Hi, I'm new to this board, and I just got my pacemaker 18 days ago. I had it put in 1 week after I had my youngest daughter. I now have 3 children under 3.5 years. So I'm curious if there are any other Mom's on here with young children.

 

i am age 12 and just got my first pacemaker fitted and had to give up karate is there any other sports i can try ?

 

Nathan is my son. I have found this site so he can hopefully connect with others like him. He went into cardiac arrest on November 16, 2010 at the final tryouts for the junior varsity basketball team. Things have been going ok since the incident in Nov where the defib had not gone off. Within the last 12 days it has gone of 8 times. I am hoping others can share with him how they got through some of the difficult times. He is having a very hard time sleeping because of the anxiety he is going through. He is not a "talker" meaning that he is 15 year teenager who we have to work hard on getting "I dont know" He has been told he can no longer play the sports he has loved since a small child. He is scared but does not know how to express...

 

Hello everyone!!! It has been awhile since I have posted in here! Everything is going great! I just graduated College in May and I got hired by the Law Firm I was interning at as a Paralegal.

PLEASE IF WE ARE FRIENDS ON FACEBOOK DO NOT MENTION THE BELOW POST!!!

Now the reason I am here today to for some advice from the Ladies! My boyfriend and I are going to start trying for a baby in the next few months. I know we are not married yet but we are getting there, my little sister just happened to get engaged first and now we have to put some time between the 2 weddings. Anyways since I am getting up there in age(lol) I will be 25 in September, we want to start trying now.

I am very concerned that I will have...

 

I am a 33 year old with Idiopathic Sinus Node Dysfunction and am getting a pace maker put in on Wednesday. Any suggestions on how/what to tell my 5 and 3 year old so as not to scare them? I want them to understand yet not freak out that I have to stay overnight at the hospital.

 

hello everyone ,
My daughter has had her pacemaker since 2005 she is 9 now . Luckely we have had no Major complication. But lately i have noticed that when she run or plays alot her heart beat is so strong i can see it beating ....Very strong her whole chest beats . is this normal for pacemakers? should i be conserened? thank you all for the comments

 

I went through a pregnancy with a Pacer. At the time there was no record of this. I'm pacer dependent with no underlying heart beat.I have a wonderful daughter that's 20 yrs old and in her senior year of college.

 

My 17 y.o. nephew in the Phils. needs a Pacemaker for Complete Heart Block, reviewed by cardiologists here in the USA. There is no insurance coverage out there. Does anyone know how much a Medtronic dual chamber pacemaker is?
Thank you for your kind help

 

My 89 yr old Dad had a pacemaker 4 months ago. I feel that he's worse since having it installed. He constantly has shortness of breath, he has to take water pills and he's always sleeping. After reading some of the other postings I feel as if this seems to be the norm. Can anyone offer any good advice, or hope that things will get better. I don't live close to my parents and I feel for my Mom who now has to take on everything.

Frustrated Daughter

 

Has anyone in this group looked into having a lvad installed?   I have an appointment with my cardio in May and I wanted to ask him about it. I have been reading a lot about them. Dick Cheny is using one now. Looks like one might be useful.
Thomas

 

I am a mother to a 5 month old baby boy who was diagnosed before birth with third-degree CCHB. At this point, thankfully he has not had to have a pacemaker, but there are some signs that pacing may be closer than we were thinking. Seeing as how he cannot tell me how he feels, I am often questioning whether things he does are related to his heart block or not.
Obviously, I do not want him to be paced until it is definitely necessary.
I would appreciate any information that would help me to better understand signs leading to pacing. I know the major signs, but I would like to know if there is anyone who has been through this who can give me personal experience with this situation. Any help will be greatly appreciated.

 

I have a 4 year old son with 3rd degree heartblock that got a pacemaker June of last year. I am a member of Heartblockkids on yahoo groups and heartblock kids on facebook and just heard about this group

 

Please we need your help! There are only 11 child heart surgeries in England, and only one for Yorkshire and Humber. This is now under threat of closure due to government cut backs. Please sign this petition where ever you live as all of you on here, know the importance of being in a familiar place near to family and home through such a difficult time. Please join this online petition to help save the children travelling for hours to get the care they need! I had surgery here and I know how good and needed it is, please join our cause!

Here is the website you can go on to join the petition:
http://www.thepetitionsite.com/6/help-to-save-ward-10-childrens-cardiac-lgi/

 

Hi, When i was 25 weeks pregnant we found out that our baby had complete Heart block. We were told that she only had 30% chance of survival, the rest of my pregnancy was a complete nightmare & an emotional rollercoaster with hospital checks every week to monitor her heart rate. It slowly went down from 60 to 37 bpm when they decided she needed to be delivered at 35 weeks.
When she was born she was rushed to Gt Ormond Street and her pacemaker was put in 3 hours later.
She spent 5 weeks in hospital in which time she got an infection at the wound site and then they pacemaker went wrong ( they say because of the infection) and so she had to have another fitted 3 weeks later.
she's now nearly 8 months old and doing really well, t...

 

I will be traveling from near the Florida area to the Nashville, TN area and would really like to meet some Pacemaker friends along the way. If you would not meeting up, then tell me and hopefully we can meet up face to face. I have had 9 pacemakers, 2 heart surgeries, and numerous other medical procedures..... Thanks Charles Nobles

 

hi, i hope everyone is enjoying the new year. Thanks to everyone who was so interested in Luca and his PM. Well, next week, the 11th we finally go to the hospital to close the patent ductus arteriosus(hope I wrote that correctly) and insert a reveal recorder. Operation should be the 12th. Little Luca is very excited about this, although, and I dont know why, he says he wanted the pacemaker!! My husband couldnt be convinced, so as it wasnt life threatening, we will do one thing at a time. I feel better having the recorder so we can finally know what is going on with his heart. cant know now, but imaging the PM is not far off. I notice a big difference between his endurance and that of his friends. Wish us luck!! happy New year to all of yo...

 

Hi to everyone and thank you for all the responses to my 2 posts. (mine and luca's) I have had a very emotional last several days as we are trying to decide how to proceed. I am expecting feedback from another doctor tonight. Trying to shield my son from the indicision/ lack of agreement on the part of his parents, but he is getting very excited about having some kind of surgery. Last night he couldn't sleep because of all the thoughts in his head. Hopefully this will wrap up with some kind of decision in the next few days. Your responses meant a lot to me and I will read them all to Luca when we have decided what to do, for now I only read a few, trying not to dwell on it. He really likes the idea of being in a club!! Happy Thanksgiving t...

 

I had a pacemaker implanted last summer, and I was asleep while they did it, so I didn't feel anything. When I woke up, I was sore, but i didn't really feel bad at all. I was talking with friends and my family, and I was very happy that I knew my heart would work properly again. I think the second and third days I was the most sore, but I would eat graham crackers (and I don't even like them very much) and take some medicine that really helped a lot so that I wouldn't feel too sore. Every day you get a little bit better! I hope everything goes well for you, and I know you are going to be great!!! God bless you and your family, crazyheart628

 

Hi! I am writing for my son Luca, 7 years old, who may be getting a pacemaker. He would like to hear from someone who has a pacemaker if it hurts when they put it in. Can anyone share their experience with him. Thanks! Luca's mom

 

Hi, I just found this site today and it looks very helpful! My 7 year old son has heart block (third degree) discovered before birth. He has been monitored closely his whole life and now they feel he needs a pacemaker. He also needs to close his Botallo's duct soon as his ventricles are enlarged. They want to do two in one as the doctor says he probably will develop problems soon if we dont put the pacemaker. My husband prefers to wait. We live in Italy and wonder what is customary in the states. Whether or not he has symptoms is up for debate, I feel he tires before other kids, my husband doesn't see it. Any suggestions? Thanks!