For those of you that don't know, I've been having some complications with my pacemaker site.
I had a upgrade from single to dual chamber in Sept. '09. Just a week after that, they had to go back in and revise the right atrial lead because it had dislodged. (Right in time for the big Tampa event-....my timing is always perfect...lol)

Anyways, January 20th, I sent a picture of what my pacer site looked like (I live 4 hours away from him) so that he would know what was going on, and we could talk about it at my scheduled visit in March. Well, within 20 minutes of seeing the pictures I sent him- his nurse was on the phone with me pleading with me to travel to them so they could look at it.
The next day, I traveled to see ...

 

I just had a new BVICD implanted to replace the older 2 lead pacemaker. When the additional 2 leads were insatlled, they have caused an occlusion in the vien. My left arm turns a redish color when hanging down below my heart. I have had a doppler and vinograph which were negative for a clot but the occlusion is there by the leads. I have no pain in my arm or numbness. I am on warfarin. Has anyone else had this problem? Will it clear up overtime as the leads settle in? My doctor has told me that only if I start to have more difficulty would he consider a stint.

 

This is my first time on this website. I originally had a pacer implanted in 2001 for neurocardiogenic syncope. I was 21. I just had it replaced along with a new lead put in because the old lead was faulty. There were numerous complications during the surgery (that last almost 4 hours), the biggest being finding the actual pacemaker to replace it. They ended up making a second 5 inch incision on my left breast and digging about 5 inches down to find it. The surgery was about 2 1/2 weeks ago. I'm still in a lot of pain, but the surgeon seems to think that i should be in no pain at all anymore. He also told me that he took no precautions to ensure that the pacer did migrate again. I bounced back from the first pacemaker surgery, ret...

 

well i went to st thomas on 3 feb to have my upgrade and i hate to say it from the start i had complications.
They put some dye to see if my coronory sinus vien was open and it was so they had given me sadation and started to take my old pacemaker out that i had for 3 years and it was agony to the point were i told them to stop at that point they gave me morphine and more sadation and i fell asleep when i woke 2 hrs later they still hadnt put the 3rd lead in. the veins they found everytime they tried to pace the lead my diaphram would move as they up the volt such as strange experiance to feel a heartbeat in the stomach and see it move i nearly flew off the table. i then became so restless they gave me more morphine and sadation when...

 

It became a month implanted a medtronic PC,I suffered Vertigo attacks, dizzenes .I was directed to neurelegist all brain exam.s were normal until I tied holter for 24 hrs and the results were terrible( lowering pulse to30 beats with pauses of more than 2 sec.).As I am Iraqi and still our hospitals have no good practiced in PCimplantation,I travelled to Turkey and there the doc.s decided that I have need of PC.
Still I suffer the dizzines and fatigability with a small activity doing,I contacted my doc.but he told me that this symptom may be from another reason not as a result of the PC.After 3 days of implantation the PC was checked and adjusted by the same dr. I need help and more informatioon about post complication of PC Thanks ...

 

1 had a pacemaker inserted 3 days ago and am still in pain. Even tho' I had to have it redone the next day. Not the pain on the insertion site but I have pain in my back and chest and find it hard to breathe deeply. I feel that I have palpatations also.

I was wondering if anyone had similar symptoms after their op? I have to say I am a little worried about it but would feel a nuisance calling the hospital as I was only discharged yesterday. Can you help?

 

Hello,
I have only had a pacemaker/defibullator for a month. It has been complication after complication for me. The first night after implanting I awoke with horrible chest pain. Atrial lead had come loose. Back to surgery to reattach it. Then I was having just hard heartbeats, jogging my entire chest, hard enough to shake our whole bed and scare the heck out of my husband. The left side lead was charging my frenetic nerve as well as my heart causing diaphram spasms. Last Friday they had to shut off that lead. On the 11th I will have epicardial placement of that 3rd lead. I am frightened. Dr. said, "It is a painful procedure." What does that mean? Does anyone know? Is it it more painful that having a chunk of your tongue...

 

Barbara had her implant on Thursday - she is home and trying to get back to normal but her shoulder (left side) on top of shoulder she said she feels like pins are sticking her and it is more or less continuous and her chest feels a bit heavy. Anyone had this kind of feeling - still the conerned Mom. lillian

 

I am on my second pacemaker in nine years. Medtronic is the best.When I had my heart attack the next day I went in Sudden Cardiac Arrest. After five jolts of juice & luckly to be in Cardiac Care Unit when it occured. I lost a little oxygen & since I have panic or anxity spells. I do not like large stores,lot of selections of items or speak in public. This one was odd to experience since I am a Librarian & spoke at schools, historical clubs etc.
I forget what I am talking about at times all of a sudden. I am afraid to speak to a group or even in front of a few people. My fear is forgetting in mid sentence. I can understand how a person can feel & my doctor calls it delayed antisocial anxeity.
I can take a 5 mg pill before the ev...

 

3 different doctors, 3 different opinions. Neither doctor has a pacemaker so I am asking all of you that had episodes of heart block before your pacemaker!!!

When you had an episode what did it feel like? Did it feel like mine? I would feel a little dizzy, then I would feel my pulse and I wouldn't have one for a few seconds...then all of a sudden I would feel my heart RACE.

One doctor said my racing after the block was normal as there was probably some blood backed up and once the heart got going again it had a lot to pump so it went fast to get the job done.

The second doctor said when my pulse would lapse for a moment no oxygen was getting to my brain and once my heart unblocked my brain told my heart t...

 

Hi, guys,
Think You, for hearing me SHOUT, IT COMING OUT, seen new
heart DR today,when he saw where the pc was at he knew it hurt.He said it may not of been put in right. and it would soon be threw the skin.
I`m so sorry so many people needs them for a better life, You do what you have to do.
As for me I`ll never have another one, and my good hushand
understands it.
Good luck to all of you!!!

Betty

 

Hey, has anyone else in the group had a murmur show up AFTER implant? I just got back from my docs to have him check out a murmur that his NP had heard on my last visit and my doc said he doesn't hear anything BUT it is possible to develope a murmur after implant due to the lead rubbing against the valve flap but it i...s a very rare occurance and I was wondering how many other Brady Bunchers might have had post implant murmur issues. Again, mine appears to have disappeared but wondering if anyone else had this experience

 

Im 40 and ive had seven pacemakers and have had problems with all of them. at this time i have five broken wires left inside me Im 100% dependent on the pacer. and my wires are attached to the outside of my heart and the wires are layed in between my my ribbs down to generrator in my abdomom. all of the non working wires are stabbing me and no doctors will even take me as a case because of drs neglect.im looking for a doctor to extract these wires does anybody no anyone. and allso need a pacemaker malpractice lawer please help. im not ready to die i have a daughter to raise.

 

I woke up this morning with a RHR of somewhere in the 114's -120's. Went to the Dr. and he said he had no explanation. That he wasn't sure what it could have been.

I had taken Xanax to calm me down in case it was panic but that didn't work. I told him that.

He is sending me back to the EP to get a second opinion and to see if there is something they missed...then I am scheduled to be put on another halter this Wednesday. My RHR at the office was 67!!!! I swear it's like when your car breaks down and you bring it to the shop....everything looks fine!

If he was TRULY alarmed he would have had me go to the ER right? RHR in the normal range for the last few hours...but still a little scared.

Any tho...

 

Before I get into all my Thank Yous, I have to give you guys the quote.

"The trouble with trouble is, it starts out as fun."
- Naomi Judd

Ok, so THANK YOU to everyone who responded to my post about dealing with difficult people. If there is actually an "F" on my next report card, we will have to have a talk with the teachers. Thanks for the chocolate, Tracy!!! It was yummy! LOL. And you made perfect sense, pacergirl. I'll try it. I never really thought about the "hitting the wall" thing... Thank you and I like your logic, FirstDuely! Oh, and I'm going into chemistry in a few days!! I love it. I COMPLETELY concur with you Tammy! The problem is, my ...

 

Has anyone who ever had a pacer that gets stuck in cycles and after 3 mins show signs of vtach? This is the second time in a month that this has happend since I had my pacer installed almost a year ago. My Local ER just acted like okay you can go home now and totally miscommunicated everything I said and really agrravated me to no end. So they acted like I was making it up and sent me home. This had been going on all day yesterday and now it's occurring again. 2 weeks ago a St. Jude Rep came in and adjusted my pacer but here we go again only worse than last time...Any thoughts?

 

I have not posted in awhile. I have been off work since October. I had my first pacemaker placed in July 09. The cardiologist that did it, said he could not put in my second lead, since I had Persistent Left Superior Vena Cava, which is a malformation of the heart or a birth defect. I tried going back to work in August, and during my time back at work at that time, I left work 4 times to go to the ER. I don't remember how many times they kept me, because I was in the hospital so many times last year. Towards the end of October, I thought I had the flu, was treated 2 times for it, and when I ended up in the ER on the 3rd visit in 10 days, they found out I had Wenckebach (heart block) when my pulse hit 110. That sent me back to the ca...

 

Hi Everyone,

It's been 1 year since I had my pacemaker put in. In the past day or two I have been noticing some lightheadedness and pain in my left shoulder and arm. Has anyone else had this? I'm wondering if maybe something happened to one of the leads or something. Thanks for reading:)
Sue

 

i am having a lot of strange symptoms and was wondering if anyone else experience these things . i am having a weird skin sensitivity and also srtrange head sensations . i am wondering if anyone else gets these ?? please help me figure this out ?? thank you d briggs

 

Hi to all, wishing you all well. I have had my little tin box for two years now...and for me i am glad to report that it has generally been without incident. My pacemaker was put in for intermittant total heart block. The reason for my poorly put question is over the last four months i have been up and down physically, i have had time off work and have been feeling the pm taking over more often.Before pm I used to collapse about once every six months or soand have not done so since pm...untill last week not a full collapse but far to close to one for my liking...Went to tech EP who said the pm had recorded no events and as i was able to give her specific time said the pm did not kick in......i am confused. When you faint/collapse your hear...