St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in ICDs Forum



Posted by DampDog on 2016-02-24 18:55. 10 comments. 692 reads
 
After almost 20 years of hear problems including 3 MI's and a triple bypass I've now been diagnosed with ischemic cardiomyopathy, LBBB and an ejection fraction of 33% (QRS 139ms)

On my consultants advice I've been scheduled to have a CRT-D (Medtronic) implanted next week.

I'm just hunting for any information form anyone who's had a device fitted as to what the overall implant experience is like.

Also how did it effect your ability to exercise following the implant. While I'm not a runner I did enjoy a steady jog 1-2 a week and wondered if steady rhythmic exercises presents any problems. I used to do a couple of little sessions on the rowing machine. Following implant is that still going to be possible (on...


Posted by Lisamaruna on 2016-02-23 23:37. 3 comments. 371 reads
 
I need positive people to write about their icd. I am living in fear after vt strom 43 times fired on Christmas day. I was rushed for ablation after that which was successful and now on meds. What are my chances of it going off again.
Please share your thoughts and how do you fo on living?

Posted by idoleman on 2016-02-22 19:36. 1 comments. 262 reads
 
I recently had a ICD installed and 3 weeks later my blood pressur. has increased to 140/80 should i be concerned?

Posted by HOCMsux on 2016-02-21 09:58. 10 comments. 550 reads
 
i am wondering what to expect? I asked the doctors to make sure im asleep completely , as I have high anxiety and fear needles or any kind of medical procedure, I was promised by the doctor I would be asleep how ever I got the call from the surgery nurse to go over surgery in 2 weeks and she says she never heard of being put to sleep under anthestic for this procedure I must of been making things up or misunderstood .. so im asking anyone who just recently had a icd in and what to expect, is it painful? while getting it done is music playing? I personaly am going to try and fight for a sleep mode athetstic , I don't want to be aware .. of ANYTHING .. I have to have a icd this appointment was made 2 weeks ago as a asap ic...


Posted by nhouse on 2016-02-16 19:46. 4 comments. 327 reads
 
hello,
I am a new member. I was diagnosed with congestive heart failure about 4 years ago. Since then, my heart function has dropped drastically. I've been place on additional medication, but my doctor has recommended that a ICD be put into place. I am so so scared. Any advice..my main concern is the shocks that I may have, any comments would be appreciated.

Posted by braveheart on 2016-02-07 13:46. 2 comments. 515 reads
 
I had pacemaker put in 11 months ago, overall, I have been feeling alright but occasionally I feel lightheaded, dizzy and when I exert, sometimes I feel woozy. Cardiologist suggested to put IDC. Right now, I am given beta blocker but i feel very tired and check pain.

Does anyone has similar experience? What the consequence if I put ICD?

Thanks so much for your comment.

Braveheart

Posted by anniesu on 2016-02-04 21:56. 6 comments. 418 reads
 
I have a comment I have had a ICD for about 3 years..im doing great..I had to change heart doctors as mine passed away..my question is about the fact I'm doing really well on taking troprol xl once a day...now the new dr decided to put me on spironolactone 1/2 tablet a day and also Lisinopril 2.5 once a day..I always have a very low blood pressure so if I take these other meds I'm sure it will drop way down..I don't understand when you are having no problems and feeling good why do drs decide you need more meds...if they lower my blood
pressure any lower than 118 over 62 I wont be able to get around...why do they do this and I'm thinking I'm not going to do anything any different..what is everyone opinion of this ?I just turned 76 la...


Posted by LleidaLiz on 2016-01-03 18:00. 1 comments. 350 reads
 
Hi, thanks for accepting me.

My dad had a Biotronik ICD fitted Oct '15 after VT was diagnosed. All has gone very well & the medical care he has received here in Spain has been superb.

After a post-op 'systems check' 3 small episodes were detected, so small he didn't notice them. AF was also detected so he is now being trialed for Sintrom - docs are still deciding on the best dose for him.

He doesn't want to know all the ins & outs of the device or the 9 meds he is on. But i need to. He tells the docs - you do you job & I'll do mine by doing exactly what you tell me to.

I hope this site will help me with the many questions I have.

Posted by Saugrenue on 2015-12-31 15:30. 5 comments. 611 reads
 
Hi, Wondering what is the abbreviation or name of the device I have. It's a St Jude. Here in France it's called a "stimulateur cardiaque". It has 3 wires going to my heart.

Is it an ICD or a Pacemaker? Or are they the same thing? I do not have bradycardia. But rather paroxysmal Atrial Fibrillation - heart speeds up erratically. Not sure if what I have is a defibrillator or a pacemaker. Thanks for taking time to clarify for me.

Posted by Bodnik on 2015-12-30 01:41. 2 comments. 477 reads
 
Hi ya'll. I was supposed to get my ICD tomorrow, but got a call surgery canceled which creates one of my questions.

But first, about me-age 65M-semi-retired(work because enjoy it)-emergency triple bypass 5 years ago-current EF/20-multiple SCA family history-currently wearing Zoll Lifevest.
No events, but I do not have to be convinced an ICD is necessary.

Q1. The EP nurse said surgery canceled because Medtronic ICD wi MRI access(which I requested) had not yet been approved by hospital(St. Luke's-Houston) for purchase. whut??
I realize this particular device is new and the hospital only had two weeks notice ,but what has them approving anything? Any clues?

Q2. I read on this forum where somebody sa...


Posted by lizzymag58 on 2015-12-27 04:08. 2 comments. 313 reads
 
My little story . I died of SCD was dead for 6 minutes while Nurses at a Nursing home preformed cpr on me until the emts got there . Was shocked 2 times . I died again in ICU that night and had to be shocked. They kept a crash cart at the end of my bed until they could do surgery a few days later. 5 days in ICU and 4 more days in a regular room . I was grateful to be in the right place at the right time. A miracle I have very minimal brain damage. My medical condition is Long QT Syndrome possibly brought on by prescription medication. I would like to know if any of you feel a sharp pain . Like a large pin stick in the heart , arm and neck .

Posted by NPgolfer on 2015-12-21 00:07. 3 comments. 413 reads
 
Hi all,

I'm an extremely active 52 year old male with acute systolic heart failure (EF = >18%) so I ended up with an ICD implanted on my left shoulder 6 days ago.

Since night one I've experienced what feels like an intense electrically induced hiccup. The odd thing is, that it only happens when I am either laying on my left side or slouching to my left side. If it matters, per my Fitbit HR, my heart rate is always right around 60 bpm which is where the device tries to pace my heart. Is this normal or should I say something to my doctor?

I don't feel an intense shock/impact just an uncomfortable intense contraction that is reminiscent of a 110 volt shock (I was an electrician so I know how it feels : )

Posted by Carolynnm on 2015-12-11 22:34. 2 comments. 475 reads
 
This afternoon I leaned over to pick something up off of the floor and had a pain go right through my chest? I sat back down involuntarily and just sat there for a few seconds until it went away. I don't quite know what to expect from my crt-d. If it was a shock will it show up on my Merlin?

Posted by Charlilou on 2015-12-09 09:01. 5 comments. 565 reads
 
Hi there all, i've had a pacemaker for an intermittant but severe bradycardia for 6 years now though the cause of the bradycardias has never been found. I'm due for a battery replacement within a year.

Recently my boyfriend started having palpitations whilst excersising and has been found to have a ventricular tachycardia when doing so. He is currently in hospital under investigation started on beta blockers and they are trying determine if its geneticly caused. An ICD looks highly likely as the risk of missing a beta blocker dose is great.

We are both in our early 20s and are looking forward to spending our lives together, with this new health problem i am concerned that our devices may interact and interfere with e...


Posted by gapl1953 on 2015-12-05 17:40. 1 comments. 446 reads
 
Hi everyone,

I'm 62 years young and last winter I had a bad chest cold/virus that must have attacked my heart. In two months my heart was enlarged, EF was down to 24% and my Mitral valve was compromised. I couldn't have open heart to repair the valve due to the low EF. Mayo Clinic place a Mitra-Clip in the heart to somewhat repair the valve and reduce the regurgitation, that worked. With that they were hoping that my heart would bounce back close to normal. A year later my EF is at 34% and with Sick Sinus Syndrome. I have just returned from Mayo with a newly implanted ICD/Pacemaker. I am still apprehensive of what I will be able to do or not do.
Finding this site has helped me with most of my fears.

Thank You...


Posted by Carolynnm on 2015-12-04 20:23. 3 comments. 430 reads
 
Maybe I am on the wrong website. I have a CRT-D. Am I supposed to be here or not?

Posted by dhusemann on 2015-12-03 03:18. 1 comments. 306 reads
 
Ok first night back since the implant 3 weeks ago. wound is pretty much healed. although still a little tender. yesterday the device started rotating and that does get uncomfortable, not really painful.

have walked around about 1/3 of the tools with no interaction. 480/ 3 phase. 240 2 phase. haven't gone around the implanters yet. and the one tool with a big earth magnet with pacemaker warnings on it.

D

Posted by teresastoops@gmail.com on 2015-12-02 04:50. 4 comments. 501 reads
 
I had a cold a year ago that became a viral attack to my heart. An EKG found a bundle branch blockage that started me down this path. In a matter of a few weeks my massive fatigue resulted from an EF rate of 25. So I am now a cyborg with a bi-vent / CRT-D. 11 days ago I could barely walk the basement stairs and I was winded, sweating and ready to collapse. BP had shot sky high and I was miserable. The morning after implant I was up, BP down, feeling like a new person. I am shocked and amazed how much better I feel. Yes sore, still tire easy but not winded! My doctor was almost giddy when she told me how much better my heart was pumping on the echo... I hope it continues. Hope to take advantage of everyone's experiences. Oh yes I'm 60 with ...


Posted by NKramer2 on 2015-11-15 22:59. 6 comments. 520 reads
 
Hi,
It's just been over a week after my surgery. The healing is not going as fast as I expected. I am a 23 year old woman that just got diagnosed with brugada syndrome. I am feeling a little down because I can't do things that my husband and our friends are doing while I recover. I also am bummed I can't do some of my favorite things anymore - like go on rollercoasters! I went to church today for the first time in awhile (because I was so sick) and just being in the sanctuary during song service was irritating my ICD site.

Does it get any better?!

Thanks

Posted by Sylvia1 on 2015-11-14 14:01. 1 comments. 383 reads
 
Hi,Just reading report of ICD settings and not sure what exactly Fast VT Zone rate means and where report says Therapies what does CV mean.Could anyone enlighten me please?



Member Login
email:

password:



Who's Online?
We have 6270 visitors online.

Members online:
  phyllandrew
  mytrose43
  donr
  DampDog
  Artist
  Cally90
  billyxoc1@gmail.com
  Lurch
  Barnes42
  Megan
  PatCan
  GoodDog
  Sunnystives
  Lucinda1406
  Grilor
  Tattoo Man
  Woodsey
  paulc1950
  Bionicwoman
  BrynaR
  gojack
  becky1958
  TraceyE

You're Wired When...
You have a dymo-powered bike.

Member Quotes
My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.