an increased amount of pain around my heart and armpit, with associated dizziness and nausea. With my old pacer, I had maybe 2 afib events recorded every 6 month visit. My last visit showed 14 and it's pretty much jumping or falling out of sync about every 5 minutes now. Can't sleep as I go into afib lying on my back and experiencing a lot of numbness in my hands and legs when I wake up. Also have this odd fullness in my head, like a balloon, that comes and goes.

I saw my pacer doctor in March and he didn't think this was an issue, even with the higher number of episodes. I'm going to see another do...




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