St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by andyfowler on 2015-03-21 06:52. 5 comments. 322 reads
 
Hi all,

Iv had my ICD fitted since November last year. I was wondering how long I will sill be having pain around it. The pain isn't unbearable but it is still really uncomfortable. Any help will be valued thank you.

Posted by tk on 2015-03-20 12:11. 4 comments. 343 reads
 
I am feeling overwhelmed, anxious, and honestly can not differinciate what is normal expected pain and discomfort from something "going wrong." I feel light headed, I have dull pain in chest but also tiny tings, or zaps, almost like little shocks, as well as tiny sharp pains. In left arm and heart area. I also thought I could feel my left lung doing something weird. And I have sharp random left ear pain. I'm not sure if I'm having allergies or if I am having troubles with the device but my blood pressure and heart rate seem to be normal for what they've set it to. I hate to complain, but my sister said this site would perhaps help. Any insight would be appreciated. I do tend to have bouts of anxiety now. I had/have bradycardia, complete he...


Posted by SunnyZen on 2015-03-19 22:49. 5 comments. 323 reads
 
Hi,
Just wondered what people have found works well for anxiety from arrhythmia's and cardiac issues: Afib, Aflutter, PVC's. 2nd Pacemaker 02/25 really agrivated it all. On antibiotocs dt concerns of infection where stitches popped out edge of scar. Because of antibiotic allergies I am down to Levaquin and the pharmacist has to tell me it is contraindicated with Flecanide and cause "life threatening arrythmias". No other choices. Back at work full time stressful job and feeling very overwhelmed. Start worrying about all the what ifs and can't relax through my rhythms bouncing around. I have great friends for support but they don't understand the discomfort when that happens and fear that comes with the organ that my body relying on be...


Posted by JaneyC on 2015-03-18 16:32. 8 comments. 294 reads
 
Help, Im a newby. Had my pacemaker implanted last week. The terminology is all blur to me so please be gentle.

Firstly can someone please tell me is normal to be so tired and breathless all the time?



Posted by Judy13 on 2015-03-15 19:49. 4 comments. 285 reads
 
I have had my boston scientific pacemaker/defib. Since Dec1st 2014.i still have soreness and some limits on my left arm movements. Iam starting to worry if this will ever feel better.If i take a pain med it helps some.

Posted by SaraC on 2015-03-14 05:42. 4 comments. 338 reads
 
Does anyone have their own favourite and effective ways of encouraging conversion back to sinus rhythm from afib? Had my pm implanted 7 1/2 years ago for Brady and AFIB. The AFIB then was 3 - 4 times a week and up to 12 hours. Very debilitating. I knew the pm wouldn't stop it, but together with Diltiazem (calcium channel blocker) and Ava pro (irb) both really for high bp the incidences went way down. Now after all this time they are creeping back up to 2 times a week, and the current one has been going for 12 hours now. Never stops while I lie down, so walking gingerly around, sitting, drinking tea, deep breathing. Nothing seems to be working right now. Have heard bearing down can work, but doesn't for me. Also, I have been trying to ident...


Posted by helen0608 on 2015-03-13 23:30. 2 comments. 309 reads
 
I was wondering - if your in AFIB most of the time, even with the pacemaker, does this cause heart damage? They can find nothing wrong with my heart except the electrical system is not working. They put in the pacemaker and did a node ablation, so I am pacemaker dependent, but still wonder about long term effects of AFIB. I am currently not on any medication for AFIB, just blood thinner. Opinions?

Posted by gzarotny on 2015-03-13 19:14. 6 comments. 271 reads
 
Hi All: Well I am 5 weeks post pacemaker implant and have some questions to the pacemaker group. Finally my stitches have dissolved but the site is still very elevated from the surrounding skin. Is this normal? Will it ever go down? It is at least 1/4 of an inch above my main skin. Very disappointed, thought it would be at least a small bump. Well any input would be helpful. Thanks.
Gloria

Posted by helen0608 on 2015-03-12 19:42. 1 comments. 234 reads
 
I am new to this pacemaker thing, just got it in January of 2015. Incision has healed, but now when I sleep on my side, the pacemaker is turning sideways and makes a bump - then when I turn over on my back, it flips back down flat. The nurse said as long as I was feeling OK, not to worry, but can this pull the leads loose?

Posted by suzip on 2015-03-12 13:40. 4 comments. 243 reads
 
I am 46 from UK and have just had PM implant. Is it normal to feel like the heart is racing a little, maybe sometimes like palpitations? I have only had in one day haven't had first check up as yet?

Thanking you :D

Posted by ttdavis22 on 2015-03-06 15:31. 8 comments. 288 reads
 
I've had my PM for 3 wks now after finding out I have Sick Sinus Syndrome and I've been having spells of Arrhythmias everyday. I asked my EP about it and he said I'll get use to them. Is it normal to still have arrhythmias after an ablation and PM? If so, what can I do when they happen to not get freaked out? I'm also still having problems with my heart rate being high. They just doubled my meds to try to lower it but no such luck. Hoping with time it'll slow down. When I'm stressed out I've found myself coming here more and more reading whatever I can and it helps so much....

Posted by SLC on 2015-03-05 16:08. 16 comments. 532 reads
 
Has anyone else out there had to have a pacemaker due to a doctor's error? It's been almost a year for me and I can't stand having this thing in my chest. I don't know if I'll ever get used to it. Maybe because I didn't need it, it's causing me psychological issues. They have me on anti-depressants and anti-anxiety medicine to help me relax. I had an ablation that went bad. She burned my electrical pathway shut, so I had to get the PM. I am thankful to be alive, but so frustrated. I'm active, in shape and only 56.
SLC

Posted by ttdavis22 on 2015-03-03 17:53. 4 comments. 315 reads
 
I new here and have found lots of good info.
For years I kept having pains and problems in my chest and the DRs had no clue why. They never really did much. This past year I started having more problems and ended up in the ER quite a few times when they finally had me wear a monitor and found I have Vtach.
I had Kaiser and all they did is put me on meds and told me if I had an episode go to the ER. Went to the ER at least 3x a wk for almost 6 months. All they did is switch my meds a few times and they never seemed to work. Needless to say I left Kaiser and switched to Blue Shield.
Saw my new MD and when he saw my records he said I needed to see the Electro specialist and even called him with me sitting there and said to co...


Posted by Peanut40 on 2015-03-02 10:37. 5 comments. 335 reads
 
Wife told me, I am not the same person I was, after SCD. Meds or me ?

Posted by Lynz on 2015-03-01 14:25. 2 comments. 291 reads
 
Hello, I am having trouble understanding this whole process. Maybe because it all happened so fast. I had a tightening in my chest that sent me to the Dr. they looked at my normally low pulse (48) which was now 41 and did tests, found it to be going into the low 30's at night and put a pacemaker in. I am now 11 days past the surgery and wondering what just happened? I don't have the energy they promised, in fact I feel more tired, dizzy, decreased appetite etc. I am due to leave on a cruise next week and feel concerned, has anyone had the same reactions? is this normal?

Posted by rpatters777 on 2015-02-28 14:35. 4 comments. 246 reads
 
I am scheduled to get my pacemaker on March 11, 2015....I am nervous and a little scared. Can someone tell me what to expect after the procedure. I am looking forward to a better quality of life. At the moment I am always out of breath doing simple tasks such as walking , folding clothes and even singing. Have you experienced energy after the pm? What kinds of things have improved fir you since the pm?

Posted by rolson on 2015-02-24 17:49. 1 comments. 167 reads
 
HI everyone! I just wanted to update you all who have helped so much. I started a new job and am doing fantastic. I am feeling better and better and when I started looking for work, made sure I found one that is low stress. I am sure I will have other issues as time goes on but right now, I am very grateful for all your help and for my friend on my shoulder.

Posted by jsne on 2015-02-21 07:54. 3 comments. 234 reads
 
History of atypical svt then an ablation 16 years ago. Problems with sob increasing over the years with arrhythmias long story short finally diagnosed with 2;1 heart block. Had pacemaker fitted 16th Feb and feeling v sorry for myself. Had a small pneumothorax which is going but feel as if I have been hit by a bus, heart rate keeps going up to 114 or 125 (not much in between) for no reason went to post a letter and was totally knackered. Have struggled the last year and just desperate to feel like I have done the right thing and to feel better. I am 52 and want to make the most of hopefully an active life. You leave hospital with so many questions that never quite get answered. Will be a happy girl tomorrow.

Posted by candi on 2015-02-20 11:18. 5 comments. 369 reads
 
First, thanks to everyone here for the information shared. A little background, in September of last year I started having discomfort, right side pain and pressure in chest. Some upper abdominal pain, testing done-ultrasound plus HIDA scan. All normal, referral to Gastro Specialist in November. On Nov 18 I called Doc as pain was at a 7-was told they didn't know what to do for me, to come in next day if not better. Went in (with hubby) next afternoon, pulse was 30- got a pacemaker early next am. I went in with 3rd degree heart block and blocked completely in surgery.
Still very fatigued, pocket is very sensitive and pacemaker has turned on its side several times. Is this fatigue etc normal? 3 months out? I lost about 30 lbs dur...


Posted by craigm on 2015-02-18 20:31. 0 comments. 120 reads
 
Thank you all for the info, gives me perspective and hope- I'll just keep punchin, but slowly :)



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