St. Jude Medical Pacemakers & ICDs

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Messages in Parents & Kids Forum



Posted by JillianC on 2012-01-21 21:51. 16 comments. 1186 reads
 
Okay well I'm Jillian I'm 16 and
since I was 8 I started having these "episodes"
I would get dizzy and weak and light head also
Would turn pale, shortness of breath,feel Fluttering in my chest,
break out in a sweat,My hearing fades
and sometimes I black out Completely
sometimes I sit Down and
a few Times it helped.
I noticed a pattern on what Triggered them
When ever I walk long stand up long
Or do anything that would raise my heart
Rate would trigger everything. My parents
Didn't think it was serious enough to
Take me to the doctors for. But Here in the
Past 3 months I'm having them ALOT more
And I had a few while just laying down.
My mom took me to th...


Posted by ashleighrose on 2012-01-13 10:02. 17 comments. 1684 reads
 
Just recently I have been diagnosed with a complete heart block which came as a surprise as I am a healthy, active 17 year old and have never had any medical complications. I have been told that a pacemaker is optional in my situation because I haven't had any symptopms like blackouts,fainting etc...
The cardiologist did not say wether or not to get one, just that it was an option, so it's pretty much my decision at the moment. He said it may give me more energy, which would be helpful as I am completing my final year of school and need every all the energy I can get, haha.
I am also unsure if i can get my drivers licence ( I am from Australia btw) with a complete heart block or not. I don't know what to do? What is it like gett...


Posted by Daniel_PM on 2011-12-26 09:35. 11 comments. 676 reads
 
My son is 10 year old and diagnosed a complete AVB several days ago. i am scared by this news. His doctor said myson needed a pacemaker at once. otherwise my son is in danger every day. But how can i do this decision? it is appreciated if anyone let me know folowing items.
1. what is the probability that my son pass away suddenly?
2. what is the probability that a naughty kid can get along with a pacemaker successfully? without problems related to pm and leads, no need doing surgery again during the lifetime of battery.
3. are there a lot of people getting along with pm for 50 years?
l am from China and cannot get answers from my son doctor who just suggest me to accept pm operation.

Thanks for your reading ...


Posted by Help on 2011-11-23 13:40. 6 comments. 456 reads
 
Anyone has SS due to anti-SSA but don't have CHB kids?

Posted by kathykat11 on 2011-11-17 03:50. 3 comments. 440 reads
 
My dad has a virus that his doctor says has attcked his heart. he, the Doctor, said you either get over it or you don't there is no treatment. Dad called me today to ask my heart buddies if they have had any experience with this. So here I am asking for help, hope and support for both of us this time.
Kahykat11


Posted by sashton on 2011-10-28 07:59. 7 comments. 1863 reads
 
Hi. i am new to the group and have a three year old son who is on his second pacemaker. He had his first one put in aged three months and then had it replaced this year as it had failed. There are very few children with this and i dont no of any in Cornwall. I live in England. I was just wondering if anybody on here has had a baby that has a pacemaker and if so does anybody no of any life expectancy they may have. my son has other problems but the doctors down here are slightly clueless. thank you

Posted by Mumof3 on 2011-10-03 18:05. 7 comments. 512 reads
 
Hi, I'm new to this board, and I just got my pacemaker 18 days ago. I had it put in 1 week after I had my youngest daughter. I now have 3 children under 3.5 years. So I'm curious if there are any other Mom's on here with young children.

Posted by megiemay on 2011-09-16 16:36. 8 comments. 698 reads
 
i am age 12 and just got my first pacemaker fitted and had to give up karate is there any other sports i can try ?

Posted by troysh on 2011-08-27 10:43. 4 comments. 818 reads
 
Nathan is my son. I have found this site so he can hopefully connect with others like him. He went into cardiac arrest on November 16, 2010 at the final tryouts for the junior varsity basketball team. Things have been going ok since the incident in Nov where the defib had not gone off. Within the last 12 days it has gone of 8 times. I am hoping others can share with him how they got through some of the difficult times. He is having a very hard time sleeping because of the anxiety he is going through. He is not a "talker" meaning that he is 15 year teenager who we have to work hard on getting "I dont know" He has been told he can no longer play the sports he has loved since a small child. He is scared but does not know how to express...


Posted by OIMAPRINCESS2477 on 2011-08-15 14:20. 4 comments. 854 reads
 
Hello everyone!!! It has been awhile since I have posted in here! Everything is going great! I just graduated College in May and I got hired by the Law Firm I was interning at as a Paralegal.

PLEASE IF WE ARE FRIENDS ON FACEBOOK DO NOT MENTION THE BELOW POST!!!

Now the reason I am here today to for some advice from the Ladies! My boyfriend and I are going to start trying for a baby in the next few months. I know we are not married yet but we are getting there, my little sister just happened to get engaged first and now we have to put some time between the 2 weddings. Anyways since I am getting up there in age(lol) I will be 25 in September, we want to start trying now.

I am very concerned that I will have...


Posted by devonstarr on 2011-08-14 23:33. 4 comments. 534 reads
 
I am a 33 year old with Idiopathic Sinus Node Dysfunction and am getting a pace maker put in on Wednesday. Any suggestions on how/what to tell my 5 and 3 year old so as not to scare them? I want them to understand yet not freak out that I have to stay overnight at the hospital.

Posted by monique2001 on 2011-07-12 02:34. 2 comments. 644 reads
 
hello everyone ,
My daughter has had her pacemaker since 2005 she is 9 now . Luckely we have had no Major complication. But lately i have noticed that when she run or plays alot her heart beat is so strong i can see it beating ....Very strong her whole chest beats . is this normal for pacemakers? should i be conserened? thank you all for the comments

Posted by Pam DC on 2011-07-01 03:31. 2 comments. 531 reads
 
I went through a pregnancy with a Pacer. At the time there was no record of this. I'm pacer dependent with no underlying heart beat.I have a wonderful daughter that's 20 yrs old and in her senior year of college.

Posted by Maggi on 2011-05-23 13:59. 7 comments. 1179 reads
 
My 17 y.o. nephew in the Phils. needs a Pacemaker for Complete Heart Block, reviewed by cardiologists here in the USA. There is no insurance coverage out there. Does anyone know how much a Medtronic dual chamber pacemaker is?
Thank you for your kind help

Posted by sunflwr on 2011-04-22 00:21. 3 comments. 934 reads
 
My 89 yr old Dad had a pacemaker 4 months ago. I feel that he's worse since having it installed. He constantly has shortness of breath, he has to take water pills and he's always sleeping. After reading some of the other postings I feel as if this seems to be the norm. Can anyone offer any good advice, or hope that things will get better. I don't live close to my parents and I feel for my Mom who now has to take on everything.

Frustrated Daughter

Posted by thomast on 2011-04-17 23:12. 6 comments. 1280 reads
 
Has anyone in this group looked into having a lvad installed?   I have an appointment with my cardio in May and I wanted to ask him about it. I have been reading a lot about them. Dick Cheny is using one now. Looks like one might be useful.
Thomas

Posted by rebeccaprance on 2011-04-09 23:13. 18 comments. 2497 reads
 
I am a mother to a 5 month old baby boy who was diagnosed before birth with third-degree CCHB. At this point, thankfully he has not had to have a pacemaker, but there are some signs that pacing may be closer than we were thinking. Seeing as how he cannot tell me how he feels, I am often questioning whether things he does are related to his heart block or not.
Obviously, I do not want him to be paced until it is definitely necessary.
I would appreciate any information that would help me to better understand signs leading to pacing. I know the major signs, but I would like to know if there is anyone who has been through this who can give me personal experience with this situation. Any help will be greatly appreciated.

Posted by Pwallison on 2011-03-30 14:46. 10 comments. 763 reads
 
I have a 4 year old son with 3rd degree heartblock that got a pacemaker June of last year. I am a member of Heartblockkids on yahoo groups and heartblock kids on facebook and just heard about this group

Posted by Charli on 2011-02-17 18:02. 1 comments. 680 reads
 
Please we need your help! There are only 11 child heart surgeries in England, and only one for Yorkshire and Humber. This is now under threat of closure due to government cut backs. Please sign this petition where ever you live as all of you on here, know the importance of being in a familiar place near to family and home through such a difficult time. Please join this online petition to help save the children travelling for hours to get the care they need! I had surgery here and I know how good and needed it is, please join our cause!

Here is the website you can go on to join the petition:
http://www.thepetitionsite.com/6/help-to-save-ward-10-childrens-cardiac-lgi/

Posted by Gracesmum on 2011-01-13 13:25. 11 comments. 1276 reads
 
Hi, When i was 25 weeks pregnant we found out that our baby had complete Heart block. We were told that she only had 30% chance of survival, the rest of my pregnancy was a complete nightmare & an emotional rollercoaster with hospital checks every week to monitor her heart rate. It slowly went down from 60 to 37 bpm when they decided she needed to be delivered at 35 weeks.
When she was born she was rushed to Gt Ormond Street and her pacemaker was put in 3 hours later.
She spent 5 weeks in hospital in which time she got an infection at the wound site and then they pacemaker went wrong ( they say because of the infection) and so she had to have another fitted 3 weeks later.
she's now nearly 8 months old and doing really well, t...




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At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!

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