St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by jenks58 on 2014-02-19 18:17. 10 comments. 197 reads
 
has anyone else felt a mild stinging sensation from the area? Is this real or imagined?

Posted by cheshirealice on 2014-02-19 14:27. 14 comments. 322 reads
 
I was just perusing the forum and started to feel a little sad. I know a lot of people come here for answers and support, which is good, but there needs to be some positive posts too!

I'm currently on my second PM. The journey here hasn't been perfect and there's some problems with it (low impedance, shocks my intestines, etc) but I'm grateful it's there. I wish that there were no side effects or problems but I suppose that's life. When has anything been an easy fix?

I'm sorry to everyone that is having issues, scared, worried, or concerned. We're right there with you in spirit and I hope your issues get resolved.


"Hope" is the thing with feathers - (314)
By Emily Dickinson

...


Posted by Kathy48307 on 2014-02-19 14:12. 8 comments. 332 reads
 
I have had my bi-ventricular pacemaker for ONE week and I have already called my insurance company to see if they will help me have it removed. I hate having it in me, I can feel it working, I have a knot on my chest the size of a small baseball. I did not want it (I was somewhat coerced but no one should be able to make me do anything so it is my "fault"), I came out of the procedure screaming at them to take it out and now I am sad, sad, sad. This isn't like me, which confuses me even more. I have a difficult time explaining to people how I feel, why I feel the way I do -- when they see it as a "new lease on life". What life?

Posted by Phoenix8 on 2014-02-19 04:00. 8 comments. 180 reads
 
Hi there, I'm Cas, I had a 3 lead CRT inserted 12 days ago. The reason for the ICD was cardiomyopathy for no particular reason. I'm so pleased to find this site.
1. Every morning I wake with extreme shoulder pain, it settles slightly with paracetamol & settles even more with general movement throughout the day. No I'm not lifting it above my shoulder. I still sleep with head of my bed up at a 30 degree angle as I have fluid around my heart & lungs which makes me choke when I lie flat. Any ideas re shoulder pain?
2. I'm a dancer & very social person. I am feeling quite depressed & lonely being stuck at home recovering from this. Then I kick myself & say at least I'm alive there are worse off people out there, but I still feel ...


Posted by rrwags3 on 2014-02-18 21:59. 4 comments. 165 reads
 
42 years old had PM installed initially 12 days ago and then had to have a lead repositioned 10 days ago. Had 3 degree total block. Never really had high blood pressure issues but BP has been slightly higher than normal today. 150/105 pulse 80 at one time. Just took 153/81 pulse 73. Seems to be high for me. Is this normal at this stage?

Posted by Seejai on 2014-02-18 07:39. 11 comments. 259 reads
 
Hello all, my name Craig "Seejai" I just recently had a ICD *single* put in. I wanted to know how long did it take you to get adjusted? How long do I have to wait before I can really move my arm or even stretch it out!? Also mentally I'm having a few issues with having a device in my body I can feel every time I move. Will this feeling go away? It's been about 2/3 weeks now an from time to time my heart still beats extra hard and irregular at times, I was reading that it will take a few adjustments before it's totally right. Is that true!? I know I'm asking alot of questions but this is the only forum that I saw that I felt comfortable enough to join. So if some one out there can
help most I'd really appreciate it!

Posted by ChefG on 2014-02-16 21:19. 7 comments. 295 reads
 
I'm new to this site so I hope I'm posting this in the right section. I'm 6 months post surgery. I had a pm put in after I was diagnosed with a resting hr below 30. The surgeon tells me it was a genetic anomaly. So at 43 after having the best year getting back into shape I ended up needing a pm. I'm back to my running routine and doing some weights, but I am very sensitive at the site and I have some strange twinges of pain occasionally. I have to make sure my wife or kids don't press their heads on the site when they hug me and I'm protective of the area when rough housing with my son. Even the seatbelt is irritating. Is this normal? Will it improve? I'm not sure if I'm just impatient or if I'm having issues I should address. My wife is a...


Posted by Suzie_G on 2014-02-16 12:56. 1 comments. 103 reads
 
Hello, can anyone help me please? I have had my pacemaker since November 12 but had trouble with leads until May 13. Now I find myself short of breath, giddy and have some chest pain, all very intermittently. I have had an echo and myocardial perfusion scan in the last month, and both are apparently normal, but on both occasions the medical staff commented on all my ectopics, the first time, atrial the second ventricular. So my question is, what does my pacemaker do when all this is going on? Could these ectopics be causing my symptoms ? Would it help to take a small extra dose of bisoprolol on the days when I feel rough ?
Sorry that's 3 questions ! If you have ant thoughts on this please share them
Sue in Hants in the UK

Posted by Casper on 2014-02-16 12:39. 12 comments. 281 reads
 
Attention Ian and Tattoo Man, et al,

I hope you're all safe and sound from all this terrible flooding.

Casper

Posted by trish on 2014-02-15 21:10. 8 comments. 268 reads
 
I am 5 weeks post implant and am experiencing what feels like frequent PVCs Or could this be paced beats? Has anyone else felt this kind of beat. It is disturbing.

Posted by bmccasland on 2014-02-14 22:03. 3 comments. 149 reads
 
I had a strange sensation, almost felt like a small shock in the center of my chest when I went to set on my couch, so I stood up immediately. Also a little pain some times around the implant site but baearable. Is that normal?

Posted by aimee07 on 2014-02-13 22:13. 5 comments. 150 reads
 
I am looking into starting to work for an multi-national company. But it means I'd have to make my night into day day into night.

I was wondering if it's okay.

What do you think? :)

Posted by trish on 2014-02-13 15:44. 3 comments. 149 reads
 
Has anyone used silicone scar strips over pacemaker implant scar. I have used in past over surgical scar with great success

Posted by JoMarie on 2014-02-11 12:44. 5 comments. 164 reads
 
After two failed ablations and lots of drugs for AFib over three years, last week admitted as an emergency with new addition of SVT also (alternating between the two rhythms) and was fitted with pacemaker on Friday being given the alternatives of aggressive drugs, or a third now risky ablation. All such a shock as I had hoped to be cured. The pacemaker will control but not cure the AFib I am told.

Feel like I have lost a fight - hate the thought of hardware in my chest (still to have the AV node ablated in one month) and am trying to come to terms with it all.

Glad to have found this forum and know I will read lots of helpful things.



Posted by carlynndv on 2014-02-06 15:30. 7 comments. 231 reads
 
Hello everyone!

I am 19 yrs old and have recently found out that I suffer from Long QT syndrome. I have never had any heart complications or problems and have always been an extremely active athlete.

I was not suppose to work the day that my accdient occurred, but I got called in to cover an employees shift. Thank goodness i did because while at work I collapsed and went into cardiac arrest. I had stopped breathing and was without oxygen to my brain for about 4 minutes. When the EMTs arrived they had to shock me back to life, (took them 3 times). Finally when I got to the hospital I had to be put in hypothermic therapy for 36 hours. About a week later I had my Pacemaker and ICD put in. Luckily my brain didnt reciev...


Posted by ReadingFC on 2014-02-05 08:33. 7 comments. 358 reads
 
I am a new PM patient, it all happened a bit out of the blue really and now I am trying to understand what it all means to me.

I was / am active and fit, run marathons, do endurance events the lot. My very regular exercise is walking the dog 3 miles twice a day.

28th December, felt a bit weird while out shopping, passed out and woke up about 10 seconds later. I was on my own, but I know I was not out long as a passer by told me. Stayed on the floor the ambulance came and got me. In the ambulance my heart stopped for 10 seconds and started on it own, and again the the hospital for about 20 seconds.

The week before this I had stressed way to much, ait too much, worked to much, worked days and nights, drank l...


Posted by Lexi on 2014-02-03 23:52. 11 comments. 298 reads
 
I got my pacemaker October 18 after the doctors discovered that I have a cardiac inhibitory reflex. It is a genetic condition that causes my heart to stop when my blood pressure changes. The hardest thing I have had to deal with is knowing that I am 21 years old and had to get this surgery. My sister has had cancer so I can understand that aspect of things, in that "it can happen to anyone" and dealing with doctors and surgeries. However, it is still jarring to realize that most people in my situation and on this site are the age of my grandparents. Is there anyone who got their PM at a young age as I have? I am also still hesitant to do many activities that I would normally not think about so are there any limitations that you have found?...


Posted by daynanestor1 on 2014-02-03 17:38. 3 comments. 294 reads
 
What I thought was a simple problem has now escalated into my family doctor wanting me to see a phsyciatrist!

My history:
43yrs old, female, had PM put in on 10/22/2013 for 3rd degree heart block, experiencing frozen shoulder (which I am in physical therapy for and it is getting better slowly), I still have a foggy head and lack of focus that I can't seem to shake and that has me a bit depressed, but I still push myself to get out there for my husband and kids.

I was put on Desipramine(25mg) and had a not so good reaction that landed me in the ER last Friday. All my blood work came out good, nothing wrong with the PM either, but I am still foggy. What is wrong and why can't these doctors figure it out.

Posted by book61 on 2014-02-03 17:34. 4 comments. 153 reads
 
I am new and have lots of questions. I hit the er with pulse rate of 38. (Jan 11th) 2 hrs. later they put in temporary pacemaker. My heart did not jump in and take over as doc had hoped so a permanent pacemaker was put in January 13th. I have not had any pain, you can barely see scar, but I feel no different energy wise????? There is some mental adjustment, but I know I am so lucky to be alive! When will I start feeling energized??? So happy to have found this support group. Hope everyone is doing good. Just really would appreciate your input and encouragement. Thanks.

Posted by izza47uk on 2014-02-03 06:17. 3 comments. 172 reads
 
Hello out there
Can any one tell me how they sleep all my life I have slept on my left side but now it is impossible as every time I do it sounds like a train in my head
I already suffer chronic pain in the lower back and also scar pain from many operations in the abdomen sleep was hard enough but now I have more things to stop my sleep
I am glad to be alive with the Pacemaker but how do I cope and get my life back I know that I am nearly 70 I still would like to enjoy the life I had
thank you for any help that you can offer



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I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.

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