St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by koolaid on 2014-04-15 22:46. 9 comments. 441 reads
 
Hello all,
Here's my story: Since February (for 3 mo), I've been experiencing sporadic shortness of breath. I was told it was a lung virus. Then, a month later and seemingly unrelated, the chest pain started, scaring me enough to go to the ER. There, they told me I had chest wall irritation and sent me home. The EKG and blood tests were fine.

A week later the chest pain got even worse, and I went to the ER again. What followed were: 3 EKGs 1 ECG, a treadmill stress test, blood work, and 24-hour monitoring. ALL TESTS showed nothing wrong. However, the nurses seemed concerned that my heart rate would beat irregularly, first rapidly then slowly, dropping as low as 40 one time. They released me telling me I was fine and to fol...


Posted by daynanestor1 on 2014-04-15 19:36. 4 comments. 201 reads
 
I am halfway through my PT for my shoulder/neck area. I was doing all the exercises (maybe too much--because I want to get better quickly) and my chest started hurting really bad so I called my doctor and of course, GO TO THE ER and get checked. Did that yesterday and everything is well with the Pacemaker/heart(not on any meds except Advil). I had a bad muscle spasm in my upper back which caused the chest pain and was given muscle relaxers and sent home. I followed up with my doctor and he said to try Celebrix and gave me some samples to try for the inflamation in the shoulder/back. I read the side effects and they are not too good--do I take this or not? I will discuss it with my PT and see what he says. Any other advice?


Posted by Duke Heart Patient on 2014-04-15 12:17. 11 comments. 370 reads
 
Do any of you ever ask yourself "Why Me?" ... I have lived all my life with CHD. I was born September 3, 1974. I had open heart surgery when I was 2 months old. I have lived dealing with the constant concern of my heart and life. Back in 2012 I was refereeing basketball and my heart rate shot up to 240 for over 3 hours. I ended up back at Duke , 7 days , packermaker implanted. Now I take 3 pills twice a day. I just don't understand why I was picked to live this way ? What does God want me to do ? I am a Christian and saved. I wonder what my purpose in life is sometimes. I am a good husband and father of 2 kids. I just get depressed sometimes thinking about it. I am in good shape and walk and run alot. How do you cope ? Do you talk to anyon...


Posted by jimb on 2014-04-14 15:58. 4 comments. 265 reads
 
I suffered sudden cardiac death feb 6th, Thank god there was a gentleman there that performed cpr on me untill the rescue squad got there. The rescue squad zapped me 4 times on the way to the hospital, the hospital put me into an induced coma for 5 days to lower my body temp, had internal brain bleed from the fall. I woke up feb 11th to be told I had to get a pacemaker or I would die, that was quite a shock because I did not have any symptoms prior to this. I am since doing much better, even back to work, but having some trouble dealing with the enormity of it all. Any suggestions would be appreciated.
Jim

Posted by Cupcake40 on 2014-04-14 11:18. 6 comments. 325 reads
 
Hi At 43 I learned that I had congenial third degree block and was told I needed a pacemaker. Before the pacemaker I was so much happier. I felt good, had more energy and was very active. It has only been 4 weeks since the surgery but I feel crappy and worse. My back hurts and I have nausea everyday. I have gained 5 pounds and tell the doctors that I feel terrible. They tell me everything looks fine. Right now I will take any advice. Thank You.
Cupcake40

Posted by Oreodog on 2014-04-12 16:03. 4 comments. 279 reads
 
HI EVERYONE.\,
MY NAME IS BILL AND 2 SUNDAYS AGO A METRONIC PACEMAKER WAS PUT IN ME MUCH TO MY SURPRISE. I WAS ON A 14 DAY HALTER MONITOR TALKING WITH A GRANDAUGHTER WHO CAME TO VISIT AND I GUESS I JUST WENT ....BLANK FOR 8 SECONS!!!!
PHONE RANG
IT WAS DR. AND HE GET GET AMBULANCE AND OFF TO HOSPITAL AS I NEED A PACEMAKER AND THE NEXT A.M..........I GOT ONE!
SEEMS MY HEART WAS STOPPING!!!!!
ALL THIS CAME AS A SHOCK AS I HAD NO IDEA I HAD ANY HEART ISSUES!!!! THANKS TO A NEW PERSISTANT CARDIOLOGIST IN TOWN WHO TOOK ALOT OF TIME WITH ME THAT HTIS WAS FOUND!!!!!
OR ELSE WE KNOW WHAT COULD HAPPEN.

OK.SO HERE I AM AGE 77 AND GOT THIS PACEMAKER. I FIND I TIRE FAST AND EASY AND NEED TO SIT DOWN OR LIE DOWN...


Posted by brdfrd1954 on 2014-04-11 11:05. 0 comments. 110 reads
 
I am on my second pacemaker. Both St Jude Medical model 5626. I swear that the second pacemaker does operate as well as my first pacemaker. Out breath doing the same tasks. I recover quickly but have lost what I call endurance. My Cardiologist and Mfg Rep say I am 'imaging' this. It is my body I know or should say I can tell there is a difference. Anyone else experienceing the same?

Posted by trish on 2014-04-09 01:45. 0 comments. 108 reads
 
Most of day I have had some numbness tingling of left arm and hand, feels like mild electric shock or like when thou hit yout funny bone, pacemaker seems to be more superficial and show more I am 3 months post implant, has anyone else had this tingling feeling?m

Posted by Martha on 2014-04-04 23:05. 7 comments. 269 reads
 
Hello! I am new to this board and I have a couple questions....
I received my pacemaker on 3/28/14 and thought I was doing great but my atrial fibrillation started back up on 4/2/14, just 5 days after getting the pm....I realize that a pm is not a CURE of atrial fibrillation, but I was disappointed to have this happen so soon. Has anyone else had this happen and is this unusual? I have had 2 recent cardiac ablations and still get Afib. I know that I will be needing arrhythmia meds when I see the doctor next week. I have heard that a pacemaker PLUS arrhythmia meds often help a lot. I would like to hear from others who have this issue and do you still have Afib and how often. Many thanks!
Martha

Posted by DANRAINES on 2014-04-04 10:56. 2 comments. 190 reads
 
Going on 7 months now of having a pacer. Cannot get used to the feeling when it paces. Doc says I use it 45% of the time and the rest my heart does the work. I was wondering if anyone else can feel the "PACE". It is a strange twinge. Also maybe in my mind but it itches and feels like it is pushing it's way out of my chest. Although it might be cool to have physical access to the device (for emergency cell phone charging) I don't really expect it to happen... HAHA!

Posted by Tick-tock on 2014-04-04 02:01. 13 comments. 233 reads
 
In a few short hours I will be going under the knife on more time. First I will be having an ablation completed which EP states it should last approx. 4-5 hours. After that I am having my leads extracted, followed by removal of pacemaker. Followed by a new pacer pocket and 4 lead pacer. I just had my original pm placed 5 months ago, and yet here I am again,. Nothing is simple with me:) if anything, I have become very educated on the heart, and cardiac issues. I plan on sending an update sometime tomorrow after I awake from my drugged induced comma :) the worst part of this journey is over- the waiting! Thank you in advance for your kind words

Posted by johnnyc on 2014-03-30 21:04. 4 comments. 157 reads
 
I had a pacemeker installed 6 weeks ago. There is only one, on demand setting which is for it to activate if my heart beat goes below 40 per minute. I feel good with no dizziness or threat of fainting which were my problems before the pacemaker was inserted. I am doing some light physical activities but no lifting with left arm over 10 pounds and do not put left elbow over head.
To loosen the left arm and shoulder area I do shoulder rolls, forward arm swings and lift the left arm shoulder height in sets of 15 times 3 times per day.
The pacemaker location is extremly tight and sometimes aggravating but not painful. Is this normal?
Thank you,
John



Posted by divergent1 on 2014-03-28 20:26. 8 comments. 327 reads
 
My pacer was just placed 3 weeks ago now and I'm still in shock and awe how fast this happened. I'd had some tachycardia in the past due to thyroid issues. I didn't know the growing fatigue, weakness, and somnolence was from bradycardia. I presented at the hospital with chest pain, previously had severe upper shoulder pain. Hospital held me over night although cardiac enzymes were normal.

The next morning while sitting in a wheelchair I collapsed --within 2 hours I was on the table getting a pacer put in. They told me my beats drop to 16 seconds apart, my t wave went flat and they couldn't get a blood pressure. In a way I'm glad I didn't endure Holter monitors, months of not knowing what was going on. In another way,...


Posted by cruiser on 2014-03-27 18:46. 4 comments. 180 reads
 
I see 10 names in chat right now but when I go there, there is no one there? What am I doing wrong

Posted by ianhorsfall1 on 2014-03-27 15:14. 7 comments. 377 reads
 
Hey My name is Ian
Am i the only one who can not move on with my life after being shocked ? i received 6 shocks after my heart went from 65 bpm to 265 bpm i know this device saved my life and i should be grateful but i just can not seem to get on with it every little skipped beat i start to panic i used to like hiking camping fishing all out door stuff and now i don't do anything anymore i keep thinking if it happens again would an ambulance be able to get to me etc
i have never been scared of anything or anyone but know all change i have not worked since 2011 i hope someone out there can relate or give some advice of some kind
thank you


Posted by lala94124 on 2014-03-27 04:29. 10 comments. 267 reads
 
Newbie:-) I guess I'm Not coping with having an ICD well. No long stories, just sad all the time. Have had my device for 3 long years. In my early thirties, a single mom and just everything about my condition makes me angry. I'm tired of having my wants and needs taken away: no more babies, no more driving, no rollercoasters, no salt, no tattoo (lol). I haven't dated In over a year because I am truly ashamed of the scare, the device that pokes through my skin, all the meds I have to take. I wouldn't know where to begin in explaining all this to someone. I can't apply for certain jobs...I'm just a mess. I want to feel whole again...

Posted by Marty on 2014-03-26 15:04. 8 comments. 309 reads
 
Hi everyone,

Tomorrow I will have my 6th surgery in the past 12 years to implant the Medtronic Viva XT in my chest. My question to you is about the scars. I have three of them under my left clavicle now, and I'm interested in whether to have one of the existing scars opened or a completely "new" incision, which would make 4 scars. It would make me a SSgt in the USAF... Weird, I know. But 28 years in that uniform has left it's mark. I look at my scars as little victories in overcoming the heart failure that took my brother, my sister and my father from this earth long before their time.

Does anyone have a clinically based reason why it would be better to not add a new scar, or a reason why it would? Thanks in advance...


Posted by daynanestor1 on 2014-03-26 13:45. 9 comments. 311 reads
 
I have had shoulder/neck issues after having my pacemaker put in this past October.

My question is this: Do I stay with my chiropractor or quit him? I have been with him since December and hardly any results have happened but I am still in constant aching pain. I went to my family doctor yesterday and he is finally putting me in physical therapy which I have been asking for since November (these doctors, just don't have a clue!).

I start physical therapy tomorrow and I will ask him what he thinks.

Any other ideas for me on this subject?

Posted by daynanestor1 on 2014-03-25 19:32. 2 comments. 130 reads
 
Just to update and vent....

I am still struggling with my shoulder
--my history--
PM procedure in Oct of 2013 for 3rd degree heart block, frozen shoulder issue by early Nov.
Seeing a chiropractor and its helped a little, also did acupuncture--but way to expensive.
Now I am going to see a special physical therapist who deals in the shoulder--GEE ITS ABOUT TIME THE DOCTOR SCHEDULED THIS FOR ME! I cannot believe its been this long trying to get some results from the doctors!

Any other shoulder sufferers out there with any advice and how much longer this will take to heal up?


Posted by cruiser on 2014-03-23 17:08. 2 comments. 125 reads
 
I had my surgery Dec. 9. I still notice the pacemaker implant.
Sometimes I feel a sensation of stress from the area when I sleep. It has taken all this time for the swelling to go down from the incision. It is still slightly tender to the touch. I am on a boat in Mexico and would love to hear from some folks about the recovery issues they have had. Thanks.



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