St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by asmita on 2014-03-02 09:37. 16 comments. 249 reads
 
hi - I am new to this site and am hoping to find some answers. I am from India. My father had an icd implanted in October 2013. It got infected in Feb 2014 and needs to be extracted along with the leads. The laser technique for extraction is not available in India. Has anyone had to have a lead extraction after 5 months and how difficult is it going to be without laser? We are worried sick and are looking for some help.

wishing everyone here good health,

thanks,
asmita

Posted by Sarae on 2014-03-02 08:22. 1 comments. 73 reads
 
Hello, glad to have found this site

when going to sleep i feel ok..upon awaking. my whole left side hurts..any thoughts
.I am on my 3rd pasemakerwhich was put in two years ago. i did not have this with the others..anyone have any thoughts?
Sarae

Posted by pacemakergroupie on 2014-03-01 11:53. 8 comments. 204 reads
 
Help! My husband is 9 days out from his pacemaker procedure and I can't convince him to be careful! Today I caught him lifting our 30 pound dog and yesterday he was dragging a cinder block across the patio. To make things a little dicier, he was diagnosed with blood clots in his arm 3 days ago and now on anticoagulants for at least 3 months. Does anyone know if anticoagulants affect or slow down the implantation process? Since the cardiologist is not the prescribing doctor of the anticoagulant, we've yet to be able to see him and ask the question. Thank you!

Posted by Derf on 2014-02-28 10:47. 1 comments. 146 reads
 
Hi....

I have been having a problem peeing frequently since being on beta blockers and or amiodarone... I go every half hour so in the mornings and it slows down in the afternoon.

Anyone experiencing this problem?

Thanks

Posted by Derf on 2014-02-27 10:01. 5 comments. 190 reads
 
Hi all....

Just wondering if anyone has experienced dizzy spells and shortness of breath well taking amiodarone? And what was done to over come this side effect?

Mornings are worse part of the day.

I also am panicking when I know I have to do any type of exertion.

Any help is appreciated?

Thanks

Posted by canadagirl on 2014-02-24 14:47. 3 comments. 165 reads
 
Hi. I hope this is ok that I am the one posting. It is actually my husband who got a pacemaker. He got one last August just before his 43 birthday. His heart rate prior was down to 27 beats a minute. He got his device down in Vancouver at St. Pauls hospital. Its been over 6 months and has since been having a choking feeling that comes and goes. It didn't come on right away after surgery but seemed to come on after a few weeks to about a month after. Echocardio came back "normal", they have him on meds that are to relax his esophagus (sp?). It seeeeems to be easing it off but it is still there. It gets worse when he lies down or bends over. Has anyone else experienced something like this?? Is it possible to have new leads installed-IF that ...


Posted by BeckyJo on 2014-02-24 11:13. 2 comments. 131 reads
 
I've posted a few times, I'm fairly new to this group.

Is there anyone out there that got their PM put in and it caused so much pain they had to go in and relocate the leads?

From what my new cardiologist has told me, I am only the 4th person he has had to 'redo' .

Thanks!
BeckyJo

Posted by swmfast on 2014-02-24 03:12. 2 comments. 228 reads
 
I have been monitoring this site for several months since getting a PM in July 2013 for complete heart block and have found it to be very informative. I have never joined any type of on line community but decided to make the jump into this community in the hope that I find some answers to the some issues that I have been dealing with since my PM surgery and others which I just popped up after an adjustment to my PM two weeks ago.
In 2008 I had a double CABG due to partial blockages of the Left Main and LAD arteries. My surgery did not go smoothly.During the course of the surgery, they discovered that I had a bicuspid aortic valve which was seriously failing. After consulting with my wife, they replaced the defective valve with a...


Posted by PAULIGIRL7 on 2014-02-23 12:35. 1 comments. 132 reads
 
I am not to sure if my pacemaker incision site might be starting to get infected. I just had a pacemaker put in this last Thursday the 20th of February. It is still red and sore but not as much as it was. It does sting a bit at times and feels like something that should not be there. Maybe this is all normal and I am judging it wrong. Also, if I had to go in to see my doctor, I would not be able to go until Tuesday because I do not drive and I would not be able to schedule a ride with paratransit or the medical ride company associated with my insurance until tomorrow and would have to make the ride appointment for Tuesday the 25th. Am I overreacting?

Posted by undeadmuffin on 2014-02-23 07:13. 2 comments. 180 reads
 
So I just turned 27 and that means I've had my little buddy resting under my skin for a year and a half now, saddly things are not as good as they where when it was first put in. My quality of life has seen some massive dips. I feel hot all the time, I feel like my heart is beating inside my neck on the right side and tired a lot. In doing some research online, I've come across pacemaker syndrome as something that may be wrong with me. I was just wondering if anyone else has had this and was it as easy to treat as the websites put it?

Posted by cindim56 on 2014-02-22 16:06. 1 comments. 160 reads
 
Hi
I am new to this club and wanted to know if anyone has had an AV node ablation and had complications such as heart failure.
Since I had the ablation in early Dec 2013, I can't walk any distance without feeling pressure in my chest and neck and shortness of breath. If I don't stop and rest then I also have chest pain. I'm talking walking maybe 20-30 feet. My EP which I have not seen since the ablation wants me to have a 2nd opinion and is sending me to the Heart Failure Clinic. My regular cardiologist just blew me off and he caused my to be denied my long term disability. I am 57 years old and feel like I'm 100.

Please if anyone can help me understand this better I would appreciate it.

Thanks
Cin...


Posted by shirley d on 2014-02-21 14:40. 1 comments. 117 reads
 
As posted previously I contracted a staff infection which was assumed to be on my PM.
They were right it was. The cardio admitted he was surprised when the PM was removed and a mass became apparent in the right atrium. We are hoping it is a residue of the infection. A sonar will be done on 11 March where it will either be gone/shrunk or it is open heart surgery.
I spent 2 weeks, post removal of PM, on huge doses of intravenous antibiotics - antibiotic chemotherapy. Now at home for the next 4 weeks with huge doses of oral antibiotics. Also on Warfarin for the first time. Struggling with high INR, cant seem to get the right dose.
At least we now have a concrete diagnosis and a way forward. Such a relief.
Thanks for all t...


Posted by cindim56 on 2014-02-20 19:49. 2 comments. 185 reads
 
I have had a PVI and AV node ablation. I had the AV node ablation this past Dec. I had A fib and A flutter. Since having the last ablation, I have felt horrible. Some days are better than others but this past week has been terrible. I can't walk any distance 15 feet without feeling short of breath, heaviness in my chest and very fatigued. I had a pace maker adjustment
two weeks ago but it has not improved matters, if anything they are getting worse. Has anyone had the same symptoms, and is there any hope for me. I am only 57 and I feel like I am 90.

Thanks
Cindi

Posted by Vmurph on 2014-02-19 14:24. 1 comments. 126 reads
 
I went to see my neurologist this morning and we discussed a few tests she wants to do. We're pretty sure my issues all related back to Autonomic Dysfunction. I was diagnosed with POTS after my pm was implanted but we think there could be something else going on causing my TIA's.

She wants to do an angiogram into my brain. I have an allergic reaction to IV dye and the steroid to treat the reaction. Go figure. But I told her I can handle the reaction if she wants to go ahead with the test to check for any possible blockages. The way I look at it, if I have to be overheated and have my body turn purple long enough for them to possibly prevent a major stroke, it's worth it.
She has to call UC Hospital to see if anyone will d...


Posted by lucyrubio106 on 2014-02-17 16:34. 4 comments. 397 reads
 
I have had my pacemaker for 10 months and I have been feeling pain and burning sensation around pacemaker area, back and left arm.

Posted by gmaof11 on 2014-02-16 12:59. 1 comments. 144 reads
 
I had a pacemaker put in in March 2013 while in the hospital it had to be done a second time because there was a loose lead. I had a lot of pain in the left shoulder and arm after getting home from the hospital. Ever since the pain has been radiating in my other arm now, in my breast, in my head and eyes, inbetween the shoulder blades and in my hands. What could be going on with me ? My doctor seems to ignore all the things that I am telling him and I am getting very upset. Please can someone out there tell me what is going on with my body?

Posted by Mrskiddo on 2014-02-16 11:15. 5 comments. 235 reads
 
I had a pacemaker put in this week due to a flat lining EKG. It was a very painful procedure and I felt like the air was heavy right away after the procedure. The next morning I had a X-ray to check the leads and the discovered that my left lung was collapsed due to the lung being punchered. They then put a chest tube in that was very painful as well. The next day I had another X-ray and come to find out they had the line to that kinked and the air pocket was worse. Eight hours later the tube was removed and they said I should mend on my own and the lung is now inflated again.When I was discharged they gave me no follow up information on recovery from the lung issues or even spoke of the mistake. I still hear a sloshing sound in my chest d...


Posted by pattyvic on 2014-02-15 19:32. 2 comments. 158 reads
 
new here just read about the bad taste in someones mouth....well I've been complaining to my Drs about this since my Pacemaker was put in and was also told they never heard of this.....mine was put in in Nov of 2012 .....
Glad to read I'm not they only one...

Posted by jwardlsu on 2014-02-13 22:55. 8 comments. 277 reads
 
Hello all ! I pulled my Godson out of ocean on 4th of July and ripped my atrial lead out of my heart. My pacer is a Medtronic Revo and I pulled the screw out my heart. It hurt a lot but the hospital said I was okay. So I went on for another month in massive amounts of pain. Then I collapsed on the floor of my EP's office and they figured out it was my lead shocking my phrenic nerve when I turned left or used my left arm. So I had another surgery to reimplant my top lead. Still 6 months later I cannot turn my head to the left, I cannot withstand vibration of any type (anyone tapping on me anywhere) causes me to suffocate. This happens when I hit a bump in my car, or when I laugh, sniff my nose, or raise my shoulders. The docs think I'...


Posted by HK on 2014-02-13 17:19. 5 comments. 270 reads
 
Hello Everyone
We are having a giant snow day here in the northeast with a foot on the ground already, on top of the 1-2 feet we already had. More snow on the away tonight.

So, here I am, now 6 months post complete heart block with no defining cause. My heart is otherwise healthy and normal. Since my pacemaker was implanted on July 29 2013 I have experienced severe episodes of shortness of breath, some on exertion and others while just talking. By the way, my PM is pacing my lower chambers at 100% and so without it I am a dead man. Several PM interrogations later they tell me my PM is working fine. Of course I say, I am sitting here in a chair doing nothing. Then of course the answer is the PM records any event that may ha...




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