St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by BeingPresent on 2016-05-22 21:21. 1 comments. 89 reads
 
Hello
I just had my ICD placed in my abdomen on Tuesday and have a few questions...
Because I am small boned, they felt it would be too irritating and hard to place, because of its size, near my collar bone. I am 54 and it doesn't seem to be a common thing anymore and wondered if anyone else has theirs placed like mine and how they feel when exercising, etc.?
Also, I am taking Savaysa for possibly just a month to prevent blood clots. Anyone on this drug? Any side effects?
Finally, I have a PFO and wondered if someone has had their pacemaker for years who also has one and is not on a blood thinner.
Thanks for a great place to learn and share!!!

Posted by karrtoon on 2016-05-22 07:25. 4 comments. 185 reads
 
im 37 got a double barrel icd on monday this is sunday so six days ago, was thinking its alright to start moving my arm but i see people talking about doing things 8 weeks later and having complications, i only have a few ideas, 1 is it ok for me to be using my arm already it doesnt hurt, 2 when is it ok to sleep on my side again...3 why is it everyonce in a while i feel my heart in my throat and it freaks me out a lil....4 should i still be hurting, i was sent home without a single pain pill. no meds other then heart meds.... and does anyone know how to get ahold of the st jude medical merlin@home they sent me a reciever that only hooks up to old phone lines, trying to figure out how i get the wifi or something going on................and...


Posted by W.D.Gaster on 2016-05-18 22:31. 2 comments. 222 reads
 
I had my ICD implanted when I was 16 years old. I have a very slim structure (currently standing at 6ft and weighing 125 lbs) so my doctor and parents made the decision to implant my ICD under my pectoral muscle. I'm now 19 years old; August 1st of this year will mark the 3 year anniversary of my device being implanted. I weighed a bit more the first year and a half after getting my ICD (around 140 lbs), but due to other complications with my health, I lost weight, and have been at 125 lbs for the remainder of the 3 years since implantation. Now, my defibrillator sticks out of my chest much more, and is very easily visible (not the ACTUAL defibrillator, obviously, but rather the "lump" it creates). Not only is it very visible, but I can "f...


Posted by Dynarider on 2016-05-18 17:35. 3 comments. 216 reads
 
Hi,
Im a 59 yo physically fit female, until 9 weeks ago, SOB, taken to the ER diagnosed with CHF with an EF of 19%. Scary stuff to someone who walked/hiked/biked everyday. Cardiologist found LBBB, no artery disease, no kidney disease, no diabetes, nothing. Started on meds for 6 weeks no improvement in my EF. Had an ICD implanted one week ago. Im sore but back to work full time, taking care of all my daily responsibilities and walking up to 7 miles a day. But I do find myself, up and excited one day and down in the dumps the next. No rhyme or reason. I have a great hubby that supports me like crazy. Just hoping this gloom and doom feeling I have occasionally goes away and I can get my groove back. Mind over matter and I need t...


Posted by Turkey75 on 2016-05-06 19:01. 6 comments. 267 reads
 
Does anyone else have palpitations still ever so often with their ICD. Just wondering how conman this is.

Posted by Turkey75 on 2016-05-06 18:43. 1 comments. 186 reads
 
I had a ICD implanted 6 years ago. Always done well on my sotalol. About Feb mine ICD paced me 2x and my doctors increased me from 80 mg 2x a day to 120 mg 2x a day. Still having some fluttering so they have increased me to 160 2x a day. I am doing fine I just do not like to still feel the palpitation. I am sure I am causing a loot of this added stress to myself. They have put me on Paxil for anxiety Anyone else have this issue.

Posted by Skippy123 on 2016-04-27 23:33. 8 comments. 379 reads
 
Ive been a vdl driver my whole life. At 43 i had my first attack. At 44, my second. The dr. pushed the icd and i wasnt getting any cooperation from multiple cardiologists because i refused the icd. I was told i needed a triple bypass, however, after 4 seperate second opinions i couodnt find a surgeon who would do it. I finally got the icd.....knowing it would disqualify me from earning a living so i applied to ssdi. In the mean time i also found that id need at least a 40% ejection fraction to pass the physical. I finally found a surgeon to do the bypass. My ejection fraction has increased from 15% to 35-40%. The law says that i must wait 3 months after any open heart proceedure to try again but now i have the icd. I anticipate hitting the...


Posted by Drake3287 on 2016-04-26 17:00. 3 comments. 270 reads
 
This might be the same for both PM and ICD people. I had an ICD implanted just under 5 weeks ago and everything has healed up nicely and I feel 100% but the surgical site above the ICD is still redden and discolored from the rest of my skin color.

It's not infected or anything, just darkened from the recent surgery. Does this discoloring go away eventually or does it stay discolored because of the ICD underneath? I realize the scar itself will never go away totally.

I've never had surgery before so this new to me.



Posted by DampDog on 2016-04-19 11:09. 12 comments. 501 reads
 
I'm 6 weeks post implant and while all the major pain associated with having the implant is subsiding the feeling of having something there that shouldn't be persist. As yet it's still tender and just "there all the time." Does that feeling go away as the wound heals or is it just how life is going to be from here on in?

Posted by Lisamaruna on 2016-04-18 22:06. 3 comments. 387 reads
 
I have had my icd since November 2015 and it ended up firing 43 times Christmas Day. Ever since then I have a horrible fear that it will happen again. Since then I have had an ablation and am on medications to keep heart rate low. I am paced at 70 and no matter what it doesn't go above 70 . I don't feel well and am under so much stress and anxiety .
Will my life ever be normal? Are there people who live an active life wiThout the worry.


Posted by mcallahan on 2016-04-13 16:06. 3 comments. 227 reads
 
Hi all. I am a 49 year old male with nonischemic cardiomyopathy, an EF of %30 and LBBB. Two days ago I received a CRT-D device to assist with my Heart failure and provide some insurance incase of SCA. This is going to take a while to get used to and I am glad that there is a group out there like this one. Thanks.

Posted by Drake3287 on 2016-04-07 18:38. 8 comments. 471 reads
 
Hoping someone can give me a general answer to these questions. The Travel & Work forum doesn't look like it visited often.

1. After my new ICD surgery is healed up is there any real restrictions on wearing/carrying a backpack because of the shoulder straps crossing over the ICD? I'm not taking about a heavy back country type backpack for camping, just a typical North Face day pack I would use/carry while traveling to carry miscellaneous stuff. Any weight limits to speak of?

2. As for airport metal detectors, at which point do I show my ICD card? Just prior to entering the machine? Do they typically still have me walk though the machine or do they just use a wand or pat down?

3. Some of our airports have th...


Posted by Monivie on 2016-04-07 15:42. 4 comments. 329 reads
 
I recently have seen my cardiologist and was told my pacemaker is not working correctly and has Boston scientific coming in a few weeks but that's all he said. Can anyone explain to my what that means.

Posted by Drake3287 on 2016-04-06 20:53. 2 comments. 375 reads
 
2 weeks into a new ICD and so far so good. Long story short, I'm 57 and in good health who has been a daily jogger for 20 years or so. Out of the blue a couple of months ago I went into VT while running and I thought I had came down with what I thought was flu type symptoms for about 20 hours before going to the ER. At no time did I have have any of the typical cardiac signs. Even the feeling of a rapid heart rate.

2 minutes into the ER and I was cardioverted (shocked) and all of sudden felt 100% again. Angiocath was performed and nothin was found. Doctor put me on Sotalol to keep me out of VT and over the course of a couple of months I went through various tests including a cardiac MRI.

Doctor recommend ablation proc...


Posted by vguertin on 2016-04-03 21:07. 0 comments. 204 reads
 
Hi. My first post. Discovered site while googling for a mobile ecg monitor for those of us with pacemakers.
I recently purchased a KARDIA by AliveCor mobile ECG monitor.
Unit comes with a touchpad that may or may not be attached to an iPhone or android phone. Device gives an exceptional wave reading as long as you do NOT have a pacemaker.
IT DOES NOT WORK IF YOU HAVE A PACEMAKER.

Posted by David4u on 2016-04-02 10:54. 2 comments. 295 reads
 
Hello I'm new I'm a 69 year old gent with a pacemaker fitted last December but since I've had it fitted I've been in and out of hospital three times and only once was my pacemaker checked but I still feel tired and dizzy and I can't take beta blockers nor calcium blockers nor digitoxin though the hospital where I had the pacemaker fitted want me to try 1.25of bisoprolol again but it gives me terrible tummy ache. I must admit since I had the pacemaker fitted I feel worse I cannot stand as I feel dizzy my blood count is low I have lost the nerve to drive and I feel trapped indoors does anyone else ever encouncountered this.

Posted by rubywine on 2016-03-29 12:43. 13 comments. 602 reads
 
My hubby was fitted with an ICD last week and was told that he is no longer allowed to use his electric shaver? Is this right?

Posted by lisapaulina1 on 2016-03-11 12:25. 9 comments. 541 reads
 
Hello

Sorry in advance for my poor english

I have VT arrhythmia and my doc suggest me to do ICD implant..

Im really scare when it comes to surgery..i need info what happen during the surgery..does it hurt ? Risks ? I read from the other post that his PM implant for AV block didnt going well bcos he had cardiac arrest during the surgery..how could that happen ?

I need encouragement from anyone who have gone through

Thanks

Posted by becky1958 on 2016-03-08 01:18. 7 comments. 517 reads
 
Has anyone had their refraction rate to improve after having a ICD unit put in? My refraction rate is 20%.

Posted by Hjc on 2016-03-07 21:29. 4 comments. 394 reads
 
Hi,
I have a st Jude ICD, today I received the remote monitor. I'm struggling to connect the monitor, a couple of questions:
- I have a phone jack in my bedroom which I use for broadband, only (no phone) by using the splitter can I use the same jack or will the router interfere with the remote monitor?
- is there a way to connect the monitor wirelessly to my broadband & download the data that way?

I'm in the UK.








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