St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by Narda on 2014-12-19 07:06. 3 comments. 57 reads
 
I am 100% pacemaker dependent because of A/V node ablation. I am set at 70 bpm. It can go up into the 80's just walking from one room to the other and I get winded with very little exercise. Is this normal or am I being paced too fast? I would appreciate any answers. Thanks.
Narda

Posted by kim123 on 2014-12-18 06:53. 6 comments. 121 reads
 
Mu husband had a pacemaker fitted a year ago, diagnosed with 2nddegree heart block 34 pulse. Just been for his check up, was told that his signal was only getting through to the bottom of his heart 20%, so this is why he needs a pm, so he is using it 80% of the time, as he is an anxious person but also wants to know everything about it, he wants to know if he would be dead without the pm, on his notes it says not pacemaker dependant, he is confused, or is it about quality of your life


Posted by Dave H on 2014-12-13 13:54. 4 comments. 216 reads
 
Phone conversation with an EP nurse yesterday: Me: Lately, on the treadmill, I've noticed the max heart rate I can achieve (@ 3mph) is 115 - 120. In the not too distant past, I could get my HR up to 145. Do I need my PM adjusted to permit a higher HR? Nurse's answer: "No, since you are taking Metoprolol, that's what is keeping your pulse from climbing any higher." (BTW, I've been taking 50mg 2X daily Metoprolol, aka Lopressor, for 2 years now).
I'm suspicious of her answer-----I'm under the impression my pacemaker is what controls heart rate (I am pacing 100% since an A-V node ablation 2.5 years ago.)

Any thoughts?
--Dave--

Posted by terrymac12345 on 2014-12-11 19:39. 2 comments. 93 reads
 
Went to the doctor today for a medtronic testing. The reason my heart pulse goes below the 60 setting is because I like others have an extra heart beat that fools the pulse ometer. Turns out all is working correctly and I accomplished more today than in months pre- pacemaker. Thanks for all the great feedback!

Posted by kawasherpa on 2014-12-07 21:19. 5 comments. 182 reads
 
What do the volt readings mean? At my 2 week check up they lowered the volts but I only know they lowered from 3.5. Is there a number we should be at or is different for each of us?

Posted by DavidStarnes on 2014-12-05 17:23. 9 comments. 318 reads
 
Having had one of my family members receive a device, I was shocked (no pun intended) to see that see was not being followed by remote follow-up. Her physician's office didn't have anyone adequately trained. Remote Follow-up provides a wealth of information.

I have worked with 3 out of the 5 device companies for 20+ years, and know of a great company that provides this service to cardiologist's offices. If your cardiologist is not providing this service for you, contact me directly and I will send them info.

David Starnes
davidstarnes1@gmail.com
832.428.7672

Posted by jtimothy on 2014-12-05 15:44. 2 comments. 151 reads
 
I'm an occasional runner and a serious bicyclist which probably gave me a low heart rate 45 - 50 bpm. I've also got Parkinson's. Whereas I can perform fairly well in my sports, I have shortness of breath when walking up an incline or flight of steps without some warmup. After a series of cardio and pulmonary tests, I was diagnosed with CI. I had a pacemaker installed a couple of months ago, but I still have the SOB problem. My PM doesn't really boost my heart rate significantly until 60 seconds after I start to climb the steps, and in the interim I start panting heavily. I'm going for an adjustment of my PM this coming week and am wondering what feature needs tweaking. I have a Boston Scientific Ingenio dual lead. Any advice with s...


Posted by Moongodesss on 2014-12-02 17:16. 1 comments. 115 reads
 
Hi, Has anyone else had a pocket revision done after only 9 months with the original pacemaker. This revision has been awfull and the tech can't seem to get the settings to work for my heart. I feel tired and the extra work my heart seems to be doing is wearing me out. Could use some help. Thanks, Nanci

Posted by aicha on 2014-11-29 07:35. 6 comments. 265 reads
 
Hi everyone, I live in the UK so don't have to pay for treatment, which may have a bearing on this?!

Had my PM 3 years ago, dual chamber for bradycardia. All sort of fine till 6 weeks ago, started getting pain in chest on exertion - 10, 20, 50 paces and have to stop and rest - going upstairs on all fours.

PM clinic checked settings 3 weeks ago and found no problem - they refuse to check them again as they are convinced it is not PM problem. My GP says there is no chest problem, ECG and chest x-Ray fine.

Am now at my wits end and don't know what to do - I'm 65 but feel 80 - sometimes get a kind of electric shock in the vein where the leads are - any suggestions?

Posted by wjs1954 on 2014-11-26 16:41. 1 comments. 137 reads
 
Went today for adjustment. Min reset to 50 from 40 for day time night left at 40. PM rep said after last adjustment 6 days ago my pm use had went from 80% to 25%. I said of cousre because you chaged the min to 40 . Also said rate drop was turned on 6 days ago and it was activated 6 times, i'm thinking that was also because 40 was set as min, with a min of 50 I don't think rate drop will be activated as much because pm will kick in at 50. Hopefully 50 will help with just feeling spent all the time. Have appointment in 4 weeks again to see how I like new settings. I did question the rep about setting below 60, she said "approx 80 % of PM are set min of 60 " also said active and young people are much harder to set, adjustments are necessary...


Posted by TJ319 on 2014-11-24 17:33. 5 comments. 275 reads
 
This week I had a 6 month check-up with my cardiology group including an interrogation of my PM. I've had it just over a year and the past 6 months have been very good after a rough start up. The technician asked a simple question regarding how I feel when walking. I answered "fine" and then mentioned that, when I run, the first half mile or so is a bit difficult as my system comes up to steady state. He decided to make two adjustments, although I did not ask for them. He increased the slope setting and changed the recovery setting from medium to slow. It seemed like a good idea at the time. From the moment I left the doctor's office on Friday throughout the weekend I had difficulty. Every time I made any kind of quick move my heart...


Posted by Nick.k(uk) on 2014-11-24 07:22. 1 comments. 139 reads
 
What if any are the benefits of having rate response on for a reasonably good for age runner.

So far as I know I don't have a problem with upper rate which was hitting 165 on exertion a few days prior to implant. Or with my HB responding naturally to increased effort.
Pre Implant Garmin curves show a rapid initial surge in HB followed by a gradual increase as the miles built up.

Was lowered at first check up but still don't feel great and some odd fluctuations in HB have been recorded on my Garmin.

If there are some positives I can do the pro's and cons bit before asking them to turn it off altogether which, at the moment I am inclined to do.

I've had some good guidance about what is happen...


Posted by Nick.k(uk) on 2014-11-21 13:41. 5 comments. 222 reads
 
I'm sure it has a technical name but the motion response on my now 8 day implant was turned down at first check because it would soar to 150+ whilst I was walking the dog.
By the time I walked out of the hospital I knew things had considerably improved.
I asked if this could be switched off altogether as my issues are slow heartbeat when at rest (down to 20bpm) and pauses mild compared to many max 3.7 secs suspected 1st degree block. One tech appeared in favour but his boss wanted to reduce and come back in 5 weeks.

As an athlete it is not uncommon for my HB to hit 150-165 and , so far as we know, my heart always responds appropriately to my becoming active. HIstoric Garmin data shows initial rapid increase with a grad...


Posted by wjs1954 on 2014-11-20 16:15. 2 comments. 114 reads
 
Went for my PM checkup today couple changes.
Day setting changed from 60 to 45, night changed from 45 to 40 max changed from 150 to 175, rate drop turned on set for 25 BPM change w/in 1 minute, if drop in rate is picked up will be passed to 70. Should help with dizzy spells (1/2 dozen times), passing out (happened once post PM) max rate hopefully helps running. Well still can't run recovering from knee surgery. Going back in one month for another check with PM rep and cardiologist. Just sitting watching tv with HRM on, rate is 45-50.

Posted by rjsully on 2014-11-19 20:02. 3 comments. 217 reads
 
Well...had my first checkup today since PM. I cannot believe what a difference I feel already. I feel AWAKE! RN in clinic did the checkup. She said my PM is "pacing" 55% of the time in the SA node and only 1% in the AV. (My low is at 50 resting/60 with activity). I hope that makes sense. So, her comment was "no wonder you feel better". What this tells me is I needed the PM. I sure had doubts going in, but this is confirmation for me. I have been getting about 7-8 hours of sleep at night, feel rested when I get up and haven't felt the need to lay down and "snooze" during the day several times. I don't feel 100% yet but I am so much better. I went walking for an hour the other day at the mall and felt like my heart was beating r...


Posted by bionicpulse on 2014-11-18 22:41. 2 comments. 201 reads
 
Hi all. I have either a sinus node problem or a vasovagal issue (they're not sure) where my heart spontaneously slows way down and I experience syncope. I had a dual-chamber pm implanted a few months ago and understood that it was set to kick in if my heart rate drops below 50bpm. Indeed it is, but it's apparently also set for other kinds of interventions as well. I discovered this when I repeatedly experienced a tickle when exercising and asked the tech to look at the data I uploaded. Apparently it is set for two additional things:

(A) If I experience tacycardia (>180) it "stands by in case of pause".

(B) If the heartbeat signal isn't propagating from my atrium to ventricle it will pace the ventricle according to th...


Posted by Bebie on 2014-11-18 04:09. 2 comments. 131 reads
 
Hello everybody. Thank you for the information that everybody's sharing here. By the way, I have my pm last Aug 15 and all is well aside from some dis comfort of the meds I am taking and maybe the reason why I can't sleep well at night. My concern now is I want to know if any St. Jude location can check me. Since, my work requires me to be in another country I find it hard to see my Doctor or the hospital where I am supposed to have regular check in my country. Through browsing I know the location of St. Jude in the country where I am now working. Is it advisable for me to visit and have my pm checked here?

Posted by Kelly on 2014-11-18 01:56. 1 comments. 153 reads
 
I was diagnosed with complete (third degree) AV block & got a PM in 2005. I was 40% PM dependent from 2005-2008 (if memory serves me right!) I've been 100% PM dependent ever since. I'm just curious....if you have AV block is it common develop SA block in the future? I hope not!

Posted by rolson on 2014-11-16 11:21. 2 comments. 189 reads
 
Two weeks tomorrow since surgery implant. I have brady/tacky and SSS. I had to have a pacemaker for very low heart rate and meds to try to correct tacky. After surgery I could not walk or my heart raced like horse going for a triple crown. I mean I could not walk faster than very slow motion. After searching this site I found references to rate response settings. A light bulb went off...maybe that is the problem. It was. The setting caused my tacky to start and then I was miserable every time I moved. Or I would get a spell of tacky and it would set of my rate response setting. Horrible feeling waiting till it stopped each time I had to go to the bathroom. The tech turned it off and said to leave it off till I get my ablation then se...


Posted by WillieG on 2014-11-16 11:05. 0 comments. 93 reads
 
I had my 1st remote transmission after my pacemaker surgery in June for exercise induced 2nd degree heart block. I picked up a copy of the report and there are 646,190 PACs (premature atrial contractions) in a little less than 3 months. If my math is correct, that would be 7,179 a day and about 298 an hour. Should I be concerned about these numbers? I haven't really felt them except maybe a few. I also had 99 ATRs (atrial tachy responses). The summary says that the stored episodes show FFRW (far field R wave) oversensing and that no true Afib noted. I was wondering if this could be due to the way my Boston Scientific Advantio PM is set. The report also shows zero pacing.

Thanks for any advice! Wilma



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