Hi, I just wanted to share my experience with you. I have had my ICD for 8 years now. I had a heart attack and open heart bypass surgery when I was 37. A few months after the surgery I had my pacemaker put in. It was great until March of 2011 when I had my first shock. I had gone back to school for a certification, problems with my marriage and just a lot of stress in my life. While I was working with a client I got my first ever shock. It was like being hit in the chest with a baseball going 90 miles an hour. I recovered quickly after it happened. Went to my doctor and they adjusted my blood pressure medicine and I was fine. In January 2012 I was told that I would need to have my battery replaced in my ICD within 3-6 months, The technicia...

 

hi everyone i hope you can be of some help my icd keeps going off every day at 10.14 i spoke to my doctor and he said it is too much fluid i send the monitor signals via fax and he says its all good but i beg to differ has anyone had this problem, it was fitted in june 2012 also sometimes it becomes itchy. kind regards all.

 

Well....I am now on the heart transplant list. I am on list 2. Little scared, but also just hopefull.

 

Hi! I am getting a different pacemaker put in next week, Right now I have a single lead and they are going to put in a double lead so in jan they can go in and ablate my av node. I was at drs office yesterday and my ecg looked horrible (bad enough that they did 2) and I was in junctional tachycardia rhythm. I have tried lots of meds and they did not work. They want to put in a new pacemaker before they ablate so they can make sure the leads are where they need to be. My question is what will my recovery time be on just getting the new pacemaker? I was thinking that it would probably be just like the first time but was wondering if I will be just as sore. Any imput would me much appreciated!

 

I have posted on here on and off about problem i have had reg my pacemaker and heart. I had my pacemaker inserted June 2011, and since than issue after issue and when i bring them up to the Dr they look at me like i have 3 heads.. First i started to get vibrations like a cell phone if its on vibrate, than i was feeling strong electric shocks. Now the last couple weeks on and off i have had really bad burning where my pacemaker is. It gets very hot and now finally my husband can back me up on this as when this happens my skin turns bright red. I left a message last week for my heart Dr regarding this and of course my call back...
Today i tried to transmit my heart info as i do every couple months ( i have a medtronics) and it would no...

 

Hey everyone i got my ICD implanted about 2 and a half weeks ago and after a few days on having it in it felt like i had a frozen left shoulder and really felt the urge to stretch it really high. Also, it is really quite sore on this one area on the back of my left shoulder when it's touched, it used to really hurt when i lay down.

Has anyone else experienced this and what did they do to relieve it? Thanks

 

Hello Everyone! While I can understand why I need to have an ICD inserted, I find myself in a state of fear, resolve, and disappointment. When I think about the gravity of it all, it makes me so sad. How do I move forward? Thanks in advance.V.

 

I have posted on here off and on since I got my pacemaker after 3 ablations. I found out almost 2 months ago that I have accelerated junctional rhythm. It didn't bother me too much at first the the last 6 weeks have been really rough with the palpatations and dizziness. Almost 2 weeks ago my dr put me on multaq, I have been trying to give it time to work but I continue to feel worse every day. Its getting bad enough that whenever I am sitting or laying down and get up my heart starts racing. Yesterday at work it was beating so hard you could see my pulse moving in my neck and it was more than a little bit. After it calmed down some I was completely wiped out and was told I was white as a ghost, that I had no color in my face whats so ever....

 

Hello my dad just got the Icd two days ago and has felt really crummy. Is that normal. He has had a lot of pain and is just not feeling good all around. And feels his heartbeat and it feels like it's pounding really fast.

 

Hello my dad just got the Icd two days ago and has felt really crummy. Is that normal. He has had a lot of pain and is just not feeling good all around. And feels his heartbeat and it feels like it's pounding really fast.

 

Hi all,

I went back to my ep dr yesterday and once again my pacing percent has went down to 55% which is 3% lower than 2 weeks ago. The accelerated junctional rhythm is continuing to get worse, has became even more active as now it is waking me up in the middle of the night. My dr explained to me that my first 2 ablations they knocked out areas in my sinus node due to IST, after those didn't work I went in for my 3rd ablation which they knocked out an area a little further down from the sinus node, he explained this as in area between the sinus and av node in which I ended up with a single lead pacemaker. Now with this new rhythm its over riding my pacemaker, I have been taking beta blockers trying to suppress it but not working...

 

Hello all:

I'm new to the ICD world (implanted 3 days ago).

I have a new ICD which is a combination enhanced pacemaker and defibrillator due to VT and a partially successful ablation.

My EP assures me that with the new pacemaker (more enhanced than my previous one), the partially successful ablation and anti-arrhythmia medication I should be able to conduct a normal life with basically no restrictions.

Further, that I should view the defibrillator as a safety net, which more than likely won't have to shock me.

In spite of this reassurance, I'm still quite anxious over the prospect of being shocked by this device.

I would appreciate feedback from those of you who are experien...

 

I have been taking my meds for junctional rhythm for almost 2 weeks and not getting any better. My rhythm seems to be getting worse, I was dizzy from friday night til this morning and then this morning I was having the palpatations for 10 minutes straight at a time. This weeks was really rough for me at work, on friday they did an ekg on me at work (I work in a hospital), I was not having palpatations or dizziness at the time but the ekg showed accelerated junctional rhythm and rightward axis. Does anyone know what the rightward axis means and one of the nurses said it looked like I had a little ischemia, I asked her what that meant and she said maybe a little damage to the heart. Could that be from the ablations that I have had this year?...

 

How long does it take to get strength back after getting pacemaker and experienceing AFIB attacks Its been 6 weeks now and I am still weak and not myself. Cant go back to work yet not enough strength. Can someone tell me when. I am on blood thinners, no medications like antiarrithymtic drugs I Ihave alot of skipping the beat and fluttering but when I go back to doc on November 15 I hope he dont put me back on Sotalol and just lets me see how I get along on my own. Does anyone just have a pcemaker and NO MEDS but blood thinners

Penny

 

I was just curious what people's heart rate is while walking. Mine seems to go anywhere from the high 90's to 100-110 area.
I also notice my heart rate in the low 100s after I shower.
Is this normal for most of you with ventricular tachycardia?

 

My medication was recently raised from 25 mg twice a day to 37.5 mg twice a day because of a recent shock. When I take the higher dose I feel a lot more dizzy while walking and feel almost out of body.
Has anyone else had this happen?
I went back to my normal dose for a while and felt a little better but still dizzy, then had an a-fib episode.
I'm in the process of trying to contact my doctor but it's really hard to get an appointment with him.
I'm sick of not being able to function. If I walk more than 30 or 40 feet I feel totally off balance and sometimes out of breath.

 

i had a icd with a defib placed last wed i have no energy all i do is sleep i walk from the room to the kitchen i am out of breath. is this normal i go to my Dr on wed,

 

Hi all,

First of all I want so send out a special thanks to donr and Janey L, they have helped me so much trying to explain this new junctional arrythemia that I have. After alot of thinking and research I'm going to talk to my dr about doing the av node ablation and getting a duel chamber PM instead of the single atrium one I have now. The dr put me on meds which so far is not helping, if fact I seem to be having more episodes now. I can tell when I have the episodes cause my heart starts beating hard with palpatations then it makes me dizzy which from what I understand is when my av node is trying to overide my PM. My pacing percent has went from 70% down to 58% in just 3 weeks. My dr appt isn't until nov 19th so it should be...

 

Has anyone heard of a icd life vest. I have a icd and have never heard of it before. A friend of mine also has icd, but now the drs. are talking about a life vest because he is in the hospital with a very high fever. Any thoughts?
Mongee

 

Hi I have had my ICD. Pacemaker/defibulator since 2006, and a new one put in in January 2012 due to low battery. We I never have had any problems, i hsveb een sick(flu?) since wednesday afternoon, and on thursday i was texting to my son and i felt vibrations, I thought it was from the phone, happened twice. it was more in the center of my stomach under ribs. Then last nite it happened again, only this time it was right at the site where the icd is put in.
I feel fine no chest pains or anything, has this happened to anyone before and what do u think i should do??

Thanks
PattiAnn06