St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by bowdy on 2014-07-11 22:01. 2 comments. 287 reads
 
I've had one hell of a bad run of almost everything! I had a double bypass in 2010 and have had some of the worst advise ever given from some idiots who call themselves Drs!
I was given a normal course of meds to supposedly ease my rehabilitation-exercise and doses of Beta blocers,Lipitors,aspirin among others. The doses got steadily stronger! After approx. 6 months I began to suffer terrible head aches,slurring speech,memory loss and dribbling! So my dosages were eased. I finally had enough and threw the lot away. I was promised some support with counselling however after numerous phone calls this did not happen! After a year I had gained 30 kilos! I went back to the gymn contrary to the advice from my G.P.I'd wake every morning find...


Posted by flutetooter on 2014-07-10 15:21. 8 comments. 298 reads
 
My worrisome multiple surgery on July 8 is over. Yeah! I am in excellent shape - doc said she knew doing surgery I would come out of this as a rock star. Open hernia, (small indirect iguinal) while followed a different team and different body positioning, doing vaginal hysterectomy, sling procedure, and various stitch ups internally. TMI Much laughter, all along I knew questions to ask about things to done. Grounding pad (for electrocautery) put on thigh away from pacemaker and surgery site. (Thanks to donr). The anesthesiologist preferred not to use the magnet at all (which sets my heartbeat at 100 throughout) at all because he felt as I had suggested that maybe that was too high for me for a long surgery. Total time including i...


Posted by myrosie on 2014-07-08 19:59. 4 comments. 261 reads
 
Has anyone out there in PM land ever had an MRI since their PM? They told me that mine was MRI compatible. Not sure what that means. Not sure if I want one. My knee has been bothering me, had xray and ultra sound already, next is the MRI. Any idea what I'm in for?


Posted by Jardiniere on 2014-07-04 09:55. 1 comments. 237 reads
 
Well, I am now at the five week point and back to doing more strenuous gardening and lifting 5 lb. weights, although not above my shoulder as advised by my cardiologist surgeon.

I am feeling fit and have been to the golf course and putting and chipping a little wee bit. I don't feel worse for any of it.

I can't wait to have my next check up in two weeks time to determine how my pm is doing. Two days after that and we will be celebrating our fiftieth anniversary with a large party with friends and family. I am emotionally better than I was two weeks ago but still am in awe that I needed this at all. There are many worse things but you can't help how you feel after all.

Thanks again for the support. ...


Posted by MelanieCraven on 2014-07-03 21:43. 3 comments. 286 reads
 
Hey Everyone!! I am 32 and my Cardiologist told me back in February I now have Malignant Neurocardiogenic Syncope and there is nothing else he can do for me. I have the Biotronik Evia pacemaker and take Concerta. I can no longer receive my monthly Hespan infusions because my blood pressure is running high. My blood pressure is running 140/90-150/100-160/110 daily. My doctor is out of options and I am scheduled to go to Mayo in a few weeks. Does anyone else have NCS and struggle with both low and high B/P? If so, what works for you? I do not know anyone else who has high B/P as part of their NCS. I look forward to hearing from you!!!

Posted by trimit on 2014-07-03 20:37. 4 comments. 314 reads
 
Dear all,
Advice needed.
I've had my SJM CRT-D since June 30 2014.
Early days but so far everything's ok, except I have been experiencing what I recognise as palpitations, which have woken me up at night.
My doc advised me this is to be expected and the EP showed me an example of how it should feel when the gadget is doing it's tests - much like palpitations. All well and good and nothing to worry about.
However, now I've had a chance to level out after all the drugs I've been given, I've started to become anxious about the defib going off which led me to read up a bit more about my device.
What I've found was somewhat contradictory to info I've received from the doc in that palpitations are bad and that I nee...


Posted by Scout on 2014-07-02 23:15. 3 comments. 219 reads
 
Hello again. I was wondering, I had pacemaker put in 1/14, and now have afib. Do people have afib before the pacer and just don't know it? I am 57 and on xeralto, norvasc, ziac, c0q10, vitamin d, potassium, Flecainide. My norvasc was recently doubled and I feel lousy about 10% of the time. Also, does anyone experience problems driving - I guess with the vista- I know it has to be one of the scripts. Seems like an awful lot of drugs. Thank you all and I don't mean to complain. The pacer is great, obviously. When BP meds are doubled, how long until you are used to increase?

Posted by coachmom25 on 2014-07-01 15:02. 3 comments. 239 reads
 
Not sure I can explain all I want to know. :) The biggest question was today was my first time with almost near faint episode since my ICD was installed. I have also been light headed all day. I also wonder if people feel the pacing? I feel flutters but more controlled, make sense. The last thing. When I feel this, or a have been exerted, etc. I feel a tightness in my back - but the shoulder blade and also a tightness in my arm. I also wonder if anyone gets updates on what your heart is doing, other than when it is a bad thing. :)

I know several questions in one, but just learning my new friend and curious. Thanks so much for your time!

Posted by azviking on 2014-07-01 00:04. 4 comments. 244 reads
 
I am scheduled to have one next Monday.. Anyone experienced in this type of test?

I read that they can be risky. Need I be concerned?

Posted by ArchGirl09 on 2014-06-27 20:03. 13 comments. 426 reads
 
I wasn't sure which topic to put this under...This is half rant and half an actual question or two...

I am currently renting a condo, have been for the past year, and new neighbors moved into the unit below us a few weeks ago. One of them smokes. The rules state the only place they can smoke is on their patio, which naturally allows all of it to drift upwards and into our apartment via our windows and open deck door. It's summer right now, 80 and rising, and there's no a/c because "you don't need it in Vermont" -_- So, we open the windows and doors in the evening and overnight to cool down the apartment. Now it seems it's a choice between breathing in cigarette smoke and being very hot. I don't deal well with heat in the first p...


Posted by daynanestor1 on 2014-06-27 20:02. 3 comments. 280 reads
 
Just wondering if anyone has had experience with CO Q 10 supplement? I heard it is good for the heart and I have a pacemaker and now have myocondritios. Yes, I am now on beta blockers for my condition, but just wondering what else I can do to get back to myself again!

Posted by nivla50 on 2014-06-26 22:05. 0 comments. 181 reads
 
Please read this link. It is extremely promising if the data shows
what they believe is a remarkable drug in treating Heart Failure.

http://www.medscape.com/viewarticle/825425?src=wnl_edit_specol&uac=220887DT

Posted by Freckles on 2014-06-25 14:31. 6 comments. 295 reads
 
Did anyone with a PM end up taking Xarelto for a-fib? Do you have any problems with it.

Posted by Geriatrick on 2014-06-24 20:56. 1 comments. 143 reads
 
Scared for sure. I imagined the worse. I posted complaints about tiredness and frequent dizziness. The results are these...
No hardening of arteries , no blockage. A scar from a tiny heart attack that I never knew about. DR says it is very common.

Keeping my BP on Monday. He will adjust my BP medications.
DR says " you will have more energy and won't get short of breath so easily. Whewwwwwwww.
I'd have to rest walking a carry -on through airports.

I feel better just knowing. I am 86, pacemaker about 5 months. It justified I was getting long pauses when I slept. If the "line" gets long enough...sayonara!
Thanks to all of you for answers and this forum!
Jerry

Posted by flutetooter on 2014-06-24 01:24. 2 comments. 277 reads
 
..Just a continuation my my previous June 16 post on upcoming surgery. Thanks for all the links! It is scary knowing that the docs take "just put a magnet on it" so lightly. I had thought it would be a good idea to have the pacemaker put in (Feb. 4) before the surgeries that were anticipated, but still unscheduled. Now I find out it complicates the surgeries. In looking up the perimeters and specifications for my pm, I realize that it doesn't exist -- as I am in a Scientific Study to get it approved! HA! It is Boston Scientific Vitalio MRI compatible Model K277. I do find info on earlier models and they do caution about using electrocautery only if it cannot be avoided. Also about placement of the ground plate on the body (MY body,...


Posted by daynanestor1 on 2014-06-23 12:30. 2 comments. 253 reads
 
MY HISTORY:
43yrs old--in good health all my life, no meds

Pacemaker installed 10/22/2013 for 3rd degree heart block (doctor's don't know what caused this either)

Back in the hospital for myocarditis 6/17/2014. Ruled out heart attack with the artery cath test and did the ultra-sound and found myocarditis. On toprol (beta blocker) now. Still experiencing heart palpatations and being monitored.

Doctor's don't know what caused this?

Is anyone experienced this? Any suggestions or advice?


Posted by jaybe630 on 2014-06-23 09:06. 2 comments. 194 reads
 
Goodevening people:
Wonder if anyone can shed some light or further knowledge re Digoxin and dangers if any as have read some articules e.g. The Afib Report which goes into dangers associated with this drug and toxicity.

I have a Biontronic dual lead pacemaker and have had since Jan 2013, my cardiol put me on Digoxin about 12 months ago because I still was getting fast afib sometimes and he said this drug would help but after reading a bit about it I wonder long term damage and mortality rates explained, am on a low dose have been told of 62.5mg, 2 small blue tabs daily.
As said would really appreciate any feedback re this and if anyone else has issues with this drug and have found better alternatives if this the case....


Posted by glammommieX6 on 2014-06-19 17:45. 4 comments. 291 reads
 
My pacemaker was implanted on 12/20/13 and unfortunately there were some problems. I continued to feel worse each day following it and the cardiologist felt I was babying myself too much. 8 days later went to ER rushed in for surgery to save my life, cardiac tamponade. 6 days following that, another surgery to fix the pacemaker wires and thankfully it did not puncture my heart therefore no open heart surgery was needed after all. I was thrilled to come home to my kids and thankful to be alive. Unfortunately, I still do not feel 100% good. I came back to work mid - February and continously have difficulty with walking, zero energy, zero sleep, dizziness.. Today is my worst day yet, really hurts to take a deep breath. I've told my new...


Posted by wen82 on 2014-06-18 18:48. 1 comments. 267 reads
 
Hi all,

Im new here I was sure I have been on this website not to long ago but somehow my account it deleted not sure what happened there anyway....

I am scheduled to have a pacemaker fitted end of July. I am getting this as I have had a lot of faintings (syncope) does. They did lots of tests of which one was the tilt test which showed that when I faint there is about 5.8 seconds between hard beats. Therefor they have decided the pacemaker needs to go in.

Since that decision has made and has been scheduled in I had quite an eventful weekend. On Friday night my friends notised I was slightly blue on my lips but I didn't take any notice. On Saturday morning my dad said the same. I was running about all day a...


Posted by TickTock-UK on 2014-06-18 06:41. 1 comments. 160 reads
 
Hi all,

Re AF.

A little lite reading for you...Aspirin 'not best' for preventing heart problem.

Let me know if you can't access the link and I will copy and paste.

http://www.bbc.co.uk/news/health-27760736

Len



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