St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by MillerKAP on 2014-03-28 12:24. 7 comments. 606 reads
 
I have 3 young kids (15,12,7) and I've been recommended to get an ICD. I hug my kids a lot and tightly, I backpack (girl scout leader) and i"m small boned and thin on top. Should I consider asking my EP to implant the ICD in my pectoral muscle? I'm concerned it will stick out and get bumped a lot during this stage of my life. Does anyone have an opinion either way? I would love to get any advice I can on this.
Thank you!
Karen

Posted by Sylvia1 on 2014-03-27 19:05. 3 comments. 262 reads
 
I received my second shock from ICD this week and they talked about changing the settings.Had 1 VT 187bpm treated with x3 bursts of ATP,x3 RAMP.All ATP failed so they want to increase aggressiveness of ATP regime as failed on VT.Struggling to understand what all this means.EP explained that if they changed setting would probably get more shocks but as I get absolutely no warning I am to be shocked (luckily I have been laying down resting when had shock),if I was standing I could injure myself as would be knocked to my feet.Would appreciate any input on this.tks.

Posted by mg7 on 2014-03-27 05:28. 4 comments. 403 reads
 
This is urgent. Please help. My ep doctor says I need to have an AV node ablation done asap. It's schedule for April 11, 2014...Has anyone had this procedure done? What's the long term effect? I am a 65yo female with approx. 4 yr history CHF and Afib. I have had 3 cardioversions each lasted only 1 yr. Several antiarrhythmic drugs have failed to keep me in normal sinus rythum. I now have an AICD implanted because of non sustained vt. . I only have wires in both ventricles. So far I have only gotten shocked 1x. Doctor said the shock cause was afib with rvr, possibly due to a low potassium level and not taking the morning dose of metoprolol (150mg). My activity level is poor. Sometimes walking from the bed to the bathroom wears me out. Sin...


Posted by MillerKAP on 2014-03-25 12:18. 10 comments. 428 reads
 
I am an active 47 year mom of 3 young kids and I've been recommended to get an ICD. I have started to look at support groups like this one for information regarding what it's like to have and ICD. It's been scary in that most postings seem to convey all the horrible, uncomfortable aspects of having an ICD. Things such as unnecessary shocks, shock storms, burning pain at implantation sight. Is there anyone out there who is active and doesn't even know they have an ICD anymore? I'm so worried my lifestyle will go downhill once the ICD is implanted as I really love to exercise. Can anyone attest that it doesn't have to be this way? Thank you so much for any feedback.

Posted by georgeazarmitchell on 2014-03-24 15:14. 2 comments. 247 reads
 
HAS ANYONE EXPIENCED CHEST MUSCLE TWITCHES AFTER A WEEK OR SO AFTER HAVING THEIE ICD DEVICE INSTALOLED ?

Posted by Sylvia1 on 2014-03-16 20:21. 4 comments. 284 reads
 
Do lifts/elevators that operate by magnets affect ICD's - does anyone know?tks

Posted by Alan88 on 2014-03-10 23:09. 5 comments. 319 reads
 
Hello: I had a pacemaker/defibrillator implant in September. Lately I've had some pain in the area. Hard to describe - anyone else have pain 6 months after surgery? Also - I've been having some mood swings. I have a cardiologist appointment next week, so I guess I'll ask him, but just curious what others have experienced. Thanks -

Posted by normsky on 2014-03-05 12:03. 3 comments. 228 reads
 
Hello

I had an ICD placed 12-31-2014, When I sleep on my right hand side I feel my device move in place as I move upward, as anyone had this happen before? It's the second time it happened. Is it normal or should I call my doctor? I don't feel pain or get any shocks.

Posted by mareannrobles on 2014-03-02 02:50. 5 comments. 376 reads
 
I had pacemaker surgery a mounth ago, and iam still having upper left shoulder pain,sometimes more thig other times, what can I do to get read of the pain. And will I always have this problem.

Posted by nivla50 on 2014-03-01 18:55. 8 comments. 385 reads
 
I am new here with a diagnosis of Dilated Cardiomyopathy , LBBB and LV enlargement with an EF of 20. The doctors believe it was Viral in its origin. I am on multiple medications: I would love to hear back from anyone that has been in my shoes previously. I am 50 year old male.
I believe medications will help but the doctor says most likely I will need some ICD- my research tells me a CRT/ICD is tge way to go if thr EF doesn't get passed 35.
Anyone has had one implanted I would love to hear about your progress and how you are feeling. Thank you for any and all support.

Posted by daisy0388 on 2014-02-28 21:47. 0 comments. 151 reads
 
Hi all!

I just have a few questions that are a little abnormal and I can't find much online. After having 7 ablations to sinus and av node I'm still having problems with the sinus node. I recently was sent to a cardiovascular surgeon for a possible maze procedure and he talked about removing the sinus node completely. He talked a little about the surgery but not a lot other than it hasn't been done in years but is possible and said that it would be open heart. The problem is when I am atrial sensing my chest pounds, nauseated, chest pressure, and dizziness. When I am pacing in both nodes I have no symptoms. They have tried to kill the sinus node but keeps returning. Has anyone heard of anything like this? The drs are stumpted an...


Posted by daisy0388 on 2014-02-28 21:47. 0 comments. 100 reads
 
Hi all!

I just have a few questions that are a little abnormal and I can't find much online. After having 7 ablations to sinus and av node I'm still having problems with the sinus node. I recently was sent to a cardiovascular surgeon for a possible maze procedure and he talked about removing the sinus node completely. He talked a little about the surgery but not a lot other than it hasn't been done in years but is possible and said that it would be open heart. The problem is when I am atrial sensing my chest pounds, nauseated, chest pressure, and dizziness. When I am pacing in both nodes I have no symptoms. They have tried to kill the sinus node but keeps returning. Has anyone heard of anything like this? The drs are stumpted an...


Posted by windflight on 2014-02-28 12:04. 2 comments. 280 reads
 
I received an ICD on 2/28/08, my device is a Sorin Dual (ICD and Pacemaker . I've received 7 kicks or shocks since it's implantation; all on point, or each time I would have gone into Cardiac arrest or some other trauma, that may have caused death. false shocks are rare I was told, each time you are shocked mark your calender with a heart..your life was saved. there are no warnings, which is why most of us are considered disabled. Do not fear, relax, getting upset only causes anxiety, laugh..a lot enjoy your life..you will live longer than you imagine, exercise, take care of yourselves!! Large magnets an such, would have to lay on your chest, they would have to be very large, they would shut the device off, it would depend on how severely ...


Posted by denise on 2014-02-27 18:29. 3 comments. 320 reads
 
My Medtronic device delivered a shock recently. Ambulance came, went to ER, following up with dr, but so far no one has told me why it delivered the shock. How do they determine whether it was a false shock or not? I am very anxious about this.

Posted by Tcoombs81 on 2014-02-25 02:43. 1 comments. 174 reads
 
Does anyone know of any department or agency who has hired anyone with an ICD?

Posted by 1960gbarnes on 2014-02-19 14:11. 3 comments. 271 reads
 
I just had a bad experience. Felt like I was beening shocked everytime my heart beat... Accross my chest, stomach and neck area... Could this be possible? Dr said the readings show the de-fib did not go off. Hell I know a shock when I feel it... It lasted for 1 1/2 to 2 hours... Before ending up back in the ER...

Glen

Posted by Wimpie on 2014-02-19 06:47. 5 comments. 232 reads
 
Hi all
When lying down i can feel every pulse of the unit.
It is as if the lead touches my stomach.The only way to get to sleep is on my left side. Is this normal and has anyone else experienced the same?

Posted by fjj17332 on 2014-02-15 17:14. 8 comments. 484 reads
 
I understand that a defib/pacemaker is no help to a cardiomyopathy individual. I been a patient for 22 years. my EF is 27%. I avoid the extremes and doing pretty good. cardiologist recommends defib/pace. any help would be appreciated. Thanks early. Frank

Posted by guitarman on 2014-02-14 22:54. 5 comments. 466 reads
 
Last Wednesday, I started having cold symptoms, coughing and sniffles but the cough was magnified tenfold by Ramipril and an underlying chronic cough (not yet diagnosed). The coughing fits were so intense that I got dizzy and almost vomited when I had a coughing fit. I attributed the dizzyness and nausea to the cold but last Friday on February 7th, I got my first shock 6 weeks after my ICD was installed. I went to the emergency room and had another coughing fit and I went into a very brief v tach.

I was admitted for observation and the icd interogation revealed that the shock was appropriate and that I was 'paced' during my brief ER v tach. They replaced Ramipril with Losartan and started me on Sotolol. My cold is winding down ...


Posted by Music on 2014-02-13 11:59. 2 comments. 201 reads
 
Well, hubby had his 6 mo. checkup yesterday & the docs are so pleased....they said he's got the "Ferrari" of all defibrillators (it's a St. Jude thing), and with any luck (i.e. no shocks) the batter should last 5 years. We go to the cardiologist/electrophysiologist/internist every three months, and so far he's doing ok. Still needs to get down another 35 lbs, though. I think he's doing great for a guy (a musician, yet) who will not eat a veggie, and only does his walking in the evening, and is a basic couch potato. 53 lbs down so far. Nothing can be done about the neuropathy he's got due to the diabetes 2 he caused himself,, but he's off insulin now due to the weight loss, and the balance issues he'll just havve to learn to live with....




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