St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by Leeanne on 2014-06-17 04:35. 1 comments. 128 reads
 
I recently had an epicardial pacemaker implanted not quite a month ago. Does anyone know when you are able to sleep on your sides again? I am a very busty 58 yr old woman I have had considerable pain because of this...I tried to lay on my right side using a pillow between my breasts, dozed off for a few minutes, the pacemaker started pounding like it was going to jump out. so...I am still sleeping in my recliner. I layed on my right side because I had a left mini theracodamy which by the way was horrible, worse than my open heart surgerys. Is there an end in sight , or am I going to be sleeping in my chair for much longer.

Posted by keo on 2014-06-17 03:06. 5 comments. 233 reads
 
now 2 weeks post op.. why is it that everyone around me is expecting me to be full of energy and like some bionic woman. It is making me feel awful... I still feel really tired (not sleeping well) I am very sore, everything is hard to do as doing everything one handed so not to pull wires out!!! Am I not coping well or is this normal? How much could you all do 2 weeks post op? my husband says I am expecting too much but everyone around me seems to have high expectation of me!!!!!


Posted by boysmom on 2014-06-16 19:25. 2 comments. 171 reads
 
I convinced myself four weeks out I would feel wonderful. Well, today is four weeks and I am still having pain. The pm site feels like its hot sometimes, and When I sleep on my right side I still wake up in pain. My skin still feels like it is pulling... XmI am hoping that because I caught some nasty germ right after implant I am just "running behind" in the healing process. I have lost an additional 4 pounds (total of 16 now). The top of my pm sticks out so much further than the bottom. I have a check scheduled for next week. My heart races while I am just siting, sometimes getting up to 110 bpm. I never had this before. Sorry I am whining but I just want to feel normal again, or I guess learn to accept what my new normal May be...


Posted by Noel on 2014-06-15 10:47. 4 comments. 266 reads
 
Hi all - have just joined the club and hoping to get some feedback on my decision dilemma.

By way of history - have had Atrial Flutter for 12 years which was treated with Flecinade and Bisopropol for most of that period. Stopped drinking alcohol entirely. Had 1 ablation attempt 5 years ago (unsuccessful due to having diagnosis of atypical flutter (many scar tissues sites in right atrium causing rogue electrical signals). Further attempts at ablation are assigned a low chance of success due to the multiple scar tissue sites in the right atrium.

On Soltalol now but it is not effective enough. So now considering using Amiodarone (side effects are scary) or getting a PM (which if the PM would result in complete PM depende...


Posted by Ruesado on 2014-06-14 15:22. 3 comments. 233 reads
 
54 y/o, 300lb , I have a-fib, but I see my cardiologist in 2 weeks. I want a PM installed. Have some concerns.
Can i still use viagra after the PM is installed?
I get a real head and Chest Rush when I climax, nothing like when I was normal.
I am thinking about having gastric Bypass done. should that happen before or after?
I use to enjoy working outside, gardening, chopping wood. I get real tired real quick, any thoughts?

Posted by Johnboy on 2014-06-14 13:35. 1 comments. 126 reads
 
Hi to you all from the UK. I have just had a second implant in as many years due to complications with the left side of my heart. The quire is that I'm 3 weeks post opp & am feeling really down & sort of detached ? Is this normal I know I should be feeling great full which I indeed am but I just can't seem to shake these feelings off. Has anybody else felt this way ???? Or is it just me? I would be great full for any feed back as I have found great comfort whilst lurking on this forum. Kind Regards. Johnboy

Posted by StorminNorman on 2014-06-13 23:26. 6 comments. 231 reads
 
Thanks everyone for the comments on my prior post. very helpful...here's another-how long does it take (generally) for the device to feel like it is part of your body rather than something that has been added on ? Maybe , again, I'm being impatient- had my pm put in on 4/25.... it still seems "always there"....a bit uncomfortable to move my left arm across my body; no sleeping on my left side, skin feels "stretchy" over the lump etc etc does this stuff tend to diminish over time and, if so, how long did it take until you "forget it's there"?? Thanks!

Posted by lizzy3 on 2014-06-13 07:39. 2 comments. 168 reads
 
I am 53 years old had a pm fitted 4 weeks ago and i found this site yesterday thank you all for answering my questions they were very helpful and i did sleep a bit better last night. it's feels like you are the only one going through this and my family can't understand my worries.
. since's i had this done i have been worrying about the leads how do i know if they are still in the right place? I have my checks on the 2 July then i will know if all is as it should be but it seems a long wait.
just by reading every ones comments has been really helpful because they show me that once i have got through the next few months things will get better thank you.


Posted by keo on 2014-06-08 08:17. 6 comments. 256 reads
 
just had pacemaker fitted 5 days ago but feel exhausted. I didn't get good sleep in hospital and expected to feel tired for a couple of days.. 5 days on, still really tired. did anyone have same? am I expecting too much???

Posted by frances on 2014-06-07 12:43. 2 comments. 139 reads
 
The doctors and manufacturer say it can't be happening because my model doesn't have a "patient notifier" feature, i.e. it can't beep, which was my complaint. This AM, I listened carefully when it woke me up and they're right, it's not a beep, it's a very soft, rhythmical "coo" sound. Yes, I've eliminated every other possibility. Every one. I only hear it when either ear is pressed against the pillow and even then, only when it wakes me up, which is a few times in the last 3 wks. It's internal, its beat matches my pulse. I'm hearing something! Anyone out there have the same problem? If it doesn't stop, even though I have 1-1/2 yrs to go, I'm going to have to replace it because I'm losing sleep!

Posted by Lablover on 2014-06-05 12:04. 2 comments. 227 reads
 
I am trying to decide on whether or not to undergo an av ablation with placement of a pacemaker. My EP has explained that it is an extreme measure but after years of treatment with medications, multiple cardio versions and two ablations I am running out of options. I would appreciate any opinions from others who have had similar experiences.

Posted by judyblue on 2014-06-02 20:50. 5 comments. 223 reads
 
Help! I think my account is corrupt! I not only cannot receive private messages, but now everyone's name is coming up invalid user. Moderators, please advise.
thank you. I sent TraceyE a private message but now her username is not even recognized. :(

Posted by Smokie on 2014-05-29 05:44. 2 comments. 247 reads
 
Hi, Can anyone help me with this problem three months into having my dual lead p.m.(u.k.) About a month ago I was aware it wasnt protruding so much from my skin and the g.p. said it was settling in.Then over the month my arm pit has been sore and a bit swollen. My shoulder also is sore on movement. I saw the g.p. and was given an anti inflamary gel to rub on the area. Just wondered if anyone had this three months into having thier implant. Ecg checked out ok. I had the pm. fitted for sss. I was struggling to cope with the fact I had to get the pm. I felt I was coping well then this has happened.
Thank you.

Posted by ChrisD on 2014-05-26 10:11. 10 comments. 334 reads
 
So I posted a few days ago my story about having a hard time dealing with everything. As is the case with others, I had a tremendous amount of stress in my life before the PM issue and this seems to have been the straw that pushed my over the edge. I have dealt with depression before but hadn't had a depressive episode of any consequence in many years. I have been on a low dose of antidepressants. Now I am struggling. I know I feel depressed - not as bad as before but most days are a struggle and I still need to go to work everyday where I have a lot of responsibility. I am exhausted much of the time and I can't tell if it is the depression coming back due to all the added stress, or if the symptoms are related to the sudden change i...


Posted by dave58 on 2014-05-26 04:41. 3 comments. 285 reads
 
I had my pacemaker fitted 02/05/2014. I was taken to hospital
again on the 25/05/2014 as i had the same symptoms again as before i had the pacemaker fitted. I managed to get from my local
shop back home after becoming very light headed and feeling i was about to pass
out. The paramedics said was heart rate was at 145 bpm and that was
sitting in a chair. After spending the day in hospital my heart rate was stable at 135/72 average and i was told my pacemaker was doing its
job fine. I had to have my pacemaker fitted as i went into hospital originally suffering from third degree heart block. The doctor at the hospital has increased my bisoprolol from 2.5 mg to 5 mg to keep my heart rate from going to high. he told m...


Posted by Ritamas on 2014-05-24 16:45. 3 comments. 278 reads
 
Greetings, All,

I just got an AV node ablation and
PM on 5/19/2014. I usually tend to keep my info to myself so I am doing something different just by going public and joining up on this site! It looks like my shortness of breath and wheezing is typical post pm. And here I thought I would walk off into the sunset being able to exercise. Does the breathlessness diminish much after settings are adjusted? Mine is at 80.

Posted by ChrisD on 2014-05-24 10:40. 8 comments. 438 reads
 
Hi All,
I am 53 and had always been an athlete. This year I noticed my running became increasingly difficult over a period of 6 months or so until I could hardly go a quarter of a mile. I saw the doc, did a halter monitor, had a stress test and discovered that I had an AV Block and SSS that basically cut my heart rate in half. Three cardiologists ended up getting involved and all agreed I needed a Pacemaker. It has been a month. For the first two weeks I felt OK, but then I began feeling very fatigued and depressed. Before this I was dealing fairly successfully with a mother with Alzheimer's, tremendous stress at work, a very ill 95 year old mother in law who really needs to go to a nursing home but refuses, and a few other less...


Posted by DMJ on 2014-05-19 14:28. 3 comments. 304 reads
 
I went ahead and got my Biventricular PM with icd after damage was done to my heart due to single pacing PM. I went along with the icd since I knew it would help me qualify for medicare. I really hate having it and wish i would have made a different decision. I believe I'm almost 100 percent paced due to 3rd degree block, yet I would like to not get this replaced when the battery goes dead. I have not gone back to doctor since I can't afford the charges every 3 months and there really isn't anything they can do. Maybe I feel like I should have just let life take its course and not interfered. Anyone else feel like me? I'm holding off returning for check up until next April when medicare starts. From reading others problems on this s...


Posted by hjohnsonjnr on 2014-05-19 09:16. 6 comments. 259 reads
 
Are there ant UK Firefighters out there who have had a pacemaker fitted and returned to normal operational duties?
Mine is for 2nd degree AV block - Mobitz type 1, so I'm not completely pacemaker dependant.
I am due to have mine fitted end of May 2014 and have had no advice from my bosses or occupational health people what will happen to me after!

Posted by dpreuss4 on 2014-05-18 18:44. 2 comments. 210 reads
 
Has any one had problems using this type of new cooking ? It says Infrared, conduction and convection cooking in one.




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