I just wanted to post that my son got his pacemaker on November 20th. He has a CHB. He is doing great, back to normal 16 yr old. His heart won't get below 60 b.p.m., which is worlds away from his resting heart rate of 35 b.p.m. We took him to the doctor the other day for a regular drs. visit and his heart rate was 80 b.p.m., I don't remember the last time it was that high. Pretty exciting!!!! He is surprised at how much energy he has now. He didn't realize how tired he was and how little he was able to do. He will be able to get back to basketball this summer. Do any of you know if there is some kind of protective covering that he can wear?

Thanks for all the support I got from this website. My fears were calmed and I ...

 

From the US, Georgia. I know many of you will have questions about having a PM, I know most of y'all have never had one and most have never even had surgery. I am here to inform, answer questions, become a PenPal, and even talk to you over the phone. I was 3 yrs old when I got my first, it lasted a year. I got my second when I was 4, and my next one when I was 8. I currently have my TENTH one. I do not mind if you find me as a FRIEND on FACEBOOK (Charles Edward Nobles) or MYSPACE ( repwork@gmail.com ). I have expericenced alot in my 35 plus years and do not mind sharing the information, helping others, and just being there for holding someone's hand. Thanks Charles

 

okay, so we actually got a webiste together! thanks too TraceyE.

So everyone go check it out http://teenswithheart.com !
teens sign up! im still trying too figure everything so give us a few days too check out the site, and hopefully we can get this thing goin(;

THHHHANKS TRACEYE(((:

 

RRRRRRRRRREEEEEEEAAAAAAAAAADDDDDD !!
Just Though I Would Post This Again, Incase Anyone Missed It The First Time[:

okay so... Abby [PM_pretty] had this greeeeak idea! this post is really for the kids/teens with pm's or any other heart condition. but we need the adults too(:

i got a text from abby the other night, and she was saying herself, Sydney, and I should make a new pacemaker website, but this time its for the kids. since their isn't really a website for just the kids with pacemakers & other heart condititons, we should make a fudraising website. we were going too raise money too try too meet each other(: we are making plans now for the website, but we need you guy's help. (: ----------- soooo all of the k...

 

Hi there,

I was wondering....are there any families out there where a parent and child both have pacemakers, or two children?

 

I had a few minutes and was looking online for a support group, information on pacemakers and stumbled on this site - and it's seems perfect. One month ago this evening, I was en route with my youngest daughter (11) to Children's Nat'l Med Inst. in DC for her first pacemaker. She's done really well. We've known for several years that a PM was in her future, we were just hoping that we'd be able to get her a little older - but there wasn't a lot of info to go on (case history) for her problem - so the course was uncertain. She has a progressive type of heart block - prior to her PM, her HR would go down into the upper 20's at night, average for 24 hrs in the 40's and the biggest change was that she now was having pauses in the 4 & 5 sec...

 

Well a year ago today my daughter who is 11 now got her pacemaker put in. She is doing very good and playing once again on her AAU traveling basketball team... God is good!

 

Well this is my first time I have got on here and i was reading alot of post and alot of parents are just concerned with the child having a pm. Well I know alot of children will live I hope a normal life with a pm I was always told, well my daughter got her pm at 4 months bc they said she had VSD well they corrected the VSD and she ended up in heartblock she grew well, she had an emergency surgery at 2 years old in 2007 her lead fractured she seemed alittle tried and said her chest hurt her heart beat was only around a 30bpm that day she got a new lead. On may 11th 2009we visited the dr and the dr said bring her back in a month and they would have a st jude specialist come to verify that her pm was almost at eri. well may 27 she playing al...

 

Just saw this today and I still have tears in my eyes. Even though we might think life has dealt us a bad hand, seeing something like this puts things in perspective. I am going to make sure I give my kids and extra hug and kiss tonight.

http://www.youtube.com/comment_servlet?all_comments&v=E6-kR5hACpc&fromurl=/watch%3Fv%3DE6-kR5hACpc%26feature%3Drelated

 

Thanks for the input...the monitor they sent me is called a "Latitude Patient Management" there is nothing to hold over the pacer or any kind of arm braclets to put on like on Ryan's old medtronic call in machine had. From what
i'm reading it's like a touch screen device, it even displayes your next scheduled heart check. New Tecnology I guess.

 

We received a new Boston Scientific heart monitor to hook up for Ryan, they say it has to be next to his bed not more then 8ft. away. We've been reading the booklet on it sure does sound confusing...does anyone have one ?

 

i need help i need to delete my old posts i'm afraid i have said things that i don't really want the mother of the girl i babysit to read, even if there true, as i don't wish to cause any more trama in the girls life. please let me know how to get rid of my old posts thanks.

 

hello everyone, i posted a couple of weeks ago now and would like to start off by saying thanks for thoes that commented on that post. I have some more things to talk about and ask about and thought here would be a good place to start, but first i'll give the info needed for thoes that didn't read my last post, the girl i babysit is 10 and has had a pacemaker for a few years now, but just in sept had to have it replaced it's a pacemaker/defibulator, and one of the leads broke while she was at school and made it shock her multiple times. this is not the first time it has done that. anyways lately she has been acting really naughty, for lack of a better work. she is lieing to me and her mom all the time, about anything and everything, such a...

 

TRACEY,
AFTER READING YOUR POST THOUGHT I WOULD COMMENT.....FIRST OF ALL I HAVE NEVER NOR WOULD NEVER SAY ANYTHING NEGATIVE TO MY SON ABOUT ANYTHING I ACTUALLY TELL HIM HOW GOOD HE IS LOOKING AND HOW EVERYONE IS BORN WITH SOMETHING SPECIAL ABOUT THEM WHETHER IT'S THERE HEART, EYES, EARS, ARMS, LEGS, ETC. DON'T KNOW IF YOU HAVE ANY KIDS WHO HAVE A PACEMAKER OR EVEN IF YOU HAVE KIDS, BUT HAVING A PACEMAKER YOURSELF AND HAVING A CHILD WITH ONE IS DIFFERENT AND THAT I HAVE EVEN HEARD FROM SPECIALIST AT DUKE CHILDRENS HOSPITAL, AS A MATTER OF FACT THEY TOLD ME IF IT DIDN'T BOTHER ME I WOULD MOST LIKELY NEED TO SEE A COUNSELOR. AS FOR HELPING OTHERS AND BEING THANKFUL FOR WHAT I HAVE ...WELL I WORK WITH THE AMERICAN HEART ASSOCIATION AND HE...

 

HI AGAIN IT'S RYAN'S MOM...COULD SOMEONE PLEASE HELP ME WITH A QUESTION???
RYAN HAD A BOSTON SCIENTIFIC PACEMAKER/DEFIBRILLATOR PUT IN ON NOV.10TH 09, IT LOOKS SO HUGE IN HIM, RIGHT NOW I FEEL LIKE THE WORST PARENT EVER THAT MY SON WAS BORN WITH A HEART PROBLEM THAT RESULTED IN HIM LOOKING SO BAD..... IS THIS STILL ALOT OF SWELLING IN HIS ABDOMAN OR IS THIS THE TRUE SIZE OF THE PACER?? I DON'T KNOW IF THE DIFIBRILLATOR MAKES THE PACER THIS MUCH BIGGER. HE IS STILL SOME SWOLLEN BUT IT SEEMS TO BE GOING DOWN IN HIS STOMACH AREA WHICH IS WHERE THE PACER IS...IF ANYONE HAS A PACER LIKE THIS COULD YOU PLEASE HELP ME !!

THANKS, CHERYL

 

HI EVERYONE.....GREAT NEWS MY LITTLE BOY IS HOME, WE ARRIVED BACK IN VA. ON SATURDAY AFTERNOON. RYAN WAS SO BRAVE AT THE HOSPITAL HE ONLY HAD A ROUGH TIME AFTER HE WOKE UP FROM SURGERY,BUT AFTER A FEW HOURS HE WAS BACK TO NORMAL. HE GOT A NEW PACER AND NEW LEADS, BUT NO NEW HEART VALVE THE DOC'S SAID HIS OLD ONE STILL LOOKED FINE.
THANK YOU ALL SO MUCH FOR THE PRAYERS, THIS IS A WONDERFUL SITE TO BE A MEMBER OF. WILL KEEP YOU POSTED OF RYAN'S RECOVERY, HE IS JUST EXCITED ABOUT THE HOLIDAYS ESPECIALLY THE MACYS PARADE ON TV.
AGAIN YOU HAVE HELPED ME SO MUCH WITH ALL YOUR POSITIVE THOUGHTS AND PRAYERS.

CHERYL

 

I POSTED A COMMENT EARLIER ABOUT MY SON RYAN, WE LEAVE FOR DUKE HOSPITAL ON THE 9TH , MY LITTLE BOY HAS HAD A PACEMAKER SINCE 15 MN. OLD, HE HAS A 3 LEAD PACER NOW, BUT THEIR TALKING ABOUT A PACER/DEFIBRILLATOR THIS TIME, JUST WONDERING IF ANY KIDS/ TEENS HAVE THIS ALREADY.
EVEN THOUGH I JUST SIGNED BACK ON THIS SIGHT I WAS ON SEVERAL YEARS AGO WHEN RYAN WAS 7 I RECEIVED SO MUCH SUPPORT AND WAS SO THASNKFUL FOR THAT. I HOPE SOMEONE CAN HELP ME NOW, AS RYAN HAS HAD 6 HEART SURGERIES BUT I AM SO NERVOUS, SCARED, CRY EVERYDAY, AND PRAY ALOT FOR MY LITTLE BOY, I'LL BE GLAD WHEN THIS IS OVER AND WE'RE HOME.....WOULD PLEASE PRAY FOR HIM TOO, HE HAS SURGERY ON NOV. 11.09.

THANKS, CHERYL

 

i babysit a 10 year old with a pacemaker/ defibrillator, she in on her second one now. she got it when she was 5 or 6 i'm not quite sure. but recently like last month she had to have her first one replaced and now lately i've noticed changes in her. she is lying about if she ate or not like she tells her mom she's eaten breakfast here and tell's me that she ate breakfast at home. things like that. so i'm worried about her. i know there is not a lot i can do because i'm not her parent, but i figured that there must be some way i can help her. i think she should be in some kind of counceling but he mom won't do anything for her. she doesn't really even talk to her mom. so today i got her to talk to me a bit and tell me what's bugging her and...

 

Just wondering if anyone had experienced pregnancy with a pacemaker. I just had my pacer put in 2 weeks ago, and i always wanted another baby. im wondering if that is even possible now.

thanks

 

My son is getting his pacemaker on Nov. 20th for a CHB. He has recently started to act out in school and seems very angry. I know that he is scared about the up coming surgery. He is also dyslexic and struggles with grades as it is. He has always played basketball and many other sports, and is now to tired to keep up like he did. He has been changed into regular P.E. and seems to be taking out his anger on his new P.E. teacher as well. Do any of you know a good Counselor for him to see before and after his surgery. We are in the San Antonio, Texas area.