St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by Sylvia1 on 2014-08-31 16:05. 2 comments. 60 reads
 
What is the actual difference between the above.Sometimes docs refer to mine as CRT-D other times ICD.Could anyone enlighten me pls.Tks

Posted by daisy0388 on 2014-08-26 17:34. 4 comments. 141 reads
 
I am curious at to anyone else has experienced this..I know about that it does happen and I have did lots of research on here and on the web but I haven't found anything that is like my situation and either have my drs so I thought I would try here.

I am both atrial and ventricular paced and have been for awhile. This year I had 3 pocket revisions due to either pm or lead moving. After the revisions I started having the horrible beating/kicking in the bottom of my chest/diaphragm area. I only feel it if I'm up moving, if i'm sitting on the couch I'm fine. My dr felt it and said yes that is coming straight from your diaphragm, well when they did xrays it doesn't look like the V lead has moved. So they are completely lost as to wh...


Posted by Tealady on 2014-08-26 01:12. 4 comments. 167 reads
 
Had a new pacemaker implanted in Nov 2013... It has three wires, the new third lead wire was to "cure" the congestive heart failure--left side of heart. Supposedly CHF was the result of 32yrs (7 dual lead on demand pacemakers) was the right side of heart being paced.

Well, I should of had an ICD with pacing capabilities implanted instead because I have been having tachycardia, which has been going on for yrs with rapid heart beats so fast I couldn't talk. ICD is also needed for the CHF that isn't caused by disease but by pacing. So glad new dr knows what he is doing!!

I have suffered because the left side new lead wire had to be shut down to o.1 because of the constant diaphragmatic stimulation...quality of life has ...


Posted by gbell on 2014-08-21 18:32. 3 comments. 142 reads
 
Just turned 80 with 2 heart attacks, 2 double bypasses 1983 and 2007. Am scheduled for a 3rd pacemaker (6/04, 9/09) since my EF has gone from .38 to .27. Drs are recommending the more complex ICD versus a simpler pacemaker and additional lead that would stimulate both sides of heart to get bi-ventricular pacing. The 6/04 installation was non trivial and I'm not anxious for complications coming from a more complex operation.

Does anyone know what likelihood of the defibrillator being activated i.e. being used? Versus likelihood of complications in the installation procedure?

If feels like the safe thing is to give everyone an ICD versus a pacemaker that will give me bi-ventricular pacing versus one-sided pacing I d...


Posted by Heartmate on 2014-08-20 06:16. 2 comments. 196 reads
 
I live in NJ and have been told by my doctor that i must now wait six months before I can drive again .
Is there an actual law?

Posted by Cincygirl28 on 2014-08-17 21:57. 7 comments. 250 reads
 
I have known about my heart condition (hypertrophic cardiomyopathy) since I was born. I was told about two years ago that getting an ICD would be good for me to get. I decided then I didn't want to get it because of the life changes and fear of it miss firing. I was never told prior to that, that I would need one. I was told this by a new doctor. I changed doctors because of my age. I had my yearly doctor appointment and he informed me that my heart muscle had gotten thicker and is strongly suggesting I get the ICD. I have never passed out and don't have chest pains really the only reason he seems to be suggesting this is because of the thickness. I understand this is not a good thing but I am afraid that if I decide to get this and I don'...


Posted by Music on 2014-08-14 15:28. 2 comments. 126 reads
 
Hi guys, just curious....my husband had a "challenging & difficult" (doctor-speak) cataract surgery the other day, which in the end is a successful one, but I'm curious as the nurse told me the pacer function of his defibrillator kicked in during surgery...wonder why?

Posted by rayd on 2014-08-13 20:47. 0 comments. 72 reads
 
Lisa,
read all your comments on M-Link. How long of a test period do they give you? Can you return it if you don't like it?
Thanks for all your information! Anyone else using M-Link?
Ray

Posted by Heartmama on 2014-08-12 23:09. 3 comments. 103 reads
 
Hi all. My daughter will be receiving an icd next week and I have some questions. First she has had increasing v tach for the last five months. She has congenital heart disease and has had four open heart surgeries so I'm assuming this is from scar tissue? Either way she has to have it. How difficult is the procedure and the recovery. She's seventeen so close to be an adult but she is a very small girl. Any advice or input ?

Posted by skyblu10 on 2014-08-11 19:45. 4 comments. 175 reads
 
I have been diagnosed with chf.
My ejection fraction is low at 26 after months of medication.
The cardiologist wants to put in a crtd only instead of a
combination crt/icd which is what I have been told I need.


Posted by banca on 2014-08-03 18:02. 0 comments. 116 reads
 
Has anyone tried or been advised not to try Rifing for lyme disease while you have an ICD?

Posted by rogertoday on 2014-07-31 01:18. 5 comments. 373 reads
 
So my pulse rate is in the low 40's and it worries me! I thought that my pulse rate would be more normal I just moved and do not have a new cardiologist yet. it just seems to me that a pulse rate of 44 is low for someone with a pace maker?

Anyone have a similar situation??
Roger

Posted by natlat on 2014-07-30 11:37. 0 comments. 126 reads
 
Hi, so I was implanted with an ICD in April. I am also on beta blockers. I am athletic and run. I suffered from a SVT while running prior to that and a fainting episode. I have scar on my ventricles and with every test imagineable, it remains undiagnosed. So I am back at running, with my trusty heart rate monitor. Not as much as before, and much slower, but happy and feeling good. My rate response for my ICD is now off. I have a little residual fatigue and my doc suggests we turn the rate rsponse on? I worry that it will get my heart rate too high for my needs. Does anyone have experience with this? And what are your general settings? My low is set at 60, my ICD begins to monitor at 145 and shock at 175 if it cannot outpace me....


Posted by sandras on 2014-07-21 22:48. 3 comments. 182 reads
 
Hi. Today I had a mammogram. It's been 3 months since I got the ICD. I was very nervous about any pain I might feel if the machine hit or squeezed the ICD. Besides the usual awkwardness of the situation, it went well. There was no contact with the device or the scar. I wanted to share my experience with the hope that I can help someone not waste so much time as I did worrying. I hope it helps.

Posted by irisheyes317 on 2014-07-20 00:53. 8 comments. 393 reads
 
Hi! 'Had my Medtronic ICD implanted 3 1/2 yrs ago & was told battery life would be about 7-8 yrs.All was fine at my last check up 6 mo. ago & was told i had at least another 5 ys with it. So Ive been hearing a beeping sound every morning at 10:23. I've been going crazy trying to find out where its coming from! Lifting up cushions, thinking its a lost cell phone,, checking laundry baskets, searching under the bed, etc. Then I get a call from my E.P.'s office that my battery needs changed, since they do the phone monotoring thingy I argued w/ them that they were wrong & sent them my own test via phone. Again, the results were that my battery needs changed. Then it hit me... the beeping I heard is coming from me!!!! FREAKY!! So Im scheduled f...


Posted by sandras on 2014-07-19 22:29. 2 comments. 111 reads
 
Hi everyone. I found this site back in April, right before I had an ICD implanted because of congestive heart failure. I was so afraid and started searching for information. That is how I found this site. I just wanted to say thank you to everyone. Even though this is my first post, I come to this site daily. I have learned so much and so many of my fears, concerns, and symptoms have been discussed here that I have been able to accept my situation and move forward. Once again, Thank you so much.




Posted by bribet on 2014-07-11 05:26. 2 comments. 179 reads
 
Hi everybody
I am joining because I have had a ICD for 16 years, and I have had three ICDs in that time. I have had several episodes in that time but I really believe that the ICD saved my life. I am 77 years old.
I just want to tell people that in time youy come to accept the ICD and after a time hardly think about it at all.

Posted by astroman on 2014-07-10 00:34. 5 comments. 305 reads
 
I am new to the CLUB. this s my first posting. Im facing a difficult decision About 3 years ago I had an ICD storm. Device fired about 75-80 dimes in about an hour and a half. It was the worst day of my 62 year life. All firings were Inappropriate shocks. Since then I believe I have been really Spooked.. I can relive the sensation of the shocks with no problem. I have since had an Arterial Flutter Ablation. No Afib since then [surgery about 20 months ago], i'm seriously considering having the Big shock part of the ICD turned off. This is not a practical decision I know. But there are a number of things I wont do because of my fear of going through another Storm. Its a quality of life decision.. My cardiologist is against this and I und...


Posted by Fluffy88 on 2014-07-09 11:13. 3 comments. 234 reads
 
Hi everyone, I'm new to this and hoping someone out there can help me with advice please. My father has been given the Merlin @home transmitter (EX1150) and i have been trying to set it up but without luck yet. My parents don't have a landline and the device came along with the usb connector, now i take it that the data which is transmitted will require an internet connection of some kind for the transmitter to work? I am uk based and i cannot find any technical support numbers for uk and my parents do not have internet, so if someone can just tell me if its required then i can move forward, many thanks in advance for any help, i appreciate any info.

Posted by davejs on 2014-07-08 14:33. 9 comments. 244 reads
 
Does anyone know where a selection chart for ICDs is? I want to get a smaller one than my medtronc device. It sticks out, hurts and is a constant reminder of my issues.



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