St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by SLC on 2015-03-05 16:08. 6 comments. 97 reads
 
Has anyone else out there had to have a pacemaker due to a doctor's error? It's been almost a year for me and I can't stand having this thing in my chest. I don't know if I'll ever get used to it. Maybe because I didn't need it, it's causing me psychological issues. They have me on anti-depressants and anti-anxiety medicine to help me relax. I had an ablation that went bad. She burned my electrical pathway shut, so I had to get the PM. I am thankful to be alive, but so frustrated. I'm active, in shape and only 56.
SLC

Posted by ttdavis22 on 2015-03-03 17:53. 4 comments. 167 reads
 
I new here and have found lots of good info.
For years I kept having pains and problems in my chest and the DRs had no clue why. They never really did much. This past year I started having more problems and ended up in the ER quite a few times when they finally had me wear a monitor and found I have Vtach.
I had Kaiser and all they did is put me on meds and told me if I had an episode go to the ER. Went to the ER at least 3x a wk for almost 6 months. All they did is switch my meds a few times and they never seemed to work. Needless to say I left Kaiser and switched to Blue Shield.
Saw my new MD and when he saw my records he said I needed to see the Electro specialist and even called him with me sitting there and said to co...


Posted by Peanut40 on 2015-03-02 10:37. 4 comments. 182 reads
 
Wife told me, I am not the same person I was, after SCD. Meds or me ?

Posted by Lynz on 2015-03-01 14:25. 2 comments. 130 reads
 
Hello, I am having trouble understanding this whole process. Maybe because it all happened so fast. I had a tightening in my chest that sent me to the Dr. they looked at my normally low pulse (48) which was now 41 and did tests, found it to be going into the low 30's at night and put a pacemaker in. I am now 11 days past the surgery and wondering what just happened? I don't have the energy they promised, in fact I feel more tired, dizzy, decreased appetite etc. I am due to leave on a cruise next week and feel concerned, has anyone had the same reactions? is this normal?

Posted by rpatters777 on 2015-02-28 14:35. 4 comments. 120 reads
 
I am scheduled to get my pacemaker on March 11, 2015....I am nervous and a little scared. Can someone tell me what to expect after the procedure. I am looking forward to a better quality of life. At the moment I am always out of breath doing simple tasks such as walking , folding clothes and even singing. Have you experienced energy after the pm? What kinds of things have improved fir you since the pm?

Posted by rolson on 2015-02-24 17:49. 1 comments. 78 reads
 
HI everyone! I just wanted to update you all who have helped so much. I started a new job and am doing fantastic. I am feeling better and better and when I started looking for work, made sure I found one that is low stress. I am sure I will have other issues as time goes on but right now, I am very grateful for all your help and for my friend on my shoulder.

Posted by jsne on 2015-02-21 07:54. 3 comments. 146 reads
 
History of atypical svt then an ablation 16 years ago. Problems with sob increasing over the years with arrhythmias long story short finally diagnosed with 2;1 heart block. Had pacemaker fitted 16th Feb and feeling v sorry for myself. Had a small pneumothorax which is going but feel as if I have been hit by a bus, heart rate keeps going up to 114 or 125 (not much in between) for no reason went to post a letter and was totally knackered. Have struggled the last year and just desperate to feel like I have done the right thing and to feel better. I am 52 and want to make the most of hopefully an active life. You leave hospital with so many questions that never quite get answered. Will be a happy girl tomorrow.

Posted by candi on 2015-02-20 11:18. 5 comments. 253 reads
 
First, thanks to everyone here for the information shared. A little background, in September of last year I started having discomfort, right side pain and pressure in chest. Some upper abdominal pain, testing done-ultrasound plus HIDA scan. All normal, referral to Gastro Specialist in November. On Nov 18 I called Doc as pain was at a 7-was told they didn't know what to do for me, to come in next day if not better. Went in (with hubby) next afternoon, pulse was 30- got a pacemaker early next am. I went in with 3rd degree heart block and blocked completely in surgery.
Still very fatigued, pocket is very sensitive and pacemaker has turned on its side several times. Is this fatigue etc normal? 3 months out? I lost about 30 lbs dur...


Posted by craigm on 2015-02-18 20:31. 0 comments. 55 reads
 
Thank you all for the info, gives me perspective and hope- I'll just keep punchin, but slowly :)

Posted by craigm on 2015-02-18 16:05. 6 comments. 178 reads
 
Received a 3 lead adjustable (70-120) beat pacemaker in Dec. 14, been walking sometimes 1/2 mi. but get really tired, I was pretty much bed ridden for 9 mos. due to Metoprolol side effects and was wondering just how long it takes to get back to semblance of a normal life?


Posted by DMB262 on 2015-02-17 04:48. 8 comments. 170 reads
 
Hi everyone
I'm new to all this post pacemaker 11/2/15 and I'm struggling to get used to these new feelings. I don't know what's normal and what isn't now..

Posted by Eunice on 2015-02-14 21:58. 6 comments. 271 reads
 
Glad to know this site exists. In my mid 50's, Pacemaker member since Jan. 2014, female, feeling unattractive and not having know anyone else my age with heart issues let alone a Pacemaker, just interested in your conversations!

Posted by Jfernandi on 2015-02-13 01:08. 9 comments. 293 reads
 
Just revived news that I may need s pacemaker after suffering a heart attack at the gym...seemed everything was looking good through short term recovery, but then passed out after getting up walk at the hospital...the news was/is shocking. I'm 43 scared and looking for someone to give me an idea about quality of life...can you live a healthy fulfilled life?

Posted by CapeTownGuy on 2015-02-12 05:07. 5 comments. 447 reads
 
My life fell apart just a 5 days before my wedding and I was 25. I am 30 now, 5 years later. I had had an incident where I blacked out at work a few months prior and had hurt my neck rather badly and had to see a neurosurgeon. Luckily no surgery was required but he insisted I see a physician about why I had blacked out so suddenly. After a few tests and nothing had come up until I did a stress ECG and bingo. The physician then sent me onto the worlds worst cardiologist who saw me 5 days before my wedding and told me he was 90% certain I have heart disease and that a biopsy was to be performed the following week and I started on Bisoprolol. Our honeymoon was cancelled and a little cloud hung over the most amazing wedding ever. That was Apri...


Posted by splendid1 on 2015-02-11 00:17. 4 comments. 189 reads
 
Has your PM had an impact on your life insurance? What has been your experience? Thanks. Peter

Posted by Seabreeze on 2015-02-09 11:08. 10 comments. 271 reads
 
I had my pacemaker put in Oct 9th of 2014 and I still have good days and bad. I'm fine for weeks and then I'll be exhausted and I just "don't feel right"....hard to describe, kinda dizzy and weak I guess. Just an "off" feeling. This weekend I did things around the house, took a walk and went to the gym but still didn't feel good enough to drive and do the thousand errands I usually do. Napping on the couch was what I did. I'm not one to baby myself and I do push but I decided to listen to my body. Does any body feel like that from time to time? I just need a little mental boost.
Thanks.


Posted by hammer77 on 2015-02-05 23:39. 2 comments. 125 reads
 
Hello I'm new to the site I have had my ICD since 2001 I had a cardiac arrest and got it implanted I've had one battery replacement since 2001 I always think something is going to happen to me lately I have been having fast heart rate then it quits and comes back and I get the erge to go to the bathroom number two lol I got it tested today and everything checked out fine they don't know what's causing it might be stress just looking for advice how to cope I'm 37 have had two open heart surgerys and I'm scared that I won't be here for my kids thanks for listening

Posted by MARYJANEOB on 2015-02-05 11:40. 11 comments. 267 reads
 
I'm new to the group. I had a CRT-D implanted 11/14, but because of complications attaching the left lead, it took 2 more procedures to finally "hook me up" on 1/15. A second incision had to be made on 1/15. How long will the scars be very visible, & how long will it be before I can lay on my left side without waking up with aches?
I'd appreciate any comments.

Posted by GingerVa on 2015-02-04 17:58. 7 comments. 166 reads
 
I met someone at my gym who has an ICD-PM. She told me that she doesn't know why she needed the implant, she just wanted what ever was wrong fixed and she didn't want to think about it or ask her doctors what is being treated or how. Obviously she can do it her way but I need this community and the knowledge I find here.

Lately I've been struggling with running--it is hard for me to run more than 2 miles. and my migraines seem to be getting worse. I've been getting a migraine that last a couple of days every couple of weeks. My neurologist actually advocated for my pm because she believed my chronic migraines were connected to heart problems. My migraines are better than before pm but starting to increase again. Maybe it wil...


Posted by Critter on 2015-02-04 08:41. 14 comments. 346 reads
 
I became permanently paced in September 2014. I was told that I would feel like a new person but that it might take 2-3 months to adjust to the pacemaker. It's now February 2015 and I'm still having issues with it. I get short of breath, dizzy and fatigued with pressure in my chest on exertion. The specialist told me during my appt. with him yesterday that it's just taking me longer than usual to get used to it. Has anyone else taken this long? I've had 5 ablations to eradicate atrial fibrillation and resorted to AV node ablation only because there was no other alternative. Now I'm wishing that I'd never had it done - my quality of life hasn't improved and I'm getting out of shape. Even going for a walk exhausts me...can anyone te...




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