St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by trimit on 2014-07-03 20:37. 4 comments. 302 reads
 
Dear all,
Advice needed.
I've had my SJM CRT-D since June 30 2014.
Early days but so far everything's ok, except I have been experiencing what I recognise as palpitations, which have woken me up at night.
My doc advised me this is to be expected and the EP showed me an example of how it should feel when the gadget is doing it's tests - much like palpitations. All well and good and nothing to worry about.
However, now I've had a chance to level out after all the drugs I've been given, I've started to become anxious about the defib going off which led me to read up a bit more about my device.
What I've found was somewhat contradictory to info I've received from the doc in that palpitations are bad and that I nee...


Posted by Scout on 2014-07-02 23:15. 3 comments. 207 reads
 
Hello again. I was wondering, I had pacemaker put in 1/14, and now have afib. Do people have afib before the pacer and just don't know it? I am 57 and on xeralto, norvasc, ziac, c0q10, vitamin d, potassium, Flecainide. My norvasc was recently doubled and I feel lousy about 10% of the time. Also, does anyone experience problems driving - I guess with the vista- I know it has to be one of the scripts. Seems like an awful lot of drugs. Thank you all and I don't mean to complain. The pacer is great, obviously. When BP meds are doubled, how long until you are used to increase?

Posted by coachmom25 on 2014-07-01 15:02. 3 comments. 225 reads
 
Not sure I can explain all I want to know. :) The biggest question was today was my first time with almost near faint episode since my ICD was installed. I have also been light headed all day. I also wonder if people feel the pacing? I feel flutters but more controlled, make sense. The last thing. When I feel this, or a have been exerted, etc. I feel a tightness in my back - but the shoulder blade and also a tightness in my arm. I also wonder if anyone gets updates on what your heart is doing, other than when it is a bad thing. :)

I know several questions in one, but just learning my new friend and curious. Thanks so much for your time!

Posted by azviking on 2014-07-01 00:04. 4 comments. 239 reads
 
I am scheduled to have one next Monday.. Anyone experienced in this type of test?

I read that they can be risky. Need I be concerned?

Posted by ArchGirl09 on 2014-06-27 20:03. 13 comments. 397 reads
 
I wasn't sure which topic to put this under...This is half rant and half an actual question or two...

I am currently renting a condo, have been for the past year, and new neighbors moved into the unit below us a few weeks ago. One of them smokes. The rules state the only place they can smoke is on their patio, which naturally allows all of it to drift upwards and into our apartment via our windows and open deck door. It's summer right now, 80 and rising, and there's no a/c because "you don't need it in Vermont" -_- So, we open the windows and doors in the evening and overnight to cool down the apartment. Now it seems it's a choice between breathing in cigarette smoke and being very hot. I don't deal well with heat in the first p...


Posted by daynanestor1 on 2014-06-27 20:02. 3 comments. 262 reads
 
Just wondering if anyone has had experience with CO Q 10 supplement? I heard it is good for the heart and I have a pacemaker and now have myocondritios. Yes, I am now on beta blockers for my condition, but just wondering what else I can do to get back to myself again!

Posted by nivla50 on 2014-06-26 22:05. 0 comments. 174 reads
 
Please read this link. It is extremely promising if the data shows
what they believe is a remarkable drug in treating Heart Failure.

http://www.medscape.com/viewarticle/825425?src=wnl_edit_specol&uac=220887DT

Posted by Freckles on 2014-06-25 14:31. 6 comments. 277 reads
 
Did anyone with a PM end up taking Xarelto for a-fib? Do you have any problems with it.

Posted by Geriatrick on 2014-06-24 20:56. 1 comments. 139 reads
 
Scared for sure. I imagined the worse. I posted complaints about tiredness and frequent dizziness. The results are these...
No hardening of arteries , no blockage. A scar from a tiny heart attack that I never knew about. DR says it is very common.

Keeping my BP on Monday. He will adjust my BP medications.
DR says " you will have more energy and won't get short of breath so easily. Whewwwwwwww.
I'd have to rest walking a carry -on through airports.

I feel better just knowing. I am 86, pacemaker about 5 months. It justified I was getting long pauses when I slept. If the "line" gets long enough...sayonara!
Thanks to all of you for answers and this forum!
Jerry

Posted by flutetooter on 2014-06-24 01:24. 2 comments. 256 reads
 
..Just a continuation my my previous June 16 post on upcoming surgery. Thanks for all the links! It is scary knowing that the docs take "just put a magnet on it" so lightly. I had thought it would be a good idea to have the pacemaker put in (Feb. 4) before the surgeries that were anticipated, but still unscheduled. Now I find out it complicates the surgeries. In looking up the perimeters and specifications for my pm, I realize that it doesn't exist -- as I am in a Scientific Study to get it approved! HA! It is Boston Scientific Vitalio MRI compatible Model K277. I do find info on earlier models and they do caution about using electrocautery only if it cannot be avoided. Also about placement of the ground plate on the body (MY body,...


Posted by daynanestor1 on 2014-06-23 12:30. 2 comments. 240 reads
 
MY HISTORY:
43yrs old--in good health all my life, no meds

Pacemaker installed 10/22/2013 for 3rd degree heart block (doctor's don't know what caused this either)

Back in the hospital for myocarditis 6/17/2014. Ruled out heart attack with the artery cath test and did the ultra-sound and found myocarditis. On toprol (beta blocker) now. Still experiencing heart palpatations and being monitored.

Doctor's don't know what caused this?

Is anyone experienced this? Any suggestions or advice?


Posted by jaybe630 on 2014-06-23 09:06. 2 comments. 175 reads
 
Goodevening people:
Wonder if anyone can shed some light or further knowledge re Digoxin and dangers if any as have read some articules e.g. The Afib Report which goes into dangers associated with this drug and toxicity.

I have a Biontronic dual lead pacemaker and have had since Jan 2013, my cardiol put me on Digoxin about 12 months ago because I still was getting fast afib sometimes and he said this drug would help but after reading a bit about it I wonder long term damage and mortality rates explained, am on a low dose have been told of 62.5mg, 2 small blue tabs daily.
As said would really appreciate any feedback re this and if anyone else has issues with this drug and have found better alternatives if this the case....


Posted by glammommieX6 on 2014-06-19 17:45. 4 comments. 275 reads
 
My pacemaker was implanted on 12/20/13 and unfortunately there were some problems. I continued to feel worse each day following it and the cardiologist felt I was babying myself too much. 8 days later went to ER rushed in for surgery to save my life, cardiac tamponade. 6 days following that, another surgery to fix the pacemaker wires and thankfully it did not puncture my heart therefore no open heart surgery was needed after all. I was thrilled to come home to my kids and thankful to be alive. Unfortunately, I still do not feel 100% good. I came back to work mid - February and continously have difficulty with walking, zero energy, zero sleep, dizziness.. Today is my worst day yet, really hurts to take a deep breath. I've told my new...


Posted by wen82 on 2014-06-18 18:48. 1 comments. 207 reads
 
Hi all,

Im new here I was sure I have been on this website not to long ago but somehow my account it deleted not sure what happened there anyway....

I am scheduled to have a pacemaker fitted end of July. I am getting this as I have had a lot of faintings (syncope) does. They did lots of tests of which one was the tilt test which showed that when I faint there is about 5.8 seconds between hard beats. Therefor they have decided the pacemaker needs to go in.

Since that decision has made and has been scheduled in I had quite an eventful weekend. On Friday night my friends notised I was slightly blue on my lips but I didn't take any notice. On Saturday morning my dad said the same. I was running about all day a...


Posted by TickTock-UK on 2014-06-18 06:41. 1 comments. 151 reads
 
Hi all,

Re AF.

A little lite reading for you...Aspirin 'not best' for preventing heart problem.

Let me know if you can't access the link and I will copy and paste.

http://www.bbc.co.uk/news/health-27760736

Len

Posted by MommyAshlie86 on 2014-06-17 10:31. 5 comments. 242 reads
 
Hi there,
I just recently got my pacemaker over 3 1/2 weeks ago. I have had a lot of other issues in the past year. They put me on pain medication (norco 10mg), and it helps, but it made me feel weird. They switched me to a stronger pain medicine (dilaudid 4mg), and it doesn't take away all the pain. So the other day I didn't take the dilaudid I only took the left over norco's (1 every 4 hours, 4 total), I was already over tired, but by the end of the night I ended up exhausted. I dozed off and I got a huge shock throughout my entire body, I jumped up... Doctor said my heart paused, and so my pacemaker shocked me.. Could the norco have had anything to do with it? And if so why would my stronger medicine not do that to me?
I al...


Posted by JaneJ on 2014-06-17 00:17. 2 comments. 198 reads
 
I have been feeling a bit worse with my accelerated junctional rhythm, which I'm not sure is related to the heat or just the way things go with this rhythm. I've been noticing worsening headaches,pressure in my head/neck/ jaw area, as well as the pounding pulse in the neck. So I gave the ep nurse a call last week and she said the doctor would want to see me or maybe he would make a medication adjustment over the phone. She asked me " what I've been doing different", to which I replied absolutely nothing. When she asked me this it made me feel as though I was causing the problem. Which made me feel bad and angry. I then asked her to call me back on my cellphone because we were going on vacation.. She then replied that the vacation ...


Posted by Alma Annie on 2014-06-15 20:49. 4 comments. 224 reads
 
I have a query about Inga's reply to Gumby about the checks on pm when they speed up the rate then lower it and people feel this. As far as I know, I have never had this check, but just the download. My heart has never sped up or slowed during a check. I have never felt anything. I have had pm 3 years. I am 100% paced in atrium. My low rate is set at 50 and upper rate at 130.
I would be grateful for some info on this.
Alma Annie

Posted by rtnievera on 2014-06-14 00:22. 3 comments. 173 reads
 
Hi to all new member from Philippines and pacemaker recipient last November 18, 2013 due to 3.1 sec. paused and low heart rate during sleep at 33 bpm and intermittent 2nd degree AV block type 1.Symptomatic bradycardia such as fainting, fatigue and shortness of breath. It's hard to accept but I know I need it to have a good life.Still fighting negative thought and stress, my inspiration is my family and I know this club will help me and guide me to win this battle.Again, thanks for being member of this club. Salamat po at mabuhay tayong lahat

Posted by ronbella on 2014-06-07 01:42. 7 comments. 314 reads
 
Hello everyone I am new to the forum and could use your advice.
In march 2014 I was hospitalized for a seperate issue not concerning cardiac but while there a heart monitor picked up my heartrate while asleep at as low as 42....My normal resting pulse rate is from 55-60 during the day. I am 53 years old and do have fatigue most of the time. The cardiologist at the hospital says I need a pacemaker. I then went to my regular doc and he had me wear a holter for 24 hrs and during the night HR dropped to 41 at the lowest but did stay in 40s -50s all night..He stated that is normal..at night it was low then occasionally shot up to 110. My main question is what are the symptoms you experienced before your PM and does bradycardia affect your ...




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