St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by AndieRae on 2016-05-25 02:05. 18 comments. 354 reads
 
I'm 26 and I have symptomatic bradycardia. After many tests my cardiologist informed me I am a pacemaker candidate and asked me what I wanted to do. I really wanted him to tell me what to do. I could go ahead with the surgery or I could have a checkup in 6 months to see if it would by some miracle "fix itself." I chose to wait, I mean what 26 year old would blurt out they wanted the pacemaker when given the two options. Obviously he felt it was safe to wait or he would not have given me that option. And of course to come back if symptoms worsened and we would go ahead with the surgery.

I had started exercising fairly regularly starting in February. By regularly I mean 5 days a week 30minutes -1hour of moderate walking with 2 mi...


Posted by Xjx on 2016-05-21 06:14. 2 comments. 127 reads
 
I just had my pacemaker surgery. It's only been a few days. But I often have to remind myself about the limited use and range of motion I can use my arm for. I was worried about my leads.. any help would be appreciated.

Posted by healingpro on 2016-05-20 19:39. 2 comments. 138 reads
 
I am having trouble with my pacemaker.
I keep having to get adjustments monthly. Its been almost a year.
I am short winded.
I have a stinging issue several times day. The Tec states they have not heard of such things before.
Has anyone had this trouble? I feel like I am going crazy!

Posted by Jason.w.bolton@hotmail.com on 2016-05-19 22:08. 7 comments. 298 reads
 
Hi,

I'm 26 and have suffered from fainting episodes (rarely) for the past 11 years. Recently I had to have a 24 hour tape test done and the doctor has diagnosed me with Second Degree AV Block. He says it is relatively unheard of someone my age and says other tests seem to show my heart in good condition.

Has anyone else had this condition and could you give me any information on what it is like living with it.

Also I have been told that I will need to have a pacemaker fitted but due to my age it can lead to complications in later life, so I have been referred to another doctor to speak about wireless pacemakers, does anyone have any experience with these?

I'm worried having to receive a pacem...


Posted by kstar on 2016-05-17 16:43. 5 comments. 346 reads
 
I am new to this board and hope I am posting in the right place. I do not have a pacemaker but my wife does. I am looking for ways to support her thru all she has been thru this year. It started Thanks Giving Week 2015. She started having spells were she would feel dizzy and a since of about to pass out. These spells were short and only happened twice that week. By the end of December she was having a this happen more than once a week. This is when we decided she needed to see someone about it. My wife in 40, in shape, with no health problems. After seeing her primary doctor, who ran a EKG, he decided that she was feeling bad because of iron poor blood and put her on supplements. She took these thru January and by the first week of Februar...


Posted by Grilor on 2016-05-09 19:32. 9 comments. 308 reads
 
I'm schedule for a pacemaker in September 2016 due to CCHB. They did send me some information but I have since been wondering about some things not covered. I read somewhere that the scanners they use in grocery stores interfere. I am a nurse and we use scanners such as this to scan medicines. Also I was picking around with my son who wrestles and he picked me up and tossed me on the couch. I know initially you couldn't do things like that, but will you always have to be careful of this. I find myself wondering how it will change my life. Thanks Lori

Posted by McSher2 on 2016-05-08 01:13. 3 comments. 302 reads
 
Still dragging. can't get her to do much beyond go between the couch and her bed. Won't get dressed or leave the house. I feel mentally and physically exhausted from worry. Every new day I ask "how are you feeling?" and she replies 'Well, I'm still here." She feels her life will never be the same (much less better) and I can't seem to convince her otherwise. I'm sad because tomorrow is mother's day and she doesn't want to see me or her granddaughter. Says she's simply "not up to it." Physically, she has no pain but is very frustrated that she is temporarily "disabled" for six weeks of not being able to use the arm per doc's orders. I've told her that doesn't mean her legs don't work, but she says she's very nervous to go out and fall. She ...


Posted by McSher2 on 2016-05-04 21:20. 2 comments. 276 reads
 
Has meant so much to me in the days following my mom's PM surgery. It's been six days, and she is still nervous and afraid to leave her apt. Still not convinced she is "okay" and says she doesn't feel ready to go out/even change out of her nightgown. I'm adjusting as well to being a caregiver for her and to running back and forth (45 minute drive) to bring her meals, help her around the house etc. Will the nerves subside? She also says eating her first "big meal" (I made her a chicken cutlet and spaghetti) gave her heartburn and she thinks she needs to eat lighter now. Basically, everything scares her. She feels like she is living on borrowed time. At 79, I would hope she has more years left of health, but it's very hard to convince her th...


Posted by McSher2 on 2016-04-30 22:37. 6 comments. 357 reads
 
Went in for pacemaker yesterday and it went so well. But she came home today and is devastatingly depressed. Feels like the doctors "are lying" and she won't be okay; will never go out of the house etc. she is 79 and I thought she would be so happy to be okay (given her high levels of anxiety pre surgery). No pain a day later but so blue that she can't move her arm. She says she feels like "an invalid" and told me she "will never be able to go out anymore." This isn't what doctor told her! Is depression common? How can I help her? I'm losing my mind! Thanks

Posted by McSher2 on 2016-04-30 22:37. 1 comments. 226 reads
 
Went in for pacemaker yesterday and it went so well. But she came home today and is devastatingly depressed. Feels like the doctors "are lying" and she won't be okay; will never go out of the house etc. she is 79 and I thought she would be so happy to be okay (given her high levels of anxiety pre surgery). No pain a day later but so blue that she can't move her arm. She says she feels like "an invalid" and told me she "will never be able to go out anymore." This isn't what doctor told her! Is depression common? How can I help her? I'm losing my mind! Thanks

Posted by Grilor on 2016-04-27 20:25. 2 comments. 223 reads
 
I'm 44. Have known I've had Complete Congenital Heart Block since I was 25. Went to see EP today. Says I've had some EKG changes and recommend pacemaker. At my request we are waiting until September. He says the recommendations have changed and now it is recommended that folks like me get the Pacemaker as a backup in case our built in pacemaker fails. He said I'd get the Medtronic. I've always knew I'd have to have it eventually. Looks like its finally here! Glad to have found this site for questions and concerns!

Posted by McSher2 on 2016-04-27 12:28. 7 comments. 311 reads
 
She is freaked out and I'm trying to be positive and keep her calm, but she thinks she will a) either die from the surgery or b) be housebound after it. She has high levels of anxiety but no symptoms up until this point. My dad died 10 years ago of a massive coronary, so she lives in constant fear of that. She was complaining of palpitations ("flutters") and her cardiologist found AV2 and bradycardia (pulse of 38); an electrophys specialist saw total heart block on EKG and insisted she go for PM. I'm so worried that she will feel worse not better after it; I've read so many people have pain and depression. I've begged her to join a support group or see a therapist but she's "old school" and doesn't believe in it. So it's all on me to help ...


Posted by Naomi on 2016-04-26 01:24. 10 comments. 390 reads
 
Feeling???

Hi Everyone!
As I read the posts and read the issues others are battling I think to myself "suck it up cupcake! your issues are nothing compared to some of the people on here",
But I'm angry, hurt, and still scared! It will be a year on May 12th since they implanted my dual lead pacemaker, I still have chest pains, and pain around the pm. No one can tell me why it hurts, my pcp dismisses me, the pm tech only looks at how the pm works. And my cardiologist doesn't know why either.
So everyday I deal with it and cry on my husbands shoulder because otc pills don't help the pain and go on. Yes I hold down a full time job, even if it "kills" me to do parts of it.
Thank you all for letting me vent! Hav...


Posted by Woodsey on 2016-04-25 04:18. 3 comments. 253 reads
 
Had my Medtronic PM for 5 weeks now and decided to cut my grass with a riding mower yesterday. After a bit I started feeling funny like when they check your PM at cardiologist and it feels funny or not normal when they put that checking device on your chest. I sit about 32 inches from the motor and wondered if anyone else has had this experience? I stopped mowing and started feeling better after about 30 minutes or so.

Posted by Nicole33 on 2016-04-23 01:32. 5 comments. 368 reads
 
Hi. I haven't been on here in quite awhile. Really don't know why because this place is truly inspirational and uplifting.
Have had heart disease (Cardiomyopathy and Heart failure) all of my 36 years. Never stopped me from living a full, productive life until March 2011. Was implanted with my first ICD January 2005 on a precautionary measure after finding that I suffer from AFib and VTach. Again, this never stopped me from living a full, productive life either until March 2011.
March 11, 2011 I went into a VTach storm. My defibrillator fired 23+ times within a short amount of time. Was truly Hell on Earth.
This brings me to the point in my post- along with my failing heart, this brought on major depression, out of this wo...


Posted by Woodsey on 2016-04-06 01:00. 5 comments. 451 reads
 
Has anyone experienced shoulder pain after pacemaker implant? The pain is just below the top of left shoulder about 2 inches above the incision just about in front of the joint and and feels quite sharp. It is not constant but is worse when I move the shoulder in certain ways.

Posted by Adventurer on 2016-04-05 13:29. 11 comments. 404 reads
 
Will soon have a PM and want to know the pros and cons. Have had many surgeries including open heart for ASD, birth defect for a drug my mother took for sickness. Just want to know what I will feel, mentally, physically and general. I am a very active, athletic and young at heart........person. An artist and one very in tune to there bodies. After open heart 8 yrs ago, I hit a depression, so scared that will happen again. I don't take meds and balance my depression thru exercise. It is so important for me. I am open to all info. It is so important to remain my active self.......Life has given me so many curve balls with health, just want to be informed, will help me to move forward..........Thank you

Posted by Woodsey on 2016-04-04 00:40. 6 comments. 414 reads
 
I am a new Pacemaker Club member, having my device in about 2 weeks now. I am having new sensations such as odd feeling in my chest followed by a brief period of lightheadedness (not often but at least once a day). Also, I have had pressure in my chest a time or two. Question: is this normal and is my Medtronic A2DR01 pacemaker on a learning curve with my heart? Should I contact my heart doctor and could my pacemaker need fine tuned? Thanks for any input.

Posted by kak on 2016-04-03 22:14. 6 comments. 379 reads
 
i have the most terrifying nightmares now (2 weeks from getting pacemaker) i have never had any in my life before now.
also have constant morbid thoughts ...they run through my brain
like wind....they are so scary i just cry for hours
i have always been so active nd entertained and traveled now all i want is to sit and stare.
when i fell the night my bp dropped i also broke 4 ribs and my lung was punctured.
is this something i can get an anti depressant or something to help.i have never had to take any meds though i am over 70
just want to know if there is any help or is this my life now.
thank you, kak

Posted by mint0039 on 2016-04-03 01:21. 2 comments. 369 reads
 
I'm 16 and had my first pacemaker fitted nearly 10 months ago. It was fine for the first few months, but then I would get these random crushing pains in the left side of my chest and in my left arm. The pain can range from noticable but tolerable to agonising and crippling, and sometimes I get very dizzy and feel faint too. The pain is always worse when I breath in. After being sent home from school in November, my parents took me to A&E but they said it was likely just panic attacks. However, I've been having panic attacks for two years already and my panic attacks are not like whatever's been happening. I tried to tell the nurses that but they didn't seem to listen. Since then, the pains have continued and I've been to my GP, spoken to t...




Member Login
email:

password:



Who's Online?
We have 8601 visitors online.

Members online:
  phyllandrew
  Eddiethedog
  larry
  PacingUnicorn
  billyxoc1@gmail.com
  Lurch
  PatCan
  GoodDog
  Sunnystives
  Pm
  Grilor
  IAN MC
  webdragon
  gp.19
  paulc1950
  Xjx
  Bionicwoman
  vgivens62@gmail.com
  BrynaR
  gojack
  becky1958
  TraceyE
  Cally90
  Barnes42
  MattJ
  Harleygirl
  rghair@gmail.com
  Megan
  jpope5
  Lucinda1406
  Mdoshi
  Tattoo Man
  techiej
  Woodsey
  donr
  Gerrygee
  DampDog
  barnet38
  Artist

You're Wired When...
Trade secrets can be smuggled inside your device.

Member Quotes
I swim, scuba, garden, hike, climb, workout, play with the kids, play tennis, baseball, basket ball and rollerblade with mine with no problem.

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.