St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by fontanamen5 on 2014-10-29 20:27. 3 comments. 169 reads
 
went to the pacemaker clinic today and was told pacemaker being used at 90%. Has significantly went up over the last 2 years. was told that my pacemaker is set to "trigger" on in the mid 50's range. But then told also that my heart rate drops to the 30's at sleep. is this possible? I thought it would not drop below where pacemaker was "set". Comments appreciated.

melinda (new member)

Posted by becky2014 on 2014-10-29 14:36. 4 comments. 123 reads
 
Has anyone been in a similar situation. I have had my present PM for coming on 13 years. I had been attending my local hospital for check-ups every month as the battery was getting low.

On my last visit the PM technician told me that my PM needed changed and that my check-up report would be forwarded to the relevant consultant. I have since discovered that the consultant has placed me on a waiting list for a replacement PM but while I await the replacement surgery I no longer receive monthly check-ups.

I am anxious in case my health deteriorates in the meantime, if so what is the best action to take.




Posted by danfss03 on 2014-10-25 11:32. 2 comments. 180 reads
 
Had my first pacemaker implanted in 2009, and I thought everything was going great. This was a two lead device, and the lower lead went bad a couple of years ago. We continued to monitor the device, both at home and physical visits at the doctor's office. Two months ago I did my home device check, and two weeks later I got a call from the doctor for an appointment, and since I didn't have one scheduled, I almost refused. Well went in, and the Medtronic Specialist did her thing, and the doctor came in for a chat. Well it appears my device was not pacing as required Not only was the lower lead not working, but the upper lead was pacing on a part time basis, and I didn't feel a thing. The doctor showed me the EKG and the heart had been skip...


Posted by cookenzopy on 2014-10-20 16:46. 7 comments. 291 reads
 
Does the rate response setting of a dual lead pacemaker affect sporting? My PM rate response is set between 60 and 140 bpm. When I am cycling I have the feeling that 140 bpm is too low. It is not my maximum heartrate because I am not running out of breathe at that rate. At least 150 bpm should be better but I don't know if that upper setting of RR at 140 bpm is limiting my max heart rate during cycling. Is there anyone who could explain the effect of rate response and sporting to me?

Posted by matkim6 on 2014-10-14 22:03. 1 comments. 207 reads
 
Due to damage during ablation/flutter/av node reentry/6 ablations total, I have now had my av node ablated due to pacemaker syndrome/av dissociation/dyssynchrony/tachycardia history plus 3rd degree heart block. I am 45 female and very active, working out intensely 3x a week with walking 2 other days, struggling with hypotension and lightheadedness during exertion. During a stress test my blood pressure dropped to 68/40 almost fainting due to several skipped beats in a row, still having av dyssynchrony. Ended up working the biotronik to the max, am now at the lowest setting possible for PVARP at 175, AV delay 100. The problem is the P wave was hitting outside the PVARP. There is definite delay in sensing atrial activity from the onset of t...


Posted by keylymepie on 2014-10-14 19:50. 1 comments. 196 reads
 
I got my pacemaker 3 weeks ago and at that time was told that I would never pace from the ventricle unless I was in heart block or had a heart pause.

My pacemaker was for bradycardia, to prevent sudden drops in heart rate, one heart pause, and hypotensive fainting (the Biotronik also helps spike heart rate in response to changes in cardiac output/low BP).

My maximum is 155 and my minimum is 80. Today as I was walking I was paced at 155 consistently. Eventually I got over 170 intrinsically and then I had SEVERE painful palpitations which dropped me to the ground. It felt like when they tested the ventricular lead at max voltage during the surgery (I was not sedated). I went back to 155 for a while and it happened aga...


Posted by alexisbagel on 2014-10-09 09:42. 1 comments. 233 reads
 
Hi all! I'm wondering if anybody could shine some light on how far in advance you were notified you'd be getting an ICD replacement.

Some info:

After a cardiac arrest event, the Cleveland Clinic discovered I had long q t syndrome. I got a St. Jude defib implanted August 2008. I go for check ups annually. I'm about to need a new defib. I usually send a remote transmission annually (and visit the CC once a year) but I'm now sending transmissions about every 4 weeks. I was told by the CC that next I'll be sending them a transmission every 2 weeks, then I'll get the surgery. But the CC hasn't given me much of a time frame for the surgery. So I'm wondering if anybody has experience with how quickly you go from sending biw...


Posted by harlemflash on 2014-10-05 15:34. 0 comments. 100 reads
 
I had a two wire pm and would be phone checked every month with a physical check every quarter. just had a new three wire boston scientific inserted and not required to get tested for 6 months. Any ideas why the difference?

Posted by Cycler on 2014-10-04 07:13. 0 comments. 80 reads
 
Interference from cable land line and distance from router to bedroom necessitates transmitting my heart data via cell. The provider St Judes uses, uses T-Mobile and AT&T, are unavoidably 2G. No higher G available that St Judes uses.

Assuming brand of medical equipment is irrelevant, is there any reason why 2G is NOT sufficient to transmit "basic" heart data from ICD to the clinic?

Anyone out there with positive experiences using 2G? Anyone with negative? Thanks!

Posted by stricsm on 2014-10-03 16:15. 6 comments. 287 reads
 
Went for my six week checkup post implant and everything is good. I have a 1/2 AV heart block, so the top of my heart paces the bottom. They have my pacemaker set to not let my heart beat less than 60bpm or greater than 130bpm. So if I understand it correctly, if the top of my heart beats 140bpm the bottom will not exceed 130bpm.

Before my pacemaker I couldn't exercise very easily, now enjoy walking again. I'm 53 but ~30# overweight (although I don't look it according to my wife). I'm wondering if a top heart rate of 130bpm is typical? It seems a little low to me. Your thoughts are appreciated in advance.



Posted by raymac on 2014-10-01 05:25. 0 comments. 136 reads
 
I had a PM fitted recently because of Brandacardia I have 38-9 HB
the Soran unit fitted, set a tick-over rate of 60 - 7- variable, and my own signal is supposed to take over after that,
I Initialy had the unit set to accelerate as needed, but I found I walked across the Rd with my dog and my pules was at 110; and felt like butterflies inside,
the Tech said ho you'll get used to that, But NO way it was terrible, he called it PACING the bottom chamber, I couldnt stand the feeling ' so now I have it on the Tick-over mode 60-70 only, BUT as I said I have this LAG from 70 to say 80 .
Id start doing some stressful work and BANG BANG my heart jumping and Palps, Id take my pules...70 not enough ?
so any one out ...


Posted by KeelyLatterner on 2014-09-30 14:05. 4 comments. 232 reads
 
Hello,

I am quite nervous about my first pacemaker check up today. It has been approximately 6 weeks since my dual chamber MRI safe pacemaker was put in. I'm diagnosed with genetic Long QT and was suffering with bradycardia and asystole - over 5 second pauses.
I have felt a difference with the pacemaker, but I also feel some unusual sensations since the implant that I didn't feel before. For example, sometimes my heart really thumps! I don't know if that's how a normal heart beat should feel and I have just been so used to a slow and silent one.... I also often feel what I can only describe as a small bubble bursting. Like you blew a bubble with chewing gum and then it popped. It doesn't hurt or is painful, but I have just...


Posted by ERER on 2014-09-29 22:54. 2 comments. 245 reads
 
I'm on my 3rd pacemaker in almost 20 years and am always mindful to ask questions if I don't understand something during pacemaker interrogations but one thing I've noticed on the printout is "no episodes." What exactly does that mean? I did ask once and the technician said cardiac episodes, but what constitutes a cardiac episode on a pacemaker?

Posted by Alrajhi on 2014-09-28 21:24. 4 comments. 225 reads
 
hi all,

its my 3d year on pacemaker and I'm 34.

last weekend i had dinner with a whole bottle of wine and the next day i felt my heart was different beating a lot harder and early beats is making me crazy .

im not comfortable and i think i messed up any one dealt with such a thing before ?

Posted by vbpoppy18 on 2014-09-27 00:42. 4 comments. 385 reads
 
How strong of a magnet is needed to make the pacemaker enter magnet mode? Are we talking like ice box magnets or what?

Posted by vbpoppy18 on 2014-09-25 15:37. 6 comments. 216 reads
 
I am turning 21 in less than a week. I had a pacemaker implanted in 2012 when I was 18. I vowed to myself that I would not let this define me as the "guy with a pacemakeer". I went to my follow up check and sent in a reading at the 3 month mark. Then I lost insurance for a while and then got too busy! I now work at oreilly auto parts and they don't know that I have a pacemaker. Lately, It seems as if my heart is racing! I live 5 hours from my pacemaker doctor and am a student so I cannot just drop everything and make a trip! I am going to a primary care doctor. I hope he will set me up with a doctor that is a lot closer to me! But my question is how easy is it to switch doctors like that???

Posted by becky1958 on 2014-09-23 00:23. 9 comments. 204 reads
 
Hi everyone! I am so glad to have found this site! I am 56 and had my pacemaker unit put in 10 days ago. I go Wednesday to my first checkup to have staples removed. My pacemaker site is very sore under the bandage( I can only imagine what it looks like) My question is , does it hurt to have the staples removed?

Posted by Bxpacer on 2014-09-21 21:50. 4 comments. 266 reads
 
I recently had my 6 month pacemaker check and every time the test that slows down the heart occurs, I get very dizzy and have trouble breathing almost instantly and they have to stop that test. Every other part of the check up is fine. I was wondering if anyone else had this and if you think this will be problematic when it;s time to replace the device in about 2 years. Thanks.




Posted by orca58 on 2014-09-21 16:16. 4 comments. 225 reads
 
I seen a message or quote the other day
the person mentioned something about
fine tuning .
when you say that , did they adjust your heart rate ,
when I went down my heart was only beating
40 beats per minute, now it's set at 60.
my question is , what else can they adjust ?

Posted by Teijee on 2014-09-19 22:48. 3 comments. 274 reads
 
I was wondering does a pacemaker response to anxiety and hyperventilation? For instance you are lying on the couch and you are watching a scary movie does your pacemaker know it has to increase the heart rate?




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