St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by natlat on 2014-04-22 07:05. 3 comments. 48 reads
 
Hi all, so 39 year old athletic female here. Found to have a sort of RV Dysplasia. Having an ICD implant Friday. Haven't run a lick in two weeks. Anyone else with this disease? Are you able to remain active with the ICD? how long did it take you to get back up and running, cycling or whatever? Thanks for chiming in.

Natasha

Posted by Dizzytiltingwoozy on 2014-04-20 11:52. 3 comments. 88 reads
 
I just finished reading a Poll on another site I frequently visit. The Poll was in regard to how many people have Sleep Paralysis, I was surprised by the answers.

Several people had what sounded like sleep apnea. Several people had sleep paralysis as children but had it happen less often as they matured.

I know I have had sleep paralysis happen to me when I first wake up I can not move. Very upsetting to me, especially now that I have had a Stroke. I have had Sleep Paralysis since I was a kid.

I am very curious how many people in our group have had such things happen to them. I wonder if it is connected to Sleep Apnea, our cardiac conditions. Doctor's seem to think it is harmless, I am not sure what it ...


Posted by Catherine on 2014-04-19 12:02. 5 comments. 164 reads
 
Hi, I have just gotten a PM 2 days ago. After 2 syncope episodes within 1 week I was scheduled for a tilt table test. After 40 minutes in the vertical position (no drugs were administered) my heart stopped and I flatlined for 45 seconds. The doctor(electro physiologist ) insisted I needed a PM and within a few hours had installed the device. So now I am just wondering if this will fix the problem. Before they said that when I fainted I woke up because the blood could get back to my head because I was horizontal. I am now told that I fainted because my heart stopped. He also put me on a beta-blocker which I am not thrilled about. This is all so new I need much more information.
Altho I am 65 yrs old I am extremely healthy, not overwei...


Posted by mandana on 2014-04-18 09:23. 3 comments. 73 reads
 
I want the hemo-compatibility and biocompatibily tests which are used for a pacemaker device before entering to clinic. I'd be thankful if someone could kindly help me :)

Posted by Sharron46 on 2014-04-16 07:54. 4 comments. 156 reads
 
Hi
I'm new to the group and would like some advice please
My pacemaker was fitted last November
I went to pacemaker clinic in December to be told I have a fault on a lead and the specialist would be in touch
I had a 2nd appointment in March I be told the lead has been switched off and I am having extra beats
And the specialist will see me the following week
I've seen the specialist and told him I am feeling just the same as before having the PM fitted and asked why the lead is turned off just leaving the 1 I was informed that as I'm 46 I don't need it yet may do in 10yrs and it's standard to fit both even though not needed ?
As for the extra beats I've now developed since having the PM the specialis...


Posted by natlat on 2014-04-15 07:23. 7 comments. 185 reads
 
Hello, New here..39 year old very athletic female, never had problems in the past other than a near syncope episode in Jan, then actually fainting after a 7 mile run which landed me in the ER and the one this past week-end when I was taken by an ambulance and found to have a heart rate of 240 (scariest thing that ever has happened to me!) - I could not see, nor breathe, this was nearing the end of my 7 mile run. For the previous syncope episode I did a stress and holter and they found nothing so said it was low electrolytes. This past week-end, I had catheterization and an EP study and they said they really taxed my heart in the EP study and still could not find the cause of the VT. I am so frustrated! I now have to have a cardiac MRI,...


Posted by Catteacher on 2014-04-13 17:09. 3 comments. 127 reads
 
I have a question, it maybe just my imagination. but I'm feeling a 'lump' to the left of my PM. Could it be fluid? I'm being treated for 'lymphademia' right now. Doing compression on my legs, forcing lymph to b forced up through my system. anyway, this spot, about the size of an egg is just something I'm aware of through feeling it internally. it's not visible. Thank-u all.

Posted by amsid12 on 2014-04-11 17:45. 2 comments. 85 reads
 
Had a single lead PM put in a year ago and I still find it uncomfortable if I sleep too long on my left side. Also have numbness and at times discomfort under the arm. Is this normal?

Posted by pupu on 2014-04-11 14:42. 0 comments. 79 reads
 
I would like to ask anyone with cardiac sarcoidosis what were your symptoms and/or your cardiologist's reasons for suspecting cardiac sarcoidosis? My cardiologist mentioned three reasons for why he thinks I may need a PET scan: total AV block, hypokinesis of the septum and low EF. How likely is it that an ordinary PM needs to be changed to an ICD if it turns out that I have cardiac sarcoidosis?

Posted by labor99 on 2014-04-09 21:36. 6 comments. 164 reads
 
Hello folks,,, I am the guy that had the sore mouth and gums. Its official, I can no longer take Metoprolol. Doc took me off of that med and within 15 hours my mouth started to get better. He replaced the Metoprolol with Diltiazem. On another note he put me on Eliquis (blood thinner). I almost caused my ICD to go into action when the gal told me the charge ,,,,,I think it was around $380 for a thirty day supply. 5 mg twice a day. I had been doing fine with a baby aspirin a day. Good Lord. I didn't have to pay all that because of insurance, but there just has to be something cheaper that would do the job.

Posted by ROBO Pop on 2014-04-09 20:16. 8 comments. 287 reads
 
Dear Family, and Friends ~
I wanted to take this opportunity to discuss something that has been bothering me, and I felt needed to be addressed at length, so we may come to an understanding. My condition, specifically congestive heart failure (CHF).

For some reason, society equates looking good to physical well being. Even medical doctors, who know better slip into this trap, and equate appearance with well being. Unfortunately CHF seems to target the world’s beautiful people. While we may look deceptively good, causing others to believe all is well, the fact is we struggle daily with survival. Every day I wake up is a challenge.

Congestive Heart failure, or simply heart failure, is the inability of the hear...


Posted by Jody on 2014-04-09 01:39. 3 comments. 95 reads
 
Forgot to ask if it's normal for the skin over the pacemaker site to be numb...it's a weird feeling.

Posted by jillybird on 2014-04-07 15:37. 7 comments. 135 reads
 
Hi all, just wanted to ask all of you who have vasovagal syncope with low blood pressure - if you maintail a high sodium intake to try to combat it, exactly how much do you take a day? Do you measure? I am drinking alot of fluids, and put about 1/2 teaspoon of salt in my 20 oz water/crystal lite mix, 3-5x a day plus salty foods so I'm guessing I get a total of 2-3 teaspoons a day? I'm wondering if I need to do even more? I have an appt with a new cardio on Thursday so I want to also ask him about just taking salt tablets. Does anyone take those? They are perscription only, right? Thanks for any input you all can give!

Posted by judy on 2014-03-29 13:36. 0 comments. 56 reads
 
Thanks to all who had suggestions for long qt info. I found a great site SADS (sudden arrhythmia death syndrome). I am still waiting after 2 months just to find out if insurance will cover genetic test. This website has a LOT of info in getting that to happen. There is a contact name too if you are having problems or have been denied. I have not used her yet. But this organization is very convinced that the genetic testing should not be denied. So there is an update. I will post another with more news.
Judy

Posted by Cljs1654 on 2014-03-28 11:25. 5 comments. 191 reads
 
Hi, I'm new to this website but I was just wondering if anyone has any advice or wants to share their experiences of SVT and pacemakers?

I'm 21 and have had SVT for 6 years now. I've had 2 ablations that have both failed. In my last ablation they found that one of my additional electrical pathways is right next to my AV node so after 4 1/2 hours they decided to stop so that they didn't burn out the AV node and leave me dependant on a pacemaker.

I'm due to go for a carto/cryogenic freezing ablation but they have no idea if it will be possible to do until they try. They have told me that this is the last procedure they will do- successful or not. They have asked me to decide whether to have a pacemaker put in there an...


Posted by Dave H on 2014-03-25 15:26. 2 comments. 159 reads
 
My favorite subject: INR testing. Over the past 5+ yrs, I've concluded (from numerous events) a blood draw INR results in a lower number than a "finger stick." Confirmed by one Cardiologist who stated, "We know that." Now, do different "finger stick" devices vary? You be the judge. Current cardiologist did not approve of my at home INR monitoring. He referred me to the group affiliated with his practice. That anticoagulation clinic used a "finger stick" device similar to what I was using at home. Since last Nov., they upped and upped my warfarin dose because I would pretty much stay in the 1.6 to 2.0 range. (After being rock steady 2.3 to 2.6 with my home device) On a weekly level, they increased my warfarin 50%. Last check 2 wee...


Posted by tiger69 on 2014-03-25 11:15. 1 comments. 107 reads
 
I have a pace maker/defibrillator and often I feel a buzzing vibration in my chest. After this I feel weak. I may not have another feeling like this later or I may have several that day. Anyone else know this "feeling?"

Posted by tarsha on 2014-03-23 05:38. 5 comments. 199 reads
 
Is this a dangerous test because I read it uses 500 times the radiation as an xray. My doctor has ordered this because my pacemaker recorded 3 episodes of rapid beats in the last month. I'm not sure I want that much radiation in me.

Posted by Kayleigh on 2014-03-22 17:34. 4 comments. 163 reads
 
My son was born with complete heart block and is fitted with pace and totally dependent and is currently aged 7 .
Could anyone advise as I know this does cause a weakness to the heart wall muscle is anyone experiencing this situation ??

Posted by amalie on 2014-03-22 08:41. 18 comments. 436 reads
 
Hello everyone I am new here. I'm looking for advice or a sounding board really.

A little background on me, I live in the UK.
I'm twenty seven.
I have had passing out/faints on and off for a few years spread out quite a bit. Some sitting down, others just drop to the floor. I also suffer with dizzyness too.

Well last tear I had to be taken into hospital because I collapsed into a glass table in the middle of the night and took ages to come round and my BP was very low when the paramedics found me, I also really injured my neck.
I was sent home as they did a lot of ecg's while I was there and all clean.
Then a few months later I passed out in the middle of a restaurant on a stone floor, it was a sim...




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