St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Checkups & Settings Forum



Posted by Leady1 on 2015-11-21 02:11. 4 comments. 472 reads
 
Hi, new member that just had a St. Jude CRT-D device implanted a week ago. This is my 5th device, over the years implanted, so I'm not new to the devices. I have had different brands, last one was a Medtronic ICD unit. I have total heart block and have suffered with V-tach episodes for a long time. That has been taken care of, now I stay in Afib for months at a time. I have had 2 strokes, due to Afib. My question is for anyone that would know why my heart rate was set at 60 in the hospital. I am used to about 85 - 100 heart rate, and feel now that I have !just bottomed out. So tired, no energy at all! Can or will they reset your settings up to a higher heart rate if you just ask them? A simple question that I am very serious abou...


Posted by jennk on 2015-11-20 01:28. 5 comments. 320 reads
 
Does anyone else have a headache after device is interrogated? If so, why does this happen?

Posted by Firefoy on 2015-11-19 23:36. 2 comments. 245 reads
 
So I went to my semi annual checkup yesterday. I got moved from the every 6 month program to every 3 months. My PM confirmed that I had an episode of AFib for almost 14 hrs. But the bigger picture was my PAC runs. Every previous checkup I've had my PAC runs were 28 or less. This time it was over 45,000! So my doctor put my a "pill in a pocket" of propafenone. He said to take 3 when I feel my Afib come back and if/when it gets worse and more frequent I have the choice of a beta blocker or another ablation. I don't really want either one but if those are my only options I guess I will wait to choose one when I get to that point.

Posted by Musicheart on 2015-11-17 00:52. 4 comments. 410 reads
 
I wake up between 2 and 3 in the morning for the past 4 weeks after getting a new pacemaker with a feeling of cold almost liquidy feeling in the middle of my chest. My heart rate will be fast. After a bit it slows down and stops with the cold feeling. I did not have this with the first one. Any ideas?

Posted by USAFvet on 2015-11-12 02:29. 2 comments. 282 reads
 
Hi! I'm new here and glad to find this group. I've had my pacer since 09. At each of my last 4 pacer checks, my % of usage is rapidly increasing. Six months ago I was at 55%, now I'm at 66% upper and 5% lower. The tech doing the check had no idea why. I'm a vet and get all of my care through the VA...and they suck. Anyone have any idea why my % keeps going up?? Thanks.

Posted by Grandadbren1 on 2015-11-05 17:29. 5 comments. 685 reads
 
I had dual pacemaker implant 16sep 15 and I do not feel as well as I did prior implant. I have been back for adjustment 3times now to no avail. I was advised to have implant for bradycardia and some infrequent fast beats .3 weeks after implant I had first full af attack and consequently they have now turned program on in pacemaker for af which I believe puts pacing up also they have increased beta blocker I am aware of fast beats and feel I am in af more and if I walk 3 or 4 mile I am very tired which before implant I was not I also feel I need to take an extra breath .
I had cabg in sept 2013 and recovered extremely well from this but I feel recovery from pacemaker is not going well I feel like I want it out and back to what I was l...


Posted by mg on 2015-11-03 08:49. 3 comments. 515 reads
 
Could someone explain why if my PM is set at a base setting of 70bpm then why should I get a missed beat? I can understand why I could have missed beat above 70 and odd beat in between the PM`s 70 . If I have this missed beats and count say 65bpm instead of 70 then is the PM faulty?
Thank You ...mg

Posted by cbur13 on 2015-11-02 19:55. 3 comments. 576 reads
 
Hi. I'm Christy 40 years old and new to the group. I had my second check up today since receiving my pacemaker and it went from pacing at 6.5% to 26%. I was shocked to say the least. I also have a lot of light headless. Is this normal?

Posted by lplatt on 2015-10-30 02:15. 3 comments. 570 reads
 
I just returned from my regular 3 month device check. I have been paced 100% of the time for the last 4 years. Today when the device check started the technician was surprised to see that my heart was conducting some of the time. She went and got the cardiologist and they said it is quite rare to have conduction after you have been totally dependent on a pacemaker.
I have been drinking a super food green mix religiously for the past 2 months. I really feel this is making me stronger...(my Dr. doesn't think so...but what else could it be?)
Has anyone else experienced something like this?

Posted by GoodDog on 2015-10-28 14:53. 3 comments. 355 reads
 
I just want to thank the folks that offered support during my PM mode change to ERI. I really appreciate the support. I am continuing to feel terrible, but have little choice in waiting until next week for my replacement. I know that it may seem unusual to some that I feel bad with a pulse of 65 bpm.
What most don't seem to understand is that my resting pulse in the low 50's (for the last 30 years or longer) is normal and feels good to me. For most folks, I know it is too low. The ERI pulse of 65 feels to me like my heart is racing and going to beat out of my chest. I continue to get light headed when I stand-up too quickly.
Honestly, I feel much better in my escape rhythm of 35 bpm than 65 bpm. I guess everybody is different.

Posted by bgc65 on 2015-10-25 02:37. 2 comments. 369 reads
 
What is a pacemaker clinic and i was wondering what it is and what they do.

Posted by PJfromSC on 2015-10-22 18:01. 6 comments. 739 reads
 
I have often seen people post here about feeling being "paced". I have had my PM for almost three years and have never felt like I was being "paced". It may be that because I am 100% "paced", and as long as I can feel a heartbeat in my chest and a throbbing sensation throughout my body, I am grateful enough to just be alive to feel it, so I do not let it get to me. I also feel extra beats from PVCs, but after talking with my Cardiologist and PM technician about what is going on, I don't worry about that anymore either. They showed me the EKG charts of how my heart is working. I actually do not mind it when they interrogate my device, because I know that they are doing a true checkout and not playing around. The technician always tells me ...


Posted by lucienp84 on 2015-10-21 03:56. 5 comments. 446 reads
 
There is a serious misconception among many electrophysiologists that minute ventilation pacemakers are no more effective than accelerometer-only pacemakers for people who need constant or almost constant pacing and that tuning pacemakers is a waste of time.Nothing can be further from the truth, whether you are sedentary or active.

When implanted, the Inliven pacemaker is set up with default values and hence needs to be tuned for any particular patient's needs at a pacing clinic by a company technician or a qualified electrophysiology technician.

I am paced 100% of the time and totally dependent on the pacemaker for my cardiac response to physical and emotional stress. From previous experiments with my accelerome...


Posted by LondonAndy on 2015-10-14 18:43. 1 comments. 221 reads
 
Just a quick post to hopefully reassure those who might be needing a pacemaker, as naturally most posts on the forum are about problems people want help with: I had a check-up yesterday after about 13 months of being 100% paced, and all is fine. No adjustments, no issues experienced so far. In fact I hardly think about it, though admittedly I am not a sportsman or extreme activities kinda guy so probably don't test my Medtronic thingy too much.

(PM fitted as a result of surgical complications when a replacement aortic valve was fitted, Sept 2014, because of a calcified valve). Am diabetic too, and feeling great!

Posted by Hartje5 on 2015-10-14 14:52. 2 comments. 292 reads
 
Today I've had another pacemaker checkup. The PM specialist raised my max HR to 160 and my tracking rate to 170. Unfortunately this did not fix the problem I am encountering; I'm still not able to exercise because my heart rate drops to my resting rate (70+20 bpm) after 10 minutes and won't go up again no matter what I do. I go out of breath and my legs become very heavy.

Has anybody had this problem too?



Posted by eva_rb on 2015-10-13 01:34. 3 comments. 312 reads
 
I get three twitches that go across from the top of the left of my chest to the start of my shoulder (basically the area my pacemaker is in) exactly every three hours. I sometimes get them during my check-ups when they fiddle about with the settings. Does anyone know what this is? I was told it was when the pacemaker saves information but i dont understand why it would do that and my doctor is always reluctant to explain things in detail. Can't wait to move on from paediatricians, i want real information i am not a child! I also sometimes have random bubbly or discomfort feelings in the top of my chest or a random mild sharp pain and these dont happen in a regular way. Are this second kind just the expected unexplainable aches and pains th...


Posted by PacedProfessor on 2015-10-11 19:52. 4 comments. 439 reads
 
Howdy!

I just had a dual chamber pacemaker implanted on 10/5/15. All is feeling well. A bit of my background and then a question.

31yr old male with severe afib refractory to all meds. Ablation in 2009 and no problems at all with any SVT or afib. Had sudden syncopal episodes starting in 2014 and everything checked out (e.g. - tilt table, echo, angiography and anything else that could explain syncopal episodes). Loop recorder implanted last year, but was set to only start recording when rate dropped below 20bpm. Long story short, I manually activated the loop recorder after syncopal episodes and rate was in low 40s and was junctional. Also, some AV block, but reason for implant was diagnosis of symptomatic junctional b...


Posted by SUPERSALE on 2015-10-08 00:08. 1 comments. 314 reads
 
From: Campbell RN, Cassie L
To: Jason ;
Sent: 10/7/2015 14:26:12
Subject: RE: CARE LINK QUESTION

Hello sir,
I looked over your last check. Dr. Rowe wanted you to come back to see his nurse practioner in 6 months. We only use the Carelink monitor if a patient is going a full year before they are going to be checked. That is why you were not given dates this time. I checked and you are currently on the list for an appointment in January with Dr. Rowe's nurse practioner. They will also schedule a pacemaker check that same day. The appointment will be sent to you a little closer to Janaury. If you have an other questions please let me know.

Thank you.

i paying carelink monitor accto us...


Posted by Gotrhythm on 2015-10-07 15:45. 2 comments. 308 reads
 
I had always understood that SSS does not improve, so imagine my surprise yesterday, when I learned that my average pacemaker use which has been 98% for the last two years is now 82%.

The estimated battery life at last check was 6.8 years, and is now 9.9 years.

I asked the PE and he basically said, SSS doesn't improve usually, but sometimes it does. [shrug]

Because everything was so good, the PE was finally willing to approve upping my base from 65 to 70 bpm. With the increase, I feel better than I have felt in years. I felt more perky instantly and today everything, physical and mental feels easier. I feel like myself.

My cardiologist has started me on Ranexa for my brief but frequent angina ep...


Posted by athlete735516 on 2015-10-07 12:22. 4 comments. 328 reads
 
I have bradycardia with my resting heart rate normally in the 35-45 range with dips lower at night. My doctor told me that I might feel something after I get my pacemaker like my heart is racing all the time. I was wondering if anyone had a similar experience and what it would actually feel like once I have recovered from surgery?



Member Login
email:

password:



Who's Online?
We have 2729 visitors online.

Members online:
  aryalsatish

You're Wired When...
You invested in the Energizer battery company.

Member Quotes
My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.