St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by dgowett on 2015-10-23 05:19. 11 comments. 477 reads
 
Hi, My name is Donna and Im a nursing student doing a patient teaching project on pacemakers and defibs. I have done research and understand how they work. I am more interested in the emotional and coping of having a pacemaker or defib. Would anyone be willing share their experiences on having the pacemaker so I will have a better aspect on how the patient feels and copes. I will greatly appreciate all responses and for you taking the time to share with me.

Posted by Yolande77 on 2015-10-21 10:50. 7 comments. 452 reads
 
Before I had my pm installed, I looked at the posts and thought omw... this sounds bad but I have to say Thank You now. I am 4 weeks post dual PM installed and now don't feel so alone. (32 years old, lives in South Africa)

It is a very emotional, painful, worrying experience. No one around me can relate so I keep my feelings to myself. It is not a visible "thing' so everyone basically forgets, except me. I have constant pain, tired, uncomfortable and worrying the WHOLE time. I am a fitness instructor and started with my sessions 1 week post opp as I don't have any other choice which make things even worse as I am unable to perform my duties 100% because of arm restrictions.

I am now very thankful for this site, ...


Posted by steveh on 2015-10-18 22:39. 1 comments. 333 reads
 
If your ejection fraction has improved from 30 to 55 percent with a St. Jude CRT-D should you still be worried about VF?

Posted by Hopeful2015 on 2015-10-17 04:56. 10 comments. 509 reads
 
Hello everyone,
I just received my pacemaker one week ago. I go for my follow up appointment on the 22nd. I am extremely emotional, crying VERY easily. I also will feel like I get "hiccups" down in my ribs on the same side as my pacemaker. Is this normal? Will it get better? I joined this site hoping I can get feedback from people who have actually been where I am now! Thank you in advance for any info you would like to share with this newbie!




Posted by harleyrose on 2015-10-16 18:08. 8 comments. 367 reads
 
looking for anyone who has had more then 4 pacemakers. i feel like i am alone . i have already set records . i have congenital heart blockage and arrhythmia

Posted by capman on 2015-10-08 08:17. 3 comments. 405 reads
 
I've recently had multiple hits from my ICD. I'm stable now and alive. Great. Unfortunately I'm having a problem with panic attacks due to a feeling that it will fire again. The worst time is at night and I then find that my pulse is missing quite a few beats but still relatively strong and seldom more than 60. The question is, are the missed beats the cause of the panic attacks or the result of the panic attacks? Anyone with a similar experience?
Capman

Posted by firejoe on 2015-10-06 00:29. 5 comments. 404 reads
 
If you are reading the Pacemaker postings odds are you have a new pacemaker. One of the things I've noticed over the pasr four years is that most of us are shocked that we need a pacemaker. Then we are helped by reading these postings and other club members. And then rates are adjusted and meds get right and the miracle of this little device makes our lives normal.

If you have a new pacemaker ask all the questions but take great comfort in knowing the future is good and the pacemaker will mostly just be forgotten.

Posted by kanike on 2015-10-05 22:41. 1 comments. 263 reads
 
In September of this year i had a icd implanted / everthing went ok till i started to recover from the implant / after the swelling went down it got very uncomfortable and fells like the implant on one corner is pressing on the arm muscle at times / i am thinking about having it repositioned but i am not to sure it would cure the problem / gaining a few pounds would probely help but not a good idea / from what i have read it is something you will get used to over a period of time / is this normal / i was wondering if anyone else has had this problem / dave

Posted by Zetha on 2015-10-01 16:13. 4 comments. 403 reads
 
I started driving yesterday, in my 4th week after PM. Although I was very nervous and I lacked some confidence, as soon as I got going I had no discomfort in my arm. I went on my way quite happily as previously.... it actually did me a world of good to do my own driving and my own shopping, coming home with some new clothes to wear, which ALWAYS gives a lady a boost!!!

Going out again today to meet my daughter-in-law for lunch..... so now I feel I might get back to my normal self as before, only with an extra gadget!!!

Posted by Siito on 2015-10-01 11:44. 8 comments. 551 reads
 
Rich had a pacemaker put in yesterday immediately on arriving home he had a 1/2 cig we calmly had a heated discussion. 5 minutes later he had the other 1/2 out an upstairs window. We lit him to him hysterically screaming with tons of anger, swearing and completely blown away. We have supported this man for years with other addictions i am finally leaving and our daughter will not support anymore either. Feedback please.


Posted by Pfarkas on 2015-09-28 17:10. 4 comments. 555 reads
 
Hi all pacemaker club members,

I am Peter from Slovakia, I am 31 years old and I am sporty guy, I did a plenty of sporting activities (going to gym3-4 x a week, martial arts, kiteboarding, snowboard and so on)
At end of June 2015 I started to feel really bad, I almost passed out few times and felt really weird, in that time I knew it is pacemaker time, As I was diagnosed with SSS 2 years ago but I had no symptoms.

So 24Jul2015 I got my dualchamber Medtronic DR MRI device. To be honest it was really difficult to cope with this whole thing as after implant I felt really weird, my pulse was way too big, like 90-110, so I went for tweaking and in came back to the normal range 60-80.

Honestly I felt in pas...


Posted by capman on 2015-09-28 10:30. 3 comments. 499 reads
 
Hi all. I had my ICD fitted 4 years ago, 18mths ago it fired 3 times due to vigorous exercise. The ECG taken shortly after was normal so I carried on with the rest of my life. I got quickly and totally over it.
At the beginning of this September, having been put on a drug by my GP that causes arrhythmia (tell me about it) my heart got totally out of phase and blew a gasket causing my ICD to fire 14 times over 4 sessions and 2 days. I am now a mental wreck and really having a problem coming to terms with it and the fear that it will fire again at any time of the day or night. My drugs have my heart under total control, pulse generally 45-60, and strong. Logic says it will not go off, I am back under control. I am alive. But anyone got ...


Posted by Pinkshirlz on 2015-09-27 18:11. 3 comments. 514 reads
 
I posted two months ago about not being in a happy place, got some really helpful advice. I went to see a second opinion. For one I should have done before my pacemaker surgery. However the new specialist advised that he didn't think the pacemaker surgery was the right move. He for one would have put me on a variety of meds to cope and if that didn't rectify My sick sinus after time, he would have proceeded with burning the heart tissue responsible for my irregular heartbeat. But would not have used a pacemaker. Needless to say almost 3 months later im feeling awesome. I no longer take meds, I sometimes forget I have this uneccsary pacemaker in my chest and only realise it when I try to move my arm a little too far then I can feel a a...


Posted by webdragon on 2015-09-21 21:17. 12 comments. 909 reads
 
I guess i can say i am not coping well with this, i had a medtronic ICD implanted in march 2015 after a long bout with pneumonia that put me in the hospital.

It is now September of 2015 and i have had it. i'm tired of the medications, i am tired of being tired all the time since the implant. i am tired of the pain this thing causes me constantly. I AM TIRED of the doctors saying i am imagining the pain.

worst of all i am tired of having to explain to everyone at some place that i go to interview for a job what a ICD is. I have been told more than once off the record i didn't get a job because their insurance doesn't want to take the risk.

i hate my heart doctor and i hate medtronics. i hope my doctor dies...


Posted by Rochelle on 2015-09-21 19:27. 6 comments. 391 reads
 
Hi, my loved one had two sudden cardiac arrests last Dec and has an ICD. He has done well and is working and all.

He thinks:
He was kept alive by technology when it was "his time."
Since he's alive, he should know of a reason that he is (something to be or do or something).
He says he can't feel his heartbeat (like he doesn't feel his heart like he thinks he should).

Can any of you relate and understand what he is experiencing?

I have read that when people have nde's, a lot of them go through a time of adjustment to "coming back," but he was given propofol and doesn't remember experiencing any nde's.

Thank you for any insights you can offer for me to better understand his nee...


Posted by Cynthiaian on 2015-09-20 20:24. 8 comments. 601 reads
 
I have had my pacemaker for just 2 weeks now. I have kept it fairly quiet as I am a private person but have shared with close friends. Most responses have been fine but I also was surprised by how many people didn't really know what a pacemaker is. Just wondering if you have noticed that people treat you differently knowing that you have a pacemaker or if it is somewhat of a non-issue when people find out. Thank you so much

Posted by mojo on 2015-09-19 09:28. 3 comments. 346 reads
 
Does anyone know of a firm which sells a car seat cushion to reduce road vibrations? After 2 years a bumpy car ride (I live in a mining area prone to subsidence) still makes my pacemaker race even though I have had it adjusted to it's safe limit.

Posted by LemonadeHeart on 2015-09-15 20:32. 4 comments. 347 reads
 
Hi Everyone. I just got a CRT-D four weeks ago. After more than 11 years of being sedentary, and out of breath all the time, I am starting to feel better. I can even go up the stairs without huffing and puffing! I'm a little anxious about this whole being battery operated thing. For the first two weeks, I could feel a faint thumping, like a gentle poke, on a fairly regular basis. Since then, I don't feel anything at all (except some tenderness, of course). Is it possible that I have accidently pulled out a lead and don't know it? Is that possible? I'm scared to start exercising after so long. I used to know when to stop because I couldn't breathe, now what should I look for? Sorry if these are silly questions, but I worry.

Posted by rowes69 on 2015-09-14 06:02. 3 comments. 353 reads
 
Hi all,
My name is Rowena Singh I am from India. I had suffered VT on 16 feb 2015. my pulce raced upto 240. The ER here tried giving shock but my pulse went flat. The senior cardiologist who was consulted, he adviced to try once more . I revived . after this i was implanted with st jude AICD device.I am facing many issues daily which my cardiologist or the icd technician does not resolve. i want to learn the experience of other people fitted with this device.
Thanks

Posted by gudava on 2015-09-13 01:03. 1 comments. 335 reads
 
Had crt-d placed a month ago. For a few weeks, no dizziness, now the dizziness is increasing. Any ideas? Had device checked two weeks ago.



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