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Messages in Complications Forum



Posted by DC Pacer on 2009-05-30 13:37. 5 comments. 195 reads
 
Hello - 35 year old male that was diagnosed with Wolff Parkinson White last February. Catheter ablation corrected the issue, but the following November I had another non-WPW SVT arise. Need for pacemaker implant after my most recent ablation attempt this March to correct that SVT.

The question, is it normal to experience a "skipped beat" with a pacer, especially in the evening? The rhythm that develops is "beat-beat-beat-pause-pace-beat-beat etc".

Also, I am still experiencing SVT's because the source of the SVT's is positioned next to my AV node, and it could not be corrected due to the proximity; the attempt lead to complete heart block as the AV node was nicked/damaged during hte ablation. What would your comfo...


Posted by riodog on 2009-05-29 20:16. 1 comments. 130 reads
 
Hi,
I'm new however I have lurked a few times. My Medtronic ICD was implanted 3/10/09 after I was diagnosed with CHF. I had a lot of complications from lung puncture and was rushed by ambulance back to the hospital after just two hours at home. I got air under my skin so bad that my cardiologist said I looked like a giant inflated blueberry and my friends told me I had no neck after being zapped 3 times by the ICD. If you touched me I sounded like rice crispies. Needless to say, I was not allowed a mirror nor was I well enough to use one. The air did get absorbed and after 10 days in the hospital and being completely out of it due to drugs I finally got to come home. The ICD was adjusted once to advance my heart rate from 60 to 70 thu...


Posted by Angelie on 2009-05-29 13:34. 3 comments. 118 reads
 
I am only able to run about 1/4 mile....my progress is going very slow. It's frustrating me to know end.

Anyways, running is fine, other than tiring quickly, but afterwards, my neck veins pound HORRIBLY, and it feels like my head's gonna pop off.

Ya'll think this has something to do with my rate response?

Also I asked my doc if we could turn my pacer off at my next interrogation so we can see what my rhythm is. He shrugged against it and said, "I wouldn't do anything that might trigger you to go into flutter again....leave it alone...."

frustrated,
Angelie

Posted by bullseye on 2009-05-26 02:13. 3 comments. 118 reads
 
hi everyone hope you all doing well ive not been on for some time ,well i have a qustion to ask my hubby has a pm and merchanical mitral valve pm for just 7 months well the last few days he has mentioned he feels like he is getting out of breath even when talking ,i was woundering what this could be ,he started on beta blockers 3 weeks ago ,but this breathlessness only started 3 days ago so i dont think it could be them and only a small dosage ,any ideas thanx all as he fed up of running to docs men lol

Posted by itsameg on 2009-05-25 21:14. 3 comments. 198 reads
 
Hi all! Happy Memorial Day! So I had my pacemaker put in March 19th and since then have made nothing but bigger issues then I had before. Pre-pacer I would get dizzy and pass out monthly, nightly I'd feel a bit of a flutter, and occasionally I'd have blurry vision. Now I have all of those more often along with chest pain, feeling like my heart is beating out of control, and sudden naseua. So after multiple visits to my cardiologist, multiple ER trips, and countless pacemaker check ups they decided to do a holter monitor (hmm... you think maybe this would've crossed thier mind a bit earlier...) What they found is I'm having pacemaker mediated tachycardia, which as best as I can understand means that my pacemaker is working over-time and act...


Posted by RaggedyKat on 2009-05-22 21:18. 7 comments. 194 reads
 
I have a dual chamber pacemaker I received in Nov. 2008. I was diagnosed with complete heart block after a sleep study. Two weeks ago my family physician said that my sleep study showed that my oxygen level was dropping into the 60's when I slept. I asked to do another study because I was hoping that the pacemake had fixed this. I did a home test on Tuesday and my doctor has ordered oxygen for me to use while I sleep. I feel like my life is slipping away and I am unable to stop it. Does anyone else out there do the oxygen therapy? Do I have COPD. I have never even smoked! I am only 57.

Posted by petrolhead on 2009-05-22 14:17. 2 comments. 106 reads
 
I'm allergic to wasp/bee stings, so was pretty terrified to return home from shopping to be confronted by a huge great hornet, at least 3 times the size of a normal wasp in my bathroom!!! But that got me thinking, if I do get stung, I have an Epipen which I'm supposed to inject into my thigh. Obviously this is adrenaline, which increases your heart rate, and I was just wondering if - were the worst to happen and I'd have to inject myself with it - would it have the same effect, because I have a PM?

I've barricaded myself in my bedroom, and put a rolled-up blanket at the bottom of the door. I'm not coming out until my brother gets home!!! I don't want to end up in A&E tonight!! But if I'm not around for a few days, you'll know w...


Posted by Lyds on 2009-05-20 05:09. 2 comments. 138 reads
 
Hi again.

I'm now about 3 1/2 months post op of my first pacemaker. I had a side insertion, which has been absolutely fine so far.

However....over the past couple of weeks I have been suffering quite a bit of pain. It's not constant, but varying from excruciating to minor. I think it might be the pacemaker moving, however I don't know if this should be painful or not. I'm also sffereing chest pain, which was never a side effect of my NCS, but has only started since the pacemaker.
I occassionaly (daily) find myself with a sore chest, and after pushing on it, and moving the pacemaker it initiallly hurts, but seems to settle down. The pacemaker seems to get stuck, or sticks out of my chest at an angel, and ...


Posted by sailingvan on 2009-05-20 03:44. 3 comments. 133 reads
 
Hi all,
My pm (medtronic sedr01) gives me three hard thumps at 3:14 am every day. Used to be 4:14 before daylight savings time. If I am awake i could almost set my watch to it. Anyone else have this happen to them?

Also sometimes when iI am crouched or leaning over doing something picking up a tool or tying my shoes I will get a couple of thumps and when I stand up sometimes I am quite dizzy have to hold on to something is this normal?

Brent

For more about my history ie implant details search for "thank you for being here for me"

Posted by racewife83 on 2009-05-19 13:52. 7 comments. 146 reads
 
I am 42 and got my 1st pacemaker on April 29. Everything I have read on here is kind of scaring me. Am I supposed to have complications? How do you get shocked from your pacemaker?I haven't had any problems and am feeling great.

Posted by kelsieb on 2009-05-16 17:46. 4 comments. 157 reads
 
Today i made a really stupid move and tried to clean paint out of a electrical outlet with a wet rag. I was shock. could this mess with my settings or packemaker in anyway? im due to do a phone check in a week. so if somthings wrong i guess they will find out then. Just didnt know if i should call my doc now or just wait. Please respond!

Kelsie

Posted by truenorth on 2009-05-15 17:35. 2 comments. 134 reads
 
On April 6th I was sent by my doctor to London Ontario to have my current pacemaker removed, as well as the old leads that were left in from an old pacemaker site because they were causing a VERY staph infection that otherwise refused to be cured, even by prolonged infusions of vancomycin via a portable IV pump.

A long and complex operation that left three big scars on my chest, as well as the insertion of a cable through a vein in my groin to my heart.

But, there were NO complications, and recovery has been swift and smooth.

I was on a heart monitor for a couple of weeks afterwards, and had two holter monitor tests for 24 hours apiece.

There was ONE skipped beat in 24 hours!! WELL within the nor...


Posted by rozybud on 2009-05-14 11:23. 4 comments. 124 reads
 
I had a pm put in 4 months ago for syncope, waking up early am hrs w/ extreme nausea, dizziness and passed a couple of times. They found my heart was pausing up to 25 seconds that they recorded.
No more episodes until early this am...woke up very nauseus, lightheaded, felt confused, seemed very much the same as other episodes. Mabye my pm isn't working?
I'm going to try to get in tomorrow to get it checked (they only do so on fridays0
I have had some pvc's lately..can they cause Nausea???

Thank you~

Posted by justwatchme on 2009-05-12 19:12. 3 comments. 117 reads
 
Hi, I have my third case of pericarditis since August when I had my PM implanted for a 3rd degree block........I asked the cardiologist if the pacemaker (more specifically the site where the tips are anchored) is causing this and he said it was unlikely..I have read with dual PM implantation sometimes they over screw the tips leading to recurrent pericarditis due to irritating of the pericadium as the thing irritates....He says it may be autoimmune given my history.... comments???Thanks, Cathy

Posted by gpiero on 2009-05-12 03:18. 4 comments. 164 reads
 
Hi All,

I'm new, so I'm sorry if this topic has been covered elsewhere but I couldn't really find posts that answered my question fully.

I had an epicardial pacemaker fitted in February after finding out that my heart had been gradually slowing for the last 10 years and occasionally stopping. I'm 36 and have had a congenital (unoperated) condition since birth. It's never really caused me problems, I just didn't have the same exercise threshold that other people had.

Still, I'm coming up to three months after my op now and a few weeks ago I started feeling a mild pulsing in my stomach. My pacemaker's actually behind my abdomen, so I just thought it was normal and part of the 'getting used to it' process.


Posted by newbiegal5 on 2009-05-11 23:45. 4 comments. 131 reads
 
hi! i keep getting on here for advice, so one one hand sorry to bug ya, but on the other, this site is a great resource and its a lifeline for me these days. so... here's the scoop:
had heart blocks, had a pacer put in coming up on 5 wks ago. found out last week i'm still having right bundle branch blocks. i had at least 3 of them today while at work. they knocked me down. im glad i have a job that isnt super strenuous, and my coworkers are super understanding.
now i've had my ep doc tell me that it's part of the healing process, which i don't believe. i know that i will always have chest pain. i have a pacemaker and wires holding my chest shut from open heart surgery at age 1. i've lived with that kind of pain my whole life. th...


Posted by petethetreat on 2009-05-09 12:24. 3 comments. 108 reads
 
hi folks, a few weeks ago i posted on here after what appeared to be my body rejecting my device.
I've currently got a large abcess like "bump" on my scar and my cardiologist has put me on Flucoxacillin (think thats how you spell it) for 2 weeks then i've to report back in a month.
As well as feeling absolutely fine, he reckons i'll need to get the device replaced and put in my right side. Anyone had this before ?
I've read some of the posts about lead removal (mines will need to come out he reckons) and i'm now a bit anxious


Posted by newbiegal5 on 2009-05-06 23:11. 4 comments. 193 reads
 
hello! ive posted before about what happened this weekend but i saw my doc yesterday and the more i think about what he said, the more confused i am.
i was in the er over last weekend and the ekg's they did said that i had right bundle branch blocks. they did 3 ekg's with all of them saying that. the er doc said that was a type of heart block and that my pacer wasn't working.
yesterday i had my pacer checked and they said it was working 'perfectly.' my ep doc said that the ekg's over the weekend were 'not conerning' to him, and the extreme chest pain and shortness of breath i had was most likely due to my body healing.
Does this sound right? every time i think it through or explain it to someone who asks it sounds really ...


Posted by hirwin on 2009-05-06 19:22. 2 comments. 128 reads
 
I posted awhile back about vertigo. I got some reports today from my EP and wanted to post to see if any of you thought the changed they have made could be contributing to my vertigo. First of all on my EKG report it says: LVH w/ IVCD. I do have hypertrophic cardiomyopathy, so I knew about the LVH, but this is the first I've heard of the IVCD. Not even sure what it is. Here are the settings for 6-2007:
Right Ven. Lead Right Atrial Lead
Polarity: bipolar Polarity: bipolar
Threshold: 5.00V/0.30ms Threshold: 5.00V/0.20ms
Impedance: 888 ohms Impedance: 448 ohms
Amplitude: 9.8 mV Ampitude: 1.2 mV

% paced A: 97% and V: ...


Posted by ppt on 2009-05-05 18:43. 6 comments. 177 reads
 
I haven't posted for a while as I have been having a lot of difficulty. PM DDD implanted November 28th 2008. The windedness and breathlessness has been a real problem upon exertion. After multiple tests and having been referred to an Electrophysiologist (EP) the final diagnosis is "pacemaker syndrome" - lack of synchronicity with atrial and ventricular electrical pulsing. Atrial pacing is about .01% and ventricular pacing is 99% and they just are not syncrhonized. So now the EP is playing with settings with Medtronic - there has been significant improvement but .. still I can not really exert myself. The EP indicated that perhaps a 3rd lead may be helpful if all this tweaking does not improve the situation. Anybody know anything abo...




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