St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by nato on 2015-08-28 02:22. 1 comments. 59 reads
 
Hi All,

My son is 3 yrs old and had his pacemaker when he was at 8mths old.Recently he had an echo done and the results are as follows;
Normal dimensions,normal function,trivial tricuspid regurgitation and normal right ventricular pressure.

Question,
With regards to trivial tricuspid regurgitation I have done some research online and it's proven to be nothing serious and of little importance.

Can someone on the club please share their knowledge who had a case like this and what was the outcome.

Thanks and appreciate your feedback.

Posted by Energy on 2015-08-26 19:05. 8 comments. 135 reads
 
I have St Jude and recently had the rate response turned on by device nurse..dr. Said not having it turned on is like driving your car in 4th gear? Anyway I notice when I get up after setting or when I am working in the yard like today... My heart rate jumped up to 110 (approx) I felt winded and came in and rested a bit and it went back to normal. I also talked w the device nurse and she said they could turn response down to medium? Just trying to figure this all out... I am very physically active and not out of shape....

Posted by marmite on 2015-08-26 09:33. 5 comments. 194 reads
 
Hi, could anyone help me with the following terminology and what it means? I know what the initials stand for, but I don't understand what it means in terms of what is happening and why. I seem to have been paced for years in the ventricles at very high rates and now it is down to 0%.

I have a Sorin Symphony DR2550 pacemaker.
It was initially set to AAIR safe mode, but switched automatically to DDDR before my first check. It was switched back to AAIR safe but switched back to DDDR mode again. DDDR has been left in place for 7 years now.

These are the readings I've been getting which I am struggling to understand:

2 x MS (mode switches?)lasting 1hr 38mins,
10 x PMTs
PVAB up to 180.
S...


Posted by marmite on 2015-08-19 14:32. 3 comments. 218 reads
 
Hi,
I was a member here a few years ago and it lapsed.
I got diagnosed with Neurocardiogenic Syncope, bradycardia, ectopic beats and chronotropic incompetence when I came off an SSRI drug for anxiety. I've since discovered that it has associations with cardiac issues.
My consultant is currently looking at my settings which were in DDDR mode. My ventricular pacing had gone sky high above 80% and it appears that my atrial pacing has been at a similar level since implantation.
They've reduced the ventricular pacing to 0% by elongating the algorithm and got atrial pacing to 65% by changing the base rate to 50bpm, but I'm exhausted when I do any prolonged activities and my BP goes very low.
Is this the chronotropic i...


Posted by djmann on 2015-08-18 18:27. 1 comments. 153 reads
 
Hello,
December 2010 I had my second Dual Lead Pacemaker
implanted. A SEDRO1 model. different from the previous Kappa. This time I was scheduled for every 4 months pacecheck ups. By the end of 3 months I was experiencing
leg pain, night time Charlie horses, some swelling in ankles and fatigue. After the pacecheck appt. I walked out of there symptom free! As the years went on, the symptoms prior to the checkup date increased. I told the pace tech and would get some relief for a while. I have sick sinus syndrome, caused by a viral attack of my heart in 2003, now think I am dependent on pacemaker. I phoned the clinic last month and noted that after the pace check that I was experiencing bright pink flushing of my extrem...


Posted by jjiggers on 2015-08-17 22:01. 8 comments. 258 reads
 
Hi Friends,
I had my second PM check today. I'l still having the "feeling like I'm going to pass out" symptoms that got the the PM to begin with. The tech told me I had had over 1.2 million PVC's since my last check in May. Can't seem to get and answer that I understand for why this is happening, but they insist that my HR will never go below 60. I now have a fitbit HR and I know that is not as accurate as it could be, but it OFTEN goes down to the low 50's and even the high 40's. During these times, I would swear that I can actually feel my heart slow down...maybe it's just the PVC"s.

Wish there were more Drs. with PM so they would know what you are describing when you express, "funny" feelings;

You guys are th...


Posted by candi on 2015-08-11 21:03. 2 comments. 186 reads
 
I have a check up the 21st with my cardiologist and want to discuss the pain I am having with him. How do you tell if it is angina? I have pain fairly often in chest, many times on R side as well as across back. Pacemaker really doesn't show any major abnormality, occasionally afib. Is it angina or something else?

Posted by kevalo on 2015-08-10 23:51. 4 comments. 171 reads
 
Should I monitor my heart rate to see if the settings are set correctly?

Posted by jsne on 2015-08-10 17:19. 1 comments. 149 reads
 
Just back from my exercise stress test. Had a quick check with the PM tech to look at some settings then on to the treadmill. Noticed HR was up however carried and as it became a bit more demanding could feel the tightness etc starting, then guess what, HR went from 136 to 71. yep I was going into heart block, hence feeling just like I did before the PM. So a few more adjustments to stop that, Tech spoke to consultant about what had showed up and what was changed, max tracking rate and upper limit were 2 that I understood. Also asked the question of antiarrhythmic meds, and she said they will get back to me soon.
So no tears and progress!, the OP was the easy bit. Good to feel 1 I wasn't going mad and 2 much more positive.
Still ...


Posted by jsne on 2015-08-09 09:43. 1 comments. 116 reads
 
Ian, a bit scary you seem to know me so well. Yes I do find it hard to be assertive, have said to the tech how I have felt but I think I may play it down. (only kept off school if my leg was hanging off or i was covered in spots) have always tried to get on with it. Random BP and HR readings average 108/73/104 and I feel yuck. Even having a shower can have me feeling puffed and as though my BP is through my feet. At night it is as though my pulse is too strong a real pulse, pulse, and the next day have a hangover sort of feeling, (headache, dehydrated).
Have got some numbers at the ready and will do my best not to end up in tears ha ha.
Roll on 4pm Monday.
Jane x

Posted by jsne on 2015-08-08 11:23. 2 comments. 158 reads
 
Finally going for my exercise stress test on Monday to try and see what else is going on with my pacing/arrhythmia. Nearly 6 months post PM and still having huge problem exercising. (even walking from car park and up the stairs to work)Have read posts where some of you seem to be able to work with the technicians and or EP folk. Was this at your own request or via your existing Consultant. I don't see mine until the end of September and have been thinking of asking to be referred to a specialist in arrhythmias, as they will see more problem cases and I can't believe I am that unusual. (not after reading messages here). Was 53 yesterday and maybe expected to much to soon, but had hope to be more consistent by now.
Did once took a beta...


Posted by jessie on 2015-08-08 00:26. 0 comments. 79 reads
 
i received my medtronic dual lead pacemaker in 2006 for braddychardia. this past week i went for a checkup and will return next april to see where things are at. it says i have two and a half years of life left.sometimes it drains quickly near the end of the life. i will see. anyway feel confident that they know their job. jessie

Posted by ChainLeg on 2015-08-06 21:00. 5 comments. 235 reads
 
Hello all, what a wonderful resource this website has been as I begin this transition with you. Thanks to all who comment.

I am a man of 57 and was previously in excellent physical condition before declining for a few months due to a Level 3 AV block and subsequent 2 lead Medtronic PM install 8 weeks ago.

My question is that I struggle daily with shortness of breath after simple exertion. I am able to walk 3 miles feeling fine except the uphills, but I do not seem to be improving in my cardio capability. At first I accepted this as initial recovery, but now as I continue exercising daily there is no cardio improvement. I am so far from my original fitness level of six months ago - capable of maybe 10% of what I c...


Posted by liteppie on 2015-08-04 18:56. 2 comments. 187 reads
 
Last week, my wife , after 10 years had her ST.Jude generator changed. No problems or complication. Today, She went to cardiologist and was nseen by a PA, and the St Jude tech that was in the OR. She was given a Merlin@home transmitter and was told to use this at night to moniter ther pacer. She never had to do this before. Does anyone have any experience or information about the device? Any help would be appreciated.

Posted by jwbarber on 2015-08-02 15:08. 2 comments. 186 reads
 
I have a fib my rest heart rate use to be in the 60's now my Dr has it set at 80. I really didn't get talk to her after. Does anyone know why she would set it that high. Now when I'm just walking around it goes in the 100's

Posted by heart2heart on 2015-07-30 16:21. 3 comments. 296 reads
 
I had a pacer implanted in April of 2013 due to a pulse of 38-46 and am on no meds.
Felt awesome in hospital & would not have been able to endure the stress, mental & physical, of my husband's illness which resulted in his passing away one month later. All was really great, physically, UNTIL I went for final follow up-EP said was adjusting so battery would last longer & said would not affect anything. 2 weeks later, I felt drained-couldn't figure out why. Was getting SOB but plowed through thinking I would have to get used to it. ,Well, that was 2 years ago and I still feel miserable.
I keep telling them I feel terrible when tech checks in office every 6 mos. Was told 6 mos ago pacer was set at 70 yet now when I take my BP...


Posted by enba on 2015-07-30 03:12. 2 comments. 164 reads
 
In about a month, I will have a single chamber pacemaker implanted. I am a 90 year old male in great physical shape.I go to the gym 2-3X a week and do 100 reps on four different machines. I have had bradycardia for the past 5 years without any symptoms. Because I fear complications associated with getting a pacemaker, I have consulted three cardiologists and an electrophysiologist and they all have convinced me that I should get a PM. I also have atrial fib. My question is, "What are the odds that the PM will correct my atrial fib?" Will I feel any differently?

Posted by golden_snitch on 2015-07-23 15:25. 0 comments. 215 reads
 
Since my first blog post on this topic has provoked such an interesting discussion here, I'm happy to announce that I just published the second part. This one deals with the possible reduction of costs and in-office interrogations. Enjoy!
bit.ly/1Mq1Une

Inga

Posted by jsne on 2015-07-13 14:38. 0 comments. 180 reads
 
well five months in and my fifth PM visit. Had RR turned off and more adjustments to stop the PMT. Going back sometime for another exercise stress test as I can not really do anything very demanding. Was supposed to be going on a hiking holiday in September yet another holiday not being able to do what I love.
Went back to work after check up and was totally puffed walking upstairs to the lab, lose PMT gain SOB!!.
Asked about my high heart rate and was told that it was my own rhythm, any idea why I have started going up to 110 of and on for know apparent reason.
Not sure what is going on, the PM tech is going to speak to my Consultant so here's hoping. Feel so low but will just have to plod on.
Cheers Jane

Posted by DebbieKJ67 on 2015-07-12 20:33. 3 comments. 224 reads
 
I just joined, so I'm not sure how this club works. My primary concern is that I just had my first checkup after having this new pacemaker implanted in February. I know the nurse changed a few settings and now I seem to be getting short of breath really easy. I also have a tight feeling in my chest when inhaling. Has anyone else ever experienced this? I'll be calling my cardiologist tomorrow....



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