St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by matkim6 on 2015-01-08 17:29. 1 comments. 157 reads
 
I have had my pacemaker for 2 years, unfortunately they are still tweaking it these past 2 years. I goto Mayo clinic and they say I am unique...never seen a patient have my heart issues. I am 100% pacemaker dependent, was in a car accident that started the electrical problems. Had AV Node reentry, flutter, atrial tachycardia among other electrical problems. My PVARP is at 175 and my AV Delay set at 100, the delay has to be this low as my PVARP can not go any lower as my pacemaker can not do that. My concern is this past month my home monitoring was not transmitting. They didn't realize this till 23 days after it quit as that is when they get an alert...don't understand why it's so long before Biotronik sends an alert. Anyway, I go into my ...


Posted by krislea on 2015-01-06 02:51. 2 comments. 128 reads
 
hello,

Wondering if someone has experienced a similar thing -- I currently have my second Pacemaker/ICD, I've never had complications before with either device but tonight I'm having trouble with pain in the area of the ICD. It's been implanted since 2011. I've also noticed that I'm being shocked by touching metal objects (not an ICD shock, but static ) a lot more frequently the last two days -- any ideas what could be wrong? Thanks.

Posted by Andid on 2015-01-05 20:54. 9 comments. 183 reads
 
My daughter is 27 and just had a pacemaker put in 3 months ago. She woke up today with her arm swollen. We went to her primary physician and she ordered a vascular study and they did an ultrasound on her arm and said it was negative. She did not have any blood clots in her arm. Any ideas what the next step we should take? There has to be a reason her arm is swollen.

Posted by fantastic on 2015-01-05 02:06. 2 comments. 233 reads
 
Hi, I've just joined from Sunshine Coast, Qld, Australia because I'm interested in members comments about my problem. I had a single lead pacemaker fitted three years for bradycardia - sick sinus syndrome. I've noticed increasing tiredness and need to regularly take an afternoon nap; I've also had more minor ailments and consider my resistance is not as good as it was.
My family has an Altzheimer's history and I thought my deterioration - I sometimes get befuddled was the cause but I had a CT scan and passed all the tests. My doctor suggested more exercise (I haven't had the energy) but now realise I can't get my pulse higher than 95.
I'm 69 and reasonably fit because of good nutrition and moderate habits but I think I've got pac...


Posted by luciam on 2015-01-04 18:10. 2 comments. 242 reads
 
I forgot to mention that I have A-Fib and I still feel it, especially after I try to walk. My pulse will be 80 (which is the last adjustment without rate response) but my heart is chaotic. At times I will feel myself getting short of breath without exertion. I never had these problems with the A-Fib before the pacemaker, which was supposed to give me a better quality of life after 3 ablations and 5 cardioversions. My AV node is now ablated so I don't think there's any turning back from a pacemaker.

The other night I was trying to get myself out of bed by pushing myself up on my left arm and was making heavy weather of it as I was gasping for air when I saw a flash of light at the pacemaker site (left-side). It was the only time....


Posted by luciam on 2015-01-04 17:34. 3 comments. 226 reads
 
I had my St. Jude pacemaker installed on 10/9/14. Since then I've had a horrible time. Despite 4 adjustments and my cardiologist deciding to turn off the rate response, I cannot walk more than a few feet without losing my breath and wanting to pass out. My legs feel like lead and it feels as if I can't catch a complete deep breath. It's been getting steadily worse and now I cannot go outside and walk for more than a few feet without this sensation.

I have a mild heart murmur and an ejection fraction of 77%. My lungs are clear with no wheezing but my legs are now swelling and I can't sleep at night because I have to be at 45 degree angle or I feel like I'm suffocating. The pulmonologist is stumped and so is my cardiologist. Two o...


Posted by jan003 on 2015-01-04 14:11. 5 comments. 165 reads
 
I had a pacemaker fitted about 5 months back. Some of the stitches didn't dissolve until recently so the area was quite sore but in the last couple of days the whole are has become painful. I cant lie on my side in bed its as if the pacemaker sticks out quite a way (top corner). Today if I move my left arm its painful.



Posted by Namatovu on 2015-01-04 01:29. 1 comments. 140 reads
 
Hi everyone,

Thanks for sharing you experiences. My mum 65 year got a CRT inplant in June 2014 but up to now she is in a lot of pain especially with the left arm and its also swollen.Is anyone having the same pain?



Posted by ybliku2 on 2015-01-03 20:05. 5 comments. 263 reads
 
My mother had a pm put in 1990, at a hospital that was not heart accredited. She passed the next day. Since this hospital was not accredited, is this considered murder?

Posted by Charlotteis on 2015-01-03 16:00. 5 comments. 182 reads
 
Hi all, my HR is extremely irregular today. Fees horrible. I got a pacemaker 3 weeks ago and had to have a lead reseated about 1.5 weeks ago. How normal is an irregular HR at this stage of recovery? Is it something to go to ER for (as it's the weekend)?

I so hope that the lead has not come loose again. My HR is not dropping under 85 so hopefully that's a good sign ...?

I'm trying so hard to remain positive, but damn, it's a struggle.

Posted by JohnVin on 2015-01-02 05:23. 4 comments. 206 reads
 
Since I had my dual-chamber pacemaker fitted in the UK on December 8, 2014 I get a sharp, unnerving and worrying ectopic beat at precisely 22.58 hrs. each day. This is followed by further ectopic beats and a fiercely beating heart until approximately 01.00-02.00 hrs. Neither my surgeon nor the pacemaker technician I have seen since the procedure can offer a satisfactory explanation. This reaction at the same time every night - regular as clockwork - is both worrying and debilitating as it means I cannot get to sleep before about 01.30 hrs. at the earliest. Has anyone else suffered anything similar? Can anyone offer an explanation? John V

Posted by dickg on 2015-01-01 18:47. 1 comments. 143 reads
 
Hi My Name Is DICKG. and I had a ST. JUDE Medical Pacemaker Model PM3242 Serial # 2949922 Implant Date 30/May/2014 .
Starting around the third week of June I started with a horrible RED - extremely Itchy Rash Starting on my arms , then on my back , now on my stomach now on my legs.
I also have heart rate control problems I believe but the Doctors claim I am getting false readings on my oximeter and blood pressure cuff. I get readings from 23 to 245 for a heart rate. I have severe COPD and really feel bad when I am lower than 70 and above 110 heart rate . Am I THE ONLY ONE WITH THESE PROBLEMS ?


Posted by Brianabindel on 2014-12-30 18:11. 3 comments. 172 reads
 
Hey, I need some help or advice. I'm only 21 and had a dual chambered pacemaker inserted in February 2014 due to multiple pass out spells and going asystole. However, about a month ago, I've been having swollen neck veins that bulge very noticeably. I recently had a Doppler of my left arm done, which came back clean. Then I had an echo done, which is showing regurgitation of my mitral and tricuspid valves. Today when I was working out, I had my jugular veins in my neck swell again, but this time it caused my face to swell to the point where I looked like a chipmunk and became completely pale. Has anyone had any of this happen to them? What were your symptoms and what was the treatment? Any thing helps. Thank you!

Posted by pezzypooh on 2014-12-29 14:54. 3 comments. 183 reads
 
Hi, everyone...I haven't posted in a long time, but I do read messages from time to time just to see new information. I recently (maybe a few days ago) starting having occasional feelings like I am going to black out. It's almost like I felt years ago before my pacemaker, but I can catch myself. I feel like I am going to blank out, then I catch it. I was put on Coumadin in May for a blood clot in my leg, and I have developed terrible knee pain over the summer that I have been taking Tylenol extra strength for almost daily for the past week. Any thoughts? I just don't feel right, and every time I see my EP, he doesn't seem to think it's my heart/pacer...Thanks all!

Posted by Shoulderp on 2014-12-27 00:43. 3 comments. 158 reads
 
Hurts worse than my open heart surgery when I first get up, during the day the pain lessens. Taking Advil now Tylenol did not help at all. Pain is especially worse on the top of the shoulder and incision. The Drs said I could travel by air to my new home miles away. Since I have the pain is worse. Any thought. I will need to get new doctors since I am too far from where they put it in.

Posted by lillykaiser on 2014-12-26 15:23. 6 comments. 276 reads
 
Because of insurance changes I am beginning a relationship with a new cardiologist and electrophysiologist. Went to see the new cardiologist for a check up/consultation and found out I have a condition called chronotropic incompetence. I have been experiencing a great deal of exercise intolerance, fatigue, shortness of breath, etc for about a year and a half and my other cardiologist mentioned nothing of this condition. I see the new electrophysiologist next week and I am to go in fasting in case he decides to replace my pacemaker. I currently have a Medtronic ADDR01 dual chamber. From what I have been reading, this pacemaker is not sufficient for CI. Anyone have any advice or ideas of questions I need to ask the electrophysiologist....


Posted by Jules88 on 2014-12-25 08:29. 2 comments. 184 reads
 
Hi, I'm new here but I've had my defibrillator for going on five years now. No complications, no shocks, no issues at all really. I had a friend's dog knock my defib further down.

Went to the ER and they did all the stardard tests. Other than the device having been moved, no leads were bothered or knocked loose. The cardiologist gave me the a-okay to be discharged.

But I'm having trouble sleeping. Each time I come close to dozing off, my muscles twitch and scare me awake. I'm assuming this is from my heartrate dropping to 60, then being kicked back up. I'd even said as much at the er but that didn't seem to be a concern?

Has anyone else had a similar problem? This has never happened before and I'm a state ...


Posted by kjake on 2014-12-24 12:04. 1 comments. 103 reads
 
After having a heartbeat of over 200 and a chord breaking on my mitral valve I had a mitral valve repair and a maze to stop the one time afib when the chord broke on the valve. Before the operation my sa node worked after it did not. They put in a saint jude pacemaker to only fire the top chambers. Well now when I work out the adrenaline comes in the av node makes the lower chambers faster then the uppers being paced at 75. This is making the pumping of blood out of sync, how is this fixed? Even if the speedup mode the acellerator is on the adrenaline is still going to make a un safe not synchronization upper and lower chambers miss match.

Posted by MaryJaneSparks on 2014-12-24 02:29. 3 comments. 150 reads
 
Has anyone else had sustained Brady with a single chamber PM? I'm set at 50 bpm, I sustained at 42 bpm while resting in the ER. I would also have fast heart rate too while resting. I see the heart doctor on the 30th.
My device was implanted this July, it's a leadless Nanostim.

Posted by howdoyoumendabrokenheart on 2014-12-23 18:04. 2 comments. 151 reads
 
Hello all,

I recently had an ablation done and it was somewhat unsuccessful. It has made my heart go into a stable sinus rhythm but I still am having SVT's. In fact I had about 62 episodes in about 9 weeks. Now my cardiologist suggests another attempt but warns me that it may cut off all natural impulses to my heart and I would then need to be 100% paced. I am wondering if anyone else has been faced with this and what your opinions might be. I have CHF and COPD. This is a vicious combination because one affects the other at times. Right now the doctor suggested I double my dose of Lopressor which, he thinks, may help with the SVT's. I don't know what would be best to do. I already have an ICD in place, which fired 7 tim...




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