St. Jude Medical Pacemakers & ICDs

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Messages in Checkups & Settings Forum



Posted by momameka on 2015-01-27 08:36. 9 comments. 334 reads
 
My heart rate went up to 194bpm so i went to the ER for difficulty breathing they gave me lidocaine (which sent me in convulsions) to lower my heart rate and it did well the hospital Electrophysiologist changed my device settings from it shocking me at 214bpm to 182bpm in which i totally disagreed but they dont understand the mental anguish this device causes,and yes i am aware that its there to save my life and im very appreciative for that my problem is when the doctors dont include me in my life decisions....

Posted by Sarah3 on 2015-01-26 18:36. 3 comments. 254 reads
 
That is what the technician has determined. First allow me to say that Mercury is most indeed retrograde. I was not able to see my EP today so the tech did her thing. Knew it was going to be interesting when she fat fingered the keyboard and put my pm in OMG emergency bells and whistles thumper mode. From there it was keystone cops déjà vu. It included a call to the manufacturer to see if they could load the settings remotely or if there was a button she could push or icon to click to recapture what she had just wiped out... ha! Finally she did a tag team approach with another tech and I was able to resume breathing normally.
Long story short, none of the issues I brought up are due to PM. Said I need to go to primary care fo...


Posted by mara on 2015-01-26 13:09. 1 comments. 258 reads
 
3rd AV block 1/23/2014 = St Jude pacer. Now experiencing light headedness, deep breaths, some chest " fluttering". Everything fine for exactly 1 year & now experiencing issues!

Posted by Sarah3 on 2015-01-25 21:23. 5 comments. 254 reads
 
I have an appointment tomorrow for a regular checkup. My concern is this. My head is not working clearly enough for me to figure out how the heck to say how I am doing. Some days are better than others. Fatigue is still a problem so is shortness of breath.... racing fluttering feeling that comes and goes with or without provocation. Christmas was a fog for me. Could not think straight and now remember little of it. I am really good at denial. Is that enough information for them to go on? My concern level is really getting up there. Initially I did really well energy and clarity were much improved. Lately, not so much. Any words of advise or encouragement would be appreciated.
Thanks,
Sarah


Posted by valley01 on 2015-01-23 08:01. 4 comments. 336 reads
 
I went back to see my EP yesterday. They had 2 Representatives from Biotronik there to investigate and help reset my PM. I took my Relief Band to the appointment with me. From Tuesday's appointment they were able to send the files of data they collected from the PM to Biotronik. On Wednesday the Biotronik Engineers reviewed the files which were all the components of the PM self checking and they determined the PM was operating properly, that it did not malfunction. Also, my home monitor finally was able to download Wednesday morning so they were able to piece back that the PM went into safe mode on 1/6 (the day I flew to Florida). They said my PM detected something on the 6th and put itself into safe mode which is what it is programmed to ...


Posted by valley01 on 2015-01-20 15:55. 5 comments. 383 reads
 
I have a Biotronik Evia DR-T dual lead pacemaker installed a little over a year ago for bradycardia. Today I went in for my routine annual check-up with my EP. When he tried to perform an interrogation he kept getting an error message. After an hour on the phone with the manufacturer tech support they found out my pacemaker had gone into backup mode.My last home monitor transmission was 1/6/15. I flew to Florida that day and returned on 1/11/15. From what I was told when a pacemaker goes into backup mode it should reset itself in 24 hours. Mine did not. Only 2 things that I am aware of could have caused this. 1) Airport security scanner which I highly doubt as they are supposed to be very safe and I have been through this exact one before...


Posted by EdG on 2015-01-20 13:55. 2 comments. 194 reads
 
My Medtronic PM was put in January 2014 and there has been a problem with pounding heartbeat every since. This is a problem that I never had with the previous Medtronic PM in the 8 years it lasted. The doctor says the PM is working as designed and has made a couple of adjustments, but the strong beats make it difficult to get to sleep or back to sleep in the middle of the night. It takes very little exertion to bring on shortness of breath and noticeable pounding. (Note: my aortic valve was replaced in June 2014 with a TAVR ; that is an animal tissue valve in a stent. An echo shows it is working satisfactorily.)
Has anyone had similar problems with and did a voltage adjustment make any difference in the pounding?

Posted by terrymac12345 on 2015-01-14 19:13. 3 comments. 326 reads
 
Hi, I have been having some arythmia for a month or so and the cardiologist is raising my heartbeat from 60 to 70. I would appreciate some feedback. Thanks!

Posted by Artist on 2015-01-12 23:10. 5 comments. 397 reads
 
I have a St. Jude 2210 pacemaker and a Merlin Home monitor. When I got the home monitor in the mail I followed the instructions and set it up immediately. As far as I can tell it is sitting there day after day doing nothing. I am guessing from the vague instructions, that it is only active when the doctor orders a monitoring/check up session. I was led to believe that I would receive information regarding specific dates/times that the Merlin would interrogate the PM. I have received no information and will investigate this at my next doctor's appointment. But in the interim I am wondering if it is at all necessary to have the Merlin plugged in everyday when it appears that no one has requested any monitoring. I would think that I sh...


Posted by Jj on 2015-01-12 20:09. 1 comments. 449 reads
 
Hi
Can anyone explain what is an AMS episode that is detected on an interrogation? How many are normal and are 600 in 3 months considered a lot? Any info will be appreciated .

Posted by sweetcheeks on 2015-01-12 15:57. 2 comments. 257 reads
 
First PM check up today at 4 weeks post op due to a couple of settling in problems. My pm is doing a great job and i've decided to call mine Precious:). I am pacing100% in the top main lead,
I had been getting a wee flutter feeling and I could feel a pulsing now and again in my left ribs which I was told today was because my lower lead was set really high in surgery (which apparently is normal to see how you go in the first weeks) They lowered it slightly today.( Theknotguy on here was right about that)
Only 4 weeks in and i'm doing brilliant.
My blood pressure keeps dropping which has makes me a bit dizzy sometimes but the technician today said the surgeon will see the report and hope to try reduce the Verapamil slightly...


Posted by breeze on 2015-01-11 11:52. 0 comments. 315 reads
 
Good morning - I have not been here for quite sometime well at least not to post - I do come in and read the posts
Anyways, I now have a question
I have had my PM for 5 years and have had no problems - I send remote transmissions to my EP every 3 months - Nov of last year I had my yearly check up - to make a long story short - the Medtronic ppl made some changes - my EP came in and saw the changes - he said "she will not like that" and changed them back and I guess in the process he made a slight change - so I asked will I feel this and he said "no" however since that time I have had nothing but PVC's - especially at nite - so I was wondering if anyone else has had this happen? oh and I will be calling my EP tomor...


Posted by Jeff on 2015-01-08 22:16. 4 comments. 402 reads
 
Hi All
I recently had a routine device check up. The test showed that my ICD had responded to two incidents with shocks both around 2am while I was sleeping. From reading other accounts of ICD shocks the general sense I get is, that it is something that would have woken me and or would have felt something. My doctor told me this also. Anyone experienced this or have input to help me with this? I always appreciate everyone taking the time to help.


Posted by arizlori on 2015-01-07 13:21. 4 comments. 665 reads
 
Recently at my interrogation, I was told offhandedly that I had a cardiac event on September 5th. I didn't ask what that meant but I should have. I certainly don't recall anything happening on 9/5. Does anybody know what that means when they say "cardiac event or incident?"

Thanks

Posted by Jj on 2015-01-05 19:32. 2 comments. 280 reads
 
I requested a copy of my telephone interrogation of my ICD from my doctor. I am getting a run around. Am I entitled to a copy and does anyone have a suggestion in getting it.
Thanks

Posted by Nikki-porter on 2015-01-02 23:12. 3 comments. 473 reads
 
Hey everyone. I am 30 years old and I have a dual lead St Jude pacemaker. I guess I should start from the beginning. In January of 2014, I started having a lot of issues. Constantly high heart rate, palpitations, dizziness, shortness of breath, headache and extreme fatigue. I could not walk 5 feet without my heart racing. After a few wrong doctors, I was finally referred to an electrophysiologist. By this time, it was April. She did a stress test, which I could not finish because y heart rate got to over 200 and I was gasping for breath. She also put me on a 30 day event monitor. When I got the results from it, she diagnosed me with inappropriate sinus tachycardia. The lowest my heart was during the 30 days was around 130. I had already be...


Posted by Spunky_1 on 2015-01-02 11:31. 2 comments. 300 reads
 
I've had my PM for SSS for almost 5 months. I will be meeting with a Rep. for the first time Jan 7th. Since I'm new to all of this:
Q:What should I ask him about???

I am really young, I was very active prior to heart issues, and I have several autoimmune diseases (if that makes any difference). Advice/questions to ask would be very much appreciated!!

Thank you,

Spunky_1

Posted by ArchGirl09 on 2014-12-29 21:35. 6 comments. 473 reads
 
Hello. I've had a pacemaker most of my life and always used a land line and a corded phone to do my remote quarterly check-up, until I moved out of my parents' house. I was trying to avoid paying for a land line as I use my cell exclusively, so I asked the monitoring company if I could just put my cell phone in the cradle instead, and hey, it worked! Before I got my first of 2 new pacers last year (long story, but I still only have one) the techs told me they had a model that had wireless transmission capabilities and I could basically just set it up in my bedroom at night and it would collect and send what it needed, no phone line or "plug-in's" required. However, what I got was a box that has to physically be plugged into a land line (no...


Posted by Energy on 2014-12-27 15:18. 11 comments. 443 reads
 
I posted a few days ago about pm settings and would ask again... Have any of you who have pm ... Asked if your settings are optimal for you? Or when the Dr. or whoever checks it... Says everything's working fine....you don't question any further....just would like some feedback....

Posted by Energy on 2014-12-26 17:53. 1 comments. 221 reads
 
I recently had my first remote transmission with my St Jude Merlin.
Received my report back and it said " your device is functioning within normal limits and was successfully reviewed.

My question is... Several weeks ago I read on here someone saying " when they say your device (pm) working and doing its job" does that mean it is functioning and set to your optimum setting for you?
I thought of this when I read "functioning within normal limits" .... Is there a more optimal setting and how would you intelligently ask that question...
This seems like a question for the St Jude rep....

Appreciate any feedback on this...

Thanks!



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