St. Jude Medical Pacemakers & ICDs

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Posted by Chdmom on 2015-08-28 05:05. 6 comments. 146 reads
 
Hi everyone, I have a 16 year old daughter who had an ablation that damaged her sinus node. She now needs a single lead pace maker to pace the atrium only. Just wondering if anyone has experience with this? What are long term side effects?? So worried!!

Posted by joescuuba on 2015-08-20 05:37. 5 comments. 269 reads
 
I just got my pacemaker in and was wondering if I could use an electric hair dryer now that I have a PM?
Can someone advise me.

Posted by joescuuba on 2015-08-17 00:07. 4 comments. 277 reads
 
I just. Had my pacemaker put in 2 days ago and I'm worried that it might not be working as it should. My pulse still seems, at times, low and I'm still dizzy at times and very worried I'm gonna die. I guess is this normal?
I wonder how much is psychosomatic and how much is real. I really am worried

Posted by Lucyc14 on 2015-08-12 20:30. 1 comments. 254 reads
 
Hi I haven't posted on here for a long time. I have spent lots of years struggling to come to terms with my pacemaker but in the past year or so I have been so much happier and accepting. I'm 25 and have had my pacemaker since being 6 due to having 3rd degree congenital heart block. I had an echocardiogram last year which showed my lv function was impaired. This was due to pacing all of the time when this wasn't needed. My doctor is trying to wean me off pacing and its settings has been dropped to 35, however in a week I am having another echocardiogram and if my lv function is worse I will be put on medication for the rest of my life. I was just wondering if there was anyone out there who is facing the same problem. I don't want to go bac...


Posted by BevBabe on 2015-08-11 19:49. 3 comments. 189 reads
 
GOOD RESULTS FROM THIS??

Posted by Jenturbeville on 2015-08-11 04:22. 6 comments. 242 reads
 
Hi all. Just joined this group hoping for some answers. Had my ICD implanted July 20th.
I don't really know where to post the question but here goes...
I am a small framed person so there isnt a lot of room on my upper chest area. The pain from the procedure was pretty bad for at least 2 weeks. I asked my doctor at my post surgery checkup if it would ever stop feeling like I had a fist buried in my chest? He replied that he had used the thinnest device, but that I was a small built person......really not an answer at all.
This week I have felt around the device and realize that he has implanted it so far over that it is pushing into the joint where my arm and shoulder come together. I feel the constant pressure and pain...


Posted by DanaC on 2015-08-09 19:01. 3 comments. 253 reads
 
I was first diagnosed with a left bundle branch block and heart failure in August 2007. I was treated with a whole lot of drugs and about 6 - 8 months later, my EF was over 50% and 3 years later over 55% when they basically dismissed me and said I didn't need another test unless I had problems.

The first time was horrific in terms of my mental state. I was terrified. I had a boss who was a predator and used the condition to bully me - amazing that I "recovered" during all that. I was terrified. So terrified that I didn't follow up with a doctor between December 2010 and February 2015 when my EF was 10% and the LBBB had created severe dyssynchrony, and I had worse heart failure than the first time.

I had a St. J...


Posted by trb on 2015-08-08 04:18. 8 comments. 285 reads
 
I'm 50 year old man with a family and had a pacemaker put in yesterday; my heart beats were in the low 40's and even going into the 30's. Now my pacemaker is pacing my heart at 60 and I've just been release and I'm at home. I'm kinda freaking out a little inside and having anxiety and panic attacks that I even have a heart issue - I thought I was so healthy. I'm feeling every twitch in my chest and worrying about it. It's my first night out of the hospital and I'm just a little scared. Have any of you felt a little uneasy your first night being home? Is this normal?

Trb

Posted by SUPERSALE on 2015-08-06 17:16. 7 comments. 247 reads
 
my pacemaker doctor said i don't need to medtonic carelink home motor until jan 2016. i pay for it every month though medtronic 10.45 per month


i think my doctor is full of it. it time to get other doctor who care about me not for what doctor have.. i think doctor don't need to live in big house drive brand new car

i think i going to send it in every 3 month that is me not what doctor what to do i have pacemaker not the doctor



Posted by MaMaDuck on 2015-08-02 07:48. 6 comments. 394 reads
 
Hi
I am frustrated as heck! Just 7 wks ago diagnosed with chf and ef 15% and no answers. I am 45 yrs young and very active. Went from 100 mph, working 60 hrs a wk, being a mom, wife and serving at my church to a complete halt! WTH .....my doc stands over my bed the day after I am admitted to a heart hospital and says to me (as I am half asleep I might add @ 7:30 in morning)..... you will be seeing a chf doc and these r the real possibilities for your treatment....a pacemaker, a difibulator or heart transplant. Ok so I will let you get back to sleep. I am .....in total shock wait WHAT!
Anywho.....as I am TRYING REALLY HARD to wrap my head around this. The specialist tells me if I don't do as I am told I WILL die! OMG!
Si...


Posted by BetsyQ on 2015-07-31 04:45. 8 comments. 304 reads
 
I had my PM surgery on 7/8 and I'm still recovering. Three days in the hospital and lots of inflammation. The surgery that we were told would take 1 to 1 1/2 hours took 4 hours. Apparently my veins are small and it took them awhile to get the leads in place. Also I have small bones and placing the PM itself was challenging. I still have swelling and bruising under my arm and it is very painful to raise my arm above chest level. I think the PM is rubbing on a bone when I move my arm as it is very painful. Another strange thing is that I cry several times a day for no good reason. I am NOT a crier normally. I'm beyond frustrated. I talked to the cardiologists office and she said what I'm experiencing is completel normal. Has anyon...


Posted by AVJim on 2015-07-28 12:57. 1 comments. 196 reads
 
It is 5 weeks since I have my PM for AV Block III.
About 20 times a day, I feel a brief sensation of maybe sort of a palpitation, along with a brief head-reset (hard to describe!).
The PM is set at 50 BM. Is it possible that it is this split second that it needs to gives it's jolt, that I feel this? In other words, can there be a small period between lack of signal, and the PM jumping in, that I feel a small "disturbance"?

Thanks all!!

Posted by Naomi on 2015-07-21 13:37. 6 comments. 409 reads
 
Hi Everyone,

This club is a tremendous help to me! I just wish I could talk to someone person to person!
I'm still hurting, May 12,2015 was the placement date of my pm.
But I'm dealing with it, I just feel so scared and unsure of the future! My heart betrayed me and I worry it will do it again!
How does one deal with that? How does one deal with the hurting and the skin feeling raw?
I wish there was a support group that I could go to, I live in Coldwater, Michigan and there is none!
I'm tired of acting that I'm doing just fine and dandy when I just want cry!
Sorry about the pity party!
Any advice on how to make things better would be greatly appreciated!

Sincerely,
Naomi

Posted by jsne on 2015-07-18 15:03. 0 comments. 205 reads
 
Going to get another exercise stress test along with trying to set my PM. I am still getting some form of arrhythmias, HR going 90-110 not very high but my past svt's were unusually slow but still affected me and gave pacemaker syndrome. I do wonder if I am getting the latter again, would this show up on a PM check? Any one who has had the two tests together was it useful as I am at my wits end not being able to get any stability and able to do my hiking.
Cheers J x

Posted by sooz on 2015-07-16 11:30. 3 comments. 255 reads
 
Had a Medtronic dual chamber PM put in on June 30th. I now have rate in the 60's when sitting instead of in the 30's to 50. My problem was brady/tachy syndrome. Also have diastolic failure. I am now on proponolol 10mg twice a day and many asthma meds. I feel worse now that before the pacemaker. I did have infection try to get me from beginning and was put on cephalexin 500 mg 4 times a day for 10 days. I have no stamina at all and my color is awful in my face. How long for me to feel better? I thought this would be the answer to a better life but now feel that I made a mistake.

Posted by JANJAN on 2015-07-15 06:40. 5 comments. 310 reads
 
I was advised when my pacemaker was fitted that I could not use a tens machine ,a circulation Booster or the thing I miss the most a small oven which was a microwave ,combination oven grill and convector oven I also have a microwave oven on its own which I was told I could use but avoid anything containing magnets Is this true please.

Posted by Jay on 2015-07-13 21:37. 0 comments. 158 reads
 
This is my first time talking about my diagnosis. It took several years and many tests but the Dr's finally got it right. I had a Medtronic pm with 2 leads installed 6 months ago and it was very successful. In addition to my 3:1 av block , the Dr's discovered that I have a rare heart disease. PAPVR. Two of the Pulmonary veins returns blood to the right atrium instead of the left. The symptoms from the PAPVR seemed to subside when I had the pm put in, however, it seems my symptoms are slowly coming back. I'm beginning to feel a bit of shortness of breath again. Does anyone have this PAPVR? Could it just be an adujustment with the pm? I'm nervous I may need open heart surgery and I'm hoping it's a simple fix

Posted by Heartless on 2015-07-13 20:07. 2 comments. 219 reads
 
I've had a device since 08. Been shocked over 50 times. Had another ablation last week and as my function fails it gets harder and more scary. Any comments

Posted by YoungJ on 2015-07-13 15:01. 2 comments. 242 reads
 
Hi all. First post for me. I had my PM put in a little over a year ago, and everything has been fine so far. About a month ago, the skin around the area seemed to tingle/feel different. Now it seems that the device is more visible, and I can feel the definition of it a little more when I touch it. I am 45, 6'2", 175. On the thin side. Doc chose not to put it under muscle. At my last office visit she looked at it and said it was fine, but it still worries me a little. Seatbelt seems a little more uncomfortable these days. Has anyone had there Pm move, or become more defined under the skin? Anything to worry about? Unfortunately, I'm a worrier, so I'm trying to decide whether this is worth the worrying effort :)
Thanks!

Posted by rider on 2015-07-13 02:22. 10 comments. 377 reads
 
Two weeks now that I've had my PM for AV Block 2nd degree Mobitz Type 2. I got a 3 second warning and told my daughter that I was dizzy, I passed out while driving and crashed into the side of a house. So very lucky that no one was hurt. I consider myself healthy and was very active prior and hoping to get back to that point. Had no signs prior to the accident.

My question is how much do you share about your condition? Is there a good reason to share? Certainly you do with close friends but what about beyond that? I participate in a lot of exercise events and races where I know a lot of people and my absence will certainly be noticed and even casual acquaintances will ask what is up.

Initially I didn't w...




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