St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Synch on 2015-07-09 17:43. 5 comments. 288 reads
 
Hello everyone,
I had a dual lead Boston Scientific pacemaker implanted 6/20/15. Follow up appointment with cardiologist/EP on 7/2 and everything looks good;however, I don't feel good. I have 2nd degree heart block. No shortness of breath just fatigue and feeling of near syncope and transient dizziness. I am taking 25 mg HCTZ/day only. My expectation was I would feel at least incrementally better 3 weeks out....comments would be appreciated. I enjoy this forum and appreciate all of you for participating..Kudos!

Posted by Rhonda99 on 2015-07-07 22:32. 5 comments. 297 reads
 
New pacemaker as of two weeks ago. Reason unknown. Heart rate dropped to 38 to 40 and was very short of breath. I am extremely active and my heart cath was clean. Just so frustrating that not sure why it happened. I have to be off work for 8 weeks and Im stir crazy. Just venting. :)





Posted by Beetlefeet on 2015-07-07 15:56. 7 comments. 313 reads
 
Hi there, I am 3 months post op dual chamber PM at age 44. Sudden onset of heart block and had an episode while I was driving on the highway. overall I am feeling much better mentally, but I still have my moments of PANIC that set in. I am otherwise healthy, no cardiac problems other then the heart block which is now fixed with the PM. I am back to normal physical activity, but still have moments of panic.. feeling stressed out and wondering if I'm going to be okay in the long run. The drs have assured me that there ins't anything else wrong with my heart.. all testing has come back normal and that I will slowly get used to the PM and not second guessing every time "something doesn't feel right". wondering if anyone else has had these ...


Posted by cardiac15 on 2015-07-07 15:54. 0 comments. 122 reads
 
Hi,i had a dual lead pacemaker implanted in feb.this year and i just recently have been experiencing a kind of burning sensation in my breast.it's not there all the time and the sensation goes as quickly as it comes.Just wondererd if anyone else has experienced this.I also had an emergency cardioversion three weeks ago as my pulse rate would not go beneath 140 bpm.May be this could be the reason for the burning.

Posted by Macabr on 2015-07-06 10:33. 9 comments. 232 reads
 
Hi all getting pm implanted tomorrow, I‘ve been calm about it but now I‘m getting more and more anxious. How did you guys cope? It's very surreal at this point.

Posted by AVJim on 2015-07-06 01:08. 4 comments. 232 reads
 
It's been 10 days with my PM.
2 booboos: I forgot and went in the pool over the weekend. I didn't swim, just sat there to cool off. That shouldn't be bad, right? (chlorine etc.)
Number 2: Yesterday I was putting moisturizer on my daughter, who is quite tall. That means my arm was a bit up. Sort of forgot to protect it, and really rubbed in the lotion hard and fast. Right away it started to ache around the PM. Might I have pulled something out??

Posted by OxfordMummy on 2015-07-05 15:24. 4 comments. 205 reads
 
Hello!

I'm very glad to have found this site at a time of need.

My son had a pacemaker fitted following complications from surgery at 4 months old; he was born with Tetralogy of Fallot. He developed 2:1 block which worsened and they decided to fit a pacemaker when he went into complete block with HR around 30 bpm. Generally speaking the last 18 months have gone well with few admissions. We are now on 12 monthly checkups.

I am suffering at the moment worrying about what ifs: what if the battery fails or a lead becomes disconnected. Our local hospital cannot perform paediatric cardiac surgery and I really worry what would happen to him if one of the above scenarios happened. Also what if the local unit ...


Posted by Naomi on 2015-07-01 21:23. 3 comments. 251 reads
 
Did anyone else suffer from pain just below their
Pm? I'm getting throbbing/stabbing pain just
below my pm that lasts about a minute that comes
and goes. At times so bad it takes my breath
away. It just started today my pm was put in
on May 12,2015.
Any insight would help! I can't go to my doctor
as I've lost my health insurance and will not have
coverage again until September.

Thanks everyone!
Naomi

Posted by AVJim on 2015-06-30 06:20. 3 comments. 253 reads
 
Hi all! I posted before, and had sympathetic answers to my worries. PM since Thursday.
Is it possible that I am suffering from (little) panic attacks, which mimic or are almost identical to the original symptoms of breathing problems and dizziness?
It feels like bursts of too much (or too little) o2 or Co2 in the lungs, and going directly to my head.
I don't trust myself to even go outside to the doc at the moment...

Posted by Radio on 2015-06-23 09:00. 7 comments. 297 reads
 
Hi folks, my name is Billy I'm from Australia am unsure what to expect from this group. I've been wired for 6 months am still realizing what happened to me. Though in joining this group I'm sure not alone. But I'm not embarrassed to admit I'm scared.
Cheers Billy God Bless

Posted by Zackjeff on 2015-06-21 15:40. 2 comments. 242 reads
 
Hey everyone, i'm 23 years old and just a week ago felt like the most healthiest person alive until i blacked out at worked and was tested and came back to have Brugada Syndrome. I have had an pacemaker placed in to help with the condition but i have had to lose my job because im unable to do industrial work and that's all the kind of work i know. I am an father of 3 and im just worried now on how i will be able to provide for them and also do for myself. Do anyone have any good advice for me?

Posted by bday on 2015-06-20 11:09. 1 comments. 166 reads
 
thank you for your comment - will be sure to use the left arm gently - have two doxies most curious about incision below left collarbone - being very careful to keep little noses away - so glad I found this club-helps tremendously as getting the pacemaker was a real shock

Posted by Cmojo on 2015-05-16 03:06. 0 comments. 328 reads
 
I have a long history of heart problems, starting when I was 9 years old. With WPW. Had an ablation for this which then caused complications - heart block. Had pacemaker fitted for this in my late thirties. Leads broke and hospital said my heart was working ok so pacemaker was switched off. In 2013 I developed atrial fibrillation and had an ablation for this in July 2014. This was a success and I came off all medication in December last year. All was fine until two weeks ago when I developed an irregular heartbeat either very fast or very slow. Was rushed to hospital when I became unconscious. Heart rate then went extremely slow 50 - 0. Pacemaker was fitted for total heartblock. Current specialist says one thing led to another. Hopin...


Posted by 0300hours on 2015-05-14 20:54. 2 comments. 302 reads
 
I have had a PM in my left chest for five weeks. As swelling has gone down in my incision site, I have noticed that the left side of my neck is swollen. It is not tender, just slightly swollen from the incision up to under my chin. Is this typical? Have others noticed this and will it disappear soon?

Posted by rossjackson01 on 2015-05-13 16:46. 3 comments. 185 reads
 
Nor sure if moderators will allow. My apologies if I have got it wrong. Please delete if I have.

The following pdf's are available from the British heart foundation, and many are excellent in explaining in reasonably plain language the reasons for Pacemaker, installation and use.

https://www.bhf.org.uk/publications?keyword=heart+pacemaker&lang=english&showAdv=1

Hope these helps others as much as they have helped me.

Regards to all.

Ross

Posted by KJ on 2015-05-13 08:41. 3 comments. 283 reads
 
Hi- I'd appreciate some advice. Had dual pm fitted 2 weeks ago- wound healing fine but just not sure if what I am feeling is 'normal' after pm. I still feel very tired- mostly in mornings and seems to improve as day goes on. Feel light headed and shaky a lot of the time with fluttering sensation intermittent. Managing to do light household chores but it feels as if have done much more afterwards. Slightly breathless at times. Is this as good as it gets- or do I need adjustment? 1st check up end of June. Brain feels foggy- almost like blood sugar levels are low- but I'm sure they aren't. Thanks for any words of wisdom.

Posted by suzip on 2015-05-08 02:23. 2 comments. 253 reads
 
It is now almost 8 weeks since my pacemaker implant and I wondered is it normal that when I first get up in the morning, it is still very sore around the incision site and it feels like the flesh is tight and tearing inside the wound when I start moving around for about 10-20 minutes. It also feels slightly inflamed and tender to touch, The site is sometimes slightly pink in colour and not red. It is making me feel a little worried something is wrong?

Posted by hbl on 2015-05-07 22:19. 6 comments. 280 reads
 
Was sitting at my desk and noted my pulse rate of 55. Low setting is at 60. Called Dr and read comments here so no big worries. Then in short order rate increased noticibly to 100 bpm. Dr said something in hospital that I understood to mean pm would kick in at 100 bpm when needed. Nurse said this was my normal heart rythm kicking in. Confused??

Posted by glowiegirl on 2015-05-05 20:02. 4 comments. 318 reads
 
I've had my new CRT-D for 3 months. The first two months I felt better--then I had what I "think" was a defib on April 22. My ears buzzed and the room spun around. Lasted about 20 seconds.
I go to the doc tomorrow for a check-up. I feel like there is a claw in my chest tightening and I am dizzy and often out of breath at night or during the day if I walk across a room. The morning seems fine but I seem to swell up by the PM. Yet I can go country western dancing and sometimes finish a whole dance. I do stop dancing if I feel weak or dizzy.
My questions are:
1. Was that a defibrillation I had?
2. Will the exercise of dancing hurt or help me?
3. Should my doc be adjusting my CRT tomorrow after I tell him my sympt...


Posted by jsne on 2015-05-04 06:10. 0 comments. 184 reads
 
Hi Folks.
Just back from a week in Tuscany first trip with PM. Felt quite important going through airport staff both ends very friendly. Managed to do some quite significant walks (due to guide book not being very accurate) in spite of still feeling not right.
Handed in my 3 day monitor two weeks ago so hope to get an appointment soon. So frustrating that I feel so close to being well then back to awful do think I have lost confidence, strange when you think the PM should make you feel "safer" still hols were lovely and a wee drop of Chianti for medicinal purpose's .
Roll on check up.
Cheers Jane



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