St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by heart2heart on 2015-07-30 16:21. 2 comments. 114 reads
 
I had a pacer implanted in April of 2013 due to a pulse of 38-46 and am on no meds.
Felt awesome in hospital & would not have been able to endure the stress, mental & physical, of my husband's illness which resulted in his passing away one month later. All was really great, physically, UNTIL I went for final follow up-EP said was adjusting so battery would last longer & said would not affect anything. 2 weeks later, I felt drained-couldn't figure out why. Was getting SOB but plowed through thinking I would have to get used to it. ,Well, that was 2 years ago and I still feel miserable.
I keep telling them I feel terrible when tech checks in office every 6 mos. Was told 6 mos ago pacer was set at 70 yet now when I take my BP...


Posted by enba on 2015-07-30 03:12. 2 comments. 81 reads
 
In about a month, I will have a single chamber pacemaker implanted. I am a 90 year old male in great physical shape.I go to the gym 2-3X a week and do 100 reps on four different machines. I have had bradycardia for the past 5 years without any symptoms. Because I fear complications associated with getting a pacemaker, I have consulted three cardiologists and an electrophysiologist and they all have convinced me that I should get a PM. I also have atrial fib. My question is, "What are the odds that the PM will correct my atrial fib?" Will I feel any differently?

Posted by golden_snitch on 2015-07-23 15:25. 0 comments. 135 reads
 
Since my first blog post on this topic has provoked such an interesting discussion here, I'm happy to announce that I just published the second part. This one deals with the possible reduction of costs and in-office interrogations. Enjoy!
bit.ly/1Mq1Une

Inga

Posted by jsne on 2015-07-13 14:38. 0 comments. 99 reads
 
well five months in and my fifth PM visit. Had RR turned off and more adjustments to stop the PMT. Going back sometime for another exercise stress test as I can not really do anything very demanding. Was supposed to be going on a hiking holiday in September yet another holiday not being able to do what I love.
Went back to work after check up and was totally puffed walking upstairs to the lab, lose PMT gain SOB!!.
Asked about my high heart rate and was told that it was my own rhythm, any idea why I have started going up to 110 of and on for know apparent reason.
Not sure what is going on, the PM tech is going to speak to my Consultant so here's hoping. Feel so low but will just have to plod on.
Cheers Jane

Posted by DebbieKJ67 on 2015-07-12 20:33. 3 comments. 127 reads
 
I just joined, so I'm not sure how this club works. My primary concern is that I just had my first checkup after having this new pacemaker implanted in February. I know the nurse changed a few settings and now I seem to be getting short of breath really easy. I also have a tight feeling in my chest when inhaling. Has anyone else ever experienced this? I'll be calling my cardiologist tomorrow....

Posted by DebbieKJ67 on 2015-07-12 15:32. 0 comments. 69 reads
 
I just joined, so I'm not sure how this club works. My primary concern is that I just had my first checkup after having this new pacemaker implanted in February. I know the nurse changed a few settings and now I seem to be getting short of breath really easy. I also have a tight feeling in my chest when inhaling. Has anyone else ever experienced this? I'll be calling my cardiologist tomorrow....

Posted by anneadamsadoptions@yahoo.com on 2015-07-06 15:30. 3 comments. 122 reads
 
What is the phone number to St. jude's if you have a question about the pacemaker? We are in Arizona.

Posted by anneadamsadoptions@yahoo.com on 2015-07-05 20:27. 6 comments. 330 reads
 
Hello. My husband had a PM put in in 2013. He has bradycardia which means his own heart rate often goes lower than 60 beats per minute (which is why he needed a PM in the first place).

We have had frequent check ups and the cardiologist says the PM is working fine. It is set at 60 and is pacing him 80 % of the time. the problem is that my husband has very little energy and feels fatigued most of the time.

I keep thinking that if the doctor would adjust the settings (and set the PM at a rate of 65 or 70) that my husband would have more energy because his heart would be beating at a slightly higher rate on a regular basis and pumping blood (and oxygen) through his body more quickly thus making him feel better.
...


Posted by tactheemt on 2015-07-02 01:09. 4 comments. 223 reads
 
I had a St Jude dual chamber rate responsive pacemaker placed in 2007, and the doctor said that I had 8-10 months left on the battery the last time I had an interrogation. Less than a month later I started having strange cardiac symptoms so I went to the ER and when they interrogated the pacemaker they discovered it had gone into safe mode, and had automatically changed the settings to preserve energy. The pacer worked correctly after they removed it from safe mode and corrected the settings. Is this a normal occurrence, especially the inaccuracy of battery life? I know that since I am 100 percent paced they said they can only guestimate the actual time of battery death, however have a general idea within 6 months of knowing when the batte...


Posted by jsne on 2015-06-29 09:32. 2 comments. 137 reads
 
Can any one explain what will show if the PM has capture turned on. After my last check up they rectified the awful palpitations the previous change in settings gave me and on a day to day basis feeling better. Tried doing a hill at the weekend and felt rotten ?? PM not letting my HR go high enough. Felt sick, headache, fluttering the usual. Will this capture mode show arrhythmias not caused by the PM. The appointments aren't conducive to long discussion's as there is usually a queue, and you feel you are taking up too much time ( at least I do).
Thanks Jane

Posted by jsne on 2015-06-26 13:12. 0 comments. 165 reads
 
Had another session at the PM clinic 2weeks ago, previous visit left me with awful short frequent palps along with my ongoing symptoms. This time felt so much better and for 4 days had nothing, no tightness,fluttering, aching etc. so happy could not get over how good it was to be symptom free. Doing a bit more exercise but nothing silly.However things have slowly crept back, just had a day shopping and felt just like I did before PM.had to sit down and over the last few day the fluttering in the neck and faster HR has become a daily occurrence. Still feel good when everything is settled but so down when symptoms kick off again, was hoping for a bit of stability by now . A question for the awkward pacers - average time span to get settings ...


Posted by Stillrunning on 2015-06-23 14:52. 5 comments. 224 reads
 
I posted a like to my settings on my profile page, I've tried varrious ways to copy and paste them but not smart enough to make it happen, so here's my issue, I haven't been on for a long while as I gave up fighting the system and have left those settings untouched for about 8 mths now,
When I run my HR increases most times to 160-170 range for up to 8-12 maybe even 16 mins then will come down to 90-100 and stay there untill I fight through shortness of breath till I finish my 4 mile 9:30-9:45 min pace run or stop to walk a few secs 10-15 once I do this my HR will not raise and I walk jog in to finish. Then if I did have to walk my next 2 to 3 runs are terrible. HR stuck below 110,,, if I wait a couple a days or go out and push throug...


Posted by scott02467 on 2015-06-21 11:21. 4 comments. 245 reads
 
I might have posted this in the wrong forum so here it is here where I think it belongs:
I seem to be in the middle between my cardiologist and Merlin: we just discovered that in electrical work done in renovating our 100 yr old house in May that the workers cut the phone line to the master bedroom where my Merlin montoring unit sits. I clarified with Merlin Tech Support that they had not seen an update from my monitoring unit since May 24th. They said most hospitals have a protocol to call the patients when no data is received after a period of time (they suggested 1-2 weeks). Since it was almost a month without my doctor seeing any data, I was concerned in case something had happened with my pacemaker meanwhile. Merlin support also ...


Posted by Lizzie on 2015-06-18 07:36. 2 comments. 162 reads
 
Hi everyone,
6 months ago I was reading the print out from my last PM check and noticed that the AFib suppression algorithm was switched off. As I had had a lot of AFib episodes I asked why. Was told that they thought it probably didn't work. I then asked would it do me any harm if it was turned on. Answer...no. So requested it be turned on. I don't know whether it was that or the double dose of Magnesium that I started taking, but at the next check...no AFib. at all. I am wrapped!
Just thought it worth passing on. I have a St. Jude Zephyr put in for sick sinus syndrome in 2009.

Posted by karuss12 on 2015-05-17 01:29. 1 comments. 135 reads
 
I have had my St Jude dual lead pacer since the middle of Feb 2015 for SSS. I am trying to learn everything I can re the Pacemaker. What questions should I ask at my next Pacemaker check. Do I need any reports? The only information I'very received so far is how often it is pacing (ie 43%).

Posted by jsne on 2015-05-16 08:26. 2 comments. 136 reads
 
Hi folks, have just received a letter from consultant re. my 3day monitor. Showed up palpitations and I think he means to say pacemaker induced tachycardia(letter says pm medicated) so a clinic appointment is on it's way. Any tips on what settings may need changing , I have RR switched on as I said I felt as though I hit the wall when trying do exercise - however this was probably due to the heart block kicking in.
Hope they can improve things as when feeling well I feel so good but still get bad spells.
Is it ok to feel the wires above the PM I am very scrawny but they feel very near the surface, tried a bit of kayaking felt good but was aware of the PM rubbing a bit from the inside.
Still life is good.
Jane

Posted by primaldiva on 2015-05-11 16:19. 12 comments. 432 reads
 
My electrophysiologist at University of Pennsylvania does not know the ins and outs of the Medtronic Adapta, that was designed for the peculiar and specific needs of cardiac athletes. Unfortunately, even though we have switched around a few settings, they are still not willing to make the changes I need to have the device work properly when I am NOT exercising. The device is working when I am exercising. However the irritation from the device has damaged and enlarged my right ventricle, so now my ejection fraction is down to 40% on that side, from 65%. I just had a cardiac MRI.

My diagnosis is second degree heart block, basically a type 1 variant since the block is at AV node. I started being paced at implant 9% ventricularl...


Posted by jjiggers on 2015-05-09 20:43. 5 comments. 299 reads
 
I posted last week with questions about my upcoming 4 week check up...with the tech...you were right...he said all was working great and that was it...when I told him I was still having exactly the same symptoms I was having before the PM ( the feeling that I am going to pass out) and I'm having them just as frequently, he seemed to dismiss it. and said it wasn't showing up...I asked if I shouldn't be seeing the EP sooner than 4 months if I'm having problems, so he took me to the nurse and got me an appointment in two weeks.

I am feeling very frustrated and like I got the PM for nothing.. I wasn't feeling tired and was doing vigorous activity several times a week before the PM and am still doing the same, with the same symptoms...


Posted by sewblessed on 2015-05-09 12:18. 5 comments. 209 reads
 
Is there a guide line for first year check ups? How often, What to expect at an appointment? I know docters are different...just wondering.

Posted by Muhasmet on 2015-05-08 16:11. 0 comments. 138 reads
 
I have a Pacemaker Boston Scientific since January 16 2015. Atrial fibrilation and sick sinus syndrome. I have a mechanical mitral Valve since 1989. Since april 25 2015 My heart jump for instances and stop...and repeat it. Next monday may 11 2015 Im going to see the Surgeon. Who have this experience.



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