St. Jude Medical Pacemakers & ICDs

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Posted by newwidow on 2014-09-01 23:46. 4 comments. 129 reads
 
I just received my first pm on August 11. I am 49 and a recent widow (my husband passed away 6 months ago). I have a 15 year old that I am panicked will become an orphan. I went away for a few days with my daughter and after being back for 2 days I was still very tired. I didn't feel well but didn't really feel sick. At around midnight on the second day I was feeling a little woosy and I collapsed on the floor. Thank God I was able to reach the phone and called my mom that lives upstairs from me. She immediately called 911. The EMT said that my heart rate was at 23 and that he would get me to the hospital as soon as possible. Once there my heart rate dropped to 19. They attached me to a "pacer" and that awful feeling was better i...


Posted by PJinSC on 2014-09-01 19:01. 0 comments. 14 reads
 
A Latin phrase: "Illigitimati Non Carborundum" translated, "Don't let the bastards get you down". Now get out there and prove it!



Posted by JennBunny68 on 2014-09-01 15:01. 8 comments. 139 reads
 
I'm only 19 and just got a PM last week. So far it's a really big change and hard for me to get used to. Before my pm I had irregular heart beats and a hard time breathing. I went to the hospital just to get checked out and they told I had 3rd degree heart block. A pacemaker was basically my only option. This is an extremely hard time for both me and my family. Does anyone have any advice for how to deal with this? Or any dos or don'ts on how to live and care for my new pm? I've heard little things about cell phones, outlets, microwaves,ect. But I'm not sure about much of it. Any advice helps!

Posted by AngrySparrow1 on 2014-09-01 11:28. 2 comments. 79 reads
 
WOW, this morning marks three years since my CRT-D was implanted.

I want to thank everyone who posts on this site for all the support and insight they have given me over the past 36 months. I wish I would have had such a group to call upon after I had my SCD, I was so lost and scared. If I had a place like this to come to, I would have found my way quicker and easier, much easier.

I am doing my best to give back what I have taken from the group, I have learned so much from everyone, I am so thankful for this opportunity to share and learn from my peers.

I have picked a new path to follow, where it will take me I have no idea, I am sure it will be interesting, because life is very interesting.



Posted by steffenme on 2014-08-31 22:02. 8 comments. 168 reads
 
So grateful to find this site after a week of unexpected events. I have been dealing with bradycardia and atrial fibrillation for several months, but collapsed at work Wednesday, admitted to. hospital, and fitted with a dual chamber pacemaker on Friday.

My head is swimming. I'm 35, and I really never thought it would come to this.

I'm in a lot of pain, and I was told I shouldn't be. The site is swollen and bruised, but no signs of infection. Just wanted to make sure it was okay to still feel pain. It feels like a rock is sewn under my skin - it's tight and tender.

Thanks for any reassurance you can offer. I'm totally overwhelmed by life right now....

Posted by Energy on 2014-08-30 12:10. 7 comments. 138 reads
 
I have had a St Jude pm for 7 years and it was put in out of town when we were on vacation. On returning home I had to find a cardiologist for follow up care. I have been going to the same one for these 7 years and he always seems vague about the pm questions as if that's not his field. So I contacted electrophysiologist and he just recently replaced the battery. He is located a distance away but connected with same hospital of cardiologist. They us mostly Medtronic here but did replace with St Jude... I have another appt with the electrophysiologist this Thursday for follow up. My question would be should your Dr be an electrophysiologist if you have a device?

Posted by Dave H on 2014-08-25 23:49. 2 comments. 164 reads
 
Cut the grass couple hours ago ---- nice and hot --- lot's of sweat --- no big deal ---I stayed hydrated, took a relaxing shower afterward. I'm sitting here relaxed at my PC, and suddenly I notice a rapid pulse. Put on the cuff and the numbers are 108/73 pulse 121. HMMM --- Few minutes later, a comparable reading. Started to think about the 60mg Diltiazem tabs in the cabinet. Couple minutes later, I'm 103/73 pulse 88. Glad I did not use the diltiazem.
What creates these wacky events? I don't think I went into A-fib --- My BP device would always give me an "Error" whenever it tried to get a BP reading during an A-Fib event. Any thoughts?
--Dave--

Posted by shine on 2014-08-24 07:40. 6 comments. 125 reads
 
This is day 3 after receiving my ICD and I am wondering if the symptoms that I am having are normal. For the last two nights while lying down my hand feels a little numb on the same side the device was implanted. Also, my chest is very sore when I take deep breathes. Did anybody experience these symptoms and if so should I be worried?

Shine

Posted by UKWorried on 2014-08-20 14:50. 13 comments. 302 reads
 
Dear all,

I've had funny turns over the years where I've felt unwell and lost consciousness. I have been diagnosed with vasovagal syncope plus had an implantable loop recorder put in my chest to record my heart.

I've just had another episode and my loop recorder recorded the episode - showed my heart slowing, a fifteen second pause (flat line) and then some erratic activity before going back to normal.

I'm seeing my cardiologist consultant on Friday (to talk about the pros/cons of a pacemaker) but in the meantime was hoping for some reassurance. The thought of my heart totally pausing for fifteen seconds has really freaked me out.

Thank you in advance.
41 year old female


Posted by sunshine on 2014-08-16 18:42. 3 comments. 238 reads
 
Am new to a PM, just 3 weeks past. And has been an emotional time as my daughter (single mom) was moving to a new house. I was busy as can be this past week this past week and today the PM hit me, pretty good. Was glad to find this site and know that depression can be a normal thing. It was purely by chance that they discovered the low heartbeat - otherwise would have been on a plane for a board mtg and who knows what would have happened. Seems my body had been adjusting all along so never had symptoms. Still trying to get my head wrapped around what happened and the fact that I'm alive today because of the PM. THAT'S difficult. Have family history of SADS but not a clue as to what I should look for or tell doctors. And got diagnosed w...


Posted by cabbie on 2014-08-16 02:10. 0 comments. 147 reads
 
Thank you Angry Sparrow for your response. I had actually written you a detailed reply but then pressed the back button by mistake and it's all gone now! Anyway I have to go for now so I will write longer another time.

I am pasting the cost of treatment packages from the Philippine Heart Center. http://www.phc.gov.ph/services/treatment.php.
They have a new Medical Director so I am not sure if the prices will change. Other hospitals you may want to check online are the Makati Medical Center, St. Luke's Medical Center Global City, the Medical City and the Asian Hospital. These are all internationally-accredited hospitals which accommodate medical tourism. I am not very familiar with the last two hospitals on the lis...


Posted by Acrising on 2014-08-15 18:34. 4 comments. 182 reads
 
Dear Pacemaker Club,

I received a biventricular pacemaker/defibrillator at the end of June. Beginning the evening of my surgery and continuing to this day, I feel a "flicking"', "ticking" kind of spasm in my left breast. I have told every medical person I have come into contact with and they say my device is pacing normally and it's probably just a temporary muscle spasm. Temporary, my butt! I still feel it and it is mid-August. Any one else experience this? I am tired of medical professionals making me feel like a nutcase. Help!

Posted by Rhansen1 on 2014-08-15 13:06. 6 comments. 255 reads
 
First off, thanks to all the folks that make this site possible. I just now came across it and so nice having others that can relate. I am a 44 y/o male on my third pacer device. The last 2 are and were icd's with the pacer function. My first regular pacer was implanted in 2000. In 2008 I was suffering from extreme fatigue and chest pains. I had just moved and made an appointment with a new Cardiologist. In short, I was informed I had several Heart Attacks, enlarged Heart, EF of 24% and I officially was diagnosed with CHF. The Dr immediately replaced my regular pacer with an ICD. 3 hort years after that it had to be replaced and new leads installed. Apparently the battery went quick due to some high settings and a shorted lead in...


Posted by cabbie on 2014-08-14 15:48. 1 comments. 139 reads
 
Hi. Just wanted to say that I had a CRTD implanted almost two weeks ago for HF with DCM. Still feeling sore at the implant site but it's much better than it was than last week. Freaked out at the thought of the leads getting dislodged and have been trying best not to move my left arm above the shoulder. I had cardiac cachexia before I agreed to the implant and so I am quite skinny at the moment and I can see and feel the implant beneath my skin.
Anyway I'm just glad to find this forum. I'm from the Philippines and here we pay out-of-pocket for cardiac devices so not many people get CRTDs. I feel fortunate to have one and I hope it will help me a lot. I have a Biotronik CRTD and am thinking of getting the CardioMessenger bedside moni...


Posted by Nickywick on 2014-08-13 18:53. 6 comments. 152 reads
 
Hi I had my pm fitted in may this year and recovering well except im very sore and have deleloped a keloid scar, yesterday I had my 4mth review and he said to get a seat belt cover, any ideas? also does bio oil work? :-)

Posted by Robert122085 on 2014-08-12 12:45. 3 comments. 114 reads
 
i have a surescan pacer and its been in now for almost a year and im having discomfort around the left side of the pacer. my doctor says its fine but in my mind discomfort is not fine

Posted by PK1960 on 2014-08-11 13:38. 3 comments. 119 reads
 
I had an AV Node Ablation in 2005 when my first PM/Dfib was implanted. My Afib was still there, but so controlled, the last eight years were awesome. Now the Afib has raised it's ugly head and symtoms are worse than even. My docs are suggesting another AV Node Ablation. anyone out there had a second, and if so, what are your comments on this?

thank you very much.

Posted by Hape2Bme on 2014-08-10 13:22. 7 comments. 243 reads
 
Hello Group

I am new to this forum and so happy to have found it. I don't mean to sound ungrateful for this 3rd chance at life, (I died once before on the operating table during surgery) but I am struggling with this device in my body. It is painful, it protrudes, I have an itchy rash that is spreading over my body, and I am easily fatigued. It has only been less than a month since I had this implanted and I understand that most of what I am going through is normal. The rash is beginning to concern me. Although I have seen both of my cardiologists since leaving the hospital, I did not mention the rash. At the time, it seemed insignificant. However, the rash is spreading across my chest, arms, shoulders, and even legs....


Posted by KAG on 2014-08-07 11:35. 2 comments. 254 reads
 
I wrote this in the hope that it will help the newbies. Sometimes I spent more time in one phase than in others, sometimes went back and forth, but eventually I got through it. You are not alone and you can get through it with persistence and being your own best advocate.

My experience in getting a PM:

Shock, what the heck happened, I was fine a short time ago, no heart issues

Fear, I could die from this.

Pain, I've been cut open and foreign objects installed.

Discomfort, as the incision and bruises heal and I try to get used to having a chunk of titanium in me.

Anxiety, as I realize how close to death I was and there is only this tiny electronic battery operated computer ...


Posted by debcar01 on 2014-08-06 18:48. 11 comments. 249 reads
 
Hello group,
So, i just got my Medtronic dual chamber pacemaker two weeks ago. I'm only 47 and kinda having a hard time with all of this.... any other younger folks out there that can help?



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