St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by islandboy on 2014-09-28 19:38. 2 comments. 202 reads
 
Had a Medtronic for over a year now but I continue to get ectopic heartbeats. However the Medtronic has kept me chugging in spite of them. I suspect it has helped prevent a fib, but I'd like other pacemaker people to give me their experiences with their pacemakers and arrhythmia.

Posted by kmom on 2014-09-27 11:38. 5 comments. 346 reads
 
I've been doing fairly good since my pm but still dragging at times. last time I went in in Aug for check up they turned down the rate response a little to see if it would help so far haven't noticed much difference. but lately I've been short of breath more and having a lot of palpatations at night although my rate ISN'T really high. I do have spikes in the low 100's and 90's --I have afib but dr. said it was only about less than 1% of time. and am on medications for that incl. anticoagulant (Pradaxa) i'm just wondering if i'm going into a-fib more often now or if it could be something else. don't get my wrong I do feel much better with PM (SSS) but I hate this "dragging" I didn't feel like that at first. what could they have possibly don...


Posted by Jacatak on 2014-09-27 00:32. 4 comments. 233 reads
 
Hello

I received my pacemaker (Medtronics dual chamber) 9/9/2014 after two syncope episodes. One in February 2014 while driving (no injuries/damage) and the other the beginning of September. After the most recent fainting I was sent to ER and then admitted to hospital. After several tests it was determined my hearts electrical system was not working properly. I initially went through the "why me" stage and some tears. I am coping and adjusting. I have had my two week device check and fortunately no complications.

I am glad I found the pacemakers club. The doctors and other staff have been okay about answering my questions and giving me information but it is so much better when you get information and advice from indiv...


Posted by b1gm1ke on 2014-09-18 15:48. 13 comments. 376 reads
 
So, I was told this week that it looks like a pacemaker is in my future. As I am new to this I am a little scared about the whole thing. I am a 35 year old who has served 17 years in the military and has always been active so I am worried that this will change my life drastically. I found this site and I am looking for some people with experience that can guide me through this process. I have a low resting heart rate of about 45bpm and have been dealing with being tired all the time. Will a pacemaker improve my quality of life or make it worse? Thanks!
Mike

Posted by Jasperlabrador on 2014-09-18 04:16. 7 comments. 250 reads
 
I am at the moment travelling in a motorhomes in Australia. Quite a distance from a hospital.
All I want too know is - does a defibulator give a lesser shock than the "kick in the chest" I am not sure if I have dreamed that I have had a shock.
ARE THERE DIFFERENT LEVELS OF SHOCK.

My device is a St Jude 1207-36

Any info would be most helpfull

Posted by electrodila on 2014-09-16 20:32. 7 comments. 221 reads
 
I'm still trying to understand not only what I'm feeling, but how I'm feeling three weeks after having had a St. Jude CRT-D implanted after v-tach issues (CHF) caused syncope and an eleven day hospitalization.

The first few days, I must have been running on adrenaline and endorphins. After about a week, I've come to feel insubstantially better for having gone through the process. Of course, I'd probably not be here at all, and quite soon, if I hadn't had it done, but I still feel like Peggy Lee singing "Is that all there is?"

How long does it take, in general terms, until you can come to terms with having this thing stuck in you, if only getting used to the itchy, strange feeling? Do you generally find that, in ca...


Posted by Duke Heart Patient on 2014-09-15 12:01. 10 comments. 309 reads
 
How do you deal with stress and anxiety ?

Posted by Tony G on 2014-09-15 10:51. 4 comments. 184 reads
 
Hello, I just had my two lead pacemaker, replaced with an ICD. Sparky I has only been in me for a year and a half and I would like to donate it to an organization that can give it to someone else. Does any one know of ant such organizations?

Thank you,
Tony

Posted by turn916@sympatico.ca on 2014-09-14 18:51. 12 comments. 404 reads
 
Hi to you all. I am new to this just 2 weeks ago I got my pacemaker. I cant seem to cope very well. I cry a lot and wonder what I did wrong to have to have this. Some people have said its because I am over weight and that makes me feel even worse. Is there any light at the end of the tunnel. I have what is know as tachy-brady syndrome is there anyone else out there that has this. I feel so alone at the moment and cry so much and feel really tired. Please send me some feed back. Thank You all.

Posted by TeePee on 2014-09-13 18:57. 1 comments. 177 reads
 
Hi
I had a dual lead put in 05Aug after 28sec flatline being the final syncope captured by the hospital. I was such a shock as I had no idea why I had passed out a few times running up to that. UK based so I don't understand some of what is being said here but I have seen a lot of comments and they match how I feel especially about the bra straps. I thought it was me being daft. What I am still trying to cope with is the fact that I have to rely on the info live forever now. I was 60 this year so will I just have 1 left and then they won't bother after that? I have returned to desk work but still find it hard to concentrate all day. And have only just managed to go up stairs in a oner. Does it get better? Or is this it, just doing not...


Posted by SF32618 on 2014-09-13 14:15. 2 comments. 154 reads
 
H, had a heart attack 2 yrs ago, they put in 3 stents (bypass wasn't an option due to other health issues) things went great for a year then became blocked. They reopened stents in march, by may was no better. This time they talked me into a crt-d. had it installed in end of May. Now 4 months later, still experiencing fatigue, EF 30, someone please tell me it will get better. the drs say give it time, but isn't time the only thing we really don't have.

Problem today, however, is I had lower right side back pain when I had the heart attack, and have been experiencing it again but only when I try to do normal things (today was dustmopping my floors. I do work everyday, but have an office position so I can go in as...


Posted by bcates on 2014-09-12 10:08. 6 comments. 242 reads
 
I am getting a new 2 lead pacemaker for bradycardia with 3rd degree heart block next week. What do I have to look forward to next week?

Posted by mrsb on 2014-09-12 01:07. 9 comments. 359 reads
 
Hello, I'm at 3 weeks post pacemaker. I feel fine but I have a hard time with my left arm. I can't reach across to my right side with it cause I feel the pacer in my way, also I can't lay on my left side..again I feel like I'm squishing the pacer . is this normal and will it go away. And women with pacers, what's the scoop on bras?? My pacer is exactly where the straps go.

Posted by Stephanie1983 on 2014-09-11 08:10. 5 comments. 209 reads
 
Hi!
I just found this site! I am 31 and have had a pacemaker for 15 days now. I have so much pain in my upper back on the left side, I think this is from my lack of movement and anxiety about moving my arm too much. I am also feeling like it has just NOW hit me that I have a pacemaker, and am feeling a bit down. I dont have the energy to start work yet and am wondering when I will feel back to normal. Is it common to experience sudden feelings of being sad and needing reassurance that everything is ok??
Thanks! S

Posted by Pandabear on 2014-09-10 06:10. 15 comments. 297 reads
 
Since my surgery the biggest reaction from people seems to be that I'm 38 and in their minds to young for a pacemaker. My Dr assured me age has very little to do with reasoning for a pacemaker. He informed me that he has in fact just placed a pacemaker for an 18 year old woman who was otherwise perfectly healthy. Does anyone else receive This type of shock from people? I admit I was terrified and thinking I was to young for a pacemaker when I was told I needed one. I've obviously educated myself to know better.

Posted by Greenhemi on 2014-09-09 18:18. 8 comments. 195 reads
 
I've had a ICD 2 lead for two years now and still can't get my mind around the fact that my heart is weak. EF is 30. I kind of wish I would just have a major HA and be done with it. Just tired of worrying about when the next event will come. Does anyone feel this way? How do you keep on when you know what will come sooner than later?

Posted by lfslshlps on 2014-09-09 02:03. 0 comments. 150 reads
 
Hey Everyone.

I used to creep on here over the past few years. When I was 2, I had my first open heart surgery. Unfortunately, my heart went out of sinus rhythm, and was very slow for my age (approx 70bpm). I had my first pacemaker implanted a week after my open heart surgery.

When I was 4, my pacemaker was replaced.

From 1989-2005 my pacemaker was completely on backup. It never paced. During my implantation when I was 2, my heart went back into sinus rhythm and rate (turns out there was some scar tissue that was removed by the leads).

In 2005, I was diagnosed with a serious case of MSSA (Methasillin Sensitive Staphylococcus Aureus). Although treatable with antibiotics, it is still just as vicio...


Posted by ekmiller77 on 2014-09-07 17:27. 6 comments. 191 reads
 
I had a st Jude pacemaker Implanted in early august. It was an emergency, so something I wasn't expecting or mentally prepared for. While I can tell I feel some better, I'm still having trouble with a low energy level and shortness of breath when trying to walk, especially up slight hills. I've been told the mine is set at 60, but my heart rate seems to stay around 88 causing me to feel fluttering and nervous. My bp has gone up so the dr continues to increase my meds. Does this sound normal? It's all so new for me that I'm just not sure what to expect. Was so glad to find this support group of others who have lived with the device. Thanks for any suggestions or comments. Emily

Posted by NSM86 on 2014-09-07 07:42. 6 comments. 289 reads
 
HI,

My name is Neal and I currently live in Perth WA. I am 28 Years old and I recently went into complete heart block, which resulted in a Pacemaker being fitted.

It’s a long story but basically I had what the doctors believe was 15 seizures on Australia day (January). It was very strange I would pass out and apparently go ridged and when I came around I was sick. I could hardly move because if I did I would have another “seizure”. I saw a neurologist and had a EEG and was diagnosed with right temporal lobe epilepsy. Life went on and I had what I thought was another 15 seizures in 1 day on March. This time I stayed at home and rode them out as I didn’t see the point in going to hospital. Literally 3 weeks ago...


Posted by hillbhil on 2014-09-06 22:27. 1 comments. 93 reads
 
I got my PM on Tuesday after having a reveal monitor put on 8-4. I had been fainting and falling a lot since February. I broke ribs, fractured hip twice, chipped teeth and stayed bruised all the time. I quit driving because I never knew if I would faint when I got out of my car. The reveal monitor was able to tell my heart rate was dropping to 19, 20 etc. During the day and then I would go into afib have been on medication for two years for this. I 've had three cardioversions. Lots of test. Thank goodness for the reveal!! So far I am doing well. Excited that I can walk across the floor and not feel lightheadedness!!



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