St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by ShazG on 2016-01-19 11:54. 2 comments. 443 reads
 
Hi,
I have joined this forum to try and find out whether I am the only person with a pacemaker who is feeling ill ! I had my pacemaker fitted 2014 after months of feeling extremely tired with no energy,as I have an under active thyroid and at an age for the menopause and a little over weight and a smoker these things were blamed .......I stopped smoking and lost weight but felt the same .... Eventually a GP listened and decided to investigate ...... 6 months later I had a pacemaker fitted in 2014 as my heart rate was 30 ! , I still feel unwell quite regularly I pick up every cough cold illness going around ( which I never did ) I have a swollen left leg a very tender left breast and a fuzzy feeling in my left arm and I get very brea...


Posted by jsne on 2016-01-16 13:04. 2 comments. 364 reads
 
Hi folks, it's snowing here but in a grey miserable way matching my mood.
Have come off the verapamil as it wasn't helping and thought next step was ablation, however this seems not to be (yet).
It turns out that the main arrhythmia that was causing problems was PMT and after checking my PM after the adjustments in August they think it's pretty well under control, however since November I have been getting pulse like feeling under my L rib cadge and have definitely lost some of my exercise tolerance
- blamed meds, but have not improved since coming off it. The technician made "a very small" adjustment at the end of December and know feel like I am PM blocking again, not as bad as before but enough to get the headache and ti...


Posted by JoMarie on 2016-01-15 18:18. 2 comments. 483 reads
 
I have had a great year with no symptoms and no drugs other than anti coagulation, following pacemaker and AV node ablation. I even forgot I had a pacemaker and all the anxiety which had gone before.

However, last week I awoke with all the old symptoms - chest discomfort, breathless and feeling ill generally. I knew immediately it was AFib breaking through and wondered if the pacemaker was working correctly. I went to the Clinic and was told on printout that I had had eleven episodes of AFib during that week and none at all for many months previously. It has settled again but I am dismayed that I could feel so bad again despite all the work done. I thought an AV node ablation would prevent symptoms. I know it will not prev...


Posted by Eunice on 2016-01-12 00:22. 7 comments. 432 reads
 
Hello!

Are their any female members in their 50's online now?

Posted by CC88 on 2016-01-11 22:51. 3 comments. 373 reads
 
Hi

I recently had a PM implanted (Dec 7) and before that I experienced many skips during the day. I was wondering why I still feel the skip beats, but I can also (when checking my pulse) feel the beat, which I am assuming is the paced beat. Its weird how I would still feel the skip beat feeling. This happen to anyone else out there?

Thank you

Posted by Debs59 on 2016-01-05 21:58. 3 comments. 425 reads
 
Hello! Been reading messages for a couple of weeks now and decided to join. Had my CrtD implanted on Dec 17 after denying I needed one and still adjusting. I think I am doing good but still have difficulty with pain by and around the implant site. Ice works great! Had my 2nd programming Check and everything's good. How long will this hurt/ache? I know, patience...

Posted by sunigirl on 2016-01-05 16:28. 3 comments. 402 reads
 
Hi all. I have posted before as I had AV node ablation in October 2015. For the past few weeks I thought I was improving but now A.fib seems to have a new lease of life and I have ectopics and very fast pulse. I thought that even though my atrium will fibrolite it can't get through to ventricals to make them irregular or fast.
Pace set at 60 to 130 bpm. I feel distressed about this as I am due a hip replacement and they wouldn't do it until AV node had been ablated and pulse regular. Any info will be appreciated. Thank you
Susan

Posted by Dashwo200 on 2015-12-30 16:08. 8 comments. 601 reads
 
Hello. I joined this great site to get more experienced info on pacemakers. I looked up coping with memory loss. Seems this is not so uncommon after a PM is installed. My question is does it improve as time goes on? Has anyone experienced a gradual re-gain on short-term or does it get worse as time goes on? Will be going to see the Cardio. in a couple of weeks and this issue must be addressed. Need some pro-personal help here. Thanks for any feed-back on this.

Posted by purdue1177 on 2015-12-28 21:01. 5 comments. 389 reads
 
Any suggestions on reminding me not to lift my arm past shoulder height, I have a sling device for nite but is bulky and difficult to wear with a heavy shirt, jacket, (I live in Colorado) Any other suggestions to ensure a successful implant would also be appreciated.

Posted by jessie1948 on 2015-12-28 12:17. 4 comments. 472 reads
 
My Husband has had his pacemaker now for 10 months. His daily routine consists of waking up mid morning, having a shower and a bowl of porridge then back to bed for the day. He wakes up mid afternoon, and won't eat or drink. He has no interest in going out, or even reading the paper anymore. I think he's depressed. He fights with me about taking his medications and some days won't take all of his pills. He suffers from water retention in his lower legs and does not elevate them, or drink enough water, then his mobility becomes a problem and he's cold all the time.

I think he's depressed. In the past 3.5 years, he was in a motorcycle accident. He was hit by a car, which caused a few injuries and took some time to recover. Afte...


Posted by Dal2 on 2015-12-25 23:08. 3 comments. 414 reads
 
So, went into several episodes of 2nd, 3rd degree, and complete heart block. MD said need 2 chamber pacer, so had it put in last Monday. LOTS of anxiety now which nurse told me was normal and will pass! I mean, I'm even afraid to be alone right now! Has anyone else experienced this and did you do anything in particular to get through it?

Posted by alex32 on 2015-12-23 03:46. 4 comments. 464 reads
 
Hey I'm new to the group. I had a heartattack last March of 2014. , then I ended up get a pacemaker .after several ablations and heart procedures. then my pacer and leads got infected that lead to. Endocarditis . had to have leads and pacer replaced. and had to get a port for antibiotics for 8 months. I've been on so many meds for Afib atrial flutter svt . had my sinus node and wc node ablated . I'm dependant at 32 years old. o well . I feel better. I will deal with the heart failure when it comes.

Posted by Kassa on 2015-12-23 02:07. 2 comments. 374 reads
 
A little concerned as I do not seem to be very energetic- not as much as I used to be. Noticing some breathlessness every now and then too. It has been 18 days since my two lead device was placed. Had trouble with spiking blood pressure and I went to the ER one week later and had a battery of tests for two days. With the blood pressure med Linisprel changed to 10ml. It appears to be stabilized now. Any thoughts?

Posted by bvanleer on 2015-12-19 23:44. 3 comments. 470 reads
 
Pacemaker installed 5 days ago on my left side. When can i sleep on my left side without disturbing the pacemaker

Posted by vegigran on 2015-12-16 02:37. 7 comments. 468 reads
 
It's been three months since implant. The next day after implant the left side of my diagram would twitch on and off. That stopped after a couple of weeks. Now my right side is starting to do this especially when I lie down. It doesn't hurt at all, just annoying. Has any one else experienced this?
Thanks,
Sharon

Posted by Cparr on 2015-12-15 20:45. 4 comments. 394 reads
 
Hello,I had a pacemaker inserted two weeks ago and then had the settings adjusted one week ago. Since the re setting I have struggles with frequent bouts of light headedness. I also started a beta blocker at that time. Does anyone have experience with this? Could the light headedness be caused by the adjustment to settings or the meds?
Thanks

Carol

Posted by Bulletproofheart93 on 2015-12-15 19:43. 3 comments. 539 reads
 
Hi all, My name is Hayley, 22 and I am new to the group,
I have had a pacemaker since I was 8 months old. I was born with Congenital heart defect, arrythmia and heart block. Until I was 11 I had a 1 wire pacemaker fitted, then it was changed to a new 2 wire system. As I have grown up I have started struggling more and more, my pacemaker was changed when I was about 17 and I was checked the other day, I have about 4 years left.

I've been going back and fourth to drs and the hospital due to severe breathlessness when going up the stairs, I'm continually tired and just a couch potato , I'm gaining weight on my stomach more due to this and my poor diet and being unable to excersise.

I went in yesterday and was tol...


Posted by Nick135 on 2015-12-10 05:53. 0 comments. 463 reads
 
Hello everyone, sorry this is so long, but idk what other board could better prepare me for the future.

I am 24 years old and have had PAC's since I was 14. I have had stress tests and an Angiogram done in the past. I have never been on meds or had restrictions. Recently (two weeks ago) I had some late night panic attack episodes and pain in my chest. I went to the urgent care and they told me I may have costochondrotis (inflammation of the cartilage in the ribs/sternum). My pain was reducible with tylonol. Well anxiety has kicked into OD and I have been stressing over my heart and needing a checkup. Just having left the military I haven't set up a PCM yet and he can't see me til January. I went into the ER this morning because ...


Posted by Goffie on 2015-12-09 18:56. 2 comments. 619 reads
 
Hi all, my first post. Had my Medtronic PM implanted on Monday, today I'm feeling short of breath, have a headache above my eyes and it feels like I can feel the leads in my chest. I'm getting an uncomfortable feeling in the middle of my chest, as if the heart is saying it doesn't want this stuff there. And also have very little energy today. I'm an active 44 year old so this is weird.

Reason they implanted the PM is because I have intermittent bradycardia that was confirmed after a Reveal was implanted a few weeks ago.

My main concern is the slight pain and uncomfortable feeling in my chest coupled with the headache and lack of energy.

Anyone experienced any of this and have any words of wisdom for this P...


Posted by corkie1 on 2015-12-06 22:21. 4 comments. 454 reads
 
Hello, I wanted to ask if anyone else is having problems with their pacemaker like mine. I am just 5 months postop from insertion of pacemaker. I am trying to go back to my gentle exercise class and walk. However when I do, I am getting atrial fib, hot sweats, pulling or smarting of my pacemaker. It is like a safety pin sticking in me. I get short of breath, and a puling sensation with atrial beats, sore around my pacemaker like it is pulsing or hot, when I walk or do exercise. Has anyone ever had these symptoms?



Member Login
email:

password:



Who's Online?
We have 6439 visitors online.

Members online:
  phyllandrew
  donr
  DampDog
  Artist
  Cally90
  billyxoc1@gmail.com
  Lurch
  Barnes42
  Megan
  PatCan
  GoodDog
  Sunnystives
  Lucinda1406
  Grilor
  Tattoo Man
  Woodsey
  paulc1950
  techiej
  Bionicwoman
  BrynaR
  gojack
  becky1958
  TraceyE

You're Wired When...
You take technology to heart.

Member Quotes
I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.