St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Artist on 2014-11-26 22:37. 5 comments. 267 reads
 
I am 73, but have always enjoyed exercise and have felt competent and fit. AFIB and a very slow heart rate required implanting a pacemaker three weeks ago. Now that the very slow heart rate is not an issue I am going through the period of experimenting with medications. Other than feeling slightly like I imagine a person on tranquilizers would feel and sleeping longer at night, I am dong well. I am impatient to get the itchy steri strips off and getting beyond the 30 day period of movement restrictions. The presence of a little computer in my chest has definitely required an attitude readjustment. At least I will no longer have to fear going to sleep at night because my heart rate is so low (7 bpm in one instance). I look forward to...


Posted by Heartbeatflutterfly on 2014-11-26 20:37. 6 comments. 254 reads
 
Hi I'm a 29 year old female and had my insertion done three-weeks come tomorrow and the sleeping has been so challenging, bought me to tears the first few nights and it's only been of recent that the discomfort is slightly, not by much, become more bearable than the first week and also being 'top-heavy' is a challenge on top of a challenge pillows upon pillows upon pillows barricading me in at the beginning of going to sleep but end result of all on the floor and me almost going with them!
It's definitely a no-go with a bra at this stage which is so...well...not a trend that'll catch on for the long term!

It's comforting to know that I'm not the only one going through this, it really has helped as I have no one around me ...


Posted by vwkimmy on 2014-11-26 12:16. 1 comments. 209 reads
 
After the birth of my first child I began to have troubles with my heart rhythm, and heartbeat speeding up...very high. The cardiologist (Ashook Bajaj) began with meds to reduce the speeding up of the beats. No one new what WPW was then, After four years of my heart racing upwards of 300 beats per minute, and the meds not working, they suggested open heart surgery, and ablation. (Experimental at the time)
1990, woke up 25 years old, with external pacer, which became internal. Went home after 23 days in hospital. It was a few years later that I actually found out I am 100% paced, I've no rhythm without the pacer! The last office visit when they turned off my pacer to "check it", my husband said I just went limp like I'd just passed on...


Posted by water on 2014-11-25 14:44. 6 comments. 248 reads
 
Hi all,

I am 36 and just had my pacemaker put in last Friday for AV block 2-3 degree. I have had this condition for a long time. I am on minium pacing, and right after surgary I can feel freqent contractions of my heart everytime I move around. AM i feeling the pacemaker working? I would love to get in touch with anyone who has a pacemaker for AV block and how they coped with the device. Love to hear from you.\

Bill

Posted by Ms on 2014-11-24 14:19. 1 comments. 120 reads
 
In the past 4 weeks I have had a pacemaker implant and AV node ablation done due to atrial fib. I am now having constant shortness of breath requiring oxygen at all times. I go for an adjustment tomorrow. Has anyone else had this problem???

Posted by robertleec2 on 2014-11-21 22:22. 7 comments. 315 reads
 
I'm 62 yrs old, got 5 stents, had 2 episode s of v tack with chemical invertions, 2 spine surgeries, 1 stomach surgery,, 4 knee surgery s and going in this wed for a 2 lead pacemaker. Yep I'm scared.

Posted by racquelwilliams@rocketmail.com on 2014-11-21 19:04. 5 comments. 170 reads
 
is it safe for a women with a medigronic pacemaker to get pregnant ?

Posted by rolson on 2014-11-18 17:57. 12 comments. 480 reads
 
Ok, this may be a silly question but, before my new friend in my shoulder I was a side sleeper, left side, right side, didn't matter as long as it was not on my back. I got my PM 2 weeks ago today. I have been sleeping in my trusty lazy boy chair because I am afraid I will tuck my hand behind my head and curl up on my side, like I used to. I am going to be away from home and my comfy temporary lazy boy bed. My question is, how long after implant do I need to wait to sleep on my side? ?? Also, my husband would really like to have me back in bed with him. (I think his feet are cold).
Thanks for the help.
Robin


Posted by pacemakersal on 2014-11-18 07:50. 4 comments. 327 reads
 
Hi,
I hope this group is still going. I have had my pacemaker for a 3rd degree av block since June 18. It has been a difficult ride. I was very sensitive to the pacemaker and have had it adjusted several times. The last time I had it adjusted by the Medtronics rep and for a short time I felt great. Then I got a cold. After the cold, I went to the ER because my chest hurt so bad, I could not lie down and had difficulty breathing. The pacemaker, they said was adjusted okay and all else checked out. I am not feeling myself and feel pretty depressed. I was healthy and very active 6 weeks before I experienced symptoms. Heart rate went down to 40. I am having difficulty adjusting to this more limited level of activity. I keep t...


Posted by tomshad on 2014-11-15 22:52. 4 comments. 259 reads
 
Hey all

getting my defibrillator put in monday nov 17 . I am a pro musician ( electric bass, stick, guitar and mandolin), 50 years old and scared when i read that headphones are dangerous.

any other pro bassist or guitarists on here i can converse with about reality of gigging and rehearsing ?


thanks

Tom

Posted by Narda on 2014-11-13 05:45. 6 comments. 351 reads
 
Hi Again Everyone,

Thanks so much for all the comments. It is comforting to know that I am not alone on this journey. I do have a question, has anyone had any problems with electrical appliances, etc? I am especially concerned about hair dryers. I have read so many conflicting things, that I am confused. Thanks.

Narda

Posted by Narda on 2014-11-12 15:37. 5 comments. 458 reads
 
Hi Everyone,
I am a new member here. Last Friday I had a complete AV node ablation for Atrial Fibrillation. I am now 100% dependent upon this pacemaker, which was inserted on January 20, 2014 for a slow heartbeat. It is scary to think that this is the only thing keeping me alive. I try not to dwell on it, but it does creep back into my mind quite often. Does anyone else have these feelings? I would love to hear some comments on this. And how do they replace the pacemaker when it needs new batteries, when a person is 100% pacemaker-dependent?
Narda

Posted by Jemmima on 2014-11-11 15:12. 2 comments. 172 reads
 
Had pacemaker inserted 19 July 2014. Cardio inserted it very near my shoulder so that it wasn't visible on the slight tan I'd acquired, I told him a scar was not an issue... My problem is that my bra strap bites into the side of where the pacemaker is situated and I have tender lumps after wearing. As I am well-endowed I wear my T-bar gym top but it still chaffes and also have that pain down my back.Am wondering will this discomfort go away? And I'm still finding it hard to climb...

Posted by Duke Heart Patient on 2014-11-07 09:23. 5 comments. 270 reads
 
How many of you have anxiety that you think it triggered by your illness ? Who is one that just sits around thinking 24/7 about there body and feel like they are just waiting for something to go wrong ? Have any of you experienced and blurred vision or "spacey" feelings ? Have any of you ever felt "numb" and like you were here but not (If that makes sense) ... Thanks for the feedback ... Michael

Posted by rjsully on 2014-11-05 19:58. 3 comments. 205 reads
 
I had my f/u appointment this week with EP to discuss my options. After discussion, I have opted to go ahead w/PM as I didn't feel medications were effective and in fact made me feel worse (metoprolol/florinef) and didn't address the issue of slow HR. EP mentioned he didn't think it was slow HR that was making me feel so tired/crappy/dizzy but rather my neurocardiogenic syncope episodes. I think it is both. He said PM wouldn't help with neuro sync, but other posts I've read said it does and is reasoning for some to even have PM. I wonder how would neuro sync be managed w/o first having PM, when I have a low HR? So, he basically left it up to me..."what do you want to do". I said I feel I need to go forward with PM. I like being giv...


Posted by Duke Heart Patient on 2014-11-04 14:18. 11 comments. 406 reads
 
So why do you have a pacemaker ? How long have you had it ? What meds are you on ? What is your energy level like ? How old are you ? M or F ?

Looking answers to compare to my situation ... I am 40 , M , 3 meds , Pradaxa , Sotalol and Enalapril ... Single lead PM since 12-16-2011. Energy level on a scale of 1 - 5 is a 1. I just don't sleep good , have low energy. I thought the PM would help me out and increase my energy level but almost 3 years now and I felt 10 times better before the pacemaker.

Would love your feedback and it you would answer the questions.

Thanks



Posted by rolson on 2014-11-04 12:28. 5 comments. 231 reads
 
I am getting my Pm today. Nervous, wish it were over. Thanks alp

Posted by LitLady on 2014-11-04 07:44. 3 comments. 270 reads
 
My Medtronic pacemaker was installed 4/3/14 and has been moderately adjusted/fine-tuned 3 times. It is 7 months out and I have several issues:
#1 - A very mild but ongoing discomfort in my chest at the pacemaker site. I am a big-busted woman and perhaps the weight stresses the area and accounts for the problem.
#2 - My early AM blood pressure is significantly higher than before the implant. (I take BP meds that lower it after wakening.)
#3 - I have trouble staying asleep. I awake at 5:00 AM every morning, can sometimes go back to sleep, but by 7:00 AM I am UP! It makes no difference what time I go to bed, this is my daily routine.
Any thoughts out there from you "Pros" who live with a pacemaker too? Thanks

Posted by JoMarie on 2014-11-03 03:15. 10 comments. 289 reads
 
Are there others out there who have had pacemaker followed by AV node ablation specifically for paroxsymal AFib after failed ablations? I just want to know what followed for them in the months which lay ahead.

Will keep an eye here to see if anyone fits the bill ......

Posted by rolson on 2014-10-29 13:01. 7 comments. 272 reads
 
Has anyone had this issue with the heart and what was done to help. My low bpm is 35 and my high is 135. Doctor says we can try pacemaker and beta blockers but that may not be enough. Kinda scared now. Any help? ?



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