St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by Duke999 on 2014-02-25 23:27. 16 comments. 571 reads
 
Question:
Am I wrong to conclude that there is NO cure for our heart's "electrical" disease/problem?

I mean, basically, we got ourselves a PM and take medications (some people don't, but most do) to "control" the problem.
Then, we go on indefinitely trying to have our PM and medications tweak and tweak until we feel somewhat OK. And then may be a few years go by if we're lucky, we go in for new PM replacement, then new problems arise, then again PM and all kind of medications tweaking again. This go on and on, no end to it. NO cure!
So, we're basically buying time. Am I correct? Sorry for asking this question if you find it depressing or offensive.

I wish you all well. And thank you for any input ...


Posted by Runner-Runner on 2014-02-24 01:14. 2 comments. 124 reads
 
Good day everyone, Just thought I would fill you all in on my challenge. For those who are joining late you can look at my other post.

As it turns out, the original 'recorded' ECG of my RHR of 26bpm was misreported from the trace that was taken. Despite the fact that all of my other tests could not reproduce this reading, the guy who I laughingly refer to as 'my cardiologist' never followed up on anything but the 26bpm 'reading'.

Who had to chase up the result and find out what was correct ... yep you guessed it ... ME! The original trace had 37bpm on the top of it. (Again my average RHR is around the 45bpm mark)

I emailed my 'cardiologist' a pile of questions .. will he answer me? NOPE .. Will he send me m...


Posted by whick on 2014-02-23 21:30. 6 comments. 259 reads
 
I understand that patients must take blood thinners with arrythmia because of the possible "pooling" of blood in the ventricles. However, I'm having a fluid build-up but my doctor says I do not have congestive heart failure--What could be causing this? I'm been in the emergence twice in the last year and the doctor says I have congestive heart failure. Again my cardiologists disagrees. I'm afraid I'm going to have to seek a third doctor's opinion. Anyone's help would be appreciated. My pacemaker is working fine Jane

Posted by taylorsmom on 2014-02-23 20:31. 3 comments. 199 reads
 
Hi ,
I am so glad to have found this site. My daughter is 17 and she has ben struggling with alot latley. For over a year now we have been dealing with dizzy and fainting spells. The doctors changed her diet ,put her on low dose birth control (which made her sick), and changed diet again and now back on another type of bc. Her syncopal episodes are becoming more often and she had a severe headach now and has had constant stomach pain. She has aggitation as well and becomes very moody. She seems to be tired alot when she goes through this and now has started vomiting with it. She has a neuro appointment ,but not till the end of April . We recently had her in emergency room because she was feeling awful and had a few near syncapal episo...


Posted by Duke999 on 2014-02-23 16:11. 12 comments. 259 reads
 
Question: Are there any of you have real life experiences or have a good knowledge about certain food or food additives or preservatives that trigger an episode of arrhythmia?

I mean, I can google and see list of things and articles on the internet, but I'm interested to hear from any of you with real life experience about the stuffs that you learned for sure that trigger an episode arrhythmia. I appreciate any input.

I wish you all well.

Duke

Posted by Whinny2 on 2014-02-23 15:44. 5 comments. 106 reads
 
Hi...I am new to this site. I had a 3-lead pacemaker-ICD installed last month. Recently I have had problems with my radial nerve. The doctor has ordered a EMG test to see why I am having tingling, pain, & numbness down my arm & into my wrist & hand. I know I can't have an MRI but is the EMB test safe with a pacemaker-ICD?

Posted by Sullis65 on 2014-02-21 17:57. 3 comments. 214 reads
 
Can anybody tell me what all of this means in the way of prognosis and treatment? I have a
Medtronic MRI pacemaker and am 100% dependent. If you had a similar situation what happened next? I fully realize I have cardiomyopathy but don’t know which type. I suspect hypertrophic because of years of HTN, undiagnosed CAD and BBBs.

Measurements with Normals:
LA dimension: 4.4 cm
Ao root diam: 3.5 cm
LVIDd: 6.0 cm
LVIDs: 4.9 cm
IVSd: 1.1 cm
LVPWd: 1.1 cm
RVDd: 3.4 cm

MMode/2DMEASUREMENTS 7 CALCULATIONS
FS: 18.3%
EDV (Teich): 180.0 ml
ESV (Teich): 112.8 ml

DOPPLER MEASUREMENTS & CALCULATIONS
MV E MAX VEL: 69.6 cm/sec
MV dec time: 0:25 sec


Posted by Duke999 on 2014-02-21 16:15. 11 comments. 323 reads
 
Questions to you folks who run/jog or do cardio often:

1. After running (for me, everyday I do about 40 minutes at 5.5 miles/hour) and my heart rate would reach about 150-160 bpm, I would then cool down by light walking about 3 miles/hour. How long does it take you folks to get the heart rate back down to below 100 bpm? My heart takes at least 15 minutes to slow down to below 100 bpm. That appears to be a long time, no?
My PM is NOT turned "On" for Rate Response nor any activity sensing features. BTW, I'm 5'7, 152 lbs, 48 years old, male. (I don't think I'm overweight)

2. For some of you folks that are hard core runners (marathon, etc) who are in late 40's and above, do you have pain in your knees? How do ...


Posted by judy on 2014-02-20 22:32. 8 comments. 253 reads
 
I hear lots of people talk of a-fib. Can anyone describe this? I get fast hard palpitations 10-15 times a day. They are quick and over quickly. Neither the EP nor the cardiologist will tell me anything about these.
thanks for any help.
Judy

Posted by GratefulGirl on 2014-02-20 18:43. 7 comments. 225 reads
 
So before I had my ICD when I had some crowns last year- my heart raced like crazy and the dentist office told me that I was 'allergic' to the novocain and to remind them next time and they could give me something different so my heart would not race.
Fast forward to now and I have an ICD due to I went into Vtac twice since September. What has the experience been in the group with ICD and dental work? Thanks all!!



Posted by Rog on 2014-02-16 20:49. 4 comments. 128 reads
 
Hi gang, Been a while since I posted, but I got my CRT-D in Aug of 2013 and all was well. Then on Thanksgiving day I got sciatica down my right leg and still minor problems with that! Two weeks ago I got a call saying that since last Oct I have gone into a-fib or flutter 115 times, the longest being 1 hour (I have the Lattitude monitor system so they can check on me.) . Couple days later I was getting out of the shower and got sob, so got my cardiac belt and sure enough it read 150 bpm. Went to ER and that said I was low on magnesium so two small bags through IV and increased toperol to 200mgs per day. Saw nurse practitioner and she said I'll see the Dr. in April and if this keeps up, I'm looking at another ablation this year.

Posted by velvet on 2014-02-16 09:42. 7 comments. 174 reads
 
Hi Everyone, I am due to have pacemaker surgery this week. I think I have accepted that this needs to happen but do have one question. I have been told I will not be able to have an MRI due to having the pacemaker and was wondering if this concerned anyone else? Hopefully I still have 20+ years to live and this will limit my options if I were to get sick.

Posted by maddy on 2014-02-14 11:30. 4 comments. 194 reads
 
Hi everyone, i am new to this site. I have had a pacemaker for 7 years. I had a heart block problem so was fitted with a metrionic pacemaker, on demand only. I also have svt, atrial tachy, afib and have had one episode of vt (that's all the heart stuff out of the way!) I wondering if i can have a mri pacemaker fitted when i am due to have the batteries changed. For three years i have been in agony with back and neck pain, i am facing a possible spinal fusion as the discs in my spine have worn away, my orthopaedic has done xrays,ct scans,myelograms but as i have so many other joint problems the answer would be mri scans. I cannot have this because of the pacemaker. I am due to have the battery changed this year, i have two leads, i am wond...


Posted by Vmurph on 2014-02-13 15:06. 5 comments. 195 reads
 
I got into my doctor yesterday. My pm showed 54 episodes of my hr above 150. Some days it was 6-7x a day. That's actually pretty good for me. I've felt awful for the past 2 weeks. Feeling like I'm going to pass out with minimal activity, severe fatigue, having a hard time regulating my body temperature. Migraines and over all weakness. SOB when I walk etc. Things that all relate back to my POTS. 2 weeks ago I had issues with my speech again and the motor function in my hands. (I've had 4 mini strokes in the past)

My Dr. pushed to try to put me on Adderall a while back and I refused. I'd done my research on it and made an educated decision not to take it. Now here we are and he's wanting to put me on another Anti-Depressant. I a...


Posted by Teijee on 2014-02-12 23:14. 16 comments. 317 reads
 
Hi all!

I just recently got diagnosed with brady-tachy syndrome. Any more people with this? Wat is life expectency? He suggested medication and a pacemaker i'm honestly not scared for it at all and I cant wait to get one because i think I would feel ALLOT better.

When heart rates low trouble breathing like you are breathing for nothing.

When fast I dont even know how fast to be in hospital lol.

My heart rates where 185-40 but I also had an holter what showed 176 max and lowest 33 bpm luckily while asleep.

Share your great experiences with me I'm very interested to your story's!

Posted by adairwic on 2014-02-11 14:45. 4 comments. 172 reads
 
I just went to my heart Drs. echo the tech told me I kept throwing pbc's what does that mean, thanks

Posted by Koda on 2014-02-08 16:45. 4 comments. 127 reads
 
Anyone with a pacemaker who also has autonomic dysfunction and migraines? I need solutions any suggestions out there?

Posted by daynanestor1 on 2014-02-03 12:30. 8 comments. 429 reads
 
This maybe a crazy question, but I have to ask--

When you get a PM does it affect your circulation throughout your body? If so how can this be helped---daily asprin, Ginko Boloba?

Can the circulation to your brain cause the fuzziness/focus ability of your brain?

Posted by manaman on 2014-02-02 15:23. 4 comments. 241 reads
 
I was just looking over results of pm and lead replacement done in December.
X-ray report states "apical pleural-parenchymal scarring" !
This came as quite a shock to me and a doctor has not made me aware f this finding!
I cannot imagine when this came from all of a sudden. I have had probably 20 or more x-rays in the past 25 years or so and there has never been mention of any lung scarring!
I DID work in the carbide industry for 25 years and did smoke (but HAVE NOT smoked in over 25 years).
I am retired and do nothing that would expose me to anything other than second hand smoke.
I have an appointment with my cardio doctor and my pm doctor on Thursday and I would like to get to the bottom of this.
Any m...


Posted by daynanestor1 on 2014-02-02 13:41. 16 comments. 317 reads
 
Is anyone taking a natural/herbal Depression medicine?

If so what is and where can I order it.



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