St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by Heart28 on 2014-06-12 23:45. 1 comments. 103 reads
 
Has anyone found their heart rate too fast ? My second CRT was installed last March and I have not felt right. I see the st jude rep to have the device read.in a week . Hope they can change the pacing rate a little

Posted by StorminNorman on 2014-06-12 20:56. 4 comments. 168 reads
 
Hi I discovered this site this afternoon and boy am I glad I did..quick history:me-old guy (67) LOL had a pm implanted in conjunction with aortic valve replacement surgery on 4/22 about 6 weeks ago. My recovery has been slow but steady but I have been acutely fatigued and very low on energy since I got home from hospital. Wife says "be patient" and it seems this fatigue thing is pretty common based on the other comments here. Wish my doc (or someone anyway) would have warned me, Im NOT complaining-all the days are good and I relish my time with my children and grandkids even more now...starting cardiac rehab next week -which Im a little nervous about since I have done ZERO exercise since my operation-but Im sure it will be OK...I go...


Posted by vivi2002 on 2014-06-10 22:50. 1 comments. 139 reads
 
Hubby was feeling very tired so we went in for his first adjustment to his pacemaker. The rate response was adjusted as well as the upper threshold increased. His blood pressure has been the lowest its ever been since the pacemaker adjustment. He usually runs 130/low 80s and he is suddenly in the 110's/low 70s. While I know that a lower blood pressure is better for a heart failure patient, he is feeling pretty crummy.

1. Why the drop in pressure?
2. How soon would he feel the effects of a setting adjustment.

Thanks!

Posted by Dave Bishopstone on 2014-06-10 05:26. 6 comments. 188 reads
 
I had a successful ablation for atypical atrial flutter in December 2012 and had been problem free since, now in June 2014. I have had a pacemaker since 2000. It had been set to permanent pacing with a minimum rate of 70 bpm with max of 120 bpm (after which my own rhythm takes over).

At a recent Pacing check the technician altered the settings to 'stand by mode' only operating if my heartrate fell beneath 60 bpm. I was told my natural heartbeat was in very good shape so I ought not need to be permanently paced.

A few days after the change I had an irregular rhythm episode. I've contacted the hospital and await guidance. I am wondering 9a) the merits of the change when all was going well, and, (b) whether this is...


Posted by KAG on 2014-06-08 11:51. 2 comments. 66 reads
 
Just checking to see if you got my reply message. Private message says your name is invalid?

Kathy

Posted by schobo74 on 2014-06-07 12:28. 1 comments. 126 reads
 
hi all,
had my pm/icd installed in 2010. everything was fine until i went for pm checkup. he said pulse staying a70-80. so he adjusted rate response for rate up to 110. on exercise. that was thursday. today, saturday, i did my morning workout (about 15 minutes of not real hard exercises) checked my pulse before (70) and after (95). felt a little light headed. took a rest. pulse down to 70. no pain, but still some lightheadedness. real minor nausea for a minute. that is gone.
has anyone had this rate response symptom?
thanks

Posted by Stillrunning on 2014-06-04 16:50. 4 comments. 172 reads
 
Recent app with new Cardiiologist resulted in lead change and several follow up visits to readjust settings on rate response which has allowed me to run better, I'm in DDDR again upper rate to 170 exertion response from 3 to 5 activity threshold from med/low to low but my question is in trying to help my anaerobic feeling while running he moved paced AV to 180 ms, sensed AV to 180 max increase to AV 100ms,,,does this make sense or is the the reason I now don't have the breathless feeling from before but feel breathing is Ok but only shallow, to get a full heavy or deep oxygen filled breath I have to force a heavy breath every 20 to 30 secs. It feels like maybe my heart is not getting a full diastolic filling.
I had originally suggeste...


Posted by Marinade on 2014-05-30 00:59. 2 comments. 199 reads
 
I had my 3 month CRT-P check 2 days ago. Overall I'm feeling great and have been able to gradually increase the duration of exercise walking. However, when I exert like walking up a slight hill, I have the urge to go faster but it feels like something in my chest won't let me. I didn't know if that's because my heart is not yet strong enough due to cardiomyopathy, or if a change in the CRT settings would help. I have a Biotronik Evia HF-T. The Biotronik rep turned on the CLS (closed loop stimulation). It's a little early to tell, but I think it's helping. In the meantime I've been reading the posts mentioning CLS, and am now wondering if having the CLS on will be problematic since I have a healthy SA node? All the posts I found seemed to ...


Posted by wjs1954 on 2014-05-29 10:19. 4 comments. 283 reads
 
3:15PM EST today, just a PM check up,

any question i should be asking?







Posted by highdesert on 2014-05-28 20:34. 5 comments. 252 reads
 
Sorry if this is a dumb question but i'm new to this heart problem thing and the world of pacemakers and stents. Since having a heart attack with complete heart block on christmas last year and getting these devices implanted i've had a few chest pain issues... only happens after a hard workout on the treadmill or exercise bike. Taking nitro doesn't help... and the pain (in center of chest) usually goes away in a matter of days. I just found out today in cardiac rehab that my pm is set from a lower limit of 60 to a high limit of 130. Could going over 130 cause this to happen?

Posted by Dan1969 on 2014-05-28 17:25. 2 comments. 159 reads
 
I have had my Medtronics PM since November of 2013. Everything had been going fine. They had made a few small adjustments along the way. I just did a phone test and everything looked ok but at times when I am doing something very streanuous that I could do before, I feel a little burn in my chest. No shortness of breath. Just went to my heart doctor and they say my heart is racing occasionally. Shouldn't my pm regulate this? The doctor wants to do a myocardial perfusion scan to rule anything out. I was thinking it would just be an adjustment again.
Thoughts??
Dan

Posted by vivi2002 on 2014-05-26 23:05. 4 comments. 349 reads
 
It's my first post! So happy to find a forum where my husband and I can ask questions. We feel young and alone in our situation so it is so helpful to find a community of people that understands what we are going through.

A little background:
Hubby at (33) was diagnosed with idiopathic cardiomyopathy almost 2 years ago. EF was 35% at the time. He had ZERO symptoms and we discovered his heart condition by chance at a physical. Last summer he began to exhibit symptoms.....extreme fatigue, tiredness, loss of breath. Within 3 months he went from crossfitting 5xs a week to barely able to walk from the bedroom to the living room. Heart rate was in the 40's. Pacemaker/ICD was the doctors solution so had one implanted Nov....


Posted by billvan on 2014-05-21 16:25. 2 comments. 168 reads
 
I have a ICD with cardio resync therapy. (3 wires). I get short of breath with very little activity. I feel the device is not doing its job since it keeps my heart rate in the low 60,s at rest and never higher than the mid 80,s with exertion. The device manufacturer said it can be programed to adjust itself based on my activity. I can't seem to get any info about settings from the tech that checks the device every 3-4 months. Does anyone have any suggestions as the the settings I should ask about during my next visit ? I will also try to get a copy of the interrogation report. Is there any place on the web that will show me how to read it?

Posted by BLIP on 2014-05-19 22:06. 4 comments. 207 reads
 
My 4 week check up after tweaking my settings was today: no episodes were recorded ( there were 19 previously during the first 6 months.) and my ventricle is only 37 % paced ( down from 100 %)! my atrium increased to 8.4% from 3.7%. Best of all, I feel great with the new settings. All the NP did was add 150ms to how patient my PM is.
I asked about my top pacing set for 120- she said my HR never went over 105 and I am very physically active. She mentioned that she would not want my ventricle going faster than that.
Does anyone have any thoughts on that?
She did say that if I needed it increased in the future if I start doing something very exerting she would. I guess that's the upside of always having a low HR. Even now wi...


Posted by Lyn4477 on 2014-05-19 01:00. 2 comments. 199 reads
 
Ok. Going for my 1st check up after ICD implant.
What am I to expect ? Hoping to get some answers from the Doc because really I am clueless. Got this device because of low EF but is it still a pacemaker or only a defib??
Please give me some advise on what questions I need to be asking. Thanks. I guess I need a book for dummies😃

Posted by studougherty on 2014-05-18 08:48. 4 comments. 260 reads
 
I had a Medtronic dual chamber pacemaker put in March 2014 and had my first check up 3 weeks later and everything was fine. I went for the second follow up 2 May. At that visit the Medtronic Tech rep changed my settings so the battery would last longer.

Since then I have been more short of breath on exertion and my BP is high. I would return to my Cardiologist but he is in Florida and I am located in Northeast Pennsylvania now.

Can new settings cause this.

Posted by judyblue on 2014-05-15 22:09. 4 comments. 206 reads
 
Yesterday I went for my 3 month cardio check up. I had my pm put in 7 months ago. I have complained of pain since the surgery but basically ignored. Yesterday he at least acknowledged that the pain I described is not normal. He failed to help me, but recommended a pain management doctor. I do not have much faith in this. Does anyone have any experience with this? I have had friends suggest an acupuncturist. Again, I have not had any experience with this.
So...any and all help is appreciated!
judy

Posted by Gotrhythm on 2014-05-15 17:45. 4 comments. 392 reads
 
At my last PM interrogation, you should have seen the shock on the face of the tech when I expressed my desire for a copy of the interrogation report. You would have thought I was asking to see Classified Eyes Only state secrets. I swear, she turned pale.

I had thought there was something about me that made that office so stingy with info, but suddenly I realized keeping patients minimally informed was policy.

With backbone acquired in this forum, I insisted and then gently demanded. And I got it.

At my last visit to the EP, I asked for, and got, a copy of my most recent nuclear stress test without any grief at all. And then, I discovered a new reason to request copies of everything.

Under hist...


Posted by kenz on 2014-05-15 09:20. 4 comments. 273 reads
 
Medtronic pacer. Had my checkup yesterday and Doctor said that since my last checkup in September 2013 until now the pacer did not register any afibs. Isn't that odd? Also the pacer was installed in Feb 2007 and the Doctor said the battery is good for another 5 years. Does this make any sense?

Ken

Posted by BLIP on 2014-05-15 02:16. 9 comments. 292 reads
 
I am at 7 months post implantation (AV block, St.Jude's) and like all newbies was overwhelmed with all the changes happening. My first cardio NP was nice, but did not explain why my settings were what they were: 50-120 and 150ms.
After reading posts here and some really great advice ( thank you Don and others) I decided to be more "informed" as to what BLIP was up to. TMM was perfect, first check up- perfect again, but, I found myself progressively getting short of breath and fatigued. All TMM showed that BLIP was working perfectly.
So I asked for an appointment with a human to evaluate things and got a new NP. What a difference!
This one gave me a print out, went over all my settings and we decided to adjust some.
H...




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