St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in ICDs Forum



Posted by mkyah09 on 2013-12-27 13:19. 7 comments. 349 reads
 
Hello guys,

My Dad is 67 years old and he has a EF of about 25%, he was hospitalized 3 days before due to heavy shortness of breath - Pulmonary edema, the doctors did mention he has severe heart failure where the heart has expanded quite a bit due to dis synchronized beating.

The did echo today and suggested CRT-D as a way of treatment.

I want to know from you guys who have CRT-D your opinions and whether it helped you guys?

Appreciate your quick help. Let me know if you need additional details

Posted by drverahughes on 2013-12-26 12:15. 3 comments. 185 reads
 
I am wondering if anyone with end stage renal disease and takes hemo dialysis has a defibrillator?

I am on the UNOS kidney transplant list for over 3 years and don't want to be passed up if I have a defibrillator. The nephrologist indictated that I will get a call for a kidney transplant within 4 months.

Please let me know your experiences if you have kidney disease and a defibrillator and on kidney transplant list.

Respectfully Submitted,
Dr. V.

Posted by whydar on 2013-11-22 17:15. 3 comments. 508 reads
 
Good Day,

I had my IDC implanted on 10/11/13, on 11/9/13 I was shocked 3 times within 5 mins. I fell to the ground, I really lost control of my thoughts and emotions. It felt like someone was attacking me and there was nothing I could do about it. My husband heard the 1st shock from another room and when it was trying to keep me calm (poor man I scared him to almost death) he felt the 3rd shock. Bottom line I did not rest my arm enough (I was reaching upwards, backward, forwards etc...) and I pulled out one of the leads. I had to go back into surgery to reattach and now I have another round of recovery. I am terrified that this will shock me again, I am having thoughts of this foreign thing in my body and their tracking m...


Posted by daisy0388 on 2013-11-21 20:14. 0 comments. 231 reads
 
Hi everyone, it has been awhile since I have posted but I'm looking for any answers I can find. After 7 ablations which included both sinus and av node I am still having problems with the sinus node. After seening the dr today he has possibly suggested a total sinus node removal and installing a epicardial pacemaker on top of the heart. He has to talk to a few of my other drs first to decide what to do but said this may be what they have to do to help me. Has anyone ever had that done? Just a few things I have found said it was done in an open heart kind of surgery and I'm not sure I want to do that. Any help would be greatly appreciated!

Posted by BioGran on 2013-11-16 16:48. 2 comments. 396 reads
 
I can't find any answers in the books, so, does anyone here know if long term exsposure to copper is detrimental to my Icd. It also paces. I want to get a Tommy copper compression shirt to help with arthritis.
any advice?

Posted by niggy2 on 2013-11-14 17:28. 8 comments. 855 reads
 
Hi. I'm brand new to this forum and a new patient to an ICD. My ICD was fitted just three weeks ago and obviously I get concerned about all sorts of things. I'm hoping some nice soul will help me out.
1. My ICD seems to be more prominently close to the surface today than it diid yesterday. I inadvertently moved my arm a bit too much last night in bed and now I feel more aware of my ICD - is this normal?
2. How possible is it that by moving my arm too high that I have dislodged something - god forbid its one of the leads.
3. I seem to be more conscious of my heart beat than ever before, especially in bed !!!
4. I have read various things on the net about inappropriate shocks. How likely are these and can they be caused b...


Posted by erginefe on 2013-11-04 15:04. 7 comments. 696 reads
 
hello everybody, i am from turkey and i am new member of this website. My mum has icd and i wanna ask a question. My mother's half of heart was damaged and she is using ela 's icd.
She is a little fat and need to do sport. i wanna buy treadmill for her. However, all treadmills have electricty motor(engine). I want to know wether it is dangerous for her or not. Thank you so much...

Posted by Bevof NC on 2013-11-02 17:01. 2 comments. 392 reads
 
Hi! You seem to know as much or more about EP as anyone here. I got a brand new B.S. defibrillator with all the bells and whistles 1 year ago. Recently, I had a syncopal spell.that lasted on 'n off for 2 hours..so I got out my interrogation summary and looked at it. All my ATP's were turned off. I called and talked to the "new" EP tech. He told me,Your ICD does not have ATP capacity." I told him it was using it in February...Did Doc order it turned off or did it just happen....He said Oh, Doc ordered it off THEY have discovered that if you are VTaching at 170 and the ATP kicks in it can cause Vfib.. #1- I have no ATP and don't want to get shocked #2-He may just speak before he thinks- If you were me...would you tell the Doc ...


Posted by mwiley55 on 2013-10-31 08:31. 3 comments. 262 reads
 
will have hip replacement in a few months my ejection fracture is 25 percent have been cleared by heart dr and lung guys anybody have hip replacement with icd

Posted by windowguy28 on 2013-10-31 07:47. 1 comments. 199 reads
 
has anyone had experience with the va. had my icd replaced sept. 4th and still waiting for my carelink monitor. they seem to be a little unconcerned to me about things. just picking your brains on the va care.

Posted by dinanagy on 2013-10-27 12:32. 1 comments. 269 reads
 
My name is dina my ICD was placed on 3/9/2013. After implantation of my ICD i got a blood accumulation sac on my insirtion site. My dr. Adviced me to take antibiotic (tavonic 500mg), and heat pads . But i see no progress.

Please advice me i'm worried about the consequences.

Posted by Cruzer on 2013-10-21 15:14. 3 comments. 490 reads
 
I've had my ICD, Boston Scientific, for a little over two months (8-22-13). I had two VTach episodes about two years apart. The Doc tried to fix it with Ablation but was unable to totally eliminate the problem. The next day the ICD was implanted. At first I was on Beta-Blockers but I just could not tolerate them. I'm an avid cyclist/former runner and the BB's made me feel like I was stuck in second gear. We agreed to stop them and see how I do.- so far so good.
My question is about the pacing. I know there is no doubt that you will feel a shock being administered but how do you know when ATP is taking place? Do you feel it?
Another Question I have is about heart Rate when exercising. I thought that once I stopped taking the BB's...


Posted by Magnetoman on 2013-10-13 17:06. 7 comments. 1008 reads
 
First time visitor.....

So, in 2000, I had a strange EKG and, after some tests, they thought I MIGHT have brugada syndrome. ICD was put in as an "insurance policy" but it has never gone off or paced. Went through one generator change and life with the unit and a replacement was fine.

Last year, they discovered that one of the leads was failing so we turned the unit off as it has never done a thing and now I am facing the idea of lead removal.

My questions are:

Does anyone know the risk differences between leaving the lead in vs. removal?

What are the chances/incidences of open heart surgery during the procedure?

Has anyone had leads removed after 13 years?

Has a...


Posted by DMJ on 2013-10-07 14:44. 5 comments. 492 reads
 
I have had my new pacemaker for cardiac resychronization therapy for one year now. I haven't felt a lot of difference. I was waiting a year before I went through the expense of echo to see if my ejection fraction has gone up from 25%. Has anyone out there had this therapy and have you felt better?

Posted by katbrad1 on 2013-10-07 13:08. 11 comments. 450 reads
 
I just got my Medtronic ICD implanted on October 3. Last night during the night I stretched my left arm over my head. I panicked and immediately put it down, but I am terrified that I messed something up. I see my doctor for a wound check on Friday. Anyone have this happen to them? It is hard adjusting to this!

Posted by Lina on 2013-09-30 01:06. 10 comments. 446 reads
 
Hello everyone, my name is Lina. My boyfriend is 22 years old and is suppose to have an ICD surgery soon. I was hoping to speak with someone who already has an ICD. I have a few concerns and worries about the surgery and recovery after the surgery. I would like to give him encouraging words and be supportive, but I am very scared for him.

Posted by owls__ on 2013-09-28 13:55. 3 comments. 470 reads
 
I'm not really concerned but just curious as I can feel these to separate things (which feel a bit more defined than veins under the skin) and I can very faintly see a tiny lump above my incision where i can feel these two "wires". They continue below my incision and the feeling becomes less obvious as I reach where the ICD is. These weren't there before and have only become obvious in the last month or so... Oh and I've had my ICD for approx. 11 months. Any ideas as to what this is?? Is it just my skin adjusting??

Thanks xo (:

Posted by boxy on 2013-09-28 09:08. 1 comments. 545 reads
 
I am looking for a protective vest that I can wear while using a small welder.i have a icd implant

Posted by daisy0388 on 2013-09-24 21:14. 2 comments. 542 reads
 
Hi everyone

I just have a quick question, there is a possibility I am going to have to have my pacemaker moved from my left side to either my right side or my abdomen. Can anyone tell me what the pro and cons may be to moving it to my abdomen and how the surgery recovery is? Also I was wondering if they will have to place new leads. Any input would be great!

Posted by CFozzy on 2013-09-23 16:50. 6 comments. 317 reads
 
I posted a little while ago about getting an ICD. My surgery was on Friday and it went fabulously. It hasn't been too painful, just a little sore at times. Sleeping is the only complaint I have. It's only comfortable to sleep on my back. Wearing a bra is no problem. My hospital stay was amazing. It was like staying at a hotel, even the food was good. I appreciate all the thought and prayers! Just wanted to let y'all know that I was doing okay And I can testify that the surgery isn't bad at all! Don't be scared!



Member Login
email:

password:



Who's Online?
We have 1046 visitors online.

Members online:
  DonSoule
  vbLa59
  deeheart
  sdawg
  Lurch
  bluebowtye
  leonardgblue
  Tattoo Man

You're Wired When...
Your signature looks like an EKG.

Member Quotes
A properly implanted and adjusted pacemaker will not even be noticeable after you get over the surgery.

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.