Posted by stacykay1 on 2010-07-15 02:38. 7 comments. 241 reads
Hey everyone, I am 36 and just had first PM. For a few years now I noticed my heart rate dropped to 40 and sometimes lower. I felt sick and had many symptoms but they came and went. I honestly thought it was just me not feeling well such as depression or something of that sort but many days and even weeks at a time I felt as healthy as ever. The last few weeks that finally convinced me to see a cardiologist, I was extremely tired, very short of breath, tingling and almost numb in my extremeties and always felt bloated after even the smallest meal. I was told I have Sick Sinus Syndrome. It has been one week since my PM. I had high blood pressure the first few days (before it was also very low) but it has settled down somewhat. I still feel...
Posted by grey eagle on 2010-07-11 11:52. 1 comments. 71 reads
July 31,2009 I had bi-pass surgey...after a few days I was up and around....2 or 3 weeks I had a staph infection...they opened me up and cleaned it up and left me open for a week only to change bandages 3 times a day....was not fun.....closed me back up September 7th....after 2 or 3 weeks I went home...I needed to be on oxygen...the surgeon said it could take a year to heal....finally got off antibiotics in April after 8or9 months......May 13th got a crt-d.....slowly getting better on...on the oxygen about 1fourth the time now....had cardiomyopathy ....has it taken longer to heal because of the staph infection.....what do you think?????
Posted by Mary Jo on 2010-07-07 23:21. 3 comments. 88 reads
My Mom just got her pm in May. Her incision still hasn't healed as if she's allergic to the metal surrounding the pacemaker. The leads don't seem to be a problem. She has been on antibiotics once, turns out she had an allergic reaction to that as well. I know people have rejected or been allergic to knee prosthesis used in replacements - any ideas for us? We're getting close to desparate.
Posted by gerry7 on 2010-07-05 16:02. 2 comments. 125 reads
on my second pacemaker ( St Judes Medical)... fitted on 31st aug 07.. after first one which was a vititron. fitted in april 01
I have sick sinus syndrome.. Every so often i experience palpitations and discomfort but then can go months even a year without feeling anything from it at all..
For the past 2 weeks i have had palpitations and every so often more powerful sensations deeper in my chest.. no pain but discomfort and anxiety.. which maybe caused by my being scared, as i have never gotten used to this.
I take 40 mg twice a day of Propanalol beta blockers.. which were to try and even out my anxiety and raised pulse rate.. which i think was down to me feeling uneasy everytime i felt any sensation at all.
Does anyone e...
Posted by Young at Heart on 2010-07-05 06:51. 8 comments. 338 reads
Hi out there
I am 51 years old and had a dual chamber pacemaker fitted eight weeks ago. I am very nervous about posting as I don,t usually do this sort of thing. My pacemaker is fitted as an on demand basis so I usually most of the time use my own heart. However, I have been experiencing dizzy spells and feel as I am going into a faint/colapse. Afterwards I feel very unwell and light headed. Last Wednesday morning I had one of these turns and since then have felt very light headed. I phoned the pacemaker department who thought I might be experiencing some low blood pressure or my settings might need adjusting. On Friday night I ended up in A & E not feeling very well at all and on Sunday went to see an out of hours doc. ...
Posted by sheilagail on 2010-07-02 23:26. 4 comments. 175 reads
Has anybody ever had this experience with the icd pacer.
I have a St. Judes V268 dual chamber icd.
I started feeling this vibration feeling in my arm, and under my arm to the pacer. I was sitting at a desk using a computer when I started feeling this sensation. The left arm was up on the desk when I first noticed this sensation, It felt like a cellphone was on vibrate and it was vibratining at the pacer site and radiated to my elbow. Sorta like a humming feeling and sensation. It lasted several hours. At first I thought it was my imagionation., Then , my husband felt it and confirmed it wasnt all in my head. I did go to the ER, and ended up being admitted and stayed 2 days while they tried to figure out what was up and there ...
Posted by chuck m on 2010-07-01 22:58. 8 comments. 272 reads
After 11 years with no real issues my pacemaker's infected and it's all gotta come out July 16th, exactly 11 years and 1 day after it went in . Dr. has me pretty afraid, says it's way more dangerous coming out than going in. Possible to perforate my heart and bleed out on the table.
Anyone else had an extraction, and how did it go? Hospital time and recover time to normal activity?
Thanks
Posted by big al on 2010-07-01 18:06. 3 comments. 137 reads
6 weeks ago I was implanted with a dual lead pacemaker. Since that time I have felt irritation in my upper chest and lower windpipe. Each time the device is tested and paced I get a very uncomfortable sensation in the above mentioned areas. An ENT specialist examined my throat and found nothing wrong with it. My cardiac specialist has never experienced this situation. He is sending me to an electrophysiologist in a few weeks. By the end of the day my upper chest and lower windpipe are quite irritated. Does anyone have an idea of what might be going on? Has anyone experienced anything similar?
Needless to say, I am quite frustrated. It took until now for anyone to admit that my problem is for real.
Posted by Tracie H on 2010-07-01 11:02. 5 comments. 192 reads
Since I am needing an MRI and we are working hard to figure out a way to make that happen, I began searching for info on it. I found this article (among others) that support MRI's for people with pacemakers. Just thought you'd all be curious/interested for future reference.
Have a great day!
http://eurheartj.oxfordjournals.org/content/26/4/325.full
Posted by Sayomikoneko on 2010-06-30 00:32. 7 comments. 212 reads
It's strange because, I know I'm only 16 but, I got the pacemaker because of my (now ex) boyfriend because he would make me so unhappy and stressed and my heart would always skip and stop whenever it would happen and it would be for at least 40 beats of it pounding hard and fast against me and then stop for a while. It's strange because it still happens, not as often, but it happens with the same amount of beats as before. It still happens because of the same guy. I don't really know if I should tell my doctor about the beats or why I believe they started because he'll just say something like "it's another teen thing. It'll go away eventually" like a parent. Before I got the pacemaker they did multiple tests on me to find the skipped heart...
Posted by cattlelady on 2010-06-29 18:22. 3 comments. 205 reads
Hello to all,
I just joined a minute ago. My Mom had her first pm put in April 9. After 6 weeks, she developed a bad infection at the site and they put in a new one on the other side. A week later, one of the leads came loose. Since then, she has been re-admitted 3 times because the incision is opening and they thought is was another infection. None of her cultures showed any bactieria. I went with her today and the pm is 3/4 of the way out of the hole. She had patch tests last week to see if this is an allergy thing. She showed very slight reactions to nickel, rubber and I forget the others. The medical team has been blase' until today. They are talking to the engineers at Medtronic as her patch test on their kit turned out pretty we...
Posted by mucisgt on 2010-06-29 11:56. 5 comments. 370 reads
i just had a pacemaker fitted for a slow beat four weeks ago, i am doing ok but i had a few pints yesterday and my heart raced and i had discomfort in my chest. i feel really bad today and am wondering does drink affect it? how much is safe to drink? thanks
Posted by bullseye on 2010-06-28 05:30. 2 comments. 69 reads
morning everyone hope you all enjoying this nice weather here in uk ,sorry to pester you all again ,hubby woke me up last night saying that somthing wasnt right he went all light headed an his paulse i could feel it in my hand holding his hand he said it was like the feeling you get wen they switch of pm during a pm cheak up it frightend him he had a fall on saturday and im woundering if this could be the cause or pulled the pm sounds silly but i just dont no any advice we have rang the pm clinic and is going for a pm cheak this morning thanx guys for letting me rammble on again
Posted by Alamb2 on 2010-06-24 11:18. 5 comments. 213 reads
I Had a St Jude dual chamber pm implanted sub pectorally in November of 2009.
Recently I have experienced frequent and rythmic pectoral muscle twitching and I noticibly feel the PM go off with pretty good force. It does not hurt. Should I be concerned or is this common?
Amie
Posted by tcrabtree85 on 2010-06-24 00:48. 8 comments. 148 reads
Hi all my pacer friends,
I just got out of ICU about three hours ago. Trying to absorb everything that has been happening to me. Right now I just don't have the energy to explain everything but am hopeful for all of your prayers for healing. I'm in a normal room now and am just eager to be out of the hospital but I know right now I don't have the energy and need to be here. I appreciate all the prayers and for a better recovery.
Thanks,
Tammy
Posted by BarryMoss on 2010-06-23 19:46. 2 comments. 175 reads
Tingling, Pain & Burning
I have had a pacemaker since 1977, I received my last pacemaker July 2006 and sometime after that I get the above feeling whenever I am near electronic devices. My iPhone and my laptop are the worst.
I have done every test under the sun with no avail, but there two thing.
1) I have elevated lead levels in my body which can act as a ground for the current coming from my pacemaker.
2) I have a Medtronic Adata pacemaker on the Medtronic's website one of the potential complications listed is, muscle or nerve stimulation also hematoma and inflammation which I also have.
These are some of the other problems I am having. Burn marks in the facial area • Burning, pain, ting...
Posted by SianXx on 2010-06-23 13:04. 4 comments. 189 reads
Hi, I havent been on here in a few months as i have been studying very hard, but I just had to come back to ask all people with pacemakers something!
Ok, so I had my pacemaker implanted on 17th February 2009, so over a year ago. It is my first pacemaker and i was 14, nearly 15 at the time. Over a year on, I am now 16 and something is still bothering me!
I have two scars. One that is 1.5cm beneath my collar bone, and one that is about 4cm directly on my left armpit (axilla).
At my 6 month check up post-operation, i brought up with my consultant the concern that i had very limited movement of my left arm. I could not lift it further than shoulder length, could not reach backwards for anything and found it uncomfortab...
Posted by Heidiglassmeyer on 2010-06-20 13:20. 2 comments. 108 reads
Hi! I had posted last week regarding chest pains. We'll I'm back in the hospital (pray you never have to be admitted on a Friday!) and in a holding pattern till Monday for a cath. I was looking at my records from last weeks stay and notes from my CT Pulminart Angiogram stated: Significant stenosis of the left subclavian vein present. I have a dual lead pacemaker. Does anyone know if this is normal due to the leads? I have not seen my Cardio since I read the results to ask. Happy Fathers Day to all the Dad's!
Posted by Tandoo on 2010-06-19 22:51. 3 comments. 129 reads
Hi All:
My mom just had a dual chamber pacer inserted on Monday (5 days ago) and this morning had a weird hiccup-y feeling through her right back and entire chest cavity. No pain or shortness of breath..just 'weird'. It affected her speech - made her stutter on the words a bit. Does this ssound familiar to anyone? Thanks.
Tanya
Posted by DybHen on 2010-06-19 19:19. 7 comments. 154 reads
After talking to my primary physician, he told me it was normal to have a swollen purple arm. I sat on it for 2 days and decided that it wasn't normal, went to urgent care. Had a d-dimer blood test which was elevated which indicates a probable clot. So then had to drive 45 minutes to a hospital that was able to perform the needed ultrasound. That came back positive, so now I'm having blood thinner injections in my belly every 12 hours, and a koumadin (sp?) tablet once per day. I'm less than thrilled about this, considering my pacemaker doc told me it was nothing to worry about after not having even looked at my arm. Ugh. Guess it just goes to show to follow your original gut instinct.