St. Jude Medical Pacemakers & ICDs

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Messages in Parents & Kids Forum



Posted by VNorton on 2012-03-14 23:34. 5 comments. 539 reads
 
Hi! Just out there looking for other families with pacemakers. Our 3 mo old had AVSD repair and subsequently needed a pacemaker. He is in 2 to 1 heart block most of the time, with periods of native rhythm. He's now 7 mo old and seems to be recovering well. He has Down Syndrome so we are dealing with a whole host of issues right now. I've reached out in the DS community, but have not been able to find another family that is going through this pacemaker journey. Thanks!

Posted by tinu on 2012-03-11 10:21. 9 comments. 479 reads
 
How do I prepare an 8 year old for her pacemaker generator replacement? She would have to be told that this is just one of the several replacements (plus other interventions) she will need in her life time. I live in India, where there is practically no role of clinical psychologists in health care. The hospitals are busy and treat patients mechanically.

Posted by alterr on 2012-03-10 09:46. 3 comments. 452 reads
 
Hi everyone! I’ve been a member for a couple years now, but rarely write anything. I really need some advice. I have a pacer and must take meds (lisinipril, metropolol) and I’m only 34 years old. I have 2 beautiful children. I was told, however, that I can’t have anymore b/c of the heart meds. I am devastated. Has anyone had experience with heart meds and pregnancy? Feedback is greatly appreciated.


Posted by mother73 on 2012-02-22 19:45. 7 comments. 737 reads
 
My five year daughter has just been diagonised with secondary level 2 heart block. She she showed no symptoms or complained of any pian etc. this was a shock for us. Her average heart beat is 52 and when she sleeps in the night it goes down to 36 sometimes. The dr's are still conducting test. They have advised us that she may need a pacemaker.

What do you think - should she have a pacemaker fitted at such an early age? if you have a similair experience i will appreciate if you share your experience with me.

mother73

Posted by Shell on 2012-02-17 17:33. 2 comments. 427 reads
 
Just read an article on AOL about a baby born in California 9 weeks premature weighing 3.5 pounds getting a pacemaker. He heart is the size of a walnut and when she was born her rate was 45 beats per min. The doctors were going to do a temporary pacing with temp. wires into the heart attached to a device outside her body until she get older but when she was born she was stable enough to get a permanant one. She spent 6 weeks in NICU and went one Jan 12.

Posted by Malata on 2012-02-14 15:27. 9 comments. 713 reads
 
I'm just wondering if anyone of you has a young child with a PM? My daughter has complete heart (to 3rd degree) block due to a Lupus birth. She will be getting one when she reaches 25KG or so, she is 4 and about 15Kg now. I'm concerned about her reaction to this, when it happens in a year or two. And the limitations that she will have to experience. Also, as a girl going through adolescence with this. Being noticable and all. She's a twin as well.

Any advice or stories to share?

AR

Posted by JillianC on 2012-01-21 21:51. 16 comments. 1214 reads
 
Okay well I'm Jillian I'm 16 and
since I was 8 I started having these "episodes"
I would get dizzy and weak and light head also
Would turn pale, shortness of breath,feel Fluttering in my chest,
break out in a sweat,My hearing fades
and sometimes I black out Completely
sometimes I sit Down and
a few Times it helped.
I noticed a pattern on what Triggered them
When ever I walk long stand up long
Or do anything that would raise my heart
Rate would trigger everything. My parents
Didn't think it was serious enough to
Take me to the doctors for. But Here in the
Past 3 months I'm having them ALOT more
And I had a few while just laying down.
My mom took me to th...


Posted by ashleighrose on 2012-01-13 10:02. 17 comments. 1801 reads
 
Just recently I have been diagnosed with a complete heart block which came as a surprise as I am a healthy, active 17 year old and have never had any medical complications. I have been told that a pacemaker is optional in my situation because I haven't had any symptopms like blackouts,fainting etc...
The cardiologist did not say wether or not to get one, just that it was an option, so it's pretty much my decision at the moment. He said it may give me more energy, which would be helpful as I am completing my final year of school and need every all the energy I can get, haha.
I am also unsure if i can get my drivers licence ( I am from Australia btw) with a complete heart block or not. I don't know what to do? What is it like gett...


Posted by Daniel_PM on 2011-12-26 09:35. 11 comments. 790 reads
 
My son is 10 year old and diagnosed a complete AVB several days ago. i am scared by this news. His doctor said myson needed a pacemaker at once. otherwise my son is in danger every day. But how can i do this decision? it is appreciated if anyone let me know folowing items.
1. what is the probability that my son pass away suddenly?
2. what is the probability that a naughty kid can get along with a pacemaker successfully? without problems related to pm and leads, no need doing surgery again during the lifetime of battery.
3. are there a lot of people getting along with pm for 50 years?
l am from China and cannot get answers from my son doctor who just suggest me to accept pm operation.

Thanks for your reading ...


Posted by Help on 2011-11-23 13:40. 6 comments. 478 reads
 
Anyone has SS due to anti-SSA but don't have CHB kids?

Posted by kathykat11 on 2011-11-17 03:50. 3 comments. 454 reads
 
My dad has a virus that his doctor says has attcked his heart. he, the Doctor, said you either get over it or you don't there is no treatment. Dad called me today to ask my heart buddies if they have had any experience with this. So here I am asking for help, hope and support for both of us this time.
Kahykat11


Posted by sashton on 2011-10-28 07:59. 7 comments. 2053 reads
 
Hi. i am new to the group and have a three year old son who is on his second pacemaker. He had his first one put in aged three months and then had it replaced this year as it had failed. There are very few children with this and i dont no of any in Cornwall. I live in England. I was just wondering if anybody on here has had a baby that has a pacemaker and if so does anybody no of any life expectancy they may have. my son has other problems but the doctors down here are slightly clueless. thank you

Posted by Mumof3 on 2011-10-03 18:05. 7 comments. 525 reads
 
Hi, I'm new to this board, and I just got my pacemaker 18 days ago. I had it put in 1 week after I had my youngest daughter. I now have 3 children under 3.5 years. So I'm curious if there are any other Mom's on here with young children.

Posted by megiemay on 2011-09-16 16:36. 8 comments. 715 reads
 
i am age 12 and just got my first pacemaker fitted and had to give up karate is there any other sports i can try ?

Posted by troysh on 2011-08-27 10:43. 4 comments. 835 reads
 
Nathan is my son. I have found this site so he can hopefully connect with others like him. He went into cardiac arrest on November 16, 2010 at the final tryouts for the junior varsity basketball team. Things have been going ok since the incident in Nov where the defib had not gone off. Within the last 12 days it has gone of 8 times. I am hoping others can share with him how they got through some of the difficult times. He is having a very hard time sleeping because of the anxiety he is going through. He is not a "talker" meaning that he is 15 year teenager who we have to work hard on getting "I dont know" He has been told he can no longer play the sports he has loved since a small child. He is scared but does not know how to express...


Posted by OIMAPRINCESS2477 on 2011-08-15 14:20. 4 comments. 873 reads
 
Hello everyone!!! It has been awhile since I have posted in here! Everything is going great! I just graduated College in May and I got hired by the Law Firm I was interning at as a Paralegal.

PLEASE IF WE ARE FRIENDS ON FACEBOOK DO NOT MENTION THE BELOW POST!!!

Now the reason I am here today to for some advice from the Ladies! My boyfriend and I are going to start trying for a baby in the next few months. I know we are not married yet but we are getting there, my little sister just happened to get engaged first and now we have to put some time between the 2 weddings. Anyways since I am getting up there in age(lol) I will be 25 in September, we want to start trying now.

I am very concerned that I will have...


Posted by devonstarr on 2011-08-14 23:33. 4 comments. 551 reads
 
I am a 33 year old with Idiopathic Sinus Node Dysfunction and am getting a pace maker put in on Wednesday. Any suggestions on how/what to tell my 5 and 3 year old so as not to scare them? I want them to understand yet not freak out that I have to stay overnight at the hospital.

Posted by monique2001 on 2011-07-12 02:34. 2 comments. 663 reads
 
hello everyone ,
My daughter has had her pacemaker since 2005 she is 9 now . Luckely we have had no Major complication. But lately i have noticed that when she run or plays alot her heart beat is so strong i can see it beating ....Very strong her whole chest beats . is this normal for pacemakers? should i be conserened? thank you all for the comments

Posted by Pam DC on 2011-07-01 03:31. 2 comments. 546 reads
 
I went through a pregnancy with a Pacer. At the time there was no record of this. I'm pacer dependent with no underlying heart beat.I have a wonderful daughter that's 20 yrs old and in her senior year of college.

Posted by Maggi on 2011-05-23 13:59. 7 comments. 1217 reads
 
My 17 y.o. nephew in the Phils. needs a Pacemaker for Complete Heart Block, reviewed by cardiologists here in the USA. There is no insurance coverage out there. Does anyone know how much a Medtronic dual chamber pacemaker is?
Thank you for your kind help



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