St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by pupu on 2014-04-11 14:42. 0 comments. 130 reads
 
I would like to ask anyone with cardiac sarcoidosis what were your symptoms and/or your cardiologist's reasons for suspecting cardiac sarcoidosis? My cardiologist mentioned three reasons for why he thinks I may need a PET scan: total AV block, hypokinesis of the septum and low EF. How likely is it that an ordinary PM needs to be changed to an ICD if it turns out that I have cardiac sarcoidosis?

Posted by labor99 on 2014-04-09 21:36. 6 comments. 304 reads
 
Hello folks,,, I am the guy that had the sore mouth and gums. Its official, I can no longer take Metoprolol. Doc took me off of that med and within 15 hours my mouth started to get better. He replaced the Metoprolol with Diltiazem. On another note he put me on Eliquis (blood thinner). I almost caused my ICD to go into action when the gal told me the charge ,,,,,I think it was around $380 for a thirty day supply. 5 mg twice a day. I had been doing fine with a baby aspirin a day. Good Lord. I didn't have to pay all that because of insurance, but there just has to be something cheaper that would do the job.

Posted by Jody on 2014-04-09 01:39. 3 comments. 142 reads
 
Forgot to ask if it's normal for the skin over the pacemaker site to be numb...it's a weird feeling.

Posted by jillybird on 2014-04-07 15:37. 7 comments. 231 reads
 
Hi all, just wanted to ask all of you who have vasovagal syncope with low blood pressure - if you maintail a high sodium intake to try to combat it, exactly how much do you take a day? Do you measure? I am drinking alot of fluids, and put about 1/2 teaspoon of salt in my 20 oz water/crystal lite mix, 3-5x a day plus salty foods so I'm guessing I get a total of 2-3 teaspoons a day? I'm wondering if I need to do even more? I have an appt with a new cardio on Thursday so I want to also ask him about just taking salt tablets. Does anyone take those? They are perscription only, right? Thanks for any input you all can give!

Posted by judyblue on 2014-03-29 13:36. 0 comments. 100 reads
 
Thanks to all who had suggestions for long qt info. I found a great site SADS (sudden arrhythmia death syndrome). I am still waiting after 2 months just to find out if insurance will cover genetic test. This website has a LOT of info in getting that to happen. There is a contact name too if you are having problems or have been denied. I have not used her yet. But this organization is very convinced that the genetic testing should not be denied. So there is an update. I will post another with more news.
Judy

Posted by Cljs1654 on 2014-03-28 11:25. 5 comments. 274 reads
 
Hi, I'm new to this website but I was just wondering if anyone has any advice or wants to share their experiences of SVT and pacemakers?

I'm 21 and have had SVT for 6 years now. I've had 2 ablations that have both failed. In my last ablation they found that one of my additional electrical pathways is right next to my AV node so after 4 1/2 hours they decided to stop so that they didn't burn out the AV node and leave me dependant on a pacemaker.

I'm due to go for a carto/cryogenic freezing ablation but they have no idea if it will be possible to do until they try. They have told me that this is the last procedure they will do- successful or not. They have asked me to decide whether to have a pacemaker put in there an...


Posted by Dave H on 2014-03-25 15:26. 2 comments. 211 reads
 
My favorite subject: INR testing. Over the past 5+ yrs, I've concluded (from numerous events) a blood draw INR results in a lower number than a "finger stick." Confirmed by one Cardiologist who stated, "We know that." Now, do different "finger stick" devices vary? You be the judge. Current cardiologist did not approve of my at home INR monitoring. He referred me to the group affiliated with his practice. That anticoagulation clinic used a "finger stick" device similar to what I was using at home. Since last Nov., they upped and upped my warfarin dose because I would pretty much stay in the 1.6 to 2.0 range. (After being rock steady 2.3 to 2.6 with my home device) On a weekly level, they increased my warfarin 50%. Last check 2 wee...


Posted by tiger69 on 2014-03-25 11:15. 1 comments. 202 reads
 
I have a pace maker/defibrillator and often I feel a buzzing vibration in my chest. After this I feel weak. I may not have another feeling like this later or I may have several that day. Anyone else know this "feeling?"

Posted by tarsha on 2014-03-23 05:38. 5 comments. 256 reads
 
Is this a dangerous test because I read it uses 500 times the radiation as an xray. My doctor has ordered this because my pacemaker recorded 3 episodes of rapid beats in the last month. I'm not sure I want that much radiation in me.

Posted by Kayleigh on 2014-03-22 17:34. 4 comments. 212 reads
 
My son was born with complete heart block and is fitted with pace and totally dependent and is currently aged 7 .
Could anyone advise as I know this does cause a weakness to the heart wall muscle is anyone experiencing this situation ??

Posted by amalie on 2014-03-22 08:41. 18 comments. 504 reads
 
Hello everyone I am new here. I'm looking for advice or a sounding board really.

A little background on me, I live in the UK.
I'm twenty seven.
I have had passing out/faints on and off for a few years spread out quite a bit. Some sitting down, others just drop to the floor. I also suffer with dizzyness too.

Well last tear I had to be taken into hospital because I collapsed into a glass table in the middle of the night and took ages to come round and my BP was very low when the paramedics found me, I also really injured my neck.
I was sent home as they did a lot of ecg's while I was there and all clean.
Then a few months later I passed out in the middle of a restaurant on a stone floor, it was a sim...


Posted by annie21 on 2014-03-20 14:31. 1 comments. 146 reads
 
new box June 2013, had tickley cough since, should i get it checked out? next appointment 2/2/2015

Posted by labor99 on 2014-03-19 09:19. 5 comments. 336 reads
 
Hello all,,, I am wondering if anyone has ever had sores in the mouth while taking Metoprolol. After having taking this med for about six weeks I've got very sore gums (just on the inside of my gums under my tongue. Looking back I had a sore on the inside of my lower lip the day I left the hospital. I'll be calling my Dr. as soon as they open. Got my ICD on 01/30/14 thanks everyone.

Posted by Jcole on 2014-03-16 17:14. 2 comments. 335 reads
 
I have had my PM for four months and I still find myself short of breath during minimal activity (walking, showering, etc). However, I am able to exercise on elepitcial and rowing machines for 30 combined minutes with no problems. It doesn't make sense that I get short of breath so easily but then have no problem with exercise. Has anyone else had the same problem?

Posted by Teijee on 2014-03-15 15:07. 18 comments. 582 reads
 
When they diagnosed you with this, did they immiedetly implanted a pacemaker with an ER procedure or did they wait a couple of weeks? Months? Years?

Posted by Lolo on 2014-03-15 03:22. 2 comments. 345 reads
 
I will be having a single lead pacemaker implanted in May to correct a junctional rhythm (hopefully). I have other arrhythmias that have shown up on holtor monitors and stress tests in the past 6 years, but the jr is causing a lot of symptoms and more and more days when I am unable to function due to shortness of breath, lightheaded, shakiness, nausea, headache and chest pain so....... I am curious to know if anyone on here has/had either an escape junctional rhythm or accelerated junctional rhythm, (I have both and only the escape rhythm can be corrected) fixed by a pacemaker insertion.

Posted by alegv on 2014-03-13 15:52. 6 comments. 222 reads
 
Does anyone feel hot all the time? I am grasping at straws but I ruled out everything else. I am soon going on my 3rd pacemaker totaling 13 yrs so far, just about as long as I have been experiencing this too hot feeling and being uncomfortable all the time. Just wondering.

Posted by Teijee on 2014-03-13 14:21. 3 comments. 231 reads
 
How did you tilt table test go? Did you passed out by yourself or what? I had one today and didn't passed out so they stopped it at 20 minutes.

What are your experiences with this test?

Posted by Dazzler on 2014-03-13 11:34. 6 comments. 167 reads
 
Hi

Has anyone taking Atenolol or any other BB with PM came off them, was told last may to take 25mg a day for palpitations untill my pacemaker has been "reviewed"....due to be replaced since 2012 but battery not at ERI yet. Not been picking palpitations up in the several checkups since. Wont see consultant untill new one has been put in so cant get more answers. Basically the consultant sent me a letter 2 weeks after my appointment with her and said on further thinking about the palpitations she would like me to take 25mg of atenolol a day. they thought the battery would be replaced in 5 moinths at the time

Posted by Teijee on 2014-03-12 12:26. 10 comments. 310 reads
 
When you fainted did you feel it comming or was it straight knock out?

Dear regards,

Teije



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