Hi All,

I'm a newbie to the club. Had a CRT/ICD fitted last Friday and joined the club (and ordered a power pack) today.

I found the club looking for an answer to a concern I had about periods where my heart felt like it was doing a beat and a half?

From your forum I think I have identified this as PVCs and will stop worrying and just keep an eye on my caffeine intake etc. before I check with Doc.

Thanks Guys and Gals! Looking forward to learning a lot more in the coming months.

Cheers!

Paul (Newbie Pacer Dude)

 

All that has happened has just been topped off with water around the heart. It is painful. I hate breathing even. Has anyone else been through this?

lydia

 

Hey guys hope you're all well!, just looking for some advice really. i had my PM fitted in september 2011 for a third degree heart block and have been fine since, over the last few days i have developed some sort of cough chesty bug thing and just wondering if it can be dangerous if it develops into a chest infection? planning to make an appointment with doc on Monday just to reassure myself but any advice would be greatly appreciated! My symptoms at the moment are just feeling a bit chesty and sounding whe i cough as though i smoke 40 a day even though i've never smoked :P xx

 

Hello, I am new to this site, and I am so happy to see that there are other people out here like me!
In 2/11 I was admitted into the hospital with a heart rate of 33 bpm and my heart rate kept dropping. I was transported to another hospital locally where I live via ambulance where more tests were ran on me and the Dr.s were still not able to figure out what was going on with me other than I was in 3rd degree AV block. They ran lots of blood work, X-rays, 2D echos, and decided that I needed to go to an even bigger hospital for a possible pacemaker placement. I was transported again via ambulance to Columbus Ohio and went through a battery of test and the team of Dr's there decided that I needed a PM so I had the surgery done and was s...

 

Im about to commit suicide

 

Has anyone had a diagnosis called 'Pacemaker Syndrome.' I have had my pacemaker for 17 years or so and had it replaced three times now. I just had ablation surgery for AFIB last NOV and now I have the above condition. I will suddenly feel alot of pressure in my neck and the veins distend. I get chest pressure,dizziness and go weak in the knees. I feel strong palpitations and then this goes on for one to ten minutes. Then it is gone and I can go about my business. The Dr tried to adjust my rates and timing, I have a dual lead pacer, but that did not help. The next thing we will try is to adjust the beta blockers.

 

Hi, I've written a few times before for my son Luca who got a PM one year ago tomorrow (he's 8 now). He has really been thriving since the operation, but since christmas time has developed a strange movement of his neck- like torticolis. The cardiologist wasnt interested, but after seeing a physical therapist and an osteopath, they feel it is because of his scar. The skin and fascia under the skin thickened up at the incision sight and didnt keep up with the rest of his growth (he grew ALOT after his operation, making up for lost time). The neck muscles on the side of the scar are actually shorter and tighter now that on the other side. It isnt visible, except for the constant moving of his head, which he says is to "fix" his neck which fe...

 

I had OHS in 2010 and got my pacemaker a few weeks later. Then had to have my pacemaker leads replaced a few weeks after my implant. Now i am again having another surgery, to remove my sternal wires from my open heart surgery(they have been causing me lots of pain). at just 16 years old this will be my 5th surgery in 1.5 years. Hoping this is the last surgery for real this time. I have had this surgery posponed 3 times already so its been a very frustrating few weeks. my new and hopefully official surgery date is april 6th.

Elaina

 

what effect does drinking alcohol have on a PM? Are there really any exceptions, too much? limits? I have a St Jude PM and went out the other night. Befor I knew it, too much fun. Anyway, any thoughts would be helpful.

 

Hello.. New to the club ...haveing laser lead extraction surgery in one week ... Is there anyone out there? (Pink Floyd)..... Anyone have this proceedure and like to share??

 

I was recently diagnosed with hyperthyroidism.It has been a scary & challenging experience with all the palpitations & tremors that come along with the diagnosis, at least before i started treatment... it was awful. My cardiologist & primary physician have always monitored my thyroid hormones because as some of you may know a thyroid dysfunction can have cardiac implications. I was a bit surprise that within 6months or less of my last thyroid check , things went awry. The lesson learned is if you are feeling tired, insomnic, jittery, fatigued, heat intolerant.. it may be more than just your heart. Talk to your doctor. Make sure they monitor your thyroid functions.

 

I have read posts on here that pacemakers can flip.  I think mine may be doing that at a slow pace.  It is really painful.  I do believe it hurts worse now than when I first got it done.  I had it put in on August 18, 2011.  I am 45 yrs old. 

Every time I use my left arm I feel it.  I know to expect some tenderness at times but this is ongoing now.  It just started happening about a week ago.  I’m going to call my doctor today.

Someone said something about frequent hiccups too.  Please comment if you know anything about this.

I will post what my doctor says.  I’m glad I have found a site that has people with pacemaker...

 

Hi
I recently had my 3rd pacer implanted last week. When I woke up I was told I had a staph infection that had been there since my last implant 7 yrs ago. My 1st only lasted 2yrs, Dr put bottom lead in wrong place. So it use to much battery. So on to different Dr. I am on oral meds for the staph, but how will I know if it is gone. It never showed up in my blood work? I just had huge pacer site, sore. And it is still that way. Any ideas???

 

I've had my pacer since 2007 ,the scar has turned into a keloid, it itches, burns and at times very painfull, drs. are not of much help, Have tried numerous creams i,e. silicone. vitamen e, steroid to no avail, Does any one have this problem,Cheers, Fender.

 

I am having bad pain in my pacemaker area. It started about yesterday. I have had it since November don't know why it is hurting? Like a stabbing sharp pain. Any advice?
Jennifer

 

Hello everyone.
I've had my pacemakerdefibrillator since april 23,2009. I also have chest pain a lot. it still bugs me around my device.

 

I had my PM implant installed Tuesday 2/28/12. Released from hospital Wed. I had a dull neck pain around my carotid artery, radiating upward from my collar bone into my jaw, and downward into my chest. This pain intensifies if I lay horizontally, or bend over from the waist. I thought that the pain was related to the surgery, and woud go away, but it has not. I have very high, hard to control blood pressure. After 4 sleepless nights I went back to the Dr who installed the PM, and he performed Echo, Sonsgram, EKG & PM check, and found nothing wrong. The pain persists, and shows no signs of going away. I was wondering if anyone else has experienced this type of pain.

 

Hi! I have had my pacemaker for 5 years and am currently 13 weeks pregnant. The skin over my pacemaker has always been thin but is stretching out even more. Has anyone found success with a product that helps make the scar area "thicker?" My cardiologist is very concerned with how thin the skin is getting and is worried it may poke through. I was curious if anyone had used a cream or ointment that thickened up the skin over scar area or had any tips on how to keep it from poking through:)Thank you for any advice!

 

I had a pacemaker fitted 5 weeks ago and I have a burning feeling at the site although there is no redness or swelling. I don't feel particularly well and feel down and cry a lot. The next procedure for me is a node burn...does anyone know much about this and do they think it will make me feel better? Is it normlal to feel depressed at this stage?

 

Have pacemaker defib. Heart starts racing during relaxed state do I have to worry about defib going off?