St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by B4theWALL61 on 2015-10-19 15:36. 4 comments. 455 reads
 
Thank you for allowing me to join the group. I'm scared about my cardiologist recommendation to implant an ICD. I have also met my EP.

My story...
54 year old Caucasian male, left handed
1st MI on 7/4/15 due to 100% blockage LAD and 70% blockage LCX
EF on 7/5, 7/7, and 10/1 = 30% to 35%
I've worn a LifeVest for 100 days with 3 one-time alarms and zero shocks

I mention my handedness because during the consult the doctor and his nurse repeatedly said the ICD would be located in my upper left chest. I am very left-handed. I am a DIY-er so I am all the time using a hammer, level, using power tools, etc. I enjoy shooting sports. (The EP's nurse said I will not be able to shoot a rifle or shotgun ag...


Posted by climber5 on 2015-10-04 11:12. 0 comments. 251 reads
 
HI there,
Just a note to let you know that I have set up a Facebook group specifically for climbers who have ICDs or pacemakers here: https://www.facebook.com/groups/1646984335572801/ Its time we got together to share experiences ;-)

Simon

Posted by southerndixie62 on 2015-10-04 03:22. 4 comments. 680 reads
 
I ended up at the hospital last night. However our local hospital
is not really equipped to deal with any major issues with ICDs.
I started having strange severe pain that felt like a knife thru
my chest that lasted for about 10 secs yesterday morning. This happened off and on all day. I knew it didnt seem right, especially the metallic taste in my mouth. I tried to get in touch with my regular Dr. however the nurse never called me back.
At about 4:30, the pain,came back again with an intensity that i
didnt expect. It radiated between my shoulder blades and down my left arm. Ended up at ER because pain did not relent for over an hour and a half. The pain was so intense, the ER Dr gave me
Nitroglycerin, morphin...


Posted by JLK on 2015-10-03 18:10. 6 comments. 483 reads
 
Again, I have just begun learning about my condition, so advice, constructive or otherwise is welcomed. Last years physical showed me as healthy, other than needing to lose a few pounds. These past few months all the tests have come back great no cancer/diabetes/blockages etc.. I am truly blessed in some ways.
Dr says my low Ef is the reason I am to get the ICD.
Dr. Says it will not come up much more if at all maybe 1 or 2%.
I know everyone is different but From what I have been reading online and talking to people at the cardiac rehab. I see stories of EF improving. Dr says standard wait procedure is 3 months.
From what I have been told it used to be 9 months.

Do I get the ICD now or wait?
I don't hav...


Posted by pauly on 2015-10-02 14:13. 5 comments. 370 reads
 
Guys

My cadio is suggesting me an "upgrade of my two wire pacemaker to a three wire defrib one

!/ in the uk I wont be able to drive for 6 months

2/also i am scared about the Removing out of the old
wires is it LA or GA operation

Any advice would be welcome

TA
PAULY

Posted by JLK on 2015-10-02 05:35. 7 comments. 571 reads
 
Hey everyone, my name is Joe.
I will be 50 this year, 2 kids and a beautiful wife.
In June of 2015, I was diagnosed with congestive heart failure. Echo showed a estimated 15% EF. Heart cath - no blockages. No signs of diabetes.... Nothing.
It was determined mine was caused by a virus that severely weakened my heart.
I was placed in a zoll lifevest.. Yippee..
Started meds of coreg, spironolactone, lasix, potassium.
3 months later I have dropped nearly 50 lbs.(water weight) I am now at 185. Went thru several med dosage changes over the last 3 months. I just had my 2nd Echo done and ol sawbones informed me my EF is 20%. And that I need a single wire ICD implanted. Despite feeling good most of the time througho...


Posted by Tom77 on 2015-10-01 13:51. 8 comments. 345 reads
 
Are weakness and low blood pressure symptoms of and ICDs needing battery replacement?

Posted by DonaldWillis on 2015-09-24 17:20. 1 comments. 279 reads
 
I have A Fib very bad going 7 yrs. Enlarged heart with V F also. Would a AV node abalation help me and how.

Posted by tk10935 on 2015-09-23 00:56. 4 comments. 369 reads
 
My ICD was implanted in March 2011 and to date it has not had to help me out other than pacing. I usually have 2-3 incidents between interrogations but they are not long enough for the device to even make an adjustment much less give me a shock

However, today I felt a fluttering in my chest in the area of the ICD that lasted about 4-5 seconds It felt like a butterfly in my t-shirt pocket trying to get out I noticed others have had similar issues but it seems like it was when their devices were new

Has anyone else had an issue like mine

Posted by wjbettis on 2015-09-15 02:44. 0 comments. 254 reads
 
It's been 6-weeks since my ICD implant. I asked for a follow-up appointment this week to discuss my wildly fluctuating HR 60-150

( I wear a Garmin 225 continuous HR monitoring via the wrist )

I get headaches on top of my head, tingling around the implant site and nausea. I'm also on 10mg of bystolic.

It's my understanding he set the voltage higher initially till the leads are firmly attached. The pacemaker portion is set at 60bpm.

Has anyone experienced these symptoms?

VT 7/14/15
EP 8/4/15
ICD 8/5/15
Shocked 8/14/25 9:14pm
ATP 8/14/15 9:21pm

Posted by dhusemann on 2015-09-03 08:46. 5 comments. 389 reads
 
need suggestions on ICD manu's
I work in the semiconductor industry and am
routinely working around 480 3 phase, 240 2 phase,
a few motors. typically only work on live circuits
of less than 50 v.

Living in the USA, any good options for MRI capatable
devices. ??

D

Posted by farhan on 2015-08-27 08:59. 2 comments. 378 reads
 
Hello Form,

Post 5 months of ICD implant, I had been living a very comortable life till the time (5 days ago), I sarted getting this numness and later hard muscle on my left arm. Feels like the blook circulation has stopped.

With this condition I went to my doctor who advised that the lead (single chamber ICD) that is landing in my heart is causing the stoppage in blood flow so he advised me to go by process and as first therapy, he increased the doze of one my medicine (loprine) to double. This will further dilute my blood and will help circulate blood.

The next stage will be a test by which he will insert some liquid in my vains (from left hand) to see the blood flow (it will about 15 minutes procedure...


Posted by bcohen294 on 2015-08-23 11:43. 10 comments. 562 reads
 
I have had my ICD since late December when I flatlined in the OR during an EP study. After it was implanted, I got shocked in January, June, and then last week I was shocked 5 times in 50 seconds. I had to be taken to the emergency room in an ambulance and stayed for a few days to recover.

How many times do people normally get shocked? I am so scared to do anything that might raise my heart rate and get paranoid anytime my heart skips a beat.

Posted by dhusemann on 2015-08-20 06:20. 0 comments. 237 reads
 
Well first visit with EP was fairly uneventful.

Talked about the device, and scheduled to have a Zoll Lifevest
will monitor and in early Oct get another Echo done.

If EF is still low, schedule at that point for an ICD.

I have had AFib before but would only show up when my BP was really high. Doc noted Afib at the visit. BP was relatively good at 159/89.

AFib before was when bp was in the xxx/112 range or higher.

D

Posted by relax221 on 2015-08-19 23:58. 2 comments. 388 reads
 
CAN I HAVE A NANOSTIM PUT IN TO REPLACE MY ICD ?

Posted by JackCarter on 2015-08-19 12:15. 13 comments. 547 reads
 
Hi,

as I said in my previous post I had an ICD implanted, following tachycardia attack.
During three week that I spent in hospital ( due to complications and some hospital bacteria ) doctors told me next to nothing.
And of course, they didn't tell me anything about quality of life after icd implant. Before the op I was going mountaineering on a regular basis, and running 100 yards to catch a bus didn't present itself as a problem.
Now it feels like I have a power limiter built in, and simply can't run up the stairs.
Is it possible that icd works as well as a pacemaker, and thus limits heart rate ? As far as I know peacemaker sets heart rate at around 80, consequence of which is limited physical activity....


Posted by HUJO on 2015-08-18 20:58. 8 comments. 425 reads
 
I HAVE A SINGLE LEAD PACEMAKER WITH DEFIBRILLATOR. MY BATTERY IS ALMOST DEAD. I HAVE DECIDED TO NOT EXCHANGE DEVICE AT THIS TIME. IT HAS NEVER PACED OR SHOCKED. MY HEART STRENGTH IS AT 51% THE MINIMUM TO QUALIFY IS 40% ? MY DOCTOR IS VERY INSISTANT THAT I GET A NEW DEVICE. PLEASE COMMENT.

Posted by Erinlw16 on 2015-08-10 08:38. 7 comments. 379 reads
 
Hi everyone,
My name is erin and I'm 25 years old. I just got my ICD implanted a few days ago and am a but uneasy with this new addition to my life. Can anyone give me some experiences they had after getting it implanted? What were your emotions like? Did you feel anxious, uneasy, depressed? I've noticed that I have a lot of fear having this device so any advice on coping solutions would be wonderful.
Thank you in advance!

Posted by Flagirl on 2015-08-09 17:07. 2 comments. 357 reads
 
Hi, Today my Mother's 4 month old Medtronic ICD is making an alarm sound on the hour. Called the Dr. and he said for us to come in tomorrow. She is quite upset, this is the second time this new ICD has set off an alarm. What do you guys think? Have you had this happen to you?

Posted by dhusemann on 2015-08-08 02:32. 2 comments. 382 reads
 
a couple of years ago I had a heart failure. EF was 28%, 5 months later had recovered fot 45%, so talk of an ICD at time quit.

About a month ago, had another incident with the HF. and EF has dropped below 35%. Now after exertion, (walking fast, walking upstairs etc) I get fatigued more quickly. I also notice if I am lifting or grabbing items. above my head that I get faint sometimes. and alot of times get vertigo.

Also after the exertion, will get chest pains during the recovery. last time was getting significant PAC's in the past I got them but don't remember them hurting.

So we are talking about an ICD. now my normal cardio doc is referring me to another cardio doc so will find out more in a we...




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