St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by Marinade on 2014-05-30 00:59. 2 comments. 192 reads
 
I had my 3 month CRT-P check 2 days ago. Overall I'm feeling great and have been able to gradually increase the duration of exercise walking. However, when I exert like walking up a slight hill, I have the urge to go faster but it feels like something in my chest won't let me. I didn't know if that's because my heart is not yet strong enough due to cardiomyopathy, or if a change in the CRT settings would help. I have a Biotronik Evia HF-T. The Biotronik rep turned on the CLS (closed loop stimulation). It's a little early to tell, but I think it's helping. In the meantime I've been reading the posts mentioning CLS, and am now wondering if having the CLS on will be problematic since I have a healthy SA node? All the posts I found seemed to ...


Posted by wjs1954 on 2014-05-29 10:19. 4 comments. 276 reads
 
3:15PM EST today, just a PM check up,

any question i should be asking?







Posted by highdesert on 2014-05-28 20:34. 5 comments. 248 reads
 
Sorry if this is a dumb question but i'm new to this heart problem thing and the world of pacemakers and stents. Since having a heart attack with complete heart block on christmas last year and getting these devices implanted i've had a few chest pain issues... only happens after a hard workout on the treadmill or exercise bike. Taking nitro doesn't help... and the pain (in center of chest) usually goes away in a matter of days. I just found out today in cardiac rehab that my pm is set from a lower limit of 60 to a high limit of 130. Could going over 130 cause this to happen?

Posted by Dan1969 on 2014-05-28 17:25. 2 comments. 156 reads
 
I have had my Medtronics PM since November of 2013. Everything had been going fine. They had made a few small adjustments along the way. I just did a phone test and everything looked ok but at times when I am doing something very streanuous that I could do before, I feel a little burn in my chest. No shortness of breath. Just went to my heart doctor and they say my heart is racing occasionally. Shouldn't my pm regulate this? The doctor wants to do a myocardial perfusion scan to rule anything out. I was thinking it would just be an adjustment again.
Thoughts??
Dan

Posted by vivi2002 on 2014-05-26 23:05. 4 comments. 335 reads
 
It's my first post! So happy to find a forum where my husband and I can ask questions. We feel young and alone in our situation so it is so helpful to find a community of people that understands what we are going through.

A little background:
Hubby at (33) was diagnosed with idiopathic cardiomyopathy almost 2 years ago. EF was 35% at the time. He had ZERO symptoms and we discovered his heart condition by chance at a physical. Last summer he began to exhibit symptoms.....extreme fatigue, tiredness, loss of breath. Within 3 months he went from crossfitting 5xs a week to barely able to walk from the bedroom to the living room. Heart rate was in the 40's. Pacemaker/ICD was the doctors solution so had one implanted Nov....


Posted by billvan on 2014-05-21 16:25. 2 comments. 166 reads
 
I have a ICD with cardio resync therapy. (3 wires). I get short of breath with very little activity. I feel the device is not doing its job since it keeps my heart rate in the low 60,s at rest and never higher than the mid 80,s with exertion. The device manufacturer said it can be programed to adjust itself based on my activity. I can't seem to get any info about settings from the tech that checks the device every 3-4 months. Does anyone have any suggestions as the the settings I should ask about during my next visit ? I will also try to get a copy of the interrogation report. Is there any place on the web that will show me how to read it?

Posted by BLIP on 2014-05-19 22:06. 4 comments. 202 reads
 
My 4 week check up after tweaking my settings was today: no episodes were recorded ( there were 19 previously during the first 6 months.) and my ventricle is only 37 % paced ( down from 100 %)! my atrium increased to 8.4% from 3.7%. Best of all, I feel great with the new settings. All the NP did was add 150ms to how patient my PM is.
I asked about my top pacing set for 120- she said my HR never went over 105 and I am very physically active. She mentioned that she would not want my ventricle going faster than that.
Does anyone have any thoughts on that?
She did say that if I needed it increased in the future if I start doing something very exerting she would. I guess that's the upside of always having a low HR. Even now wi...


Posted by Lyn4477 on 2014-05-19 01:00. 2 comments. 193 reads
 
Ok. Going for my 1st check up after ICD implant.
What am I to expect ? Hoping to get some answers from the Doc because really I am clueless. Got this device because of low EF but is it still a pacemaker or only a defib??
Please give me some advise on what questions I need to be asking. Thanks. I guess I need a book for dummies😃

Posted by studougherty on 2014-05-18 08:48. 4 comments. 256 reads
 
I had a Medtronic dual chamber pacemaker put in March 2014 and had my first check up 3 weeks later and everything was fine. I went for the second follow up 2 May. At that visit the Medtronic Tech rep changed my settings so the battery would last longer.

Since then I have been more short of breath on exertion and my BP is high. I would return to my Cardiologist but he is in Florida and I am located in Northeast Pennsylvania now.

Can new settings cause this.

Posted by judyblue on 2014-05-15 22:09. 4 comments. 203 reads
 
Yesterday I went for my 3 month cardio check up. I had my pm put in 7 months ago. I have complained of pain since the surgery but basically ignored. Yesterday he at least acknowledged that the pain I described is not normal. He failed to help me, but recommended a pain management doctor. I do not have much faith in this. Does anyone have any experience with this? I have had friends suggest an acupuncturist. Again, I have not had any experience with this.
So...any and all help is appreciated!
judy

Posted by Gotrhythm on 2014-05-15 17:45. 4 comments. 389 reads
 
At my last PM interrogation, you should have seen the shock on the face of the tech when I expressed my desire for a copy of the interrogation report. You would have thought I was asking to see Classified Eyes Only state secrets. I swear, she turned pale.

I had thought there was something about me that made that office so stingy with info, but suddenly I realized keeping patients minimally informed was policy.

With backbone acquired in this forum, I insisted and then gently demanded. And I got it.

At my last visit to the EP, I asked for, and got, a copy of my most recent nuclear stress test without any grief at all. And then, I discovered a new reason to request copies of everything.

Under hist...


Posted by kenz on 2014-05-15 09:20. 4 comments. 257 reads
 
Medtronic pacer. Had my checkup yesterday and Doctor said that since my last checkup in September 2013 until now the pacer did not register any afibs. Isn't that odd? Also the pacer was installed in Feb 2007 and the Doctor said the battery is good for another 5 years. Does this make any sense?

Ken

Posted by BLIP on 2014-05-15 02:16. 9 comments. 287 reads
 
I am at 7 months post implantation (AV block, St.Jude's) and like all newbies was overwhelmed with all the changes happening. My first cardio NP was nice, but did not explain why my settings were what they were: 50-120 and 150ms.
After reading posts here and some really great advice ( thank you Don and others) I decided to be more "informed" as to what BLIP was up to. TMM was perfect, first check up- perfect again, but, I found myself progressively getting short of breath and fatigued. All TMM showed that BLIP was working perfectly.
So I asked for an appointment with a human to evaluate things and got a new NP. What a difference!
This one gave me a print out, went over all my settings and we decided to adjust some.
H...


Posted by oporay on 2014-05-13 12:32. 2 comments. 259 reads
 
HI all :-)

The cardio adjusted my lower base rate from 50 bpm to 60 bpm a few weeks ago to make me feel less tired and dizzy - and It helped a lot :-). I am diagnosed with SSS.

But after this adjustment I have startet to cough some times during the day, like I have something In my throat that needs to come out. I feel the need for coughing right after I have felt a "heavy" heartbeat. Before the adjustment I hardly felt this, maybe once a day.

Can this be beacuse I now pace more, and therefore feel the PM more often sending signals to the heart, than I used to on a lower base rate?

Is it something to do about It?

Thanks for all advices 

Raymond


Posted by scooterboy on 2014-05-12 12:49. 2 comments. 213 reads
 
hi, im new to this club, have had a pacemaker fitted on the 3rd april this year due to a slow heart rate of 34bpm,am on no meds, I feel better in the morning since having it fitted but still very tired through the day,breathless,so nothing has changed much there, just wondered if this can be rectified on my 6 week visit to the cardiolagists? the pacemaker has been set to 60bpm as far as I know. thanks

Posted by Janjankin on 2014-05-11 09:47. 5 comments. 215 reads
 
I had a ,kick, (first one) when I inadvertently used a new cell phone
Implant inserted late November 1923.
I am worried - should I do anything - I never feel on top oftheworld anyway
Thanks and glad to have found you
Jan UK

Posted by pete on 2014-05-08 12:35. 4 comments. 241 reads
 
I had an appointment at my local hospital for a usual check up. This was given to me 6 weeks later than it should have. At the previous check up they said as the battery was running down they would be calling me in every 12 weeks. In the event it was 18 weeks. For the first time at that appointment the magic "wand" they put over the site refused to recognise that there was a pacemaker in situ to detect. Another technician was called and between them the manually forced the computer to talk to it. All OK ?
I took it as a sign the battery was getting quite low. I am 100% dependant on it as I have an AV node ablation. The gas guage showed that it was very close to elective replacement mode. They put me down on the hospitals replacement l...


Posted by neff on 2014-05-02 22:17. 10 comments. 318 reads
 
Hi
I got a pm about 10 years ago for sss .The upper 1/2 of my heart was not working at all.I have had no trouble so far. I need to go into Olympia every 3mo. for check. I just saw about a "home transmitter" on here . thats new to me.why don't we all have this? I want one . HA. Maybe medicare won't pay for it?
Diane

Posted by Bryony on 2014-05-01 16:17. 7 comments. 327 reads
 
Hi,
I had my pacemaker on the 3rd Feb 2014 for SSS with sinus pauses and bradycardia. I had the routine check at 5 weeks which was fine. I've felt ok until this last week.
I moved several hundereds of miles to a new home, new job, different type of job I had'nt done for years plus, on call approx 7 weeks post implant. I'm also apart from my husband due to having to sell the house etc. I'm not sleeping well so am tired plus the stress of the new job. I had been doing well up until this week when I have begun feeling dizzy quite a bit. I asked the local cardiac tech if he could check my pacemaker today (a weight fell on my chest from a cupboard, it did'nt hit the pacemaker but was very close) The check showed I was having clusters...


Posted by golden_snitch on 2014-05-01 02:27. 4 comments. 258 reads
 
Hi!

I was wondering, if you have the same problem as I do, namely that after every pacemaker interrogation the rate response seems to forget everything it has learned so far, and just starts from zero again? That means that for the first couple of days after a check-up, the CLS reacts very sensitively, making my heart race up to the max. sensor rate whenever I just walk a bit. Auto optimization does work, but it only adjusts every 24h, so it takes a few days to get the heart rate back down to normal range for daily life activities.

I asked the EP yesterday, and he said that shouldn't happen, but in fact it does. I walked in for the interrogation yesterday with a heart rate of 80 or 90, and when I walked out I was run...




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