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Messages in Coping Forum



Posted by Shaz on 2010-02-24 16:16. 1 comments. 38 reads
 
Hi, - you may feel the pacemaker working - I think it's just getting used to it - I don't even know mine is there now.
I had the rate responder switched on at the pacemaker clinic and found this much better for me.

Posted by Suemarie on 2010-02-22 09:51. 22 comments. 271 reads
 
Since my PM implant on Feb. 2nd, I had so many ups and downs emotionally. Sometimes the whole idea of my PM just gets me down and it seems like such a battle everyday to stay positive. I read posts about people doing all sorts of activities and I feel jealous because I am afraid to even go shopping. It seems like I have lost confidence and don't trust my body. I'm always fearful something is going to happen to the leads or that they will find something else wrong. I'm afraid to walk my dog because he pulls or sometimes tries to take off after rabbits and that scares me. Went to the grocery store and was nervous being around all the people. Just wish I could be normal again (or not obsess about this so much). Ultimately, I know it's...


Posted by bzymom320 on 2010-02-21 17:36. 2 comments. 88 reads
 
I'm on day 13 since my placement of my pacemaker. I am sleeping like 15 - 20 hours a day and still extremely exhausted. My bp today is in the 85/40 - 95/45 range. I'm also getting a bad headache AGAIN!

Thursday, the doctor took me off of the prednisone and put me on decadron. I'm wondering if this could be causing the lower bp and headache. They do think that this is NOT PM related and I believe them. My husband wanted to know how my bp could be so low if my heart rhythm is doing fine. It's confusing to us.

On Friday I am being tested for Addisons disease. I don't know if I hope I have it because that will at least be an answer or if I hope I don't have it and they have to still look. So confusing but so tired of ...


Posted by Phillie Fred on 2010-02-19 22:23. 3 comments. 60 reads
 
Hi all i hope this note finds you all in good health and good spirits. This note is way off topic but i thought id share a quick story/advice to cheer you up and get your mind off of serious things. Im a big movie buff and was lucky enough to win 2 tickets for a sneek preview of the new movie Shutter Island on Tuesday,im a HUGE Martin Scorsese and Leo Dicaprio fan. There last movie together The Departed was my second favorite movie of all time! Anyway unfountantly i was in the cardiac ICU on Tuesday so i missed it,but i was released last nite and the docs gave me the go ahead to see it today. Long story short i still didnt feel great but i went anyway and the movie was GREAT!! I reccomend that if u have a chance to go see it please do so. ...


Posted by lrrn567 on 2010-02-19 10:32. 4 comments. 120 reads
 
I've had my PM for about a year and a half and can't understand why I'm so lax.
I have no energy and thought the PM would do the trick.
I fall asleep in my chair while watching TV and while I want to plan to get out of the house and go to line dancing lessons, my energy is soooo low. I haven't the drive to move out of my own way.
My sugar level is OK .
Does anyone have any ideas as to what is going on?

Posted by pacy0320 on 2010-02-18 19:10. 6 comments. 111 reads
 
Wondering if anyone has experience seatbelt discomfort when driving since getting pacemaker? I see an add on this site for softtouch for the seatbelt. Has anyone tried it?

Posted by Angelie on 2010-02-11 11:49. 4 comments. 110 reads
 
Just thinking about the wonderful founder of this site, and hoping that your atrial flutter isn't giving you fits.
Possibly, you've had your ablation just in time for the Winter Pacemaker Olympics...LOL.

Here's to you, Blake, and I do hope you're well.

-Angelie



Posted by Madelen on 2010-02-10 05:41. 6 comments. 113 reads
 
Hi All,

One week after the cardiologist called, I had a Boston Scientific dual-chamber pacemaker inserted for Sinus Pauses. That was last Thursday.

I have dealt with plenty of swelling around the incision and under the arm along with incision pain. I'm still very swollen and this Thursday, the nurse takes off the teri-strips and checks the incision. Inside are sutures, which will dissolve on their own.

I read this several times here, but for 24-years, I have dealt with FIBRO and I do not feel I am more sensitive to pain than anyone else, regardless of the new theory on this health challenge. If anything, I have a higher pain tolerance than most. However the restrictive movement is a problem. I had no ...


Posted by wenditt on 2010-02-09 12:54. 7 comments. 118 reads
 
I know that many of us have certain levels of anxiety when dealing with and accepting our pacemakers. That would be expected.

But am I learning the hard way that sometimes....its not just anxiety for anxiety sake!

Get your thyroids checked if you feel like your anxiety or panic attacks after the pacemaker seem like they are going on a bit too long. You might have a hyperthyroid! Hyperthyroid is often overlooked and doctors may lump us in with the "your just anxious" crowd. And it certainly might be true.

However...there is a possibility it's not. I have been hypo for about 2 years. Something changed in my body after the PM and now I am on the high end of the normal range. I am borderline hyper! I will kn...


Posted by wenditt on 2010-02-06 22:55. 2 comments. 95 reads
 
Today was a big day. After being kind of held up in the house for a while with all the tach / panic drama....I went into NYC to see a show with my aunts, cousins, sister, mom etc. I drove in and met everyone at the show. It was time to stand tall and show that tach and panic who was boss! LOL....

Everyone knew I was really a little nervous to head out though. They also know that my PM site in my opinion is still pretty ugly and I still feel awkward about it. I try to wear scarves over my shirts as much as possible to school so that the students don't see it. One did once...and I really didn't have an answer. So I'm just covering it up for now..until "it" and I are better neighbors! LOL

When I finally met up with every...


Posted by djs on 2010-02-06 22:16. 11 comments. 174 reads
 
I'm a little scared to post anymore...I'm not very familiar with all the terms everyone posts on this site. I don't know what my pacemaker is set at. I think the doctor told me he set mine at 80 (whatever that means). He said the bottom lead has been working continuously since the pm was put in. I guess that is the low setting and probably my resting heart rate is lower than that.

I am still having trouble adjusting to the fact that I ACTUALLY have a pacemaker. I thought I was perfectly healthy. I was taking care of my Mother who had parkinson's. I didn't want her in a nursing home, so I stayed with her 24 hours a day. On the weekends my brothers took turns taking care of her so I could go home with my husband. I starte...


Posted by Suemarie on 2010-02-04 22:04. 11 comments. 333 reads
 
Hi. I am new and sure could use some words of encouragement or support. Just had my PM surgery 2 days ago. I am feeling a little overwhelmed right now and confused because when I left the hospital, the tech tested my pacemaker and said I am 100% dependent and it freaked me out. I have two leads. He said it should last for 7-8 years, but I am wondering how it possibly can when I am 100% dependent. Before I had this done, I had bradycardia but I really didn't have super bad symptoms, and now all of a sudden I am 100% dependent. I thought my heart was going to do some of the work. Also, I have a lot of anxiety and have had most of my life, but now it is even worse. Today I almost fainted. I'm scared if my device fails, my heart will...


Posted by Peacemaker on 2010-02-04 11:54. 7 comments. 104 reads
 
Hey Hey,
Well it's been 3 weeks now and I am beginning to have my doubts. Mornings are the worst. I just can't seem to get going anymore. I stay active but man its a drag sometimes. It's not the meds because I don't take any. Anyway, I just wanted to vent a little frustration. I am concerned though that the PM looks like it has moved some. I am suspecting that may be normal but I thought I would check on here and maybe get some feedback before I called the doc. to check. You people that speak from first hand experience have helped me more than you can ever imagine. Nothing else I have searched anywhere can compare. Thank You!
Dwight

Posted by pacergirl on 2010-02-03 22:38. 4 comments. 137 reads
 
I was just sitting here feeling a little blue and I began to think well, isn't that something. It has been a rough year for me already. It's only Feb. 3rd and I have been hospitalized twice and feel like &*(%$! Poor little me.....

So I went to the member list and pulled up some messages from some very special people. DairyPrincess and Peter.Nash. I selected their last posting to read again. I found that even till the end they were positive and happy. They were encouraging and so thoughtful of others. Reading their post gave me some new perspective! No more poor little me! What a dishonor to my friends to be feeling sorry for myself!

I can't help but think that they would each feel so pleased to know that even after ...


Posted by vernalane on 2010-02-03 04:19. 2 comments. 60 reads
 
Went out yesterday and it was extremely cold, this seemed to affect my shoulder where my PM is! Is this usual or is it because it's a new thing to me, or is it me being super sensitive again??

Apart from that I am beginning to feel better in myself, still quite sore, but certainly not as washed out as I was!



Posted by lucy.ethel on 2010-02-02 01:33. 3 comments. 102 reads
 
Hi All! I just want to reiterate what an AWESOME group of people you have been since my pacer implant in Nov 09. I couldn't have made it this far without all your support and kind words along the way. Here's my new issue! :)

Does anyone else get bothered by the bumpy or rigid edges around their pacemaker casing? I can't tell what the bumps are... first I thought they were where the leads were coming out, but it seems bumpy almost all the way around. I know it's probably still settling in there, but does show and stick out. It's been over 2 months now. Thanks for any words of wisdom!
Leah

Posted by Angelie on 2010-02-01 20:41. 11 comments. 171 reads
 

George Carlin's Views on Aging

Do you realize that the only time in our lives when we like to get old is when we're kids? If you're less than 10 years old, you're so excited about aging that you think in fractions.

'How old are you?' 'I'm four and a half!' You're never thirty-six and a half. You're four and a half, going on five! That's the key.

You get into your teens, now they can't hold you back. You jump to the next number, or even a few ahead.
'How old are you?' 'I'm gonna be 16!' You could be 13, but hey, you're gonna be 16! And then the greatest day of your life! You become 21.
Even the words sound like a ceremony. YOU BECOME 21. YESSSS!!!

But then you turn 30. Oooohh, wha...


Posted by hammergirl on 2010-02-01 14:56. 2 comments. 158 reads
 
My daughter who is 56 years old and in great shape (she thought) is a yoga gal, pilates gal, a runner and walks her 2 dogs twice a day all of a sudden felt weird, out of breath, heart palipitations, fluttering of heart -it was getting worse so one night last week when she went to bed about 40 minutes later she shot up in bed and the whole room seemed dark and darker. She woke her husband and said she needed to get to the ER right away - he took her to a hospital near home that specializes only in cardiology. They examined her and said she was okay - maybe it was a panic attack - she was about ready to be taken off the heart monitor when oops her heart starting dropping and then going up then dropping so they couldn't figure that out and th...


Posted by vernalane on 2010-01-31 10:03. 9 comments. 189 reads
 
Hi, Just had my pacemaker fitted, and i feel lost, was only diagnosed in december, i thought pacemakers were for old people. It seems to be so routine with the hospital, but i'm just floundering around trying to make sense of it all. Will i still be able to feel it when it has healed in 6 weeks? will i just carry on as if it is not there? the staff say life should be normal, would like to hear from other people who have been where i am.

Posted by mhil on 2010-01-30 21:22. 9 comments. 138 reads
 
Hi folks.....Just a quick question for now. Has anyone worked with a wii game console? Thought I would hook one up today, but read warning about use with pace maker :(((( It is Saturday so cannot contact doc with question.
You know, it sometimes helps to have distractions.
Would appreciate any comments or advice.
Thanks.



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