St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by RonnieJoe on 2014-05-11 23:26. 3 comments. 277 reads
 
Had my pacemaker / defibrillator implant in March after triple bypass. I 'died' 5 times in two days after bypass surgery which is why I have this thing in my chest now. The pain/ soreness is still prevalent and I don't know how much more can take. How long does this go on? Does anyone else out there suffer from shortness of breath? I can't sleep at night. I can't lay flat cause it fells like its under my collar bone. It feels tight. Is this normal?

Posted by Tiffaniallaby on 2014-05-08 23:58. 2 comments. 185 reads
 
I'm a new member to the site and was just wondering if there is anyone around my age that has gone through a similar experience?

Posted by flutetooter on 2014-05-08 18:37. 8 comments. 194 reads
 
Boston Scientific PM , K277, implanted Feb. 4, 2014, MRI compatible Samuri study, DDDR, minimum 60 beats, max pacing 120. All is well so far! I will be scheduled for a small inguinal hernia repair and multiple medium prolapse issues done at the same operation under general anesthesia this summer. I have chosen to have this work done at the University of Chicago Hospitals where my PM was installed. I will have preview appointments with anesthetist and gyne. and hernia doc. to assess risks. Any advice to me of things to be cautious about or to investigate further? My EP team insists it will be no problem, and thinks it may require no PM adjustments or a magnet on me, as my PM is elective due to bradycardia and some chronoincompetance.<...


Posted by Marty on 2014-05-08 15:35. 9 comments. 299 reads
 
Hi guys,

I'm a mess lately. I've worked hard to survive heart failure for the past 10 years, but I'm not so sure I can survive this divorce. My wife of over 30 years had an affair, and after a year of trying to get through it with counseling, I discovered she was still in contact with the guy. I got a lawyer and am going through this very painful process. I read that divorce is one of the most detrimental things to your health out there, and I guess I'm not afraid of dying anyway. Maybe I was just too wrapped up in surviving heart failure to give her all she needed from me, I don't know. All I do know is that we promised each other all our lives we would never cheat on the other without getting out first. It hurts. It's making m...


Posted by webbia on 2014-05-06 16:20. 4 comments. 181 reads
 
My son received an ICD yesterday. He is very worried that the device will shock him when his heart stops whilst sleeping due to his sleep apnea. Please tell me the cardiologists have factored this in to the programming for the ICD?

Posted by davidjb on 2014-05-03 08:03. 6 comments. 333 reads
 
I have had a pacemaker for a year. I have been feeling exhausted and dizzy most the time. I am content Rate Response and all other tweaks are OK, so please read on.

I had a thought whilst gardening. I literally ran out of air whilst gardening. I realised I was exerting myself but not moving my left side so the Rate Response didn't pick up I was exercising and nor should it. It was as if someone had put a plastic bag over my head. It was easy to recover but made me think -- If you use the oxygen in your blood and your pulse doesn't go up to compensate that would cause dizziness (brain gets no oxygen) and likely exhaustion.

I then thought the same must be the case for stress. If stressed the heart rate goes up because ...


Posted by imatos on 2014-04-28 12:39. 6 comments. 334 reads
 
Hi Everybody,

I am really glad I found this forum. A really wonderful forum member suggested I share my PM experience and I think that is a great idea.

Back in 2002, I was having a lot of palpitations so I decided to go see a cardiologist. An EKG was done and it showed a First Degree AV Block and my cardiologist also found my heart rate was too low, so he decided to send me to the emergency room.

I was admitted and during my stay lots more tests were done and among those tests an EPS (Electrophysiogy Study, I think that is how is spelled) and they did see the first degree av block but no treatment was necessary. Upon discharging the hospital doctor did say that way in the future I might need a pacemaker,...


Posted by imatos on 2014-04-28 11:06. 8 comments. 248 reads
 
Hi There,

I am 48 years old and just got a PM implanted on 4/22/14. It was the most scariest thing to go through. I hope to find support and information on this forum.

So far, I have been feeling fine, the only thing is that I do get really warm when talking, especially on my face and I can tell my heart rate is elevated. Has anyone felt anything like that?



Posted by labor99 on 2014-04-27 22:47. 6 comments. 129 reads
 
Hi folks,,,,got my ICD 01/30/14. Aftering having a bit of a time getting the right med's I am doing A-OK. I worked my butt off outside today,,,,,actually several days consecutively. Lifting, pulling and just working very hard. No problems. Think I am going to be around for awhile. Jim

Posted by HK on 2014-04-27 17:34. 9 comments. 604 reads
 
I have been coming to this site since I got my pacer 7/29/13 after 10 long days close to death in CCU. The support here was terrific and exactly what I needed. Thank you again to all who helped me I will never forget. That being said and I do not want to upset anyone here but whenever I reads a response to a new PM insertion it makes my skin crawl at the suggestion that someone is depressed, bipolar, or some other psychological disease. How can it be anything but natural to feel badly when your life is turned upside down in an instant. I will tell you my family, friends and physicians all thought I was nuts when I kept complaining about being short of breath on exertion. I had my pacer checked several times and every time I was told it was...


Posted by ahuett23 on 2014-04-27 00:34. 4 comments. 296 reads
 
Im 23 yrs old and had a pacemaker put in april 11, 2014 I didn't know where else to turn. I have so many mixed feelings. I feel different than everyone else, wishing I didn't need this but of course im so fortunate as well. Everyone thinks now that im supposed to be okay since I have a pacemaker and like its not a big deal. Since I've had the pacemaker except the last 2 days I feel like an energizer bunny, seriously lol it feels so good though to be able to do things now. Several months before thet finally found out what was wrong after being hospitalized on and off for about 8 years it got so bad where I couldn't get out of bed when I did I always felt light headed and even had to stop going to college doctors always said oh nothing is wr...


Posted by jimcummi on 2014-04-25 14:04. 8 comments. 244 reads
 
I had a pacemaker fitted 10 days ago after my pulse rate had dropped to 30. I had passed out a couple of times so was hoping this is the solution. The only difference I feel is that I no longer pass out. Still very tired most of the time and do not feel safe to go any distance. People tell me that after a week or so I should feel much better, but that is not the case. CanI really expet to be my old self in time and play bowls again and go away on holiday? Something I can only dream about at the moment.

Posted by Shannonside on 2014-04-25 10:45. 0 comments. 68 reads
 
Thanks to those people who responded to my recent request for help and advice. Most helpful - thanks.

Posted by Shannonside on 2014-04-24 06:22. 3 comments. 163 reads
 
Following an anagram and stent mid December 2013 because of multiply fainting episodes I had Medtronic Advisa MRI SureScan dualcore Pacing System inserted mid February '14. I left hospital a became quite ill with the flu (three weeks). Then had a lung infection which is not great due to my COPD for eight years now.
I am finding it difficult to cope with PM. Any advice please.

Posted by Anne53 on 2014-04-23 20:26. 2 comments. 250 reads
 
I have a Medtronic Consulta CRT for four months and am doing well with it. It still needs more tweaking for hills, I wish that an aircraft mechanic had been involved in the design and put an altimeter in so it could kick in when I am doing stairs or hills but I guess that will come in the next model. Perhaps I should take out a patent for it!
My question is that being paced 100 % how does the flight or fight effect of adrenalin work. I understand that it is only horizontal movement/arm movement will increase the pacing rate. I am curious as I have been in a few situations where previously my rate would have increased but nothing changes now. Stress fright, and anger seem to affect differently. Previously I was able to do relaxati...


Posted by daynanestor1 on 2014-04-23 20:11. 1 comments. 272 reads
 
I had my pacemaker put in 10/22/2013 (going on 6 months now) for 3rd degree heart block only. Had a St. Jude Pace maker put in under the skin and I am on no medications and no other heart issues or health problems.

However, I have been struggling with shoulder/neck pain from the procedure and still in PT for it and am gaining my range of motion back slowly. Last week I experienced a heavy chest and sore feeling more on the left side and that of course, scared me, so off to the ER and they did the usual tests and the heart/pacemaker are fine, blood work--fine, X-rays fine and sent home with muscle relaxers(which I did not take because I am not into all these meds).

My Cardio doctor wants me to have my pacemaker...


Posted by Tony G on 2014-04-20 23:47. 11 comments. 446 reads
 
Hello, I recently had a second echo cardiogram (a year after my first which lead to me getting a pacemaker.) my ejection fraction in my left ventricle went from 40 - 50 to 30-35. I have gained weight but my blood pressure has been 130/80 or so. I am scheduled to see an electro-physiologist. Have you heard of a PM being related to this?

Thanks, Tony

Posted by Bramlore on 2014-04-19 15:38. 12 comments. 387 reads
 
Hi everyone, I am a 59 year old female and after having dizzy spells and palpitations for about six years I have been diagnosed with complete heart block and had a pacemaker fitted three days ago. I got really scared today when I had another dizzy spell and I just feared that it has not worked. I am really scared of pulling the wires out of my heart. I know it all sounds silly but if someone could please give me some reasurance I would be so grateful. I just need other people who had problems when they had theirs fitted to help me please xxx



Posted by naplesbear on 2014-04-18 14:06. 2 comments. 126 reads
 
Thank you for the positive words of encouragement. Each day I am getting a bit stronger and feeling more at ease with my new heartbeat. I had my post op visit monday staples removed and all looked and went well. The doc did turn on a second lead that wasn't activated at time of implant, no issue at the office. It was that night when laying down that the strong thump thump that rocked my body and i must say freaked me out a bit. The technician did tell me that i may experience something like this, i was just not prepared for it to be so powerful i went back the next day where the tech was soooo wonderful, understanding and did dial the impulse back a bit. I am now able to sleep at night and that is most def improving my mental and physical...


Posted by PacingGranny on 2014-04-16 13:05. 9 comments. 468 reads
 
Hi, I am a new member as of today, had my pacemaker/ICD put in two months ago. This was my new year's surprise. I definitely feel better, but am having a hard time coping with the fatigue. I have good days and probably over do things, like errands or chores, then I am knocked off my feet and fall into a hole of fatigue and it takes days of climbing back out again. Yesterday was the worst. On Saturday I had energy and did errands, cooking, etc. Sunday I fell into the hole and could hardly do anything. Monday I took off from work to do things I had appointments for, but asked myself all day, should I really be doing this? Well, I did it anyway. Yesterday I went off to work tired, then shortly after that I became sweaty, pale and just wanted ...




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