St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by Nikki-porter on 2015-01-02 23:12. 3 comments. 439 reads
 
Hey everyone. I am 30 years old and I have a dual lead St Jude pacemaker. I guess I should start from the beginning. In January of 2014, I started having a lot of issues. Constantly high heart rate, palpitations, dizziness, shortness of breath, headache and extreme fatigue. I could not walk 5 feet without my heart racing. After a few wrong doctors, I was finally referred to an electrophysiologist. By this time, it was April. She did a stress test, which I could not finish because y heart rate got to over 200 and I was gasping for breath. She also put me on a 30 day event monitor. When I got the results from it, she diagnosed me with inappropriate sinus tachycardia. The lowest my heart was during the 30 days was around 130. I had already be...


Posted by Spunky_1 on 2015-01-02 11:31. 2 comments. 281 reads
 
I've had my PM for SSS for almost 5 months. I will be meeting with a Rep. for the first time Jan 7th. Since I'm new to all of this:
Q:What should I ask him about???

I am really young, I was very active prior to heart issues, and I have several autoimmune diseases (if that makes any difference). Advice/questions to ask would be very much appreciated!!

Thank you,

Spunky_1

Posted by ArchGirl09 on 2014-12-29 21:35. 6 comments. 445 reads
 
Hello. I've had a pacemaker most of my life and always used a land line and a corded phone to do my remote quarterly check-up, until I moved out of my parents' house. I was trying to avoid paying for a land line as I use my cell exclusively, so I asked the monitoring company if I could just put my cell phone in the cradle instead, and hey, it worked! Before I got my first of 2 new pacers last year (long story, but I still only have one) the techs told me they had a model that had wireless transmission capabilities and I could basically just set it up in my bedroom at night and it would collect and send what it needed, no phone line or "plug-in's" required. However, what I got was a box that has to physically be plugged into a land line (no...


Posted by Energy on 2014-12-27 15:18. 11 comments. 430 reads
 
I posted a few days ago about pm settings and would ask again... Have any of you who have pm ... Asked if your settings are optimal for you? Or when the Dr. or whoever checks it... Says everything's working fine....you don't question any further....just would like some feedback....

Posted by Energy on 2014-12-26 17:53. 1 comments. 211 reads
 
I recently had my first remote transmission with my St Jude Merlin.
Received my report back and it said " your device is functioning within normal limits and was successfully reviewed.

My question is... Several weeks ago I read on here someone saying " when they say your device (pm) working and doing its job" does that mean it is functioning and set to your optimum setting for you?
I thought of this when I read "functioning within normal limits" .... Is there a more optimal setting and how would you intelligently ask that question...
This seems like a question for the St Jude rep....

Appreciate any feedback on this...

Thanks!

Posted by kjake on 2014-12-24 12:15. 3 comments. 248 reads
 
I was told that my wifi on my pacemaker was not on till the merlen home reader or the doctors pacemaker reader is on. I asked them to turn it off but got the above reponse. I am a computer engineer and donot believe this the pacemakers wifi is aways on to be read. Just like the vise president he had his turned off not a security risk but a cancer one I think.

Posted by davide on 2014-12-24 10:00. 2 comments. 267 reads
 
Hi Guys,
I am a long time member aged 86 and had my second new BIOTRONIC Evia DR device implanted in April 2013 after the last one which functioned perfect for eight years. I am feeling well and have no complaints but would like to konw a good explanation on what the meaning of the check up today December 24 means:
Due to Permanent AFIB the PM implacted is of VVI-R mode.
As mentioned above I am feeling fit and have no complaints and the examining surgeon said that all was functioning well and gave me a new date in eight moths time for routine check up. I know that I have AFIB for years and feel nothing from it.
So what does this mean?
Thanks for any advice
Davide


Posted by wescoot2 on 2014-12-22 22:12. 4 comments. 314 reads
 
Well I'm now post 8 weeks, so far all is well, next month I will be going for my first interrogation. I have a couple of questions. Has anyone used the VA to do their interrogation, and if you have, what are your thoughts. Second, does the person who does the interrogation make any changes necessary on their own, or do they confer with your cardiologist. Finally, any feed back as to what I can expect on this first visit would be appreciated.

Thanks, and Merry Christmas to all.

Posted by CHARLEY3 on 2014-12-22 21:32. 1 comments. 181 reads
 
HAS ANYONE HAD A PROBLEM USING THE MERLIN HOME MONITOR? WE HAVE HAD 2 AND ARE UNABLE TO GET THE DEVICES TO WORK. WE RRECENTLY WERE SENT A NEW ONE AND IT DOESN'T WORK EITHER.

Posted by Narda on 2014-12-19 07:06. 4 comments. 374 reads
 
I am 100% pacemaker dependent because of A/V node ablation. I am set at 70 bpm. It can go up into the 80's just walking from one room to the other and I get winded with very little exercise. Is this normal or am I being paced too fast? I would appreciate any answers. Thanks.
Narda

Posted by kim123 on 2014-12-18 06:53. 6 comments. 344 reads
 
Mu husband had a pacemaker fitted a year ago, diagnosed with 2nddegree heart block 34 pulse. Just been for his check up, was told that his signal was only getting through to the bottom of his heart 20%, so this is why he needs a pm, so he is using it 80% of the time, as he is an anxious person but also wants to know everything about it, he wants to know if he would be dead without the pm, on his notes it says not pacemaker dependant, he is confused, or is it about quality of your life


Posted by Dave H on 2014-12-13 13:54. 4 comments. 425 reads
 
Phone conversation with an EP nurse yesterday: Me: Lately, on the treadmill, I've noticed the max heart rate I can achieve (@ 3mph) is 115 - 120. In the not too distant past, I could get my HR up to 145. Do I need my PM adjusted to permit a higher HR? Nurse's answer: "No, since you are taking Metoprolol, that's what is keeping your pulse from climbing any higher." (BTW, I've been taking 50mg 2X daily Metoprolol, aka Lopressor, for 2 years now).
I'm suspicious of her answer-----I'm under the impression my pacemaker is what controls heart rate (I am pacing 100% since an A-V node ablation 2.5 years ago.)

Any thoughts?
--Dave--

Posted by terrymac12345 on 2014-12-11 19:39. 2 comments. 193 reads
 
Went to the doctor today for a medtronic testing. The reason my heart pulse goes below the 60 setting is because I like others have an extra heart beat that fools the pulse ometer. Turns out all is working correctly and I accomplished more today than in months pre- pacemaker. Thanks for all the great feedback!

Posted by kawasherpa on 2014-12-07 21:19. 5 comments. 328 reads
 
What do the volt readings mean? At my 2 week check up they lowered the volts but I only know they lowered from 3.5. Is there a number we should be at or is different for each of us?

Posted by DavidStarnes on 2014-12-05 17:23. 9 comments. 420 reads
 
Having had one of my family members receive a device, I was shocked (no pun intended) to see that see was not being followed by remote follow-up. Her physician's office didn't have anyone adequately trained. Remote Follow-up provides a wealth of information.

I have worked with 3 out of the 5 device companies for 20+ years, and know of a great company that provides this service to cardiologist's offices. If your cardiologist is not providing this service for you, contact me directly and I will send them info.

David Starnes
davidstarnes1@gmail.com
832.428.7672

Posted by jtimothy on 2014-12-05 15:44. 2 comments. 362 reads
 
I'm an occasional runner and a serious bicyclist which probably gave me a low heart rate 45 - 50 bpm. I've also got Parkinson's. Whereas I can perform fairly well in my sports, I have shortness of breath when walking up an incline or flight of steps without some warmup. After a series of cardio and pulmonary tests, I was diagnosed with CI. I had a pacemaker installed a couple of months ago, but I still have the SOB problem. My PM doesn't really boost my heart rate significantly until 60 seconds after I start to climb the steps, and in the interim I start panting heavily. I'm going for an adjustment of my PM this coming week and am wondering what feature needs tweaking. I have a Boston Scientific Ingenio dual lead. Any advice with s...


Posted by Moongodesss on 2014-12-02 17:16. 1 comments. 189 reads
 
Hi, Has anyone else had a pocket revision done after only 9 months with the original pacemaker. This revision has been awfull and the tech can't seem to get the settings to work for my heart. I feel tired and the extra work my heart seems to be doing is wearing me out. Could use some help. Thanks, Nanci

Posted by aicha on 2014-11-29 07:35. 6 comments. 370 reads
 
Hi everyone, I live in the UK so don't have to pay for treatment, which may have a bearing on this?!

Had my PM 3 years ago, dual chamber for bradycardia. All sort of fine till 6 weeks ago, started getting pain in chest on exertion - 10, 20, 50 paces and have to stop and rest - going upstairs on all fours.

PM clinic checked settings 3 weeks ago and found no problem - they refuse to check them again as they are convinced it is not PM problem. My GP says there is no chest problem, ECG and chest x-Ray fine.

Am now at my wits end and don't know what to do - I'm 65 but feel 80 - sometimes get a kind of electric shock in the vein where the leads are - any suggestions?

Posted by wjs1954 on 2014-11-26 16:41. 1 comments. 231 reads
 
Went today for adjustment. Min reset to 50 from 40 for day time night left at 40. PM rep said after last adjustment 6 days ago my pm use had went from 80% to 25%. I said of cousre because you chaged the min to 40 . Also said rate drop was turned on 6 days ago and it was activated 6 times, i'm thinking that was also because 40 was set as min, with a min of 50 I don't think rate drop will be activated as much because pm will kick in at 50. Hopefully 50 will help with just feeling spent all the time. Have appointment in 4 weeks again to see how I like new settings. I did question the rep about setting below 60, she said "approx 80 % of PM are set min of 60 " also said active and young people are much harder to set, adjustments are necessary...


Posted by TJ319 on 2014-11-24 17:33. 5 comments. 482 reads
 
This week I had a 6 month check-up with my cardiology group including an interrogation of my PM. I've had it just over a year and the past 6 months have been very good after a rough start up. The technician asked a simple question regarding how I feel when walking. I answered "fine" and then mentioned that, when I run, the first half mile or so is a bit difficult as my system comes up to steady state. He decided to make two adjustments, although I did not ask for them. He increased the slope setting and changed the recovery setting from medium to slow. It seemed like a good idea at the time. From the moment I left the doctor's office on Friday throughout the weekend I had difficulty. Every time I made any kind of quick move my heart...




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