St. Jude Medical Pacemakers & ICDs

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Posted by Eunice on 2015-02-14 21:58. 6 comments. 321 reads
 
Glad to know this site exists. In my mid 50's, Pacemaker member since Jan. 2014, female, feeling unattractive and not having know anyone else my age with heart issues let alone a Pacemaker, just interested in your conversations!

Posted by Jfernandi on 2015-02-13 01:08. 9 comments. 353 reads
 
Just revived news that I may need s pacemaker after suffering a heart attack at the gym...seemed everything was looking good through short term recovery, but then passed out after getting up walk at the hospital...the news was/is shocking. I'm 43 scared and looking for someone to give me an idea about quality of life...can you live a healthy fulfilled life?

Posted by CapeTownGuy on 2015-02-12 05:07. 5 comments. 527 reads
 
My life fell apart just a 5 days before my wedding and I was 25. I am 30 now, 5 years later. I had had an incident where I blacked out at work a few months prior and had hurt my neck rather badly and had to see a neurosurgeon. Luckily no surgery was required but he insisted I see a physician about why I had blacked out so suddenly. After a few tests and nothing had come up until I did a stress ECG and bingo. The physician then sent me onto the worlds worst cardiologist who saw me 5 days before my wedding and told me he was 90% certain I have heart disease and that a biopsy was to be performed the following week and I started on Bisoprolol. Our honeymoon was cancelled and a little cloud hung over the most amazing wedding ever. That was Apri...


Posted by splendid1 on 2015-02-11 00:17. 4 comments. 239 reads
 
Has your PM had an impact on your life insurance? What has been your experience? Thanks. Peter

Posted by Seabreeze on 2015-02-09 11:08. 10 comments. 316 reads
 
I had my pacemaker put in Oct 9th of 2014 and I still have good days and bad. I'm fine for weeks and then I'll be exhausted and I just "don't feel right"....hard to describe, kinda dizzy and weak I guess. Just an "off" feeling. This weekend I did things around the house, took a walk and went to the gym but still didn't feel good enough to drive and do the thousand errands I usually do. Napping on the couch was what I did. I'm not one to baby myself and I do push but I decided to listen to my body. Does any body feel like that from time to time? I just need a little mental boost.
Thanks.


Posted by hammer77 on 2015-02-05 23:39. 2 comments. 157 reads
 
Hello I'm new to the site I have had my ICD since 2001 I had a cardiac arrest and got it implanted I've had one battery replacement since 2001 I always think something is going to happen to me lately I have been having fast heart rate then it quits and comes back and I get the erge to go to the bathroom number two lol I got it tested today and everything checked out fine they don't know what's causing it might be stress just looking for advice how to cope I'm 37 have had two open heart surgerys and I'm scared that I won't be here for my kids thanks for listening

Posted by MARYJANEOB on 2015-02-05 11:40. 11 comments. 300 reads
 
I'm new to the group. I had a CRT-D implanted 11/14, but because of complications attaching the left lead, it took 2 more procedures to finally "hook me up" on 1/15. A second incision had to be made on 1/15. How long will the scars be very visible, & how long will it be before I can lay on my left side without waking up with aches?
I'd appreciate any comments.

Posted by GingerVa on 2015-02-04 17:58. 7 comments. 191 reads
 
I met someone at my gym who has an ICD-PM. She told me that she doesn't know why she needed the implant, she just wanted what ever was wrong fixed and she didn't want to think about it or ask her doctors what is being treated or how. Obviously she can do it her way but I need this community and the knowledge I find here.

Lately I've been struggling with running--it is hard for me to run more than 2 miles. and my migraines seem to be getting worse. I've been getting a migraine that last a couple of days every couple of weeks. My neurologist actually advocated for my pm because she believed my chronic migraines were connected to heart problems. My migraines are better than before pm but starting to increase again. Maybe it wil...


Posted by Critter on 2015-02-04 08:41. 14 comments. 392 reads
 
I became permanently paced in September 2014. I was told that I would feel like a new person but that it might take 2-3 months to adjust to the pacemaker. It's now February 2015 and I'm still having issues with it. I get short of breath, dizzy and fatigued with pressure in my chest on exertion. The specialist told me during my appt. with him yesterday that it's just taking me longer than usual to get used to it. Has anyone else taken this long? I've had 5 ablations to eradicate atrial fibrillation and resorted to AV node ablation only because there was no other alternative. Now I'm wishing that I'd never had it done - my quality of life hasn't improved and I'm getting out of shape. Even going for a walk exhausts me...can anyone te...


Posted by WendyH on 2015-02-01 06:27. 5 comments. 371 reads
 
Hi there, I have been having blackouts for months and only recently (2 months ago) been referred to hospital after my GP was concerned because I had blacked out on the road and someone called ambulance to take me to hospital. I have had lots of different tests done at hospital and recently wore a 24hr ECG tape and blacked out whilst wearing this the following morning. This was horrible for me as I felt crap for hours after but on other hand this was good for recording what actually happens. I returned the tape on Saturday afternoon and on the following Tuesday I received telephone call from hospital to return to hospital asap for a heart scan; I was called into hospital shortly after to see the consultant and I was expecting a bottle of...


Posted by doodlebug66 on 2015-01-29 00:49. 2 comments. 297 reads
 
Hello I am new to this site. I just had a PM put in on 1/6/2015 and I am wondering if anyone has experienced sharp pains around the implantation site. I also get a burning sensation a lot. I have also cried about this a lot. I am grateful that I am alive but this all happened so fast. I had to go to the emergency room on New Years eve for a temp of 105.4. I was diagnosed with pneumonia and the flu. When I went in for a check up the following week my heartbeat was 43bpm. While in the hospital nothing was said about my heartbeat. With that being said the doctor would'nt let me leave until I called my cardiologist. Was seen the next day and my heartbeat was 47bpm. That was on a Wednesday, went back on Friday for another ekg and was told I was...


Posted by raiderralph on 2015-01-29 00:25. 6 comments. 242 reads
 
I am currently on 6.25 Coreg twice a day my doctor wants me to increase to 12.5. Are there additional side effects? I tolerate 6.25 pretty well... Thank you

Posted by Auntiepud on 2015-01-28 22:10. 7 comments. 335 reads
 
Hi all, I am new too site and looking for some answers if anyone would be kind enough to help.
I had my pacemaker fitted on 15/01/15 and I still feel in alot of pain and can not seem to get comfortable at night I am very self conscious and do not know who to talk to I feel myself getting very emotional. I also feel like I can feel it working and I am not sure if I am meant to. It all feels strange and not sure what to do.
Thank you for your help in advance x

Posted by tessenne on 2015-01-27 02:50. 3 comments. 190 reads
 
I guess I am still reeling from my sudden need for a pacemaker. I am now also taking Metropolol 12.5 mgs a day, twice a day. Low dose. I have pain all down the right side of my body, which is the side I have both my heart and the pacemaker. There is a stabbing pain behind my right eye. The right side of my neck hurts and on the right below my ribcage. It all mostly feels like tight, sore muscle aches. I also have a noticeable weakness in my right arm when using it in tandem with the left, such as typing or holding my baby or cooking. I have been an absolute nag to my EP since all this started and I do not even know what things are his territory and what things are for my PCP anymore. I guess I am just looking to vent and see what you wise ...


Posted by Mentok on 2015-01-26 07:44. 8 comments. 379 reads
 
Hi all,

My names Josh and I had my pacemaker installed two weeks ago. I am usually very upbeat and have never let and health issues get to me as I have many. I had 4 ablutions while still in the military and recently had to get the pacemaker due to bradycardia. I am now having panic attacks and crying at night when I hav no one around to hide these feelings from. This is not who I am as a person. I am the type to not get sad or ever have these types of feelings. Last night I cried for a full hour and just had a deep sense of dread. I've read that this is common but as I have never really felt with any sort of depression I would love some advice or support. I am 24 years old and honestly I feel like I want it out of me.


Posted by glowiegirl on 2015-01-24 10:11. 8 comments. 279 reads
 
I have a 2 lead pacemaker now (ST. Jude). Very faint, EF at 25%--so doc decided to put in a 4 lead (CRT-D. How big will it be? How much time till the pocket will not be painful? How painful is it if I get a shock? I have been told it hurts for days afterward. I heard they test it while you are on the table and your muscles will cramp and the pain will stay with you for the time it takes to heal.
Wouldn't a 3 lead pacemaker be just as good? I guess I just need some stories from you guys to see if I want to go through with this. The operation is on FEB 6 Thank you

Posted by kmom on 2015-01-20 10:16. 1 comments. 151 reads
 
Thinking about trying Sotalol AF for afib. It's much less expensive than the Propafenone that i'm on and even though i'm up to the max dose i'm still having some issues with SOB, and tachy rhythms. the NP that works with my dr. I saw back in Dec said I could try it if I wanted to. and said I didn't need to go to hospital like i'd heard. anyone taken the drug and what are the side effects?? no plumping problems (ie heart attack etc.) mine just seem to be purely electrical SSS tachy brady but have PM now to help with the brady. I'm sick of being out of breath and having my heart race every time I climb my stairs or walk across a parking lot.

Posted by exshatlad on 2015-01-20 09:07. 1 comments. 157 reads
 
Hello all, this is my first post on here I have just had a pacemaker fitted, Got a letter on dec22 2014 to say i had been booked for an urgent appointment to have a pacemaker fitted on the 15-1-2015
it was a shock as no body had told me why I was fitte with a reveal device a year ago and had no issues for the first three downloads but the fourth aparently showed total heart block,
I booked a week off work and went for the implant came home last saturday but i feel awfull i can nor ride in my wifes car as the motion makes me feel ill and today I walked to the postbox and felt just as bad, Is this normal.
it feels like something is in my heart and it hurts.
any advice will be most welcome.


Posted by tessenne on 2015-01-19 02:28. 9 comments. 566 reads
 
If I were to die from a non heart realted issue, such as a car accident, would my pacemaker have to be turned off before I was clinically 'dead'? Like, would it keep my heart beating regardless of the state of my brain or other organ function?

Posted by cmartin2930 on 2015-01-16 22:16. 3 comments. 200 reads
 
Hey, I'm Christopher Martin, I am 21 years old. I received dual pacemaker/defibrillator last year in May during final exam week. I am having trouble deciding what I want to do but I feel like I'm scared to do anything because I think I might have another accident. I am a very active person. I like to play basketball, run, climb, & lift stuff. But the thought of trying to get back active is scaring me even though my cardiologist changed the settings higher for me. What can I do to get over this scare? And just sitting behind a desk is not where my heart lies. Also if anyone has an easy workout plan & willing to share please do not be afraid to comment.

Thank you,

-Christopher Martin



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