St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by mrsgumbo on 2016-02-13 07:28. 3 comments. 95 reads
 
I went for a walk and started feeling faint. The first shock startled me. I called the doctors office then screamed as the second through sixth shocks came with stronger intensity. Thankfully people were around to call 9-1-1 and hold me through the pain.

At the hospital my device was interrogated. I was told that defibrilator saved my life. I was hospitalized and put on meds to get my heart in normal rhythm. Terrifying.

How do I cope now?


Posted by Grandadbren1 on 2016-02-12 23:22. 0 comments. 29 reads
 
I have now been under an ep since 28th November who turned my pacemaker down completely it will not come in now unless my heart rate drops below 50 also he reduced beta blocker turned rate response off and af program, the improvement was more or less felt within 5 minutes . I have just been to see him again for second time and he lowered beta blocker again to 2.5 but I seemed to go into af a week later so I have increased dose to 5 mg again. It seems my feeling so unwell before was due to being overpaced and over dosed with Breta blocker. Just updating so that if anyone else have nag same problem as I was having may have a resolution .

Posted by Radders on 2016-02-08 09:37. 2 comments. 168 reads
 
I am 70 year old fairly fit new boy who had a pace maker/defib fitted last Monday. I like to walk briskly but am nervous about getting my heart rate too high. Also when I set off walking, I puff a bit for the first 5 minutes and then am OK. I worry about the defib firing off if I have to chase my granddaughter

Posted by jsne on 2016-02-07 16:38. 5 comments. 279 reads
 
Does a 24hr monitor pick up PMT and or Wenckebach, Had numerous monitories before PM incursion and supposedly nothing really showed up, the same back in the summer when I needed a treadmill and 12lead test to get a diagnosis then my settings sorted.
But I am gutted to being back to square one again, zero exercise tolerance and all the tightness and discomfort in the chest, lack of sleep etc .Concerned that nothing will show up. Going to 'phone the technician in the morning and see if she can give some help.
Has anyone felt really good then reverted back again? not on any meds as they haven't helped so far.
Can't stop crying, My next appointment is July and not sure if I have the energy to keep trying to "get on with it any ...


Posted by res519 on 2016-02-03 17:53. 5 comments. 348 reads
 
Hi all. I was so happy to find this group. I had my pacemaker implanted at the end of November. Physically, I feel great. Better than I have in months/years. Emotionally I'm a wreck. I'm so anxious about the device all the time - whether it's going to stop working or whether the leads will fail ....... Any time I feel different or sick, I attribute it to my pacemaker functioning incorrectly. I have never had cardiac problems in my life nor did anyone in my family. The symptoms I had were always attributed to something else as my slow heart rate was intermittent for some time. Nobody ever caught it when it was happening. When it was finally discovered I was in complete heart block - scared to death. Are my feelings "normal"? Ha...


Posted by jonstone999 on 2016-02-01 17:23. 1 comments. 138 reads
 
Hi all, I'm new to this site and wondered if someone could help? I've got a dual lead pacemaker which was fitted 5 years ago because of 2nd degree heart block.
In the last year I've come down with 5 different viruses and have now got tonsilitis for the 4th time in 12 months. Does the heart disease lower my immune system? I just seem to get back on track and I come down with another illness. Needless to say my work aren't impressed with my sickness record!!

Posted by jsne on 2016-01-30 13:04. 4 comments. 214 reads
 
Have had a more settled week , still waiting for monitor. Though I think my Dr is making me wait.. Doing the usual diary but I do struggle to find ways to explain symptoms (think most of us have been there!) but has anyone felt as if their heart is "holding it's breathe", Get a squeezing feeling, head starts to niggle throat gets tight then a minute or so later it "releases" and feel ok.
But for that time it's stop and wait as it completely take my breath away. happens a few times a day.
Cheers Jane

Posted by ShazG on 2016-01-19 12:03. 1 comments. 192 reads
 
Hi,
Forgot to add in my first message ...... I have also had many UTI s since having my pacemaker fitted ?????

Posted by ShazG on 2016-01-19 11:54. 2 comments. 325 reads
 
Hi,
I have joined this forum to try and find out whether I am the only person with a pacemaker who is feeling ill ! I had my pacemaker fitted 2014 after months of feeling extremely tired with no energy,as I have an under active thyroid and at an age for the menopause and a little over weight and a smoker these things were blamed .......I stopped smoking and lost weight but felt the same .... Eventually a GP listened and decided to investigate ...... 6 months later I had a pacemaker fitted in 2014 as my heart rate was 30 ! , I still feel unwell quite regularly I pick up every cough cold illness going around ( which I never did ) I have a swollen left leg a very tender left breast and a fuzzy feeling in my left arm and I get very brea...


Posted by jsne on 2016-01-16 13:04. 2 comments. 261 reads
 
Hi folks, it's snowing here but in a grey miserable way matching my mood.
Have come off the verapamil as it wasn't helping and thought next step was ablation, however this seems not to be (yet).
It turns out that the main arrhythmia that was causing problems was PMT and after checking my PM after the adjustments in August they think it's pretty well under control, however since November I have been getting pulse like feeling under my L rib cadge and have definitely lost some of my exercise tolerance
- blamed meds, but have not improved since coming off it. The technician made "a very small" adjustment at the end of December and know feel like I am PM blocking again, not as bad as before but enough to get the headache and ti...


Posted by JoMarie on 2016-01-15 18:18. 2 comments. 379 reads
 
I have had a great year with no symptoms and no drugs other than anti coagulation, following pacemaker and AV node ablation. I even forgot I had a pacemaker and all the anxiety which had gone before.

However, last week I awoke with all the old symptoms - chest discomfort, breathless and feeling ill generally. I knew immediately it was AFib breaking through and wondered if the pacemaker was working correctly. I went to the Clinic and was told on printout that I had had eleven episodes of AFib during that week and none at all for many months previously. It has settled again but I am dismayed that I could feel so bad again despite all the work done. I thought an AV node ablation would prevent symptoms. I know it will not prev...


Posted by Eunice on 2016-01-12 00:22. 7 comments. 358 reads
 
Hello!

Are their any female members in their 50's online now?

Posted by CC88 on 2016-01-11 22:51. 3 comments. 290 reads
 
Hi

I recently had a PM implanted (Dec 7) and before that I experienced many skips during the day. I was wondering why I still feel the skip beats, but I can also (when checking my pulse) feel the beat, which I am assuming is the paced beat. Its weird how I would still feel the skip beat feeling. This happen to anyone else out there?

Thank you

Posted by Debs59 on 2016-01-05 21:58. 3 comments. 347 reads
 
Hello! Been reading messages for a couple of weeks now and decided to join. Had my CrtD implanted on Dec 17 after denying I needed one and still adjusting. I think I am doing good but still have difficulty with pain by and around the implant site. Ice works great! Had my 2nd programming Check and everything's good. How long will this hurt/ache? I know, patience...

Posted by sunigirl on 2016-01-05 16:28. 3 comments. 322 reads
 
Hi all. I have posted before as I had AV node ablation in October 2015. For the past few weeks I thought I was improving but now A.fib seems to have a new lease of life and I have ectopics and very fast pulse. I thought that even though my atrium will fibrolite it can't get through to ventricals to make them irregular or fast.
Pace set at 60 to 130 bpm. I feel distressed about this as I am due a hip replacement and they wouldn't do it until AV node had been ablated and pulse regular. Any info will be appreciated. Thank you
Susan

Posted by Dashwo200 on 2015-12-30 16:08. 8 comments. 486 reads
 
Hello. I joined this great site to get more experienced info on pacemakers. I looked up coping with memory loss. Seems this is not so uncommon after a PM is installed. My question is does it improve as time goes on? Has anyone experienced a gradual re-gain on short-term or does it get worse as time goes on? Will be going to see the Cardio. in a couple of weeks and this issue must be addressed. Need some pro-personal help here. Thanks for any feed-back on this.

Posted by purdue1177 on 2015-12-28 21:01. 5 comments. 324 reads
 
Any suggestions on reminding me not to lift my arm past shoulder height, I have a sling device for nite but is bulky and difficult to wear with a heavy shirt, jacket, (I live in Colorado) Any other suggestions to ensure a successful implant would also be appreciated.

Posted by jessie1948 on 2015-12-28 12:17. 4 comments. 402 reads
 
My Husband has had his pacemaker now for 10 months. His daily routine consists of waking up mid morning, having a shower and a bowl of porridge then back to bed for the day. He wakes up mid afternoon, and won't eat or drink. He has no interest in going out, or even reading the paper anymore. I think he's depressed. He fights with me about taking his medications and some days won't take all of his pills. He suffers from water retention in his lower legs and does not elevate them, or drink enough water, then his mobility becomes a problem and he's cold all the time.

I think he's depressed. In the past 3.5 years, he was in a motorcycle accident. He was hit by a car, which caused a few injuries and took some time to recover. Afte...


Posted by Dal2 on 2015-12-25 23:08. 3 comments. 353 reads
 
So, went into several episodes of 2nd, 3rd degree, and complete heart block. MD said need 2 chamber pacer, so had it put in last Monday. LOTS of anxiety now which nurse told me was normal and will pass! I mean, I'm even afraid to be alone right now! Has anyone else experienced this and did you do anything in particular to get through it?

Posted by alex32 on 2015-12-23 03:46. 4 comments. 399 reads
 
Hey I'm new to the group. I had a heartattack last March of 2014. , then I ended up get a pacemaker .after several ablations and heart procedures. then my pacer and leads got infected that lead to. Endocarditis . had to have leads and pacer replaced. and had to get a port for antibiotics for 8 months. I've been on so many meds for Afib atrial flutter svt . had my sinus node and wc node ablated . I'm dependant at 32 years old. o well . I feel better. I will deal with the heart failure when it comes.



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