St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Radio on 2015-06-23 09:00. 7 comments. 272 reads
 
Hi folks, my name is Billy I'm from Australia am unsure what to expect from this group. I've been wired for 6 months am still realizing what happened to me. Though in joining this group I'm sure not alone. But I'm not embarrassed to admit I'm scared.
Cheers Billy God Bless

Posted by Zackjeff on 2015-06-21 15:40. 2 comments. 218 reads
 
Hey everyone, i'm 23 years old and just a week ago felt like the most healthiest person alive until i blacked out at worked and was tested and came back to have Brugada Syndrome. I have had an pacemaker placed in to help with the condition but i have had to lose my job because im unable to do industrial work and that's all the kind of work i know. I am an father of 3 and im just worried now on how i will be able to provide for them and also do for myself. Do anyone have any good advice for me?

Posted by bday on 2015-06-20 11:09. 1 comments. 145 reads
 
thank you for your comment - will be sure to use the left arm gently - have two doxies most curious about incision below left collarbone - being very careful to keep little noses away - so glad I found this club-helps tremendously as getting the pacemaker was a real shock

Posted by Cmojo on 2015-05-16 03:06. 0 comments. 300 reads
 
I have a long history of heart problems, starting when I was 9 years old. With WPW. Had an ablation for this which then caused complications - heart block. Had pacemaker fitted for this in my late thirties. Leads broke and hospital said my heart was working ok so pacemaker was switched off. In 2013 I developed atrial fibrillation and had an ablation for this in July 2014. This was a success and I came off all medication in December last year. All was fine until two weeks ago when I developed an irregular heartbeat either very fast or very slow. Was rushed to hospital when I became unconscious. Heart rate then went extremely slow 50 - 0. Pacemaker was fitted for total heartblock. Current specialist says one thing led to another. Hopin...


Posted by 0300hours on 2015-05-14 20:54. 2 comments. 265 reads
 
I have had a PM in my left chest for five weeks. As swelling has gone down in my incision site, I have noticed that the left side of my neck is swollen. It is not tender, just slightly swollen from the incision up to under my chin. Is this typical? Have others noticed this and will it disappear soon?

Posted by rossjackson01 on 2015-05-13 16:46. 3 comments. 172 reads
 
Nor sure if moderators will allow. My apologies if I have got it wrong. Please delete if I have.

The following pdf's are available from the British heart foundation, and many are excellent in explaining in reasonably plain language the reasons for Pacemaker, installation and use.

https://www.bhf.org.uk/publications?keyword=heart+pacemaker&lang=english&showAdv=1

Hope these helps others as much as they have helped me.

Regards to all.

Ross

Posted by KJ on 2015-05-13 08:41. 3 comments. 254 reads
 
Hi- I'd appreciate some advice. Had dual pm fitted 2 weeks ago- wound healing fine but just not sure if what I am feeling is 'normal' after pm. I still feel very tired- mostly in mornings and seems to improve as day goes on. Feel light headed and shaky a lot of the time with fluttering sensation intermittent. Managing to do light household chores but it feels as if have done much more afterwards. Slightly breathless at times. Is this as good as it gets- or do I need adjustment? 1st check up end of June. Brain feels foggy- almost like blood sugar levels are low- but I'm sure they aren't. Thanks for any words of wisdom.

Posted by suzip on 2015-05-08 02:23. 2 comments. 236 reads
 
It is now almost 8 weeks since my pacemaker implant and I wondered is it normal that when I first get up in the morning, it is still very sore around the incision site and it feels like the flesh is tight and tearing inside the wound when I start moving around for about 10-20 minutes. It also feels slightly inflamed and tender to touch, The site is sometimes slightly pink in colour and not red. It is making me feel a little worried something is wrong?

Posted by hbl on 2015-05-07 22:19. 6 comments. 257 reads
 
Was sitting at my desk and noted my pulse rate of 55. Low setting is at 60. Called Dr and read comments here so no big worries. Then in short order rate increased noticibly to 100 bpm. Dr said something in hospital that I understood to mean pm would kick in at 100 bpm when needed. Nurse said this was my normal heart rythm kicking in. Confused??

Posted by glowiegirl on 2015-05-05 20:02. 4 comments. 285 reads
 
I've had my new CRT-D for 3 months. The first two months I felt better--then I had what I "think" was a defib on April 22. My ears buzzed and the room spun around. Lasted about 20 seconds.
I go to the doc tomorrow for a check-up. I feel like there is a claw in my chest tightening and I am dizzy and often out of breath at night or during the day if I walk across a room. The morning seems fine but I seem to swell up by the PM. Yet I can go country western dancing and sometimes finish a whole dance. I do stop dancing if I feel weak or dizzy.
My questions are:
1. Was that a defibrillation I had?
2. Will the exercise of dancing hurt or help me?
3. Should my doc be adjusting my CRT tomorrow after I tell him my sympt...


Posted by jsne on 2015-05-04 06:10. 0 comments. 163 reads
 
Hi Folks.
Just back from a week in Tuscany first trip with PM. Felt quite important going through airport staff both ends very friendly. Managed to do some quite significant walks (due to guide book not being very accurate) in spite of still feeling not right.
Handed in my 3 day monitor two weeks ago so hope to get an appointment soon. So frustrating that I feel so close to being well then back to awful do think I have lost confidence, strange when you think the PM should make you feel "safer" still hols were lovely and a wee drop of Chianti for medicinal purpose's .
Roll on check up.
Cheers Jane

Posted by Tabby on 2015-04-28 09:49. 7 comments. 360 reads
 
I got my pacemaker 2 weeks ago. It looks to be where a bra strap would come in contact with it. Any info about bra straps and pacemakers?

Posted by PovisGirl on 2015-04-27 18:06. 6 comments. 400 reads
 
Hello. My boyfriend had a pacemaker put in 1.5 years ago. I met him roughly a month after he had it, so I was not able to be there during the process. He is only 51 and he told me it takes time to adjust (understandably)...My concern is that he doesn't seem to want to live life. He does work and he will occasionally hit golf balls at a driving range, for which I am grateful. He often expresses feeling sad that he can't do the things he use to do, but from what I read, and what he has said, he has no restrictions. I am hoping to hear from those of you who may be having a similar experience. I try to be patient and understanding as I don't have any idea what it would be like and I love him. Thank you in advance.

Posted by Claret on 2015-04-27 14:24. 22 comments. 543 reads
 
The pacemaker information that I have been told to always carry with me is a couple of sheets of paper in a cheap plastic wallet that doesn't fit into a credit card slot in a standard wallet.

Even driving licenses are now credit card sized and carry just as much information as my pacemaker information.

It probably just hasn't been thought through by people who wear pacemakers, so nobody is blame, but we can provide feedback to the manufacturers so that they can improve.



Posted by Theknotguy on 2015-04-26 20:32. 4 comments. 500 reads
 
I sit next to John in church. John is a 90 year old WWII veteran who has a pacemaker. I tease him that we synchronize our pacemakers like they used to synchronize watches in WWII. We have the same EP, get to tease one another about pacemaker events, compare notes on our EP, and commiserate about pacemakers and life in general.

About four weeks ago, John's battery in his pacemaker was dropping voltage. Not out of line as the pacemaker was about nine years old. John was using his remote call in device to monitor the voltage and was getting concerned because the voltage was heading for two volts.

About three weeks ago John started to have dizzy spells because the pacemaker voltage had gone down to just over two ...


Posted by SUPERSALE on 2015-04-25 09:00. 2 comments. 283 reads
 
sometime my pacemaker is not on or pacing what it should anybody has that before??

Posted by irish_jessi on 2015-04-23 14:28. 5 comments. 312 reads
 
cyborg

noun
1. a person whose physiological functioning is aided by or dependent upon a mechanical or electronic device.

(dictionary.com)

==========================

We are so much cooler than regular people, lol

Posted by DonnaMarie on 2015-04-18 17:22. 8 comments. 317 reads
 
I'm new to this site hoping someone can help. How do you deal with the nagging pain & discomfort everyday? I have a pacemaker with defibrillator and it just seems too big! I'm 5 feet 2 inches & weigh 120 lbs. I got the device put in 4 months ago then recently had it moved over since it was hitting nerves. How do you enjoy life in pain everyday & will I get used to it?

Posted by Debbiekitt on 2015-04-16 19:10. 9 comments. 374 reads
 
I just had the pacemaker surgery yesterday. Didn't have lead time to figure out how to handle anything. I am very big busted(42/G or H). I need something g to close in front. Help.

Posted by oneheart on 2015-04-16 18:55. 3 comments. 278 reads
 
I had my PM placed in 2011, after the surgery I experienced "lightning" type feelings in my chest. Could not lay down, sit up or sleep. 5 days later I went in to have the lead placed correctly. I came out if surgery with ringing in both ears, migranes and very debilitating anxiety and depression. I am still dealing with all of this today. It is making daily life difficult. Has anyone else experienced this? If so what have you found that helps you to cope?



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