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Messages in Coping Forum



Posted by afibpatient on 2013-03-17 19:02. 8 comments. 355 reads
 
Has anyone ever heard of a pacemaker being removed if no events have been recorded for over 5 years? I just want to know if I will ever be free of this device.

Posted by Marily on 2013-03-14 14:50. 2 comments. 168 reads
 
Hello everyone!I'm still trying to understand exsactly what happend to me a year ago. Everything seem it was going well.my 1 year old daughter is healthy I have it all etc. After my baby bDay party I felt seek my husband to me to the E.R and DR said you have Bradycardia it was so bad that I had no strengh to eat down to 28 beats a min.2 weeks later I'm getting my PM implanted now I'm a stay at home mom. Cause the DR decided to put me on disabilty why? Cause my blood pressure is way t low and I have shortness of breath that i m to the point of faiting. The DR is still trying to understand why this is happening.

Posted by Nancylyn1991 on 2013-03-14 14:42. 3 comments. 110 reads
 
Well it is one month since I got my new body part (pm). I am feeling great and I am not so anxious anymore. There are times when I am still a little sore. But other than that feel pretty much human again! Thank god!!!! Thank you pm club for helping at one of the darkest times in my life and hope to help others as you have helped me!!!!


Nancy

Posted by Davo on 2013-03-14 00:44. 13 comments. 475 reads
 
Hi guys,

Me again... I have now had a gutfull of poking, prodding, sleepless night, blackouts, days off work and being unable to do certain things, and the fear the inconvenience that this pacemaker has caused me over the past year...

I want it turned off and taken out... Anyone done this before, cause my doc is gonna sh..t himself next visit..

I am going broke getting scans, paying specialist, covering treatment, and being treated like an invalid.. my wife treats me like a child, my kids like a dad that might break if you play with him in the pool, or wrestle, and my workmates like I have a disease...

My entire life changed, I am overcome with fear at any challenge, I don’t...


Posted by cb on 2013-03-13 22:30. 5 comments. 188 reads
 
I have read several posts where the writer refers to "breaking" a lead...which scares the deuce out of me and my husband who is insisting I wear a scarf around my wrist tied to my waist so I dont left the arm...
How DOES one break a lead or pull out a lead, because I never want to do that!
And would you know if that happened?
thanks...by the way I am 18 days post "insertion"

Posted by accoj on 2013-03-13 21:21. 0 comments. 70 reads
 
Well thanks to Franks advice about power tools
I did a bit of grinding on the bench grinder
and also used the 4 inch angle grinder
and they had no effect that I know of
Im definitely staying away from welders though
as Im in Australia all our household power is 240 volts ac
and 415 volts ac in workshops and such
anyway I feel a bit better now that I can still do things
I also used the 4 stroke push mower but the only affect
was to give me a sore left arm
anyway Im alive again
thanks all
John


Posted by DOG72 on 2013-03-11 20:32. 4 comments. 135 reads
 
i,m in my 11th day, i feel the same soreness on my left side and i believe it,s normal. and on the 3rd day i tho,t my heart beat was going to jump out but it,s better now, i,m wondering if i can raise my left arm and use it more so and if i can drive just yet, i still feel a little tired yet ..is that normal.. elle

Posted by jillee on 2013-03-09 19:21. 3 comments. 185 reads
 
I have had my pacemaker since nine and i get still so scared when i have to get the battery replaced, is there anyone out there, that gets really nervous and scared when they know there time is coming to get the pacemaker changed, but gets so scared and worked up? Tell me if any of you have any great ways to cope while you know the time is approaching? jillee

Posted by DOG72 on 2013-03-08 10:55. 1 comments. 91 reads
 
HI ,I,M LIKE YOU TAKING NAPS IN THE AFTERNOON, AND SLEEPING WELL, GOT A LITTLE MORE ENERGY TODAY SO I THINK I WILL MAKE MY BLACK BEAN BROWNIES , WATCHING MY DIET ,,, TAKE CARE, ELLE

Posted by MrsH on 2013-03-07 15:11. 3 comments. 200 reads
 
Hi! This is the first time I have posted to this site, although I have been reading it for several months. I am really thankful for all the postings and thought I would chime in.

I got my bi ventricular ICD on November 7, 2012 after being diagnosed in the May, 2012 with Cardiomyopthy, low ejection fraction and LBBB. This was out of the blue and the doctors do not really know why this has happened. So after Coreg 50 mg twice a day and Lisinapril 10 mg daily did not work to improve things, my doctors felt an biventicular ICD was the only answer. After having it put in, I felt better the next day and have continued to feel better but I am plagued with anxiety that creeps up on me during the day. I am taking 1 mg adivan o...


Posted by maggyp on 2013-03-04 22:51. 3 comments. 136 reads
 
Hello, my father who is 91 yrs old, just had pacemaker surgery last wednesday (2/27/13), he went home the same day without any complications thank God and seemed fine until today that he tells he has been very sleepy and tired when he is awake. Is this a normal post-surgery result?
thank you for your input. Maggy

Posted by nking1 on 2013-03-04 17:37. 8 comments. 215 reads
 
So, as of a matter of months ago I have been experiencing "simple fainting spells" and as time has progressed so did the spells. It was recently decided that I am to get a pacemaker just the surgery date has yet to be decided.

I am only 17 years old and pretty upset by this whole situation. It is my senior year and I had a future playing soccer at a college that I was highly interested in. With all this going on, I have yet to experience the joys of senior year and I cannot play the sport I have loved since I was 4.

From what I read, the surgery is not so bad, and I will be in the hospital only a day or two but out of school for 2 to 3 weeks. With AP tests and college courses, I know my grades are going to suffer and...


Posted by SherriW on 2013-03-04 09:16. 15 comments. 403 reads
 
This is still so hard for me to accept. I am only 52 with no heart disease or any other physical problems. I went to the doctor thinking I was having anxiety problems due to stress. I was rushed by ambulance to the ER, admitted to the hospital, and had the PM by 9:30 the next morning. Apparently I have a genetic 2nd degree heart block, which did not have symptoms until recently. Everything happened so fast that I did not have time to process it. I hope there is a day when I will feel normal and strong again. I am tired of crying.


Posted by ylatulip69 on 2013-03-04 07:30. 5 comments. 157 reads
 
My name is Yolanda, I am 43 yrs old, I suffer from Bradycardia and incompetent HR. I am scheduled to get my device implanted on 3/6/13. I am a new member to the club. I was hoping for some insight as to what to expect after implantation, I am very nervous.
Thanks to all in advance,
Yolanda

Posted by ohnonothimagain on 2013-03-03 12:47. 18 comments. 375 reads
 
I'm trying to get a handle on my "new" life. I never expected at age 59 to be having heart problems. No history in the family, no previous heart issues at all(except for a broken one in the past), and now I'm depending on a miniature device to keep me alive.

Third day out-I woke up early today with a little sense of dread. What happens if it quits on me? What happens when the battery starts running low? Why am I still so tired? I'm scared of my wits that I'm gonna pull the leads out or ruin the placement because I forgot to keep my arm down? Why do I still hurt? Why did I have a little dizzy spell today? Is there still a problem that they didn't find, and I'm not going to be able to get to the ER in time? oh yeah-is this norma...


Posted by cans624 on 2013-03-02 10:58. 3 comments. 161 reads
 
Does anyone on this site experience PVCs I been noticing this the last couple weeks seems like I am skipping beats I saw the doctor she did an EKG doc said it looks ok but if I experience more she will do another to see how many I am getting it totally freaks me out

Posted by Nancylyn1991 on 2013-02-27 15:07. 2 comments. 94 reads
 
I want to thank everyone who responded to my post yesterday! My anxiety level went down a ton and I don't feel like crying every second. I am trying to be strong and not be a bundle of nerves! It is only 2 weeks ago today and I feel a lot better.


Thank you,
Nancy

Posted by moquin204 on 2013-02-27 13:55. 3 comments. 117 reads
 
hey guys , it's been awhile since I been on here .
I need advice , I have my pacemaker / defibrillator , and it went off awhile back , scared me , somehow I got stuck not leaving the house it's been like 6 months , I get sevre panic attacks makes it worse ? It feels like this is impossible to fix because it's all in my head ! I'm scared I know it's normal but how is it possible to fix ? please any support or advice would be appreciated , I'm 19 first device when I was 17 still going through , please comment :) thanks for reading

Posted by owls__ on 2013-02-25 16:27. 5 comments. 233 reads
 
Hey everyone I've made a previous post regarding this about 3 months ago with really helpful and supportive comments but the problem still exists :( A little background info -- I'm a 15 y/o girl/ had an ICD implant about 4 months ago and have a heart condition (since I was a toddler).

Basically ever since I had that surgery I've had these 'episodes' where I really suddenly feel depressed or really angry for no apparent reason! The tiniest things can set me off and I'll immediately either get angry/feel depressed or break into tears with something I would have just tutted at a couple of months ago and then I will return to my normal mood quickly after... I felt this depressed feeling lurk over me the first day I recovered from ...


Posted by hayzach on 2013-02-22 09:45. 6 comments. 190 reads
 
I have had the worst crying spells for not reason. I am not that person I have always been very strong vibrant person. Now I have noticed I will go home and just cry for nothing. I'm scared to sleep at night because I'm think I will not wake up. I don't know if it's the mother in me or what but it's driving me crazy. Also instead of adding a extra post; Which side can I sleep on? I slept in the recliner for the first 3 weeks because it was more comfortable. I tried the bed the past 2 nights and its not working well. Love the club there is things on here that my doctor never warned me about. example coping Thanks so much



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