Hi
Nice to receive your message. If your mom can get one & doctor don't think she is to old, I would go for it.
I was always so healthy, never weighted over 112 pounds, walked three miles per day, ate good food, never smoke or drink. Was 58 years old & two weeks before had blood test all perfect range. Then brushing my teeth for bed my left arm started to hurt very bad, my husband (Airline Pilot) trained to act fast said I am getting the car taking you to ER. The hospital was about five mins from our home. It just happen a Cardologist & his medical team was on call that night.
He looked at me & said "you are in the middle of a heart attack." To make a long story short, they started the tsp drip to bust clots which took a ...

 

I am not ready to have my second baby...right this instant... but the idea is starting to be discussed more and more. Maybe next year! Wondering what kind of preperations if any, I would need to do before I got pregnant as far as the PM goes.

I have a few other things to square away first LOL....but want to be ready!

I know some of you have had babies with a PM....please chime in and offer feedback!
THANKS

 

My daughter is 14 years old and got her first pacemaker 2 weeks ago. Last night she came to me complaining of shortness of breath and felt as if her heart was to slow. After a little while she felt better, but complained the muscles around the pm site hurt. Her pm is set to fire at 80. Do these symptoms mean that the pm fired? Although I am used to all her cardiac problems - she has had OH 4 times because of a congenital heart defect -this is a whole new ball game.

 

hello...

my son is 8 years old and has a complete heart block. he is having his surgery to place his pacemaker this coming tuesday. my nerves have been getting the best of me lately. his rate is 48 when awake and falls into the 30's with a 3 second pause at night. never shown any symptoms and you would never think he would have an issue with his heart....just looking to see if anyone can fill me in on what to expect...he's getting anxious also....

 

Watched a hospital program late last night. Centered to some extent on Great Ormond St Hospital for Children. One of the patients a 14 year old boy keen on sport was brought in having suffered a heart attack. A flap of skin was discovered inside his heart which was removed during an operation. However the doctors were convinced that he had further problems and he ended up with an ICD after further tests . I was quite amazed when they tested the ICD during implantation. His body almost bounced off the operating table. It took 2 hours to put it in and test it. I must have experienced that during my many cardioversions prior to my pacemaker. They told him it would stop him suffering SDD or sudden death syndrome. His mother was quite tearful a...

 

My doc told me the only reason I have High Grade AV Block is it's congenital. My two kids are now 12 and 13...I was reading that adolescents can start being symptomatic. Should I have them tested - a baseline ECG or something? They are both very active in sports - running, football, pilo's...I truly worry they'll drop one of these days. Would I use their ped or go to a cardiologist?
Thanks!
Tracie

 

Hello

I had my pacemaker fitted 11 days ago, I am currently 25 weeks pregnant. The pacemaker has been placed under my left breast and I am now wordering if I will be able to breast feed on my left hand side once my daughter is born or not?

Has anyone else had there pacemaker placed under their breast so it can't be seen and then gone on to breast feed?

Many thanks

Jen

 

I have gone through several PMs and would like to offer help or assistance to other PM patients. I feel like I would have a lot of experience in dealing with people concerning their PMs and the related issues, problems, and concerns. I can be found on Facebook under my name, Charles Edward Nobles and would invite other PM patients (young and old). I have had more than nine PMs, Open Heart Surgery, and Coarctation of the Aorta. I would be willing to chat, email, or talk on the phone to anyone that would be needing someone else for advice and/or encouragement........

 

Is there anyone out there who has been pregnant/had a baby since getting their PM? My husband and I are thinking about starting a family in the next year or so and am wondering if there is anything I should know. Can there be any complications? Or is everything just like if I didn't have a pacemaker? Can you breast feed? Is there anything that I need to do before I get pregnant to get ready for?

Nikki

 

I am the grandmother. My grandson is very active and you would never know he needs a pacemaker. They put heart monitor when they diagnosed him at 1yr old on a routine visit to the Dr. It has now went to stage 3. I have never seen him pass out or do anything abnormal. He has now complete heart block. They say his heart is good but the heart does not know to send the signal from the top to bottom. No one on my side of family has this and no one on the mothers side has this. Does anyone know where this comes from? And if they said his heart rate is 40 how come he shows no sign of having a problem? Is that possible?

 

I would like to share some of MY personal knowledge about PMs, I had Open Heart Surgery at 3, 9 PMs since then, I currently am about to be 40 years old. I lead a VERY active life, I travel the entire U.S. setting up the inside shelving for new Big Box Stores, I get 5-6 weeks on the road, I come home for 3-7 days, I then return to another part of the U.S. and continue setting up a different kind of store about every 6 months. I thank God for my PM and the ability that it gives me to lead a VERY productive, active, and sometimes a long day scheduled life. I will probably continue to do this for many more years. If anyone would like to CHAT then join me on Facebook just look me up; Charles Edward Nobles (Edward Nobles). I will add you a...

 

Hi there,
My son had a pcemaker implanted in Oct 2009 in Sydney, Australia. He was really sick for 2 years with syncope, low HR, high HR, weight loss, tiredness etc. They finally diagnosed him with complete heart block and a pacemaker was inserted the following day. Thank God his heart is not allowed to drop below 60 now (I can finally sleep at night!). I am still concerned though because his hr is still irregular and it gets up to 120/130 bpm for no good reason. He is also experiencing pain around the pacemaker site that shoots under his arm and through to his back. Doctors here do not seem to be able to give me any answers. All tests are normal. Does anyone have any suggestions

 

Hi I am new to this site, but not new to the pm. My son Cody had transposition of the great arteries and a vsd and asd @ birth. He had surgery to correct this @ 4 days old. Cody was 6wks premature because he is a twin. Cody ended up with a pm @ 17 days old. Cody is and always has been the more active twin which is funny considering his twin is perfectly healthy. I find it very hard to keep Cody from being an active boy. Cody is now 5 and is on his 2nd pacemaker. When Cody was 2 1/2 he broke a lead. Cody did not show any signs or symptoms and this was only noticed @ a routine pm ck 2 wks after they think he broke it. Cody was running in circles @ the hospital prior to surgery with a hr of 40. Cody has 2 brothers and loves to be a...

 

My son will graduate from highschool next year. While in Georgia we have the Hope scholarship, I was wondering if anyone out there knew of some that were avaliable for children with pacemakers? My oldest daughter got different scholarships and she only had to pay for one class when she was in college. She lived at home but still had to work for different things. Which I think is a good thing. She is very responsible.

 

My daughter is 4 and had her pacemaker placed in April 09. She has done so much better with her pacer. She used to pass out 6-7 times a week. Her heart was struturally normal at the cardiologist so he ordered a Holter Monitor and after 2 days she passed out again while getting out of the car. The monitor showed that her heart stopped for 30 seconds. They tried medication but she was allergic to it. Then they placed her pacer in her abdomen. It is a dual chambered epicardial pacer with a high and low setting plus a drop setting (if her heart rate drops suddenly it will start pacing). She came home from the hospital after a week and still had fevers. They called it Post Pericardialotomy Syndrome. We live an hour and a half from the hospital....

 

My 4-year old daughter has had a pacemaker since three days after she was born. I always tell her not to put any pressure against her abdominal area (that's where the pacemaker is). For example, to avoid spinning on monkey bars, or kicking or excessive pressure from anyone into that area. She sees other kids doing all the things she is supposed to avoid and she does not like it.
I have not explained to her in detail what is inside her and its purpose. How should I tell her? I am not sure what her response will be and how she is going to react. Is there something I SHOULD tell her or something I should NOT? Do you have any ideas?
Thanks,
Ada

 

my daughter had her pacemaker placed just over a year ago and did well with recovery. she has had asthma symptoms develop over the last 6 months and is being treated daily for that. in the past week, she has had a couple episodes of swelling in her knuckles with a little redness....i don't know what its from?? could this all be related to the pacemaker or underlying condition of complete heart block? i did a little looking online (dangerous, i know) and saw these things could be related to heart failure...but with a pacemaker is that even possible? we have an appt. with her cardiologist coming up this week, just thought i would run these questions by some "veterans" while we wait. thanks!

 

I just wanted to post that my son got his pacemaker on November 20th. He has a CHB. He is doing great, back to normal 16 yr old. His heart won't get below 60 b.p.m., which is worlds away from his resting heart rate of 35 b.p.m. We took him to the doctor the other day for a regular drs. visit and his heart rate was 80 b.p.m., I don't remember the last time it was that high. Pretty exciting!!!! He is surprised at how much energy he has now. He didn't realize how tired he was and how little he was able to do. He will be able to get back to basketball this summer. Do any of you know if there is some kind of protective covering that he can wear?

Thanks for all the support I got from this website. My fears were calmed and I ...

 

From the US, Georgia. I know many of you will have questions about having a PM, I know most of y'all have never had one and most have never even had surgery. I am here to inform, answer questions, become a PenPal, and even talk to you over the phone. I was 3 yrs old when I got my first, it lasted a year. I got my second when I was 4, and my next one when I was 8. I currently have my TENTH one. I do not mind if you find me as a FRIEND on FACEBOOK (Charles Edward Nobles) or MYSPACE ( repwork@gmail.com ). I have expericenced alot in my 35 plus years and do not mind sharing the information, helping others, and just being there for holding someone's hand. Thanks Charles

 

okay, so we actually got a webiste together! thanks too TraceyE.

So everyone go check it out http://teenswithheart.com !
teens sign up! im still trying too figure everything so give us a few days too check out the site, and hopefully we can get this thing goin(;

THHHHANKS TRACEYE(((: