St. Jude Medical Pacemakers & ICDs

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Posted by pearleamy on 2014-01-24 15:00. 7 comments. 747 reads
 
Hi my name is mark and iam new to the pclub.I have a little girl who has pacemaker due to hearblock she is 1 and half we would like to take her on holiday abroad to menorca (spanish island) We are from the uk.We are a bit worried in case she had any problems
what would we do ?? are the hospitals able to help with pacemakers for child of 1 and half years.We would not take her if there was a problem as she is our pride and joy.The consultant said it wouldnt be a problem but we just feel a little uncomfortable with this.Any help would be much appreciated thanks


Posted by nato on 2014-01-22 10:58. 2 comments. 1064 reads
 
Hi Moms,

My son is 21mths and has a pacemaker with a natural heart beat of 33-44 Bpm.He is paced 100% of the time.

The normal heart pulse rate for a child depends on the child's age. For an infant child who is less than one year old the normal heart rate is 100 and 160 beats per minute. For kids aged between one year and ten years the normal heart rate is between 70 and 120 beats per minute. Teenagers usually have a normal heart rate of between 60 to 100 beats per minute

Question;

As my son gets older,will his normal heart beat drop below 30-44 Bpm or will it remain the same as he gets older?

Appreciate your response...




Posted by annaslucas on 2014-01-13 16:40. 4 comments. 527 reads
 
Hi! I'm new here. I am 32 weeks pregnant and the baby has complete heart block, which will require a pacemaker at birth. Anyone have experiences with implantation at or soon after birth? Thank you!



Posted by nato on 2014-01-12 22:27. 4 comments. 732 reads
 
Hi Moms,

How was your child appetite after a year following his/her implant date.My son who has a pacemaker,he is putting on weight very slowly and my husband and I are quite concern.

Doctors said with the aid of his pacemaker now,that should not affect his appetite as compared to being without it.

Appreciate your response....

Posted by nato on 2014-01-08 12:40. 4 comments. 505 reads
 
Hi All,

Does anyone has kids who played with any of the leap frog computers or learning games and is safe to use with their pacemakers.

I want to buy my son his birthday present but I am scared that it might tamper his device.What are your thoughts and recommendation that will be safe to use?



Posted by nato on 2014-01-07 12:02. 1 comments. 459 reads
 
Hi All,

Does anyone has a child who suffers from CHB and no longer needs to have a pacemaker after the first one?

Posted by nato on 2014-01-07 09:44. 1 comments. 468 reads
 
Hi All,

My son who has a pacemaker had an echo done recently and the physican stated on his report he has a moderately dilated left ventricle with normal left ventricular systolic function(LVEF 55-60%).Some suggestion of diastolic dysfunction as well.

Has anyone ever experience this with their kids?

When my son was born his heart was dilated and now with the aid of his pacemaker,will this condition be resolved?

Appreciate if you can share your information...

Posted by katelyneliza on 2014-01-05 19:50. 5 comments. 483 reads
 
Hello, I'm 18 years old (still in high school) and I've had a pacemaker since I was three. I was born with tetarology of fallot and several other complications. I was wondering if theres any high schoolers on here living with a pacemaker? I'm pretty sure I'm the only person in my school to have one, so hey I enjoy being different ! :)

Posted by saturn6776 on 2013-11-03 20:37. 6 comments. 1124 reads
 
My 4yo daughter recently had a pacemaker implanted in her abdomen for a 2nd degree heart block with syncope and seizures. I don't fully understand her activity restrictions. The doctor has told us she wont be able to play any contact sports like football or karate. Is gymnastics OK. She has been in gymnastics since 8months old and loves it. What about soccer where the ball could hit her stomach? Any advice would be helpful. Up to this point she has been an extremely active kid who loves playing outside. Thanks Lisa

Posted by kitkatrussell on 2013-09-30 03:40. 5 comments. 1012 reads
 
To Parents of Kids w/Pacemakers:

We have 16 days before surgery to implant pacemaker...are there any activities you suggest we do now while we can with our 6 year old, that he would be restricted from doing with a pacemaker?
Surgeon told us anything with vibrations or EMF's would have to be avoided.
What restrictions are you aware of?
Thank you for the information in advance!

Posted by wifeweasel on 2013-09-15 00:39. 5 comments. 1082 reads
 
My 5 month old son had pacemaker fitted at 3 days old due to Complete Heart Block. He is currently suffering from bad cold and has cough and wakes up struggling to breath. I am using cold vapour in bowl in room and saline nose drops but should I call docs or am I being too overly cautious? He's been up most of night and has cried himself awake a lot. Can a cold affect pacemaker? Help

Posted by kitkatrussell on 2013-09-13 15:00. 3 comments. 730 reads
 
Parents of littles with pacemakers, please let me know what I'm in for and what to expect. Our son Jackson goes to UCSF Oct 17th. For the past year I've been mourning his 'normal' since I anticipate more physical restrictions after implantation. He has tricuspid atresia so we are very familiar with the hospital scene & recovery after open heart surgeries & other procedures. Jackson came out of his Fontan surgery at age 3 pacing half the pre-op rate (his ave is in the 60's daytime, in the 20's at night with pauses up to 4 seconds!)
Because of his restricted access & diff blood flow pattern, they are placing the 'box' below the rib cage & it will remain there forevermore.
Besides all the restrictions his surgeon was telling us,...


Posted by megiemay on 2013-08-22 14:45. 0 comments. 506 reads
 
Ok i havent been on since i has 12 with my first comment called my first pacemaker asking what i can do as i had to give up karaty. I got alot of responce and one from a donr wich really helped me.

Now i have join a archaeology group witch im the head online leader and joind my schools rounders team well i was recruted but i just wanted to say thanks and well i hope to use this groipe through my experience.

So its been 3 years just since my pacemaker augest 7th 2010.

Oh i didnt mension last time but i had the pacemaker fitted because i have takie/brady syndrome so my hart gise to slow or to fast also 2 of my heart chambers dont work propely and my natural pacemaker dosent work propely either. Xx thank...


Posted by Momof3 on 2013-08-19 01:08. 5 comments. 996 reads
 
My daughter, age 6, was diagnosed with stage 3 heart block in July and received a pacemaker. I'm trying to set up accomidations at school for her but I'm not sure what she will need because this is all so new for us. Any suggestions? The school is less than helpful and is even fighting us on installing an air conditioner in her classroom to prevent her from becoming overheated or dehydrated. Are there any laws protecting children with heart conditions as there are for children with diabetes? Thanks so much!

Posted by rebeccaprance on 2013-07-25 09:54. 3 comments. 552 reads
 
Hello all. My 2yr. old son will be going next week for his pacemaker surgery. I just wanted to see if there is anyone with young children who have undergone this surgery and have any helpful hints. Obviously, he is too young to understand what will take place. If there is anything that anyone can share about helping to get a young child through this, helpful hints, or things to know about recovery, I am all ears and would greatly appreciate any words of wisdom. Thank you in advance!

Posted by KelsieM on 2013-07-19 04:53. 5 comments. 872 reads
 
Hi everyone!! This question is for any ladies who have had babies with a pacemaker and CHB. (Complete heart block) how was labor with the pacemaker? Any complications? We're you able to push the baby out no problem? What about C-section? If you had to get C-section, how was that in regard to the pacemaker? Thanks ladies for responses! Helps me so much :)))
Kelsie

Posted by mommyof3 on 2013-07-16 09:21. 3 comments. 497 reads
 
Hi, I was just told yesterday that i need a PM... i am 32 years old. i have a 4 month old nursing baby. i am scared, but also worried about how the recovery will go with needing to nurse my baby? has anyone else had to do this? any tips? also, how do you talk to your 6 year old, 3 year old about why this is happening and why i cant hold them...

Posted by Wija0603 on 2013-07-01 00:08. 3 comments. 1583 reads
 
My daughter is almost 16 months old and will be having a pacemaker placed on July 11th. She has sick sinus syndrome and has problems tachycardia due to having OHS at 10 days old. anyone have any advice on pacemaker placement in a toddler?



Posted by ghizlane on 2013-06-24 09:46. 2 comments. 613 reads
 
Hi all,

I have a pacemaker for bradycardia arrythmia since 2009, is it possible to have a successful pregnancy with this condition? Would it be risky for me or the baby?

Thanks,
Ghizlane

Posted by micale on 2013-06-01 11:48. 1 comments. 578 reads
 
My father is 80.He has heart disease, diabitis for many years.His heart rate has been in the 40`s for several years . Since his last sergery about 2 years ago for a hernia went terrible,his doctor said we shouldnt do anything about it.His last visit to his doctor a week ago he changed his mind.He said since he hasnt had any issues and he`s a little stronger he thinks a paemaker will help him.
My dad is constantly sleeping.Wakes up around 7:00,has something to eat,takes his meds,goes to bed around 10:00.A few hourd later he wakes up for lunch, a few hours later he`s sleeping again and so on.......He has no hobbies, the can`t even go out to dinner anymore.Going to the doctors or comming over to my house takes everything out of him.




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