St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by sandras on 2014-07-19 22:29. 2 comments. 133 reads
 
Hi everyone. I found this site back in April, right before I had an ICD implanted because of congestive heart failure. I was so afraid and started searching for information. That is how I found this site. I just wanted to say thank you to everyone. Even though this is my first post, I come to this site daily. I have learned so much and so many of my fears, concerns, and symptoms have been discussed here that I have been able to accept my situation and move forward. Once again, Thank you so much.




Posted by bribet on 2014-07-11 05:26. 2 comments. 202 reads
 
Hi everybody
I am joining because I have had a ICD for 16 years, and I have had three ICDs in that time. I have had several episodes in that time but I really believe that the ICD saved my life. I am 77 years old.
I just want to tell people that in time youy come to accept the ICD and after a time hardly think about it at all.

Posted by astroman on 2014-07-10 00:34. 6 comments. 343 reads
 
I am new to the CLUB. this s my first posting. Im facing a difficult decision About 3 years ago I had an ICD storm. Device fired about 75-80 dimes in about an hour and a half. It was the worst day of my 62 year life. All firings were Inappropriate shocks. Since then I believe I have been really Spooked.. I can relive the sensation of the shocks with no problem. I have since had an Arterial Flutter Ablation. No Afib since then [surgery about 20 months ago], i'm seriously considering having the Big shock part of the ICD turned off. This is not a practical decision I know. But there are a number of things I wont do because of my fear of going through another Storm. Its a quality of life decision.. My cardiologist is against this and I und...


Posted by Fluffy88 on 2014-07-09 11:13. 3 comments. 281 reads
 
Hi everyone, I'm new to this and hoping someone out there can help me with advice please. My father has been given the Merlin @home transmitter (EX1150) and i have been trying to set it up but without luck yet. My parents don't have a landline and the device came along with the usb connector, now i take it that the data which is transmitted will require an internet connection of some kind for the transmitter to work? I am uk based and i cannot find any technical support numbers for uk and my parents do not have internet, so if someone can just tell me if its required then i can move forward, many thanks in advance for any help, i appreciate any info.

Posted by davejs on 2014-07-08 14:33. 9 comments. 271 reads
 
Does anyone know where a selection chart for ICDs is? I want to get a smaller one than my medtronc device. It sticks out, hurts and is a constant reminder of my issues.

Posted by brey1234 on 2014-07-05 17:27. 3 comments. 263 reads
 
Looking for inpiu---Had a Boston Sciencetific pacemaker/defibulator installed on July3, 2014. That night it felt like my heart was going to pop through my chest! Tech came in that morning and saw a probelem and adjusted the device. All was well until I got home. Same problem, I could feel and my wife could see my rib cage rise and fall as I was feeling the effects. 24 hours later the feeling comes and goes and doesn't seem as bad.
Will call surgeon Monday but I am wondering, has anyone else experidenced the same.?

Posted by MaryKay on 2014-07-04 20:29. 4 comments. 343 reads
 
I have had a pacer for 9 years and now my dr wants to change it to a ICD. I have had a veinogram which indicated a blockage. Could the blockage have been caused from build up around the lead? I have been extremely short of breathe also - could the blockage be part of the reason for that.??? Thanks for any help I can get.

Posted by georgeazarmitchell on 2014-07-03 22:42. 8 comments. 460 reads
 
My heart rate recently went to 145 A-fib ,went to my electrophysiologist so he could shock me back into rhythm .He wanted to put me the hospital to do it but I wanted to feel it so I'd know if my device was working .I have had my device for about 4 months now with no shocks .He asked if I was serious ,I said. Sure I am ,so he told me to lay down and he would get the programing device and shock me .Told him I didn't want any drug for the shock I wanted to feel how it . He told me I'd hear a buzzing then I'd get the shock .I said ok let's do it . I heard the buzz then I received my first shock . As soon as I felt it, it was over .Took a millisecond . Now I know what the shock feels like and I know my device works . Don't fear the shock it's...


Posted by jgfred41 on 2014-07-02 10:32. 2 comments. 230 reads
 
I am writing this in the hope that it may help those suffering from AFIB.

I'm 72 and and suffer from AFIB and hypertension. I had a pacemaker implanted some years ago but my AFIB condition never improved until some 6 months ago. Then, following a google search on magnesium, I decided to add magnesium to my diet. The result was simply stunning.

My AFIB has stopped and I even had to reduce my intake of medication for hypertension. What surprised me most was that I was not even taking the recommended dosage of magnesium. Instead of taking 2 pills a day, I was only taking one pill every other day.

The magnesium I'm taking can be obtained in pill form from any health shop. Best wishes

Joseph


Posted by billvan on 2014-07-01 18:04. 0 comments. 94 reads
 
I have a St Jude ICD set up for Resynch therapy. The base rate is 60 beats per min and the max rate is 120 beats per min. The rate sensor is on. Sometimes at rest, my heart rate will drop to the low 50's and upon exertion it will drop to the mid 40's. Shouldn't the device kick in to prevent these low readings? The report the tech gave me a copy of indicates that the device is functioning properly. The ICD was implanted in july of 2009 and has about 6 months of battery left. The rate sensor was turned on (on my request) in may of 2014. Any thoughts on this matter would be appreciated.
Billvan

Posted by billvan on 2014-07-01 18:04. 0 comments. 74 reads
 
I have a St Jude ICD set up for Resynch therapy. The base rate is 60 beats per min and the max rate is 120 beats per min. The rate sensor is on. Sometimes at rest, my heart rate will drop to the low 50's and upon exertion it will drop to the mid 40's. Shouldn't the device kick in to prevent these low readings? The report the tech gave me a copy of indicates that the device is functioning properly. The ICD was implanted in july of 2009 and has about 6 months of battery left. The rate sensor was turned on (on my request) in may of 2014. Any thoughts on this matter would be appreciated.
Billvan

Posted by dld95648 on 2014-06-27 19:53. 5 comments. 237 reads
 
Greetings to my fellow Pacemaker Club members. I just joined because my Cardiologist wants me to receive a CRT-D implant. I still have good energy, exercising daily and leading a fairly active life. However, my EF has gradually declined since my moderate heart attack almost 12-years ago. I'd be extremely grateful if any CRT-D recipients could address the following questions: (1) What is your inappropriate shock rate? (2) Has your EF improved? (3) Do you have less arrhythmia and generally feel better than before the implant? Thanks in advance for you kind consideration to my queries.

Posted by nivla50 on 2014-06-26 22:11. 5 comments. 204 reads
 
Please read the link: Low complication Rate in new Subcutaneous ICD.

http://www.medscape.com/viewarticle/827234

Posted by 75ford on 2014-06-25 17:50. 0 comments. 130 reads
 
Is it or can it be made reasonably safe to use a plasma cutter.

Posted by relax221 on 2014-06-16 13:12. 2 comments. 146 reads
 
I'm 74 yrs old and this is my third pacemaker (ICD) I feel ok but sometimes I have to take a nap at 11am and 3pm..then go to bed at 9pm and up at 6am. I don't feel like doing anything and if I do it must be done before noon.I also have shortness of breath upon any work ?
Is this normal ? I'm due back for a pacer check next week ! could it be the ICD needs to be adjusted ?

Posted by khalidlarkana on 2014-06-15 13:23. 2 comments. 139 reads
 
i got pacemaker in 2009 and uptill now there is no problem felt but for the last few months while i am on sleep i feels pain below pacemaker , just to mention that i am patient of acidity in stomach problem, i assume that due to eating this probles occurs. friends view point point on their experiences is requested

Posted by daisy0388 on 2014-06-12 13:17. 5 comments. 277 reads
 
Hi everyone!

I just had a question in hopes to maybe someone having an answer. I just had a pocket revision for my pacemaker about 2 months ago and had been getting along fine until last night when out of no where had pain shooting through the left shoulder area where the pacemaker is. When I lay down on my back or left side the pain is absolutely horrible and I can't even touch the pacemaker itself. Also it feels like a fire is sitting behind it. I am scheduled in 4 weeks for another ablation (my 8th) but I'm worried about having this pain come out of no where. Does anyone know if this sounds like something is brewing or are things shifting? It does not feel like the pacer or wires have moved. Any thoughts would be appreciated!...


Posted by debj665 on 2014-06-08 01:42. 2 comments. 299 reads
 
Hi I had a biventricular defibrillator implanted on March 6, 2014. They removed the little pacemaker and replaced it with this lovely device to keep me going. All is going pretty well, my EF is up from 35 to 40. My question is this..I am pacing 100% for the bottom of the heart which is where I was told all the problems are due to a scar on the heart muscle most likely caused by my lovely disease called Sarcoidosis.
I also have complete cardiac bloc and left bundle branch. Had a crazy incident yesterday the alarm on the monitor went off, nothing wrong with me but they sent me to ER anyway...such fun! So the St. Jude tech says, nope all is good pacing at 100 % ventricularly and 31% up top....???? I was like what? NO one has ever to...


Posted by rhymeandreason@knology.net on 2014-05-31 19:05. 4 comments. 252 reads
 
If you have a bad heart only one thing to do, Is to get a pacemaker For the chosen few. Once you have it in Then your good to go, Until it goes off Then there's a really big show. The show of being scared Not knowing is the key, The key to save your life Is what your about to see. See a miracle happen So you can continue on, Make every moment count And let yout glory be shown. Written by Jackie H. Caylor Pacemaker receipent ICD went off May 11, 2014

Posted by rhymeandreason@knology.net on 2014-05-29 16:41. 0 comments. 156 reads
 
In order to your question no you will have no warning at all. Like I said I felt my heart flutter then I heard a loud pop then my left shoulder drew backwards for several seconds. My arm was very sore for two days. I am just glad I was close to the bed because the shock will being you to your knees. After it happens your really supposed to call 911 but I had home health coming in . Check with your Dr. after this happens. Contact me any time



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