St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by Skippy123 on 2016-04-27 23:33. 6 comments. 114 reads
 
Ive been a vdl driver my whole life. At 43 i had my first attack. At 44, my second. The dr. pushed the icd and i wasnt getting any cooperation from multiple cardiologists because i refused the icd. I was told i needed a triple bypass, however, after 4 seperate second opinions i couodnt find a surgeon who would do it. I finally got the icd.....knowing it would disqualify me from earning a living so i applied to ssdi. In the mean time i also found that id need at least a 40% ejection fraction to pass the physical. I finally found a surgeon to do the bypass. My ejection fraction has increased from 15% to 35-40%. The law says that i must wait 3 months after any open heart proceedure to try again but now i have the icd. I anticipate hitting the...


Posted by Drake3287 on 2016-04-26 17:00. 3 comments. 83 reads
 
This might be the same for both PM and ICD people. I had an ICD implanted just under 5 weeks ago and everything has healed up nicely and I feel 100% but the surgical site above the ICD is still redden and discolored from the rest of my skin color.

It's not infected or anything, just darkened from the recent surgery. Does this discoloring go away eventually or does it stay discolored because of the ICD underneath? I realize the scar itself will never go away totally.

I've never had surgery before so this new to me.



Posted by DampDog on 2016-04-19 11:09. 12 comments. 340 reads
 
I'm 6 weeks post implant and while all the major pain associated with having the implant is subsiding the feeling of having something there that shouldn't be persist. As yet it's still tender and just "there all the time." Does that feeling go away as the wound heals or is it just how life is going to be from here on in?

Posted by Lisamaruna on 2016-04-18 22:06. 3 comments. 211 reads
 
I have had my icd since November 2015 and it ended up firing 43 times Christmas Day. Ever since then I have a horrible fear that it will happen again. Since then I have had an ablation and am on medications to keep heart rate low. I am paced at 70 and no matter what it doesn't go above 70 . I don't feel well and am under so much stress and anxiety .
Will my life ever be normal? Are there people who live an active life wiThout the worry.


Posted by mcallahan on 2016-04-13 16:06. 2 comments. 142 reads
 
Hi all. I am a 49 year old male with nonischemic cardiomyopathy, an EF of %30 and LBBB. Two days ago I received a CRT-D device to assist with my Heart failure and provide some insurance incase of SCA. This is going to take a while to get used to and I am glad that there is a group out there like this one. Thanks.

Posted by Drake3287 on 2016-04-07 18:38. 8 comments. 361 reads
 
Hoping someone can give me a general answer to these questions. The Travel & Work forum doesn't look like it visited often.

1. After my new ICD surgery is healed up is there any real restrictions on wearing/carrying a backpack because of the shoulder straps crossing over the ICD? I'm not taking about a heavy back country type backpack for camping, just a typical North Face day pack I would use/carry while traveling to carry miscellaneous stuff. Any weight limits to speak of?

2. As for airport metal detectors, at which point do I show my ICD card? Just prior to entering the machine? Do they typically still have me walk though the machine or do they just use a wand or pat down?

3. Some of our airports have th...


Posted by Monivie on 2016-04-07 15:42. 4 comments. 265 reads
 
I recently have seen my cardiologist and was told my pacemaker is not working correctly and has Boston scientific coming in a few weeks but that's all he said. Can anyone explain to my what that means.

Posted by Drake3287 on 2016-04-06 20:53. 2 comments. 287 reads
 
2 weeks into a new ICD and so far so good. Long story short, I'm 57 and in good health who has been a daily jogger for 20 years or so. Out of the blue a couple of months ago I went into VT while running and I thought I had came down with what I thought was flu type symptoms for about 20 hours before going to the ER. At no time did I have have any of the typical cardiac signs. Even the feeling of a rapid heart rate.

2 minutes into the ER and I was cardioverted (shocked) and all of sudden felt 100% again. Angiocath was performed and nothin was found. Doctor put me on Sotalol to keep me out of VT and over the course of a couple of months I went through various tests including a cardiac MRI.

Doctor recommend ablation proc...


Posted by vguertin on 2016-04-03 21:07. 0 comments. 151 reads
 
Hi. My first post. Discovered site while googling for a mobile ecg monitor for those of us with pacemakers.
I recently purchased a KARDIA by AliveCor mobile ECG monitor.
Unit comes with a touchpad that may or may not be attached to an iPhone or android phone. Device gives an exceptional wave reading as long as you do NOT have a pacemaker.
IT DOES NOT WORK IF YOU HAVE A PACEMAKER.

Posted by David4u on 2016-04-02 10:54. 2 comments. 224 reads
 
Hello I'm new I'm a 69 year old gent with a pacemaker fitted last December but since I've had it fitted I've been in and out of hospital three times and only once was my pacemaker checked but I still feel tired and dizzy and I can't take beta blockers nor calcium blockers nor digitoxin though the hospital where I had the pacemaker fitted want me to try 1.25of bisoprolol again but it gives me terrible tummy ache. I must admit since I had the pacemaker fitted I feel worse I cannot stand as I feel dizzy my blood count is low I have lost the nerve to drive and I feel trapped indoors does anyone else ever encouncountered this.

Posted by rubywine on 2016-03-29 12:43. 13 comments. 504 reads
 
My hubby was fitted with an ICD last week and was told that he is no longer allowed to use his electric shaver? Is this right?

Posted by lisapaulina1 on 2016-03-11 12:25. 9 comments. 482 reads
 
Hello

Sorry in advance for my poor english

I have VT arrhythmia and my doc suggest me to do ICD implant..

Im really scare when it comes to surgery..i need info what happen during the surgery..does it hurt ? Risks ? I read from the other post that his PM implant for AV block didnt going well bcos he had cardiac arrest during the surgery..how could that happen ?

I need encouragement from anyone who have gone through

Thanks

Posted by becky1958 on 2016-03-08 01:18. 7 comments. 441 reads
 
Has anyone had their refraction rate to improve after having a ICD unit put in? My refraction rate is 20%.

Posted by Hjc on 2016-03-07 21:29. 4 comments. 345 reads
 
Hi,
I have a st Jude ICD, today I received the remote monitor. I'm struggling to connect the monitor, a couple of questions:
- I have a phone jack in my bedroom which I use for broadband, only (no phone) by using the splitter can I use the same jack or will the router interfere with the remote monitor?
- is there a way to connect the monitor wirelessly to my broadband & download the data that way?

I'm in the UK.






Posted by mwelcome3911 on 2016-03-07 01:00. 4 comments. 403 reads
 
I just joined the site and I'm truly glad I came across it because I have felt that I didn't know where to go with questions. I am 33 and I have Long QT syndrome. I had my ICD put in last year, in October of 2014 after I had an episode of SCD while driving my car. Over the past couple of months I have noticed that I feel my "box" thump every night at 11:57 pm. You could set a clock by it. It goes on for about 30 seconds and then stops. Just wondering if this was something normal? I told my doc about it and they looked at me like I was crazy. Any thoughts would be greatly appreciated!

Posted by Strider on 2016-03-04 22:59. 3 comments. 467 reads
 
I have had Atrial Fibrillation now for about six years non stop. In January of this year I was placed on a anti arrhythmic medication in addition to the beta blocker that I was already on. My EF ranges from 25 to 30. After wearing a holter monitor for 24 hours my heart rate was slightly over 100bpm. I went out of AFIB following a conversion after being on the anti arrhythmic meds but only stayed in sinus rhythm for about four days. About four days later I went back into normal sinus and have been flipping back and forth from being in sinus rhythm to being out of sinus since. My Cardiologist had me get a Medtronic ICD/Pacermaker with two leads installed. It has been about 2.5 weeks since the implantation and I seem to be doing fine in...


Posted by Shocktastic on 2016-03-04 20:15. 2 comments. 363 reads
 
So, mid-October 2015 I had my ICD implant. I feel a million times better after having an ejection fraction 8-15% with my heart failure. They are just now giving me a full follow-up over the next 3 days as they said they wouldn't know how effective the ICD implant was for me until now. My Q is...if I feel 100 times better, why isnt that enough to show it's effective? They said if it has not been effective my next step is LVAD and if that doesn't work then heart transplant. Someone, please share your experience and help! Any advice or stories similar to mine help. It's so hard as I don't want my kids to be left w/o me so early in life or become my parent.

Posted by Turkey75 on 2016-03-01 16:57. 4 comments. 410 reads
 
Hello I am 40 years old and had my ICD for 6 years. I was diagnosed with VT at 34. I am a very active individual and tend to push myself. But in all my 6 years i do not recall my ICD ever thumping my heart. Quick info, last Saturday I woke up to a normal day. I started my day off painting my living room and carried on till about 5 that afternoon. Took a shower and when I got out was just toweling off and got very light headed and felt like I was going to pass out and that is when I felt 3 thumps to my heart. I sat down and and it did it again has this every happened to anyone else. Never been shocked and I go tomorrow to have my ICD checked. Just a little scared and stressed.

Posted by DampDog on 2016-02-29 09:26. 6 comments. 470 reads
 
I'm due to have an CRT-D implanted this coming Wednesday One (of many) questions that has popped into my head is how well do you manage to sleep on your left-hand side, post implant.Is it even advisable post implant?

I assume it will take a number of weeks for the tenderness to subside around the implant site. But is it difficult to sleep on your left simply due to the device "being there?"

How long are you generally sore for? give or take?

Also do they move about with the pocket or are they "fixed" into position for want of a better word.

Posted by lightgraphs on 2016-02-25 04:41. 1 comments. 400 reads
 
I had a Medtronic Evera ICD put in last October and have been miserable every since. I'm 100% dependent on pacing and have had an ICD since 2003. It's true I've recently gone into atrial standstill and am back in sinus rhythm after years of afib. And I'm miserable. Tests this week are showing that my heart rate isn't elevating when I exert myself. Just getting dressed forces me to rest. I was on the exercise bike for 1/2 hour and my HR never exceeded 62. The perimeters are set from 60-120. So was the old one. But it's just since this new device was put in that this has been happening.

This forum is a great discovery. I came here to see if I could survive an EMP attack ( LOL ) but think I have more pressing concerns right now an...




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