St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by HK on 2014-02-13 17:19. 5 comments. 270 reads
 
Hello Everyone
We are having a giant snow day here in the northeast with a foot on the ground already, on top of the 1-2 feet we already had. More snow on the away tonight.

So, here I am, now 6 months post complete heart block with no defining cause. My heart is otherwise healthy and normal. Since my pacemaker was implanted on July 29 2013 I have experienced severe episodes of shortness of breath, some on exertion and others while just talking. By the way, my PM is pacing my lower chambers at 100% and so without it I am a dead man. Several PM interrogations later they tell me my PM is working fine. Of course I say, I am sitting here in a chair doing nothing. Then of course the answer is the PM records any event that may ha...


Posted by Marykate on 2014-02-10 01:30. 4 comments. 121 reads
 
I am 4 years post biventricular device. At 18 months after insertion I had a broken defib wire. New one placed and old wire capped off. These past 4 days my pm site is very swollen and I have had dull throbbing discomfort. The swelling is up to my shoulder and underneath my arm. I will see the nurse Tuesday. I feel like I have an infection. No redness or bruising at the site. Low grade fever that is normal. Has anyone else had this problem. Thank, MaryKate

Posted by tinman1988 on 2014-02-09 16:36. 3 comments. 161 reads
 
My pacemaker is getting ready to end it's battery life. I have a call in check up on Thursday, but yesterday I got super weak, started getting different chest pains than usual, and my chest feels heavy. And I know it sounds word but I swear I feel my own heart beat. I'm debating if I should just wait until tomorrow to call in or go to the ER today. I've had a couple false alarms and I really don't want this to be an another false alarm and have to pay for an ER visit. Any advice?


Posted by tarsha on 2014-02-09 12:01. 4 comments. 244 reads
 
I thought a pacemaker would control pauses in my heart beats while sleeping. If I get a pause of 2 seconds, is my pacemaker malfunctioning?

Posted by tarsha on 2014-02-09 04:47. 7 comments. 240 reads
 
at my last checkup the reading showed that my heart stopped (one time) for 2 seconds last month, while i was sleeping. Is this serious. I am now scheduled for an ultrasound. What will that show? I was told that my pacemaker is working fine. I have had my PM for 6 months

Posted by Porkypig on 2014-02-08 09:45. 13 comments. 413 reads
 
Just thought I would share as I'm bored stuck in hospital, I had my first pm fitted 6 months ago for 3rd heart block, I haven't felt well ever since and have had lots of problems and the pm dropped down low and started rubbing every time I move, soon it broke the skin and got very painful, I had a visit with my cardio dr and he admitted me straight away, turns out I have a bad infection, I have been in hospital 10 days now, after 4 days on iv meds they took pm and wires out while I was awake and cleaned it all out, found a few cysts under the pm and fresh infection on the top of it. since then I have been in hospital on total bed rest attached to a defib machine, my heart rate is in 30's most the time but is I sit up or move its all over t...


Posted by Bonevans on 2014-02-08 08:18. 3 comments. 198 reads
 
What does it mean when my pacemaker tingles? It does it most when I'm upset or stressed out?

Posted by tinman1988 on 2014-02-08 00:54. 4 comments. 180 reads
 
Hi. I'm new to the site and honestly just a little lost. I had my first pacemaker device implanted when I was 3 and I am currently on my my fifth PM. My fifth is reaching it's end of the life soon (I think... I'm frustrated with the doctors), and soon it will be time for the sixth (within the year). I

I feel like at times my doctors are not listening to me, and I'm lost as to how to deal with them.

Also, I get really really bad pain around my collarbone all the time. Something my doctor has kind of determined is phantom pain due to the fact that they have cut into the nerves so many times into that area. They say they basically can't help me with it. Any one else experience this?

Thanks!

Sorry f...


Posted by maxwell18 on 2014-02-06 21:24. 15 comments. 320 reads
 
New to site, anybody if it is safety to be around induction cooking units with a pace maker? Purchased a Nuway cooking unit from TV add did not give any warnings unit we received it at home. The booklet said if you have a pace maker stay at least 2 feet away. Any ideas?
Thanks

Posted by sappy35 on 2014-02-06 11:48. 10 comments. 378 reads
 
I had a dual pacemaker implanted on 21 nov 13 and everything was find until about a month ago my arm started swelling and my check on the same side as pacemaker turns a bluish purple color. After a venorgram 2 days ago it showed i have a blood clot where the lead is. The doctor didnt seem to worried about it and put me on Xareto for 90 days, and of course if it doesnt improve to come in sooner. I dont know i guess i'm just really worried. I'm swolloen and purple but then again i just been on xareto for 2 days. Did anybody else have this problem and if so how long did it take to correct itself. Any info i would greatly apprecitate it.

Posted by cindim56 on 2014-02-05 19:05. 2 comments. 141 reads
 
Thanks for all the response. I will try to answer some of the questions. My ejection fraction is in the 50's. I also have severe cardiomyopathy with some obstruction along with afib and aflutter. Given those diagnosis, I have always had some difficulty climbing stairs and walking even 1/4 of a mile, I would get a heaviness in my chest, chest pain and heaviness in my legs and fast heart rate. Since I had the AV node block I can't walk any distance without these symptoms. I did have them to adjust the pace maker two weeks ago and I go see the EP this Friday to see what he says.

Do you guys think there is any hope for improvement?

Thanks
Cindi

Posted by cindim56 on 2014-02-04 15:45. 5 comments. 218 reads
 
Hi
I am new to this site. I had an AV node ablation in Dec 2013 and even though my heart rate feels normal I still can't walk any distance without having chest pain and shortness-of-breath.
I have been on short term disability and want to apply for long term but my cardiologist says he does not think I am disabled.
Do any of you guys experience the same symptoms? I feel like I need a scooter and I am only 57 years old.

Thanks,
Cindi

Posted by DLER on 2014-02-01 13:30. 3 comments. 151 reads
 
Hi, I have had pm because of bradycardia SSS since 2010. I use olmesartan +12.5hydrochlorothiazide for hypertension treatment,I lost blood pressure control for the last20 days as a result my cardiologist prescribed atenolol as an additional treatment . My question is: we know atenolol causes pulse lowering ,it means cause the pm to pace more than usual for the pulse lowering,also the pulse will stay in the min. No. Which is 60ppm because of the pm. In this case what will be the benefit of atenolol .?

Posted by mikeatnovato on 2014-01-30 19:16. 6 comments. 396 reads
 
Hi out there.
I'm new to all this. Went from being active 59 year old to pacemaker dependent very suddenly. I had a 2 lead Boston Scientific pacemaker implanted over three months ago. The implantation site is still uncomfortable and I continue to get intermittent chest pains which the surgeon says are muscular skeletal.
Has anyone out there had a similar problem? Will these go away with time, or are there any specific exercises I can do to alleviate the symptoms?

Thanks. Mike

Posted by J00ney on 2014-01-28 11:11. 6 comments. 300 reads
 
Hello,
I very new to this and so far I am grateful to have received advice on my first query of induction cooktops.
I had my PPM inserted for symptomatic Sinus Bradycardia on 23/01/2014. Mentally I feel fantastic from the word go. I have more energy, drive and clarity of thought then I have for the past 6 months. What I am experiencing now is a sort of central discomfort , like someone has stuck a wire in me or like an underwire bra where the wire is loose and digging in. The discomfort is sort of where the 2nd wire to the ventricle would be located I think. I am not short of breath nor do I have a temperature.
My thought is that I am still only 5 days post op and things are settling down. Have any of you experienced this se...


Posted by mhorvat on 2014-01-26 05:39. 4 comments. 207 reads
 
Dear friends,
I have pacemaker for 10 years and now battery life is going to expire. I have atrial lead and ventricular in the apex of right ventricle. My usual rhythm is AV sequentional pacing. I am not happy with pacing, after implantation my physical performance dropped by 20- 30%. My hope is that biventricular pacing can improve my physical ability. However, there is a problem: my cephalic vein seems to be occluded and there is a problem to place an additional lead to great cardiac vein.
Any idea to solve this problem?
Yours, Mat

Posted by inGodsheart on 2014-01-26 00:12. 0 comments. 142 reads
 
Hello,
I've had my St. Jude pacemaker for 11 months, and earlier this week began developing pain extending from the device up to my neck. My neck vein is bulging on the same side and there's some swelling.
I've had a thrombosis back in 2006 on the opposite side of my chest due to a permanent central IV line, and the symptoms I'm having now are similar to the ones I had back then. I'm concerned as the area that has the pacemaker also recently had a power port (implanted IV line) on the same side but was removed due to infection.
I'm wondering if the symptoms I'm having are due to scarred tissue from multiple central lines I've had on that side plus the pacemaker, thus making blood flow restricted.
Pain in neck is bet...


Posted by Southy on 2014-01-25 09:21. 1 comments. 141 reads
 
Hi
Thank you for all the feedback. It does make me feel better when I read them but the feeling will not go away. It is really getting me down now and I think that the family are sick of listening to me. At my wits end with it all

Posted by Southy on 2014-01-24 11:58. 7 comments. 351 reads
 
Hi I have recently had a pacemaker fitted and keep feeling missed beats. They say that it is normal but it still stresses me out. I also have a nagging pain in the middle of my back between my shoulder blades. Is this normal

Posted by shirley d on 2014-01-24 09:11. 1 comments. 156 reads
 
Touching base with the experienced
As per previous post I had a shoulder op in July 2013, disaster ever since. Frequent but unpredictable "convulsions" with dormant periods in-between.
"Convulsion" now calling them "rigors" as they appear to be fever related landed me in hospital on Sunday. Have spent the whole week having tests etc while culturing bloods. Cant find the site of the infection which turns out to be the above staphylococcus epidermidis.
Of course now the pacemaker is suspect.
There is also evidence of small clots in the lungs. The Physician speculates that these cause abscesses which lead to the fever and rigors.
The cardio is resisting removal of the PM which is what the Physician is recommending.



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