St. Jude Medical Pacemakers & ICDs

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Posted by turretshot on 2015-05-24 18:08. 6 comments. 82 reads
 
Hello my fellow mechanical cardiac citizens,

I will not lie, this sitting around waiting to heal rreeeaallly sucks rotten eggs. But the alternative is worse I guess. Had my pacer put in May 6th 2015. I understand the need keep from raising my arm above my shoulder it just is a real pain because I do most things with my left time. Even though I am right handed. I cannot wait to when I can begin exercising again, by walking to start. I enjoy being mobile, I am going on a family trip to Tahoe soon and do not want to disappoint my wife by not being able to hike and see the different sites. I have never been there before. Hope to hear back from others soon

Richard

Posted by PMMom on 2015-05-24 08:01. 5 comments. 130 reads
 
Hi everyone! I'm new to the PM life, implant of my Medtronic Dual Lead MRI Sure Scan on March 27, 2015 which puts me a little over 8 weeks postop. The site is still very tender and I am experiencing sharp shooting pains all around the pacemaker and into my left shoulder. There is also a stretching or ripping feeling at times when moving my left arm. It is still very difficult to lay on left side or stomach. In addition to the pain, I cannot sleep. I haven't slept through the night more than 5 or 6 night since the surgery.

I am 40 yrs old and the PM surgery was decided after I fainted and fell causing extreme back pain. ER admitted me due to damage to the back and ended up with an 8 day stay in the hospital for bradycardi...


Posted by anniehall on 2015-05-23 14:56. 1 comments. 52 reads
 
We have a My Weigh Phoenix TBF 440 Talking Body Fat Scale which we have used for many years as a weight scale only. My husband had a pacemaker implant a few months ago I just noticed that one is not supposed to use above in that case. My question is since we never activated the body fat scale by setting up the measurements etc and there is nothing on the scale that indicates that this is active, is this feature still active by simply turning on the power????? Please respond if anyway have any experience with this issue. Thanks Annie

Posted by Chappel on 2015-05-22 14:50. 7 comments. 198 reads
 
I've invented a product for us with implanted pacemakers. Please e-mail this link to as many members as possible. If everyone on pacemakerclub.com donates a few bucks, we may be able to get this project off of the ground. Please check out the link. And yeah, that's me in the video. God Bless.

https://www.indiegogo.com/projects/the-cardiac-care-communicator-or-c3/x/10655070#/story


Posted by Cmojo on 2015-05-16 03:06. 3 comments. 242 reads
 
I have a long history of heart problems, starting when I was 9 years old. With WPW. Had an ablation for this which then caused complications - heart block. Had pacemaker fitted for this in my late thirties. Leads broke and hospital said my heart was working ok so pacemaker was switched off. In 2013 I developed atrial fibrillation and had an ablation for this in July 2014. This was a success and I came off all medication in December last year. All was fine until two weeks ago when I developed an irregular heartbeat either very fast or very slow. Was rushed to hospital when I became unconscious. Heart rate then went extremely slow 50 - 0. Pacemaker was fitted for total heartblock. Current specialist says one thing led to another. Hopin...


Posted by 0300hours on 2015-05-14 20:54. 1 comments. 152 reads
 
I have had a PM in my left chest for five weeks. As swelling has gone down in my incision site, I have noticed that the left side of my neck is swollen. It is not tender, just slightly swollen from the incision up to under my chin. Is this typical? Have others noticed this and will it disappear soon?

Posted by rossjackson01 on 2015-05-13 16:46. 3 comments. 138 reads
 
Nor sure if moderators will allow. My apologies if I have got it wrong. Please delete if I have.

The following pdf's are available from the British heart foundation, and many are excellent in explaining in reasonably plain language the reasons for Pacemaker, installation and use.

https://www.bhf.org.uk/publications?keyword=heart+pacemaker&lang=english&showAdv=1

Hope these helps others as much as they have helped me.

Regards to all.

Ross

Posted by KJ on 2015-05-13 08:41. 4 comments. 174 reads
 
Hi- I'd appreciate some advice. Had dual pm fitted 2 weeks ago- wound healing fine but just not sure if what I am feeling is 'normal' after pm. I still feel very tired- mostly in mornings and seems to improve as day goes on. Feel light headed and shaky a lot of the time with fluttering sensation intermittent. Managing to do light household chores but it feels as if have done much more afterwards. Slightly breathless at times. Is this as good as it gets- or do I need adjustment? 1st check up end of June. Brain feels foggy- almost like blood sugar levels are low- but I'm sure they aren't. Thanks for any words of wisdom.

Posted by suzip on 2015-05-08 02:23. 2 comments. 178 reads
 
It is now almost 8 weeks since my pacemaker implant and I wondered is it normal that when I first get up in the morning, it is still very sore around the incision site and it feels like the flesh is tight and tearing inside the wound when I start moving around for about 10-20 minutes. It also feels slightly inflamed and tender to touch, The site is sometimes slightly pink in colour and not red. It is making me feel a little worried something is wrong?

Posted by hbl on 2015-05-07 22:19. 6 comments. 184 reads
 
Was sitting at my desk and noted my pulse rate of 55. Low setting is at 60. Called Dr and read comments here so no big worries. Then in short order rate increased noticibly to 100 bpm. Dr said something in hospital that I understood to mean pm would kick in at 100 bpm when needed. Nurse said this was my normal heart rythm kicking in. Confused??

Posted by glowiegirl on 2015-05-05 20:02. 4 comments. 208 reads
 
I've had my new CRT-D for 3 months. The first two months I felt better--then I had what I "think" was a defib on April 22. My ears buzzed and the room spun around. Lasted about 20 seconds.
I go to the doc tomorrow for a check-up. I feel like there is a claw in my chest tightening and I am dizzy and often out of breath at night or during the day if I walk across a room. The morning seems fine but I seem to swell up by the PM. Yet I can go country western dancing and sometimes finish a whole dance. I do stop dancing if I feel weak or dizzy.
My questions are:
1. Was that a defibrillation I had?
2. Will the exercise of dancing hurt or help me?
3. Should my doc be adjusting my CRT tomorrow after I tell him my sympt...


Posted by jsne on 2015-05-04 06:10. 0 comments. 136 reads
 
Hi Folks.
Just back from a week in Tuscany first trip with PM. Felt quite important going through airport staff both ends very friendly. Managed to do some quite significant walks (due to guide book not being very accurate) in spite of still feeling not right.
Handed in my 3 day monitor two weeks ago so hope to get an appointment soon. So frustrating that I feel so close to being well then back to awful do think I have lost confidence, strange when you think the PM should make you feel "safer" still hols were lovely and a wee drop of Chianti for medicinal purpose's .
Roll on check up.
Cheers Jane

Posted by Tabby on 2015-04-28 09:49. 7 comments. 292 reads
 
I got my pacemaker 2 weeks ago. It looks to be where a bra strap would come in contact with it. Any info about bra straps and pacemakers?

Posted by PovisGirl on 2015-04-27 18:06. 6 comments. 352 reads
 
Hello. My boyfriend had a pacemaker put in 1.5 years ago. I met him roughly a month after he had it, so I was not able to be there during the process. He is only 51 and he told me it takes time to adjust (understandably)...My concern is that he doesn't seem to want to live life. He does work and he will occasionally hit golf balls at a driving range, for which I am grateful. He often expresses feeling sad that he can't do the things he use to do, but from what I read, and what he has said, he has no restrictions. I am hoping to hear from those of you who may be having a similar experience. I try to be patient and understanding as I don't have any idea what it would be like and I love him. Thank you in advance.

Posted by Claret on 2015-04-27 14:24. 23 comments. 481 reads
 
The pacemaker information that I have been told to always carry with me is a couple of sheets of paper in a cheap plastic wallet that doesn't fit into a credit card slot in a standard wallet.

Even driving licenses are now credit card sized and carry just as much information as my pacemaker information.

It probably just hasn't been thought through by people who wear pacemakers, so nobody is blame, but we can provide feedback to the manufacturers so that they can improve.



Posted by Theknotguy on 2015-04-26 20:32. 4 comments. 366 reads
 
I sit next to John in church. John is a 90 year old WWII veteran who has a pacemaker. I tease him that we synchronize our pacemakers like they used to synchronize watches in WWII. We have the same EP, get to tease one another about pacemaker events, compare notes on our EP, and commiserate about pacemakers and life in general.

About four weeks ago, John's battery in his pacemaker was dropping voltage. Not out of line as the pacemaker was about nine years old. John was using his remote call in device to monitor the voltage and was getting concerned because the voltage was heading for two volts.

About three weeks ago John started to have dizzy spells because the pacemaker voltage had gone down to just over two ...


Posted by SUPERSALE on 2015-04-25 09:00. 2 comments. 227 reads
 
sometime my pacemaker is not on or pacing what it should anybody has that before??

Posted by irish_jessi on 2015-04-23 14:28. 5 comments. 254 reads
 
cyborg

noun
1. a person whose physiological functioning is aided by or dependent upon a mechanical or electronic device.

(dictionary.com)

==========================

We are so much cooler than regular people, lol

Posted by DonnaMarie on 2015-04-18 17:22. 8 comments. 256 reads
 
I'm new to this site hoping someone can help. How do you deal with the nagging pain & discomfort everyday? I have a pacemaker with defibrillator and it just seems too big! I'm 5 feet 2 inches & weigh 120 lbs. I got the device put in 4 months ago then recently had it moved over since it was hitting nerves. How do you enjoy life in pain everyday & will I get used to it?

Posted by Debbiekitt on 2015-04-16 19:10. 9 comments. 306 reads
 
I just had the pacemaker surgery yesterday. Didn't have lead time to figure out how to handle anything. I am very big busted(42/G or H). I need something g to close in front. Help.



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