St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by TessyBear on 2015-01-15 17:44. 11 comments. 415 reads
 
Hello all,

I'm a 39 year old female in England whose heart 'paused' for 13 seconds and was fitted with a two lead pacemaker as a result. It all happened so quickly that I don't think I've taken it all in.

I'm off work recuperating at the moment and getting plenty of rest. Returning to a normal life seems a bit daunting because everything has changed, although it hasn't in reality.

Family and friends tell me this is the start of the rest of my life because I've struggled with fatigue and misdiagnosis for years. I hope this is true, I really do but I can't help but be apprehensive. What if I pull a lead out? What if the insertion site gets knocked? What if I don't feel better? So many what if's...



Posted by alimiller08 on 2015-01-15 13:08. 8 comments. 430 reads
 
Good morning,

Just joined this site...probably should have a long time ago. I am 24 yrs old and I was diagnosed with third degree heart block when I was 13 months old and had a pacemaker implanted. I have had one ever since and I am currently on my 4th pacemaker. My heart beats under 30 bpm on its own. I still have leads from my 2nd surgery at 3 1/2 yrs old. Ever since I was old enough to understand my condition and the fact that I am completely dependent on a machine for survival, I've had anxiety in the form of "You must live every day like it's your last." I feel that has gotten worse in the last year to the point where I am so depressed that I have to spend 9 hrs a day in a job that I hate. And I have to work in order to hav...


Posted by tessenne on 2015-01-15 02:27. 15 comments. 312 reads
 
I am 28 years old. I was born with dextrocardia and have always been told it is harmless and will never effect me. I have spent the last five years experiencing episodes of near syncope. Last year, 2014, I began losing my balance and falling to the ground during these episodes which had never happened before. The episodes became more frequent and at one point, I had eight episodes of near syncope in one day. My doctor was struggling with insurance to get me a monitor to wear at home but with that one day he found a way to get me the monitor. I got it last Friday and experienced two episodes on Sunday morning, around 1a.m. It was found that my heart had paused for six seconds and I was told to seek immediate medical help and that I would li...


Posted by Holla on 2015-01-13 13:37. 3 comments. 231 reads
 
Hi I'm new to this and just wanted some reassuring
My daughter had heart checked by off chance due to her having epilepsy and they detected something but nothing to worry just beat of heart change and wasn't that concerned as they (they is great or one street) we will monitor your daughter again in 6 months this went on for 4 years
So going to another trip to gosh I expected to be told the same thing like always but to my surprise they spoke to me and said maybe a pacemaker would help to be fair I was alone as normally it's nothing to worry so told patner not to is work for it
As you can imagine my mind ticked off and I felt I was being spoken to but I just couldn't hear
Her heart machine reading came back and they are...


Posted by edwardtk on 2015-01-13 02:27. 8 comments. 407 reads
 
Hi, i'm new to the Pacemaker club. I suffered syncope and heart block and have felt generally tired for a few years now. I had no choice but to install a dual chamber pacer exactly 2 months ago. As a fit and healthy person, this came as a massive shock to me, I still can't believe that it has happened and i find myself worrying/panicking that the machine (and me) will stop...i must be driving my doctor crazy. I am a worrier and find it difficult to get back to "normal" life (eating, sleeping, wokring..) How do you deal with the anxiety?

Edward

Posted by Margo1 on 2015-01-10 22:00. 7 comments. 246 reads
 
I am 5 days after getting my first PM & am relieved to find this club!

It's been a pretty scary few months

Margo
Columbus, OH

Posted by caroylbills on 2015-01-08 23:01. 1 comments. 230 reads
 
I received the pacemaker in August of last year and after my first interrogation I was told that the first month after getting it I had 50 (incidents) most were short duration. 2 weeks ago I passed out again and went to the ER and on the (EKG?) it showed the pacemaker was acting but I have been having an episode of fluttering every night at exactly 12:00 PM, exaction 12:00 PM so I went back to have the Interrogation and none of this showed when interrogated. No one can explain the 12:00 thing or why I went from 50 incidents a month to 0. Does anyone have any ideas on this. I'm concerned.

Posted by 222star222 on 2015-01-06 14:41. 10 comments. 595 reads
 
I'm new, just had second implant in 3 months--first one had exit block. Anyway, I understand the technical/physiological reason I needed a pacemaker (type ll av block), but I wonder if there is a spiritual/emotional reason underlying the physical--that is, is my heart trying to tell me something? Does anyone else wonder about this?

Posted by MINT on 2015-01-03 13:16. 3 comments. 228 reads
 
JUST GOT PACE MAKER 2 WEEKS AGO. DOCTOR SAID IT WAS ELECTRICAL ISSUE. I WAS BIKE RIDING AND PASSED OUT! I PASSED OUT A 2ND TIME IN HOSPITAL WITH HEART MONITOR- THAT'S HOW DOC DECIDED ON PACE MAKER. SOMEWHAT DOWN. I HAVE BEEN TIRED SINCE PROCEDURE AND STILL HEALING FROM BIKE FALL- STITCHES IN FOREHEAD, 2 BROKEN RIBS AND BRUISES- INCLUDING FLUID ON THIGH STILL WAITING TO ABSORB. ANYONE WITH SIMILAR EXPERIENCE?

Posted by sweetcheeks on 2015-01-03 05:09. 8 comments. 314 reads
 
Hi everyone I just received a dual lead PM on the 11 Dec 2014 so I'm still trying to get used to it and coping as its only been 3 weeks.
Very sore shoulder and itchy at the scar just now. Still trying to get used to it with clothing. I know it's early days but very awkward trying to lie on my left side, it actually stings like mad when I turn around in bed. I've had a wee bit of fluttering and bit out of breath when it happens. I've also felt pulsating now and again at my lower left ribs. Is this normal?
I have the usual post op symtoms of being uncomfortable trying to reach to the right with my left arm and my shoulder has been very sore. I'm hoping that this is all very normal and will settle...one day thanks

Posted by Judy13 on 2015-01-01 22:48. 3 comments. 371 reads
 
Hello,
I have had my device for one month. I was wondering if anyone experiences discomfort when clothing touches pacemaker site. Also, it feels like it still moves under my chest. Is this normal?

Posted by janec on 2014-12-27 18:04. 9 comments. 469 reads
 
On December 9th 2014 I got a message to say my Dad had been found dead on his kitchen floor. I couldn't believe this was true - he had been at our house having dinner with my children 2 days earlier and was on good form. We found out from the coroners report that he had died 24 hours earlier on Dec 8th (less than 24 hours since being at our house having Sunday dinner and was in good spirits). I can't come to terms with losing my Dad. He had had a triple bypass, 3 stents, pacemaker and a valve replacement earlier on this year. This Christmas has been extremely tough but I have 3 very young boys to think of. I just wish that I could speak, hug and be with him for at least one more hour to say thinbgs were ok. I still can't understand how aft...


Posted by skippy on 2014-12-24 16:36. 9 comments. 372 reads
 
Merry Christmas~!
I'm considering having a pacemaker implanted fairly soon. I've been in A-fib for most of a year. Lots of meds since May, 2014.

I'm looking for more real life information about what it is like to live with a pacemaker. pros and cons Regrets, or delighted with having one?

Any information about surgery, recovery time, and how life changes after implantation.

A-fib has caused my life to be pretty restricted, and I'm looking to improve my quality of life and get back to being really active. I eat very healthy - I just haven't been able to be as active as I want because I'm always out of breath from A-fib.

I'm also looking for hints or helpful ideas about how to adjust to t...


Posted by JuCD on 2014-12-24 12:05. 5 comments. 300 reads
 
hi everyone,
I am new to this club. I just got my PM less than 48hrs ago. I am 31yo and I have a 3rd AV block. I am currently 6 months pregnant with twins and if it wasn't for these babies I would probably not know that I had a congenital heart problem...

I was diagnosed when I was 8 weeks pregnant and though the dr told me that I would need the PM they were not sure when it would be the best time for it because I was in my first trimester. As I continue to get more and more tired and the worry about baby development and birth increased they decided to just get it done before I was 24weeks preg. And here I am now...

I guess we were so worried about the babies wellbeing that I did not do my due diligence on res...


Posted by bettyb on 2014-12-22 13:04. 6 comments. 352 reads
 
Hi,

I got my pacemaker June 24th and I can still feel it moving back and forth (like a hockey puck) and it sticks out sometimes if I lift my arm. I still have trouble sleeping on that side without feeling discomfort. Is this normal?

Thank you for your help.

Not sure if I am using this website correctly. =/

bettyb

Posted by Reisha on 2014-12-17 20:22. 5 comments. 362 reads
 
Hi All
I am new to my pacemaker, having it put in last Wednsday. It's been a long hard road here. For the past year and a half I've been just falling to the ground. I was diagnosed with seizures and put on medication after medication. I had horrible reactions to each and continued to have falls. Was finally admitted to Barrows Neurological for brain mapping, and after 8 days of near torture - strapped to a padded bed, flashing lights and sleep deprivation: 36 awake/4 sleep/48 awake to induce seizures, it was determined that wasn't the problem. Maybe a cardiac conduction issue. Had a monitor implanted in Nov 14 and within 2 weeks had alerts showing my heart stopping for up to 40 seconds at a time. In for a pacemaker. I am now havin...


Posted by Mits on 2014-12-15 15:11. 9 comments. 416 reads
 
Hi everyone. I have AF and had a pacemaker implanted about 8 weeks ago at St. Thomas' Hospital in London. I was due to have an AV node ablation last Friday but cancelled my operation as I was too scared to follow through with it. Am struggling with the insertion of the pm without trying to come to terms with being 100% dependent on my battery. I don't think I can go through with the operation at the moment and have asked St. Thomas' to remove my pm. They refused at the time but asked me to go back to see them in January. I just feel I made a huge mistake and am struggling with my decision to have the pm inserted. I had just got over pneumonia when I had my procedure and in hindsight wish I had got over that before agreeing to my op. I am a...


Posted by Adam_88 on 2014-12-15 13:14. 3 comments. 327 reads
 
Hi I'm 26 years old and had my pacemaker fitted in June. Had it fitted after my heart stopped beating twice within an hour. Have got used to having the pacemaker but because of my other condition which is Mild Muscular Dystrophy I am getting very tired. I haven't got a permanent job at the moment just working for an agency but with getting tried very easily I am starting to get down and feel depressed about what the future may hold. Can't really see myself getting any better. Thought I would share these thoughts on here as I don't really know where else to turn to.

Posted by 7lives on 2014-12-14 19:03. 7 comments. 356 reads
 
I had surgery Monday 12/08/14. I knew it was in my future but I did not know it was so soon. I had a 2nd degree block. I was functioning ok with 45 bpm. I went for a cardiac surgical clearance for gall bladder surgery and I end up with a pacemaker 2 days from my visit to cardiologist.
I find myself unable to sleep because I can feel and hear my heart beats that to me they sound too mechanical.
I find myself edgy and with bad temper. Like with no patient for anything. I am worry for my husband that he is the direct target of my bad moods.
Has anyone has experience the same? How long it will last?
I am grateful I found this forum. Learning a lot from the other participants.
Thanks, Dori

Posted by Ldn5950 on 2014-12-13 21:57. 9 comments. 500 reads
 
Hi, I just joined this group because my husband just had a pacemaker put in on Tuesday and we are having a hard time with dealing with the anxiety of the not knowing. My husband is 32 and is a middle school teacher who passed out at work on Monday and was rushed to the hospital with a low heart rate and we were told he had a right bundle branch block and would need a pacemaker. He has been very depressed and scared since surgery and feeling very lonley. Please any support or positive feedback would be nice he feels that this is rare for young people.



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