St. Jude Medical Pacemakers & ICDs

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Posted by nato on 2014-01-12 22:27. 4 comments. 680 reads
 
Hi Moms,

How was your child appetite after a year following his/her implant date.My son who has a pacemaker,he is putting on weight very slowly and my husband and I are quite concern.

Doctors said with the aid of his pacemaker now,that should not affect his appetite as compared to being without it.

Appreciate your response....

Posted by nato on 2014-01-08 12:40. 4 comments. 441 reads
 
Hi All,

Does anyone has kids who played with any of the leap frog computers or learning games and is safe to use with their pacemakers.

I want to buy my son his birthday present but I am scared that it might tamper his device.What are your thoughts and recommendation that will be safe to use?



Posted by nato on 2014-01-07 12:02. 1 comments. 402 reads
 
Hi All,

Does anyone has a child who suffers from CHB and no longer needs to have a pacemaker after the first one?

Posted by nato on 2014-01-07 09:44. 1 comments. 406 reads
 
Hi All,

My son who has a pacemaker had an echo done recently and the physican stated on his report he has a moderately dilated left ventricle with normal left ventricular systolic function(LVEF 55-60%).Some suggestion of diastolic dysfunction as well.

Has anyone ever experience this with their kids?

When my son was born his heart was dilated and now with the aid of his pacemaker,will this condition be resolved?

Appreciate if you can share your information...

Posted by katelyneliza on 2014-01-05 19:50. 5 comments. 419 reads
 
Hello, I'm 18 years old (still in high school) and I've had a pacemaker since I was three. I was born with tetarology of fallot and several other complications. I was wondering if theres any high schoolers on here living with a pacemaker? I'm pretty sure I'm the only person in my school to have one, so hey I enjoy being different ! :)

Posted by saturn6776 on 2013-11-03 20:37. 6 comments. 988 reads
 
My 4yo daughter recently had a pacemaker implanted in her abdomen for a 2nd degree heart block with syncope and seizures. I don't fully understand her activity restrictions. The doctor has told us she wont be able to play any contact sports like football or karate. Is gymnastics OK. She has been in gymnastics since 8months old and loves it. What about soccer where the ball could hit her stomach? Any advice would be helpful. Up to this point she has been an extremely active kid who loves playing outside. Thanks Lisa

Posted by kitkatrussell on 2013-09-30 03:40. 5 comments. 918 reads
 
To Parents of Kids w/Pacemakers:

We have 16 days before surgery to implant pacemaker...are there any activities you suggest we do now while we can with our 6 year old, that he would be restricted from doing with a pacemaker?
Surgeon told us anything with vibrations or EMF's would have to be avoided.
What restrictions are you aware of?
Thank you for the information in advance!

Posted by wifeweasel on 2013-09-15 00:39. 5 comments. 945 reads
 
My 5 month old son had pacemaker fitted at 3 days old due to Complete Heart Block. He is currently suffering from bad cold and has cough and wakes up struggling to breath. I am using cold vapour in bowl in room and saline nose drops but should I call docs or am I being too overly cautious? He's been up most of night and has cried himself awake a lot. Can a cold affect pacemaker? Help

Posted by kitkatrussell on 2013-09-13 15:00. 3 comments. 659 reads
 
Parents of littles with pacemakers, please let me know what I'm in for and what to expect. Our son Jackson goes to UCSF Oct 17th. For the past year I've been mourning his 'normal' since I anticipate more physical restrictions after implantation. He has tricuspid atresia so we are very familiar with the hospital scene & recovery after open heart surgeries & other procedures. Jackson came out of his Fontan surgery at age 3 pacing half the pre-op rate (his ave is in the 60's daytime, in the 20's at night with pauses up to 4 seconds!)
Because of his restricted access & diff blood flow pattern, they are placing the 'box' below the rib cage & it will remain there forevermore.
Besides all the restrictions his surgeon was telling us,...


Posted by megiemay on 2013-08-22 14:45. 0 comments. 445 reads
 
Ok i havent been on since i has 12 with my first comment called my first pacemaker asking what i can do as i had to give up karaty. I got alot of responce and one from a donr wich really helped me.

Now i have join a archaeology group witch im the head online leader and joind my schools rounders team well i was recruted but i just wanted to say thanks and well i hope to use this groipe through my experience.

So its been 3 years just since my pacemaker augest 7th 2010.

Oh i didnt mension last time but i had the pacemaker fitted because i have takie/brady syndrome so my hart gise to slow or to fast also 2 of my heart chambers dont work propely and my natural pacemaker dosent work propely either. Xx thank...


Posted by Momof3 on 2013-08-19 01:08. 5 comments. 849 reads
 
My daughter, age 6, was diagnosed with stage 3 heart block in July and received a pacemaker. I'm trying to set up accomidations at school for her but I'm not sure what she will need because this is all so new for us. Any suggestions? The school is less than helpful and is even fighting us on installing an air conditioner in her classroom to prevent her from becoming overheated or dehydrated. Are there any laws protecting children with heart conditions as there are for children with diabetes? Thanks so much!

Posted by rebeccaprance on 2013-07-25 09:54. 3 comments. 481 reads
 
Hello all. My 2yr. old son will be going next week for his pacemaker surgery. I just wanted to see if there is anyone with young children who have undergone this surgery and have any helpful hints. Obviously, he is too young to understand what will take place. If there is anything that anyone can share about helping to get a young child through this, helpful hints, or things to know about recovery, I am all ears and would greatly appreciate any words of wisdom. Thank you in advance!

Posted by KelsieM on 2013-07-19 04:53. 5 comments. 792 reads
 
Hi everyone!! This question is for any ladies who have had babies with a pacemaker and CHB. (Complete heart block) how was labor with the pacemaker? Any complications? We're you able to push the baby out no problem? What about C-section? If you had to get C-section, how was that in regard to the pacemaker? Thanks ladies for responses! Helps me so much :)))
Kelsie

Posted by mommyof3 on 2013-07-16 09:21. 3 comments. 440 reads
 
Hi, I was just told yesterday that i need a PM... i am 32 years old. i have a 4 month old nursing baby. i am scared, but also worried about how the recovery will go with needing to nurse my baby? has anyone else had to do this? any tips? also, how do you talk to your 6 year old, 3 year old about why this is happening and why i cant hold them...

Posted by Wija0603 on 2013-07-01 00:08. 3 comments. 1526 reads
 
My daughter is almost 16 months old and will be having a pacemaker placed on July 11th. She has sick sinus syndrome and has problems tachycardia due to having OHS at 10 days old. anyone have any advice on pacemaker placement in a toddler?



Posted by ghizlane on 2013-06-24 09:46. 2 comments. 525 reads
 
Hi all,

I have a pacemaker for bradycardia arrythmia since 2009, is it possible to have a successful pregnancy with this condition? Would it be risky for me or the baby?

Thanks,
Ghizlane

Posted by micale on 2013-06-01 11:48. 1 comments. 524 reads
 
My father is 80.He has heart disease, diabitis for many years.His heart rate has been in the 40`s for several years . Since his last sergery about 2 years ago for a hernia went terrible,his doctor said we shouldnt do anything about it.His last visit to his doctor a week ago he changed his mind.He said since he hasnt had any issues and he`s a little stronger he thinks a paemaker will help him.
My dad is constantly sleeping.Wakes up around 7:00,has something to eat,takes his meds,goes to bed around 10:00.A few hourd later he wakes up for lunch, a few hours later he`s sleeping again and so on.......He has no hobbies, the can`t even go out to dinner anymore.Going to the doctors or comming over to my house takes everything out of him.


Posted by Kimberlee on 2013-05-11 20:40. 4 comments. 478 reads
 
A little over a year ago I took my son in for his annual echo, (he has cardiomayapathy, not sure I spelled it right) and was told that the heart wall had thickened enough that his doctor want a defibrillator place right away. That caused my first panic attack. The surgery went amazing, and I felt some relief knowing it was there. Just under a year latter the device saved his life. That was about 2 months ago and last week it fired again. Now it has moved over to the side near his armpit. I am sick of people around me telling me that I'm over reacting. It feels like I'm not reacting enough, and I don't think they understand this is my child. I really think I'm at a point where I need other parents support who do understand.

Posted by donr on 2013-05-03 14:00. 12 comments. 1184 reads
 
Here's what Frank's son, John, reported to the PMC on 21 April. Obviously not everyone saw this. It generated 53 comments from members.

Don
Frank Passed Away Last Week
Posted by ElectricFrank on 2013-04-21 18:12

Hello, my name is John and I am Franks son. Frank passed away last week. I know he truly enjoyed being a part of the pacemaker club. He did not die from a failing heart or defective pacemaker. In fact I'm certain he would have wanted this post to actually read, "Slightly used pacemaker for sale. Perfectly calibrated and only slightly used. Installation instructions included. Sold as is."

While Frank was in great health for 82 he was also in a fair amount of pain. He chose to leave this w...


Posted by deargirl3 on 2013-04-26 22:14. 11 comments. 939 reads
 
My daughter is having her pacemaker put in on the 10th of may. She is 10 years old and always been very healthy. almost a yeaar ago she broke her arm and had to be put onder to have it reset while while this was going on the doctors found that her heart rate had dropped down to 37. we left one hospital in our area and drove her to UPMC in pittsburgh. There they diagnosed her with complete heart block. They said that they can not tell us what caused this. They told us that she would need the surgery at some point. Just about 1 month ago we noticed she was getting tired during dance and softball also turning pail and not feeling well at all. We took her back to the doctors in pittsburgh and they told us she could not wait any longer. I am ve...




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