Hi I have had my ICD-D for about a year and a half..everything has been fine for several months Then last tues I went for a check of the pacemaker-defib ..all went well during the routine test and I left feeling well ..Then by friday I was having hard beats seems like in the bottom of the heart or right under the side or the left breast Weird for sure but it beats hard...Now is it the heart or a nerve or what..Havent been able to get ahold of the dr.with easter and all But, was wondering is anyone else has had this happen to them...Im ready for a recheck something isnt right since it was checked ...any one have this experience...???

 

Had my crt-d fitted 2 days ago and a marathon 5 hours 10 mins of surgery. Yes you are reading this right I think I broke hospital record. I have cardiomyopathy, LBBB an LVEF of 20% previous 2 vessel CABG. I am hoping this device is going to help with better exercise tolerance as I`m down to less than 40 yards now. Can anybody whether or not it's made a big improvement as this is my last hope.

 

Is there anyone else out there that absolutely hates the part of a routine ICD check when they have to check the pacing? I have had my ICD since 2005 and I plead with them everytime not to do it!

Nicole33

 

Hello. I just joined the group. Would like to share stories with anyone here that is interested. Hopefully someone will be. :0)

Nicole33

 

Hi everyone,

I just have a couple of questions. On wednesday I went in for a cryoablation to try to get rid of my accelerated junctional rhythm. Before the ablation my dr told me that he would try to fix it as long as it didn't give me heart block or wipe out my av node due to my age ( mid 30s) he didn't want to increase my risk for heart failure so he says. Everything went good during the surgery, they were able to get some areas but when they started to freeze the area (which was the bad area) almost right on top the av node it started to give me heart block so he backed off. This does not make me happy as I have still had some episodes of the juntional. He said that he was hoping he would have at least slowed it down enough t...

 

It seems like every time I stand up, I get light headed and need something to grab hold of. I got my ICD in June 2012 and it just seems like its getting more frequent. I was wondering if anybody experienced this or heard about it.

Thanks
Joe

 

I am new to this sight. I received a biventricular ICD one week ago today. I have been taking some pain meds and was spacing the last few out this weekend. Last night I was woken by the stiffness and pain in the area of the PM. Woke at 2 AM and took the last of my pain pills and 2 Extra Strength Tylenol. It took almost 2 hours to get to where I could doze off. Yesterday, I got dizzy upon getting up out of a chair and once today. Is there something else you have taken for pain and what should I tell my doctor?

 

Good Morning,

On March 2nd, after having my Boston Scientific CRT-D for over three years with only one shock...I received a warning shock and 30 minutes later, my CDT-D went into overdrive and fire 31 times between calling 911, ambulance arriving on scene and eventually place in the ER.

Place on Amioderone IV and the investigation began as to why this happened to me.

So the process of elimination began...first with a heart cath angiogram to rule out clogged arteries...and no clogged arteries.

My EP offered two solutions:

Be placed on Amioderone for life along with beta blocker and ace inhibitors...

or have a Cardiac Ablation...risky yes, but would reduce the amount of time o...

 

I had my defib placed in my chest when i was 9. Since then my life has literally turned upside down. I have regular shocks from my defib so i now have depression I dont no if its just because im not strong enough to cope with this or what but I have these hideous scars on my chest were the defib has been implanted twice and a lump on my chest where he device actually is I dont like wearing low cut tops or dress's.. I feel like freak because people always stared when i got changed.... is there anyone else who knows what it feels like?

 

I'm 30yrs old and I have a Defibrillator for almost 3months, after that I had it I feel ticklish in my head and in my legs and parts of my body shake sometimes I'm having difficulty sleeping. Is that normal? This thing is stressing me out

 

Hello everyone,

I am an ICD patient who has been on a long quest to liberate the data collected by my ICD. Some of you may be aware of this.

In any case, I am working with a group of researchers from Stanford, Tufts, UPenn, and Vanderbilt to research patients' attitudes about their ICD and pacemaker data. We are trying to figure out whether or not patients care about the information collected by their implanted electronic devices, or not.

We've created an online survey to capture patients' thoughts on the topic. I am tasked with getting the word out about the survey.

The survey is confidential, anonymous and should take about 10 minutes to complete.
http://bit.ly/WHbFji

Thank you...

 

I really want to go to the tanning bed but I haven't since being my defibrillator. Is it cool if I go or do I have to start fake tanning...?

 

Hello my name is Carolyn and I am having my icd replace and lead extraction tomorrow morning. Has anyone had this done?

 

I have not got a definite answer from my doctor or my St Jude Rep other than not to use a chainsaw or a welder or how riding my motorcycle will affect my device I'm not supposed to work on generators either but I do and seem to have no effect does anyone have a answers?

Thank's

 

I have a honiton monitor for St Jude Pacer and defibrillator.
How will i know if it is still working. Had inplant June 2011. Have had no follow up since.
Should an error occur how would i know and what would i do??
People talk about alarm but what happens. .
Pancres

 

Hey,

Well it's been about 3 months since I had my first ICD implanted and i recently did an x-ray which showed the loop of the lead had uncoiled and needed another minor surgery to re-coil it. The Dr said that it wasn't urgent but it just needed to be done quite soon because it would be harder to do when the tissue had fully healed.... blah blah blah...

anyway the point is I think i'm going to have it in maybe a month or 2 (dr is still unsure) and was wondering how long i would have to stay in hospital?? The Dr said that the procedure was quite minor and not as much anaesthetic was going to be needed.. so i was wondering if anyone has had this or knows and if so how long would i have to stay?( i'm presuming just a ni...

 

I just had an ICD implanted Feb 1st. Aside from severe pain I experienced, I am having a difficult time dealing with this lump on my chest. Being that I had a mastectomy on my right breast in 2002, I now feel quite ugly. I believe many women probably have issues dealing with appearance. Won't be wearing any low cut blouses. Also, am much more aware of excessive palpitations at night. The bottom line here, I'm trying to stay alive! But the reality that I have LBBB, cardiomyopathy, and CHF, is just a lot to deal with. Hope I can read more how others feel.

 

I'm have a ICD Gen Change done this Friday, and I was wondering do the same do and don'ts apply like it did when I first rec'd one. I watch my 15 month grandchild...will I be able to pick her up, or will I have to wait the 6 weeks. I can't remember what happened last time (4 years ago). I will call the doctor on Monday, but am thinking about it now. Any advice?

 

Hi there. Haven't posted in a long time. I am scheduled for a new ICD in March. They are going to leave the Fiidelis lead which is still working fine in place; then run a new lead beside the one in the atrium. Not going to extract it, have been told this is risky. My third lead will be on the other side of the heart so it will beat together. I have had shortness of breathe since Oct. and the ankles were swollen while on vacation at Christmas. I am a little scared this time for surgery, but am ready to feel better. Have been told with the three lead, I will. Has anyone ever had their leads extracted and did they run into trouble. I would not survive open heart surgery, is the reason that they will leave the lead in place. Thanks....

 

Hi all,

I was wondering if anyone here has ever had a cryoablation done. I am going in surgery in march to have this done to try to get rid of my accelerated juntional rhythm. My dr wants to try to knock out the juntional without wiping out the av node or giving me heart block. He has made no guarentees but thought it was worth a shot as he doesn't know what else to do for me. I have tried meds and either have not worked or couldn't tolerate (and the included flecanide) .The only med that I havn't tried is amiodarone but I chose not to try that one cause of the horrible side effects and long term side effects since I am only in my 30's. I already have a dual chamber PM and he has tweeked the setting quite a bit by setting my low...