St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by janec on 2014-12-27 18:04. 9 comments. 444 reads
 
On December 9th 2014 I got a message to say my Dad had been found dead on his kitchen floor. I couldn't believe this was true - he had been at our house having dinner with my children 2 days earlier and was on good form. We found out from the coroners report that he had died 24 hours earlier on Dec 8th (less than 24 hours since being at our house having Sunday dinner and was in good spirits). I can't come to terms with losing my Dad. He had had a triple bypass, 3 stents, pacemaker and a valve replacement earlier on this year. This Christmas has been extremely tough but I have 3 very young boys to think of. I just wish that I could speak, hug and be with him for at least one more hour to say thinbgs were ok. I still can't understand how aft...


Posted by skippy on 2014-12-24 16:36. 9 comments. 335 reads
 
Merry Christmas~!
I'm considering having a pacemaker implanted fairly soon. I've been in A-fib for most of a year. Lots of meds since May, 2014.

I'm looking for more real life information about what it is like to live with a pacemaker. pros and cons Regrets, or delighted with having one?

Any information about surgery, recovery time, and how life changes after implantation.

A-fib has caused my life to be pretty restricted, and I'm looking to improve my quality of life and get back to being really active. I eat very healthy - I just haven't been able to be as active as I want because I'm always out of breath from A-fib.

I'm also looking for hints or helpful ideas about how to adjust to t...


Posted by JuCD on 2014-12-24 12:05. 5 comments. 285 reads
 
hi everyone,
I am new to this club. I just got my PM less than 48hrs ago. I am 31yo and I have a 3rd AV block. I am currently 6 months pregnant with twins and if it wasn't for these babies I would probably not know that I had a congenital heart problem...

I was diagnosed when I was 8 weeks pregnant and though the dr told me that I would need the PM they were not sure when it would be the best time for it because I was in my first trimester. As I continue to get more and more tired and the worry about baby development and birth increased they decided to just get it done before I was 24weeks preg. And here I am now...

I guess we were so worried about the babies wellbeing that I did not do my due diligence on res...


Posted by bettyb on 2014-12-22 13:04. 6 comments. 320 reads
 
Hi,

I got my pacemaker June 24th and I can still feel it moving back and forth (like a hockey puck) and it sticks out sometimes if I lift my arm. I still have trouble sleeping on that side without feeling discomfort. Is this normal?

Thank you for your help.

Not sure if I am using this website correctly. =/

bettyb

Posted by Reisha on 2014-12-17 20:22. 5 comments. 333 reads
 
Hi All
I am new to my pacemaker, having it put in last Wednsday. It's been a long hard road here. For the past year and a half I've been just falling to the ground. I was diagnosed with seizures and put on medication after medication. I had horrible reactions to each and continued to have falls. Was finally admitted to Barrows Neurological for brain mapping, and after 8 days of near torture - strapped to a padded bed, flashing lights and sleep deprivation: 36 awake/4 sleep/48 awake to induce seizures, it was determined that wasn't the problem. Maybe a cardiac conduction issue. Had a monitor implanted in Nov 14 and within 2 weeks had alerts showing my heart stopping for up to 40 seconds at a time. In for a pacemaker. I am now havin...


Posted by Mits on 2014-12-15 15:11. 9 comments. 391 reads
 
Hi everyone. I have AF and had a pacemaker implanted about 8 weeks ago at St. Thomas' Hospital in London. I was due to have an AV node ablation last Friday but cancelled my operation as I was too scared to follow through with it. Am struggling with the insertion of the pm without trying to come to terms with being 100% dependent on my battery. I don't think I can go through with the operation at the moment and have asked St. Thomas' to remove my pm. They refused at the time but asked me to go back to see them in January. I just feel I made a huge mistake and am struggling with my decision to have the pm inserted. I had just got over pneumonia when I had my procedure and in hindsight wish I had got over that before agreeing to my op. I am a...


Posted by Adam_88 on 2014-12-15 13:14. 3 comments. 305 reads
 
Hi I'm 26 years old and had my pacemaker fitted in June. Had it fitted after my heart stopped beating twice within an hour. Have got used to having the pacemaker but because of my other condition which is Mild Muscular Dystrophy I am getting very tired. I haven't got a permanent job at the moment just working for an agency but with getting tried very easily I am starting to get down and feel depressed about what the future may hold. Can't really see myself getting any better. Thought I would share these thoughts on here as I don't really know where else to turn to.

Posted by 7lives on 2014-12-14 19:03. 7 comments. 330 reads
 
I had surgery Monday 12/08/14. I knew it was in my future but I did not know it was so soon. I had a 2nd degree block. I was functioning ok with 45 bpm. I went for a cardiac surgical clearance for gall bladder surgery and I end up with a pacemaker 2 days from my visit to cardiologist.
I find myself unable to sleep because I can feel and hear my heart beats that to me they sound too mechanical.
I find myself edgy and with bad temper. Like with no patient for anything. I am worry for my husband that he is the direct target of my bad moods.
Has anyone has experience the same? How long it will last?
I am grateful I found this forum. Learning a lot from the other participants.
Thanks, Dori

Posted by Ldn5950 on 2014-12-13 21:57. 9 comments. 464 reads
 
Hi, I just joined this group because my husband just had a pacemaker put in on Tuesday and we are having a hard time with dealing with the anxiety of the not knowing. My husband is 32 and is a middle school teacher who passed out at work on Monday and was rushed to the hospital with a low heart rate and we were told he had a right bundle branch block and would need a pacemaker. He has been very depressed and scared since surgery and feeling very lonley. Please any support or positive feedback would be nice he feels that this is rare for young people.

Posted by Bmcnally73 on 2014-12-13 11:02. 7 comments. 212 reads
 
Hi, mydaughters got her pacemaker last year after surgery to repair her heart defects. Sheis 100 percent pacer dependent. How many of you have had your pacemaker since you where little?

Posted by ome on 2014-12-13 02:17. 1 comments. 140 reads
 
I've just join this group. So happy to see so many topics that I have in common. . Wish I had join when I first got my pm 9years ago.

Posted by LSK on 2014-12-11 23:47. 3 comments. 290 reads
 
Hello. I am 46 yrs. old and had a PM implanted in June, 2014. I have had 2 dr. visits since w/checks on PM. Why I needed it. I had been feeling dizzy for a couple of weeks. Very dizzy. Getting ready for work one morn. I felt I was going to pass out in shower. I got out and sat on floor, still feeling as thou the room was spinning. I had fallen 15 ft. 3 wks. prior off a ladder onto concrete garage floor. I thought maybe I had a blood clot in my head. My husband drove me to hospital with me going in/out of consciousness. They took my vitals and my HR was only 27. I only remember a lot of yelling and the room filling w/Drs. and nurses. I was put into CCU. My HR went to 20-22. I was unconscious. Dr. came in and explained no meds to increase HR...


Posted by water on 2014-12-11 00:39. 12 comments. 497 reads
 
I am 36 with a pacemaker which I just found out is pacing 100 % in the right ventricular. I understand that there are studies that long term pacing could coz a remodeling of heart a fib and heart failure. I am very concerned and am calling all experts especially long time 100% pacers and 100% pacers to comment on this topic and share your experience. Thank you so much in advance.

Water

Posted by dingbot on 2014-12-10 02:19. 3 comments. 237 reads
 
Hi crew members!
I joined a few years ago when I first got my CRT-D after sudden HF and slowly developing exertion symptoms plus ECG abnormalities and risk factors for sudden death in August 2012. It took me about a month to get going again because I have many other chronic autoimmune diseases, fibromyalgia, tremors, Sjogren's Syndrome and Connective Tissue Disease & COPD to deal with. I still had low LVEF a year later, so the EP did an optimization echo with Medtronic, and so now a year after THAT, my LVEF has improved from 20% to 50%! Do I feel less fatigued or SOB after climbing 1 flight of stairs? No, but I feel the implant is keeping me alive and I have a home remote monitor if I have a problem. My real problem is chronic pain th...


Posted by Lynrose on 2014-12-09 20:44. 4 comments. 243 reads
 
Hi everyone, I have had a pacemaker last week. I am 68 years old ..had 2 open heart operations, first one to repair valve, second to replace mitro valve. I now have a rapid heart rate tachycardia and on metroprolol..for when I took this for my rapid heart rate and afib, my heart rate would drop to low do that is the reason for pacemaker . Drs. Put me on 100 mg of metroprolol two days ago..and I still get a high heart rate..I loved to walk and ride my bike , but when I try to do this,the rotten tachycardia comes back, hence so I am not working out and I did do this everyday..when I do not work out I have severe anxiety which I know contributes to the high beat of the heart. Christmas is bad for me for I am in so much grief for I lost ...


Posted by lee8river on 2014-12-06 17:17. 7 comments. 356 reads
 
I'm 24 and had my pacemaker implanted 3 years ago.

At first, I was grateful to have it save my life. Now, I'm not sure how I feel. I've felt off the past three years. My emotions aren't as accessible, and my libido isn't as present. I'm going through a disillusioned stage where I'm not sure that the quality of life with a pacemaker is really worth the quantity it gives.

I don't feel completely numb, but I definitely feel a difference.

Have any of you felt this? How have you coped?

Posted by FAP on 2014-12-05 07:58. 2 comments. 210 reads
 
I had an implant about 48 hours ago. I feel pretty anxious. I am frequently hearing a small jolt/contraction below my breast on the right hand side. Has anyone experienced this? Could it be the device trying to regulate the heartbeat.?

Posted by bexy on 2014-12-02 17:36. 9 comments. 372 reads
 
I had my first pm fitted July this year after being told I have second degree heart block.
I'm 44 and in good health, fit and active, but since having the pm I've been suffering from palpitations, at my first check up the doc said my heart was beating up to 177bpm.
They have said it's nothing to worry about and gave me a prescription for Beta Blockers.
I haven't taken them because I feel I'm being fobbed off.
Over the past few months the palpitations have got worse and i have chest pains too, I'm by no means a hypochondriac, but it's starting to worry me now as I feel tired, lethargic and it's how I felt before I had my pm.
I've booked an appointment with my GP but im having to wait 2 weeks to see him.
I don...


Posted by Hearsay on 2014-11-28 09:16. 3 comments. 290 reads
 
Hi there, I am new to this site, and over a month ago I didn't think I would need to be logging onto to Pacemaker sites.

I live in the UK and about a month ago was visiting Hungary with my family as my daughter was in a karate competition. I am 47 and fairly fit, with no known heart symptoms. I do have asthma and related allergies. After arriving in Hungary, by the evening, I had collapsed and was in the local hospital being checked over. They actually discharged me in the morning, as I was feeling absolutely fine. By the evening again, I had collapsed again. To cut a long story shorter, I am now the proud owner of a pacemaker - by diagnosis (I think) is AV Heart Stop. All my notes were in Hungarian, so have had to get the...


Posted by Artist on 2014-11-26 22:37. 5 comments. 278 reads
 
I am 73, but have always enjoyed exercise and have felt competent and fit. AFIB and a very slow heart rate required implanting a pacemaker three weeks ago. Now that the very slow heart rate is not an issue I am going through the period of experimenting with medications. Other than feeling slightly like I imagine a person on tranquilizers would feel and sleeping longer at night, I am dong well. I am impatient to get the itchy steri strips off and getting beyond the 30 day period of movement restrictions. The presence of a little computer in my chest has definitely required an attitude readjustment. At least I will no longer have to fear going to sleep at night because my heart rate is so low (7 bpm in one instance). I look forward to...




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