St. Jude Medical Pacemakers & ICDs

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Messages in Complications Forum



Posted by ahuett23 on 2014-04-30 22:38. 2 comments. 103 reads
 
23 years old had a pm put in on April 11th 2014. I have been having same symptoms last couple days as I did before I had the pm put in. I heard the tech that checks the pm say something about sinus tachycardia. The cardiologist originally diagnosed me as having sick sinus syndrome. I wasn't having chest pain or anything yeah I have bronchitis and asthma. I'm worried because the tech said everything looked perfectly fine but was talking to the doc about tachycardia and few other things that we're hard to make out. They did a x ray and about 2 hours later wanted to do a ct scan with iodine of my chest. Could they have seen something on the x ray or what I've never had an x ray and than a ct scan

Posted by ahuett23 on 2014-04-30 15:16. 3 comments. 244 reads
 
I'm 23 I had a dual chamber pacemaker put in April 11th, 2014. Last several days I have been feeling like I have been before the surgery and something new but don't know if you may know or had this but my body feels like it's radiating heat, usually when I leave the air conditioner on I wake up freezing but last 2 nights I wake up drenched in sweat and only wearing a pair of short shorts and husbands beater I sit in the room with the air conditioning on 8 and I'm drenched in sweat like I just took a shower. Yesterday I almost passed out feeling like I have no energy and was standing up brushing my teeth when I started feeling out of it my hubby took my pulse and heart rate was about 115-120 standing up. The only thing that's new now is exc...


Posted by ahuett23 on 2014-04-29 15:43. 2 comments. 175 reads
 
Im 23 I had a pm implanted on April 11th 2014, it's April 29th. I haven't had any problems except the last 3 days last 3 days I have almost no energy at all and than today I feel like I'm going to pass out and almost did I haven't felt like that since before the pm being put in. My hr races I was standing up and could feel my heart rate start goin fast and it was at least 116. Had the air condition on all day and all night and woke up sweating and still am. When normally I would wake up freezing. My body feels like it's radiating heat. Its frustrating going from not being able to do to basically nothing and doctors not being able to find anything wrong to them finding out having surgery feeling great and than that being taken away.

Posted by JoFosqk226 on 2014-04-29 13:33. 1 comments. 134 reads
 
Mothers in the group! I am currently 5 months pregnant with a baby girl. My doctor proposed to me that I MIGHT be able to have a vaginal birth if I take an epidural. I have long Q-T syndrome and have an ICD implant (pacemaker and defibrillator). Here are my concerns:
1 - My heart tends to beat fast normally and makes me very tired in certain strenuous situations. I am still able to exercise, quite intensely actually. But what if I get too exhausted to continue with my labor?

2 - and this is the big one - What happens if I shock during delivery? I know this scenario won't happen, but I have this terrible visual of getting shocked and my baby comes flying out across the room. If I do get shocked, there is no way I will be ab...


Posted by morgee on 2014-04-29 11:36. 1 comments. 117 reads
 
Good afternoon to all. Has anyone experienced feeling lightheaded with palpatations. Worse when sitting down. I had pacemaker 12 months ago for cardiomyopathy. Thanks. morgee

Posted by Lizzie on 2014-04-29 03:17. 5 comments. 254 reads
 
Hi everyone,
Had my metal mate since 2009 for SSS,I was told the bottom rate was set at 60.
I also get Afib.
Yesterday had bout of what I thought was Afib but pulse very slow at times 48 or 50.
Now I thought it couldn't go below 60. Is this correct or am I just a bit dumb.
Returned to sinus rhythm in about 2hrs after taking a flecainide 50 mg and a soluble aspirin.
Episodes of Afib increasing.
Appreciate any comments.

Posted by Brookway on 2014-04-29 00:46. 3 comments. 151 reads
 
Hi everyone this is my first time on here.. Feb 2014 i had a dual PM for braycardia, sss and low bp.. all going great, i have more energy and no dizzy spells.. But ever since i have had loose bowels and lost about 4 kg in weight, but have not changed my diet or exercise.. everything the same..I was not over weight to start with.. Has anyone else had this or is it normal? I cant find any info, thought that someone might be able to help.. cheers

Posted by cfritza on 2014-04-26 10:08. 4 comments. 235 reads
 
Hi was wondering if anyone has ever had their pacemaker pace before it should. Mine is paced to kick in below 50. I have Sick Sinus Syndrome. I am on 24hr event monitoring because I feel my pacemaker pacing and then my HR jumps to 100. When I spoke to the people on the phone who are monitoring it they say It shows that I am in normal sinus rythmn like 70 and then it starts to pace so my heart rate is not dropping below 50 but it is pacing was just wondering if this has happened to anyone?? Monday I can call my Dr office and see what they say but just wondering if this happens very often

Posted by alisonp06 on 2014-04-24 18:38. 1 comments. 226 reads
 
hello i had a 3 lead pm fitted June 08, started to get a twitch , they have turned the lead off........ As its a massive job to try and remove! I am now suffering from.... Very poor circulation, breathless , tired all the time , slow response when I need it..... A weird feeling on going over a hump back bridge and my chest feeling weired, but the most freighting thing is I feel like my heart keeps cramping !

HELP!


Posted by Peg1214 on 2014-04-23 17:44. 2 comments. 181 reads
 
Hi,
I have been having numerous symptoms lately concerning my pacemaker. I have been told that I am having runs of pvc's which the pacemaker reads oddly and gives me PMT (pacemaker mediated tachycardia). Has anyone dealt with this problem and found a solution.
I get pounding and shortness of breath with activity.

Posted by Berry23 on 2014-04-23 11:12. 2 comments. 344 reads
 
Hello,
I have been recently diagnosed with pacemaker syndrome after five years of unbearable symptoms and searching for a doctor willing to help me. It all started when I had a sharp pain while exercising in the left side of my heart that put me in the bed for the rest of the day. My last electrophysiologist put me on Inderol 20mg per day... which helped a little with the symptoms; however, my blood pressure was staying so low, I didn't feel alive. I discontinued this medication about a month ago and have gone even further downhill. I am scheduled for a CT scan tomorrow to determine if there are any issues with my ventrical lead since I am having the sharp pains. I am just curious if anyone else has this syndrome and if they have been...


Posted by pp on 2014-04-20 09:30. 1 comments. 202 reads
 
I have had three pacemakers, the most recent Dec. 2010. The first pacemaker got infected, treated with vancomycin iv for six weeks. This failed to work and pacemaker removed, old pocket filled with antibiotic and J P drain. Two weeks in the hospital, then a second device installed. Now the most recent device is swollen and red. I am scared of this!

Posted by ljohnson on 2014-04-18 15:16. 6 comments. 531 reads
 
Hello,
I'm new to this site. This is my fist post. I read a lot of post about pacemakers beeping. I woke up around 3:30 am one day last week and I heard a high pitch beep. I would beep about every 3 seconds. I finally figured out if was my pacemaker after putting my head under the covers to listen. It beep about 3 hrs and quit. My doctor said he didn't know why it did it because my reading says everything is ok. Just found this interesting. Does anyone reoccurring atrial fibrillation? What treatment are you getting? ljohnson

Posted by Aprilburns on 2014-04-15 10:56. 0 comments. 258 reads
 
Hi all,
It was discovered over the summer that I developed a junctional rhythm hidden in a dead zone that they could not adjust settings to fix. So it was recommended that I live with it, as ablading my AV node would risk heart failure. I have a dual chamber Revo due to sinus node ablation for serious SVT. The SVT still appears above 140-180, but below 140 my sinus note stops working and the pacer does all the work. I am 99% top lead and 2-4% bottom lead. So thats my background... now for the new problem.

A few months ago I woke up with my chest vibrating.. it was brief maybe 20 seconds but enough to wake me.. I thought the massage setting on my bed was accidentally turned on.. but it was coming from my heart. This h...


Posted by xhiker on 2014-04-13 21:05. 3 comments. 241 reads
 
I had a Medtronic ADDR01 put in last November. It is doing fine but I have had shoulder and neck pain ever since the surgery. Is this common? I also have two small bumps that show on the top side of the device. What are they. thanks.

Posted by kathy11 on 2014-04-13 19:23. 7 comments. 248 reads
 
I got a pacemaker due to heart block in Nov 2013. Heart test are all normal. I had pain in heart area when lying or bending(post surgery)... discomfort kind of pushes up to throat ..also some pain on deep inspiration. Did lead revisions 3 wks ago.
Apparently going thru all same symptoms again. The revisions did not help symptoms, but I am hopeful with time will improve.
Anyone ever experience anything like this? I am a small person.
Thanks!


Posted by dserranow on 2014-04-12 17:19. 7 comments. 401 reads
 
Hi, My name is David and I have a few questions to ask but first let me put a little history about me. One day around November 2010 I was working and felt very dizzy. I told my supervisor I wasn't feeling right and asked him to see if I can go to the E.R. He said ok and to keep him posted. The doctors told me that I needed to get a pacemaker because my top of the heart wasn't communicating with the bottom of the heart. ever since I had this pacemaker I been feeling weird pain on my chest right where my pacemaker is located is at. also been feeling light headed and very dizziness. I gotta add on that both of my legs became numb. I explain this to my primary and my cardiac doctors that I would have to deal with it. I don't know what to do an...


Posted by Jody on 2014-04-10 22:58. 3 comments. 274 reads
 
Thanks everyone for responding to my message doubting my decision to get a pm. Haha...like there was really any choice. I am relieved that I won't hurt myself or anyone else. Once I realized I was in danger, I felt uncomfortable doing anything..I was so worried. now I barely think about my pm. So...I guess it's my new reality.

I know this sounds ridiculous but being so young, 51, I wonder if I am going to have issues with scarring in my veins..since the pm is going to be with me for longer than the average person who gets a pacemaker. .I asked the doctor and he did say there could be complications. Anyone have such complications from having the leads in so long?

I am a worrier..sorry if this is a dumb thing to ...


Posted by zatt2m on 2014-04-08 22:58. 1 comments. 194 reads
 
Hi folks,

Just reaching out to see if anyone can relate to or offer support with something I'm experiencing with my most recent pacer replacement.

Has anyone experienced pain/discomfort with body movement due to the size of their pacer? Specifically with the pacer rubbing/jutting into ribs and collarbone or having to "reach around it?" Has anyone been able to get their pacer replaced for these reasons?

I am eight days post-op from getting my third pacer implanted. While the brands differed, my first two pacers were almost identical in size and shape, both being about 8cc in volume size, and fit nicely into the same place in my chest - just under the incision. My new, third device is considerably larger, bei...


Posted by planetmars46 on 2014-04-07 19:02. 2 comments. 162 reads
 
I have a CRT-D which was implanted 12/02/2013 on the left ventrical. It works great, fantastic blood flow and i can breath again. My energy has come back and i feel like a new person.
Concidering i had open heart in 1996, I feel blessed.
I am a 67 year old male in extremely good physical condition.
My question is. Has anyone experianced any body changes?
The left side of my body, especially my leg is bigger than my right. Calf and ankle area mostly.
I'm scheduled to see my cardioligist and will inquire then but am curious if anyone else has seen or heard of this side effect.
Thanks



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