St. Jude Medical Pacemakers & ICDs

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Posted by Sullis65 on 2014-11-07 14:39. 6 comments. 423 reads
 
Hello All, Been awhile since I last posted but here's the story as of an hour ago. NP for my EP Cardiologist called and said after having taken an echo and then an a nuclear stress test that I now need a CRT-D for various reasons ...AFIB, low EF, scar and dead tissue, enlargement; an apparent MI in the past. For 26 months I have had a dual lead Medtronic Pacemaker and am 100% dependent. She said the scheduler will be calling back to setup the upgrade. I also have angina and two minor blockages in the heart that have been treated with meds and no stents. Right Iliac is also partially blocked, Can somebody sort of guide me through this who procedure and what to expect? Where in the heck are all those leads going now? How do they swi...


Posted by farhan on 2014-11-05 05:57. 9 comments. 423 reads
 
Hi Fellows,

I will go through an ICD implant procedure in due course and most probably will have St. Jude's single chamber ICD (I think model is fortify and it lasts more then 10 years. Is this a wise choice? Is there anything coming new in short course that is drastically better in life and in avoiding unnecessary shock?)

My recent echo was 32% so still am evaluating the decision for transplant and most probably my doctor and I will conclude to go for the transplant. my age is 43.

One of the question that is keeping me awake now a days is about the procedure itself and that is why I am here.

Can you please share your experiences specifically around procedure itself. Will it heart spec...


Posted by ScaredOne on 2014-11-03 05:08. 3 comments. 374 reads
 
Has anyone experienced a shock from the ICD? What happens when you are brought back into the right rhythm? The reason I ask is because I have mechanical heart valves (sounds like a ticking clock in a quiet room), and I can hear my HB rapidly which freaks me out so I sit down and wait for the ICD to do its job, which it does (thankfully). The only downfall is that I let out a "cry of pain" sound, even though it doesn't hurt. I think it's because I am caught off guard from the shock that it makes me yell. How does one adapt?

Posted by sassylatin on 2014-11-02 17:33. 4 comments. 370 reads
 
Does anyone know what it means when the Merlin@Home monitor beeps once and an orange light flashes across it for a couple of seconds. I have a St. Jude Medical 3 leads difibrillator since April 3rd, 2013 and this never happened before. It happened last night and now I am worried as I just had a check up at the end of June and my heart went from 19% capability to 56% since the difibrillator implant.

Posted by drenje75 on 2014-10-26 17:34. 12 comments. 573 reads
 
Hi,my name is Predrag (Brugada syndrome) reason for installing ICD.
At first ,sorry if my English is a little bit rusty...In my country is possible to avoid to wear--use seat belt if you have an ICD patient card. But because here traffic is so awful ,i am in big dilemma what to do? I am frightened about wire damage (Europian driver side in car). Any personal experiences in car collisions???

And small reminder for moderator or similar: in list of countries there is no "Serbia" which exists as a European country since the tenth century,because I was forced to choose Slovenia.
Thank in advance for answers

Posted by limey42 on 2014-10-22 22:04. 2 comments. 245 reads
 
Hi gang,
Had my ICD implanted 8/8/14 felt great until last Saturday, Saturday could not breath worth a darn, spent Saturday & Sunday laying around the house.

Monday back to normal feeling great ever since, shortness of breath was one of my biggest problems prior to having my ICD.

Any body out there ever had the same experience? if so did you ever find out why this happened.

Thanks,
Limey 42

Posted by Olena on 2014-10-13 20:42. 5 comments. 288 reads
 
Does anyone heard anything about wearable ICD by ZOLL? You don't have to do a surgery and it works like an emergency. But this will not pace you or anything like that. Does anyone knows anyone who has it?

Posted by Olena on 2014-10-13 20:08. 2 comments. 289 reads
 
Does anyone knows if there is a different on how ICD shocks feel in 16 jolts vs. 60 jolts? If jolt is higher than it more painful? If you stand, will it knock you out of your feet?

Posted by Olena on 2014-10-13 14:43. 1 comments. 225 reads
 
Hello, I just was diagnosed with cardiomyopathy and possible future VF. Doctor told me that I need an ICD. He also told me that I have two choices: traditional ICD and new S-ICD. It seems that both have cons and pros. The new S-ICD has 80 jolts and it can't be adjust to lower jolts, like traditional ICDs. But doctor said that if I will be hit with 30 or 80 jolts the painful experience will be the same. Does anyone knows if it is true? 30 vs 80 is a big difference.
Does anyone has S-ICD device on this forum? Does regular ICD cause many issues? I am 40 years old and that is why doctor said that S-ICD might be better for me, so I don't have to change leads all the time. Any suggestion would be greatly appreciated.


Posted by roballen46 on 2014-10-11 04:14. 3 comments. 432 reads
 
I have a biventricular device. I had my first shock. Actually this is my second shock. My first came with a Boston Scientific device. My Second was with Medtronics Device. The shocks usally come when I am in bed. This shock woke me out of a sound sleep. It felt like a death angel reached inside my body and pulled my soul out and said mid way...sorry, wrong person! That is a scary feeling. I do have a side effect of the shocks... I am scared to sleep due to the fact the shocks come when I am at rest. I only had two...but man, they scare the heck out of you.

Posted by relax221 on 2014-10-01 20:45. 4 comments. 466 reads
 
WHAT DO THEY DO WHEN THEY REPLACE THE ICD WITH THE NEW MRI PROOF TYPE PACEMAKER ICD ? DO THEY REPLACE THE LEADS OR WIRES OR JUST OUT WITH THE OLD IN WITH THE NEW ?

Posted by campusstar on 2014-09-30 15:52. 2 comments. 220 reads
 
thanks for the advice. Am here because in Jan 03/14 I went to hospital with a EF of 11 went up to 23 then 31 up to 35 right on the line for icd had mugga went down to 31 now told need CRT-D at the time in Jan my partner decided to leave me and I been dealing with this cardiomyopathy alone

Posted by crgrandma on 2014-09-23 22:44. 0 comments. 206 reads
 
Glad aim not alone. I got mine July 2014 after a 3XByPass. Today I still get a lot of Pain in the Pacemaker immediate area up into the Shoulder, down into breast area. Everybody thinks I'm nuts. Glad I found this group

Posted by natlat on 2014-09-15 14:38. 2 comments. 292 reads
 
Hi everyone, so I am now running about 4-5 miles 4-5 days a week, cannot believe it really. I am also faster than when I first hit the ground running post ICD surgery. I have been avoiding any substantial hills while running, however I would love to run my old running route which begins while a long upward slope of about a mile. Any suggestions on running hills? I do wear a HRM when I run. Thanks for chiming in!

NL

Posted by Teena on 2014-09-14 15:52. 1 comments. 226 reads
 
I recently had my yearly pacemaker checked and was told to monitor my heart rate.
I bought a Smart Health walking heart rate monitor,step counter and watch. It is still in the box and ready to return . I have to wet the wrist while using it.
Is this safe.? It seems like it's similar to my phone checks when I use the wrist bands.
Has any one used this brand?

Posted by Cartman on 2014-09-13 15:00. 3 comments. 352 reads
 
I had a single lead pacemaker/ICD implanted on February 18, 2014. After recent problems I had the single lead pacemaker/ICD removed and a dual lead pacemaker/ICD implanted.

After the procedure the nurse handed me to single lead pacemaker/ICD to keep. I was told that the pacemaker/ICD can not be reused in the USA even though it still has 14 years of battery life left.

I would like to donate the single lead pacemaker/ICD.

Does anyone have any ideas????

Thanks in advance,
Mike

Posted by Grateful Heart on 2014-09-08 23:11. 5 comments. 309 reads
 
My upper limit was raised to 165 a few months ago. Last week after a workout, my HR monitor read 258 for the high number. That beats my past high number of 227 not long ago....(not that I am trying to beat it).

I didn't do any aerobics that day at the gym last week, only weight machines. It has been over 200 a few times in the past month.

My Polar HR monitor has really been right on target. During an intensive exercise class a few months ago, my HR monitor registered 220 for the high at the end of the class. During the next interrogation report, it recorded 8 episodes, all during the hour of the class with the high being 217 for 8 seconds. So the HR monitor for me has proven to be very accurate.
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Posted by Sylvia1 on 2014-08-31 16:05. 3 comments. 466 reads
 
What is the actual difference between the above.Sometimes docs refer to mine as CRT-D other times ICD.Could anyone enlighten me pls.Tks

Posted by daisy0388 on 2014-08-26 17:34. 4 comments. 379 reads
 
I am curious at to anyone else has experienced this..I know about that it does happen and I have did lots of research on here and on the web but I haven't found anything that is like my situation and either have my drs so I thought I would try here.

I am both atrial and ventricular paced and have been for awhile. This year I had 3 pocket revisions due to either pm or lead moving. After the revisions I started having the horrible beating/kicking in the bottom of my chest/diaphragm area. I only feel it if I'm up moving, if i'm sitting on the couch I'm fine. My dr felt it and said yes that is coming straight from your diaphragm, well when they did xrays it doesn't look like the V lead has moved. So they are completely lost as to wh...


Posted by Tealady on 2014-08-26 01:12. 5 comments. 367 reads
 
Had a new pacemaker implanted in Nov 2013... It has three wires, the new third lead wire was to "cure" the congestive heart failure--left side of heart. Supposedly CHF was the result of 32yrs (7 dual lead on demand pacemakers) was the right side of heart being paced.

Well, I should of had an ICD with pacing capabilities implanted instead because I have been having tachycardia, which has been going on for yrs with rapid heart beats so fast I couldn't talk. ICD is also needed for the CHF that isn't caused by disease but by pacing. So glad new dr knows what he is doing!!

I have suffered because the left side new lead wire had to be shut down to o.1 because of the constant diaphragmatic stimulation...quality of life has ...




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