St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by judyblue on 2014-03-29 13:36. 0 comments. 99 reads
 
Thanks to all who had suggestions for long qt info. I found a great site SADS (sudden arrhythmia death syndrome). I am still waiting after 2 months just to find out if insurance will cover genetic test. This website has a LOT of info in getting that to happen. There is a contact name too if you are having problems or have been denied. I have not used her yet. But this organization is very convinced that the genetic testing should not be denied. So there is an update. I will post another with more news.
Judy

Posted by Cljs1654 on 2014-03-28 11:25. 5 comments. 269 reads
 
Hi, I'm new to this website but I was just wondering if anyone has any advice or wants to share their experiences of SVT and pacemakers?

I'm 21 and have had SVT for 6 years now. I've had 2 ablations that have both failed. In my last ablation they found that one of my additional electrical pathways is right next to my AV node so after 4 1/2 hours they decided to stop so that they didn't burn out the AV node and leave me dependant on a pacemaker.

I'm due to go for a carto/cryogenic freezing ablation but they have no idea if it will be possible to do until they try. They have told me that this is the last procedure they will do- successful or not. They have asked me to decide whether to have a pacemaker put in there an...


Posted by Dave H on 2014-03-25 15:26. 2 comments. 207 reads
 
My favorite subject: INR testing. Over the past 5+ yrs, I've concluded (from numerous events) a blood draw INR results in a lower number than a "finger stick." Confirmed by one Cardiologist who stated, "We know that." Now, do different "finger stick" devices vary? You be the judge. Current cardiologist did not approve of my at home INR monitoring. He referred me to the group affiliated with his practice. That anticoagulation clinic used a "finger stick" device similar to what I was using at home. Since last Nov., they upped and upped my warfarin dose because I would pretty much stay in the 1.6 to 2.0 range. (After being rock steady 2.3 to 2.6 with my home device) On a weekly level, they increased my warfarin 50%. Last check 2 wee...


Posted by tiger69 on 2014-03-25 11:15. 1 comments. 199 reads
 
I have a pace maker/defibrillator and often I feel a buzzing vibration in my chest. After this I feel weak. I may not have another feeling like this later or I may have several that day. Anyone else know this "feeling?"

Posted by tarsha on 2014-03-23 05:38. 5 comments. 251 reads
 
Is this a dangerous test because I read it uses 500 times the radiation as an xray. My doctor has ordered this because my pacemaker recorded 3 episodes of rapid beats in the last month. I'm not sure I want that much radiation in me.

Posted by Kayleigh on 2014-03-22 17:34. 4 comments. 207 reads
 
My son was born with complete heart block and is fitted with pace and totally dependent and is currently aged 7 .
Could anyone advise as I know this does cause a weakness to the heart wall muscle is anyone experiencing this situation ??

Posted by amalie on 2014-03-22 08:41. 18 comments. 497 reads
 
Hello everyone I am new here. I'm looking for advice or a sounding board really.

A little background on me, I live in the UK.
I'm twenty seven.
I have had passing out/faints on and off for a few years spread out quite a bit. Some sitting down, others just drop to the floor. I also suffer with dizzyness too.

Well last tear I had to be taken into hospital because I collapsed into a glass table in the middle of the night and took ages to come round and my BP was very low when the paramedics found me, I also really injured my neck.
I was sent home as they did a lot of ecg's while I was there and all clean.
Then a few months later I passed out in the middle of a restaurant on a stone floor, it was a sim...


Posted by annie21 on 2014-03-20 14:31. 1 comments. 145 reads
 
new box June 2013, had tickley cough since, should i get it checked out? next appointment 2/2/2015

Posted by labor99 on 2014-03-19 09:19. 5 comments. 319 reads
 
Hello all,,, I am wondering if anyone has ever had sores in the mouth while taking Metoprolol. After having taking this med for about six weeks I've got very sore gums (just on the inside of my gums under my tongue. Looking back I had a sore on the inside of my lower lip the day I left the hospital. I'll be calling my Dr. as soon as they open. Got my ICD on 01/30/14 thanks everyone.

Posted by Jcole on 2014-03-16 17:14. 2 comments. 326 reads
 
I have had my PM for four months and I still find myself short of breath during minimal activity (walking, showering, etc). However, I am able to exercise on elepitcial and rowing machines for 30 combined minutes with no problems. It doesn't make sense that I get short of breath so easily but then have no problem with exercise. Has anyone else had the same problem?

Posted by Teijee on 2014-03-15 15:07. 18 comments. 568 reads
 
When they diagnosed you with this, did they immiedetly implanted a pacemaker with an ER procedure or did they wait a couple of weeks? Months? Years?

Posted by Lolo on 2014-03-15 03:22. 2 comments. 341 reads
 
I will be having a single lead pacemaker implanted in May to correct a junctional rhythm (hopefully). I have other arrhythmias that have shown up on holtor monitors and stress tests in the past 6 years, but the jr is causing a lot of symptoms and more and more days when I am unable to function due to shortness of breath, lightheaded, shakiness, nausea, headache and chest pain so....... I am curious to know if anyone on here has/had either an escape junctional rhythm or accelerated junctional rhythm, (I have both and only the escape rhythm can be corrected) fixed by a pacemaker insertion.

Posted by alegv on 2014-03-13 15:52. 6 comments. 220 reads
 
Does anyone feel hot all the time? I am grasping at straws but I ruled out everything else. I am soon going on my 3rd pacemaker totaling 13 yrs so far, just about as long as I have been experiencing this too hot feeling and being uncomfortable all the time. Just wondering.

Posted by Teijee on 2014-03-13 14:21. 3 comments. 227 reads
 
How did you tilt table test go? Did you passed out by yourself or what? I had one today and didn't passed out so they stopped it at 20 minutes.

What are your experiences with this test?

Posted by Dazzler on 2014-03-13 11:34. 6 comments. 160 reads
 
Hi

Has anyone taking Atenolol or any other BB with PM came off them, was told last may to take 25mg a day for palpitations untill my pacemaker has been "reviewed"....due to be replaced since 2012 but battery not at ERI yet. Not been picking palpitations up in the several checkups since. Wont see consultant untill new one has been put in so cant get more answers. Basically the consultant sent me a letter 2 weeks after my appointment with her and said on further thinking about the palpitations she would like me to take 25mg of atenolol a day. they thought the battery would be replaced in 5 moinths at the time

Posted by Teijee on 2014-03-12 12:26. 10 comments. 307 reads
 
When you fainted did you feel it comming or was it straight knock out?

Dear regards,

Teije

Posted by judyblue on 2014-03-11 21:31. 5 comments. 316 reads
 
I researched this site for information on this condition, but did not find much. Right now I am waiting for cardio to order genetic testing for long qt. A so called expert EP tells me maybe I should replace pm with ICD so in case I have this condition (yes, it has been found in my family) I will not die of sudden cardiac death. I am uncertain whether insurance will 1- pay for test, 2- put in ICD without definitive diagnosis. my therapist say I need a lawyer and threaten them with a law suit (post mortem of course).
Has anyone had ICD implanted due to long qt? Has anyone opted for implant without definitive diagnosis? The literature is confusing: some says it can be diagnosed with EKG, but EP says it must be genetic test. I think insur...


Posted by draegompf on 2014-03-11 14:26. 3 comments. 175 reads
 
Hi, How long does the medication Flecainide acetate take to leave the system? I am scared to take this medication because I do not know if I am having a palpitation for sure. I have a pacemaker this was placed in august of 2012. I was wondering if you feel a skipped beat or fluttering if you have SVTs? I do not ever feel my heart racing. I just feel chest pain. So, I felt fluttering the other day so It my med how the label said to do. I took 2 100 mg tablets the first day and then I am supposed to take 1 two times a day for 48 hours. I only took one yesterday and I am going to take one today. I do not want to take two. This med makes my body feel weird and y pupils dialate to a pin point. can anyone please give me some advice.

Posted by IAN MC on 2014-03-10 15:15. 17 comments. 589 reads
 
I am in my 3rd year of having a PM which was fitted for Sick Sinus Syndrome and I have had Rate Response turned off most of the time as my HR seemed to be increasing adequately with exercise.

I am now wondering if I should have it switched on again as I believe that my sinus node is deteriorating . Easy question you may think ! Some facts I have picked up after loads of reading :-

- Chronotropic Incompetence ( i.e heart rate not increasing appropriately with exercise ) can be progressive and can worsen with time. If you have it, you need RR switched on ! One paper suggests that :-

- at implant, 42 % of PM patients show signs of C.I. and could benefit from RR being switched on

- after 2...


Posted by trish on 2014-03-09 13:29. 3 comments. 212 reads
 
Have had pm 8 weeks controls bradycardia but now have runs of SVT and a fib in addition to increased PVCs. Was prescribed Rythmol Friday . Is any one else taking this drug? Trish



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