St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Checkups & Settings Forum



Posted by belle on 2014-09-09 21:02. 0 comments. 114 reads
 
I wish I could go back to the scared depressed person I was when I was diagnosed with chf. I went I to a major depression. If u feel depressed there is help out there. I had gone to one dr who told me well I guess your heart will hold out for maybe 2 years, then you would prob need a transplant. I will never forget that day it was a beautiful spring day. My daughter had to literally help me walk out of his office. Not due to my heart but the statements this dr made. Needless to say I never went back to him and now refer to him as Dr. Jesus. Never ever did I think my ef would go up to 45. I wish I could go back to that scared person who was me and whisper don't worry. First diagnosed at age 45

Posted by belle on 2014-09-09 19:48. 2 comments. 192 reads
 
I asked the dr if it could be the pacemaker that made my ef go up. He was stunned that it had gone up. My dr reads the echo never heard of a computer reading it. I was at 10 per cent and was being evaluated for a heart transplant. I go to a dr in New York at Colimbia Pres Hospital who only sees patients with possible heart transplants. I also have a regular cardio near my home. To boot, I was told at the time they put the new. Defibrillator in that the one was damaged. I have no idea. My doctor was stunned. I will be on meds all my life, I asked my dr does this mean my heart is stronger. He said yes. I reminfpded him how he always told me that ef was just a number. I have no idea. When I was first diagnosed I went through a 1 ...


Posted by NormaLou on 2014-09-09 01:02. 3 comments. 274 reads
 
This may seem like a dump questions, but I have had my PM for three years and mostly everything seems good. For the past couple weeks, however, I am low on energy and everything seems to be an effort. What are some of the symptoms that would require resetting the PM? Thanks.

Posted by ACRUR25 on 2014-09-08 21:58. 4 comments. 192 reads
 
I have a St Jude Pacer and my upper limit is 180 is this consistent with everyone else????


Thanks,
26 y/o Joshua Shumate

Posted by flutetooter on 2014-09-07 00:54. 5 comments. 248 reads
 
On my usual 1 1/2 walk up and down a very steep hill (Ski Hill Circle)and two lesser hills (all paved streets) tonight for the first time I exceeded my PM setting of 60-120 with symptoms of being a bit out of breath, nervous, a bit light headed at times, and a higher heart rate throughout out the rest of the routine evening walk. I walk this route at least 3 times a week and usually get my heart rate up over 120 at the top, 108-111 on the next less steep rise, and in the 90's to 70's coming down. On the next hill, max 108, on the 3rd hill up to 115-122 if I push it and on flat stretches 70's and 80's-- even 60's. Tonight my heart rate stayed up much higher the whole time (max 124 , and over 120 many times, 111-117 where it used to be 80'...


Posted by kelsey1 on 2014-09-03 20:13. 3 comments. 266 reads
 
Can someone tell me what is checked for on the pacemaker every 6 months and what the doctor does as well. Just thinking maybe they make readjustments or something to tune it to a different signal. Thank you

Posted by BWilks on 2014-08-31 15:22. 6 comments. 275 reads
 
Bit of a long one I'm afraid! Last November I was 5 months pregnant I I began to notice a popping sensation over the top of my pace maker which made me breathless. I went to doctors and was told it was HEARTBURN :( had 24 hour ecgs which shown ectopic beats, still noting was done and was blamed on the pregnancy. had my baby end of January and the symptoms become worse so they decided to do a pace check, only to find my battery had died and pacemaker was faulty! I only use mine on demand. So they've replaced it in march, took 6 weeks for the symptoms to settle down. It has now started again, they think I may have become pace sensitive but I don't use it that much and it's keeping me awake at night :( basically wondering if anyone had anyth...


Posted by kelsey1 on 2014-08-31 13:30. 1 comments. 158 reads
 
I have had my pacemaker about 6 months now and it seems to be working fine. However sometime's I get a tingling light numb feeling in my right hand. After about 20 min. it goes away. Do you think it could be anxiety because I suffer from that or maybe the medicine I take for anxiety and blood pressure. The Heart Doctor checked me out a couple of months ago and said everything looks good.

Posted by kmom on 2014-08-25 19:38. 2 comments. 179 reads
 
Had my 3 MO post PM check today. Pacing at about 60% atrial and about 2-4% ventricle. Still having bouts of AFIB although they said it was down a little from last time. Overall only about a little less than 1% of the time with heart rates peaking at about 150 to 160 so it wasn't really that bad. The question he asked me was did I want to try to bump up the medication, try something else or just wait it out for the A-fib. I feel of course lousy when I go into afib But it's usually only for a little bit (the longest was 17 min) and had over the last 3 months 30 episodes. I can usually sit down and just let it pass. So right now I choose to just wait and see. They did adjust the settings a little (nothing to do with A-fib) because I felt bett...


Posted by skaggsoak on 2014-08-24 02:21. 9 comments. 314 reads
 
Had my first programming yesterday on my new crt. Due to the fact I'm 100% paced with av node ablation he wanted to check to make sure had no natural beat so they warned me then started shutting down crt device. Let them know at 20 bpm I was passing out and they brought me back up. He wanted me to experience my unit failing on me. What a trip. Wasn't expecting it. Puts a little more dependency in the back of your mind on how important that little computer box is.

Posted by WillieG on 2014-08-22 13:44. 6 comments. 422 reads
 
I have had my pacemaker for 10 weeks now for 2nd degree heart block occurring only with strenuous exercise. I have had my settings changed 4 times. I recently had a 2nd opinion at the Cleveland Clinic. They changed the AV Search + from off to on and the Minute Ventilation to "off" from ART only. The other changes are in the Paced AV delay from 80 - 300 ms to 100 - 180 ms and the Sensed AV delay from 65 - 240 ms to 85 - 150 ms. They explained that the pacemaker should now only kick in when I need it. At the beginning I was pacing 13% of the time, then up to 69% and I haven't been back to see what it is now. Would anyone know of a book that is easy to read to explain these settings? I can seem to find anything on line that goes over ...


Posted by bexy on 2014-08-22 10:37. 2 comments. 218 reads
 
I've just had my 6 week check after having my first pacemaker and everything is as it should be, but they've found another arithmya due to palpitations I've been having.
I have my print out but don't know what it means.
AT/AF 350ms (171bpm)
VT Detection 400ms (150bpm)

Can anyone tell me what this means? I presume it's the arithmya?


Posted by AnaLena on 2014-08-21 18:48. 3 comments. 275 reads
 
This is to thank everyone who has encouraged contacting your physicians and insisting on what you need. Especially noting that the EP may be more attentive to your pacemaker than to you and your pacemaker.
I'm 73, had sudden onset of intermittent 2 degree and complete ventricular block last fall. No other cardiac issues (or other health issues). My pacemaker was implanted at the end of January without any problems. It took about 4 1/2 months for all the little twitches and tingles, etc. to disappear. I tried to increase my exercise level and kept running into SOB with my heart rate staying at maybe 70-80. Not increasing to match my exertion. So, hearing your encouragement in my ears, I moved my pacemaker checkup earlier than schedule...


Posted by Robind78 on 2014-08-19 19:46. 2 comments. 235 reads
 
Hi all. My husband has a st. Jude crt-d. It was implanted in June 2014. It was originally set at a low rate of 60 and a high rate of 120. The rate response is on. He was interrogated yesterday and they turned his heart rate up to 70 bpm because he was only being paced at 88%, not 100%. They want him paced at 100%. The technician said that My husband's heart looked better with an increased heart rate. He is now feeling light-headed at times. Is this normal? Will it just take a little time for his heart to adjust to the new rate? His voltage was also turned down to save battery life. Thanks for any information you can provide me.

Posted by ettmayr on 2014-08-19 02:53. 0 comments. 126 reads
 
Hi all...I had my Medtronic pacemaker renewed at the beginning of July this year. All went well

Posted by Vinnie on 2014-08-17 14:36. 0 comments. 129 reads
 
Hi Inga, I sent you a "private message" of thanks hope you got it ---( first time I'm using it ). Thanks again.
Vinnie

Posted by Sheepwash on 2014-08-16 13:34. 0 comments. 174 reads
 
I have had my pacemaker for 5 years and 7 days ago had my yearly check up and was told that I have 15 years battery life left as it only kicks in occassionaly however I am getting like a tingling sensation on the opposite side of the pacemaker and sometimes get it in my arm is this normal?

Posted by Vinnie on 2014-08-15 20:07. 1 comments. 199 reads
 
Hi everyone. I need a little help. I'm trying to understand the Rate Response on my CRT-P. My AV-NODE is ablated and I have a Consulta CRT-P. My rate response is set at "medium" and the Mode is set at V V I R. PROBLEM: When I walk at at steady pace after about 10 minutes I get fatigued and really don't feel like walking any more, I'm not out of breath; just fatigued. The same thing happens when I walk up a flight of stairs, about 20 steps. The CRT-P has settings of LOW, MEDIUM & HIGH on it. Since I"m now set at MEDIUM If I have it reset at HIGH would that help? Also what is Mode V V I R? The CRT-P is set at 60 BPM on the low & 130 BPM on the high. Any help would be appreciated. Thanks.
Vinnie

Posted by ironmanjon on 2014-08-15 04:50. 9 comments. 497 reads
 
My consultant cardiologist has written to my GP following my last appointment with him. The letter includes:

"I chased up the details from his previous pacemaker check (when he was an inpatient) and this showed an atrial fibrillation burden of 9% ie pretty low. Interestingly he also had a bit of atrial flutter during the pacemaker check at which point his pacemaker was pacing at the maximum tracking rate. This was managed by reducing the post ventricular atrial blanking period and changing the pacemaker to DDIR mode."

I understand AF. I think I understand maximum tracking rate. The final sentence defeats me. Can anyone help please?

What is DDIR mode and what mode would I have been on previously?

...


Posted by slarnerd on 2014-08-15 01:23. 9 comments. 394 reads
 
Both of my kids have pacemakers and we do a routine Carelink check every 3 months, plus as needed if something seems off. On my old insurance, I never saw a charge for Carelink - not in a hospital bill or even on an Explanation of Benefits from insurance company. With my new insurance (still Blue Cross PPO but different plan through different employer), I have co-insurance obligations of 15% and I'm seeing Carelink bills. The hospital is charging $980 (per child) for each Carelink reading. I do not understand why this is so expensive - an in-office pacemaker interrogation and adjustment is billed at under $200. The few people who use Carelink that I have asked have reported lower costs on their EOB or not being billed at all for it.
...




Member Login
email:

password:



Who's Online?
We have 870 visitors online.

Members online:
  tessenne
  Darine
  RDD
  Firefoy
  60bpm
  donr
  edwardtkennedy
  thunderview
  Artist
  revelation
  Alma Annie
  raiderralph
  MaryJaneSparks

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
The mortgage on your device is more than your house.

Member Quotes
It becomes a part of your body just like any other part.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2015 Pacemaker Club Inc.
All rights reserved.