St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by howdoyoumendabrokenheart on 2014-09-11 21:22. 1 comments. 254 reads
 
Hey all,

I am wondering if the geomagnetic storm that is coming in a few days due to the solar flare eruptions on 9/10 and 9/11 will be cause for us to worry?

If it can disturb GPS systems and all I am praying it will not have any affect on PM's or ICD's. ("Geomagnetic storms can temporarily disrupt GPS signals, radio communications and power grids, as well as intensify the beautiful auroral displays known as the northern and southern lights.")

Anyone know anything about this? Thanks.

Posted by miller1 on 2014-09-11 17:55. 5 comments. 281 reads
 
Hi all I have not been here in a long time, I am not feeling well. About two years ago I received my pacemaker due to Brady Cardia, Last September I had Massive open heart surgery due to a walnut size blood clot in the heart on a lead, while they were in there they repaired my aorta, fixed a merma, found a tumor in one of the chambers. A 4 hour operation lasted 8 hours and 6 hour recovery went to 72 hours in a coma. A six day hospital stay turned into 17 days.

Well it's a year later and I just found out that I had a silent heart attack and they also just found out that I have a right bundle blockage. Nobody told me that this is pacemaker life. Right now I am weak and very tired all of the time, I have a hard time doing the stair...


Posted by Blackbird on 2014-09-11 16:27. 1 comments. 136 reads
 
A brief history of my illness had heart attack 2006 (luckily in Drs surgery!) went through all the usual stages of medication then had to have a by=pass eventually AF so bad put down for a pacemaker Was given a dual lead but within 3 days one lead had come detached, doctors wouldnt reconnect said in case of infection. For those 3 days felt quite a lot better, but since have gone steadily downhill finding life very much of a strain. I admit I feel peeved that the lead wasn't replaced and friends say if I didn't need the dual PM why was it put in in the first place I'm 83 so can't help wondering if age is a factor.

Posted by UKRecovering on 2014-09-11 03:00. 2 comments. 173 reads
 
Dear all,

I had a dual chamber pace maker fitted a fortnight ago (thank you for all the messages of support beforehand - they made a genuine difference in keeping me calm).

I have two questions that I would be grateful for any comments on.
(1) Over the last 24hours, I've noticed that when I lay on my right hand side I get an occasional 'thud' on the right near the top of my ribs - it doesn't hurt, just like a little thud/ kick from inside. Could this be pacemaker related?
(2) I'm on my third day of a phased return to work and surprised at how tired I am. It's a fortnight since the op and doing four hours in the office. How long have others found post op tiredness has lasted?

Thank you,
Nicola

Posted by doso1161 on 2014-09-09 14:27. 0 comments. 144 reads
 
I have written before about my son's Brugada. Last week he was at a friends house and had one of his spells. It was one of the worst he has ever had and had to be resuscitated. If it haden't been for a nurse who just happened to be there he would not have made it. His PM never went off. After several days in ICU they are sending him to the Mayo Clinic because they feel there is more going on than just the Brugada and can't figure why his PM did not show any activity but checking, it was working. Just not when he needed it. So we're off to the Mayo Clinic, an 1100 mile trip. Don't know how we are going to be able to afford to get there but at this point we have no choice. I'm sure God will find a way to get him there and provide the doctor ...


Posted by mikewallace on 2014-09-09 11:05. 2 comments. 100 reads
 
I've had chronic asthma for 50 years, using Ventoline about 10 times per day on poor days. Play golf twice a week and many other sports without too much problem.
I thought my asthma caused me to breathe badly, but then after fainting on the golf course, the doctors found my heart beat too low and installed a pacemaker. 2 weeks later I can walk about but breathing is laborious, Ventoline helps but not as well as before.
Any one out there with similar conditions? Comments and advice would be welcome.

Posted by NHeather on 2014-09-07 02:30. 1 comments. 168 reads
 
I have had a pacemaker for 1 month. Last week I started feel thumping on my right side near my waist, I could also see my shirt moving. Went to the cardiologist and the pacemaker rep did some adjustment, went away. Come back a few hours later, almost unbearable. Exhausting. Did not stop, happened every couple of second. back to the drs office early next day. Adjusted again, came home started up again. This was friday afternoon, called dr, got answering service, put me through immediately. He said to come in Monday will adjust again. The weekend has been horrible, Goes away when I walk but the minute I sit down it is back. Any suggestions...

Posted by Sonja on 2014-09-05 07:39. 3 comments. 166 reads
 
I have had my PM since May, 2014. Initially I had arm pain that went down to my hand. It seemed to subside, however, it has been back with a vengeance for several weeks. It seems to affect the muscle in the arm. I find myself rubbing my arm frequently. It wakes me up. It comes and goes and seems to move around all through each day.

Posted by skaggsoak on 2014-09-02 00:47. 1 comments. 142 reads
 
Crtp implant about 4 weeks ago since first programming a week ago been doing great. Then tonite while watching tv heart kicked in like extreme heart pounding mode almost taking my breath. I had not had one of these episode since my crt implant. Has lasted for about 1 1/2hours. Heart not out of rhythm just extreme pounding. Dont have my new box to send in report yet wife wanting to go to er. Whats anybody thinking. I've been energetic and working on house lately but just sitting here hr at 60 but a 60 thats about to blow my head off. Makes me a bit nervous it's lasting so long.

Posted by Mommymissy on 2014-08-31 14:51. 10 comments. 248 reads
 
I don't know if it's even possible for a pm to move but I haas my first one put in June 30 and it sure seems like it's to the left towards my arm. Has anybody had this happen or maybe it's just my imagination?

Posted by Spunky_1 on 2014-08-30 00:05. 8 comments. 884 reads
 
Hi! I was implanted with a Boston Scientific Ingenio at the end of July. Prior to this my HR was usually in the low – mid 40s with occasional forays into the upper 30’s while waking. My heart would also pause then run tachy (150- 160 range). I also dealt with Chronotropic Incompetence and I fainted a lot. My official diagnosis is tachy-brady sss w/ sinus pauses and CI. I had hoped that all of this would be over once I got implanted, but I’m still having some problems.

Feel free to skip to the end – I’m probably going to ramble before I get to the actual questions and I apologize in advance! This is all new to me and I'm a bit overwhelmed trying to figure this all out.

My initial rate was set at the stand...


Posted by bobnor on 2014-08-29 21:39. 2 comments. 116 reads
 
Had pacemaker implant tues and have some swelling of the left
arm and hand and light redness is this normal?

Posted by LELAND on 2014-08-27 09:05. 6 comments. 271 reads
 
my wife had a pace maker five weeks ago about 2 weeks ago she began to have rash show up it seems to be getting worse,
any one ever heard of this type of reaction before?

Posted by Gadgetgirl on 2014-08-25 23:30. 5 comments. 224 reads
 
Hi... Just joined the site as I am sitting here in the ER waiting for a room. Had my PM implanted 7 weeks ago and it seems as though one of the "dissolvable" stitches did not dissolve and was sticking out at the end of one side if the surgery site. When I called my cardiac nurse last week she reassured me it would be fine and would dissolve on it's own overtime. Other then minor irrigation when something rubbed against it, no symptoms. Yesterday it started itching and turned red and today there is a small amount of pus forming. Now being told the PM may be infected, which will require another surgery! I'm so mad and trying not to freak out! Anyone have this happen?

Posted by billymac on 2014-08-25 20:24. 4 comments. 198 reads
 
I had a St. Jude pm2210 put in 12 weeks ago and have had a lot of issue that seem odd . it was set for 60 bpm low and 140 high the 2nd week there was 137 events were it took my heart rate to as high as 215bpm a 34 times to 175 63 times 150bpm they have re set it 5 times and it still goes way over the program rate . I feel dizzy most of the time and fatigued worse than befor getting the PM .and we now have unusualy high blood pressure 158 over 98 prior to the PM we were allways at 110 over -65 has any one else had any of these issues ? the Dr. tried to tell me this is normal I don't belive it . also my Pacemaker is set to 3 volts due to a lot of years under water welding and being electrocuted while doi...


Posted by Coppertop on 2014-08-25 18:39. 1 comments. 89 reads
 
When I posted earlier, the mini-shocks were intermittent. Now it is feeling weird with every beat. I had a generator replacement 6/9/2014 - so it is still not that old. Still roams around and has not scarred down. Any suggestions. ER visits are a joke. Thanks.

Posted by Happy@heart on 2014-08-24 20:49. 1 comments. 109 reads
 
Hi, wow it's cool to have a site to go to, I had pacemaker implant 4 wks this tues, 3rd 1. I started having burning, never had this b4.
Tday is sun, no fever, so I'm thinking waiting till tmrow, to talk to dr, any thoughts on this? Thx's again, happy@heart!!

Posted by Wally on 2014-08-23 08:19. 2 comments. 154 reads
 
I am 8 days post op pacer insertion, now moving my l arm around more, below my shoulder.
I have an occasional sharp twinge that runs from the top of my L wrist to the base of my thumb, with some associated numbness.
Am assuming it is some (?radial) nerve issue, and will see the surgeon next week.
Have other people had the same issue, and how long till it resolved.

Posted by skaggsoak on 2014-08-23 08:00. 3 comments. 164 reads
 
Crt checked yesterday and top atrial of heart still trying beat 150 to 175 at times and Dr didn't suggest a fix. Anyone she'd some light on this problem.

Posted by skaggsoak on 2014-08-23 07:49. 3 comments. 167 reads
 
2 weeks after crt device implanted and av node ablation. Told yesterday I have 2 blood clots. 1 where wires enter vein to heart and another in arm. Put on xarelto blood thinner and heat pad. Anyone else have problems should I be worried.



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