St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Coping Forum



Posted by suzip on 2015-11-14 11:40. 4 comments. 456 reads
 
Had pacemaker implant in March 2015 and am feeling breathless a lot of time which I didn't suffer from PRE pacemaker. I find that I am out of breath more when I'm walking on incline and doing household chores. Anyone else finding this? or can anyone tell me possibly why?

Posted by athlete735516 on 2015-11-14 04:37. 3 comments. 452 reads
 
I know that this might sound like a strange/rude question but I was wondering if there was anyone who is.... younger on here. My doctors told me that because I am so young, that I don't have to pay attention to a lot of the pamphlets that were given to me because my body should just heal fine but I am kinda feeling like I'm kinda running into this blind because whenever I strike up a conversation it feels like I'm talking to my uncles or grandparents ( I honestly mean no offense, you are all wonderful people who have helped me through a lot lately). It's not like that is a bad thing but I kinda don't have the same limitations or questions as somebody who has surgery after their "prime" (again don't want to call most of you old people but a...


Posted by Prescottjo on 2015-11-14 03:58. 5 comments. 338 reads
 
Has or does anyone have panic attacks, anxiety or bad depression ? It's been 5 weeks since my Bi-ventricle implant. I cry without even knowing why. I've never had panic or anxiety attacks. Just wondering if anyone has ? I'm still healing and have some pain on site.

Posted by Bubbles on 2015-11-12 10:28. 6 comments. 413 reads
 
Hello, I am new to this forum, I joined because I am feeling quite alone. I had my PM (2 lead) fitted 2weeks ago, it all happened so quickly. I was taken into A&E in April with tachycardia 189 bpm. I was referred to a lovely cardiologist who did various test, I eventually had a seven day event tape fitted, he said he would probably write to my GP discharging me. I was totally shocked to receive a call at work, telling me my heart was going too slow 39 bpm, and I needed a PM! Since then it has been a whirlwind, I had no symptoms of bradycardia.

I am feeling sore, but so very tearful, I seem to be very forgetful too, is this normal? I am feeling scared, I had had no symptoms of bradycardia, but since I was told my heart was be...


Posted by ashuhhlyn on 2015-11-10 21:58. 5 comments. 395 reads
 
Hello! I'm a 17 year old female and for the past 4 years I have been dealing with passing out and becoming extremely dizzy and I lose my vision when I stand up. I was put on a 30 day holter monitor last June which didn't show much. Approx. a month ago I had an Implantable Loop Recorder implanted which can be in for up to 3 years. My doctor is thinking I may need a pacemaker and that this is just to double check everything. I know that the pacemaker will help but I just can't stop being nervous about that I am so young and may need one..

Posted by aen2jiffy on 2015-11-06 23:43. 1 comments. 276 reads
 
Hello,
This is my first post. I think I am becoming a hypochondriac lately. Two weeks ago, I had a CDT_D implant. During this time, I have feeling little pings and pinches. But yesterday and today, I keep getting light numbness in my left jaw (the same side as my implant). The numbness is strange in that it comes and goes; I have no chest pain or dizziness. Bottom line, I feel fine expect this weird sensation. Has anybody experienced this post-op? Thank you.


Posted by Iwantmikenow on 2015-11-04 02:22. 5 comments. 559 reads
 
So, it's been a year. A rather long year, but here it is. See my previous posts to get a feel why this is a milestone for me and my family. I almost demanded this thing get taken out...but then I'd have been right back to syncopy and dealing with syncopy events pretty much every day. What can you do when your heart stops multiple times for up to 15 seconds a pop...driving a car, climbing a ladder...it was just a matter of time until something major happened other than passing out at a stop light. Anyway, I'm still struggling with some pain and discomfort especially when I lift my arm over my head. I'm still very much aware of the hardware from the PM and the path the wires take down into my chest cavity. It has gotten better, but wo...


Posted by bdeisle on 2015-10-27 16:55. 4 comments. 566 reads
 
hello, I am a thirty-year-old male that was fitted with a s-icd in may of 2015, so almost six months ago from the date of this posting. I was taken to the hospital because of a freak collision during a league football game that ended with my toes looking back at me - broken tib and fib, which did not break the skin. Anyways, all is fine - I have broken bones before and it hurts like hell but life moves on until I coded during the final thirty minutes of my leg surgery, which ended up being rescheduled three days later. However, waking up with a breathing tube, twelve+ hours missing and family in the room is what finally broke me. Anyways, long story short is that I was diagnosed with long qt (type/level 1) - father died of a "possible" he...


Posted by dgowett on 2015-10-23 05:19. 11 comments. 483 reads
 
Hi, My name is Donna and Im a nursing student doing a patient teaching project on pacemakers and defibs. I have done research and understand how they work. I am more interested in the emotional and coping of having a pacemaker or defib. Would anyone be willing share their experiences on having the pacemaker so I will have a better aspect on how the patient feels and copes. I will greatly appreciate all responses and for you taking the time to share with me.

Posted by Yolande77 on 2015-10-21 10:50. 7 comments. 462 reads
 
Before I had my pm installed, I looked at the posts and thought omw... this sounds bad but I have to say Thank You now. I am 4 weeks post dual PM installed and now don't feel so alone. (32 years old, lives in South Africa)

It is a very emotional, painful, worrying experience. No one around me can relate so I keep my feelings to myself. It is not a visible "thing' so everyone basically forgets, except me. I have constant pain, tired, uncomfortable and worrying the WHOLE time. I am a fitness instructor and started with my sessions 1 week post opp as I don't have any other choice which make things even worse as I am unable to perform my duties 100% because of arm restrictions.

I am now very thankful for this site, ...


Posted by steveh on 2015-10-18 22:39. 1 comments. 342 reads
 
If your ejection fraction has improved from 30 to 55 percent with a St. Jude CRT-D should you still be worried about VF?

Posted by Hopeful2015 on 2015-10-17 04:56. 10 comments. 518 reads
 
Hello everyone,
I just received my pacemaker one week ago. I go for my follow up appointment on the 22nd. I am extremely emotional, crying VERY easily. I also will feel like I get "hiccups" down in my ribs on the same side as my pacemaker. Is this normal? Will it get better? I joined this site hoping I can get feedback from people who have actually been where I am now! Thank you in advance for any info you would like to share with this newbie!




Posted by harleyrose on 2015-10-16 18:08. 8 comments. 377 reads
 
looking for anyone who has had more then 4 pacemakers. i feel like i am alone . i have already set records . i have congenital heart blockage and arrhythmia

Posted by capman on 2015-10-08 08:17. 3 comments. 423 reads
 
I've recently had multiple hits from my ICD. I'm stable now and alive. Great. Unfortunately I'm having a problem with panic attacks due to a feeling that it will fire again. The worst time is at night and I then find that my pulse is missing quite a few beats but still relatively strong and seldom more than 60. The question is, are the missed beats the cause of the panic attacks or the result of the panic attacks? Anyone with a similar experience?
Capman

Posted by firejoe on 2015-10-06 00:29. 5 comments. 408 reads
 
If you are reading the Pacemaker postings odds are you have a new pacemaker. One of the things I've noticed over the pasr four years is that most of us are shocked that we need a pacemaker. Then we are helped by reading these postings and other club members. And then rates are adjusted and meds get right and the miracle of this little device makes our lives normal.

If you have a new pacemaker ask all the questions but take great comfort in knowing the future is good and the pacemaker will mostly just be forgotten.

Posted by kanike on 2015-10-05 22:41. 1 comments. 266 reads
 
In September of this year i had a icd implanted / everthing went ok till i started to recover from the implant / after the swelling went down it got very uncomfortable and fells like the implant on one corner is pressing on the arm muscle at times / i am thinking about having it repositioned but i am not to sure it would cure the problem / gaining a few pounds would probely help but not a good idea / from what i have read it is something you will get used to over a period of time / is this normal / i was wondering if anyone else has had this problem / dave

Posted by Zetha on 2015-10-01 16:13. 4 comments. 409 reads
 
I started driving yesterday, in my 4th week after PM. Although I was very nervous and I lacked some confidence, as soon as I got going I had no discomfort in my arm. I went on my way quite happily as previously.... it actually did me a world of good to do my own driving and my own shopping, coming home with some new clothes to wear, which ALWAYS gives a lady a boost!!!

Going out again today to meet my daughter-in-law for lunch..... so now I feel I might get back to my normal self as before, only with an extra gadget!!!

Posted by Siito on 2015-10-01 11:44. 8 comments. 556 reads
 
Rich had a pacemaker put in yesterday immediately on arriving home he had a 1/2 cig we calmly had a heated discussion. 5 minutes later he had the other 1/2 out an upstairs window. We lit him to him hysterically screaming with tons of anger, swearing and completely blown away. We have supported this man for years with other addictions i am finally leaving and our daughter will not support anymore either. Feedback please.


Posted by Pfarkas on 2015-09-28 17:10. 4 comments. 565 reads
 
Hi all pacemaker club members,

I am Peter from Slovakia, I am 31 years old and I am sporty guy, I did a plenty of sporting activities (going to gym3-4 x a week, martial arts, kiteboarding, snowboard and so on)
At end of June 2015 I started to feel really bad, I almost passed out few times and felt really weird, in that time I knew it is pacemaker time, As I was diagnosed with SSS 2 years ago but I had no symptoms.

So 24Jul2015 I got my dualchamber Medtronic DR MRI device. To be honest it was really difficult to cope with this whole thing as after implant I felt really weird, my pulse was way too big, like 90-110, so I went for tweaking and in came back to the normal range 60-80.

Honestly I felt in pas...


Posted by capman on 2015-09-28 10:30. 3 comments. 520 reads
 
Hi all. I had my ICD fitted 4 years ago, 18mths ago it fired 3 times due to vigorous exercise. The ECG taken shortly after was normal so I carried on with the rest of my life. I got quickly and totally over it.
At the beginning of this September, having been put on a drug by my GP that causes arrhythmia (tell me about it) my heart got totally out of phase and blew a gasket causing my ICD to fire 14 times over 4 sessions and 2 days. I am now a mental wreck and really having a problem coming to terms with it and the fear that it will fire again at any time of the day or night. My drugs have my heart under total control, pulse generally 45-60, and strong. Logic says it will not go off, I am back under control. I am alive. But anyone got ...




Member Login
email:

password:



Who's Online?
We have 7443 visitors online.

Members online:
  phyllandrew
  Eddiethedog
  donr
  Gerrygee
  DampDog
  barnet38
  Artist
  billyxoc1@gmail.com
  Lurch
  PatCan
  GoodDog
  Sunnystives
  Grilor
  webdragon
  gp.19
  Woodsey
  paulc1950
  Bionicwoman
  vgivens62@gmail.com
  BrynaR
  pwardle
  gojack
  becky1958
  TraceyE
  Cally90
  Barnes42
  Harleygirl
  rghair@gmail.com
  Megan
  Lucinda1406
  Tattoo Man

You're Wired When...
Muggers want your ICD, not your wallet.

Member Quotes
I am a 58 year old woman, race cars, ski at 13,000+ feet, work out daily, have become a second-degree black-belt in Karate, run a business - no limitations.

Seatbelt Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.