St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Butterfly19 on 2016-03-08 17:06. 3 comments. 308 reads
 
Hi I had my PM fitted 22nd December 2015 and was told I would have AV Nodal Ablation 6 weeks later. it is now 11 weeks today and I still have not heard about the ablation. I have AF which is why I had to have the pacemaker fitted. I have rang hospital and have left messages but they have not got back to me. I am fed up and am just waiting each day for the postman hoping for an appointment. I am also really worried about having the ablation, does anyone know how long it will take and are you awake for it?
Butterfly19

Posted by RoyS on 2016-03-08 12:37. 1 comments. 301 reads
 
Hi
I am 70 yrs old and new to this forum. I had a PM fitted about 13 years ago after about 3 years it was decided that I needed a defibrillator. I drew the short straw and picked up an infection. After 3 weeks in hospital they got it under control. When my unit was last replaced the infection raised its head again with more drugs we got it back under control. I am now told that I need to have the whole lot removed as one wire may fail and the battery is getting low. I am fully depended on the unit as it paces full time and was wondering if getting an infection is common. I am getting a bit nervous as the unit change gets closer. Has anyone had all wires removed and new ones installed. I am told they hope to clear up the infection b...


Posted by mick655 on 2016-03-05 21:07. 8 comments. 421 reads
 
I am pacing 100% with a 2-lead Boston Scientific PM. I was tested and it seems the constant pacing on one side of the heart is causing a decreased ejection fraction. I consulted a respected expert whom I feel I can trust. He says I need a replacement 3-wire PM to equalize both sides of the heart. I am frightened of getting a new pacemaker because of the potential complications -- like that third lead falling out since it is only held in place by gravity. . I live on Staten Island, and he is in Manhattan. I fear something going wrong and having to go to local hospital -- or having that dreadful feeling when PM fails. I have 2 years left on current 2-lead battery and am dreading making the decision to go in for replacement. (I also have kid...


Posted by Snowy on 2016-03-05 12:09. 10 comments. 538 reads
 
In January 2015 I passed out for no reason and came to wondering what had happened. I went to the cardiologist who did some extensive tests and I passed out again on the stress test but he could not find anything that caused this. Six months went by and I passed out again and it was put down to having a hypo. Another 3 months went by and I passed out again twice in one day was taken to hospital and after all the tests nothing was found and I was sent home. Jan 2016 two weeks later I passed out 5 times and while in hospital all showed nothing but I refused to go home until they found something. Then a doctor picked up something on the monitor and after 2 days I was in critical care. I had to have a pacemaker to survive so one was immed...


Posted by rhiggins1020 on 2016-03-04 15:40. 7 comments. 377 reads
 
Hi. I am 70 yrs old and this is my first posting. In 2010, when I was 64 battling a bad back that finally resulted in surgery, I also found myself battling an auto immune disease called Giant Cell Arteritis. GCA is one of the Vasculitis diseases. This GCA can attack the aorta and did. I was found to have a thoracic aneurysm that required 11 hours of successful surgery In December 2013 I passed out on a NYC street. As a result of that I had a pacemaker implant January 2014. Except for the normal depression things went well until a couple of weeks ago when I had my annual PM check up. My pacemaker utilization went 40% to 100%. I guess I am now pacemaker dependent. When I was told that, it felt like I took a punch in the stomach. ...


Posted by Batteriesincluded on 2016-03-01 20:02. 4 comments. 385 reads
 
In 2015 I had a spell of illness where I was Blacking out , Dizzy , Spells , in October 2015 my partner found myself on the dining room floor , I had blacked out, could not remember doing this
I was taken to hospital where for several hours they performed tests.
They could not find anything wrong so they discharged myself, but In November 2015 , I awoke feeling very unwell , I was taken to hospital where they did an ECG , they said this was ok but two minutes after , my heart stopped and had to be resuscitated.
they then performed more extensive tests where it found that i had a slow irregular heart beat , it was going as low as 30 beats per minute
result was a pacemaker being fitted , I am coping with this but the comp...


Posted by jsne on 2016-02-24 09:08. 1 comments. 237 reads
 
Had another 24hr monitor on a week ago for reoccurring symptoms, but typically had a much better day and have been feeling better most of the time since then. My exercise tolerance is still worse than back in the summer after successful adjustments.
Has anyone reacted badly after coming off meds. Was on verapamil 200 x2/day, stopped just before New Year hoped to go back to how I was but ended up feeling truly awful again. Started feeling better about 2weeks ago.
I have lost so must confidence and feel so despondent as I had so looked forward to getting going again. Not sure if this is how I am going to be, couple of weeks/month feeling good then back to rubbish.
We have a last had some lovely weather in Scotland and I can't ...


Posted by mbisoux on 2016-02-24 01:00. 3 comments. 287 reads
 
I got my pacemaker implanted two weeks ago. I was also started on Metoprolol, Flecainide and Warfarin. My first week home I was doing pretty good, I just felt palpitations. But this week I have had some dizzy spells and lightheadedness. I go back to see the cardiologist on Thursday and perhaps he will suggest some adjustments, but I was wondering how many of you -- if any -- have experienced dizzy spells from either the pacemaker or the medications, or both. It's a little scary because dizzy spells are what got me to the ER (and subsequent pacemaker) in the first place. Thanks in advance for giving me your experiences.

Posted by Mbisoux on 2016-02-23 02:27. 2 comments. 263 reads
 
I had my pacemaker implanted two weeks ago and I was put on Metoprolol and Flecainide for the Afib and Warfarin to prevent clotting. I have felt weird -- occasional palpitations -- that I assume means it will need to be adjusted when I go in for my first checkup.

And today, I had two episodes of lightheadedness or dizziness. Kind of scared me.

Is all of this normal for the days and weeks right after the implant? Is it possible that on Thursday when I go in for my first checkup the cardiologist will do an adjustment that will help this? Or could it be the Metoprolol or Flecainide or Warfarin since all of this is new to me? I am interested to hear others' experiences.
Marilyn

Posted by annie49 on 2016-02-21 03:24. 3 comments. 346 reads
 
PM fine (Mobitz II heart block), and no current issues except multiple runs ectopics which i think is due to menopause (I'm 51). I'm very anxious by nature and manage this tendency much of the time (currently on Prozac).

My question is a very general one: I just could really use some reassurance that anxiety and stress (I'm a schoolteacher with an approaching school inspection and various current family stresses) won't damage my heart/PM. I'm aware that there's an irrational element to this thought, and that we can't just edit out the negative side of life because we have a PM! But I could just use some more concrete evidence or thoughts on this topic, so that I can hopefully diffuse this thought that I'm going to harm my heart....


Posted by Brydie on 2016-02-19 21:14. 2 comments. 219 reads
 
I joined the PM Club last week and want to thank you all for giving me peace of mind. Not knowing anyone who has had a PM fitted, having a forum like this has given me peace of mind, encouragement and a sense of normality. Reading your posts reassures me to realize that it is normal to have the odd day where you feel really down and I need to remind myself to lift my spirits and continue the fight. It can a very daunting journey and even though I have a very supportive husband, your forum gives me that little extra boost to continue to smile and make every day a winner. Thank you all again.

Posted by mkyah09 on 2016-02-19 14:31. 3 comments. 266 reads
 
My question to u guys
.1 How can i support my dad, what should i do?
2. Are there anyone in the same boat and did something different which improved their EF

This is a cross post, i first posted in complications. But i beleive it fits in coping.

Posted by briakelly on 2016-02-19 00:47. 4 comments. 327 reads
 
I am a mother who is under 30 who had a dual lead pacemaker placed in 12-04-15. I still don't have a definitive diagnosis but they are thinking sss. I am still sore I am emotionally a wreck. My beta blockers are also making me tired. Is there any way to do this and not feel like I am unstable and like I am failing and will I ever get my energy back?

Posted by Al on 2016-02-16 22:31. 0 comments. 233 reads
 
From the comments I received it has become clear that by setting my PM to rate-responsive pacing would be a positive thing to do and this pacing would most likely resolve the difficulties I have been having. Now I hope my cardiologist would be able to tune the pacing in an optimal way. Thanks a lot.

Al

Posted by Al on 2016-02-16 03:20. 5 comments. 363 reads
 
My PM (October 2013) manages the low end (bradycardia) of my sick sinus syndrome (SSS). The high end (SVT) appears intermittently. It is handled with metoprolol. Can someone with SSS have a normal life? Can anyone give me some ideas or options before I make an appointment with my cardiologist? Thanks a lot in advance.---Al

Posted by mrsgumbo on 2016-02-13 07:28. 5 comments. 368 reads
 
I went for a walk and started feeling faint. The first shock startled me. I called the doctors office then screamed as the second through sixth shocks came with stronger intensity. Thankfully people were around to call 9-1-1 and hold me through the pain.

At the hospital my device was interrogated. I was told that defibrilator saved my life. I was hospitalized and put on meds to get my heart in normal rhythm. Terrifying.

How do I cope now?


Posted by Grandadbren1 on 2016-02-12 23:22. 0 comments. 192 reads
 
I have now been under an ep since 28th November who turned my pacemaker down completely it will not come in now unless my heart rate drops below 50 also he reduced beta blocker turned rate response off and af program, the improvement was more or less felt within 5 minutes . I have just been to see him again for second time and he lowered beta blocker again to 2.5 but I seemed to go into af a week later so I have increased dose to 5 mg again. It seems my feeling so unwell before was due to being overpaced and over dosed with Breta blocker. Just updating so that if anyone else have nag same problem as I was having may have a resolution .

Posted by Radders on 2016-02-08 09:37. 2 comments. 322 reads
 
I am 70 year old fairly fit new boy who had a pace maker/defib fitted last Monday. I like to walk briskly but am nervous about getting my heart rate too high. Also when I set off walking, I puff a bit for the first 5 minutes and then am OK. I worry about the defib firing off if I have to chase my granddaughter

Posted by jsne on 2016-02-07 16:38. 5 comments. 441 reads
 
Does a 24hr monitor pick up PMT and or Wenckebach, Had numerous monitories before PM incursion and supposedly nothing really showed up, the same back in the summer when I needed a treadmill and 12lead test to get a diagnosis then my settings sorted.
But I am gutted to being back to square one again, zero exercise tolerance and all the tightness and discomfort in the chest, lack of sleep etc .Concerned that nothing will show up. Going to 'phone the technician in the morning and see if she can give some help.
Has anyone felt really good then reverted back again? not on any meds as they haven't helped so far.
Can't stop crying, My next appointment is July and not sure if I have the energy to keep trying to "get on with it any ...


Posted by res519 on 2016-02-03 17:53. 6 comments. 559 reads
 
Hi all. I was so happy to find this group. I had my pacemaker implanted at the end of November. Physically, I feel great. Better than I have in months/years. Emotionally I'm a wreck. I'm so anxious about the device all the time - whether it's going to stop working or whether the leads will fail ....... Any time I feel different or sick, I attribute it to my pacemaker functioning incorrectly. I have never had cardiac problems in my life nor did anyone in my family. The symptoms I had were always attributed to something else as my slow heart rate was intermittent for some time. Nobody ever caught it when it was happening. When it was finally discovered I was in complete heart block - scared to death. Are my feelings "normal"? Ha...




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