St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in ICDs Forum



Posted by rayd on 2014-08-13 20:47. 0 comments. 135 reads
 
Lisa,
read all your comments on M-Link. How long of a test period do they give you? Can you return it if you don't like it?
Thanks for all your information! Anyone else using M-Link?
Ray

Posted by Heartmama on 2014-08-12 23:09. 3 comments. 187 reads
 
Hi all. My daughter will be receiving an icd next week and I have some questions. First she has had increasing v tach for the last five months. She has congenital heart disease and has had four open heart surgeries so I'm assuming this is from scar tissue? Either way she has to have it. How difficult is the procedure and the recovery. She's seventeen so close to be an adult but she is a very small girl. Any advice or input ?

Posted by skyblu10 on 2014-08-11 19:45. 5 comments. 247 reads
 
I have been diagnosed with chf.
My ejection fraction is low at 26 after months of medication.
The cardiologist wants to put in a crtd only instead of a
combination crt/icd which is what I have been told I need.


Posted by banca on 2014-08-03 18:02. 0 comments. 183 reads
 
Has anyone tried or been advised not to try Rifing for lyme disease while you have an ICD?

Posted by rogertoday on 2014-07-31 01:18. 5 comments. 429 reads
 
So my pulse rate is in the low 40's and it worries me! I thought that my pulse rate would be more normal I just moved and do not have a new cardiologist yet. it just seems to me that a pulse rate of 44 is low for someone with a pace maker?

Anyone have a similar situation??
Roger

Posted by natlat on 2014-07-30 11:37. 0 comments. 196 reads
 
Hi, so I was implanted with an ICD in April. I am also on beta blockers. I am athletic and run. I suffered from a SVT while running prior to that and a fainting episode. I have scar on my ventricles and with every test imagineable, it remains undiagnosed. So I am back at running, with my trusty heart rate monitor. Not as much as before, and much slower, but happy and feeling good. My rate response for my ICD is now off. I have a little residual fatigue and my doc suggests we turn the rate rsponse on? I worry that it will get my heart rate too high for my needs. Does anyone have experience with this? And what are your general settings? My low is set at 60, my ICD begins to monitor at 145 and shock at 175 if it cannot outpace me....


Posted by sandras on 2014-07-21 22:48. 4 comments. 241 reads
 
Hi. Today I had a mammogram. It's been 3 months since I got the ICD. I was very nervous about any pain I might feel if the machine hit or squeezed the ICD. Besides the usual awkwardness of the situation, it went well. There was no contact with the device or the scar. I wanted to share my experience with the hope that I can help someone not waste so much time as I did worrying. I hope it helps.

Posted by irisheyes317 on 2014-07-20 00:53. 8 comments. 592 reads
 
Hi! 'Had my Medtronic ICD implanted 3 1/2 yrs ago & was told battery life would be about 7-8 yrs.All was fine at my last check up 6 mo. ago & was told i had at least another 5 ys with it. So Ive been hearing a beeping sound every morning at 10:23. I've been going crazy trying to find out where its coming from! Lifting up cushions, thinking its a lost cell phone,, checking laundry baskets, searching under the bed, etc. Then I get a call from my E.P.'s office that my battery needs changed, since they do the phone monotoring thingy I argued w/ them that they were wrong & sent them my own test via phone. Again, the results were that my battery needs changed. Then it hit me... the beeping I heard is coming from me!!!! FREAKY!! So Im scheduled f...


Posted by sandras on 2014-07-19 22:29. 2 comments. 145 reads
 
Hi everyone. I found this site back in April, right before I had an ICD implanted because of congestive heart failure. I was so afraid and started searching for information. That is how I found this site. I just wanted to say thank you to everyone. Even though this is my first post, I come to this site daily. I have learned so much and so many of my fears, concerns, and symptoms have been discussed here that I have been able to accept my situation and move forward. Once again, Thank you so much.




Posted by bribet on 2014-07-11 05:26. 2 comments. 220 reads
 
Hi everybody
I am joining because I have had a ICD for 16 years, and I have had three ICDs in that time. I have had several episodes in that time but I really believe that the ICD saved my life. I am 77 years old.
I just want to tell people that in time youy come to accept the ICD and after a time hardly think about it at all.

Posted by astroman on 2014-07-10 00:34. 6 comments. 376 reads
 
I am new to the CLUB. this s my first posting. Im facing a difficult decision About 3 years ago I had an ICD storm. Device fired about 75-80 dimes in about an hour and a half. It was the worst day of my 62 year life. All firings were Inappropriate shocks. Since then I believe I have been really Spooked.. I can relive the sensation of the shocks with no problem. I have since had an Arterial Flutter Ablation. No Afib since then [surgery about 20 months ago], i'm seriously considering having the Big shock part of the ICD turned off. This is not a practical decision I know. But there are a number of things I wont do because of my fear of going through another Storm. Its a quality of life decision.. My cardiologist is against this and I und...


Posted by Fluffy88 on 2014-07-09 11:13. 3 comments. 352 reads
 
Hi everyone, I'm new to this and hoping someone out there can help me with advice please. My father has been given the Merlin @home transmitter (EX1150) and i have been trying to set it up but without luck yet. My parents don't have a landline and the device came along with the usb connector, now i take it that the data which is transmitted will require an internet connection of some kind for the transmitter to work? I am uk based and i cannot find any technical support numbers for uk and my parents do not have internet, so if someone can just tell me if its required then i can move forward, many thanks in advance for any help, i appreciate any info.

Posted by davejs on 2014-07-08 14:33. 9 comments. 288 reads
 
Does anyone know where a selection chart for ICDs is? I want to get a smaller one than my medtronc device. It sticks out, hurts and is a constant reminder of my issues.

Posted by brey1234 on 2014-07-05 17:27. 3 comments. 279 reads
 
Looking for inpiu---Had a Boston Sciencetific pacemaker/defibulator installed on July3, 2014. That night it felt like my heart was going to pop through my chest! Tech came in that morning and saw a probelem and adjusted the device. All was well until I got home. Same problem, I could feel and my wife could see my rib cage rise and fall as I was feeling the effects. 24 hours later the feeling comes and goes and doesn't seem as bad.
Will call surgeon Monday but I am wondering, has anyone else experidenced the same.?

Posted by MaryKay on 2014-07-04 20:29. 4 comments. 381 reads
 
I have had a pacer for 9 years and now my dr wants to change it to a ICD. I have had a veinogram which indicated a blockage. Could the blockage have been caused from build up around the lead? I have been extremely short of breathe also - could the blockage be part of the reason for that.??? Thanks for any help I can get.

Posted by georgeazarmitchell on 2014-07-03 22:42. 8 comments. 546 reads
 
My heart rate recently went to 145 A-fib ,went to my electrophysiologist so he could shock me back into rhythm .He wanted to put me the hospital to do it but I wanted to feel it so I'd know if my device was working .I have had my device for about 4 months now with no shocks .He asked if I was serious ,I said. Sure I am ,so he told me to lay down and he would get the programing device and shock me .Told him I didn't want any drug for the shock I wanted to feel how it . He told me I'd hear a buzzing then I'd get the shock .I said ok let's do it . I heard the buzz then I received my first shock . As soon as I felt it, it was over .Took a millisecond . Now I know what the shock feels like and I know my device works . Don't fear the shock it's...


Posted by jgfred41 on 2014-07-02 10:32. 2 comments. 255 reads
 
I am writing this in the hope that it may help those suffering from AFIB.

I'm 72 and and suffer from AFIB and hypertension. I had a pacemaker implanted some years ago but my AFIB condition never improved until some 6 months ago. Then, following a google search on magnesium, I decided to add magnesium to my diet. The result was simply stunning.

My AFIB has stopped and I even had to reduce my intake of medication for hypertension. What surprised me most was that I was not even taking the recommended dosage of magnesium. Instead of taking 2 pills a day, I was only taking one pill every other day.

The magnesium I'm taking can be obtained in pill form from any health shop. Best wishes

Joseph


Posted by billvan on 2014-07-01 18:04. 0 comments. 101 reads
 
I have a St Jude ICD set up for Resynch therapy. The base rate is 60 beats per min and the max rate is 120 beats per min. The rate sensor is on. Sometimes at rest, my heart rate will drop to the low 50's and upon exertion it will drop to the mid 40's. Shouldn't the device kick in to prevent these low readings? The report the tech gave me a copy of indicates that the device is functioning properly. The ICD was implanted in july of 2009 and has about 6 months of battery left. The rate sensor was turned on (on my request) in may of 2014. Any thoughts on this matter would be appreciated.
Billvan

Posted by billvan on 2014-07-01 18:04. 0 comments. 91 reads
 
I have a St Jude ICD set up for Resynch therapy. The base rate is 60 beats per min and the max rate is 120 beats per min. The rate sensor is on. Sometimes at rest, my heart rate will drop to the low 50's and upon exertion it will drop to the mid 40's. Shouldn't the device kick in to prevent these low readings? The report the tech gave me a copy of indicates that the device is functioning properly. The ICD was implanted in july of 2009 and has about 6 months of battery left. The rate sensor was turned on (on my request) in may of 2014. Any thoughts on this matter would be appreciated.
Billvan

Posted by dld95648 on 2014-06-27 19:53. 5 comments. 265 reads
 
Greetings to my fellow Pacemaker Club members. I just joined because my Cardiologist wants me to receive a CRT-D implant. I still have good energy, exercising daily and leading a fairly active life. However, my EF has gradually declined since my moderate heart attack almost 12-years ago. I'd be extremely grateful if any CRT-D recipients could address the following questions: (1) What is your inappropriate shock rate? (2) Has your EF improved? (3) Do you have less arrhythmia and generally feel better than before the implant? Thanks in advance for you kind consideration to my queries.



Member Login
email:

password:



Who's Online?
We have 1069 visitors online.

Members online:
  Parrothead57
  Lurch
  Daisho
  rolson
  ScaredOne

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
Airport security welcomes you.

Member Quotes
A pacemaker completely solved my problem. In fact, it was implanted just 7 weeks ago and I ran a race today, placed first in my age group.

Pacemaker Interference Protection



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.