St. Jude Medical Pacemakers & ICDs

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Posted by rdhdiva2010 on 2014-05-29 02:44. 2 comments. 418 reads
 
SORRY IF THIS IS A DUPLICATE MESSAGE - JUST REALIZED DIFFERENT FORUMS AVAILABLE :)
Hi. I just found this site! Most of my support has come from Facebook cardiomyopathy and ICD groups and has been great. I'm always eager to learn more about what others are experiencing and to provide support to my "online friends" around the globe. A quick synopsis of my condition and treatment then a question about a procedure I had done today... I am 35 year old Caucasian female, 5'3", 128 pounds, with no coronary artery disease. DX July 2013 with cardiomyopathy, EF 30%, LBBB, and sinus tachycardia. For the past 10 or so years my resting heart rate has been about 104-110 bpm. We tried treatment with meds only and in Dec 2013 I had a Medtronic Viva X...


Posted by kirkmanmj on 2014-05-26 19:40. 3 comments. 363 reads
 
Hello All --

I had a Boston Scientific ICD (pace maker and defib combo) installed in February 2014.

Background: 61.......athletic.......ran 1/2 marathon January 2014....lift weight 3 times a week.....run 5k 3 times a week...

2 years ago started having strange heart palpitations but they always came and went quickly....did all the usual heart tests.... nothing abnormal....

October 2012 heart went into ventricular tachycardia....had to go to hospital and got shocked back into rhythm....doctor started me on verapamil

November 2012...verapamil didn't work....VT again....hospital....shock....doctor performed an ablation......on the table for 5 hours heart would not act up....beat as normal...


Posted by flutetooter on 2014-05-24 10:09. 0 comments. 189 reads
 
I have only a pacemaker but noticed this ad in the red lined box at the middle top of the message pages about a new study by Boston Scientific. This is NOT a testimonial from me, only an interest because the doctor featured in the video when clicking on that site is the director of the heart rhythm dept. at the University of Chicago and my doctor for the last three years. He installed my pacemaker on Feb. 4, 2014 and I am part of the Boston Scientific Samurai study for MRI compatible pacemakers. I have already passed my MRI compatibility test and am now on their monitor box and checkups for the next 5 years. I find this all very interesting.

Posted by Lyn4477 on 2014-05-23 01:15. 2 comments. 404 reads
 
Does anyone know if having an ICD for low ejection fraction qualifies for Social Security Disability?

Posted by GRACE01 on 2014-05-19 23:25. 1 comments. 297 reads
 
Can anyone advise I got my ICD fitted on 2/20/14 and I always have the above feelings.


Posted by pancres on 2014-05-18 13:27. 2 comments. 191 reads
 
Have had ICD St Jude in since 2011. Ablation six months ago. Felt great eventually.I am now getting Twitchin of my chest where device is.Almost like an explosion in my chest!!!. Has happened a couple of times at first I thought device had gone off. Has anyone else had this experience. I do have Honiton moniter by my bed . I presume nothing has shown up.
How does one know if battery is needing attention?
Hope to get a reply. Pancres.

Posted by Hugh228 on 2014-05-14 16:29. 7 comments. 579 reads
 
I have just finished reading "A nation forsaken" by Michael Maloof. The gist of the book is that its not if but when an EMP attack will come. On page 65, he states "While the actual pulse of electrons or microwaves has little or no effect on the human body, electronic circuitry installed inside the body does not fare well when subjected to high energy microwaves. The devices could heat up very quickly, turning surrounding tissue and blood into steam, searing the body at the site of the device and doing irreparable damage to the user." To his discredit, he cites no reference for the above statement. Still, I would like to hear what you think before I run out to have my ICD removed. Hugh228

Posted by rocko on 2014-05-14 14:25. 1 comments. 258 reads
 
I can not find much on this problem. I know you can now apply for a waiver but that is only half the problem. I now have a waiver for vision and can not find out if you are allowed two waivers at the same time. I know in the past it wasn't possible, but the FMCSA are changing regulations pertaining to this, and wondering if anybody has any answers.

Posted by martin1995 on 2014-05-14 14:18. 2 comments. 194 reads
 
I have not been able to use my Merlin transmitter from
Barbados and need to know how to use the internet to relay the readings. Anyone have any suggestions?

Zapper had a post on 2/21/14 with some ideas for an inexpensive hookup with a broadband kit using off the shelf router and a USB adapter. He was going to the EU for work and I wonder if the setup worked in Germany.

Any communication on this will be appreciated before I invest in a router and adapter.

Martin1995


Update 8/23/2014
Still looking for the success of using locally purchased electronic leads and router to send transmissions via Merlin. So far I have to return to Florida from the Caribbean to be able...


Posted by farhan on 2014-05-13 08:57. 6 comments. 434 reads
 
Dear Forum,

I am 43 years old male. I had a near death experience three years ago when I was taken to hospital while I was facing a massive heart attack. I was lucky and survived that terrible attack. I was treated with a stent into the main artery. Naturaly, some part of my heart got damaged due to this incident.

Later on (2 months post incident), my echo test results were coming around 35% which means my heart was not fully functional. (For a normal healthy person, the echo results start from 55% onwards).

Couple of months back, my doctor advised me another echo test and latest results showed 25% percent of heart functioning. With these results, my doctor advised to me to go for a PM and this way I can ...


Posted by Lyn4477 on 2014-05-11 22:44. 4 comments. 376 reads
 
Hi. I am a newbie and wll probably be asking a lot of questions.
Background---54 yrs old. Had open heart with 2 bypasses and mitral valve repaired in January of this yr. just had an ICD implanted bout 1.5 weeks ago. Have low ejection fraction 20.
Please give me some helpful advise. Right now it seems so uncomfortable and seems like I have a deep pain.
Will all this go away as I learn to live with this? Will I ever be able to sleep on my stomach? Will there ever come a day when having this device doesn't seem so uncomfortable? Thanks in advance for any helpful advice😊

Posted by HollyGuy on 2014-05-09 01:22. 4 comments. 196 reads
 
Hello everyone! I am new here. I have something called Brugada's syndrome. I was diagnosed with it last august and then 6 days later I had an ICD put in. My heart had stopped a total of 3 times before the ICD was put in. I am grateful to be alive and am happy. I have a lot of anxiety over this ICD, though. I'm happy there are things like this though to talk to others with the same issue. Glad to be a part of this group!

Posted by Marty on 2014-05-08 14:59. 3 comments. 458 reads
 
Hello, is there anyone else out there who's received the Medtronic Viva XT CRT-D? This is my fifth device, 2nd CRT-D, and my first "lead revision."

The lead revision was necessary because that tricky LV lead was not previously placed in an optimal spot, due to vessels being too small to allow the cath tip down into the vessel as far as they wanted. The result was that it zapped the battery at only two years because it took more energy to capture that left ventricle.

I am a HUGE FAN of Medtronic, and I credit the CRT-D with saving my life, after losing both my sister and brother to dilated cardiomyopathy way before they should have died. I'm 53 now, and have managed to not only survive heart failure, but it's now been ...


Posted by Music on 2014-05-07 14:57. 10 comments. 322 reads
 
It's been 10 mos. since my husband's cardiac arrest & subsequent bi-valve defibrillator was inserted. He's fallen 5 times since then, as his balance is not what it was. So far no problems, but what if he lands on the unit? Will it dislodge it or hurt it? I'm worried he'll fall again when I'm not home. Thanks!

Posted by sll0714 on 2014-05-06 15:57. 3 comments. 282 reads
 
I have had my ICD for a little over 5 years. At my interrogation last week, I was told the battery is at 2.98. At 2.60 it will need to be changed. Does anyone have any idea of how long this might be. The EP had no idea, just guesses. I pace minimally and I have never been shocked. Thank you for your help.

Posted by billvan on 2014-05-01 19:03. 4 comments. 246 reads
 
I had a St Jude ICD implanted in 2009. Lately I have been experiencing intermittent episodes of a very irregular pulse rate in the low 40's Could this mean the unit is not working properly?

Posted by Rogue427 on 2014-04-23 11:10. 5 comments. 308 reads
 
Anyone with a ST. Jude's ICD use a chain saw? I called the tech line and they are not sure. Thanks.

Posted by Jay4 on 2014-04-16 21:28. 13 comments. 478 reads
 
Question to all of you experts out there: I am getting out of the Military and losing my life insurance policy. I went to USAA today and they won insure me due to my ICD, the military's version of our current life insurance policy balloons to 1800 a month at 75 for 400K of term. I was wondering, what options do we have in regards to life insurance for people with an ICD? A recommendations on companies?
J

Posted by adairwic on 2014-04-16 20:49. 7 comments. 359 reads
 
Hi again this is Carolann, been gone again for a while not feeling very good, one up date my low blood oxygen problem is all heart related, and I am still throwing pvc's all the time, also I will be put in the hostipal this next Wednsday, to have a medication change done, never had this done before, update also I had stress test, it was very abnormarl, had heart cath done, 3 weeks ago this Thursday, no blockages and no plague of any kind, Have any of you folks had a hositpal stay for what my heart dr. called medication change? I have be kept there for over 24 hrs. would anyone know what is involve in this.? again I have ICD/CRT-D, the last 15 months my heart has gotten very very weak, also I not sure I have share this, my heart doctor...


Posted by Glyn on 2014-04-13 14:25. 2 comments. 224 reads
 
Hi. Just had a wisdom tooth out, give me PCI procedures - 5 stents total and a Medtronic CRT-D anyday! Due for 6 month check soon, all going well. At 62 and still working that's OK with me!

Looking back it is surprising how quickly one adapts to having a PM as a friend. At 6 months According to the literature my heart will have positively remodelled about as much as it will, though so far my recovery from a serious anterior MI 7 years ago still continues. I was told I would not be able to fell walk again and hills would always be a problem. Now fells ok though have to get breath on steep hills, no problem walking 15 miles and I can run a decent distance again.

For the Uk members if there is anyone interested in f...




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