St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Auntiepud on 2015-01-28 22:10. 7 comments. 325 reads
 
Hi all, I am new too site and looking for some answers if anyone would be kind enough to help.
I had my pacemaker fitted on 15/01/15 and I still feel in alot of pain and can not seem to get comfortable at night I am very self conscious and do not know who to talk to I feel myself getting very emotional. I also feel like I can feel it working and I am not sure if I am meant to. It all feels strange and not sure what to do.
Thank you for your help in advance x

Posted by tessenne on 2015-01-27 02:50. 3 comments. 183 reads
 
I guess I am still reeling from my sudden need for a pacemaker. I am now also taking Metropolol 12.5 mgs a day, twice a day. Low dose. I have pain all down the right side of my body, which is the side I have both my heart and the pacemaker. There is a stabbing pain behind my right eye. The right side of my neck hurts and on the right below my ribcage. It all mostly feels like tight, sore muscle aches. I also have a noticeable weakness in my right arm when using it in tandem with the left, such as typing or holding my baby or cooking. I have been an absolute nag to my EP since all this started and I do not even know what things are his territory and what things are for my PCP anymore. I guess I am just looking to vent and see what you wise ...


Posted by Mentok on 2015-01-26 07:44. 8 comments. 362 reads
 
Hi all,

My names Josh and I had my pacemaker installed two weeks ago. I am usually very upbeat and have never let and health issues get to me as I have many. I had 4 ablutions while still in the military and recently had to get the pacemaker due to bradycardia. I am now having panic attacks and crying at night when I hav no one around to hide these feelings from. This is not who I am as a person. I am the type to not get sad or ever have these types of feelings. Last night I cried for a full hour and just had a deep sense of dread. I've read that this is common but as I have never really felt with any sort of depression I would love some advice or support. I am 24 years old and honestly I feel like I want it out of me.


Posted by glowiegirl on 2015-01-24 10:11. 8 comments. 266 reads
 
I have a 2 lead pacemaker now (ST. Jude). Very faint, EF at 25%--so doc decided to put in a 4 lead (CRT-D. How big will it be? How much time till the pocket will not be painful? How painful is it if I get a shock? I have been told it hurts for days afterward. I heard they test it while you are on the table and your muscles will cramp and the pain will stay with you for the time it takes to heal.
Wouldn't a 3 lead pacemaker be just as good? I guess I just need some stories from you guys to see if I want to go through with this. The operation is on FEB 6 Thank you

Posted by kmom on 2015-01-20 10:16. 1 comments. 141 reads
 
Thinking about trying Sotalol AF for afib. It's much less expensive than the Propafenone that i'm on and even though i'm up to the max dose i'm still having some issues with SOB, and tachy rhythms. the NP that works with my dr. I saw back in Dec said I could try it if I wanted to. and said I didn't need to go to hospital like i'd heard. anyone taken the drug and what are the side effects?? no plumping problems (ie heart attack etc.) mine just seem to be purely electrical SSS tachy brady but have PM now to help with the brady. I'm sick of being out of breath and having my heart race every time I climb my stairs or walk across a parking lot.

Posted by exshatlad on 2015-01-20 09:07. 1 comments. 153 reads
 
Hello all, this is my first post on here I have just had a pacemaker fitted, Got a letter on dec22 2014 to say i had been booked for an urgent appointment to have a pacemaker fitted on the 15-1-2015
it was a shock as no body had told me why I was fitte with a reveal device a year ago and had no issues for the first three downloads but the fourth aparently showed total heart block,
I booked a week off work and went for the implant came home last saturday but i feel awfull i can nor ride in my wifes car as the motion makes me feel ill and today I walked to the postbox and felt just as bad, Is this normal.
it feels like something is in my heart and it hurts.
any advice will be most welcome.


Posted by tessenne on 2015-01-19 02:28. 9 comments. 554 reads
 
If I were to die from a non heart realted issue, such as a car accident, would my pacemaker have to be turned off before I was clinically 'dead'? Like, would it keep my heart beating regardless of the state of my brain or other organ function?

Posted by cmartin2930 on 2015-01-16 22:16. 3 comments. 194 reads
 
Hey, I'm Christopher Martin, I am 21 years old. I received dual pacemaker/defibrillator last year in May during final exam week. I am having trouble deciding what I want to do but I feel like I'm scared to do anything because I think I might have another accident. I am a very active person. I like to play basketball, run, climb, & lift stuff. But the thought of trying to get back active is scaring me even though my cardiologist changed the settings higher for me. What can I do to get over this scare? And just sitting behind a desk is not where my heart lies. Also if anyone has an easy workout plan & willing to share please do not be afraid to comment.

Thank you,

-Christopher Martin

Posted by TessyBear on 2015-01-15 17:44. 11 comments. 363 reads
 
Hello all,

I'm a 39 year old female in England whose heart 'paused' for 13 seconds and was fitted with a two lead pacemaker as a result. It all happened so quickly that I don't think I've taken it all in.

I'm off work recuperating at the moment and getting plenty of rest. Returning to a normal life seems a bit daunting because everything has changed, although it hasn't in reality.

Family and friends tell me this is the start of the rest of my life because I've struggled with fatigue and misdiagnosis for years. I hope this is true, I really do but I can't help but be apprehensive. What if I pull a lead out? What if the insertion site gets knocked? What if I don't feel better? So many what if's...



Posted by alimiller08 on 2015-01-15 13:08. 8 comments. 379 reads
 
Good morning,

Just joined this site...probably should have a long time ago. I am 24 yrs old and I was diagnosed with third degree heart block when I was 13 months old and had a pacemaker implanted. I have had one ever since and I am currently on my 4th pacemaker. My heart beats under 30 bpm on its own. I still have leads from my 2nd surgery at 3 1/2 yrs old. Ever since I was old enough to understand my condition and the fact that I am completely dependent on a machine for survival, I've had anxiety in the form of "You must live every day like it's your last." I feel that has gotten worse in the last year to the point where I am so depressed that I have to spend 9 hrs a day in a job that I hate. And I have to work in order to hav...


Posted by tessenne on 2015-01-15 02:27. 15 comments. 294 reads
 
I am 28 years old. I was born with dextrocardia and have always been told it is harmless and will never effect me. I have spent the last five years experiencing episodes of near syncope. Last year, 2014, I began losing my balance and falling to the ground during these episodes which had never happened before. The episodes became more frequent and at one point, I had eight episodes of near syncope in one day. My doctor was struggling with insurance to get me a monitor to wear at home but with that one day he found a way to get me the monitor. I got it last Friday and experienced two episodes on Sunday morning, around 1a.m. It was found that my heart had paused for six seconds and I was told to seek immediate medical help and that I would li...


Posted by Holla on 2015-01-13 13:37. 3 comments. 207 reads
 
Hi I'm new to this and just wanted some reassuring
My daughter had heart checked by off chance due to her having epilepsy and they detected something but nothing to worry just beat of heart change and wasn't that concerned as they (they is great or one street) we will monitor your daughter again in 6 months this went on for 4 years
So going to another trip to gosh I expected to be told the same thing like always but to my surprise they spoke to me and said maybe a pacemaker would help to be fair I was alone as normally it's nothing to worry so told patner not to is work for it
As you can imagine my mind ticked off and I felt I was being spoken to but I just couldn't hear
Her heart machine reading came back and they are...


Posted by edwardtk on 2015-01-13 02:27. 8 comments. 375 reads
 
Hi, i'm new to the Pacemaker club. I suffered syncope and heart block and have felt generally tired for a few years now. I had no choice but to install a dual chamber pacer exactly 2 months ago. As a fit and healthy person, this came as a massive shock to me, I still can't believe that it has happened and i find myself worrying/panicking that the machine (and me) will stop...i must be driving my doctor crazy. I am a worrier and find it difficult to get back to "normal" life (eating, sleeping, wokring..) How do you deal with the anxiety?

Edward

Posted by Margo1 on 2015-01-10 22:00. 7 comments. 220 reads
 
I am 5 days after getting my first PM & am relieved to find this club!

It's been a pretty scary few months

Margo
Columbus, OH

Posted by caroylbills on 2015-01-08 23:01. 1 comments. 206 reads
 
I received the pacemaker in August of last year and after my first interrogation I was told that the first month after getting it I had 50 (incidents) most were short duration. 2 weeks ago I passed out again and went to the ER and on the (EKG?) it showed the pacemaker was acting but I have been having an episode of fluttering every night at exactly 12:00 PM, exaction 12:00 PM so I went back to have the Interrogation and none of this showed when interrogated. No one can explain the 12:00 thing or why I went from 50 incidents a month to 0. Does anyone have any ideas on this. I'm concerned.

Posted by 222star222 on 2015-01-06 14:41. 10 comments. 566 reads
 
I'm new, just had second implant in 3 months--first one had exit block. Anyway, I understand the technical/physiological reason I needed a pacemaker (type ll av block), but I wonder if there is a spiritual/emotional reason underlying the physical--that is, is my heart trying to tell me something? Does anyone else wonder about this?

Posted by MINT on 2015-01-03 13:16. 3 comments. 216 reads
 
JUST GOT PACE MAKER 2 WEEKS AGO. DOCTOR SAID IT WAS ELECTRICAL ISSUE. I WAS BIKE RIDING AND PASSED OUT! I PASSED OUT A 2ND TIME IN HOSPITAL WITH HEART MONITOR- THAT'S HOW DOC DECIDED ON PACE MAKER. SOMEWHAT DOWN. I HAVE BEEN TIRED SINCE PROCEDURE AND STILL HEALING FROM BIKE FALL- STITCHES IN FOREHEAD, 2 BROKEN RIBS AND BRUISES- INCLUDING FLUID ON THIGH STILL WAITING TO ABSORB. ANYONE WITH SIMILAR EXPERIENCE?

Posted by sweetcheeks on 2015-01-03 05:09. 8 comments. 292 reads
 
Hi everyone I just received a dual lead PM on the 11 Dec 2014 so I'm still trying to get used to it and coping as its only been 3 weeks.
Very sore shoulder and itchy at the scar just now. Still trying to get used to it with clothing. I know it's early days but very awkward trying to lie on my left side, it actually stings like mad when I turn around in bed. I've had a wee bit of fluttering and bit out of breath when it happens. I've also felt pulsating now and again at my lower left ribs. Is this normal?
I have the usual post op symtoms of being uncomfortable trying to reach to the right with my left arm and my shoulder has been very sore. I'm hoping that this is all very normal and will settle...one day thanks

Posted by Judy13 on 2015-01-01 22:48. 3 comments. 264 reads
 
Hello,
I have had my device for one month. I was wondering if anyone experiences discomfort when clothing touches pacemaker site. Also, it feels like it still moves under my chest. Is this normal?

Posted by janec on 2014-12-27 18:04. 9 comments. 443 reads
 
On December 9th 2014 I got a message to say my Dad had been found dead on his kitchen floor. I couldn't believe this was true - he had been at our house having dinner with my children 2 days earlier and was on good form. We found out from the coroners report that he had died 24 hours earlier on Dec 8th (less than 24 hours since being at our house having Sunday dinner and was in good spirits). I can't come to terms with losing my Dad. He had had a triple bypass, 3 stents, pacemaker and a valve replacement earlier on this year. This Christmas has been extremely tough but I have 3 very young boys to think of. I just wish that I could speak, hug and be with him for at least one more hour to say thinbgs were ok. I still can't understand how aft...




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