St. Jude Medical Pacemakers & ICDs

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Messages in Parents & Kids Forum



Posted by kitkatrussell on 2013-09-13 15:00. 3 comments. 618 reads
 
Parents of littles with pacemakers, please let me know what I'm in for and what to expect. Our son Jackson goes to UCSF Oct 17th. For the past year I've been mourning his 'normal' since I anticipate more physical restrictions after implantation. He has tricuspid atresia so we are very familiar with the hospital scene & recovery after open heart surgeries & other procedures. Jackson came out of his Fontan surgery at age 3 pacing half the pre-op rate (his ave is in the 60's daytime, in the 20's at night with pauses up to 4 seconds!)
Because of his restricted access & diff blood flow pattern, they are placing the 'box' below the rib cage & it will remain there forevermore.
Besides all the restrictions his surgeon was telling us,...


Posted by megiemay on 2013-08-22 14:45. 0 comments. 391 reads
 
Ok i havent been on since i has 12 with my first comment called my first pacemaker asking what i can do as i had to give up karaty. I got alot of responce and one from a donr wich really helped me.

Now i have join a archaeology group witch im the head online leader and joind my schools rounders team well i was recruted but i just wanted to say thanks and well i hope to use this groipe through my experience.

So its been 3 years just since my pacemaker augest 7th 2010.

Oh i didnt mension last time but i had the pacemaker fitted because i have takie/brady syndrome so my hart gise to slow or to fast also 2 of my heart chambers dont work propely and my natural pacemaker dosent work propely either. Xx thank...


Posted by Momof3 on 2013-08-19 01:08. 5 comments. 767 reads
 
My daughter, age 6, was diagnosed with stage 3 heart block in July and received a pacemaker. I'm trying to set up accomidations at school for her but I'm not sure what she will need because this is all so new for us. Any suggestions? The school is less than helpful and is even fighting us on installing an air conditioner in her classroom to prevent her from becoming overheated or dehydrated. Are there any laws protecting children with heart conditions as there are for children with diabetes? Thanks so much!

Posted by rebeccaprance on 2013-07-25 09:54. 3 comments. 435 reads
 
Hello all. My 2yr. old son will be going next week for his pacemaker surgery. I just wanted to see if there is anyone with young children who have undergone this surgery and have any helpful hints. Obviously, he is too young to understand what will take place. If there is anything that anyone can share about helping to get a young child through this, helpful hints, or things to know about recovery, I am all ears and would greatly appreciate any words of wisdom. Thank you in advance!

Posted by KelsieM on 2013-07-19 04:53. 5 comments. 733 reads
 
Hi everyone!! This question is for any ladies who have had babies with a pacemaker and CHB. (Complete heart block) how was labor with the pacemaker? Any complications? We're you able to push the baby out no problem? What about C-section? If you had to get C-section, how was that in regard to the pacemaker? Thanks ladies for responses! Helps me so much :)))
Kelsie

Posted by mommyof3 on 2013-07-16 09:21. 3 comments. 390 reads
 
Hi, I was just told yesterday that i need a PM... i am 32 years old. i have a 4 month old nursing baby. i am scared, but also worried about how the recovery will go with needing to nurse my baby? has anyone else had to do this? any tips? also, how do you talk to your 6 year old, 3 year old about why this is happening and why i cant hold them...

Posted by Wija0603 on 2013-07-01 00:08. 3 comments. 1482 reads
 
My daughter is almost 16 months old and will be having a pacemaker placed on July 11th. She has sick sinus syndrome and has problems tachycardia due to having OHS at 10 days old. anyone have any advice on pacemaker placement in a toddler?



Posted by ghizlane on 2013-06-24 09:46. 2 comments. 474 reads
 
Hi all,

I have a pacemaker for bradycardia arrythmia since 2009, is it possible to have a successful pregnancy with this condition? Would it be risky for me or the baby?

Thanks,
Ghizlane

Posted by micale on 2013-06-01 11:48. 1 comments. 485 reads
 
My father is 80.He has heart disease, diabitis for many years.His heart rate has been in the 40`s for several years . Since his last sergery about 2 years ago for a hernia went terrible,his doctor said we shouldnt do anything about it.His last visit to his doctor a week ago he changed his mind.He said since he hasnt had any issues and he`s a little stronger he thinks a paemaker will help him.
My dad is constantly sleeping.Wakes up around 7:00,has something to eat,takes his meds,goes to bed around 10:00.A few hourd later he wakes up for lunch, a few hours later he`s sleeping again and so on.......He has no hobbies, the can`t even go out to dinner anymore.Going to the doctors or comming over to my house takes everything out of him.


Posted by Kimberlee on 2013-05-11 20:40. 4 comments. 437 reads
 
A little over a year ago I took my son in for his annual echo, (he has cardiomayapathy, not sure I spelled it right) and was told that the heart wall had thickened enough that his doctor want a defibrillator place right away. That caused my first panic attack. The surgery went amazing, and I felt some relief knowing it was there. Just under a year latter the device saved his life. That was about 2 months ago and last week it fired again. Now it has moved over to the side near his armpit. I am sick of people around me telling me that I'm over reacting. It feels like I'm not reacting enough, and I don't think they understand this is my child. I really think I'm at a point where I need other parents support who do understand.

Posted by donr on 2013-05-03 14:00. 12 comments. 1128 reads
 
Here's what Frank's son, John, reported to the PMC on 21 April. Obviously not everyone saw this. It generated 53 comments from members.

Don
Frank Passed Away Last Week
Posted by ElectricFrank on 2013-04-21 18:12

Hello, my name is John and I am Franks son. Frank passed away last week. I know he truly enjoyed being a part of the pacemaker club. He did not die from a failing heart or defective pacemaker. In fact I'm certain he would have wanted this post to actually read, "Slightly used pacemaker for sale. Perfectly calibrated and only slightly used. Installation instructions included. Sold as is."

While Frank was in great health for 82 he was also in a fair amount of pain. He chose to leave this w...


Posted by deargirl3 on 2013-04-26 22:14. 11 comments. 879 reads
 
My daughter is having her pacemaker put in on the 10th of may. She is 10 years old and always been very healthy. almost a yeaar ago she broke her arm and had to be put onder to have it reset while while this was going on the doctors found that her heart rate had dropped down to 37. we left one hospital in our area and drove her to UPMC in pittsburgh. There they diagnosed her with complete heart block. They said that they can not tell us what caused this. They told us that she would need the surgery at some point. Just about 1 month ago we noticed she was getting tired during dance and softball also turning pail and not feeling well at all. We took her back to the doctors in pittsburgh and they told us she could not wait any longer. I am ve...


Posted by jonie.pierce on 2013-04-25 22:15. 12 comments. 888 reads
 
My daughter was diagnosed with bradycardia at 7. She has complete heart block. Now her cardiologist thinks it is time for a pacemaker. He wants to have the leads sewn onto her heart and implant the pacer into her abdomen. I guess this is a fairly common surgery, but the thought of my little girl going through this has me tied in knots. The surgery is scheduled for June 6. I guess I'm just looking for a little reassurance. This is hard for the whole family. No one wants her to have to go through this!

Posted by blmom on 2013-04-02 17:56. 8 comments. 1160 reads
 
Hi all this is my first post - my son is having a pacemaker fitted on 10 April 2013 (next week)- he is just turned 18 - we are from N Ireland - he has no symptoms, never blacked out, never dizzy but he has a heart rate of 28/30 beats per min. He was told he has total congenital heart block - some thing he was born with. I was just wondering if he should go ahead with having it fitted as he is always healthy and his low heart rate does not affect his lifestyle in any way, he is a 6ft 2in healthy teenager - I am worried about the surgery - any advice welcome.

Posted by Momofironman on 2013-03-19 22:01. 3 comments. 602 reads
 
My son has complete HB and a PM. I want to know if there are other tweens that he can relate to on this board. We are facing our next surgery soon. We have had three PMs and need to choose one that will be great for a golfing teen and young man. Any help? Good models, bad, ugly?!!!

Posted by INFANTJS on 2013-03-17 07:13. 9 comments. 1393 reads
 
My son is teenager, recently he fainted and got injury, when consulted the Doctor, after Holter mapping, they advised to go for a Pacemaker. His lowest pulse rate is at 40 during night. I am deeply worried and in deep sorrow to hear this. Please advise if any alternate methods to cure bradycardia without Pacemaker. Pls help.

Posted by japresler on 2013-03-11 02:55. 1 comments. 639 reads
 
I couldn't help but be touched by your post. My granddaughter had congenital heart block and was also paced at 3 days old and has had two replacements since then. She also has a comewhat enlarged left ventricle and has been on meds since 5 days old. The first two years were the hardest for my daughter and she also had Ptsd. She was so afraid of everything, checked on the baby 5 times a night, and we were all worried about her too. Aletheia (my granddaughter) is now 8 and a half - and she is doing really well. Her heart enlargement has not gotten worse and she is quite a happy little girl. She has had her struggles - her last battery replacement made her just plain mad - and we let her be. But one day after the surgery (which was d...


Posted by dg83 on 2013-03-08 00:47. 5 comments. 601 reads
 
Hi everyone. My baby boy is about to have a pacemaker implanted in the next two weeks or so and have found this site helpful in seeing how many uplifting stories and experiences people can have.

A bit on background – We live in Melbourne, Australia and my son was diagnosed with complete heart block at the age of 5 and a half months. We went to see a specialist because his reflux was getting worse and as the doctor was examining him, he found the slow heart rate, just by chance. To say it was a shock is a complete understatement!

Because he has no symptoms, he has had regular bimonthly appointments. Up until his last appointment he was doing well. He is now 16 months old and although he still has no symptoms, tests h...


Posted by Annelise on 2013-02-17 02:50. 10 comments. 672 reads
 
Hi everyone! So releaved to have found this wonderful support group. I'm a mother of 2 children,a daughter turning 8 in June,and my son turning 3 in May. My 1st son was born in 2004 but died on the 4th day after birth,due to a very rare heart defect. To make a long story short,it seems the genes in our families males are bad news!! My husbands grandfather died when 35,had a slow heart rate,and on 35 it stopped! While still pregnant with my son Jayden,who's turning 3 in May,my dr picked up an irregular heart beat on the sonar,and with my 1st born's history,they monitored him well till after birth. A few days after he was born,we took him for a heart sonar where they did NOT pick up any low heart rate,just the extra pulse which made it irreg...


Posted by graham1 on 2013-02-07 05:21. 4 comments. 568 reads
 
Hi.
Any have any experience of links between pacemakers and tricuspid regurgitation.
Regards.
Graham



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