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Messages in Checkups & Settings Forum



Posted by BRP on 2013-04-21 19:08. 0 comments. 70 reads
 
hi every one I go back to the doctor may2 for my first ck up I ben doing so so it be four weeks Tuesday when I got my pacemaker.

Posted by juju on 2013-04-21 02:08. 6 comments. 253 reads
 
Hi to all. Been having some problems and need expert advice. So I had my 1st PM put in on 4-09. Surgery went well and so has the healing process. Cardio Dr. set the PM low rate at 70 and upper 130. The first week I felt very dizzy with very queasy stomach but felt more energy. I called and the Dr had me come in on the 16th along with a Medtronic's rep and they checked everything and all was good. I was also having more problems with the PAC's. They reset my PM low setting to 80 and thought that would help me not "feel" the PAC's so much. Also took me off beta blocker Metroprolol (spelling is wrong) which was the lowest dose you can get to see if this would help with the dizziness. Dr also made a comment "you may have to just live...


Posted by Deppygore on 2013-04-19 23:02. 4 comments. 169 reads
 
I had my first check up today. I got my pm for syncope, and it is set with a rate drop response and a minimum. The minimum was 60 and he changed it to 50. I was expecting to hear it hadn't paced much, but apparently it was in use 458 times in the last 8 days! So lowering the minimum will probably lower that a lot. They said it was used approximately 17% of the time. I had a couple episodes where I had a rate in the 170s before it plummeted. I don't know why, as I've done nothing more than lay in bed. Sure am glad I got this pm! I did really hate the feeling when they sped up my hr...it freaked me out quite a bit and was very uncomfortable. It would've been nice for him to give me some warning. I think next time I will ask him to tell me ex...


Posted by Deppygore on 2013-04-18 19:16. 2 comments. 154 reads
 
Hi all, it has been one week since I got my pm and my first checkup is tomorrow. I think I'm recovering well, but I do have some weird feelings every now and again. Last night as I was trying to fall asleep, I had a pain that hurt with every heartbeat which I could feel very strongly. I tried to find a better sleeping position but it didn't make any difference. It lasted around 45 minutes. This morning everything feels fine. Occasionally, when I either speed up or slow down (like sitting down after moving around, or walking up the stairs after sitting down for a while) it feels like my heart is beating so strongly...it's not pain so much as discomfort and very noticeable. It doesn't correlate to my heart rate as far as I can tell. Is this ...


Posted by uvagershwin on 2013-04-17 18:01. 2 comments. 158 reads
 
I just had my pacemaker checked a few weeks ago (sorry it took me so long - life is super busy!) at my new hospital! All I can say is, I do not regret leaving my old hospital for a second! I'm now being seen at Johns Hopkins, and not ONCE was I met by a single rude or dismissive comment. How refreshing!

Anyway, I still have about 4.5 years left on the battery, and next month I will have had it for 10 years!!! It was only supposed to last 8 years, and the ones before it only lasted 4, so this is AWESOME!! I may just throw a party. :) My leads also look great, and we even got the ventricular lead to capture twice! Woohoo! However, I am still pacing 100% in my ventricle and have increased 5% pacing in my atrium (I now pace 35% up t...


Posted by Jmiller on 2013-04-16 17:26. 1 comments. 130 reads
 
I just had a ICD implanted replacing my PM implanted for 2nd degree heart block, due to evidence of cardiac sarcoid They just did a PET/CT scan to determine level of sarcoid in my heart. Can anyone explain the below results to me.

Results from N-13 ammomia MPI "Essentially fixed moderate to severe perfusion abnormality involving the basal septum extending in the mid to distal anteroseptal and anterolateral regions is associating no obvious regional wall abnormality" "No fixed or reversible perfusion defect in the remainder of myocardium. Left ventricular cavity appears normal in size." Quite a moth full

My take on it is the center divider of the heart is affected and the rest seems fine. One thing I don't understa...


Posted by SaraTB on 2013-04-16 16:00. 1 comments. 139 reads
 
After more than 10 years with a PM (this is my second) I've been having some problems recently and today had a meeting with my nurse practitioner, my EP and the rep. from Boston Scientific (who drove 2 hrs from Mass. just for the meeting!) to try and get to the bottom of it.
No-one's really sure what's going on, but lots of small tweaks were made, and in particular - at my request - my upper tracking rate increased from 155 to 165. We'll see how that goes - thanks to members here for discussing it in other posts, which made me ask the team some questions!
Anyway, long story short, I wanted to say how grateful I am that they're all working as a team, no-one's ego is getting in the way, and they're listening to what I tell them. ...


Posted by KathyB on 2013-04-16 14:35. 2 comments. 113 reads
 
Well, had my first pm check and was given all is good. I asked about the rapid heart rate with minimal activity and they are going to reduce my base rate during the day. Was also told I need to start doing the treadmill at l Inciseast 15 minutes each day so I will start that tomorrow as I like to o exercises early in the day. My incision is healing well and have just the smallest amount of discomfort when I push on the area. I really appreciate this website because it makes me know that I am not alone in this.

Posted by KathyB on 2013-04-16 10:36. 3 comments. 141 reads
 
Well, I go to see cardiologist for my first pm check. Now I can ask why my heart races so fast just walking to another room. I take my pulse and it is almost 98 bpm when my rate is set at 70, and then it quickly goes back down when I sit. Does anyone else have this issue? Hope it is something he can adjust.

Posted by Lisarose on 2013-04-15 17:40. 0 comments. 115 reads
 
Hello All,

My daughter finally received her pacemaker ten days ago, her surgeon opted to implant a Biotronic Evia SR. She is experiencing extreme heart pounding, diaphragmatic pacing, headache, pressure in her chest. She is pacing with great frequency. She has been seen in ER twice with complete workups and the implantation is sound in all ways. We made the four hour trip back to her surgeon, he had called in the Biotronic rep and between him, the pacemaker nurse and the rep, they adjusted the settings. We were told that there are only 9 other recipients of this model in BC, so I was hoping that someone here in pacemaker club may have experience and/or advice about this unit. Specifically, did you experience this amount of...


Posted by fletch49 on 2013-04-14 17:07. 2 comments. 222 reads
 
My cardiologist said my pacemaker is working 8% of the time. Is this normal, low or high? I got my implant just 4 weeks ago.

Posted by BigThinTiger on 2013-04-14 08:12. 3 comments. 201 reads
 
Morning everyone - been lurking for a couple of days and have now decided to post my situation and first question.

My first question: My first PaceMaker followup is coming up on 22nd April - What the heck should I be asking or looking for!

My situation: UK based, 3 Backouts in 8 months, Loop Monitor implanted. 5 weeks later, data was recovered and I was told I needed a PaceMaker inserted asap, so was booked in the next day (my heart had been stopping at night for durations up to 10 seconds).

All went well and I was discharged the next day. I then felt very unwell the next night and was admitted to A&E. Things got worse and I was diagnosed with a pericardial tamponade, which was drained in an emergency proce...


Posted by owls__ on 2013-04-13 19:16. 3 comments. 131 reads
 
Hi, it's been about 5 months since I got my ICD and I think i'm going to get the home monitoring checkup machine thing next week at my routine checkup.

I haven't really been told much about this and I'm sure I will be when they give it to me but I'm just curious about how the checkup is done and how often it's usually done with ICD's? Also anything else would be appreciated

Thanks :)

Posted by Wayneflewis on 2013-04-12 02:45. 0 comments. 111 reads
 
Hi everyone
Had my PM fitted on 22Jan this year and all going very well. Cycling better than ever.
A number of people expressed concern when I posted recently that my Cardio wanted me to have an MRI. Unfortunately I have been travelling and didn't have time to explain why.
Prior to my PM being fitted ther were some indication of some valve leakage.....and as I had to have my PM fitted urgently (and I have a ST.Jude MRI compatable PM) We ( my three Docs and myself) agreed to do it post PM.
As it turns out all in fact is good and we now know that my heart mevhanically is in great shape (enlarged from a lifetime of competative cycling) but fine in all other aspects.
Incidently, the boot up and switching process carrie...


Posted by inGodsheart on 2013-04-08 15:08. 7 comments. 270 reads
 
Has anyone had issues with measuring their heart rate using the "old fashioned" way of feeling pulse and looking at second-hand clock and using electronic heart rate monitor and finding the heart rate below the base set rate of PM? I thought it was never supposed to go below that set rate.

Any thoughts?

Posted by ma_ku on 2013-04-07 09:40. 5 comments. 243 reads
 
Hi,

I had my first PM check on Thursday. Despite a niggling worry that a lead may have pulled (I have been quite active)I am happy to report that all is fine. I am glad I kept an exercise diary though as the technician found a few occurrences of a high pulse that might otherwise have been classified as atrial fibrillation lol! They all correlated with my running records and my own pulse rate recordings for my runs so all fine there. I have no problems during or after exercise. To prevent false positives in future they changed the setting to 200 beats per min. They also tuned my lower rate limit down to 50 during the day and 45 at night. Since then I have slept a lot better.

Best part of all was when I came out of the ...


Posted by Tafi on 2013-04-05 16:14. 0 comments. 117 reads
 
I had a pm checkup today and all is running ok so I am now on a yearly check. Was told that on 12th Feb my hearf ran fast for a few seconds but I did not feel bad on that day but did not feel right a few days later. A report will be sent to my consultant and if he needs to see he will get in touch. However on Tuesday I went out and did a 47 mile cycle ride with no ill effects.

Posted by mmarks on 2013-04-04 22:30. 2 comments. 145 reads
 
Does anyone check the pacemaker using a cell phone instead of the phone line?

I want to rid off the land line to save some bucks!! (and pay the $medical bill$)

Thank you

Mariano

Posted by Sullis65 on 2013-04-04 01:15. 4 comments. 242 reads
 
Had my third interrogation since the implant last Aug 2012. When the NP told me he was going to speed it up so just relax if I feel something, I didn't expect to nearly blackout. He ran it up rather quickly to 90 and the lights almost went out just as they had several times before the pm. Fortunately he saw me startle just before darkness. Has anybody experienced this?
Man that brought back some fear. I had syncope 3 or 4 times
before I finally went to a complete AV block and syncope then ambulanced to the hospital. I walk 3 to 4 times a week and have had my pulse run up to 115 or 120 on hills with no ill effects. I don't understand why 90 bpm nearly slid me out of my chair.

Posted by scooterray on 2013-03-30 22:20. 0 comments. 120 reads
 
I have the St. Jude pm and it is for the mri. My doctor is doing a study with other doctors around the country. They will be doing a mri on me as soon as they get approval from our dear fda or what other gov. admin. they are doing the mri to study the pm during and after the test. that is what you are probably doing or they would not have put in that pm



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