St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by CFozzy on 2013-09-23 16:50. 6 comments. 296 reads
 
I posted a little while ago about getting an ICD. My surgery was on Friday and it went fabulously. It hasn't been too painful, just a little sore at times. Sleeping is the only complaint I have. It's only comfortable to sleep on my back. Wearing a bra is no problem. My hospital stay was amazing. It was like staying at a hotel, even the food was good. I appreciate all the thought and prayers! Just wanted to let y'all know that I was doing okay And I can testify that the surgery isn't bad at all! Don't be scared!

Posted by JWC on 2013-09-16 00:58. 1 comments. 522 reads
 
Post new FX ICD lead replacement with bills pouring in. Will Medtronic cover anything in 2013 patients fx or are we on our own. I can get insurance to help but will I get $$ pain and suffering $$. Will not be using a attorney. Just want thtme to be fair with us. Sounds kinda bad to ask this question but I cant afford all of this stuff. PC Private email is great if you can advise

Posted by daisy0388 on 2013-09-02 00:37. 1 comments. 487 reads
 
Hi all,

It has been a little while since I have posted but now I really don't know what to do. I had another ablation about 4 weeks ago( which was my 7th). Surgery lasted almost 8 hrs and the dr thought that he finally got everything. The reason for the surgery was my heart was over riding the pacer again at rates of 165. I did pretty good the first couple of weeks even though I felt exhausted and did not seem to bounce back very quick like I did on my other ablations.

My problems now is it seems to be coming back once again! I am having horrible palpatations and heart pounding with hr rates of 120-130, yesterday at work it got up to 154 and all I was doing was walking down the hall. I was on telemetry at the time so...


Posted by parmeterr on 2013-08-21 20:53. 4 comments. 468 reads
 
After 16 years on a dual chamber pacemaker, I am going to be upgraded to CRT-D. I have had two Medtronic pacemakers in those 16 years, a Thera and now on an Adapta. My cardiologist uses Medtronic so I was looking through their website at the different CRT-D devices and it is difficult to determine which would be the best for me and why. They list a Viva, Protecta, Concerto, or Maximo. Does anyone know why one model would be used over another? Insurance? What can one model do that another can not? Please comment. Thank you.

Richard

Posted by nogbad on 2013-08-18 07:56. 1 comments. 230 reads
 
Back in the 80's I had a Flymo Maximo lawnmower, same name as my ICD!

Posted by JAYKNEE on 2013-08-15 10:19. 1 comments. 273 reads
 
hi jayknee here thanks for your comments , i am not allowed to drive because of my condition and i ve been shocked while i was awake and in my sleep. the genetic screening found the defective gene it was discovered that my elder sister has long qt but never had any problems and my one brother has it but never had any problems either my other brother and my other sister haven t got the gene, my daughter has the gene and in her early teens she had episodes of blacking out but no episodes since she turned fifteen she is now married with two children my grandaughter is two and a half she has nt got the gene but my grandson who is ten months old has got the gene and i do worry about his future but my daughter takes it all in her stride which ma...


Posted by JAYKNEE on 2013-08-14 11:22. 2 comments. 250 reads
 
hi im jayne i ve had my icd for just over four years, its changed my life i died in my sister s kitchen spent two weeks in hospital they fitted my icd and it took me quite a long time to get used to this thing in my chest but i did . its shocked me five times in four years and it feels like being kicked in the chest by a horse and i m really tired after but it saves my life every time , i have long q t type three a genetic condition i ve had all my life but never knew it only became a problem when my husband left me after 31 years it was all the stress that triggered it . really just wanted to say if your facing having a device fitted don t worry to much you do get used to the i c d very quickly

Posted by Marie12 on 2013-08-12 13:40. 8 comments. 519 reads
 
I had a massive heart attack (100% blockage of LAD) on June 16/2013. Four days after, I had an event of VT. Rather than medication alone, a defib was recommended and I was implanted with same on July 3/13.

My question.....is it possible the defib will never shock me? Does anyone know what the average is for receiving shocks. I almost wish that one would happen so I would know what it feels like.

Another question - is it normal to feel ALL the edges of the defib? I have a sore spot with one of the corners. Will this ever go away?

Thanks to anyone who can help.

Posted by Acin on 2013-08-06 14:39. 8 comments. 278 reads
 
Hi All,

I worked in my yard over the weekend. I've had my ICD since July 16th of this year. It felt so good to be able to do yard work w/out experiencing shortness of breath. I feel as though I have so much energy and I'm constantly doing all the things that I could barely do before the ICD. I'm thankful and my family was so happy to know that I'm feeling better and stronger!

Today I feel pretty good. My ICD tends to move a bit when I first wake up in the morning and my shoulder and left arm are stiff. I continue to take my Tylenol extra strength whenever I'm uncomfortable.

I have my home monitor and the EP office finally got it all programmed and working. So things are moving along!

Posted by kokorose on 2013-08-03 22:16. 1 comments. 365 reads
 
AngrySparrow:

I just read your reply. I can believe the experience you had with your pug, Morty. My husband thought all along that my little cocker spaniel, Gypsy, had reacted to my ICD shocking me back in February. She started running like she was crazy screaming and running out the doggie door and back in the house and behind the toilet in the bathroom and we were trying to catch her and boom my defibrillator shocked me. My husband took her to the emergency vet and he could find nothing wrong with her except her heart rate was high. I had to stay home and lay on the couch that night. I had take prednisone pills that day for a cough I had plus worked out at the gym running a couple of miles and also on the elleptical trai...


Posted by edmay123 on 2013-08-03 12:27. 2 comments. 256 reads
 
I have never had a shock but it works as a pacemaker 65 per cent of the time. Has anyone ever felted small shocks because of pacing.

Posted by kokorose on 2013-08-02 23:16. 4 comments. 980 reads
 
Has anyone had their defibrillator shock you when you are running in a race. I was in a 5k last Saturday and I didn't warm up and right after the 1/2 mile, my ICD shocked me. Right before it shocked me I had stopped because I started to feel like strange. I have had my ICD one year tomorrow and it has only shocked me twice. The first time was in February when I was chasing my dog because she had something wrong with her. I got too excited and it shocked me. The dog was checked out at the emergency vet and was ok. I stayed home. I have my ICD because I have had ventricular tachycardia in Nov. 2009 and July 2012. Both times I was running in races and ended up in ER and the paddles were used on me.
I want to keep running, bu...


Posted by mikeski on 2013-07-31 19:10. 0 comments. 143 reads
 
Hi
This my 2nd time on here. Last week I was having terrible pain in my left shoulder going into arm and back. I want to thank those who followed up to my problem. Went first to Cardio Drs and all checked out ok after echo and few other heart test. No wires out of place. Primary Dr put me on 800mg on ibuprofen 3 times a day. That corrected right away, He didn't want me on it long, as I'm on other meds.Still some less pain issues in the shoulder since the pacemaker/defib was installed. I should of went to the Dr right away, instead of waiting 3 painful days. I'm Blessed it could of been something more serious. Thanks..

Posted by daisy0388 on 2013-07-29 20:33. 3 comments. 278 reads
 
Hi Everyone,

I just had my pacer check last Thursday and it showed multiple episodes of heart rates of 160 (that is where my max setting is) and also a big decrease in activity level which I didn't even know could show up on a pacer check. I am scheduled for my 7th ablation a week from today. I have had my sa node and av node ablated already but continue to have multiple issues with high heart rates and also blood pressure has started to run high. Has anyone else ever had so many issues and what is the max times that you can have an ablation? I'm also worried that this will once again not work and not sure what other options I might have. Any input would be great!

Posted by mikeski on 2013-07-24 21:45. 5 comments. 390 reads
 
what a great site. I had pacemaker /defib installed about 3wks ago. Problem last 2 days, is lots of pain left shoulder and numb like feeling in fingers somewhat. when laying down then getting up it very painful, also pain seems to go to back. can anyone relate. thanks

Posted by DMJ on 2013-07-19 14:40. 3 comments. 723 reads
 
From what I understand our Pacemakers are to aid our hearts, not cure them. I'm 100% paced due to complete heart block. I ended up with chronic systolic heart failure/dilated cardiomyopathy due to my first pacemaker. I was upgraded to biventricular ICD last Nov. I'm waiting for my last results form over phone reading. Nurse said they say some problems, follow up with doctor. My concern is that I can't seem to walk or climb stairs or do much of anything without shortness or breath, heart pain, sweating etc. Kind of like before my first PM was placed. Those of us with ICD's how are you handling end of life issues, such as a Living Will stating to turn off ICD if your heart or something else is ending your life? I'm afraid to be sho...


Posted by Beau on 2013-07-18 17:26. 1 comments. 322 reads
 
Just had a three lead defibrillator implanted. Almost immediatelyI began to have belching and hiccups non stop. the device was reprogrammed which helped fora short time but reoccurred a few hours later. On the next visit they turned the device completely off for a few minutes (2 or3). he hiccups continued. he doctor said it was not caused by the device leads. could this still be possible even after the currents turned offdorashottime?

Posted by windowguy28 on 2013-07-18 08:31. 3 comments. 385 reads
 
i have been thinking lately about the replacing of my icd. i am due to do this soon. my question is can they refuse to give you a new icd? my ejection fraction is good(45) but my icd does pace my heart at times. i am going in for a nuclear stress test next week. just hope they are preparing me for the icd replacement. my voltage is down to 2.62 volts as of june 22. seems to me they are kinda dragging their feet on this. what does everyone think? thanks--tony

Posted by Ronniecolorado on 2013-07-14 21:45. 4 comments. 538 reads
 
Good evening,

I experienced a v-tach storm on March 2nd of this year and was shocked 31 times within an hour. Also an additional 8 times in the hospital while they were "experimenting" with my device after a cardiac ablation.

Prior to that I had one shock a year earlier. I've had my CRT-D since December 9, 2009.

It appears my driving days are over. After my first shock and only shock in 2012, my cardiologist suggested that I not drive for six months. After the my lastest episode on March 2nd...my EP says that I need to make an "adult decision" about ever driving again...which I understand.

I'm just interested in hearing other's experiences with driving after an ICD shock/s...It would really h...


Posted by HKS on 2013-07-12 11:03. 13 comments. 691 reads
 
ICD has been in for over two weeks now. During the last doctor visit, I was told my ICD is working 100% of the time. That means lower battery life and my Sinus node pace is overriden by the ICD.

My question is this: Why do I need Carvedilol (beta blocker) to slow my heard down when the ICD determines the rate?

I know Carvedilol is a Beta blocker and Aplha blocker. I stoped taking 5mg of Lisiopril which is an Alpha blocker.
I tried increasing the Carvedilol dose from 3.125 to 6.25 and I got chest pains. Doctor decided to go back to 3.125. Doctors believe in Carvedilol as a miracle drug. Help would be appreciated.



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