St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by Cynthiaian on 2015-09-20 20:24. 8 comments. 569 reads
 
I have had my pacemaker for just 2 weeks now. I have kept it fairly quiet as I am a private person but have shared with close friends. Most responses have been fine but I also was surprised by how many people didn't really know what a pacemaker is. Just wondering if you have noticed that people treat you differently knowing that you have a pacemaker or if it is somewhat of a non-issue when people find out. Thank you so much

Posted by mojo on 2015-09-19 09:28. 3 comments. 322 reads
 
Does anyone know of a firm which sells a car seat cushion to reduce road vibrations? After 2 years a bumpy car ride (I live in a mining area prone to subsidence) still makes my pacemaker race even though I have had it adjusted to it's safe limit.

Posted by LemonadeHeart on 2015-09-15 20:32. 4 comments. 329 reads
 
Hi Everyone. I just got a CRT-D four weeks ago. After more than 11 years of being sedentary, and out of breath all the time, I am starting to feel better. I can even go up the stairs without huffing and puffing! I'm a little anxious about this whole being battery operated thing. For the first two weeks, I could feel a faint thumping, like a gentle poke, on a fairly regular basis. Since then, I don't feel anything at all (except some tenderness, of course). Is it possible that I have accidently pulled out a lead and don't know it? Is that possible? I'm scared to start exercising after so long. I used to know when to stop because I couldn't breathe, now what should I look for? Sorry if these are silly questions, but I worry.

Posted by rowes69 on 2015-09-14 06:02. 3 comments. 326 reads
 
Hi all,
My name is Rowena Singh I am from India. I had suffered VT on 16 feb 2015. my pulce raced upto 240. The ER here tried giving shock but my pulse went flat. The senior cardiologist who was consulted, he adviced to try once more . I revived . after this i was implanted with st jude AICD device.I am facing many issues daily which my cardiologist or the icd technician does not resolve. i want to learn the experience of other people fitted with this device.
Thanks

Posted by gudava on 2015-09-13 01:03. 1 comments. 317 reads
 
Had crt-d placed a month ago. For a few weeks, no dizziness, now the dizziness is increasing. Any ideas? Had device checked two weeks ago.

Posted by lancastrian on 2015-09-12 15:03. 10 comments. 478 reads
 
hello everyone, good afternoon if you live in the uk. had my 2 lead pacer fitted 6 weeks ago, I have a very physical job and still don't feel fit enough to resume work, both emotionaly and fitness wise has anyone else had a long recovery time? also I am still feeling tired and light headed and taking statins and rampril , could the meds be giving me side effects? also whats really stressing me out is that I am 62 years old and how long on average do people live after having a pacer fitted? I know there are huge variations but are there people who survive for twenty/thirty years with pacers? thanks

Posted by pattylang on 2015-09-08 21:21. 4 comments. 375 reads
 
Does anyone have a pacemaker that keeps flipping up when lying down and on my right side? It is quite painful and uncomfortable. I have to set up and shake it back into place. Also, I am more tired now then before the pm. They did an ablation also so the only thing that is keeping me beating is the pm. Here's to good batteries. Please let me know if anyone else's pm is moving like that. THanks

Posted by southerndixie62 on 2015-09-05 04:30. 10 comments. 467 reads
 
I am 53 years old, diagnosed with bradycardia and neurocardiogenic syncope. I have had my new dual chamber ICD in for 3 weeks now. I am feeling much better, though still tire easily, which I expect. However, with all the technology around, I am finding it a bit daunting. There have been several stores that I could not stay in because the technology inside them made my ICD start zapping me. I got fuzzyheaded, dizzy and nauseous. I was left with no choice but to leave and get either my husband or daughter to go in and buy what we needed. Certain cash registers in stores like MSI, CrackerBarrel and certain banks.
Either it's my ICD or I live in an area that has a lot of things that give off EMI's. Any advice?

Posted by bethc on 2015-09-04 22:09. 9 comments. 489 reads
 
i am a childcare provider for a little guy who is four years old..the parents informed me he should not be around any magnets...but im wondering what other things i need to be careful around him. he is not the only child i do care for and all the other providers do not want to do care...i said i would do a month trial and if i was not comfortable then i would put in my notice...i do not want to have my license revoled or lose my home over it. thanks and any info or sites would be most appreciated. beth

Posted by topguymike on 2015-09-04 21:41. 8 comments. 417 reads
 
could any tell me if it's still ok to take my 10mil of diazepam at night,to help me sleep.as I have now got a pm fitted

Posted by MAZZAROO on 2015-09-04 13:08. 2 comments. 292 reads
 
Thank you so much for comments. . I now have questions to ask when having pm check and visit to cardiology clinic. I've always thought medication not been properly gone into and if that doesn't work then some ablation may work.
All in all I feel alone with this and support is negligible.. Need someone to trust and believe in and medically I find this near possible.
Thank you for caring to comment I appreciate it.

Maz

Posted by MAZZAROO on 2015-09-03 18:34. 6 comments. 363 reads
 
Pacemaker fitted 28.9.12
Atrial fibrillation for 60 years.. Getting more attacks .. History of hyperthyroidism and graves disease.
Sotalol doesn't seem to do its job anymore and I'm convinced something is causing the AF . feel ill most of the time and live with breathlessness, with or without AF.
Told only option left is ablate and pace, this is worrying me, has anyone got any input on this procedure, have other health problems and I'm beginning to feel low and frightened.
The choice of hospital is Sheffield or Leeds?

Posted by Chdmom on 2015-08-28 05:05. 9 comments. 624 reads
 
Hi everyone, I have a 16 year old daughter who had an ablation that damaged her sinus node. She now needs a single lead pace maker to pace the atrium only. Just wondering if anyone has experience with this? What are long term side effects?? So worried!!

Posted by joescuuba on 2015-08-20 05:37. 5 comments. 480 reads
 
I just got my pacemaker in and was wondering if I could use an electric hair dryer now that I have a PM?
Can someone advise me.

Posted by joescuuba on 2015-08-17 00:07. 4 comments. 496 reads
 
I just. Had my pacemaker put in 2 days ago and I'm worried that it might not be working as it should. My pulse still seems, at times, low and I'm still dizzy at times and very worried I'm gonna die. I guess is this normal?
I wonder how much is psychosomatic and how much is real. I really am worried

Posted by Lucyc14 on 2015-08-12 20:30. 1 comments. 459 reads
 
Hi I haven't posted on here for a long time. I have spent lots of years struggling to come to terms with my pacemaker but in the past year or so I have been so much happier and accepting. I'm 25 and have had my pacemaker since being 6 due to having 3rd degree congenital heart block. I had an echocardiogram last year which showed my lv function was impaired. This was due to pacing all of the time when this wasn't needed. My doctor is trying to wean me off pacing and its settings has been dropped to 35, however in a week I am having another echocardiogram and if my lv function is worse I will be put on medication for the rest of my life. I was just wondering if there was anyone out there who is facing the same problem. I don't want to go bac...


Posted by BevBabe on 2015-08-11 19:49. 3 comments. 344 reads
 
GOOD RESULTS FROM THIS??

Posted by Jenturbeville on 2015-08-11 04:22. 6 comments. 472 reads
 
Hi all. Just joined this group hoping for some answers. Had my ICD implanted July 20th.
I don't really know where to post the question but here goes...
I am a small framed person so there isnt a lot of room on my upper chest area. The pain from the procedure was pretty bad for at least 2 weeks. I asked my doctor at my post surgery checkup if it would ever stop feeling like I had a fist buried in my chest? He replied that he had used the thinnest device, but that I was a small built person......really not an answer at all.
This week I have felt around the device and realize that he has implanted it so far over that it is pushing into the joint where my arm and shoulder come together. I feel the constant pressure and pain...


Posted by DanaC on 2015-08-09 19:01. 3 comments. 508 reads
 
I was first diagnosed with a left bundle branch block and heart failure in August 2007. I was treated with a whole lot of drugs and about 6 - 8 months later, my EF was over 50% and 3 years later over 55% when they basically dismissed me and said I didn't need another test unless I had problems.

The first time was horrific in terms of my mental state. I was terrified. I had a boss who was a predator and used the condition to bully me - amazing that I "recovered" during all that. I was terrified. So terrified that I didn't follow up with a doctor between December 2010 and February 2015 when my EF was 10% and the LBBB had created severe dyssynchrony, and I had worse heart failure than the first time.

I had a St. J...


Posted by trb on 2015-08-08 04:18. 8 comments. 485 reads
 
I'm 50 year old man with a family and had a pacemaker put in yesterday; my heart beats were in the low 40's and even going into the 30's. Now my pacemaker is pacing my heart at 60 and I've just been release and I'm at home. I'm kinda freaking out a little inside and having anxiety and panic attacks that I even have a heart issue - I thought I was so healthy. I'm feeling every twitch in my chest and worrying about it. It's my first night out of the hospital and I'm just a little scared. Have any of you felt a little uneasy your first night being home? Is this normal?

Trb



Member Login
email:

password:



Who's Online?
We have 2946 visitors online.

Members online:
  JenSF
  Trudy
  ccryer42
  restll@aol.com
  slickmv
  Rambler
  annie21

You're Wired When...
Bad hair days can be blamed on your device shorting out.

Member Quotes
You now get to start a new life it's like being reborn.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.