St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Checkups & Settings Forum



Posted by cookenzopy on 2014-10-20 16:46. 7 comments. 138 reads
 
Does the rate response setting of a dual lead pacemaker affect sporting? My PM rate response is set between 60 and 140 bpm. When I am cycling I have the feeling that 140 bpm is too low. It is not my maximum heartrate because I am not running out of breathe at that rate. At least 150 bpm should be better but I don't know if that upper setting of RR at 140 bpm is limiting my max heart rate during cycling. Is there anyone who could explain the effect of rate response and sporting to me?

Posted by matkim6 on 2014-10-14 22:03. 1 comments. 152 reads
 
Due to damage during ablation/flutter/av node reentry/6 ablations total, I have now had my av node ablated due to pacemaker syndrome/av dissociation/dyssynchrony/tachycardia history plus 3rd degree heart block. I am 45 female and very active, working out intensely 3x a week with walking 2 other days, struggling with hypotension and lightheadedness during exertion. During a stress test my blood pressure dropped to 68/40 almost fainting due to several skipped beats in a row, still having av dyssynchrony. Ended up working the biotronik to the max, am now at the lowest setting possible for PVARP at 175, AV delay 100. The problem is the P wave was hitting outside the PVARP. There is definite delay in sensing atrial activity from the onset of t...


Posted by keylymepie on 2014-10-14 19:50. 1 comments. 147 reads
 
I got my pacemaker 3 weeks ago and at that time was told that I would never pace from the ventricle unless I was in heart block or had a heart pause.

My pacemaker was for bradycardia, to prevent sudden drops in heart rate, one heart pause, and hypotensive fainting (the Biotronik also helps spike heart rate in response to changes in cardiac output/low BP).

My maximum is 155 and my minimum is 80. Today as I was walking I was paced at 155 consistently. Eventually I got over 170 intrinsically and then I had SEVERE painful palpitations which dropped me to the ground. It felt like when they tested the ventricular lead at max voltage during the surgery (I was not sedated). I went back to 155 for a while and it happened aga...


Posted by alexisbagel on 2014-10-09 09:42. 1 comments. 211 reads
 
Hi all! I'm wondering if anybody could shine some light on how far in advance you were notified you'd be getting an ICD replacement.

Some info:

After a cardiac arrest event, the Cleveland Clinic discovered I had long q t syndrome. I got a St. Jude defib implanted August 2008. I go for check ups annually. I'm about to need a new defib. I usually send a remote transmission annually (and visit the CC once a year) but I'm now sending transmissions about every 4 weeks. I was told by the CC that next I'll be sending them a transmission every 2 weeks, then I'll get the surgery. But the CC hasn't given me much of a time frame for the surgery. So I'm wondering if anybody has experience with how quickly you go from sending biw...


Posted by harlemflash on 2014-10-05 15:34. 0 comments. 90 reads
 
I had a two wire pm and would be phone checked every month with a physical check every quarter. just had a new three wire boston scientific inserted and not required to get tested for 6 months. Any ideas why the difference?

Posted by Cycler on 2014-10-04 07:13. 0 comments. 69 reads
 
Interference from cable land line and distance from router to bedroom necessitates transmitting my heart data via cell. The provider St Judes uses, uses T-Mobile and AT&T, are unavoidably 2G. No higher G available that St Judes uses.

Assuming brand of medical equipment is irrelevant, is there any reason why 2G is NOT sufficient to transmit "basic" heart data from ICD to the clinic?

Anyone out there with positive experiences using 2G? Anyone with negative? Thanks!

Posted by stricsm on 2014-10-03 16:15. 6 comments. 269 reads
 
Went for my six week checkup post implant and everything is good. I have a 1/2 AV heart block, so the top of my heart paces the bottom. They have my pacemaker set to not let my heart beat less than 60bpm or greater than 130bpm. So if I understand it correctly, if the top of my heart beats 140bpm the bottom will not exceed 130bpm.

Before my pacemaker I couldn't exercise very easily, now enjoy walking again. I'm 53 but ~30# overweight (although I don't look it according to my wife). I'm wondering if a top heart rate of 130bpm is typical? It seems a little low to me. Your thoughts are appreciated in advance.



Posted by raymac on 2014-10-01 05:25. 0 comments. 119 reads
 
I had a PM fitted recently because of Brandacardia I have 38-9 HB
the Soran unit fitted, set a tick-over rate of 60 - 7- variable, and my own signal is supposed to take over after that,
I Initialy had the unit set to accelerate as needed, but I found I walked across the Rd with my dog and my pules was at 110; and felt like butterflies inside,
the Tech said ho you'll get used to that, But NO way it was terrible, he called it PACING the bottom chamber, I couldnt stand the feeling ' so now I have it on the Tick-over mode 60-70 only, BUT as I said I have this LAG from 70 to say 80 .
Id start doing some stressful work and BANG BANG my heart jumping and Palps, Id take my pules...70 not enough ?
so any one out ...


Posted by KeelyLatterner on 2014-09-30 14:05. 4 comments. 204 reads
 
Hello,

I am quite nervous about my first pacemaker check up today. It has been approximately 6 weeks since my dual chamber MRI safe pacemaker was put in. I'm diagnosed with genetic Long QT and was suffering with bradycardia and asystole - over 5 second pauses.
I have felt a difference with the pacemaker, but I also feel some unusual sensations since the implant that I didn't feel before. For example, sometimes my heart really thumps! I don't know if that's how a normal heart beat should feel and I have just been so used to a slow and silent one.... I also often feel what I can only describe as a small bubble bursting. Like you blew a bubble with chewing gum and then it popped. It doesn't hurt or is painful, but I have just...


Posted by ERER on 2014-09-29 22:54. 2 comments. 223 reads
 
I'm on my 3rd pacemaker in almost 20 years and am always mindful to ask questions if I don't understand something during pacemaker interrogations but one thing I've noticed on the printout is "no episodes." What exactly does that mean? I did ask once and the technician said cardiac episodes, but what constitutes a cardiac episode on a pacemaker?

Posted by Alrajhi on 2014-09-28 21:24. 4 comments. 204 reads
 
hi all,

its my 3d year on pacemaker and I'm 34.

last weekend i had dinner with a whole bottle of wine and the next day i felt my heart was different beating a lot harder and early beats is making me crazy .

im not comfortable and i think i messed up any one dealt with such a thing before ?

Posted by vbpoppy18 on 2014-09-27 00:42. 4 comments. 365 reads
 
How strong of a magnet is needed to make the pacemaker enter magnet mode? Are we talking like ice box magnets or what?

Posted by vbpoppy18 on 2014-09-25 15:37. 6 comments. 205 reads
 
I am turning 21 in less than a week. I had a pacemaker implanted in 2012 when I was 18. I vowed to myself that I would not let this define me as the "guy with a pacemakeer". I went to my follow up check and sent in a reading at the 3 month mark. Then I lost insurance for a while and then got too busy! I now work at oreilly auto parts and they don't know that I have a pacemaker. Lately, It seems as if my heart is racing! I live 5 hours from my pacemaker doctor and am a student so I cannot just drop everything and make a trip! I am going to a primary care doctor. I hope he will set me up with a doctor that is a lot closer to me! But my question is how easy is it to switch doctors like that???

Posted by becky1958 on 2014-09-23 00:23. 9 comments. 189 reads
 
Hi everyone! I am so glad to have found this site! I am 56 and had my pacemaker unit put in 10 days ago. I go Wednesday to my first checkup to have staples removed. My pacemaker site is very sore under the bandage( I can only imagine what it looks like) My question is , does it hurt to have the staples removed?

Posted by Bxpacer on 2014-09-21 21:50. 4 comments. 249 reads
 
I recently had my 6 month pacemaker check and every time the test that slows down the heart occurs, I get very dizzy and have trouble breathing almost instantly and they have to stop that test. Every other part of the check up is fine. I was wondering if anyone else had this and if you think this will be problematic when it;s time to replace the device in about 2 years. Thanks.




Posted by orca58 on 2014-09-21 16:16. 4 comments. 204 reads
 
I seen a message or quote the other day
the person mentioned something about
fine tuning .
when you say that , did they adjust your heart rate ,
when I went down my heart was only beating
40 beats per minute, now it's set at 60.
my question is , what else can they adjust ?

Posted by Teijee on 2014-09-19 22:48. 3 comments. 251 reads
 
I was wondering does a pacemaker response to anxiety and hyperventilation? For instance you are lying on the couch and you are watching a scary movie does your pacemaker know it has to increase the heart rate?


Posted by Beckes76 on 2014-09-19 15:13. 0 comments. 75 reads
 
It has been almost 10 months since I got my 5th PM.....I had it done the day before Thanksgiving 2013. I just got my PM checked the other day. Very good news. My upper lead is working 1/3 of the time and the bottom lead is working all of the time. I still have 10 1/2 to 12 1/2 years left on the battery. My PM that has been the longest has been 8 1/2 years. I had that one fitted in January 1997 and replaced in July 2005. I have complete heart block.

Becky

Posted by curiousjbird on 2014-09-15 14:55. 2 comments. 216 reads
 
I'm having my first follow up visit this week, 12 days after getting my pacemaker. I know the rep (Medtronics) will be scanning my device. When she did it initially at the hospital I was still recovering and didn't ask a lot of questions. Now that I am more with it, I'm wondering what type of detail she is going to be able to give me on how my device is working? Will it just be % paced? Or will they be able to see when it is being used more (i.e. at night?). What kind of info can they print out for me to take home? What are good initial questions to ask to make sure I get my settings right? Thanks.

Posted by lauram65 on 2014-09-14 14:15. 5 comments. 203 reads
 
Hi everyone,

I am three weeks out from having a dual pacemaker installed. I feel great, except they have set it so my heart rate does not fall below 60. I am tired two hours after I get up. I am taking naps everyday, which I never did. My follow up with the PM manufacturer person is not for another month. Is anyone else experiencing fatigue?




Member Login
email:

password:



Who's Online?
We have 806 visitors online.

Members online:
  wjs1954
  Daisho
  2foot6
  AngrySparrow1
  Jala
  ShaD.
  dphoenix
  pacingdiva
  thrill2retire
  donb
  bluebowtye
  -AWL-
  jpotts

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
Your signature looks like an EKG.

Member Quotes
I can honestly say that I am feeling absolutely amazing!

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.