St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by Caity858613 on 2014-09-04 23:52. 7 comments. 197 reads
 
Hi everyone,
So happy to have this site, I am 28yo female that a had PM put in due to SSS on August 18th I am having a very hard time dealing with this, I feel lost and confused, I think I am wanting to feel a 100 percent better but at times feel dizzy and weak. I had episodes of short of air but they adjusted my lower setting which seems to be better, I don't know anyone my age that has one so feel very alone with what I should be feeling, I am so scared that I am going to rip my wires out, when these episodes hit almost feels like a panic attack, I just feel lost and confused and was hoping people could tell me their experiences with PM.Thank you all for listening.

Posted by Energy on 2014-09-03 19:38. 5 comments. 258 reads
 
I had my first pm in 2007 and it was St Jude's ... Had battery replaced in July this year... I was on vacation when I had emergency pm surgery first time. Back home, finding Dr. And coping were difficult as I knew nothing about pacemakers. The Drs in this area use Medtronic (or the Drs and hospital connected) when I had this one replaced the EP asked me if I wanted another St Jude and I said yes.... I assumed nurses at EP office knew about St Jude's...but several have told me they only have a working knowledge... Just enough to answer some questions. and gave me the phone no. To St Jude's.. I am to use the Merlin transmitter and was sent a filter to use and it was Medtronic.. I just feel uneasy about it all as I feel like I have to definit...


Posted by HHK on 2014-09-03 11:56. 5 comments. 193 reads
 
I'm just having a hard time excepting this. I know the benefits of it but still trying to cope

Posted by kamrymichele on 2014-09-03 00:34. 8 comments. 162 reads
 
I was looking for people around my age that have a pacemaker that I could talk with about how it affects their lives and how they deal with it, Im 19, and I have my moments where I just need someone to talk to about these things that actually understand what its like to have a pacemaker

Posted by newwidow on 2014-09-01 23:46. 4 comments. 269 reads
 
I just received my first pm on August 11. I am 49 and a recent widow (my husband passed away 6 months ago). I have a 15 year old that I am panicked will become an orphan. I went away for a few days with my daughter and after being back for 2 days I was still very tired. I didn't feel well but didn't really feel sick. At around midnight on the second day I was feeling a little woosy and I collapsed on the floor. Thank God I was able to reach the phone and called my mom that lives upstairs from me. She immediately called 911. The EMT said that my heart rate was at 23 and that he would get me to the hospital as soon as possible. Once there my heart rate dropped to 19. They attached me to a "pacer" and that awful feeling was better i...


Posted by PJinSC on 2014-09-01 19:01. 1 comments. 88 reads
 
A Latin phrase: "Illigitimati Non Carborundum" translated, "Don't let the bastards get you down". Now get out there and prove it!



Posted by JennBunny68 on 2014-09-01 15:01. 10 comments. 250 reads
 
I'm only 19 and just got a PM last week. So far it's a really big change and hard for me to get used to. Before my pm I had irregular heart beats and a hard time breathing. I went to the hospital just to get checked out and they told I had 3rd degree heart block. A pacemaker was basically my only option. This is an extremely hard time for both me and my family. Does anyone have any advice for how to deal with this? Or any dos or don'ts on how to live and care for my new pm? I've heard little things about cell phones, outlets, microwaves,ect. But I'm not sure about much of it. Any advice helps!

Posted by steffenme on 2014-08-31 22:02. 8 comments. 270 reads
 
So grateful to find this site after a week of unexpected events. I have been dealing with bradycardia and atrial fibrillation for several months, but collapsed at work Wednesday, admitted to. hospital, and fitted with a dual chamber pacemaker on Friday.

My head is swimming. I'm 35, and I really never thought it would come to this.

I'm in a lot of pain, and I was told I shouldn't be. The site is swollen and bruised, but no signs of infection. Just wanted to make sure it was okay to still feel pain. It feels like a rock is sewn under my skin - it's tight and tender.

Thanks for any reassurance you can offer. I'm totally overwhelmed by life right now....

Posted by Energy on 2014-08-30 12:10. 7 comments. 196 reads
 
I have had a St Jude pm for 7 years and it was put in out of town when we were on vacation. On returning home I had to find a cardiologist for follow up care. I have been going to the same one for these 7 years and he always seems vague about the pm questions as if that's not his field. So I contacted electrophysiologist and he just recently replaced the battery. He is located a distance away but connected with same hospital of cardiologist. They us mostly Medtronic here but did replace with St Jude... I have another appt with the electrophysiologist this Thursday for follow up. My question would be should your Dr be an electrophysiologist if you have a device?

Posted by Dave H on 2014-08-25 23:49. 2 comments. 202 reads
 
Cut the grass couple hours ago ---- nice and hot --- lot's of sweat --- no big deal ---I stayed hydrated, took a relaxing shower afterward. I'm sitting here relaxed at my PC, and suddenly I notice a rapid pulse. Put on the cuff and the numbers are 108/73 pulse 121. HMMM --- Few minutes later, a comparable reading. Started to think about the 60mg Diltiazem tabs in the cabinet. Couple minutes later, I'm 103/73 pulse 88. Glad I did not use the diltiazem.
What creates these wacky events? I don't think I went into A-fib --- My BP device would always give me an "Error" whenever it tried to get a BP reading during an A-Fib event. Any thoughts?
--Dave--

Posted by shine on 2014-08-24 07:40. 6 comments. 161 reads
 
This is day 3 after receiving my ICD and I am wondering if the symptoms that I am having are normal. For the last two nights while lying down my hand feels a little numb on the same side the device was implanted. Also, my chest is very sore when I take deep breathes. Did anybody experience these symptoms and if so should I be worried?

Shine

Posted by UKRecovering on 2014-08-20 14:50. 13 comments. 359 reads
 
Dear all,

I've had funny turns over the years where I've felt unwell and lost consciousness. I have been diagnosed with vasovagal syncope plus had an implantable loop recorder put in my chest to record my heart.

I've just had another episode and my loop recorder recorded the episode - showed my heart slowing, a fifteen second pause (flat line) and then some erratic activity before going back to normal.

I'm seeing my cardiologist consultant on Friday (to talk about the pros/cons of a pacemaker) but in the meantime was hoping for some reassurance. The thought of my heart totally pausing for fifteen seconds has really freaked me out.

Thank you in advance.
41 year old female


Posted by sunshine on 2014-08-16 18:42. 3 comments. 285 reads
 
Am new to a PM, just 3 weeks past. And has been an emotional time as my daughter (single mom) was moving to a new house. I was busy as can be this past week this past week and today the PM hit me, pretty good. Was glad to find this site and know that depression can be a normal thing. It was purely by chance that they discovered the low heartbeat - otherwise would have been on a plane for a board mtg and who knows what would have happened. Seems my body had been adjusting all along so never had symptoms. Still trying to get my head wrapped around what happened and the fact that I'm alive today because of the PM. THAT'S difficult. Have family history of SADS but not a clue as to what I should look for or tell doctors. And got diagnosed w...


Posted by cabbie on 2014-08-16 02:10. 0 comments. 216 reads
 
Thank you Angry Sparrow for your response. I had actually written you a detailed reply but then pressed the back button by mistake and it's all gone now! Anyway I have to go for now so I will write longer another time.

I am pasting the cost of treatment packages from the Philippine Heart Center. http://www.phc.gov.ph/services/treatment.php.
They have a new Medical Director so I am not sure if the prices will change. Other hospitals you may want to check online are the Makati Medical Center, St. Luke's Medical Center Global City, the Medical City and the Asian Hospital. These are all internationally-accredited hospitals which accommodate medical tourism. I am not very familiar with the last two hospitals on the lis...


Posted by Acrising on 2014-08-15 18:34. 4 comments. 228 reads
 
Dear Pacemaker Club,

I received a biventricular pacemaker/defibrillator at the end of June. Beginning the evening of my surgery and continuing to this day, I feel a "flicking"', "ticking" kind of spasm in my left breast. I have told every medical person I have come into contact with and they say my device is pacing normally and it's probably just a temporary muscle spasm. Temporary, my butt! I still feel it and it is mid-August. Any one else experience this? I am tired of medical professionals making me feel like a nutcase. Help!

Posted by Rhansen1 on 2014-08-15 13:06. 6 comments. 291 reads
 
First off, thanks to all the folks that make this site possible. I just now came across it and so nice having others that can relate. I am a 44 y/o male on my third pacer device. The last 2 are and were icd's with the pacer function. My first regular pacer was implanted in 2000. In 2008 I was suffering from extreme fatigue and chest pains. I had just moved and made an appointment with a new Cardiologist. In short, I was informed I had several Heart Attacks, enlarged Heart, EF of 24% and I officially was diagnosed with CHF. The Dr immediately replaced my regular pacer with an ICD. 3 hort years after that it had to be replaced and new leads installed. Apparently the battery went quick due to some high settings and a shorted lead in...


Posted by cabbie on 2014-08-14 15:48. 1 comments. 183 reads
 
Hi. Just wanted to say that I had a CRTD implanted almost two weeks ago for HF with DCM. Still feeling sore at the implant site but it's much better than it was than last week. Freaked out at the thought of the leads getting dislodged and have been trying best not to move my left arm above the shoulder. I had cardiac cachexia before I agreed to the implant and so I am quite skinny at the moment and I can see and feel the implant beneath my skin.
Anyway I'm just glad to find this forum. I'm from the Philippines and here we pay out-of-pocket for cardiac devices so not many people get CRTDs. I feel fortunate to have one and I hope it will help me a lot. I have a Biotronik CRTD and am thinking of getting the CardioMessenger bedside moni...


Posted by Nickywick on 2014-08-13 18:53. 6 comments. 208 reads
 
Hi I had my pm fitted in may this year and recovering well except im very sore and have deleloped a keloid scar, yesterday I had my 4mth review and he said to get a seat belt cover, any ideas? also does bio oil work? :-)

Posted by Robert122085 on 2014-08-12 12:45. 3 comments. 171 reads
 
i have a surescan pacer and its been in now for almost a year and im having discomfort around the left side of the pacer. my doctor says its fine but in my mind discomfort is not fine

Posted by PK1960 on 2014-08-11 13:38. 3 comments. 147 reads
 
I had an AV Node Ablation in 2005 when my first PM/Dfib was implanted. My Afib was still there, but so controlled, the last eight years were awesome. Now the Afib has raised it's ugly head and symtoms are worse than even. My docs are suggesting another AV Node Ablation. anyone out there had a second, and if so, what are your comments on this?

thank you very much.



Member Login
email:

password:



Who's Online?
We have 1103 visitors online.

Members online:
  Runningmama
  Tinkergirl
  Roys
  donr
  AngrySparrow1
  Shell
  ScaredOne
  1965rich
  AB33
  Lurch

Polls
What type of device do you have?

Single lead pacer
Dual lead pacer
CRT
CRT-D
ICD

You're Wired When...
You can proudly say youÂ’re energy efficient.

Member Quotes
I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2014 Pacemaker Club Inc.
All rights reserved.