St. Jude Medical Pacemakers & ICDs

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Messages in ICDs Forum



Posted by irish_jessi on 2015-04-23 09:50. 11 comments. 996 reads
 
Only a few times have a gotten the really big shocks from my ICD, but I get smaller corrective shocks a lot. They are very uncomfortable. Feels like somebody is hitting me in the ribs from the inside and I can't breath.

My situation is this.....

The smaller shocks are happening everyday on my way to work, at the same point in my drive. It's a small two-lane road. There are no underground scales or nearby power stations. I drive the same road home and it doesn't happen on my way home. But on my way to work, as soon as I hit that dip in the road in the Eastbound lane, my ICD starts shocking me and won't stop. It takes everything I have to get the the nearest point that I can pull over. I pull over, turn off my truck, an...


Posted by louiehvivas on 2015-04-19 10:16. 3 comments. 535 reads
 
hi.my stepson who is 27 yo and a former collegiate volleyball player is subject to icd implantation asap (3rd week of april 2015)at the philippine heart center.doctors recommend biotronik(2-lead),because of its dependability and battery life-span, but the cost is too much for us. however, he said that there are organizations/companies that sponsor the device.
it would really be a big help if anyone can help us find/talk to a sponsor (any brand for that matter).
my stepson is getting really depressed because our family cannot afford the device and procedure, estimated at P1.2M-1.5M (US$26K-33K).
please help.
thank you very much.


louie






Posted by strong on 2015-04-15 13:28. 5 comments. 471 reads
 
Dear all,

My dad is scheduled to get an ICD on May 1 2015. He had a massive heart attack two months ago and was diagnosed with heart failure.

He is anxious about the ICD and would like to meet someone with an ICD to discuss how life is w/ the ICD. He doesn't use the internet and insists on a personal meeting or at least a phone call. If anyone is in the Toronto or GTA area could you please msg me. I love my father dearly and want him to get the ICD but only on his terms.

If anyone is willing to speak with him about your experience I would be eternally grateful.


Posted by MattLane on 2015-04-14 14:51. 13 comments. 916 reads
 
I apologize if this issue had been addressed before; but I was only informed two weeks ago, that I need a ICD.

Let me start by saying, I was a collegiate runner and still hold mutliple records for sprinting at my college, as well as the running record at my state academy.

I was informed two weeks ago, that I need an ICD, my doctor has recommended one of the new S-ICDs. My question is, are there any police officers out there who had an ICD or S-ICD implanted, and returned to full duty, pushing a patrol car. I'm currently sitting at a desk on 'light-duty' waiting for surgery becuase of the way the doctor wrote my note for work, stating "no high stess activitiy, no heavy lifting, nothing that would be considered high...


Posted by Electrically Enhanced on 2015-04-09 09:35. 4 comments. 391 reads
 
Got my ICD implanted Jan 31,2015. Decided to join club so I could talk to other people that have or are in a similar situation.

Posted by Heatherhi on 2015-04-05 19:18. 4 comments. 614 reads
 
My eldest daughter had an ICD fitted 1 week ago, after loosing my youngest daughter to sudden adult death 5 weeks ago, and a history of heart problems in our family. My Eldest daughter is now suffering boust of severe chest pain in her heart, she is in hospital yet again tonight.
Im so worried and cant find any reason for this severe pain, bloods, ecg, and scan all appear normal.
Can anyone tell me if they have heard of this and any possible causes.
many thanks xx

Posted by farhan on 2015-04-05 10:21. 7 comments. 619 reads
 
Hello Everyone!

I am glad to report back to this forum that I have got my new friend implanted on 2nd April, 2015. I am thankful to this forum in many ways and hence I owe a lot to this forum. I am grateful to all those great people who are spending their time to add value in life of others, specially when they do not know them. This forum had given me what I was looking for and on top of my shopping list was a 'courage' that could help me deal with my 'biggest fear of life' i.e. to decide and to go for ICD implant. I was XXit scared inside and could not collect myself to come to a conclusion. I found all necessary help here that I was looking for and answers to my worries on various threads and my personal posts.

...


Posted by Einguy on 2015-04-03 13:47. 0 comments. 385 reads
 
Am asking whether anyone with a sjm device uses CorVue. If so, how; how often; complications getting data.

Posted by Twila on 2015-04-02 21:42. 1 comments. 535 reads
 
A year after getting my icd I have developed severe afib. I'm on Tikosyn and digoxin but still have occasional afib but not as severe. My heart has improved from the cardiomyopathy from 20-25ef to now 50-55 ef. They adjusted my pacemaker from 40-125 to 80-125 and I'm having way less afib. Could my ICD be causing the afib? I never had afib before the icd. I usually get it after I come home from work and set down and relax. I keep getting defibed because the afib makes my heart get up into the 170's. Has anyone else developed afib after receiving a icd?

Posted by GrandmaRose on 2015-03-30 15:46. 1 comments. 337 reads
 
Just had an ICD 'installed' the first of February, 2015. My left arm was slightly swollen and was causing me discomfort as well as my left neck and shoulder. Not as bad now, but will this be a permanent feeling? {I think with the restraints, feeling the 'pain' twice when medicine wore off, I may have pulled a muscle but not sure.}

Posted by EricBros on 2015-03-26 19:19. 4 comments. 694 reads
 
I do not have one, but my doctor's want to put one in me.

This is my history:
I'm 54 years old.
I had "successful" Mitol Valve surgery in late September, 2014. I had no symptoms at all before the surgery. I ran 4 miles the day before the surgery. My heart was getting worse, so I allowed the surgery. At the time my Ejection Fraction was less than 45%, but a portion was going back the wrong way through the Mitrol Valve.

I still have no symptoms after surgery. However, now, my Ejection Fraction is less than 35%, so now they want to put an ICD in me.

Since I am still active, Run / Jog, Bike and Workout I want to know, not so much how it acts (yes I am worried about that as well), but how it loo...


Posted by Katswonders on 2015-03-18 03:28. 5 comments. 523 reads
 
Is there any reason I can't go tanning? I've had my implant for over 3 years. I'm new to the group so I would invite any and all advice.

Hugz,
Kathy

Posted by sherryher on 2015-03-17 14:53. 1 comments. 377 reads
 
hello i have an icd thiws is my 3 one. i got this one put in in nov of 2014 and i noticed the last few days when i move my arm i can feel my device moving. i never had this issue with my other two. is this normal? please help it is starting to freak me out .

Posted by Olena on 2015-03-16 10:26. 6 comments. 774 reads
 
S-ICD and ICD users question. Did anyone have a shock treatment from S-ICD or ICD? Can anyone tell me if shocks are bearable? I guess I’ve read many horror stories about being shocked while awake or missfires, and it’s really scares me. So if you are standing while having a shock will you fall down? Can you get an injury, like break a bone? If someone drives and get shocked, will you most likely get into the accident? How bearable is the pain? People describe that it feels like a mull kicks in your chest. Well, I am pretty skinny little woman, and if I would feel mull like kicks in my chest, I probably will fall down and pass out. Or I might have a horrible panic attack which will make thing worse. How people handling this?
If ...


Posted by shucker on 2015-02-27 18:42. 1 comments. 453 reads
 
medtronic,have not got a clue if it works or not,gathering dust. could be some companys work to make money

Posted by JoeR on 2015-02-25 12:09. 15 comments. 1129 reads
 
Hi,

3 months ago, I went into Cardiac Arrest and miraculously survived. A few days ago I had an echo done and was told that my Ejection Fraction was around 30%. I have been wearing a life vest (portable defibrillator) for the past 3 months in the event that another attack would occur, and have been ok since. I now have to rid of this portable defb and get an ICD inserted under my collarbone sometime soon.

I am just nervous about the whole thing and was wondering if anyone else has been through this.

Any kind of input is greatly appreciated.

Thanks,
Joe

Posted by Jason on 2015-02-22 05:01. 26 comments. 1846 reads
 
My first time and during sex
Comment posted by Jason on 2015-02-22 04:24.
Hey guys,

Haven't been around in a while as things have been going well with the device. I owe you all for the support and the information so freely shared.
I had my first big one this morning after a little over two years with nothing. I forgot to take my meds a couple times over the course of the week and had been quite active. Also running on not much sleep all week as I'm swamped with work and home. In addition to that as if that's not enough the tension is pretty thck at home s well.

So that's the leading up to it part... This morning around 6am my bride and I engaged in a very passionate and active love making session. Th...


Posted by drenje75 on 2015-02-18 15:20. 1 comments. 384 reads
 
Hi to members

Any experience with the longest period of replacement ?
My ICD device is fitted exactly four years ago, with no activation- without shock,works only like a pacemaker for about 1% of the day,during night (physician claims).

Device is Biotronik Lumax with St.Jude electrode.

thanks in advance...

Posted by drenje75 on 2015-02-17 15:50. 2 comments. 518 reads
 
Hi friends

Any new informations about wifi router impact on ICD devices?
Or some independent statistics or similar (not statistic made and payed by some "magic antimagnetic shield producer" or etc.

Sorry for bad English---Thanks for answers.

Posted by taylorii on 2015-02-14 12:33. 4 comments. 1252 reads
 
Hi, new to the club (really wasn't aware there was one). Had Merlin, my pet name for my ICD, installed the first of this year. At 66 years old, Viagra or Cialis is a real help for me.

I would like know if anyone has used either and received any side effects.

Thanks



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