St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by johnnyc on 2014-03-07 17:29. 6 comments. 173 reads
 
At my 2 week checkup for a pacemaker and two lead wires I was told to continue shoulder rolls and do slight left arm swings forward/backward.
The do nots include, lifting anything over 10 pounds with right arm (nothing in left) and do not raise left elbow above shoulder.
Is it normal to be very tight in the surgical area? Should I try to lift left arm out from body to at least waist level to loosen up?
Is there anything else I can do before that 8 week mark when I can resume normal activities?
Thank you,
John

Posted by garyg49 on 2014-03-03 20:19. 2 comments. 97 reads
 
From: garyg49
Just had ICD implanted 2-27, discharged 3-1. Cardiologist or surgeon never said how long I would experience this nasty pain. And I have had 2 open heart operations! Any advise?



Posted by trish on 2014-03-02 15:06. 2 comments. 148 reads
 
recent pm interrogation showed an average of 24 PVCs / hour over past 32 days, and runs 2-4 2 per hour. Should I be concerned? Heart seems to race 104 b/m even at rest. trish

Posted by aimee07 on 2014-03-02 11:45. 0 comments. 143 reads
 
Hi guys!

I hope this post finds you all well today. Let me start by introducing myself again. My name is Aimee and I'm 25 years old. I've had my pacemaker since I was 5 and I'm due for another replacement anytime this year.

I've recently started a blog dedicated to my condition and this miracle of a technology we all have. :)

As fellow pacemaker patients, I was hoping I could get your support in raising awareness and creating a community of people who knows and understand what we know and feel.

If you could spare a bit of your time. Please visit my blog: It's a Wired World at http://aimeeablelife.blogspot.com.

I'll be looking forward to hearing from you guys there!


Posted by phyllisilie on 2014-03-02 08:06. 11 comments. 250 reads
 
for past two years trying to get used to CPAP machine for sleep apnea. Simply cannot relax tethered to equipment, takes two to three hours to fall asleep for average of two hours at a time and awake with neck and head aches. Cannot get comfortable sleeping on back as am a life long side sleeper. Has anyone tried very expensive ProVent nasal or mouth device with success? Am getting less sleep than without CPAP but since recently diagnosed with secondary pulmonary hypertension in addition to being 100 percent pacemaker dependent I know not sleeping is compromising my heart health even more. Doctors are patronizing and perhaps if they are required to sleep with cpap during medical training they would be more understanding. So I am angry,...


Posted by Theresa2014 on 2014-03-01 01:07. 1 comments. 110 reads
 
Got my pm on the Feb 20th. My lung got stuck with the needle and I had to spend an extra couple of days in the hospital. Not happy, Come Monday it will be my second week off work. I still feel the pinching around the sutures is that normal and how long will it take.

Posted by Nana Sarah on 2014-02-27 09:35. 9 comments. 232 reads
 
Good morning,

My PM is almost seven years old and I am told that I am 100% dependent on it. Check-up with Medtronic the other day showed the voltage at 2.88. They recommend an elective change at 2.81. Ever since Monday I have felt a little strange. I'll call the doctor today, but I wonder if it's just anxiety. I don't know how many of you are aware of your heart beating. Most others tell me that they sort of take it for granted and don't pay any attention to it's rhythm. Another thing I am aware of is the clicking sound from my mechanical valve, so that makes it a little more obvious. I take a beta blocker that generally helps to keep my rhythm steady. I used to be on Amiodarone, but was weaned from it several years ago...


Posted by PaulFromSydney2 on 2014-02-24 18:50. 6 comments. 188 reads
 
I feel guilty posting this and know it is not as important as helping others that are still having problems but I need to share my feeling good story.
It's been 5 weeks since my new spark plug was installed.
Back to exercising everyday. Went out for my first light run today, beautiful sunshine, clear morning and felt better running than I did without the PM. Walking up hills no problem! Went back to work last week and although apprehensive it went well. Life is pretty close to normal and I can see how you could forget you have a PM. Life is very good!
My thanks to the special people on this forum that have helped me immensely; demystified the experience, confirming that what I was feeling was normal and knowing others had ...


Posted by kennedyg on 2014-02-24 16:54. 6 comments. 301 reads
 
I had just turned eighteen on nov. 30th 2k13, I was really excited about it because you can go to (some) clubs when your 18, before this though I was already doing a lot of MDA. which is kind of life MDMA but a lot of people say it's better than MDMA. Which is ecstasy. I was doing like a half gram or more like every other day, not even thinking that it could've been effecting my heart. So the Wednesday after I turned 18 I went to the club and did more than a gram. That night, my heart was stopping. ( I didn't go to the hospital that night) and even after that happened I did more molly and tripped on some hallucinogens and smoked a lot of pot and drank for about a month and I always had the sneaking suspicion that my heart was messed up. :/...


Posted by RamonaFriesen on 2014-02-23 21:22. 3 comments. 119 reads
 
I was in a motor vehicle accident and got his from behind. I am know suffering from whiplash, severe headaches neck and shoulder pain, nausea, confusion and extreme fatigue, Now that I have a PM, I don't what kind of therapy is safe. I don't know if I can go for massage therapy or not. Tens Therapy is out of question. Does anyone have any advice for me?

Posted by scarheart on 2014-02-23 19:23. 2 comments. 198 reads
 
Hello, Out of desperation and a good bit of depression I came to this site. After reading many posts I am more informed as to what I might ask my Cardiologist at my next appointment. Thank You.

My Atrial Fib/ Flutter/ Tachycardia/??? had been managed with medication for about 10 years. I was taking 240 mgs of a Calcium Channel Blocker and a Beta Blocker in the evening. I felt like the walking dead most of the time but managed to get through my workouts and my daily chores just the same.

Last June,2013 my heart seemed to go into irregular rhythms, especially when I was at rest. The episodes became more frequent and scary. It was to the point that I could not sleep through a night without waking up from the irregular...


Posted by BeckyJo on 2014-02-22 17:10. 3 comments. 95 reads
 
I don't know if I've put this in the right catagory.
I'm new.
Has anyone attend 'Mended Hearts' meetings inOlympia, Wa?
Thanks
BeckyJo

Posted by sheil60 on 2014-02-22 14:08. 21 comments. 338 reads
 
Hi, I came to this site as it's almost 2 weeks since I had my pacemaker implanted and am feeling a bit low.

I'm lucky in the fact that I wasn't having any noticeable problems before - I'd had one blackout last July which led on to heart block diagnosed. Up until I had the pacemaker I was leading a normal life, driving, swimming etc so my life hadn't been impaired by illness.

Now I'm recuperating I'm frustrated with myself as I can't do the things I want to do - yet. I know I'm impatient but it doesn't stop me feeling miserable.

Having read other comments it's helping me realise I'm not alone in this. Thanks to everyone for being out there and sharing your comments. I see my GP next week about anot...


Posted by raiderralph on 2014-02-21 03:48. 5 comments. 228 reads
 
I have Cardiomophy and I feel alone. I have a bilateral pacemaker. And I feel good even after a bout with AFIB. I get around well
EF 22 101 over 72
Sorry juts a bit depressed 3today

Posted by belljn on 2014-02-19 21:32. 7 comments. 398 reads
 
Three years ago I was driving my wife to the eye doctors when I experienced a weird feeling of dread, (the only way I can describe it). I told my wife I didn't feel well and pulled over to the curb and promptly passed out. When I woke up a few minutes later I could hear an ambulance siren and a lot of people talking and fussing about and I was wondering what all the commotion was about.
I got out of the car and refused to go in the ambulance. Tough guys don't do that. I had my wife drive me home before I went to my own doctor as I had urinated when I was passed out and was embarrassed about it. The doctor put leads on my heart and suggested I get a full heart check at the hospital. I went home and my heart slowed down which brought me...


Posted by rrwags3 on 2014-02-19 21:13. 11 comments. 354 reads
 
Again very new to this all. 3rd degree total block with PM. I'm assuming I will need to completely stop any alcohol use. Can u drink an occasional glass of red wine or a beer? Hopefully I don't sound like a total boozer!

Posted by jenks58 on 2014-02-19 18:17. 10 comments. 193 reads
 
has anyone else felt a mild stinging sensation from the area? Is this real or imagined?

Posted by cheshirealice on 2014-02-19 14:27. 14 comments. 320 reads
 
I was just perusing the forum and started to feel a little sad. I know a lot of people come here for answers and support, which is good, but there needs to be some positive posts too!

I'm currently on my second PM. The journey here hasn't been perfect and there's some problems with it (low impedance, shocks my intestines, etc) but I'm grateful it's there. I wish that there were no side effects or problems but I suppose that's life. When has anything been an easy fix?

I'm sorry to everyone that is having issues, scared, worried, or concerned. We're right there with you in spirit and I hope your issues get resolved.


"Hope" is the thing with feathers - (314)
By Emily Dickinson

...


Posted by Kathy48307 on 2014-02-19 14:12. 8 comments. 329 reads
 
I have had my bi-ventricular pacemaker for ONE week and I have already called my insurance company to see if they will help me have it removed. I hate having it in me, I can feel it working, I have a knot on my chest the size of a small baseball. I did not want it (I was somewhat coerced but no one should be able to make me do anything so it is my "fault"), I came out of the procedure screaming at them to take it out and now I am sad, sad, sad. This isn't like me, which confuses me even more. I have a difficult time explaining to people how I feel, why I feel the way I do -- when they see it as a "new lease on life". What life?

Posted by Phoenix8 on 2014-02-19 04:00. 8 comments. 173 reads
 
Hi there, I'm Cas, I had a 3 lead CRT inserted 12 days ago. The reason for the ICD was cardiomyopathy for no particular reason. I'm so pleased to find this site.
1. Every morning I wake with extreme shoulder pain, it settles slightly with paracetamol & settles even more with general movement throughout the day. No I'm not lifting it above my shoulder. I still sleep with head of my bed up at a 30 degree angle as I have fluid around my heart & lungs which makes me choke when I lie flat. Any ideas re shoulder pain?
2. I'm a dancer & very social person. I am feeling quite depressed & lonely being stuck at home recovering from this. Then I kick myself & say at least I'm alive there are worse off people out there, but I still feel ...




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