St. Jude Medical Pacemakers & ICDs

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Posted by mwelcome3911 on 2016-03-07 01:00. 4 comments. 448 reads
 
I just joined the site and I'm truly glad I came across it because I have felt that I didn't know where to go with questions. I am 33 and I have Long QT syndrome. I had my ICD put in last year, in October of 2014 after I had an episode of SCD while driving my car. Over the past couple of months I have noticed that I feel my "box" thump every night at 11:57 pm. You could set a clock by it. It goes on for about 30 seconds and then stops. Just wondering if this was something normal? I told my doc about it and they looked at me like I was crazy. Any thoughts would be greatly appreciated!

Posted by Strider on 2016-03-04 22:59. 3 comments. 526 reads
 
I have had Atrial Fibrillation now for about six years non stop. In January of this year I was placed on a anti arrhythmic medication in addition to the beta blocker that I was already on. My EF ranges from 25 to 30. After wearing a holter monitor for 24 hours my heart rate was slightly over 100bpm. I went out of AFIB following a conversion after being on the anti arrhythmic meds but only stayed in sinus rhythm for about four days. About four days later I went back into normal sinus and have been flipping back and forth from being in sinus rhythm to being out of sinus since. My Cardiologist had me get a Medtronic ICD/Pacermaker with two leads installed. It has been about 2.5 weeks since the implantation and I seem to be doing fine in...


Posted by Shocktastic on 2016-03-04 20:15. 2 comments. 390 reads
 
So, mid-October 2015 I had my ICD implant. I feel a million times better after having an ejection fraction 8-15% with my heart failure. They are just now giving me a full follow-up over the next 3 days as they said they wouldn't know how effective the ICD implant was for me until now. My Q is...if I feel 100 times better, why isnt that enough to show it's effective? They said if it has not been effective my next step is LVAD and if that doesn't work then heart transplant. Someone, please share your experience and help! Any advice or stories similar to mine help. It's so hard as I don't want my kids to be left w/o me so early in life or become my parent.

Posted by Turkey75 on 2016-03-01 16:57. 4 comments. 461 reads
 
Hello I am 40 years old and had my ICD for 6 years. I was diagnosed with VT at 34. I am a very active individual and tend to push myself. But in all my 6 years i do not recall my ICD ever thumping my heart. Quick info, last Saturday I woke up to a normal day. I started my day off painting my living room and carried on till about 5 that afternoon. Took a shower and when I got out was just toweling off and got very light headed and felt like I was going to pass out and that is when I felt 3 thumps to my heart. I sat down and and it did it again has this every happened to anyone else. Never been shocked and I go tomorrow to have my ICD checked. Just a little scared and stressed.

Posted by DampDog on 2016-02-29 09:26. 6 comments. 525 reads
 
I'm due to have an CRT-D implanted this coming Wednesday One (of many) questions that has popped into my head is how well do you manage to sleep on your left-hand side, post implant.Is it even advisable post implant?

I assume it will take a number of weeks for the tenderness to subside around the implant site. But is it difficult to sleep on your left simply due to the device "being there?"

How long are you generally sore for? give or take?

Also do they move about with the pocket or are they "fixed" into position for want of a better word.

Posted by lightgraphs on 2016-02-25 04:41. 1 comments. 439 reads
 
I had a Medtronic Evera ICD put in last October and have been miserable every since. I'm 100% dependent on pacing and have had an ICD since 2003. It's true I've recently gone into atrial standstill and am back in sinus rhythm after years of afib. And I'm miserable. Tests this week are showing that my heart rate isn't elevating when I exert myself. Just getting dressed forces me to rest. I was on the exercise bike for 1/2 hour and my HR never exceeded 62. The perimeters are set from 60-120. So was the old one. But it's just since this new device was put in that this has been happening.

This forum is a great discovery. I came here to see if I could survive an EMP attack ( LOL ) but think I have more pressing concerns right now an...


Posted by DampDog on 2016-02-24 18:55. 10 comments. 724 reads
 
After almost 20 years of hear problems including 3 MI's and a triple bypass I've now been diagnosed with ischemic cardiomyopathy, LBBB and an ejection fraction of 33% (QRS 139ms)

On my consultants advice I've been scheduled to have a CRT-D (Medtronic) implanted next week.

I'm just hunting for any information form anyone who's had a device fitted as to what the overall implant experience is like.

Also how did it effect your ability to exercise following the implant. While I'm not a runner I did enjoy a steady jog 1-2 a week and wondered if steady rhythmic exercises presents any problems. I used to do a couple of little sessions on the rowing machine. Following implant is that still going to be possible (on...


Posted by Lisamaruna on 2016-02-23 23:37. 3 comments. 403 reads
 
I need positive people to write about their icd. I am living in fear after vt strom 43 times fired on Christmas day. I was rushed for ablation after that which was successful and now on meds. What are my chances of it going off again.
Please share your thoughts and how do you fo on living?

Posted by idoleman on 2016-02-22 19:36. 1 comments. 276 reads
 
I recently had a ICD installed and 3 weeks later my blood pressur. has increased to 140/80 should i be concerned?

Posted by HOCMsux on 2016-02-21 09:58. 10 comments. 575 reads
 
i am wondering what to expect? I asked the doctors to make sure im asleep completely , as I have high anxiety and fear needles or any kind of medical procedure, I was promised by the doctor I would be asleep how ever I got the call from the surgery nurse to go over surgery in 2 weeks and she says she never heard of being put to sleep under anthestic for this procedure I must of been making things up or misunderstood .. so im asking anyone who just recently had a icd in and what to expect, is it painful? while getting it done is music playing? I personaly am going to try and fight for a sleep mode athetstic , I don't want to be aware .. of ANYTHING .. I have to have a icd this appointment was made 2 weeks ago as a asap ic...


Posted by nhouse on 2016-02-16 19:46. 4 comments. 339 reads
 
hello,
I am a new member. I was diagnosed with congestive heart failure about 4 years ago. Since then, my heart function has dropped drastically. I've been place on additional medication, but my doctor has recommended that a ICD be put into place. I am so so scared. Any advice..my main concern is the shocks that I may have, any comments would be appreciated.

Posted by braveheart on 2016-02-07 13:46. 2 comments. 534 reads
 
I had pacemaker put in 11 months ago, overall, I have been feeling alright but occasionally I feel lightheaded, dizzy and when I exert, sometimes I feel woozy. Cardiologist suggested to put IDC. Right now, I am given beta blocker but i feel very tired and check pain.

Does anyone has similar experience? What the consequence if I put ICD?

Thanks so much for your comment.

Braveheart

Posted by anniesu on 2016-02-04 21:56. 6 comments. 443 reads
 
I have a comment I have had a ICD for about 3 years..im doing great..I had to change heart doctors as mine passed away..my question is about the fact I'm doing really well on taking troprol xl once a day...now the new dr decided to put me on spironolactone 1/2 tablet a day and also Lisinopril 2.5 once a day..I always have a very low blood pressure so if I take these other meds I'm sure it will drop way down..I don't understand when you are having no problems and feeling good why do drs decide you need more meds...if they lower my blood
pressure any lower than 118 over 62 I wont be able to get around...why do they do this and I'm thinking I'm not going to do anything any different..what is everyone opinion of this ?I just turned 76 la...


Posted by LleidaLiz on 2016-01-03 18:00. 1 comments. 367 reads
 
Hi, thanks for accepting me.

My dad had a Biotronik ICD fitted Oct '15 after VT was diagnosed. All has gone very well & the medical care he has received here in Spain has been superb.

After a post-op 'systems check' 3 small episodes were detected, so small he didn't notice them. AF was also detected so he is now being trialed for Sintrom - docs are still deciding on the best dose for him.

He doesn't want to know all the ins & outs of the device or the 9 meds he is on. But i need to. He tells the docs - you do you job & I'll do mine by doing exactly what you tell me to.

I hope this site will help me with the many questions I have.

Posted by Saugrenue on 2015-12-31 15:30. 5 comments. 632 reads
 
Hi, Wondering what is the abbreviation or name of the device I have. It's a St Jude. Here in France it's called a "stimulateur cardiaque". It has 3 wires going to my heart.

Is it an ICD or a Pacemaker? Or are they the same thing? I do not have bradycardia. But rather paroxysmal Atrial Fibrillation - heart speeds up erratically. Not sure if what I have is a defibrillator or a pacemaker. Thanks for taking time to clarify for me.

Posted by Bodnik on 2015-12-30 01:41. 2 comments. 495 reads
 
Hi ya'll. I was supposed to get my ICD tomorrow, but got a call surgery canceled which creates one of my questions.

But first, about me-age 65M-semi-retired(work because enjoy it)-emergency triple bypass 5 years ago-current EF/20-multiple SCA family history-currently wearing Zoll Lifevest.
No events, but I do not have to be convinced an ICD is necessary.

Q1. The EP nurse said surgery canceled because Medtronic ICD wi MRI access(which I requested) had not yet been approved by hospital(St. Luke's-Houston) for purchase. whut??
I realize this particular device is new and the hospital only had two weeks notice ,but what has them approving anything? Any clues?

Q2. I read on this forum where somebody sa...


Posted by lizzymag58 on 2015-12-27 04:08. 2 comments. 332 reads
 
My little story . I died of SCD was dead for 6 minutes while Nurses at a Nursing home preformed cpr on me until the emts got there . Was shocked 2 times . I died again in ICU that night and had to be shocked. They kept a crash cart at the end of my bed until they could do surgery a few days later. 5 days in ICU and 4 more days in a regular room . I was grateful to be in the right place at the right time. A miracle I have very minimal brain damage. My medical condition is Long QT Syndrome possibly brought on by prescription medication. I would like to know if any of you feel a sharp pain . Like a large pin stick in the heart , arm and neck .

Posted by NPgolfer on 2015-12-21 00:07. 3 comments. 429 reads
 
Hi all,

I'm an extremely active 52 year old male with acute systolic heart failure (EF = >18%) so I ended up with an ICD implanted on my left shoulder 6 days ago.

Since night one I've experienced what feels like an intense electrically induced hiccup. The odd thing is, that it only happens when I am either laying on my left side or slouching to my left side. If it matters, per my Fitbit HR, my heart rate is always right around 60 bpm which is where the device tries to pace my heart. Is this normal or should I say something to my doctor?

I don't feel an intense shock/impact just an uncomfortable intense contraction that is reminiscent of a 110 volt shock (I was an electrician so I know how it feels : )

Posted by Carolynnm on 2015-12-11 22:34. 2 comments. 490 reads
 
This afternoon I leaned over to pick something up off of the floor and had a pain go right through my chest? I sat back down involuntarily and just sat there for a few seconds until it went away. I don't quite know what to expect from my crt-d. If it was a shock will it show up on my Merlin?

Posted by Charlilou on 2015-12-09 09:01. 5 comments. 590 reads
 
Hi there all, i've had a pacemaker for an intermittant but severe bradycardia for 6 years now though the cause of the bradycardias has never been found. I'm due for a battery replacement within a year.

Recently my boyfriend started having palpitations whilst excersising and has been found to have a ventricular tachycardia when doing so. He is currently in hospital under investigation started on beta blockers and they are trying determine if its geneticly caused. An ICD looks highly likely as the risk of missing a beta blocker dose is great.

We are both in our early 20s and are looking forward to spending our lives together, with this new health problem i am concerned that our devices may interact and interfere with e...




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