St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in ICDs Forum



Posted by gapl1953 on 2015-12-05 17:40. 1 comments. 455 reads
 
Hi everyone,

I'm 62 years young and last winter I had a bad chest cold/virus that must have attacked my heart. In two months my heart was enlarged, EF was down to 24% and my Mitral valve was compromised. I couldn't have open heart to repair the valve due to the low EF. Mayo Clinic place a Mitra-Clip in the heart to somewhat repair the valve and reduce the regurgitation, that worked. With that they were hoping that my heart would bounce back close to normal. A year later my EF is at 34% and with Sick Sinus Syndrome. I have just returned from Mayo with a newly implanted ICD/Pacemaker. I am still apprehensive of what I will be able to do or not do.
Finding this site has helped me with most of my fears.

Thank You...


Posted by Carolynnm on 2015-12-04 20:23. 3 comments. 441 reads
 
Maybe I am on the wrong website. I have a CRT-D. Am I supposed to be here or not?

Posted by dhusemann on 2015-12-03 03:18. 1 comments. 313 reads
 
Ok first night back since the implant 3 weeks ago. wound is pretty much healed. although still a little tender. yesterday the device started rotating and that does get uncomfortable, not really painful.

have walked around about 1/3 of the tools with no interaction. 480/ 3 phase. 240 2 phase. haven't gone around the implanters yet. and the one tool with a big earth magnet with pacemaker warnings on it.

D

Posted by teresastoops@gmail.com on 2015-12-02 04:50. 4 comments. 508 reads
 
I had a cold a year ago that became a viral attack to my heart. An EKG found a bundle branch blockage that started me down this path. In a matter of a few weeks my massive fatigue resulted from an EF rate of 25. So I am now a cyborg with a bi-vent / CRT-D. 11 days ago I could barely walk the basement stairs and I was winded, sweating and ready to collapse. BP had shot sky high and I was miserable. The morning after implant I was up, BP down, feeling like a new person. I am shocked and amazed how much better I feel. Yes sore, still tire easy but not winded! My doctor was almost giddy when she told me how much better my heart was pumping on the echo... I hope it continues. Hope to take advantage of everyone's experiences. Oh yes I'm 60 with ...


Posted by NKramer2 on 2015-11-15 22:59. 6 comments. 532 reads
 
Hi,
It's just been over a week after my surgery. The healing is not going as fast as I expected. I am a 23 year old woman that just got diagnosed with brugada syndrome. I am feeling a little down because I can't do things that my husband and our friends are doing while I recover. I also am bummed I can't do some of my favorite things anymore - like go on rollercoasters! I went to church today for the first time in awhile (because I was so sick) and just being in the sanctuary during song service was irritating my ICD site.

Does it get any better?!

Thanks

Posted by Sylvia1 on 2015-11-14 14:01. 1 comments. 387 reads
 
Hi,Just reading report of ICD settings and not sure what exactly Fast VT Zone rate means and where report says Therapies what does CV mean.Could anyone enlighten me please?

Posted by MIngram on 2015-11-04 02:16. 10 comments. 620 reads
 
Hello everyone,

I am new to the forum (forums in general) and I need help. My Doctor has suggested the three companies below:

- St. Jude
- Medtronic
- Boston Scientific

I have been researching best I can, but I am unsure. From what I gather it seems that there is not a wrong choice. I have another appointment on Nov. 19th with a new Doctor and I am going to ask for models of each to research more in-depth. Would you suggest any websites, maybe the hospital, or another place/person to gather more information? Any suggestions or information would be greatly appreciated.

Thank you,
Maryanne

Posted by dhusemann on 2015-10-23 10:21. 0 comments. 495 reads
 
been wearing the Zoll Lifevest for the past 2 months. and during the drive will feel it vibrate, had a couple of announcements after that the sensors were not in contact, well on a drive home I would get anywhere from 10 to 30 of those vibrations, and would make adjustment to the vest.

Tuesday Evening it told it to send an update. went to work Wed night. Had not heard from EP in two weeks after confirming ef was 35%-40%,

Thursday Morning get call from EP office with Urgent call back to schedule apt. Called and was advised EP had set apt for an ICD install for Oct 29, would I like morning or afternoon.

Had to change to Nov 11 because of paperwork I need to file with work. to get paid during the time of...


Posted by John@PC on 2015-10-22 23:10. 2 comments. 463 reads
 
My first post so greetings! I'm 64 with ICD implant in 2009 for sustained VT. A few shocks and "terminated episodes" post implant but thankfully the VT has subsided with amiodarone treatment. Earlier this year generator was replaced with Boston Scientific Enogen EL initially set to DDD mode.

Prior to the gen changeout I was having issues with occasional light-headedness. Turned out it was pacemaker syndrome. During these v-paced instances my systolic BP dropped from 110 avg. to 70 when standing. Went back to EP and underwent a series of adjustments that unfortunately resulted in PMT (probably caused by lengthening the AV delay) and landed me in the hospital with syncope. All pacing parameters on the ICD were "reset" wit...


Posted by rowes69 on 2015-10-21 15:50. 4 comments. 457 reads
 
HI all,
Did anyone of u experience a shock given by ICD device to control your tachycardia. If yes can u share the experience and the symptoms
Thanks.


Posted by Sylvia1 on 2015-10-20 20:43. 1 comments. 282 reads
 
Hi,Hubby has finally had operation to take out two broken leads and his ICD and a new ICD fitted in a 7 hour op.Didnt expect it to take that long after it has only been in for 2 years.He is recovering well apart from his INR which needs to get back on track as he has not been taking it before the op.Docs have increased bisoporol as he has been having ectopics since surgery-was on 10mg now on 12.5mg-lets hope they stop and life can go back to normal again and this ICD has a longer lifespan.

Posted by B4theWALL61 on 2015-10-19 15:36. 4 comments. 508 reads
 
Thank you for allowing me to join the group. I'm scared about my cardiologist recommendation to implant an ICD. I have also met my EP.

My story...
54 year old Caucasian male, left handed
1st MI on 7/4/15 due to 100% blockage LAD and 70% blockage LCX
EF on 7/5, 7/7, and 10/1 = 30% to 35%
I've worn a LifeVest for 100 days with 3 one-time alarms and zero shocks

I mention my handedness because during the consult the doctor and his nurse repeatedly said the ICD would be located in my upper left chest. I am very left-handed. I am a DIY-er so I am all the time using a hammer, level, using power tools, etc. I enjoy shooting sports. (The EP's nurse said I will not be able to shoot a rifle or shotgun ag...


Posted by climber5 on 2015-10-04 11:12. 0 comments. 304 reads
 
HI there,
Just a note to let you know that I have set up a Facebook group specifically for climbers who have ICDs or pacemakers here: https://www.facebook.com/groups/1646984335572801/ Its time we got together to share experiences ;-)

Simon

Posted by southerndixie62 on 2015-10-04 03:22. 4 comments. 819 reads
 
I ended up at the hospital last night. However our local hospital
is not really equipped to deal with any major issues with ICDs.
I started having strange severe pain that felt like a knife thru
my chest that lasted for about 10 secs yesterday morning. This happened off and on all day. I knew it didnt seem right, especially the metallic taste in my mouth. I tried to get in touch with my regular Dr. however the nurse never called me back.
At about 4:30, the pain,came back again with an intensity that i
didnt expect. It radiated between my shoulder blades and down my left arm. Ended up at ER because pain did not relent for over an hour and a half. The pain was so intense, the ER Dr gave me
Nitroglycerin, morphin...


Posted by JLK on 2015-10-03 18:10. 6 comments. 559 reads
 
Again, I have just begun learning about my condition, so advice, constructive or otherwise is welcomed. Last years physical showed me as healthy, other than needing to lose a few pounds. These past few months all the tests have come back great no cancer/diabetes/blockages etc.. I am truly blessed in some ways.
Dr says my low Ef is the reason I am to get the ICD.
Dr. Says it will not come up much more if at all maybe 1 or 2%.
I know everyone is different but From what I have been reading online and talking to people at the cardiac rehab. I see stories of EF improving. Dr says standard wait procedure is 3 months.
From what I have been told it used to be 9 months.

Do I get the ICD now or wait?
I don't hav...


Posted by pauly on 2015-10-02 14:13. 5 comments. 467 reads
 
Guys

My cadio is suggesting me an "upgrade of my two wire pacemaker to a three wire defrib one

!/ in the uk I wont be able to drive for 6 months

2/also i am scared about the Removing out of the old
wires is it LA or GA operation

Any advice would be welcome

TA
PAULY

Posted by JLK on 2015-10-02 05:35. 7 comments. 671 reads
 
Hey everyone, my name is Joe.
I will be 50 this year, 2 kids and a beautiful wife.
In June of 2015, I was diagnosed with congestive heart failure. Echo showed a estimated 15% EF. Heart cath - no blockages. No signs of diabetes.... Nothing.
It was determined mine was caused by a virus that severely weakened my heart.
I was placed in a zoll lifevest.. Yippee..
Started meds of coreg, spironolactone, lasix, potassium.
3 months later I have dropped nearly 50 lbs.(water weight) I am now at 185. Went thru several med dosage changes over the last 3 months. I just had my 2nd Echo done and ol sawbones informed me my EF is 20%. And that I need a single wire ICD implanted. Despite feeling good most of the time througho...


Posted by Tom77 on 2015-10-01 13:51. 8 comments. 401 reads
 
Are weakness and low blood pressure symptoms of and ICDs needing battery replacement?

Posted by DonaldWillis on 2015-09-24 17:20. 1 comments. 320 reads
 
I have A Fib very bad going 7 yrs. Enlarged heart with V F also. Would a AV node abalation help me and how.

Posted by tk10935 on 2015-09-23 00:56. 4 comments. 431 reads
 
My ICD was implanted in March 2011 and to date it has not had to help me out other than pacing. I usually have 2-3 incidents between interrogations but they are not long enough for the device to even make an adjustment much less give me a shock

However, today I felt a fluttering in my chest in the area of the ICD that lasted about 4-5 seconds It felt like a butterfly in my t-shirt pocket trying to get out I noticed others have had similar issues but it seems like it was when their devices were new

Has anyone else had an issue like mine



Member Login
email:

password:



Who's Online?
We have 7540 visitors online.

Members online:
  phyllandrew
  Eddiethedog
  donr
  Gerrygee
  DampDog
  barnet38
  Artist
  JimPic
  billyxoc1@gmail.com
  Lurch
  tammyjk1021
  PatCan
  GoodDog
  Sunnystives
  Grilor
  webdragon
  gp.19
  coxy
  paulc1950
  Bionicwoman
  vgivens62@gmail.com
  BrynaR
  gojack
  becky1958
  TraceyE
  Cally90
  Barnes42
  Harleygirl
  rghair@gmail.com
  Megan
  Lucinda1406
  Tattoo Man
  marineboy
  Woodsey
  techiej

You're Wired When...
You have a 25 year mortgage on your device.

Member Quotes
I am a 58 year old woman, race cars, ski at 13,000+ feet, work out daily, have become a second-degree black-belt in Karate, run a business - no limitations.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.