St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by BetsyQ on 2015-07-31 04:45. 3 comments. 22 reads
 
I had my PM surgery on 7/8 and I'm still recovering. Three days in the hospital and lots of inflammation. The surgery that we were told would take 1 to 1 1/2 hours took 4 hours. Apparently my veins are small and it took them awhile to get the leads in place. Also I have small bones and placing the PM itself was challenging. I still have swelling and bruising under my arm and it is very painful to raise my arm above chest level. I think the PM is rubbing on a bone when I move my arm as it is very painful. Another strange thing is that I cry several times a day for no good reason. I am NOT a crier normally. I'm beyond frustrated. I talked to the cardiologists office and she said what I'm experiencing is completel normal. Has anyon...


Posted by AVJim on 2015-07-28 12:57. 1 comments. 64 reads
 
It is 5 weeks since I have my PM for AV Block III.
About 20 times a day, I feel a brief sensation of maybe sort of a palpitation, along with a brief head-reset (hard to describe!).
The PM is set at 50 BM. Is it possible that it is this split second that it needs to gives it's jolt, that I feel this? In other words, can there be a small period between lack of signal, and the PM jumping in, that I feel a small "disturbance"?

Thanks all!!

Posted by Naomi on 2015-07-21 13:37. 6 comments. 296 reads
 
Hi Everyone,

This club is a tremendous help to me! I just wish I could talk to someone person to person!
I'm still hurting, May 12,2015 was the placement date of my pm.
But I'm dealing with it, I just feel so scared and unsure of the future! My heart betrayed me and I worry it will do it again!
How does one deal with that? How does one deal with the hurting and the skin feeling raw?
I wish there was a support group that I could go to, I live in Coldwater, Michigan and there is none!
I'm tired of acting that I'm doing just fine and dandy when I just want cry!
Sorry about the pity party!
Any advice on how to make things better would be greatly appreciated!

Sincerely,
Naomi

Posted by jsne on 2015-07-18 15:03. 0 comments. 90 reads
 
Going to get another exercise stress test along with trying to set my PM. I am still getting some form of arrhythmias, HR going 90-110 not very high but my past svt's were unusually slow but still affected me and gave pacemaker syndrome. I do wonder if I am getting the latter again, would this show up on a PM check? Any one who has had the two tests together was it useful as I am at my wits end not being able to get any stability and able to do my hiking.
Cheers J x

Posted by sooz on 2015-07-16 11:30. 3 comments. 194 reads
 
Had a Medtronic dual chamber PM put in on June 30th. I now have rate in the 60's when sitting instead of in the 30's to 50. My problem was brady/tachy syndrome. Also have diastolic failure. I am now on proponolol 10mg twice a day and many asthma meds. I feel worse now that before the pacemaker. I did have infection try to get me from beginning and was put on cephalexin 500 mg 4 times a day for 10 days. I have no stamina at all and my color is awful in my face. How long for me to feel better? I thought this would be the answer to a better life but now feel that I made a mistake.

Posted by JANJAN on 2015-07-15 06:40. 5 comments. 204 reads
 
I was advised when my pacemaker was fitted that I could not use a tens machine ,a circulation Booster or the thing I miss the most a small oven which was a microwave ,combination oven grill and convector oven I also have a microwave oven on its own which I was told I could use but avoid anything containing magnets Is this true please.

Posted by Jay on 2015-07-13 21:37. 0 comments. 74 reads
 
This is my first time talking about my diagnosis. It took several years and many tests but the Dr's finally got it right. I had a Medtronic pm with 2 leads installed 6 months ago and it was very successful. In addition to my 3:1 av block , the Dr's discovered that I have a rare heart disease. PAPVR. Two of the Pulmonary veins returns blood to the right atrium instead of the left. The symptoms from the PAPVR seemed to subside when I had the pm put in, however, it seems my symptoms are slowly coming back. I'm beginning to feel a bit of shortness of breath again. Does anyone have this PAPVR? Could it just be an adujustment with the pm? I'm nervous I may need open heart surgery and I'm hoping it's a simple fix

Posted by Heartless on 2015-07-13 20:07. 2 comments. 117 reads
 
I've had a device since 08. Been shocked over 50 times. Had another ablation last week and as my function fails it gets harder and more scary. Any comments

Posted by YoungJ on 2015-07-13 15:01. 2 comments. 163 reads
 
Hi all. First post for me. I had my PM put in a little over a year ago, and everything has been fine so far. About a month ago, the skin around the area seemed to tingle/feel different. Now it seems that the device is more visible, and I can feel the definition of it a little more when I touch it. I am 45, 6'2", 175. On the thin side. Doc chose not to put it under muscle. At my last office visit she looked at it and said it was fine, but it still worries me a little. Seatbelt seems a little more uncomfortable these days. Has anyone had there Pm move, or become more defined under the skin? Anything to worry about? Unfortunately, I'm a worrier, so I'm trying to decide whether this is worth the worrying effort :)
Thanks!

Posted by rider on 2015-07-13 02:22. 10 comments. 270 reads
 
Two weeks now that I've had my PM for AV Block 2nd degree Mobitz Type 2. I got a 3 second warning and told my daughter that I was dizzy, I passed out while driving and crashed into the side of a house. So very lucky that no one was hurt. I consider myself healthy and was very active prior and hoping to get back to that point. Had no signs prior to the accident.

My question is how much do you share about your condition? Is there a good reason to share? Certainly you do with close friends but what about beyond that? I participate in a lot of exercise events and races where I know a lot of people and my absence will certainly be noticed and even casual acquaintances will ask what is up.

Initially I didn't w...


Posted by Synch on 2015-07-09 17:43. 5 comments. 177 reads
 
Hello everyone,
I had a dual lead Boston Scientific pacemaker implanted 6/20/15. Follow up appointment with cardiologist/EP on 7/2 and everything looks good;however, I don't feel good. I have 2nd degree heart block. No shortness of breath just fatigue and feeling of near syncope and transient dizziness. I am taking 25 mg HCTZ/day only. My expectation was I would feel at least incrementally better 3 weeks out....comments would be appreciated. I enjoy this forum and appreciate all of you for participating..Kudos!

Posted by Rhonda99 on 2015-07-07 22:32. 5 comments. 229 reads
 
New pacemaker as of two weeks ago. Reason unknown. Heart rate dropped to 38 to 40 and was very short of breath. I am extremely active and my heart cath was clean. Just so frustrating that not sure why it happened. I have to be off work for 8 weeks and Im stir crazy. Just venting. :)





Posted by Beetlefeet on 2015-07-07 15:56. 7 comments. 240 reads
 
Hi there, I am 3 months post op dual chamber PM at age 44. Sudden onset of heart block and had an episode while I was driving on the highway. overall I am feeling much better mentally, but I still have my moments of PANIC that set in. I am otherwise healthy, no cardiac problems other then the heart block which is now fixed with the PM. I am back to normal physical activity, but still have moments of panic.. feeling stressed out and wondering if I'm going to be okay in the long run. The drs have assured me that there ins't anything else wrong with my heart.. all testing has come back normal and that I will slowly get used to the PM and not second guessing every time "something doesn't feel right". wondering if anyone else has had these ...


Posted by cardiac15 on 2015-07-07 15:54. 0 comments. 90 reads
 
Hi,i had a dual lead pacemaker implanted in feb.this year and i just recently have been experiencing a kind of burning sensation in my breast.it's not there all the time and the sensation goes as quickly as it comes.Just wondererd if anyone else has experienced this.I also had an emergency cardioversion three weeks ago as my pulse rate would not go beneath 140 bpm.May be this could be the reason for the burning.

Posted by Macabr on 2015-07-06 10:33. 9 comments. 183 reads
 
Hi all getting pm implanted tomorrow, I‘ve been calm about it but now I‘m getting more and more anxious. How did you guys cope? It's very surreal at this point.

Posted by AVJim on 2015-07-06 01:08. 4 comments. 185 reads
 
It's been 10 days with my PM.
2 booboos: I forgot and went in the pool over the weekend. I didn't swim, just sat there to cool off. That shouldn't be bad, right? (chlorine etc.)
Number 2: Yesterday I was putting moisturizer on my daughter, who is quite tall. That means my arm was a bit up. Sort of forgot to protect it, and really rubbed in the lotion hard and fast. Right away it started to ache around the PM. Might I have pulled something out??

Posted by OxfordMummy on 2015-07-05 15:24. 4 comments. 170 reads
 
Hello!

I'm very glad to have found this site at a time of need.

My son had a pacemaker fitted following complications from surgery at 4 months old; he was born with Tetralogy of Fallot. He developed 2:1 block which worsened and they decided to fit a pacemaker when he went into complete block with HR around 30 bpm. Generally speaking the last 18 months have gone well with few admissions. We are now on 12 monthly checkups.

I am suffering at the moment worrying about what ifs: what if the battery fails or a lead becomes disconnected. Our local hospital cannot perform paediatric cardiac surgery and I really worry what would happen to him if one of the above scenarios happened. Also what if the local unit ...


Posted by Naomi on 2015-07-01 21:23. 3 comments. 215 reads
 
Did anyone else suffer from pain just below their
Pm? I'm getting throbbing/stabbing pain just
below my pm that lasts about a minute that comes
and goes. At times so bad it takes my breath
away. It just started today my pm was put in
on May 12,2015.
Any insight would help! I can't go to my doctor
as I've lost my health insurance and will not have
coverage again until September.

Thanks everyone!
Naomi

Posted by AVJim on 2015-06-30 06:20. 3 comments. 215 reads
 
Hi all! I posted before, and had sympathetic answers to my worries. PM since Thursday.
Is it possible that I am suffering from (little) panic attacks, which mimic or are almost identical to the original symptoms of breathing problems and dizziness?
It feels like bursts of too much (or too little) o2 or Co2 in the lungs, and going directly to my head.
I don't trust myself to even go outside to the doc at the moment...

Posted by Radio on 2015-06-23 09:00. 7 comments. 266 reads
 
Hi folks, my name is Billy I'm from Australia am unsure what to expect from this group. I've been wired for 6 months am still realizing what happened to me. Though in joining this group I'm sure not alone. But I'm not embarrassed to admit I'm scared.
Cheers Billy God Bless



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