St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by Mike1943 on 2015-12-06 11:30. 4 comments. 523 reads
 
Hello everybody. This is my first posting. I thought I was a healthy 72 year old doing all the normal things old guys do but have been on bp tabs since 2005-much to my disgust!!- so to be fitted with a pacemaker 3 weeks ago came as a shock. I have known since Jan this year that I have a slow heart beat -average 43 often less- but have been told by the GP I am paranoid and to forget it!! Indeed I am told I have the heart of an athlete-at 72!! Absolute baloney. I showed no fainting spells, some small bouts of dizziness put down to my hearing loss (!!) and no swelling in various areas. So.... I ain't coping!
I now have regular blasts of pain that I never had pre pm in my chest discomfort in my shoulder and arm with radiating pain down ...


Posted by CEGrundler on 2015-12-03 18:05. 7 comments. 469 reads
 
Greetings, all.

I’ve been lurking here the last few weeks, ever since the docs at long last pinpointed the reason, or at least part of the reason, behind the dizziness, random and inconvenient lapses into unconsciousness and relentless fatigue that had been escalating over the last few years. Apparently, my heart keeps pausing. So next Wednesday, I’m joining the cyborg uprising (getting my pacemaker implanted.) You’ll have to pardon me. I’ve been told I have a twisted sense of humor. It's a coping method.

Me: A fifty year old woman, in theoretically ‘great’ shape, on the surface, at least. I’m Dockmaster at a large marina — at least until the episodes began again, and I’m back on the No-Drive/No-wa...


Posted by sooz on 2015-11-30 04:49. 2 comments. 539 reads
 
Hello,
I got my dual lead pacemaker implanted June 30, 2015 and I have not been right since. I had to have the lower wire turned off because it was going crazy from any motion at all. My upper chamber paces about 45-58% of the time. I have tachy brady syndrome and they are having a hard time dealing with my tachacardias as I seem to have reactions to most beta blockers. I have severe asthma and the new one they tried Bystolic made my asthma terrible. Waiting to get on something else for that. One good thing is I never fall too low anymore! I also have diastolic heart failure. Since I got the pm my color is so gray or chalky most of the time and my skin is like ice to the touch. I had strep throat the week before pm implanted...


Posted by pattenld on 2015-11-28 18:18. 2 comments. 387 reads
 
Hello, I am 50 received my pm 3 weeks ago yesterday. I am not totally sure what to think about all this. I went to Mayo Clinic to have a Link Recorder implanted due to syncope issues that I have had since age 12. (no one seemed concerned about them until I fainted riding a motorcycle this past May). Anyway, had an episode 2.5 hours later and discovered my heart stopped for 9 seconds during the episode so I was told I needed a pm. I went back home the next day but not scheduled to see a doc at home until 12/21 but have a ton of questions and don't know where to turn. I am the only person I know that has a pm. So I hope you all can help a little... I have pounding in my chest at times, how long does it last and is it normal? Wh...


Posted by Di on 2015-11-27 23:18. 5 comments. 530 reads
 
I had a Pacemaker implanted 3 weeks ago and I have a few questions.
I have a feeling of doom that I can't get rid of. Is this normal?
Is an occasional heaviness in your chest normal? Does this eventually go away all together?
When I lay down to go to sleep, I can feel my heart thump and I can feel flutters. Is this normal?
I don't see the doctor for another 6 weeks or I would ask him these questions. You input would be extremely appreciated.
Thank you!


Posted by slickmv on 2015-11-26 03:10. 9 comments. 475 reads
 
Amongst the plethora of helpful advice I've gleaned from this online support group was that giving a nickname to one's implanted device would help one adapt.

Unfortunately, my personal creativity doesn't seem to extend to naming things. I hope I'm not as bad as George Foreman (five sons, all named George!), but the best I've been able to come up with for my BS CRT-D is "Tock," with "Buzz" on a distant second.

So I'm exposing my weakness in the prospect of getting some assistance: what names do you use, or have heard of, or can think of?

Help me Pacemaker Club, you're my only hope!

Posted by rolson on 2015-11-24 18:31. 3 comments. 359 reads
 
It's been a year now since I got my new friend on my shoulder. I never though I would feel as good as I do. I still have a few rhythm issues, but they are tiny and 90% controlled by meds. Some day I may have to have an ablation but for now I am enjoying life and the security that my heart is beating and my pacer is pacing and they have now become life long friends. I can not explain how much this club has ment to me. I have read postings all through many a long sleepless, counting every beat night. And you have all been an emotional life line as well as a wealth of information. I thank you do much. I do have one I don't know if there's an answer or not. My husband and I plan on becoming full time RVers by this time next year. Our ...


Posted by webdragon on 2015-11-23 23:33. 14 comments. 485 reads
 
how long does it take to get over the fear of having a foreign object implanted into your body?

i'm growing tired of fighting the urge to cut it out.


Posted by TinkerSierra on 2015-11-22 01:56. 0 comments. 357 reads
 
First of all, thanks to everyone for all the positive posts and valuable sharing of your experiences. It has really helped during many days of uncertainty.
I've had cardiomyopathy for over 15 years and an Ejection Fraction of 38-40% for the past 3 years. In April of 2014 I began to experience low pulse rates (35-40 BPM). I was living in Panama at the time and later moved to Ecuador. The cardiologists there tried to correct it with medication and finally I got a pacemaker. That didn't work either. Apparently I had developed arrhyhmia that was overpowering the pacemaker. Went to Florida in April, 2015 and spent 7 days in ICU. Had an ablation to cauterize the source of the arrhythmia and replaced the pacemaker with an ICD. My Ejection F...


Posted by Chynadoll on 2015-11-18 17:38. 1 comments. 232 reads
 
Hey Everyone,
I just got my pacemaker on 10/30/2015. I am exciting to learn about this club.

Posted by suzip on 2015-11-14 11:40. 4 comments. 449 reads
 
Had pacemaker implant in March 2015 and am feeling breathless a lot of time which I didn't suffer from PRE pacemaker. I find that I am out of breath more when I'm walking on incline and doing household chores. Anyone else finding this? or can anyone tell me possibly why?

Posted by athlete735516 on 2015-11-14 04:37. 3 comments. 446 reads
 
I know that this might sound like a strange/rude question but I was wondering if there was anyone who is.... younger on here. My doctors told me that because I am so young, that I don't have to pay attention to a lot of the pamphlets that were given to me because my body should just heal fine but I am kinda feeling like I'm kinda running into this blind because whenever I strike up a conversation it feels like I'm talking to my uncles or grandparents ( I honestly mean no offense, you are all wonderful people who have helped me through a lot lately). It's not like that is a bad thing but I kinda don't have the same limitations or questions as somebody who has surgery after their "prime" (again don't want to call most of you old people but a...


Posted by Prescottjo on 2015-11-14 03:58. 5 comments. 336 reads
 
Has or does anyone have panic attacks, anxiety or bad depression ? It's been 5 weeks since my Bi-ventricle implant. I cry without even knowing why. I've never had panic or anxiety attacks. Just wondering if anyone has ? I'm still healing and have some pain on site.

Posted by Bubbles on 2015-11-12 10:28. 6 comments. 404 reads
 
Hello, I am new to this forum, I joined because I am feeling quite alone. I had my PM (2 lead) fitted 2weeks ago, it all happened so quickly. I was taken into A&E in April with tachycardia 189 bpm. I was referred to a lovely cardiologist who did various test, I eventually had a seven day event tape fitted, he said he would probably write to my GP discharging me. I was totally shocked to receive a call at work, telling me my heart was going too slow 39 bpm, and I needed a PM! Since then it has been a whirlwind, I had no symptoms of bradycardia.

I am feeling sore, but so very tearful, I seem to be very forgetful too, is this normal? I am feeling scared, I had had no symptoms of bradycardia, but since I was told my heart was be...


Posted by ashuhhlyn on 2015-11-10 21:58. 5 comments. 390 reads
 
Hello! I'm a 17 year old female and for the past 4 years I have been dealing with passing out and becoming extremely dizzy and I lose my vision when I stand up. I was put on a 30 day holter monitor last June which didn't show much. Approx. a month ago I had an Implantable Loop Recorder implanted which can be in for up to 3 years. My doctor is thinking I may need a pacemaker and that this is just to double check everything. I know that the pacemaker will help but I just can't stop being nervous about that I am so young and may need one..

Posted by aen2jiffy on 2015-11-06 23:43. 1 comments. 263 reads
 
Hello,
This is my first post. I think I am becoming a hypochondriac lately. Two weeks ago, I had a CDT_D implant. During this time, I have feeling little pings and pinches. But yesterday and today, I keep getting light numbness in my left jaw (the same side as my implant). The numbness is strange in that it comes and goes; I have no chest pain or dizziness. Bottom line, I feel fine expect this weird sensation. Has anybody experienced this post-op? Thank you.


Posted by Iwantmikenow on 2015-11-04 02:22. 5 comments. 555 reads
 
So, it's been a year. A rather long year, but here it is. See my previous posts to get a feel why this is a milestone for me and my family. I almost demanded this thing get taken out...but then I'd have been right back to syncopy and dealing with syncopy events pretty much every day. What can you do when your heart stops multiple times for up to 15 seconds a pop...driving a car, climbing a ladder...it was just a matter of time until something major happened other than passing out at a stop light. Anyway, I'm still struggling with some pain and discomfort especially when I lift my arm over my head. I'm still very much aware of the hardware from the PM and the path the wires take down into my chest cavity. It has gotten better, but wo...


Posted by bdeisle on 2015-10-27 16:55. 4 comments. 549 reads
 
hello, I am a thirty-year-old male that was fitted with a s-icd in may of 2015, so almost six months ago from the date of this posting. I was taken to the hospital because of a freak collision during a league football game that ended with my toes looking back at me - broken tib and fib, which did not break the skin. Anyways, all is fine - I have broken bones before and it hurts like hell but life moves on until I coded during the final thirty minutes of my leg surgery, which ended up being rescheduled three days later. However, waking up with a breathing tube, twelve+ hours missing and family in the room is what finally broke me. Anyways, long story short is that I was diagnosed with long qt (type/level 1) - father died of a "possible" he...


Posted by dgowett on 2015-10-23 05:19. 11 comments. 477 reads
 
Hi, My name is Donna and Im a nursing student doing a patient teaching project on pacemakers and defibs. I have done research and understand how they work. I am more interested in the emotional and coping of having a pacemaker or defib. Would anyone be willing share their experiences on having the pacemaker so I will have a better aspect on how the patient feels and copes. I will greatly appreciate all responses and for you taking the time to share with me.

Posted by Yolande77 on 2015-10-21 10:50. 7 comments. 451 reads
 
Before I had my pm installed, I looked at the posts and thought omw... this sounds bad but I have to say Thank You now. I am 4 weeks post dual PM installed and now don't feel so alone. (32 years old, lives in South Africa)

It is a very emotional, painful, worrying experience. No one around me can relate so I keep my feelings to myself. It is not a visible "thing' so everyone basically forgets, except me. I have constant pain, tired, uncomfortable and worrying the WHOLE time. I am a fitness instructor and started with my sessions 1 week post opp as I don't have any other choice which make things even worse as I am unable to perform my duties 100% because of arm restrictions.

I am now very thankful for this site, ...




Member Login
email:

password:



Who's Online?
We have 6450 visitors online.

Members online:
  phyllandrew
  donr
  DampDog
  Artist
  Cally90
  billyxoc1@gmail.com
  Lurch
  Barnes42
  Megan
  PatCan
  GoodDog
  Sunnystives
  Lucinda1406
  Grilor
  Tattoo Man
  Woodsey
  paulc1950
  techiej
  Bionicwoman
  BrynaR
  gojack
  becky1958
  TraceyE

You're Wired When...
You have a high-tech ticker.

Member Quotes
Hang in there; it does get better every day!

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.