Hello, I am writing for my mom who is 81 and has dementia. She can't remember what she did today, but still enjoys seeing family and going to church. She lives in an assisted living apartment. She has been very short of breathe so doesn't walk very far and sleeps a lot. She has CHF and braidal branch something. After tests her cardiologist said her heart is weaker and recommended a BV ICD. We just went to the consult appointment last Monday. My mom says she is scared of having any kind of surgery, but will have it if I think she should. I'm trying to gather information to help us make that decision. If anyone has had a similar situation or has suggestions for me, please let me know. Thanks!

 

Thank you so much for your responses to MY SON"S ICD posting. It is helpful to know that there are others that have experienced the shocks delivered by his defribulator. He is under treatment of a thereapist for his PTSD and also, his cardiologist. His employer is questioning the reality of his condition,however. So, I just pray that, for my son, all of this is brought into some form of perspective, so he can function normally. Again, thanks, and keep on with the encouraging words.God bless!

 

My 38 year old son has an defibullator with pacemaker. Approximately 2 months ago, he had the defibulattor to fire 12 times within 3 minutes. He was in tremendous pain, saw flashes and was rushed by ambulance to IN Heart Hospital. They adjusted his device and monitored him for two days. It seems his T-wave was misread as an extra heartbeat and was shocking his heart back into rythem. He has since been diagnosed with PTSD, as anything that flashes, is a sudden loud noise or feeling his device pace is very disturbing. He feels like a baby because he has these feelings. Has anyone had this problem? I, too, have a pacemaker, but not the defibullator.
Thanks

 

Anyone have a icd and now in afib?

 

so there's a 'wand' out there (thank you japan) that some how 'atomizes' things and you can wave it in a clockwise direction at aches and pains and it has calming properties...i don't know, a friend told me about it and wants to wave this atomizing wand over my defib/pacer implant site since i just got back from the hospital. any one ever try this? or heard of this wand? i don't want to break my brand new little pacer, or shock the living daylights out of my conscious self for the sake of helping muscle heal.

 

http://www.nytimes.com/2010/05/13/business/13device.html?src=busln

The likelihood that patients in the United States may some day receive heart defibrillators that can operate without electrical wires connected to their hearts has moved a step closer, according to a study published Wednesday.

[for the rest of this article follow the link - may be interesting to those of you with ICDs]

 

Hi everyone ,
Can anyone advise me how to get protective gear for the icd whilst playing sports. My friends 11yr old boy got permission to return to football yest. As this is wonderful news .we need to get protective gear 1st.

Thank You All
Darina

 

Hello to my new friends,

This is Daniel.

Well 14 days after they stuck my ICD in I decided to take the plunge and go to the Casino. My thanks to Gonnie, Qwerty, Jeanmarie and Caorlyn for their vote of confidence. While I didn't win a jackpot, I did have a good time. There was no change in the way I felt, walking around or playing. I won't know how my ICD is set until I see the Doctor next week. I'm hoping all is well. Thank you so much!!!

GOD Bless,

Daniel

 

hey everyone im antwon and im 26 years old and just wanna say hello. got my new device on april the16 still gettin used to this thing if anybody has any tips or advice it would be a great help. Thanks in advance....!!

 

Thanks to all for your hospitality. I was born with CHD. Specifically, Teratology of Fallot and malfunctioning pulmonary valve. After three surgeries, 1961,1989, and 2003. (complete repair) my heart would not pick up speed. It was beating 45 bpm. So it was decided to install an ICD. I am on the second unit now because the first one was recalled.

I have never been comfortable with it. Telling my various doctors to no avail. According to my latest interrogation, it still is pacing my heart some. I have had no incidents of being shocked.

In the last year my wife and i have lost weight and began a regimen of exercise and diet. i have gone off all my medications and lost about 40 pounds. i have went from 193 to 156 lbs. ...

 

Ok Guys is my mind playing tricks on me or should I be concerned. Every so often I can hear these faint Beeps, has anyone else heard these before

 

I will be going to the Cardio Dr. at the end of May to talk about my options. Are there differ kinds of Pacemakers. I have Afib with a rate of 140-160 resting. With any movement it is over 200.
I need to reseach more and have some questions ready.
Any suggestionss?

 

I seem to still be having problems - of course I only had this done this past Monday the 19th. My heart seems to beat to hard and I have heart pains which I did not before. My blood pressure is up. Have there ever been a time when the pacemaker has been removed.
Please respond
fabians36

 

THANKS U-ALL HEY DBMURTH AND CABGPATCH I GOT ON MY BIKE ON SUNDAY FOR THE FIRST TIME IN SEVEN WEEKS ,AND ROAD TO THE BAR A COUPLE MILES DOWN THE ROAD MAN DID IT FEEL GOOD . I HAD ALL THAT STUFF GOING ON IN MY HEAD ABOUT MY ICD. GOING TO THE EP DOC ON 15TH AND MY CARDIO DOC. ON 19TH TO ASK SOME QUESTIONS. AND THEN GOING TO A HARLEY RALLY ON THE 23 24 25 . TO CELEBRATE THE MY BIG 50 .

 

HI ALL,

DOES ANYONE OUT THERE HAVE A ST. JUDE PACER WHO HAS BEEN DIAGNOSED WITH LONG QT SYNDROME ?

I HAVE HAD THIS PACER FOR 6 YRS AND I FEEL WHEN THE PACER GOES OFF. DOES ANYONE ELSE FEEL WHEN THE PACER KICKS IN ?

I EITHER LET OUT A LITTLE GASP, RECENTLY IF I AM HOME I YELL, OR I BABBLE LIKE THE THREE STOOGES !

I DO NOT KNOW ANYONE HERE THAT FEELS THEIR PACER GO OFF. JUST WONDERING...............
THANKS

 

Hi Everyone,
May be this was discussed on this forum before. I am curious to know the impact the new airport fully body scanners may have on ICDs. I am sort of concerned. I'll be traveling shortly and wanted to be sure. Thanks.
Bob

 

I had my ICD implanted on 11/2009. I didn't have insurance or anything at the time it was put in, and when I went to my 2 week follow-up appointment, the receptionists wouldn't even let me go back to be seen by the doctor that put the thing in because I didn't have Medicaid nor $50 or any insurance. I haven't had it tested, looked at, or nothing since I was released from the hospital.

It did beep one time when I was cleaning the refrigerator and I was putting magnets back on the freezer door and I was like, "Oh my God!" After a few seconds it quit beeping. I read the info packet they gave me at the hospital to see what it said about it beeping, and it just said to be careful around certain items that contain magnets, and that b...

 

Mikej, where is it you live that you lose your driving privaledges if your ICD goes off?

Thomas

 

I've had my icd for almost 4 years and thank God, it has never gone off. But me and my doc disagree about me being on a beta blocker. I don't want to be on it, but he says it prevents the icd from going off. Anyways, my only concern is driving. Has anyone ever had their icd go off while they were driving?

Any comments would be greatly appreciated!!

 

IN THE MIDDLE OF THE NIGHT I FELT AN ELECTRICAL SHOCK STRAIGHT DOWN MY CHEST. I HAVE A ST JUDE ICD ? ANYONE HAVE ANYTHING LIKE THIS HAPPEN ?