St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by jericho on 2014-07-05 20:00. 4 comments. 298 reads
 
I have had a pacemaker fitted 2 weeks ago, quite a shock emergency situation, I think I am coping but keep checking and rechecking all the information I am given

I am a carer for my husband who on the same day had a knee replacement without knowing I was in hospital. However although he is 74 and a farmer who only wants to work full time again and I am 66 and want to go cycling in Vietnam and Cambodia which I did last year and India the year before - we have decided enough is enough and we aim to live life as full as possible.

However I still find myself wondering how I am going to cope I have sinus node disease and the consultant mentioned tachybracycardia I keep reading your comments and they are inspiring. ...


Posted by pblabore on 2014-07-04 21:38. 8 comments. 370 reads
 
Can someone share with me if it is normal to feel depressed, scare and just not yourself after having your heart stop and the defibrillator restart your heart. Had it since 2009 , yes it is the first time. I was born with a v s d which is a long story.

Posted by boysmom on 2014-07-04 06:09. 2 comments. 239 reads
 
For the responses from my last post, especially Donr grateful heart and angry sparrow. You all pretty much agreed what I should do, I will be taking your advice. Just making the decision had made me feel better. Thank you for the support and understanding.... And the"dork" as Donr called him sent me a email apologizing to me. You know that is going into the saved folder! I am so glad to have found such wonderful caring folks on this site. Keep up the good work!!!

Posted by jetson52 on 2014-07-03 19:49. 5 comments. 412 reads
 
I have had my pacemaker/defibrillator since June 23rd. I am still sore and have been having a hard time sleeping. I always slept on my right side and can no longer do so. I feel like I have a brick in my chest. It sticks out a lot. Will I ever get to the point where it doesn't feel so heavy, that I can sleep on my side again and that I will forget that it is there? I am 61 years old.

Posted by boysmom on 2014-07-03 06:32. 7 comments. 493 reads
 
I would have a breakdown at work... Well yesterday my regional manager was visiting, and he was upset about some budget stuff. I have not seen him since my pm 6 weeks ago. He walked into my office and immediately got on me about the budget. Now mind you, I never let anyone at work see me upset, and have always gone right back at them. Well, that didn't happen this time. I became a basket case, tears rolling down my face, and I just could not stop! I finally had to walk out of my office to the nearest restroom and just fell apart. When I returned he informed me that in his opinion I needed counseling. I ignored the comment and the rest of the day went fine. Later my assistant told me when I left she went in and blasted him for ups...


Posted by howdoyoumendabrokenheart on 2014-07-01 21:25. 3 comments. 345 reads
 
Hello all. I've been a member of this site for some time now and I have posted a few messages, but now with time passing I think I have a better understanding of what questions to ask. I need some help with some issues.

I have CHF and COPD. I am on the following: Symbicort, Spiriva, Lisinopril, Carvedilol, Furosemide and Digoxin. Oh yes, an aspirin. I have a St. Jude ICD.

Now, I have been feeling just awful lately. About March of this year I was shocked about 6 times due to SVT's and they have adjusted my ICD accordingly. I visited the cardiologist last month and he noted 37 "events". These events are times when my heart goes into the 150 plus zone. Now while at the cardiologist my heart went from 86 to...


Posted by jenks58 on 2014-06-30 17:09. 9 comments. 368 reads
 
I had a bad anxiety attack Saturday morning. I was on the freeway and just suddenly freaked out scared. Had to get off the freeway and sit in a parking lot until I felt I could drive. Ended up going home shaking, and crying. I felt just awful my pulse was POUNDING. This is my first attack since getting PM in Dec. 2013. Any suggestions? I heard magnesium oil helps (topically) is there any merit to that? BTW I thought I could hear a alert sound somewhat like the one the car makes when a seat belt isn't fastened. Imagination or real??

Posted by Teijee on 2014-06-29 19:55. 10 comments. 416 reads
 
Hello there,

I was wondering how low did your heart rates go before the cardiologist wanted a pacemaker installed?

10's / 20's / 30's?
And was this during the day or during sleep?

Dear regards,,

Teije



Posted by daynanestor1 on 2014-06-28 14:26. 1 comments. 253 reads
 
I had my pacemaker put in on 10/22/2014 for complete 3rd degree heart block, age 43, no other medical issues or meds.

I have experienced shoulder/neck pain since the procedure with noticable swelling--I have been doing PT and its helped a little bit and I am able to move my arm, but it is still sore.

Just last week I was rushed to the ER with a diagnosis of Myocondritis. I had several blood tests taken so far I do not have lupus. Still waiting on other auto immune tests to come back including lyme disease--which they ran when I had for the pacemaker in Oct. I am back home and on beta blockers and resting.

Does anyone think the myocondritis is pacemaker related? All my pacemaker check ups have come out no...


Posted by lizzy3 on 2014-06-26 06:35. 7 comments. 260 reads
 
Hello all,sorry i have another problem.
I had my CRT fitted 5 weeks ago and i started back at work on Monday,but today i don,t know why i just burst into tears and could not stop every thing just seemed to much is that normal?, i was sent home and told not to come back until i am ready but i thought i was.
my CRT is working well and i was so happy now i am feeling so down and stupid for this to happen at work.
I am usually happy and can cope. does anyone else feel like this?
thank you all for your help it's great to talk to someone who knows what you are going through.

Posted by Teijee on 2014-06-25 12:04. 6 comments. 252 reads
 
Well after allot of testing, CT and MRI and ECHO, my EP said your right and left ventricle are slightly dilated but still in the normal limits.

He said only your heart rate for some strange reason is very slow and sometimes fast.

He said a pacemaker wouldn't fix my symptoms but with both heart rates I don't feel fine at ALL.

With slow I mean 39 bpm well awake and It always comes out of the blue and I get throat pain forgetfulness can't concentrate and I forget allot. Shortness of breath and chest pain.

What are your opinions?

Should I push them to do it because I can't take it any second longer and I have been to ER so many times and they always send me home with a normal EKG.


Posted by Jeanie0506 on 2014-06-24 04:18. 0 comments. 104 reads
 
Has anyone with an artificial mitral valve received a Bi-ventricular ICD. What has your experience been like?

Posted by johnnyc on 2014-06-23 21:54. 3 comments. 214 reads
 
I had the pacemaker operation about 4 months ago. It is set on demand for when my heart beat goes below 40 beats per minute. It is only working about 2% of the time.This has been a wet spring and I am cutting a large lawn at least twice per week with a small push gas lawnmower. The pacemaker site becomes tight and uncomfortable. Has anyone else had this experience? I am contemplating getting a self propelled lawnmower if the conditions continue.
Thank you,
John

Posted by Kjmcbryde on 2014-06-23 00:18. 2 comments. 320 reads
 
I have some concerns about my PM. I received my PM on June 28th of 2013. When it was first integrated, it was pacing 33% of the time. Then each time tested thereafter, it was dropping in the amount of time my PM paced. It got down to 5%. and had been climbing back up now. It is now at 12%. My doctor says this is normal and that I will continue to be more dependent as time goes by. Here are my concerns. One, I think I can feel it each time it goes off. What I feel is like a bunch of marbles rolling around in a tight place, almost taking my breath away. Then I think I know when my heart stops. Because I feel faint. As if I am going to pass out. This is normally followed by my heart beating fast (marble feeling). Also, emotionally I am concer...


Posted by KAG on 2014-06-21 11:58. 8 comments. 315 reads
 
I just posted this comment in another message and I thought I'd put it out as a post since we've gotten many new members and maybe it will help them. You are not alone and there is light at the end of the tunnel with persistence and being your best advocate.

My experience:

Shock, what the heck happened

Fear, I could die from this

Pain, you've been cut open and foreign objects installed

Discomfort, as the incision and bruises heal

Anxiety, as you realize how close to death you were and there's this tiny electronic battery operated thing keeping you alive

Acceptance, that you've got this amazing electronic battery operated device that was designed to help you live ...


Posted by mandyh on 2014-06-20 17:47. 3 comments. 206 reads
 
I went to the hospital for a check up after 5 weeks of having a Reveal fitted and was told I wasn't allowed home because I needed a PM fitted urgently to say I was in shock was an understatement. I came home the next day still in shock and a lot of pain I had it done under a local and no sedation, what I am finding hard now is just coming to terms with what has happened and all I seem to be doing is sleeping or crying which isn't like me.

Posted by Orba615 on 2014-06-17 17:46. 9 comments. 351 reads
 
Does anyone know if it's a no no to sleep on the pacemaker side?
Seems I remember the nurse telling me not to but am not sure as that was 10 years ago.

Posted by rubywooby on 2014-06-17 14:46. 5 comments. 245 reads
 
Hello! My name is Ruby. I'm 45 years old and I recently experienced dizziness , shortness of breath, and fatigue at work. I went to my doctor and he told me to see a heart doctor. I was told that my left ventricle was working at 33%, that it was weak and needed a CRT device. Since I work at a high school I took a break for summer to get this done before I start in August. But, now I find myself scared and wanting to opt in not having it done! If anyone in this chat room has gone thru what I'm going thru, could you please tell me your experience with this device. I would greatly appreciate your comments.


Posted by Leeanne on 2014-06-17 04:35. 1 comments. 133 reads
 
I recently had an epicardial pacemaker implanted not quite a month ago. Does anyone know when you are able to sleep on your sides again? I am a very busty 58 yr old woman I have had considerable pain because of this...I tried to lay on my right side using a pillow between my breasts, dozed off for a few minutes, the pacemaker started pounding like it was going to jump out. so...I am still sleeping in my recliner. I layed on my right side because I had a left mini theracodamy which by the way was horrible, worse than my open heart surgerys. Is there an end in sight , or am I going to be sleeping in my chair for much longer.

Posted by keo on 2014-06-17 03:06. 5 comments. 244 reads
 
now 2 weeks post op.. why is it that everyone around me is expecting me to be full of energy and like some bionic woman. It is making me feel awful... I still feel really tired (not sleeping well) I am very sore, everything is hard to do as doing everything one handed so not to pull wires out!!! Am I not coping well or is this normal? How much could you all do 2 weeks post op? my husband says I am expecting too much but everyone around me seems to have high expectation of me!!!!!




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