I posted on here a little while ago whilst I was waiting in a hospital bed to be transferred to Papworth. On saturday 11th February I was driving and felt a massive twitch/spasm across my left chest muscle area. It continued to pound after it had made me jump and this went on for a an hour or so before I left it and made a trip to a&e. I was due a pm change on March the 15th so thought it had something to do with my battery life being closer to the end.

I was stuck in one hospital for 11 days with these symptoms before being transferred so was quite relieved to finally be on my way to getting some answers. I'm 23 and was fed up with just sitting around as normally work full time.

Once at Papworth they had a technicia...

 

Hello everyone

I'm new here, ive had my pacemaker in for approximately 1 year and 6 months.
I still get pain in my chest and I have been in and out of hospital since having my pm fitted.

Does anyone else suffer from pain still and dos anyone get financial help at all?? For example DLA

If you guys could get back to me that wool be great :)

 

I have a trouble sleeping more than 4 hours a night and was wondering if the PM keeps my heart running too fast? I am still learning about how the PM works. I get up by 6 am and do not go to sleep until about 10 pm. Does anyone else have problems sleeping?

 

I have seen every specialist in the area. I have been to mayo. The medications don't help. I am miserable most of the time. Can't my family doctor just take care of me? I am ready to stop all care with my cardiologists and just deal with my family doctor. I know it doesn't sound like the smartest idea but I am so tired of the constant back and forth with specialists. I have autonomic nervous dysfunction. The doctors don't follow through with returning my calls, following all their grand plans for treatment, and I don't ever feel any better. Now I have even lost my job because I have left work in an ambulance too many times and my doctors don't want me to work. This is insane and getting out of hand. I really just want to leave i...

 

Hello out there,

I recently had my Mode switch from DDD to AA1DDD.
My Switch Mode remains off.

I had a follow up visit with the EP this week and he made a few adjustments, I also requested he switch the Rate Drop Response function off, since it was giving me a racing heart for a few minutes.

I really would appreciate if anyone could shed some light on this.

Thanks,
Moner

>^..^<

 

Hi everyone, I’m getting my first pacemaker in a couple of days. A 2nd degree AV block was diagnosed late in the week, when a holter monitor showed 2 pauses--one was 3-1/2 seconds-- even though I didn’t feel dizzy or faint. I keep thinking "there must be some mistake, this can’t be right."

Has anyone else experienced these thoughts/doubts?

Thank you for any responses. What a great site!

 

Hi All!!

I am a 25 year old, I just had my pacemaker implanted Feb. 21. I had SVT, SNRT to be specific, and convulsions with High Heart Rate. I was worsening my the day. I have a Cardiac Ablation Jan 6, that just made things worse for me, so we decided my only option was a complete Ablation and Implant a Pacemaker to monitor and control my heart rate. Now I'm recovering, and a single mom at that. It has been very hard for me. I am dating someone and feel that this scar is a hideous reminder that I could have lost everything because the severity of my condition. He has stood by my side through all of this, and yet i'm terrified that this new chapter in my life will be too much. He says it just means now we can have a life without...

 

Hi everyone.... I'm a long time without a post, but recent happenings have spurred me on to message you all!!
Quick synopsis - I was fitted with a Dual Chamber unit back in July 2010 due to Sick Sinus Syndrome and was totally dependent on my pacer.... I just went for a check up on Tuesday to be told that my 'electrical defect' has rectified itself and is functioning normally!! They told me that my pacer will remain 'in the background' but at the moment is not being used!!
I'm sorry if I sound like a bewildered teen, but I was initially told that my heart problem was permanent and that I will always be dependent on my electrical implant!
Whilst I am over the moon about this news, I am not counting my chickens etc..... I kn...

 

Had my dual St Jude pacemaker implanted 2-14-12. Immediately my breathing was better but could not sleep maybe 2 or 3 hours per night. Today is 2 weeks post op and I don't feel as well and I have a good deal of soreness below the implant site.

Any thoughts.

 

I am coming up on my two year anniversary on having my PM installed. I am wanting to know if it would be alright to tattoo over the PM. I really don't want to ask my doctor because I want him to be shocked when I go for my checkup. Any suggestions are appreciated. Thanks!!!

 

Hello Don:

Can you please post "publicly" the Limitations list or pm me it? I am a three month post-op CRT-D patient and I'm very interested in seeing the list. The docs won't tell you anything unless you ask and they certainly don't give you any informative literature!

Thanks.

Birdygirl

 

Hi, First of all thanks to everyone who responded to my previous posts. I'm recuperating nicely from my 2nd pacemaker replacement surgery which I had on 2/21/12. This is pacemaker no. 3. After one day of sitting at home, I went out and drove short distances for the next two days. Put a folded up towel under the shoulder harness and I was fine, also had clothes on, of course & heavy jacket. My advice to anyone who is coping with any type of heart condition and who is facing a pacemaker implantation surgery or any type of heart surgery or treatment is to try to go to counseling, if you can afford it. I am on Medicare by reason of disability & I pay for AARP supplement to Medicare insurance. Besides my heart problems, I was diagnosed wi...

 

Wow, I don't know where to start. I had a few recent episodes of shortness of breath and they seemed to be getting worse. I had a cardiologist that I had seen two years ago and I have been a bad patient. You know go in when something is wrong and in the meantime, try and self-diagnose. Too busy!! Well, I have an upcoming international trip and I wasn't feeling too spiffy. Lots of sleep, didn't feel like exercising, couldn't make to the second floor in my house without being out of breath. So got an appointment last Monday - Feb 13. for the Nuclear Stress Test. -- Well, I didn't do so well, my BPM never got above 50. Well, I am here to tell you I had complete heart block, so in 2 days- my life has completely changed. I am still mental...

 

Hi all. God bless. I am writing because I have been feeling very sad and unwanted since I have not been having any luck finding a guy who will want to be with me and love me even with my heart issues. It is so hard nowadays to meet good people. And I feel like no one will want to be with a woman with heart issues. I am feeling so depressed and down lately. What I imagined and dreamed for my life was to get married and have children and thats it. Just be happy. I feel like I may never get that. And If i never find a good guy I will never be a mother. And I know that my doc says I am high risk for pregnancy so I want to be able to have at least one child soon...but seems like it wont happen. I guess Im just venting. I have come to terms with...

 

Hi Frank,
I just want to thank you for all the responses you give others, I have really learned a lot from this forum.

I guess I didn't realize how fortunate I was when you responded to some of my questions last week.

I have the same exact make and model from Medtronics as you do.

Keep on hiking and camping, you are and inspiration to me and others.

Sincerely,
Moner

 

just want to say thu everybody.i think i will be ok feeling better. i am going back to work on the 23so cross those fingers i will let you know.like i said thank u .learned to take one day at a time,take little steps ,jump the bumps in live write down things and talk to people never hurts anyone.

 

Few weeks ago I posted a message about PVC and shortness of breath.I thought that maybe my PM needed adjusting, I was in the Hospital for three days I had the nuclear stress test that showed my heart pumps at 39% capacity.The cardiologist on call did not address this issue with me or my regular cardiologist I was dismissed. I went home totally confused and angry with that so called "Cardiologist" My condition got worst so I made another appointment with the Dr that put the PM ii I should n,He tested the PM.and everything is fine.but suggested that I have further tests donne to determine why I have shortness of breath.On Tues.Feb.21, I'm going (again) to the Hospital for a catheterization test.Iam worried to death as to what are they going ...

 

I, too am 100% pacemaker dependent. Absolutely no heartbeat whatsoever without the "prompting" of my pacemaker. The surgeon inadvertantly cut the nerve below when replacing my aortic valve 5 1/2 years ago. I have a mechanical valve. I recovered well, and have no problems. (I had several other procedures at the same time which corrected most of my severe aortic fib.) I do have infrequent episodes of V Fib, but so far, these are self-correcting (thank goodness). My concerns/frustrations are with pacemaker replacement (my electrophysiologist has confessed that he will be "sweating bullets" when it has to be replaced). I may seek someone even more experienced, to improve my odds. My only current complaint is that I have deterioration ...

 

Hey everyone its odumkl from TN. I am doing much better less soreness this week, its my 4th week post op.Ladies, what kind of Bra do you wear with a pacemaker???? I have tried several and bought new ones, but all the straps seem to "rub" the area the wrong way, LOL! any suggestions would be helpful. Hey I am able to sleep on my left side now which is GREAT!!!!

 

Hi there
this is first
time on site,
Had pacemaker fitted 5 weeks ago,as diagnosed with Bradytachycardia, and all come as a bit of a shock and consequently not coping very well ! I'm 55.
Also been put on betablockers.
I,m experiencing quite a bit of chest pain which i don,t know is side effect of beatablockers, or symptom of underlying condition.
Also was,t expecting the pacemaker to stick out as much as it does! I know that sounds trivial but does the site flatten with time ? Thanks for listening!