St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Duke Heart Patient on 2014-09-15 12:01. 5 comments. 109 reads
 
How do you deal with stress and anxiety ?

Posted by Tony G on 2014-09-15 10:51. 3 comments. 57 reads
 
Hello, I just had my two lead pacemaker, replaced with an ICD. Sparky I has only been in me for a year and a half and I would like to donate it to an organization that can give it to someone else. Does any one know of ant such organizations?

Thank you,
Tony

Posted by turn916@sympatico.ca on 2014-09-14 18:51. 10 comments. 223 reads
 
Hi to you all. I am new to this just 2 weeks ago I got my pacemaker. I cant seem to cope very well. I cry a lot and wonder what I did wrong to have to have this. Some people have said its because I am over weight and that makes me feel even worse. Is there any light at the end of the tunnel. I have what is know as tachy-brady syndrome is there anyone else out there that has this. I feel so alone at the moment and cry so much and feel really tired. Please send me some feed back. Thank You all.

Posted by TeePee on 2014-09-13 18:57. 1 comments. 90 reads
 
Hi
I had a dual lead put in 05Aug after 28sec flatline being the final syncope captured by the hospital. I was such a shock as I had no idea why I had passed out a few times running up to that. UK based so I don't understand some of what is being said here but I have seen a lot of comments and they match how I feel especially about the bra straps. I thought it was me being daft. What I am still trying to cope with is the fact that I have to rely on the info live forever now. I was 60 this year so will I just have 1 left and then they won't bother after that? I have returned to desk work but still find it hard to concentrate all day. And have only just managed to go up stairs in a oner. Does it get better? Or is this it, just doing not...


Posted by SF32618 on 2014-09-13 14:15. 2 comments. 76 reads
 
H, had a heart attack 2 yrs ago, they put in 3 stents (bypass wasn't an option due to other health issues) things went great for a year then became blocked. They reopened stents in march, by may was no better. This time they talked me into a crt-d. had it installed in end of May. Now 4 months later, still experiencing fatigue, EF 30, someone please tell me it will get better. the drs say give it time, but isn't time the only thing we really don't have.

Problem today, however, is I had lower right side back pain when I had the heart attack, and have been experiencing it again but only when I try to do normal things (today was dustmopping my floors. I do work everyday, but have an office position so I can go in as...


Posted by bcates on 2014-09-12 10:08. 6 comments. 128 reads
 
I am getting a new 2 lead pacemaker for bradycardia with 3rd degree heart block next week. What do I have to look forward to next week?

Posted by mrsb on 2014-09-12 01:07. 9 comments. 179 reads
 
Hello, I'm at 3 weeks post pacemaker. I feel fine but I have a hard time with my left arm. I can't reach across to my right side with it cause I feel the pacer in my way, also I can't lay on my left side..again I feel like I'm squishing the pacer . is this normal and will it go away. And women with pacers, what's the scoop on bras?? My pacer is exactly where the straps go.

Posted by Stephanie1983 on 2014-09-11 08:10. 5 comments. 126 reads
 
Hi!
I just found this site! I am 31 and have had a pacemaker for 15 days now. I have so much pain in my upper back on the left side, I think this is from my lack of movement and anxiety about moving my arm too much. I am also feeling like it has just NOW hit me that I have a pacemaker, and am feeling a bit down. I dont have the energy to start work yet and am wondering when I will feel back to normal. Is it common to experience sudden feelings of being sad and needing reassurance that everything is ok??
Thanks! S

Posted by Pandabear on 2014-09-10 06:10. 14 comments. 207 reads
 
Since my surgery the biggest reaction from people seems to be that I'm 38 and in their minds to young for a pacemaker. My Dr assured me age has very little to do with reasoning for a pacemaker. He informed me that he has in fact just placed a pacemaker for an 18 year old woman who was otherwise perfectly healthy. Does anyone else receive This type of shock from people? I admit I was terrified and thinking I was to young for a pacemaker when I was told I needed one. I've obviously educated myself to know better.

Posted by Greenhemi on 2014-09-09 18:18. 8 comments. 139 reads
 
I've had a ICD 2 lead for two years now and still can't get my mind around the fact that my heart is weak. EF is 30. I kind of wish I would just have a major HA and be done with it. Just tired of worrying about when the next event will come. Does anyone feel this way? How do you keep on when you know what will come sooner than later?

Posted by lfslshlps on 2014-09-09 02:03. 0 comments. 103 reads
 
Hey Everyone.

I used to creep on here over the past few years. When I was 2, I had my first open heart surgery. Unfortunately, my heart went out of sinus rhythm, and was very slow for my age (approx 70bpm). I had my first pacemaker implanted a week after my open heart surgery.

When I was 4, my pacemaker was replaced.

From 1989-2005 my pacemaker was completely on backup. It never paced. During my implantation when I was 2, my heart went back into sinus rhythm and rate (turns out there was some scar tissue that was removed by the leads).

In 2005, I was diagnosed with a serious case of MSSA (Methasillin Sensitive Staphylococcus Aureus). Although treatable with antibiotics, it is still just as vicio...


Posted by ekmiller77 on 2014-09-07 17:27. 6 comments. 137 reads
 
I had a st Jude pacemaker Implanted in early august. It was an emergency, so something I wasn't expecting or mentally prepared for. While I can tell I feel some better, I'm still having trouble with a low energy level and shortness of breath when trying to walk, especially up slight hills. I've been told the mine is set at 60, but my heart rate seems to stay around 88 causing me to feel fluttering and nervous. My bp has gone up so the dr continues to increase my meds. Does this sound normal? It's all so new for me that I'm just not sure what to expect. Was so glad to find this support group of others who have lived with the device. Thanks for any suggestions or comments. Emily

Posted by NSM86 on 2014-09-07 07:42. 6 comments. 201 reads
 
HI,

My name is Neal and I currently live in Perth WA. I am 28 Years old and I recently went into complete heart block, which resulted in a Pacemaker being fitted.

It’s a long story but basically I had what the doctors believe was 15 seizures on Australia day (January). It was very strange I would pass out and apparently go ridged and when I came around I was sick. I could hardly move because if I did I would have another “seizure”. I saw a neurologist and had a EEG and was diagnosed with right temporal lobe epilepsy. Life went on and I had what I thought was another 15 seizures in 1 day on March. This time I stayed at home and rode them out as I didn’t see the point in going to hospital. Literally 3 weeks ago...


Posted by hillbhil on 2014-09-06 22:27. 1 comments. 54 reads
 
I got my PM on Tuesday after having a reveal monitor put on 8-4. I had been fainting and falling a lot since February. I broke ribs, fractured hip twice, chipped teeth and stayed bruised all the time. I quit driving because I never knew if I would faint when I got out of my car. The reveal monitor was able to tell my heart rate was dropping to 19, 20 etc. During the day and then I would go into afib have been on medication for two years for this. I 've had three cardioversions. Lots of test. Thank goodness for the reveal!! So far I am doing well. Excited that I can walk across the floor and not feel lightheadedness!!

Posted by Caity858613 on 2014-09-04 23:52. 7 comments. 164 reads
 
Hi everyone,
So happy to have this site, I am 28yo female that a had PM put in due to SSS on August 18th I am having a very hard time dealing with this, I feel lost and confused, I think I am wanting to feel a 100 percent better but at times feel dizzy and weak. I had episodes of short of air but they adjusted my lower setting which seems to be better, I don't know anyone my age that has one so feel very alone with what I should be feeling, I am so scared that I am going to rip my wires out, when these episodes hit almost feels like a panic attack, I just feel lost and confused and was hoping people could tell me their experiences with PM.Thank you all for listening.

Posted by Energy on 2014-09-03 19:38. 5 comments. 213 reads
 
I had my first pm in 2007 and it was St Jude's ... Had battery replaced in July this year... I was on vacation when I had emergency pm surgery first time. Back home, finding Dr. And coping were difficult as I knew nothing about pacemakers. The Drs in this area use Medtronic (or the Drs and hospital connected) when I had this one replaced the EP asked me if I wanted another St Jude and I said yes.... I assumed nurses at EP office knew about St Jude's...but several have told me they only have a working knowledge... Just enough to answer some questions. and gave me the phone no. To St Jude's.. I am to use the Merlin transmitter and was sent a filter to use and it was Medtronic.. I just feel uneasy about it all as I feel like I have to definit...


Posted by HHK on 2014-09-03 11:56. 5 comments. 169 reads
 
I'm just having a hard time excepting this. I know the benefits of it but still trying to cope

Posted by kamrymichele on 2014-09-03 00:34. 8 comments. 141 reads
 
I was looking for people around my age that have a pacemaker that I could talk with about how it affects their lives and how they deal with it, Im 19, and I have my moments where I just need someone to talk to about these things that actually understand what its like to have a pacemaker

Posted by newwidow on 2014-09-01 23:46. 4 comments. 224 reads
 
I just received my first pm on August 11. I am 49 and a recent widow (my husband passed away 6 months ago). I have a 15 year old that I am panicked will become an orphan. I went away for a few days with my daughter and after being back for 2 days I was still very tired. I didn't feel well but didn't really feel sick. At around midnight on the second day I was feeling a little woosy and I collapsed on the floor. Thank God I was able to reach the phone and called my mom that lives upstairs from me. She immediately called 911. The EMT said that my heart rate was at 23 and that he would get me to the hospital as soon as possible. Once there my heart rate dropped to 19. They attached me to a "pacer" and that awful feeling was better i...


Posted by PJinSC on 2014-09-01 19:01. 1 comments. 72 reads
 
A Latin phrase: "Illigitimati Non Carborundum" translated, "Don't let the bastards get you down". Now get out there and prove it!





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