St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Griddlebone on 2014-10-27 18:16. 4 comments. 266 reads
 
I know none of you can have any clinical answers for me, so I'm not asking for that. I have my 6-week appointment already scheduled with my cardiologist day after tomorrow, so it's just a matter of making it through 48 hours without worrying myself to death.

I had my PM implanted about 6 weeks ago. I've been feeling the bubbly/thumpy sensations under my sternum that worried me until many of you said, "Yep, had those too." My voltage is still at 3 V and this is only my second follow up. My only other problem has been mild anxiety (lack of trust in the PM!) which has disturbed my sleep patterns.

Today I met with my gastroenterologist to discuss my upcoming routine colonoscopy. Since I had an esophagoscopy 12 years ago ...


Posted by rolson on 2014-10-27 17:28. 1 comments. 115 reads
 
Had to go to the doctor this morning. Have been having chest pains for 3 days off and on. The have now moved my appointment with the surgeon to Wednesday morning and my new pacemaker asap. Well let you all know what happens next.

Posted by Iwantmikenow on 2014-10-27 11:23. 10 comments. 268 reads
 
Hello, 45 year old male here--I am so very glad to find a place to come to at a moments notice to read and listen to others who have come before me. I am one freaked out dude and considering my type A personality I'm all over the place mentally. So, I went to the doc last month as I feel light headed occasionally in the middle of and just as I start to work out. Passed out a couple times over the last 4 years but no other symptoms worth noting. He put me on a holter and found multiple instances of heart block lasting from 8-15 seconds about every other night. I even did a sleep study for apnea--negative results there but they saw the same thing the holter did...WOW. Talk about a kick in the pants! So, looks like I get the PM this Friday th...


Posted by kittykat48 on 2014-10-25 09:02. 12 comments. 312 reads
 
Hi, I'm having my PM fitted on 27/10/14 and as I was only told I needed one yesterday I'm still reeling.

Ive found this site very helpful in answering some of my questions but I still have one or two.

Does the PM device protrude from shoulder?
Is it uncomfortable and how long does it take, on average to get used to it.

When its healed is it possible to wear suntops in summer or is it too noticeable?

I'm used to sleeping on my tummy, I guess that won't be possible at first, but how long before I can sleep normally?

I know some of these questions seem insignificant but its what is going round in my mind at the moment.

I would welcome your advice as you have already g...


Posted by rolson on 2014-10-24 14:03. 8 comments. 250 reads
 
This has been a difficult year for me. My mother, who I was very close to passed away on November 8, 2013. I live clear across the USA from her so getting there was a challenge and I barely go there in time to say good bye to her. I have been plagued with stress ever since. I thought it was due to that loss. I have gained fear of driving and what I thought was panic attacks and any given moment. I fainted at work on September 3 2014 and thought it was due to stress as my job was going through LOTS of changes and I guess I do not handle change well. After 2 months of tests and trips to the emergency room for neck pain, back pain, chest pain Thyroid nodules, biopsies of said nodules and heart monitors, it seems I have both a very low (35) be...


Posted by dkburnes on 2014-10-23 14:42. 3 comments. 163 reads
 
Never joined a group before. I have a Metronics pacemaker due to sick sinus syndrome. My heart rate was between 35-38. I have recently had the rate adjusted to 65 for day and 50 for night, which has helped me sleep a little better. When I wake up, I still feel like someone has been sitting on my chest and I get short of breath showering and drying my hair. I have had headaches for weeks and a real tenderness to my neck and shoulder on the side where the pacemaker was implanted.

I feel a pulling in my chest sometimes, too. How long does it take to trust that the pacemaker is working?

Posted by bhayward on 2014-10-23 12:33. 3 comments. 146 reads
 
Yesterday I went for my first 'Stress Test' since having the pacemaker impacted July 18th, 2014.

The Nurse monitoring the test had to call the Doctor over to explain a readin. Oh, he says, that is just the pacemaker firing off...

Still getting that sinking feeling after hearing some more reality.

Do not get me wrong, the place doing the test is the REHfit Centre in Winnipeg, one of the only certified medical/fitness centres in Canada - so I kind of feeling lucky to live here.

One thing is that they are not quite sure why I flat-lined. I eat ok (I do not nor ever have liked processed foods (They did not exist when I grew up) - I have vision problems, so I walk a lot. Having said that I work in...


Posted by turn916@sympatico.ca on 2014-10-19 10:41. 8 comments. 392 reads
 
Hi everyone I am 2 months into my pacemaker. Is it normal to still have some episodes that you can feel but they do go after a few minutes? I mean I can feel my heart actually going into something but it comes back is that normal to feel it? Also I can not relax and I am very upset at times. I have talked to my cardiologist but she says she is not good at this sort of thing she only is good at her particular job she told me to talk to my family doctor. Is there anything I can do to help me relax I am tired of crying and tired of feeling lost. People don't understand even the doctors. My doctor thinks is just something I have to get used to and just bide my time how can I when I cant relax. Please any advice would be great. Thank yo...


Posted by turn916@sympatico.ca on 2014-10-19 10:41. 1 comments. 132 reads
 
Hi everyone I am 2 months into my pacemaker. Is it normal to still have some episodes that you can feel but they do go after a few minutes? I mean I can feel my heart actually going into something but it comes back is that normal to feel it? Also I can not relax and I am very upset at times. I have talked to my cardiologist but she says she is not good at this sort of thing she only is good at her particular job she told me to talk to my family doctor. Is there anything I can do to help me relax I am tired of crying and tired of feeling lost. People don't understand even the doctors. My doctor thinks is just something I have to get used to and just bide my time how can I when I cant relax. Please any advice would be great. Thank yo...


Posted by Skd62 on 2014-10-18 14:31. 8 comments. 352 reads
 
Hi, I'm posting on my mothers behalf. She's 83 and blind and had a pacemaker installed this past Monday. Although her vitals are good she is not wanting to eat, walk, bath, or talk. She says she sick to her stomach. She is on her usual BP meds with 2 new ones added for blood thinner, and 2 antibiotics. She was put thru the ringer in hospital and got an UTI. They also found the beginning of pneumonia on chest X-ray. I know some antibiotics can make you nauseous, but should she be so lethargic. My sister is waiting on her hand and foot. We have had this problem before after her stroke which there was no lasting effects, but she refused to get up and do for herself or take direction from her daughters. The drs told me to get her back ho...


Posted by Ellen on 2014-10-16 19:25. 6 comments. 329 reads
 
Hi. I have had a pacemaker since 2003 with atrial fibrillation. I used to weigh 115 lbs. I used to love to dance and do aerobics. I can't do any of that now. Even slow dancing with my husband gets me out of breath. Does anyone else have this problem?

Posted by shine on 2014-10-15 19:48. 3 comments. 179 reads
 
I received my ICD 8 weeks and I gone back to work which requires me to type a lot. I am wondering if the under arm pain or discomfort I'm feeling on the same side of the implant is normal. It seems to start paining after a long day at work or when I have used my left arm a lot. Should I be concerned?

Posted by Energy on 2014-10-10 17:03. 4 comments. 243 reads
 
i read about EMF's and wonder if any one has experienced this... In the beginning I was very cautious, always wondering if I should do this or that including anything electrical..or even walking through the checkouts at department stores etc ...created a bit of anxiety .... just wondering about others.....what you've experienced.

Posted by lauram65 on 2014-10-06 20:19. 17 comments. 436 reads
 
Ok, I posted about this a little while ago. I am gaining weight. I have gained 10 lbs since my pm insertion and still gaining. I walk 6 miles a day religiously, and try to watch what I eat. My cardiologist says it isn't due to the pm, but I have seen a lot of comments on here regarding it. I need support. My PC doc told me to go to Weight Watchers. I am so near crying. In general, I feel VERY good; but the weight gain has to stop.

While I'm writing, I have a real problem with how little information I was given about what would happen after the implant. I went to the physicians assistant two days after surgery because I was so bruised and battered. She says, oh that's normal. Well, you could have told me what was...


Posted by KAG on 2014-10-06 11:05. 6 comments. 342 reads
 
It has been a couple of months since I posted this and thought it was time to post it again. I wrote this in the hope that it will help the newbies. It is based on my experience. Sometimes I spent more time in one phase than in others, sometimes went back and forth, but eventually I got through it. You are not alone and you can get through it with persistence and being your own best advocate.

My experience in getting a PM:

Shock, what the heck happened, I was fine a short time ago, no heart issues.

Fear, I could die from this.

Pain, I've been cut open and foreign objects installed.

Discomfort, as the incision and bruises heal and I try to get used to having a chunk of titanium in m...


Posted by Martha on 2014-10-04 18:47. 1 comments. 209 reads
 
How common is it to have Afib 6 months after having a pacemaker implanted? I am a very active 71 yr old female. I have felt very brief irregular heartbeat since the procedure but last evening, I started with Afib and it has been continuous for 24 hours now. I take 50 mg metoprolol in am and 50 mg in evening. My heart rate is usually in the 60's but has been up around 121 bpm and now it is 105 bpm. Is this considered normal? I plan to call my cardiologist on Monday morning. I welcome comments to let me know if this is normal to have Afib like this since I have a pacer. Many thanks!

Posted by ReadingFC on 2014-09-30 19:51. 5 comments. 370 reads
 
On the 28th December this year, I was picked up by the ambulance service after fainting in the street. To be honest I had been feeling unwell for about 6 months, but the doc could find nothing wrong. It all came to a head that day, 30 mins later I was in the operating room have a PM, and a couple of hours earlier I was shopping but feeling the normal unwell.

That afternoon in the hospital ward, I though normal life was all over for me. Heart problems at 45 years old having been really fit an active all my life, now I was thinking about a life of taking it easy.

Things had not been right for about 6 months, I kept feeling weird, could not concentrate in the collage class I was attending any more, panicking all the time...


Posted by NikkiScissorhands on 2014-09-29 13:33. 5 comments. 234 reads
 
Hello, I'm new to this site my name is Nikki and I'm 27. I was diagnosed with congenital third degree heart block December 2013 and bradycardia. I had a pacemaker implanted on August 21, 2014. A higher heart rate is completely new to me. I was use to my heart rate being in the high 30's mid 40's. Before my surgery I had heart palpitations on a daily basis, after the implant I haven't had any. Until today. I woke with a sinking feeling, like something bad was going to happen, I can't shake it. Then the palpitations started. Are palpitations after a PM implant normal? Is it okay? Should I be concerned? Each time I have a palpitation my stomach gets that going down a roller coaster feeling.

Posted by islandboy on 2014-09-28 19:38. 2 comments. 211 reads
 
Had a Medtronic for over a year now but I continue to get ectopic heartbeats. However the Medtronic has kept me chugging in spite of them. I suspect it has helped prevent a fib, but I'd like other pacemaker people to give me their experiences with their pacemakers and arrhythmia.

Posted by kmom on 2014-09-27 11:38. 5 comments. 354 reads
 
I've been doing fairly good since my pm but still dragging at times. last time I went in in Aug for check up they turned down the rate response a little to see if it would help so far haven't noticed much difference. but lately I've been short of breath more and having a lot of palpatations at night although my rate ISN'T really high. I do have spikes in the low 100's and 90's --I have afib but dr. said it was only about less than 1% of time. and am on medications for that incl. anticoagulant (Pradaxa) i'm just wondering if i'm going into a-fib more often now or if it could be something else. don't get my wrong I do feel much better with PM (SSS) but I hate this "dragging" I didn't feel like that at first. what could they have possibly don...




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