St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by McSher2 on 2016-05-04 21:20. 1 comments. 106 reads
 
Has meant so much to me in the days following my mom's PM surgery. It's been six days, and she is still nervous and afraid to leave her apt. Still not convinced she is "okay" and says she doesn't feel ready to go out/even change out of her nightgown. I'm adjusting as well to being a caregiver for her and to running back and forth (45 minute drive) to bring her meals, help her around the house etc. Will the nerves subside? She also says eating her first "big meal" (I made her a chicken cutlet and spaghetti) gave her heartburn and she thinks she needs to eat lighter now. Basically, everything scares her. She feels like she is living on borrowed time. At 79, I would hope she has more years left of health, but it's very hard to convince her th...


Posted by McSher2 on 2016-04-30 22:37. 6 comments. 208 reads
 
Went in for pacemaker yesterday and it went so well. But she came home today and is devastatingly depressed. Feels like the doctors "are lying" and she won't be okay; will never go out of the house etc. she is 79 and I thought she would be so happy to be okay (given her high levels of anxiety pre surgery). No pain a day later but so blue that she can't move her arm. She says she feels like "an invalid" and told me she "will never be able to go out anymore." This isn't what doctor told her! Is depression common? How can I help her? I'm losing my mind! Thanks

Posted by McSher2 on 2016-04-30 22:37. 1 comments. 105 reads
 
Went in for pacemaker yesterday and it went so well. But she came home today and is devastatingly depressed. Feels like the doctors "are lying" and she won't be okay; will never go out of the house etc. she is 79 and I thought she would be so happy to be okay (given her high levels of anxiety pre surgery). No pain a day later but so blue that she can't move her arm. She says she feels like "an invalid" and told me she "will never be able to go out anymore." This isn't what doctor told her! Is depression common? How can I help her? I'm losing my mind! Thanks

Posted by Grilor on 2016-04-27 20:25. 2 comments. 137 reads
 
I'm 44. Have known I've had Complete Congenital Heart Block since I was 25. Went to see EP today. Says I've had some EKG changes and recommend pacemaker. At my request we are waiting until September. He says the recommendations have changed and now it is recommended that folks like me get the Pacemaker as a backup in case our built in pacemaker fails. He said I'd get the Medtronic. I've always knew I'd have to have it eventually. Looks like its finally here! Glad to have found this site for questions and concerns!

Posted by McSher2 on 2016-04-27 12:28. 7 comments. 230 reads
 
She is freaked out and I'm trying to be positive and keep her calm, but she thinks she will a) either die from the surgery or b) be housebound after it. She has high levels of anxiety but no symptoms up until this point. My dad died 10 years ago of a massive coronary, so she lives in constant fear of that. She was complaining of palpitations ("flutters") and her cardiologist found AV2 and bradycardia (pulse of 38); an electrophys specialist saw total heart block on EKG and insisted she go for PM. I'm so worried that she will feel worse not better after it; I've read so many people have pain and depression. I've begged her to join a support group or see a therapist but she's "old school" and doesn't believe in it. So it's all on me to help ...


Posted by Naomi on 2016-04-26 01:24. 10 comments. 308 reads
 
Feeling???

Hi Everyone!
As I read the posts and read the issues others are battling I think to myself "suck it up cupcake! your issues are nothing compared to some of the people on here",
But I'm angry, hurt, and still scared! It will be a year on May 12th since they implanted my dual lead pacemaker, I still have chest pains, and pain around the pm. No one can tell me why it hurts, my pcp dismisses me, the pm tech only looks at how the pm works. And my cardiologist doesn't know why either.
So everyday I deal with it and cry on my husbands shoulder because otc pills don't help the pain and go on. Yes I hold down a full time job, even if it "kills" me to do parts of it.
Thank you all for letting me vent! Hav...


Posted by Woodsey on 2016-04-25 04:18. 3 comments. 178 reads
 
Had my Medtronic PM for 5 weeks now and decided to cut my grass with a riding mower yesterday. After a bit I started feeling funny like when they check your PM at cardiologist and it feels funny or not normal when they put that checking device on your chest. I sit about 32 inches from the motor and wondered if anyone else has had this experience? I stopped mowing and started feeling better after about 30 minutes or so.

Posted by Nicole33 on 2016-04-23 01:32. 5 comments. 291 reads
 
Hi. I haven't been on here in quite awhile. Really don't know why because this place is truly inspirational and uplifting.
Have had heart disease (Cardiomyopathy and Heart failure) all of my 36 years. Never stopped me from living a full, productive life until March 2011. Was implanted with my first ICD January 2005 on a precautionary measure after finding that I suffer from AFib and VTach. Again, this never stopped me from living a full, productive life either until March 2011.
March 11, 2011 I went into a VTach storm. My defibrillator fired 23+ times within a short amount of time. Was truly Hell on Earth.
This brings me to the point in my post- along with my failing heart, this brought on major depression, out of this wo...


Posted by Woodsey on 2016-04-06 01:00. 5 comments. 368 reads
 
Has anyone experienced shoulder pain after pacemaker implant? The pain is just below the top of left shoulder about 2 inches above the incision just about in front of the joint and and feels quite sharp. It is not constant but is worse when I move the shoulder in certain ways.

Posted by Adventurer on 2016-04-05 13:29. 11 comments. 350 reads
 
Will soon have a PM and want to know the pros and cons. Have had many surgeries including open heart for ASD, birth defect for a drug my mother took for sickness. Just want to know what I will feel, mentally, physically and general. I am a very active, athletic and young at heart........person. An artist and one very in tune to there bodies. After open heart 8 yrs ago, I hit a depression, so scared that will happen again. I don't take meds and balance my depression thru exercise. It is so important for me. I am open to all info. It is so important to remain my active self.......Life has given me so many curve balls with health, just want to be informed, will help me to move forward..........Thank you

Posted by Woodsey on 2016-04-04 00:40. 6 comments. 341 reads
 
I am a new Pacemaker Club member, having my device in about 2 weeks now. I am having new sensations such as odd feeling in my chest followed by a brief period of lightheadedness (not often but at least once a day). Also, I have had pressure in my chest a time or two. Question: is this normal and is my Medtronic A2DR01 pacemaker on a learning curve with my heart? Should I contact my heart doctor and could my pacemaker need fine tuned? Thanks for any input.

Posted by kak on 2016-04-03 22:14. 5 comments. 315 reads
 
i have the most terrifying nightmares now (2 weeks from getting pacemaker) i have never had any in my life before now.
also have constant morbid thoughts ...they run through my brain
like wind....they are so scary i just cry for hours
i have always been so active nd entertained and traveled now all i want is to sit and stare.
when i fell the night my bp dropped i also broke 4 ribs and my lung was punctured.
is this something i can get an anti depressant or something to help.i have never had to take any meds though i am over 70
just want to know if there is any help or is this my life now.
thank you, kak

Posted by mint0039 on 2016-04-03 01:21. 2 comments. 306 reads
 
I'm 16 and had my first pacemaker fitted nearly 10 months ago. It was fine for the first few months, but then I would get these random crushing pains in the left side of my chest and in my left arm. The pain can range from noticable but tolerable to agonising and crippling, and sometimes I get very dizzy and feel faint too. The pain is always worse when I breath in. After being sent home from school in November, my parents took me to A&E but they said it was likely just panic attacks. However, I've been having panic attacks for two years already and my panic attacks are not like whatever's been happening. I tried to tell the nurses that but they didn't seem to listen. Since then, the pains have continued and I've been to my GP, spoken to t...


Posted by carolinerizea on 2016-03-29 23:24. 2 comments. 339 reads
 
Hi everyone, this is my first time posting in here... I'm 19 years old and I'm away from home at college, so having my PM gets a little scary sometimes. It was implanted 7 months ago when my heart rate fell extremely low and my doctors didn't know what to do. Lately I've been having pain right in the area of my PM and my cardiologist from home sent me to the ER last night. The doctor wasn't too sure what the pain was from, he assumed I tore scar tissue? I was just wondering if anyone else has experienced pain in this area after this long of a period. The pain has not subsided at all and tt hurts to hang my arm down or do any lifting whatsoever. I just want my life to get easier again, any advice would be great! Thanks so much.
- Carol...


Posted by Lucinda1406 on 2016-03-29 18:49. 9 comments. 343 reads
 
Hi,

I'm new to this so not sure where to start... Maybe with what's up eh?

When I was 14 (now 23) I collapsed and ended up in ITU with HR 252 which they initially diagnosed as SVT. They couldn't control my hr (2x cardioversions, aminodarone, adenosine, beta blockers, calcium channel blockers etc) so told my parents that I wasn't going to survive, this prognosis has never been changed but nearly 10 years later here I am.

When I had EPS / ablation (unsuccessful) I was told my tachycardia was in my head (200+ bpm under GA)...

Since then I've been diagnosed with POTS and tachy Brady syndrome, tried every medication under the sun and had 2 unsuccessful PPM implantations, latest being Oct 2015. I was r...


Posted by jim47 on 2016-03-28 01:03. 0 comments. 122 reads
 
just left hospital this morning.i was taken to hospital last thursday due to my icd shocking me 3 times,it seems the 3 shocks were really needed or i would be here now.i have had a total of 7 shocks since my icd was implanted due to a cardiac arrest.l don't mind the shocks but each time it shocks me i get anxious i seem to feel the shocks more in my head than in my chest it takes my ages to get back to normal. my icd seems to go off when i am doing something energetic or even going for a shower, i seem to be getting mixed messages.i am now on amiodarone i hope it helps

Posted by jsne on 2016-03-26 12:45. 3 comments. 277 reads
 
Looking for help in understanding if I am being impatient/unreasonable. Many of you have very kindly given advice and support over the last year or so.
Trying meds again for A typical Afib/flutter tach which is then giving me PMT, Things have settled a little (2weeks into meds) but my exercise tolerance is low. My Dr had said that we will try the drugs and if they don't work he will refer me to the Arrhythmia people to "take" things further ? what does that mean ? ablation.
It's a little over a year since getting the PM and it has been a very emotional time but the bottom line is the inability to do what I enjoy and the feeling of time running away. At my age 53 not old but not young you so want to make the best of what active ti...


Posted by LBOWERS on 2016-03-21 17:55. 13 comments. 746 reads
 
Hi all, my name is Laurie and I don't have a pacemaker but my husband does. A couple of weeks ago, he had replacement surgery. His 1st one was put in, in 2007. Then 2 weeks ago, we found out through one of his appointments that his pacemaker has been on "backup mode" since April 2003. So we went in and he had a new one put in. But the reason why I'm here is for help..
We've been together for almost 20 years and he's always been a tolerable pain in the butt. But here lately, his outbursts of anger are a bit too much. I need help understanding what he's going through and if this is normal behavior. He's 48 years old and the reason for the pacemaker is he caught Histoplasmosis in 2007.
I'm far from a quitter and love...


Posted by Icuh8n on 2016-03-19 00:59. 3 comments. 249 reads
 
It's been 3 weeks since crtd surgery and trapezius muscle hurts all the way to just above my elbow and very uncomfortable like numb. I wake up at nights whenever I turn around. Took ALEVE and it helped little bit. Is this normal or not and anyone had to rehab?. It's really painful when I go for my morning walk.

Posted by SupportingHusband on 2016-03-08 18:05. 3 comments. 484 reads
 
Hi,

I am new to this forum and wanted to reach out as I'm looking for support. My wife and I were recently married and are eager to start a family but feel trapped by the pace maker. I'm 33 and she is 31.

We are eager to start a family but recently received some unexpected news from the doctor when we went in for her pacemaker check. The plan was to change the battery and then start having kids immediately. At her recent doctors appointment we found out the battery is doing significantly better than expected. They estimate it could have 10 to 30 months of life left.

We asked the doctor if we could start having kids immediately and he strong discouraged that as he told us the battery life readings...




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