St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by Acin on 2013-07-08 14:50. 9 comments. 522 reads
 
Hi All,

Do any of you monitor your pacemakers/ICD's from home? How does this work? Does the insurance company pay for the equipment? My doctor mentioned that at my f/u appointment, they would talk to me about home monitoring. My ICD surgery is scheduled for next Tuesday. Also, my cadio also mentioned that I might need cardia Rehab. What is that like? Can anyone speak to that? Thanks!

Posted by anniesu on 2013-07-07 01:29. 4 comments. 280 reads
 
I have a question..I have Boston Scientific ICD....Have had it for about 1 1/2 years...my doctor put me on digoxin and troprol xl...Im haveing bad headaches on one side of my head and sinus trouble...Dripping nose and lots of sneezes...This has been going on for months...The Dr says it has nothing to do with my meds but I seem to be reading online that it can cause headache and sinus trouble...Also it says you shouldnt take digoxin and troprol xl together not even one in the morning and one at night ..It says they can go against each other..But the Dr says I have to take them...as my heart muscle is not to good and i had a ablation for WPW before the ICD so I shouldnt have to take the troprol for anything I wouldnt think..my question is ...


Posted by Cyril on 2013-07-05 17:45. 3 comments. 375 reads
 
Hi Everyone,

I'm Cyril from the UK and have just joined the forum.

Until March 5th 2010 I considered myself a very healthy and fit 62 year old. That day, whilst on my way to a school friend's funeral (he died of a heart attack) I blacked out whilst driving at 75mph on the motorway not far from Bristol. I was fortunate, and survived uninjured but was taken to hospital by a friend where I was diagnosed with Brugada Syndrome and fitted with an ICD.

When I came out of hospital I wrote a piece about my experience, with the heading "It can happen to anyone, anywhere, at anytime!" and used it to raise money during 'Heart Rhythm Week'; an awareness week run by the Arrhythmia Alliance in the UK - enough money was ...


Posted by daisy0388 on 2013-07-04 19:11. 0 comments. 235 reads
 
Hi everyone, it has been a little while since I have posted. I have been trying to figure out things. My sinus node or the nerves on the outside of the heart has came back causing me multiple issues like more heart rates of 130 so they are going to do a sinus node ablation aug 5th. I thought I would do a little research on my own and had all my records faxed to the mayo to see if they thought they could help me if this ablation didn't work. The EP dr's response was he thinks this is being caused by my autonomic system and that their may not be a lot that can help me. I have also started to have more problems with blood pressure and sometimes when I go from outside when its warm out to inside to air condition it makes my heart rate go high...


Posted by Acin on 2013-07-03 11:32. 7 comments. 292 reads
 
Morning All,

I'm counting down. It will be 8 more days until I get my ICD implated. Still a bit anxious....just want to get it done and over with so that I don't have to think about it anymore. I'm trying to prepare myself...I'm not sure how I will put on a blouse or top since you can't lift your arm high enough. I suppose I'll figure it out. I must say that I'm so thankful to have found this site. It has given me a lot reassurance, courage and strength. Thanks to you all.

Posted by windowguy28 on 2013-06-23 13:21. 17 comments. 640 reads
 
after 6 years on my icd they now tell me i have to have a stress test. seems to me to be a little late. i know i wont do well on it and seems unneccassary to me. what do you all think?

Posted by Acin on 2013-06-21 12:12. 15 comments. 429 reads
 
Hello,

I have been diagnosed with dilated cardiomyopathy and learned on Wednesday that I need to have an ICD implated. I am waiting for the surgery coord to call me so that I can schedule the procedure. Can anyone tell me if you are put to sleep for the procedure? Also, I'm taking lots of medicines for my condition and I'm wondering will I still have to take the meds with and ICD? Thank you for your reply!

Posted by badfinger1 on 2013-06-19 19:21. 3 comments. 222 reads
 
I am on a list of 4 to 6 weeks & then doc said he will implant a pacemaker- defibulator. I had a massive heart attack & quad bypass sergury in FEB 2013. Trying to make up my mind & can use advice, thanks .

Posted by daisy0388 on 2013-06-03 21:29. 0 comments. 254 reads
 
Ok as if things with the heart are not complicated enough, I really need some help with this one. In april of this year had complete av node ablation and last year had sinus node ablated with only 5% of sinus node working. The past month I have had issues and when I went to the dr today he said that my atrial pacing was down to 74%.

Well then he had decided to lower my from 70 to 50 so as he puts it "we can really see what the heart is doing". Let me just say I'm NOT liking it. For one I feel HORRIBLE but to top it off when I'm hooked up the monitor I am not pacing at all..not in sinus node or av node! I also acutally 2 episodes today of juntional tachycardia which was the reason I had the av node ablation in the first place.

Posted by jaxgene on 2013-05-30 13:12. 4 comments. 525 reads
 
I have had my ICD for five years now, and just last week I had my first experience with my device. The first shock felt almost like a shock wave hit me from behind. I went to the ground and realized fairly quickly what had happened. Although I felt pretty well after the first shock, my device shocked me an additional 3 times. I was taken to the hospital and kept overnight for tests the following day. Apparently the device arrested racing in my left ventricle. That is what it was put in place to do. My concern is that it shocked me 4 times. I am eager to hear if anyone else has receive multiple appropriate shocks and what their experience has been with the aftermath. I have a follow-up appointment with my cardiologist next week, but I would...


Posted by Nicole33 on 2013-05-29 19:08. 2 comments. 261 reads
 
Hello. I have had this unnerving thuds in my chest off and on for at least a month now. They are not painful and when I check my blood pressure/heart rate everything was normal. No irregular heartbeat detected or anything. I finally called my EP and they said I needed to come in so they can change the parameters of my ICD settings (just had it replaced March 11). Has anyone experienced this? The nurse explained that it was some kind of nerve stimulation that was causing it and they need to try to get it to do it in order to change things.

Nicole33

Posted by daisy0388 on 2013-05-27 16:13. 1 comments. 364 reads
 
Hi all,

I just had a few questions..for anyone who has not read my posts before my sa and av node have been ablated. I recently had a stress done last week and it showed that I am at times having some activity from my own sinus node and not the pacemaker. This puzzled the dr cause of last month when I had my last ablation it was not working at all and my atrail pacing is not 80% instead of the 95% it was 3 weeks ago.

What is really bothering now is after seeing myself on the monitor at work (I work in a hospital and they off and on will put me on the monitor just to see what my heart is doing while i'm working) on friday it showed that as long as I'm not up moving or walking I am pacing 100% in both chambers but when...


Posted by DON4908 on 2013-05-26 15:16. 3 comments. 470 reads
 
Hi Everyone, I am a 61 year old male that had total cardiac arrest back in 2010. Had a pacemaker/icd implanted. Since, everything seemed to be going great, I was only pacing at 10% and have not been shocked to this point. My EF went to almost 50%. In the past few months I have felt tried and a little more short of breath.My last echo showed my EF had dropped to 30%. My doctor wants to go back and put in a bi-ventricular pacemaker. What can I expect from this? I guess I am more than a little concerned that my EF may continue to fall and this may just make me feel a little better until the end. If anyone has had anything like this I would love to hear from you. Thanks.

Posted by pacing94 on 2013-05-24 00:25. 9 comments. 510 reads
 
Brand new here. I'm 57, male, have a wife and 6 kids. 18 years ago I contracted endocarditis (sp) from some dental work. I had an aortic valve implant and 10 days later a pacemaker implant.
My pacemakers seems to last about 6 years. 2nd one in 2000, 3rd one is 2006.

I now have been told by cardiologist I need to upgrade to Bi-Vent AICD because my EF is at 20%. I'm very nervous and don't know what to expect on how I will adjust to the upgraded features (being shocked). Their literature is very unsettling, talks about shocks that feel like kicks, I could randomly feel dizzy.

I don't want shocks and symptoms of dizziness. I ride motorcycles, surf, very active at work. Doctor can't predict how the pacemaker will fun...


Posted by MWilson on 2013-05-23 16:26. 6 comments. 537 reads
 
Hello everyone!

I read a thread earlier this week about a member looking to get a tattoo over the ICD area and i figured i would ask my own specific question. Im 22 Years old, athletic build, and not 100% reliant on my PM. In fact, my main lead detached while playing hockey when i was 18 (i received permission to play puck from my cardiologist) and i didnt know it happened until i went for my monthly check up! I recently graduated from a 4 year school and i asked my parents if my grad gift could be a tattoo. I explained i wanted it to be religious and involve most of my upper chest (to cover the icd scar which has keloid) They didnt have a problem as long as i could convince them it wouldnt cause problems down the road.


Posted by daisy0388 on 2013-05-18 13:10. 1 comments. 258 reads
 
I went back to my dr yesterday for a follow up appt for what we thought was percarditis and come to find out my dr thinks that my IST is trying to come back and that I have a waundring pacemaker up in my sinus node. 2 weeks ago when I went to him I was having symtoms of chest pain, back pain, shortness of breath and palpations and he thought for sure it was pericarditis so he put me on steroids with did not help. I have went from 95% to 85% atrial pacing in just 2 weeks ( av node still 100% paced). Yesterday on the monitor he noticed that with very little movement my heart rate shot up quickly. If i'm just sitting in a chair i'm pacing at 70 if I just laugh a little it shoots up to 100 which is why he thinks the IST is trying to reappear....


Posted by SteveAustin on 2013-05-14 22:23. 1 comments. 340 reads
 
Not a thorough scientific study but some food for thought.

Apparently iPads and SmartCovers MIGHT put ICDs into magenet mode under some circumstances.

Impressivecwork for a 14 year old!

http://www.webmd.com/heart-disease/news/20130509/ipads-could-affect-implanted-heart-devices-early-study-finds?ecd=wnl_hrt_051413&ctr=wnl-hrt-051413_ld-stry_2&mb=


Posted by daisy0388 on 2013-05-13 11:02. 10 comments. 844 reads
 
Hi all,

I was wondering if anyone on here has has a pocket revision for their pacemaker and what kind of recovery it takes. My pacemaker is about to poke through my skin, you can see lead wires and whenever something just grazes arcoss my skin it feels like a razor blade going over it. The plan is to have it put under the pectoral muscle. I have my consult with the surgeon next monday so I will be able to ask questions but I was just trying to get a little information before I go. I am pacemaker dependent now so my EP dr told me that they will have to hook up a temp PM while they work on the other one and also said that its not just a quick surgery and we also have to hope for no infection. I am just curious as to how other peop...


Posted by drogrs8455 on 2013-05-07 22:09. 1 comments. 342 reads
 
Hi All: Nice to have found this web site. My heart issues begain in 2000 with two heart attacks, one causing extensive damage to my heart and one resolved with a stent. My echos a while after the heart attacks was about 45EF. Last October my EP did another echo and found my EF had dropped to between 10-15. I was in shock. Then in late December I wound up in the local hospital for an ecoli infected gall bladder where they did a cath which showed I had my last good artery blocked at 85-90%. At this point my EP recommended I go to the University of WA heart clinc.

At UW, they did all their tests and came up with 17EF but I appeared fairly strong. They put in my PM/ICD on 4/22 which all went well. I was a little tender aro...


Posted by Bevof NC on 2013-05-06 12:27. 5 comments. 284 reads
 
Hi ya'all... just want to ask those of you with all the experiences..Does it matter that my ICD has fallen a few cm.s along 'till it is now at the end of the wire? I'm sure that some of you have been there and done that. I do see tech next week. Thanks!! in advance. I really value your opinions. Bev of NC



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