St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by Johnn on 2015-11-18 18:28. 2 comments. 302 reads
 
I am recommending not to take Multaq. I was on it for over three years with permanent AFIB. I have had two ablations and a min-Cox maize completed. In Nov of 2014 had to do an AV node ablation and implanted a biventricular pacemaker as the afib just would not abate and I was unable to exit afib.
My liver and kidney readings have been funky for two years but not far enough for my EP or GP to want me off Multaq. With the fatigue factor increasing as well we went with the pacemaker/AV node ablation. The fatigue factor is still there and liver/kidney functions have not improved. I had 'normal' lab readings prior to Multaq usage. I think some permanent damage has been done as a result of this drug. Can anyone else advise me on this?


Posted by ettmayr on 2015-11-15 09:10. 7 comments. 449 reads
 
A few years after my pm insertion I developed CHF. I was put on a diuretic and ARB. I stopped the diuretic in June last year as I'd read it can screw up your potassium levels. I only see my cardiologist once a year and I have to travel four hours to see him. I told him I felt the diuretic was useless and he agreed that I could go off it. Why don't cardiologists adjust their patient's chronic meds? Why do we have to do internet research about our chronic meds, then tell our cardiologists what to do. I do not want my pacemaker replaced. How does the cardiologist really know what'll happen if I don't?

Posted by cadaverock on 2015-11-13 07:28. 1 comments. 299 reads
 
i have a pacemaker since 07. and i starter to drink medicines like 2 years ago i starter with metropolol and my doctor change it to a generic is call CARTIA, is a calcium beta blocker,. long story short i drink it once per day lowest doxe according to DR, well i feel that my life has change cause of CARTIA, i always feel dizzy when i look down or bend over and get up. i feel tired the whole time no energy, and get dizzy very easy and i get sad cause am only 35 and have 2 kids very young kids , i feel that is the medicine but DR told me , there is nothing else i can do. has anyone experience something similar . thank you.

Posted by Beats on 2015-11-08 15:16. 1 comments. 521 reads
 
I have a dual lead Medtronic pacemaker fitted 5 years ago for sick sinus syndrome
No complications . Get yearly check up all ok .
However I have had 3 episodes in the last 3-4 months of erratic heart beat and fluttering lasting longer each time .
From 10mins to 55mins . Today's was the longest 55mins.
I have never been on meds and cardiologist said in 2012 that I was a fit and healthy . I am male 52 years old in good shape .
Is this normal,

Posted by Patches1977 on 2015-11-03 15:01. 7 comments. 426 reads
 
Has anyone got their pacemaker placed in the pectorial muscle? My pm is flush with my skin and does not stick up. I have been having problems with it slipping out of the pocket! I talked to the pacer clinic when I had it re-calibrated. His response is that the pm is sewn in and only could be corrected if I had surgery again! I'm not doing that! Does anyone else have this problem? When it slips out of pocket it hurts, turns sideways and rubs against my collar bone. It goes back into place sometimes within the same day the longest it was out was 3 days.


Posted by Firefoy on 2015-11-03 00:09. 2 comments. 358 reads
 
Quick history: Afib 2002 with spontaneous conversion, 2007 with cardioversion, highly symptomatic in 2009, Ablation 2010, diagnosed with SSS in 2011 and PM implanted 2/2011. Had 14hr episode of AFib 10 days ago. Having periods of SOB and chest pain, palpitations, fatigue, etc. Feel like I am back to 2002. Doctor is talking about a 2nd ablation. Has anyone had an ablation with a PM already implanted? Are there more risks with the leads in the right chambers?

Posted by steveh on 2015-11-01 15:06. 7 comments. 459 reads
 
Has anyone convinced their doctor to take them off of metorpolol, if so what medicine did he replace you with, and how long did it take to remove you from this beta blocker. I have taken the side effects from this drug as long as I can.

Posted by Zareen on 2015-10-31 18:11. 3 comments. 469 reads
 
Hi Everyone.
I just got my pacemaker implanted 6 days back. I am having a sudden high blood pressure at times and also feel some sudden twitches of pain in my right side of head or ear. Has any one experienced this? Is it very abnormal ? I am a 63 years old female.

Posted by jsne on 2015-10-30 10:28. 2 comments. 326 reads
 
Anyone taking verapamil long term ??has it helped
I have been on it in the past with limited effect, trying it again for re-entry/junctional tachy. Not convinced it is helping and back to having poor sleep, legs ache/tingle from the knee down at night and still getting some palps during the night. The middle of the day is usually not to bad and I know that it may have altered my settings slightly.
Back at the consultant in December so I will have given it a fair trial but the next stage was av node ablation, big step but to free from drugs and poor sleep makes it very tempting. In between times still feel great.
Jx

Posted by dhusemann on 2015-10-29 04:56. 7 comments. 664 reads
 
jun 2012 after driving back and forth between tx and il
because my dad was having issues with cancer, I wasn't
taking care of myself. Blood pressure meds were slowing
me down (so I thought) was making me tired for sure so didn't
take them on the drives eventually stopped taking them.

short story, doctor visit, bp 280/220, ER visit, control bp
go to work, dragging seriously, go home early go to work
next night, still dragging work all night struggling,
go home, 2 hrs sleep wake up can't breath, lay back down
can't breath, another visit to ER. checked into cardiac
ward, wake up with pamphlet on table about heart failure.
EF less than 30%

2 months later make trip t...


Posted by Patches1977 on 2015-10-28 14:33. 5 comments. 386 reads
 
Hi, I'm new to this club. I had my pacemaker put in back in July 2015. Pacer shows that my heart rate ranges from 35-170bpm. My blood pressure and heart rate neither one will stay right. My blood pressure ranges from 80/50 at lowest and 160/95 at highest. I went to primary doctor and had blood work done. It showed my thyroid levels were very high. Dr put me on Synthroid .88mg once a day. Since then I have been feeling like I did before I had pacer! Tired, fatigue, weak and sleepy. I am 38 year old female and when I googled pacemaker and synthroid it scared me! Anyone else have this same medication and are having problems with it.


Posted by steveh on 2015-10-27 20:38. 3 comments. 305 reads
 
I have a St. Jude CRT_D, am taking 50mg of tropol, and 10mg novasc, 5mg altace. I stay tried almost all the time,could this be the medicine or the CRT.

Posted by fox30 on 2015-10-26 22:37. 0 comments. 216 reads
 
When I was being monitored with an event monitor I also purchased an app for IPhone and I Pads called "AliveCor Mobile ECG" It gives a lead 1 easily and with some effort a lead ii. After my CRT unit was implanted I have been doing lead I reading from time to time and have found that the QRS morphology varies from beat to beat and some day to day variation. I have a bundle of His pacing wire and one a a left left ventricular vein.
I wonder if others have used or are using this app and if they may have had a similar variation in QRS morphology and any clue as to the significance.
Would these variations likely to be of some value to my EP Dr. ?

Posted by Brit50 on 2015-10-19 19:25. 3 comments. 409 reads
 
No insurance so am getting treated at Harris health in Houston. 56 yr old male. First stents 1995. Double CABG 6 months later. No problems till 2003 when had check up and both grafts 100% blocked and nothing they could do. No sweat. Carried on playing rugby until 2010 when arrythmias started. ICD implanted. Still coached and ran alot. Naturally it fired. Carried on coaching with lite running and whilst on field ICD went off 39 times before I could be blasted at hospital. This really started all the problems. Massive PVC's that would drop me to floor. So many times to hospital. Some of time ICD went off and on others heart rate controlled by vagal maneuvers before ICD fired. Had stroke. Then a little while later the 1st ablation in late 201...


Posted by dhusemann on 2015-10-17 02:12. 2 comments. 344 reads
 
Well follow up echo shows my EF at 35-40%. So probably no ICD for now. Still some afib, follow up with EP in Jan.

BP was high again 163/102 so they upped the Hydralazine.

Feel like a walking zombie most days now. :(

Posted by Dan77 on 2015-10-15 00:13. 3 comments. 436 reads
 
I am 37 years old,in 2010 my heart was pausing and my ef was 40%, the left side of my heart was enlarge, so I had a heart Cath no blockages, the next day had a St.Jude pacemaker placed, after having this done all seem to be better, till after the summer of 2014 I got to having lot of pressure in my chest, was light headed short of breath, they did a tilt table test, and stress test, now ef 35%. Afterwards was told I needed an ablation, found 3 spots but only ablated 2 of them. I was told didn't want to do the 3rd because it would put me totally dependent on the pacemaker. I did fine till the summer of 2015 and had the same symptoms as before, had another heart Cath found ef was low, increased pressure in heart camber. They started treatme...


Posted by natlat on 2015-10-12 15:03. 1 comments. 361 reads
 
So I have a idiopathic sustained VT. I got my ICD in April 2013 after several fainting incidents while running. I was also put on Sotalol. I am back running with the ok from my docs. The meds take everything down a notch, but I am still out there keeping fit. I have an abnormal EKG and normal ECHO and MRI. I see one of the best arrhythmia specialists in the states. He has never seen an EKG like mine and is still investigating what is going on. I tested positive for an auto-immune disease and I am not going to see a Rheumatologist to find out more answers and if the VT is connected to some autoimmune disease.

Anyone else have an auto-immune disease that resolved the VT once the disease was found and is being taken care...


Posted by trose on 2015-10-12 03:20. 1 comments. 278 reads
 
Doc put me on a week's worth of steroid for allergy. Now my pacing seems off. Seems to skip a beat. Anyone else have this problem?

Posted by Lee24 on 2015-10-09 09:50. 5 comments. 407 reads
 
Hi guys has anyone ever had what Im currently experiencing. 3weeks ago I I woke up feeling stiff and my body has been sore till today. My joints and muscles are sore. I went to the doctor he Sai should go do a stomach sonar etc from the other symptoms I told him. Which came back clear. My neck feels stiff and shoulders. My heart feels like its heavy. What's going on.

Posted by vegigran on 2015-10-08 02:32. 5 comments. 502 reads
 
Why is it after having a pacemaker implant, the doctor continues having you take arythmia medication? I thought the pacemaker was suppose to keep the heart in rhythm.



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