St. Jude Medical Pacemakers & ICDs

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Messages in Conditions, Meds & Tests Forum



Posted by lcw306 on 2015-12-06 03:17. 7 comments. 440 reads
 
Hi!

I was diagnosed with Congenital Complete Heart Block this past summer! I am 25 years old and had no idea I had this condition! I got a pacemaker put in right away! Everything happened really fast and I never really learned much about Congenital Heart Block! I cannot seem to find much literature about it either but it's been on my mind here lately!

Just wondering if anyone else has this condition on here! Also, wondering if anyone has an information they could share or some articles/websites! I think I would feel better about having this and having my pacemaker if I could understand it better! :)

Thanks :)

Posted by Bebie on 2015-12-04 17:59. 3 comments. 335 reads
 
Hi everyone. I have not visited this page for a while. However, I am much assured that if I have concern about my PM I can be always helped here. Now again I would like to inquire if there is one who is taking Pradaxa before and have successfully do away with it? Any advise so I can follow suit? I am tired of taking this medicine coz I always feel hungry.


Posted by Narda on 2015-12-04 15:58. 2 comments. 389 reads
 
I have become very anemic and will be needing an endoscope and colonoscopy soon. How can the doctor use cauterization when there is a pacemaker. I am 100% dependent upon mine with no natural heartbeat at all. I am worried.

Posted by Helotail on 2015-12-01 23:03. 5 comments. 477 reads
 
Hello-
I had a St. Jude dual chamber pacemaker implanted in August of this year. About a month after the surger, I had the typical pacemaker interrogation and was told that that I did not need to come back for a year. But, today my cardiologists office called and said that I needed to come into the office within the next few days (around my schedule) for St. Jude to test the PM.

Has anyone else had this happen? Any idea what they are testing for?

Thank you in advance,

Posted by jsne on 2015-11-30 20:23. 2 comments. 395 reads
 
Still doing well after my treadmill and settings adjustments back in August. Saw the consultant in September and he put me on verapamil SR 240 to try and stop my arrhythmias.
It does seem to have cured the faster HR that I would get doing not a lot but has not had a significant effect on the palpitation's ,I still get several episodes a day and feel more out of sync. Tight/achy in neck/chest again and have regularly disturbed sleeps.
I had hoped that the meds would limit the arrhythmias down to once or twice a week. I 'm expecting too much???
AV node ablation was mentioned and in lots of ways I am tempted to just say get on with it as to get some long term stability would be wonderful .But it's a big step and you want to...


Posted by Carlee on 2015-11-26 02:33. 2 comments. 484 reads
 
Hi Everyone
I take care of my mother. She has a pacemaker with a defibrillator. It was this year, in March that it was implanted.. recently she has been getting more dizzy (she always has had dizziness because she had a stroke several years back) and her stomach hurts/sick to her stomach. I was thinking it was her medications but now I see there are others that have this problem and it's related to her pacemaker! It seems to be getting worse.. what could the dr. do/ give to alleviate these symptoms? This is very worrisome. Thanks for your advise and help!

Posted by MarkLeaG on 2015-11-23 22:48. 4 comments. 541 reads
 
My daughter had a dual chamber pacemaker inserted two years ago for complete heart block. She is pacer dependent and paces 100% of the time in her lower chamber. She now has developed a systolic murmur from mitral regurgitation. She does not have a lot of energy and gets very easily tired from physical exertion. When she is really active, she has left side numbness/tingling in her hands/arm and leg as well as dizziness and a feeling of breathlessness and like she's going to pass out. She also has been having a lot of high rate episodes and chest pain.

Has anyone developed mitral regurgitation from being paced? If so, what are the treatment options? We have an appointment with a new cardiologist in a few weeks, but I am feeling...


Posted by Johnn on 2015-11-18 18:28. 2 comments. 343 reads
 
I am recommending not to take Multaq. I was on it for over three years with permanent AFIB. I have had two ablations and a min-Cox maize completed. In Nov of 2014 had to do an AV node ablation and implanted a biventricular pacemaker as the afib just would not abate and I was unable to exit afib.
My liver and kidney readings have been funky for two years but not far enough for my EP or GP to want me off Multaq. With the fatigue factor increasing as well we went with the pacemaker/AV node ablation. The fatigue factor is still there and liver/kidney functions have not improved. I had 'normal' lab readings prior to Multaq usage. I think some permanent damage has been done as a result of this drug. Can anyone else advise me on this?


Posted by ettmayr on 2015-11-15 09:10. 7 comments. 498 reads
 
A few years after my pm insertion I developed CHF. I was put on a diuretic and ARB. I stopped the diuretic in June last year as I'd read it can screw up your potassium levels. I only see my cardiologist once a year and I have to travel four hours to see him. I told him I felt the diuretic was useless and he agreed that I could go off it. Why don't cardiologists adjust their patient's chronic meds? Why do we have to do internet research about our chronic meds, then tell our cardiologists what to do. I do not want my pacemaker replaced. How does the cardiologist really know what'll happen if I don't?

Posted by cadaverock on 2015-11-13 07:28. 1 comments. 324 reads
 
i have a pacemaker since 07. and i starter to drink medicines like 2 years ago i starter with metropolol and my doctor change it to a generic is call CARTIA, is a calcium beta blocker,. long story short i drink it once per day lowest doxe according to DR, well i feel that my life has change cause of CARTIA, i always feel dizzy when i look down or bend over and get up. i feel tired the whole time no energy, and get dizzy very easy and i get sad cause am only 35 and have 2 kids very young kids , i feel that is the medicine but DR told me , there is nothing else i can do. has anyone experience something similar . thank you.

Posted by Beats on 2015-11-08 15:16. 1 comments. 565 reads
 
I have a dual lead Medtronic pacemaker fitted 5 years ago for sick sinus syndrome
No complications . Get yearly check up all ok .
However I have had 3 episodes in the last 3-4 months of erratic heart beat and fluttering lasting longer each time .
From 10mins to 55mins . Today's was the longest 55mins.
I have never been on meds and cardiologist said in 2012 that I was a fit and healthy . I am male 52 years old in good shape .
Is this normal,

Posted by Patches1977 on 2015-11-03 15:01. 7 comments. 477 reads
 
Has anyone got their pacemaker placed in the pectorial muscle? My pm is flush with my skin and does not stick up. I have been having problems with it slipping out of the pocket! I talked to the pacer clinic when I had it re-calibrated. His response is that the pm is sewn in and only could be corrected if I had surgery again! I'm not doing that! Does anyone else have this problem? When it slips out of pocket it hurts, turns sideways and rubs against my collar bone. It goes back into place sometimes within the same day the longest it was out was 3 days.


Posted by Firefoy on 2015-11-03 00:09. 2 comments. 404 reads
 
Quick history: Afib 2002 with spontaneous conversion, 2007 with cardioversion, highly symptomatic in 2009, Ablation 2010, diagnosed with SSS in 2011 and PM implanted 2/2011. Had 14hr episode of AFib 10 days ago. Having periods of SOB and chest pain, palpitations, fatigue, etc. Feel like I am back to 2002. Doctor is talking about a 2nd ablation. Has anyone had an ablation with a PM already implanted? Are there more risks with the leads in the right chambers?

Posted by steveh on 2015-11-01 15:06. 7 comments. 509 reads
 
Has anyone convinced their doctor to take them off of metorpolol, if so what medicine did he replace you with, and how long did it take to remove you from this beta blocker. I have taken the side effects from this drug as long as I can.

Posted by Zareen on 2015-10-31 18:11. 3 comments. 593 reads
 
Hi Everyone.
I just got my pacemaker implanted 6 days back. I am having a sudden high blood pressure at times and also feel some sudden twitches of pain in my right side of head or ear. Has any one experienced this? Is it very abnormal ? I am a 63 years old female.

Posted by jsne on 2015-10-30 10:28. 2 comments. 369 reads
 
Anyone taking verapamil long term ??has it helped
I have been on it in the past with limited effect, trying it again for re-entry/junctional tachy. Not convinced it is helping and back to having poor sleep, legs ache/tingle from the knee down at night and still getting some palps during the night. The middle of the day is usually not to bad and I know that it may have altered my settings slightly.
Back at the consultant in December so I will have given it a fair trial but the next stage was av node ablation, big step but to free from drugs and poor sleep makes it very tempting. In between times still feel great.
Jx

Posted by dhusemann on 2015-10-29 04:56. 7 comments. 775 reads
 
jun 2012 after driving back and forth between tx and il
because my dad was having issues with cancer, I wasn't
taking care of myself. Blood pressure meds were slowing
me down (so I thought) was making me tired for sure so didn't
take them on the drives eventually stopped taking them.

short story, doctor visit, bp 280/220, ER visit, control bp
go to work, dragging seriously, go home early go to work
next night, still dragging work all night struggling,
go home, 2 hrs sleep wake up can't breath, lay back down
can't breath, another visit to ER. checked into cardiac
ward, wake up with pamphlet on table about heart failure.
EF less than 30%

2 months later make trip t...


Posted by Patches1977 on 2015-10-28 14:33. 5 comments. 427 reads
 
Hi, I'm new to this club. I had my pacemaker put in back in July 2015. Pacer shows that my heart rate ranges from 35-170bpm. My blood pressure and heart rate neither one will stay right. My blood pressure ranges from 80/50 at lowest and 160/95 at highest. I went to primary doctor and had blood work done. It showed my thyroid levels were very high. Dr put me on Synthroid .88mg once a day. Since then I have been feeling like I did before I had pacer! Tired, fatigue, weak and sleepy. I am 38 year old female and when I googled pacemaker and synthroid it scared me! Anyone else have this same medication and are having problems with it.


Posted by steveh on 2015-10-27 20:38. 3 comments. 338 reads
 
I have a St. Jude CRT_D, am taking 50mg of tropol, and 10mg novasc, 5mg altace. I stay tried almost all the time,could this be the medicine or the CRT.

Posted by fox30 on 2015-10-26 22:37. 0 comments. 259 reads
 
When I was being monitored with an event monitor I also purchased an app for IPhone and I Pads called "AliveCor Mobile ECG" It gives a lead 1 easily and with some effort a lead ii. After my CRT unit was implanted I have been doing lead I reading from time to time and have found that the QRS morphology varies from beat to beat and some day to day variation. I have a bundle of His pacing wire and one a a left left ventricular vein.
I wonder if others have used or are using this app and if they may have had a similar variation in QRS morphology and any clue as to the significance.
Would these variations likely to be of some value to my EP Dr. ?



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