St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Seejai on 2014-02-18 07:39. 11 comments. 240 reads
 
Hello all, my name Craig "Seejai" I just recently had a ICD *single* put in. I wanted to know how long did it take you to get adjusted? How long do I have to wait before I can really move my arm or even stretch it out!? Also mentally I'm having a few issues with having a device in my body I can feel every time I move. Will this feeling go away? It's been about 2/3 weeks now an from time to time my heart still beats extra hard and irregular at times, I was reading that it will take a few adjustments before it's totally right. Is that true!? I know I'm asking alot of questions but this is the only forum that I saw that I felt comfortable enough to join. So if some one out there can
help most I'd really appreciate it!

Posted by ChefG on 2014-02-16 21:19. 7 comments. 290 reads
 
I'm new to this site so I hope I'm posting this in the right section. I'm 6 months post surgery. I had a pm put in after I was diagnosed with a resting hr below 30. The surgeon tells me it was a genetic anomaly. So at 43 after having the best year getting back into shape I ended up needing a pm. I'm back to my running routine and doing some weights, but I am very sensitive at the site and I have some strange twinges of pain occasionally. I have to make sure my wife or kids don't press their heads on the site when they hug me and I'm protective of the area when rough housing with my son. Even the seatbelt is irritating. Is this normal? Will it improve? I'm not sure if I'm just impatient or if I'm having issues I should address. My wife is a...


Posted by Suzie_G on 2014-02-16 12:56. 1 comments. 102 reads
 
Hello, can anyone help me please? I have had my pacemaker since November 12 but had trouble with leads until May 13. Now I find myself short of breath, giddy and have some chest pain, all very intermittently. I have had an echo and myocardial perfusion scan in the last month, and both are apparently normal, but on both occasions the medical staff commented on all my ectopics, the first time, atrial the second ventricular. So my question is, what does my pacemaker do when all this is going on? Could these ectopics be causing my symptoms ? Would it help to take a small extra dose of bisoprolol on the days when I feel rough ?
Sorry that's 3 questions ! If you have ant thoughts on this please share them
Sue in Hants in the UK

Posted by Casper on 2014-02-16 12:39. 12 comments. 277 reads
 
Attention Ian and Tattoo Man, et al,

I hope you're all safe and sound from all this terrible flooding.

Casper

Posted by trish on 2014-02-15 21:10. 8 comments. 266 reads
 
I am 5 weeks post implant and am experiencing what feels like frequent PVCs Or could this be paced beats? Has anyone else felt this kind of beat. It is disturbing.

Posted by bmccasland on 2014-02-14 22:03. 3 comments. 146 reads
 
I had a strange sensation, almost felt like a small shock in the center of my chest when I went to set on my couch, so I stood up immediately. Also a little pain some times around the implant site but baearable. Is that normal?

Posted by aimee07 on 2014-02-13 22:13. 5 comments. 150 reads
 
I am looking into starting to work for an multi-national company. But it means I'd have to make my night into day day into night.

I was wondering if it's okay.

What do you think? :)

Posted by trish on 2014-02-13 15:44. 3 comments. 144 reads
 
Has anyone used silicone scar strips over pacemaker implant scar. I have used in past over surgical scar with great success

Posted by JoMarie on 2014-02-11 12:44. 5 comments. 162 reads
 
After two failed ablations and lots of drugs for AFib over three years, last week admitted as an emergency with new addition of SVT also (alternating between the two rhythms) and was fitted with pacemaker on Friday being given the alternatives of aggressive drugs, or a third now risky ablation. All such a shock as I had hoped to be cured. The pacemaker will control but not cure the AFib I am told.

Feel like I have lost a fight - hate the thought of hardware in my chest (still to have the AV node ablated in one month) and am trying to come to terms with it all.

Glad to have found this forum and know I will read lots of helpful things.



Posted by carlynndv on 2014-02-06 15:30. 7 comments. 228 reads
 
Hello everyone!

I am 19 yrs old and have recently found out that I suffer from Long QT syndrome. I have never had any heart complications or problems and have always been an extremely active athlete.

I was not suppose to work the day that my accdient occurred, but I got called in to cover an employees shift. Thank goodness i did because while at work I collapsed and went into cardiac arrest. I had stopped breathing and was without oxygen to my brain for about 4 minutes. When the EMTs arrived they had to shock me back to life, (took them 3 times). Finally when I got to the hospital I had to be put in hypothermic therapy for 36 hours. About a week later I had my Pacemaker and ICD put in. Luckily my brain didnt reciev...


Posted by ReadingFC on 2014-02-05 08:33. 7 comments. 356 reads
 
I am a new PM patient, it all happened a bit out of the blue really and now I am trying to understand what it all means to me.

I was / am active and fit, run marathons, do endurance events the lot. My very regular exercise is walking the dog 3 miles twice a day.

28th December, felt a bit weird while out shopping, passed out and woke up about 10 seconds later. I was on my own, but I know I was not out long as a passer by told me. Stayed on the floor the ambulance came and got me. In the ambulance my heart stopped for 10 seconds and started on it own, and again the the hospital for about 20 seconds.

The week before this I had stressed way to much, ait too much, worked to much, worked days and nights, drank l...


Posted by Lexi on 2014-02-03 23:52. 11 comments. 295 reads
 
I got my pacemaker October 18 after the doctors discovered that I have a cardiac inhibitory reflex. It is a genetic condition that causes my heart to stop when my blood pressure changes. The hardest thing I have had to deal with is knowing that I am 21 years old and had to get this surgery. My sister has had cancer so I can understand that aspect of things, in that "it can happen to anyone" and dealing with doctors and surgeries. However, it is still jarring to realize that most people in my situation and on this site are the age of my grandparents. Is there anyone who got their PM at a young age as I have? I am also still hesitant to do many activities that I would normally not think about so are there any limitations that you have found?...


Posted by daynanestor1 on 2014-02-03 17:38. 3 comments. 294 reads
 
What I thought was a simple problem has now escalated into my family doctor wanting me to see a phsyciatrist!

My history:
43yrs old, female, had PM put in on 10/22/2013 for 3rd degree heart block, experiencing frozen shoulder (which I am in physical therapy for and it is getting better slowly), I still have a foggy head and lack of focus that I can't seem to shake and that has me a bit depressed, but I still push myself to get out there for my husband and kids.

I was put on Desipramine(25mg) and had a not so good reaction that landed me in the ER last Friday. All my blood work came out good, nothing wrong with the PM either, but I am still foggy. What is wrong and why can't these doctors figure it out.

Posted by book61 on 2014-02-03 17:34. 4 comments. 147 reads
 
I am new and have lots of questions. I hit the er with pulse rate of 38. (Jan 11th) 2 hrs. later they put in temporary pacemaker. My heart did not jump in and take over as doc had hoped so a permanent pacemaker was put in January 13th. I have not had any pain, you can barely see scar, but I feel no different energy wise????? There is some mental adjustment, but I know I am so lucky to be alive! When will I start feeling energized??? So happy to have found this support group. Hope everyone is doing good. Just really would appreciate your input and encouragement. Thanks.

Posted by izza47uk on 2014-02-03 06:17. 3 comments. 170 reads
 
Hello out there
Can any one tell me how they sleep all my life I have slept on my left side but now it is impossible as every time I do it sounds like a train in my head
I already suffer chronic pain in the lower back and also scar pain from many operations in the abdomen sleep was hard enough but now I have more things to stop my sleep
I am glad to be alive with the Pacemaker but how do I cope and get my life back I know that I am nearly 70 I still would like to enjoy the life I had
thank you for any help that you can offer

Posted by Bonevans on 2014-01-31 16:19. 12 comments. 272 reads
 
39 yr old female double chamber Medtronic placed 1/17/14 very first pacemaker! I am confused some days I have no pain whatsoever other days it feels like this thing is going to blow up its so tingly or fall out of my chest I have extreme shoulder pain and pacemaker and incision sight are completely numb feeling please help me should I go to er could it be infected or malfunctioning or does this just happen?

Posted by GratefulGirl on 2014-01-28 18:28. 3 comments. 176 reads
 
So physically I am told to 'return to normal'. But its been a month since I got shocked- hoping its my first/last. I was again on my bike- I told the story in another post already. But my head is in more fear and hesitation to exercise than after the initial cardiac arrest 9/1/13. I did get EMDR therapy that was AWESOME- I recommend it for the trauma, its amazing. AND I still have struggles, wanting to move on. Just reaching out to the club for whatever support you can offer if any. I love not being alone on this journey.


Posted by kim123 on 2014-01-28 06:35. 7 comments. 333 reads
 
Hi, my husband 55, had a pacemaker implanted suddenly on 17.11.13, due to Bradycardia underlying 34 bpm, He had not really had any symptoms until then, when he felt a bit lightheaded and felt unwell, so went to the A &E, so they said he had complete heart block, and within 16 hours, had a pacemaker, It all seemed a blur,
He has not coped well since, first he was hyperventilating, he went to his doctor, and he has referred him for counselling , but he will still have to wait another 4-6 weeks for this.
He feels that he should not be alive without this machine, (although on his paperwork it says Not Dependent, so how does that work, if they say you need one) he will not even take a paracetamol when needed., he does not like doc...


Posted by GONE on 2014-01-27 11:15. 5 comments. 269 reads
 

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The "Anatomy" and "Physiology" of a Panic attack
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Posted by Charli on 2014-01-27 07:17. 5 comments. 200 reads
 
I've been really busy recently working as well as doing a full time placement in order to earn my degree and become a nurse. Only problem is i have been working too hard and i've noticed an increase in the amount of tines my bradycardia has been triggered. 60+ hour weeks are tough!
I can't really cut back my hours either or i'd have to quit my job to concentrate on being a nurse and I can't afford to do that.

With all the running around none stop for the past 12 weeks working everyday of the week I've made myself ill, but it makes it so much worse when coupled with my bradycardia. I get so helpless i can barely move to call someone on my mobile to come and help and look after me while i recover.

Anyone have any ...




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