St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by ellen148 on 2014-11-15 07:20. 5 comments. 358 reads
 
Hi everyone, I had a Biotronik evia pacemaker fitted at the end of June this year and have had 2 visits to pacing clinic. I spoke to the doc the first time and told him that I'd had a funny turn whist out with my 2 young children. We'd climbed quite a steep, tall hill and half way up i felt like I was going to collapse. It was like I needed a higher heart rate but didn't have it.

He just said he'd have a look at the data and see what was going on and that was it!

The last visit 2 weeks ago I had 2 doc/technicians whispering that something was a bit high but when I asked what they were talking about they didn't tell me. They both said that I didn't need to be seen for 6 months but to be sure to call the clinic if I ...


Posted by flowerapril429 on 2014-11-14 11:33. 4 comments. 377 reads
 
Hi all,
I have had my PM for 2 yrs and have had some issues with SVT. I get my pm interrogated every 6 months and it usually shows that I have about 10 episodes of SVT. I went yesterday for my 6 month checkup and was told that in the last 6 months, I have had over 580 episodes of SVT. Big jump from the previous 6 months. Not only that but while at the dr, I was having SVT, my pulse was 171. My dr gave me Metoprolol and said that if we couldn't get it lower, he was going to send me next door to get adenosine (yuck!!) I have had it a total of 6 times and it sucked.
Last Xmas, I was admitted for SVT and was given 3 doses of Adenosine and was told I would get an ablation but when the EP came in, he said no to the ablation. Now I ...


Posted by jossikins on 2014-11-11 08:36. 4 comments. 233 reads
 
Hi! I am new to this group and discovered it while surfing the net in an attempt to identify my present problem. I was fitted with a pacemaker last March because, in spite of having AF, my heart had on just one occasion dropped very low. However, soon after having it fitted, I went into serious AF, and my heart rate never dropped below 110. So, the PM lay dormant below my left shoulder until three weeks ago, when I had an AV Ablation, which was pronounced successful. And so it seemed to be until day 4 when I attempted to climb a flight of steps rather quickly in order to catch my train.. My knees went out from under me just as I reached the top and I was gasping for breath and my whole body was shaking, as if I was in shock. As soon...


Posted by DJDIV on 2014-11-10 12:50. 1 comments. 165 reads
 
Any members have experience tweaking pacemaker settings for
lower rate, rate response, activity threshold, activity acceleration?

Posted by Dave H on 2014-11-09 12:06. 2 comments. 204 reads
 
Hi Gang! After numerous ER visits 2010 to early 2012, I gave up on ablations (3 failed, 1 aborted) as a pathway to cure my paroxsymal A-Fib issue and gave the doc permission to implant a PM. He implanted a 3-lead Medtronic C4TR01 Consulta to deal with my mild Cardiomyopathy. Life's been much more pleasant since. I have the patient manual, but I haven't had a face to face talk with any EP or cardiologist about how this device actually works for me. Did I have a complete AV node ablation? Is my device pacing 100% of the time? What does the term "Mode switch" actually mean? etc., etc. I currently have remote downloads every 3 months along with a "device clinic" visit twice a year. A cardiologist (not an EP) receives the D/L report and ...


Posted by Griddlebone on 2014-11-07 23:39. 3 comments. 290 reads
 
I had my pacemaker implanted Sept. 18. I saw my regular doc for a wound check 5 days later, then the cardiologist at the end of September. He did an interrogation and said I had atrial sensing (yay) and ventricular pacing (ok, fine), with 96% pacemaker driven. Wow, I was surprised the number was so high. My voltage was 3 V. This was the first cardio I talked to in the hospital but he was not available for surgery so his colleague did the surgery.

I saw the second doctor, the one who did the surgery, a month later at the end of October. There was a minor wound care issue which was resolved. I talked to him about the strange burbly sensations under the sternum and he said he didn't feel they had anything to do with the PM. We talk...


Posted by Tinkergirl on 2014-11-07 17:28. 8 comments. 286 reads
 
Do you find that the St. jude representative is not allowed to tell you what they see on the report?

Posted by hovancsek on 2014-11-02 13:59. 7 comments. 189 reads
 
Had my Boston Scientific PM placed in May 2014. I had SSS and was having very low rate and BP and pauses/dizziness. The dizzy episodes have greatly decreased but I often feel like I am short of breath or breathy when I am doing only light exhursion. I am active (walk 3 miles/day) and a dog walker and don't have a lack of energy but I am beginning to wonder if my PM is set too low(rate seems to be in 60s) all of the time. Last checkup I was only using it ~20% of the time. My next check is January but wondered if I should call sooner?
Marcy

Posted by fontanamen5 on 2014-10-29 20:27. 4 comments. 344 reads
 
went to the pacemaker clinic today and was told pacemaker being used at 90%. Has significantly went up over the last 2 years. was told that my pacemaker is set to "trigger" on in the mid 50's range. But then told also that my heart rate drops to the 30's at sleep. is this possible? I thought it would not drop below where pacemaker was "set". Comments appreciated.

melinda (new member)

Posted by becky2014 on 2014-10-29 14:36. 4 comments. 255 reads
 
Has anyone been in a similar situation. I have had my present PM for coming on 13 years. I had been attending my local hospital for check-ups every month as the battery was getting low.

On my last visit the PM technician told me that my PM needed changed and that my check-up report would be forwarded to the relevant consultant. I have since discovered that the consultant has placed me on a waiting list for a replacement PM but while I await the replacement surgery I no longer receive monthly check-ups.

I am anxious in case my health deteriorates in the meantime, if so what is the best action to take.




Posted by danfss03 on 2014-10-25 11:32. 2 comments. 269 reads
 
Had my first pacemaker implanted in 2009, and I thought everything was going great. This was a two lead device, and the lower lead went bad a couple of years ago. We continued to monitor the device, both at home and physical visits at the doctor's office. Two months ago I did my home device check, and two weeks later I got a call from the doctor for an appointment, and since I didn't have one scheduled, I almost refused. Well went in, and the Medtronic Specialist did her thing, and the doctor came in for a chat. Well it appears my device was not pacing as required Not only was the lower lead not working, but the upper lead was pacing on a part time basis, and I didn't feel a thing. The doctor showed me the EKG and the heart had been skip...


Posted by cookenzopy on 2014-10-20 16:46. 7 comments. 446 reads
 
Does the rate response setting of a dual lead pacemaker affect sporting? My PM rate response is set between 60 and 140 bpm. When I am cycling I have the feeling that 140 bpm is too low. It is not my maximum heartrate because I am not running out of breathe at that rate. At least 150 bpm should be better but I don't know if that upper setting of RR at 140 bpm is limiting my max heart rate during cycling. Is there anyone who could explain the effect of rate response and sporting to me?

Posted by matkim6 on 2014-10-14 22:03. 1 comments. 308 reads
 
Due to damage during ablation/flutter/av node reentry/6 ablations total, I have now had my av node ablated due to pacemaker syndrome/av dissociation/dyssynchrony/tachycardia history plus 3rd degree heart block. I am 45 female and very active, working out intensely 3x a week with walking 2 other days, struggling with hypotension and lightheadedness during exertion. During a stress test my blood pressure dropped to 68/40 almost fainting due to several skipped beats in a row, still having av dyssynchrony. Ended up working the biotronik to the max, am now at the lowest setting possible for PVARP at 175, AV delay 100. The problem is the P wave was hitting outside the PVARP. There is definite delay in sensing atrial activity from the onset of t...


Posted by keylymepie on 2014-10-14 19:50. 1 comments. 276 reads
 
I got my pacemaker 3 weeks ago and at that time was told that I would never pace from the ventricle unless I was in heart block or had a heart pause.

My pacemaker was for bradycardia, to prevent sudden drops in heart rate, one heart pause, and hypotensive fainting (the Biotronik also helps spike heart rate in response to changes in cardiac output/low BP).

My maximum is 155 and my minimum is 80. Today as I was walking I was paced at 155 consistently. Eventually I got over 170 intrinsically and then I had SEVERE painful palpitations which dropped me to the ground. It felt like when they tested the ventricular lead at max voltage during the surgery (I was not sedated). I went back to 155 for a while and it happened aga...


Posted by alexisbagel on 2014-10-09 09:42. 1 comments. 288 reads
 
Hi all! I'm wondering if anybody could shine some light on how far in advance you were notified you'd be getting an ICD replacement.

Some info:

After a cardiac arrest event, the Cleveland Clinic discovered I had long q t syndrome. I got a St. Jude defib implanted August 2008. I go for check ups annually. I'm about to need a new defib. I usually send a remote transmission annually (and visit the CC once a year) but I'm now sending transmissions about every 4 weeks. I was told by the CC that next I'll be sending them a transmission every 2 weeks, then I'll get the surgery. But the CC hasn't given me much of a time frame for the surgery. So I'm wondering if anybody has experience with how quickly you go from sending biw...


Posted by harlemflash on 2014-10-05 15:34. 0 comments. 143 reads
 
I had a two wire pm and would be phone checked every month with a physical check every quarter. just had a new three wire boston scientific inserted and not required to get tested for 6 months. Any ideas why the difference?

Posted by Cycler on 2014-10-04 07:13. 0 comments. 110 reads
 
Interference from cable land line and distance from router to bedroom necessitates transmitting my heart data via cell. The provider St Judes uses, uses T-Mobile and AT&T, are unavoidably 2G. No higher G available that St Judes uses.

Assuming brand of medical equipment is irrelevant, is there any reason why 2G is NOT sufficient to transmit "basic" heart data from ICD to the clinic?

Anyone out there with positive experiences using 2G? Anyone with negative? Thanks!

Posted by stricsm on 2014-10-03 16:15. 6 comments. 354 reads
 
Went for my six week checkup post implant and everything is good. I have a 1/2 AV heart block, so the top of my heart paces the bottom. They have my pacemaker set to not let my heart beat less than 60bpm or greater than 130bpm. So if I understand it correctly, if the top of my heart beats 140bpm the bottom will not exceed 130bpm.

Before my pacemaker I couldn't exercise very easily, now enjoy walking again. I'm 53 but ~30# overweight (although I don't look it according to my wife). I'm wondering if a top heart rate of 130bpm is typical? It seems a little low to me. Your thoughts are appreciated in advance.



Posted by raymac on 2014-10-01 05:25. 0 comments. 203 reads
 
I had a PM fitted recently because of Brandacardia I have 38-9 HB
the Soran unit fitted, set a tick-over rate of 60 - 7- variable, and my own signal is supposed to take over after that,
I Initialy had the unit set to accelerate as needed, but I found I walked across the Rd with my dog and my pules was at 110; and felt like butterflies inside,
the Tech said ho you'll get used to that, But NO way it was terrible, he called it PACING the bottom chamber, I couldnt stand the feeling ' so now I have it on the Tick-over mode 60-70 only, BUT as I said I have this LAG from 70 to say 80 .
Id start doing some stressful work and BANG BANG my heart jumping and Palps, Id take my pules...70 not enough ?
so any one out ...


Posted by KeelyLatterner on 2014-09-30 14:05. 4 comments. 291 reads
 
Hello,

I am quite nervous about my first pacemaker check up today. It has been approximately 6 weeks since my dual chamber MRI safe pacemaker was put in. I'm diagnosed with genetic Long QT and was suffering with bradycardia and asystole - over 5 second pauses.
I have felt a difference with the pacemaker, but I also feel some unusual sensations since the implant that I didn't feel before. For example, sometimes my heart really thumps! I don't know if that's how a normal heart beat should feel and I have just been so used to a slow and silent one.... I also often feel what I can only describe as a small bubble bursting. Like you blew a bubble with chewing gum and then it popped. It doesn't hurt or is painful, but I have just...




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