St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by vegigran on 2015-12-16 02:37. 7 comments. 424 reads
 
It's been three months since implant. The next day after implant the left side of my diagram would twitch on and off. That stopped after a couple of weeks. Now my right side is starting to do this especially when I lie down. It doesn't hurt at all, just annoying. Has any one else experienced this?
Thanks,
Sharon

Posted by Cparr on 2015-12-15 20:45. 4 comments. 353 reads
 
Hello,I had a pacemaker inserted two weeks ago and then had the settings adjusted one week ago. Since the re setting I have struggles with frequent bouts of light headedness. I also started a beta blocker at that time. Does anyone have experience with this? Could the light headedness be caused by the adjustment to settings or the meds?
Thanks

Carol

Posted by Bulletproofheart93 on 2015-12-15 19:43. 3 comments. 485 reads
 
Hi all, My name is Hayley, 22 and I am new to the group,
I have had a pacemaker since I was 8 months old. I was born with Congenital heart defect, arrythmia and heart block. Until I was 11 I had a 1 wire pacemaker fitted, then it was changed to a new 2 wire system. As I have grown up I have started struggling more and more, my pacemaker was changed when I was about 17 and I was checked the other day, I have about 4 years left.

I've been going back and fourth to drs and the hospital due to severe breathlessness when going up the stairs, I'm continually tired and just a couch potato , I'm gaining weight on my stomach more due to this and my poor diet and being unable to excersise.

I went in yesterday and was tol...


Posted by Nick135 on 2015-12-10 05:53. 0 comments. 423 reads
 
Hello everyone, sorry this is so long, but idk what other board could better prepare me for the future.

I am 24 years old and have had PAC's since I was 14. I have had stress tests and an Angiogram done in the past. I have never been on meds or had restrictions. Recently (two weeks ago) I had some late night panic attack episodes and pain in my chest. I went to the urgent care and they told me I may have costochondrotis (inflammation of the cartilage in the ribs/sternum). My pain was reducible with tylonol. Well anxiety has kicked into OD and I have been stressing over my heart and needing a checkup. Just having left the military I haven't set up a PCM yet and he can't see me til January. I went into the ER this morning because ...


Posted by Goffie on 2015-12-09 18:56. 2 comments. 553 reads
 
Hi all, my first post. Had my Medtronic PM implanted on Monday, today I'm feeling short of breath, have a headache above my eyes and it feels like I can feel the leads in my chest. I'm getting an uncomfortable feeling in the middle of my chest, as if the heart is saying it doesn't want this stuff there. And also have very little energy today. I'm an active 44 year old so this is weird.

Reason they implanted the PM is because I have intermittent bradycardia that was confirmed after a Reveal was implanted a few weeks ago.

My main concern is the slight pain and uncomfortable feeling in my chest coupled with the headache and lack of energy.

Anyone experienced any of this and have any words of wisdom for this P...


Posted by corkie1 on 2015-12-06 22:21. 4 comments. 399 reads
 
Hello, I wanted to ask if anyone else is having problems with their pacemaker like mine. I am just 5 months postop from insertion of pacemaker. I am trying to go back to my gentle exercise class and walk. However when I do, I am getting atrial fib, hot sweats, pulling or smarting of my pacemaker. It is like a safety pin sticking in me. I get short of breath, and a puling sensation with atrial beats, sore around my pacemaker like it is pulsing or hot, when I walk or do exercise. Has anyone ever had these symptoms?

Posted by Mike1943 on 2015-12-06 11:30. 4 comments. 472 reads
 
Hello everybody. This is my first posting. I thought I was a healthy 72 year old doing all the normal things old guys do but have been on bp tabs since 2005-much to my disgust!!- so to be fitted with a pacemaker 3 weeks ago came as a shock. I have known since Jan this year that I have a slow heart beat -average 43 often less- but have been told by the GP I am paranoid and to forget it!! Indeed I am told I have the heart of an athlete-at 72!! Absolute baloney. I showed no fainting spells, some small bouts of dizziness put down to my hearing loss (!!) and no swelling in various areas. So.... I ain't coping!
I now have regular blasts of pain that I never had pre pm in my chest discomfort in my shoulder and arm with radiating pain down ...


Posted by webdragon on 2015-12-04 22:26. 4 comments. 405 reads
 
Had a visit with a new doctor this past week.
Seems most of my meds were a little overkill on the doses.
I also got to set down with someone and talk about the urge to self remove my ICD, I also got into a group that i'll be meeting with every week.


The headaches are almost gone from my daily life but i still have a few issues. i'm still tired all the time, i can't even sit down and watch a whole movie without falling asleep. and when i sleep i sweat like i am in a sauna.

I've had many people tell me that ICD wouldn't effect this but i never had this problem before the implant. Is this normal. I forgot to ask me new doctor about it because we were so busy with all the testing an such but i will next we...


Posted by CEGrundler on 2015-12-03 18:05. 7 comments. 421 reads
 
Greetings, all.

I’ve been lurking here the last few weeks, ever since the docs at long last pinpointed the reason, or at least part of the reason, behind the dizziness, random and inconvenient lapses into unconsciousness and relentless fatigue that had been escalating over the last few years. Apparently, my heart keeps pausing. So next Wednesday, I’m joining the cyborg uprising (getting my pacemaker implanted.) You’ll have to pardon me. I’ve been told I have a twisted sense of humor. It's a coping method.

Me: A fifty year old woman, in theoretically ‘great’ shape, on the surface, at least. I’m Dockmaster at a large marina — at least until the episodes began again, and I’m back on the No-Drive/No-wa...


Posted by sooz on 2015-11-30 04:49. 2 comments. 492 reads
 
Hello,
I got my dual lead pacemaker implanted June 30, 2015 and I have not been right since. I had to have the lower wire turned off because it was going crazy from any motion at all. My upper chamber paces about 45-58% of the time. I have tachy brady syndrome and they are having a hard time dealing with my tachacardias as I seem to have reactions to most beta blockers. I have severe asthma and the new one they tried Bystolic made my asthma terrible. Waiting to get on something else for that. One good thing is I never fall too low anymore! I also have diastolic heart failure. Since I got the pm my color is so gray or chalky most of the time and my skin is like ice to the touch. I had strep throat the week before pm implanted...


Posted by pattenld on 2015-11-28 18:18. 2 comments. 348 reads
 
Hello, I am 50 received my pm 3 weeks ago yesterday. I am not totally sure what to think about all this. I went to Mayo Clinic to have a Link Recorder implanted due to syncope issues that I have had since age 12. (no one seemed concerned about them until I fainted riding a motorcycle this past May). Anyway, had an episode 2.5 hours later and discovered my heart stopped for 9 seconds during the episode so I was told I needed a pm. I went back home the next day but not scheduled to see a doc at home until 12/21 but have a ton of questions and don't know where to turn. I am the only person I know that has a pm. So I hope you all can help a little... I have pounding in my chest at times, how long does it last and is it normal? Wh...


Posted by Di on 2015-11-27 23:18. 5 comments. 489 reads
 
I had a Pacemaker implanted 3 weeks ago and I have a few questions.
I have a feeling of doom that I can't get rid of. Is this normal?
Is an occasional heaviness in your chest normal? Does this eventually go away all together?
When I lay down to go to sleep, I can feel my heart thump and I can feel flutters. Is this normal?
I don't see the doctor for another 6 weeks or I would ask him these questions. You input would be extremely appreciated.
Thank you!


Posted by slickmv on 2015-11-26 03:10. 9 comments. 419 reads
 
Amongst the plethora of helpful advice I've gleaned from this online support group was that giving a nickname to one's implanted device would help one adapt.

Unfortunately, my personal creativity doesn't seem to extend to naming things. I hope I'm not as bad as George Foreman (five sons, all named George!), but the best I've been able to come up with for my BS CRT-D is "Tock," with "Buzz" on a distant second.

So I'm exposing my weakness in the prospect of getting some assistance: what names do you use, or have heard of, or can think of?

Help me Pacemaker Club, you're my only hope!

Posted by rolson on 2015-11-24 18:31. 3 comments. 318 reads
 
It's been a year now since I got my new friend on my shoulder. I never though I would feel as good as I do. I still have a few rhythm issues, but they are tiny and 90% controlled by meds. Some day I may have to have an ablation but for now I am enjoying life and the security that my heart is beating and my pacer is pacing and they have now become life long friends. I can not explain how much this club has ment to me. I have read postings all through many a long sleepless, counting every beat night. And you have all been an emotional life line as well as a wealth of information. I thank you do much. I do have one I don't know if there's an answer or not. My husband and I plan on becoming full time RVers by this time next year. Our ...


Posted by webdragon on 2015-11-23 23:33. 14 comments. 420 reads
 
how long does it take to get over the fear of having a foreign object implanted into your body?

i'm growing tired of fighting the urge to cut it out.


Posted by TinkerSierra on 2015-11-22 01:56. 0 comments. 315 reads
 
First of all, thanks to everyone for all the positive posts and valuable sharing of your experiences. It has really helped during many days of uncertainty.
I've had cardiomyopathy for over 15 years and an Ejection Fraction of 38-40% for the past 3 years. In April of 2014 I began to experience low pulse rates (35-40 BPM). I was living in Panama at the time and later moved to Ecuador. The cardiologists there tried to correct it with medication and finally I got a pacemaker. That didn't work either. Apparently I had developed arrhyhmia that was overpowering the pacemaker. Went to Florida in April, 2015 and spent 7 days in ICU. Had an ablation to cauterize the source of the arrhythmia and replaced the pacemaker with an ICD. My Ejection F...


Posted by Chynadoll on 2015-11-18 17:38. 1 comments. 208 reads
 
Hey Everyone,
I just got my pacemaker on 10/30/2015. I am exciting to learn about this club.

Posted by suzip on 2015-11-14 11:40. 4 comments. 410 reads
 
Had pacemaker implant in March 2015 and am feeling breathless a lot of time which I didn't suffer from PRE pacemaker. I find that I am out of breath more when I'm walking on incline and doing household chores. Anyone else finding this? or can anyone tell me possibly why?

Posted by athlete735516 on 2015-11-14 04:37. 3 comments. 417 reads
 
I know that this might sound like a strange/rude question but I was wondering if there was anyone who is.... younger on here. My doctors told me that because I am so young, that I don't have to pay attention to a lot of the pamphlets that were given to me because my body should just heal fine but I am kinda feeling like I'm kinda running into this blind because whenever I strike up a conversation it feels like I'm talking to my uncles or grandparents ( I honestly mean no offense, you are all wonderful people who have helped me through a lot lately). It's not like that is a bad thing but I kinda don't have the same limitations or questions as somebody who has surgery after their "prime" (again don't want to call most of you old people but a...


Posted by Prescottjo on 2015-11-14 03:58. 5 comments. 305 reads
 
Has or does anyone have panic attacks, anxiety or bad depression ? It's been 5 weeks since my Bi-ventricle implant. I cry without even knowing why. I've never had panic or anxiety attacks. Just wondering if anyone has ? I'm still healing and have some pain on site.



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