St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by CincyGirl on 2014-07-29 22:25. 2 comments. 330 reads
 
Since being diagnosed with CHF and having the CRT implanted I have really struggled with feeling like "me". For years I was always one of the healthiest people around. Ate right, exercised, actually took cod liver oil for my heart (yuck!). I never would have guessed that I would be diagnosed with CHF
with an EF of less than 20%. It was touch and go for a while. I never realized the symptoms I had was from CHF. I just thought it was "mommy syndrome" - burning the candle at both ends. Now I'm here, 8 years later. I had my first CRT in 2006. My second 4 years later in 2010. I assumed I would have to get another this year. Checked with the EP Nurse and she tells me I have 8-12 months remaining on the battery. That's good news. I k...


Posted by LLou on 2014-07-28 08:24. 3 comments. 344 reads
 
Just working and out of blue started passing out. GOT a Pace maker was put in in 2011. I have it for a year and have had 5 surgery lead. (2 leads came unattached, and infection, 3 issues with pace maker) I had a heart doctor and decided to change after you never even came in to see me during a year and a half. Got another doctor which everyone said was super but I he did try and figure out why this happened. Lexiscan done, catherization and arteries blocked. Put me on medicine and was told him I was allergic to sulfa drugs. Was told to take it. Ended up with Hives, another medication made me fill like I was spaced out. Called and called only nurse would not make me an appointment and was told I had to go through her. JUST gave up and nev...


Posted by gelove48 on 2014-07-27 20:07. 7 comments. 377 reads
 
I was implanted on July 8, 2014. Dual chamber pacemaker. I was put on Xarelto and Amiodarone. The Amirodarone was bad news for me - had dizziness and fainting. Am now off of it. My question is, does anyone have atrial fibrillation, sinus node dysfunction with a pacemaker and know what life expectancy I might expect. I am 67 year old male.

Posted by edesano on 2014-07-25 13:47. 7 comments. 409 reads
 
Hello all,

I am 37 and just received a PM on June 6th. I am having a terrible time coping with this. I already struggle with anxiety and depression. I just can't believe how hard this is to get use to. I touch it every ten minutes it seems. Just looking for support...

Posted by AnneSalvio on 2014-07-24 13:34. 4 comments. 365 reads
 
I was wondering if anyone else has had this experience....after eating a healthy meal - my heart/pacemaker seems to be working harder. I feel more tired. Is that normal?

Posted by PacedICD on 2014-07-24 02:14. 5 comments. 335 reads
 
Hello my name is Alex. I have posted here in quite sometime but it feels like a good time. I'm 23 and I was recently with my 9th pacemaker/defibrillator and it hasn't gotten easier. On top of chronic pain from implant scars on my right and left my depression hasn't really improved and has only gotten worse sine my grandmother who also had a pacemaker/defibrillator and my same condition passed away several weeks ago. Her heart is a.decent look into the future of myself which is bleak especially since I presented with the condition much earlier. I also deal with severe chronic pain that I take prescribed narcotics for that only take the edge off. Surgery, lidocain, steroid injects all had no effect on the scar tissue that pains me on m...


Posted by magic on 2014-07-22 03:11. 1 comments. 231 reads
 
Hi every one my name is chante i had my pm & differentiator march this year i am so pissed off about it i went to hospital with a sore leg spent 3 weeks in intensive care i live in Australia and again not happy about this



Posted by cb on 2014-07-21 16:17. 4 comments. 225 reads
 
Hi!
I have a 2 lead St Jude for 18 mos, for 3rd degree heart block. I take no medicines. Last March, after an emotional hit, I went to the ER and was told I was having premature atrial contractions. They gave me some nice (but only 10!) anti anxiety pills and sent me home. But I am feeling that way again....HR is 83 (am programmed 55 low rate) while laying in bed...and I FEEL the very strong contractions...not good. I don't have any reason to feel upset now. Do any of you have PAC? What do you do to stop it? I am feeling wrung out and unhappy about this and will appreciate any input.
(BTW, the trip to the ER cost big bucks and thus I do not wish to do that again)
THANK YOU!!

Posted by Dillon8986 on 2014-07-20 23:00. 1 comments. 265 reads
 
Sorry this is quite long but I am new to this group!! I appreciate any feedback!!! Here's my story....

Feb 2011 got flu. Have been a little over weight and went to doc to try to loose weight and did EKG. Found issues and sent me to cardiologist. Doc did angiogram and said it caused non-ischemic Cardiomyopathy, and a LBBB. Didn't know until 3 months later. no blockages but confirmed other issues. Said had CHF with an EF of 20%, after surgery reevaluated was 40% and doc said that would be the best I will get. I also have sleep apnea, and asthma (mild), Chf Nyha Class II, and IBS.

Put me on:
metoprolol succinate 50 mg XL (toperol)
fUROsemide 80 mg (initially now with a take two as needed)
losartan 1...


Posted by rfassett on 2014-07-20 20:50. 9 comments. 313 reads
 
I have not been around for awhile because there has been ssoooo much going on in my life and I have not had any issues with my PM (implanted last October). Although I did find that getting through my extremely busy season became in doubt toward the end. I was not sure if I was going to make it. But I did. Not sure if I can do it again. But to my reason for posting, I told my wife last night that I have do my pacemaker transmission on Tuesday. The "my pacemaker" part gave me pause. I am still, after 9 months, still in a non-believing state of mind at times. Not always, and not even most of the time. But sometimes. To all of you veterans out there: does that feeling EVER go away?

Posted by KAG on 2014-07-15 11:07. 4 comments. 447 reads
 
I wrote this in the hope that it will help the newbies. I originally posted it a while back and think that maybe it's time to post it again. Sometimes I spent more time in one phase than in others, sometimes went back and forth, but eventually I got through it. You are not alone and you can get through it too with persistence and being your own best advocate.

My experience in getting a PM:

Shock, what the heck happened, I was fine a short time ago – no heart issues

Fear, I could die from this.

Pain, I've been cut open and foreign objects installed.

Discomfort, as the incision and bruises heal.

Anxiety, as I realize how close to death I was and there is this tiny electro...


Posted by dave58 on 2014-07-11 13:47. 8 comments. 420 reads
 
Hello all.

I had my pacemaker fitted early May 2014. Since then i have
returned to the pacemaker clinic at my local hospital. And they
inform me that the pacemaker is working fine. My problem is i
am still not well in myself. I cannot walk to far. Time spent in the
garden is limited to light duties and anything a little bit more taxing causes me tightness in my chest and a soreness of my
chest wall and soreness up into the jaw and neck. I have been
back into hospital since having my pacemaker fitted. I have been taken to hospital twice by ambulance as my symptons
were tightness and soreness of my chest. I had blood tests early in the day and late on in the day as the doctor at the hospital s...


Posted by leet on 2014-07-09 15:51. 5 comments. 318 reads
 
I have had my pm for 1 year and am going for my 1 year check up but I am finding I when it is hot out I puff out when I walk and it is scaring me as I go back into a-fib which I know a pm is not a cure for a-fib anyone else have this problem? thank you

Posted by bobandbj on 2014-07-08 09:26. 2 comments. 331 reads
 
Flutter Ablation and Dual Lead Pacemaker Implant

Hi again! Well, I had my Aflutter ablation and Pacemaker implant 4 weeks ago today and I am still experiencing daily irregular beats as well as periods of 100+ heart rate at times even while just sitting. I've phoned my doctors more times than they seem to like so 2 weeks ago I just quit calling to complain and question if all this is normal. They continued to tell me I will experience these kinds of things for up to 3 months and it's normal! It was also mentioned he will see me in 3 months and check out my situation then and it's a possibility I will need the "big" ablation as he calls it. I've experienced Afib in the past - diagnosed 3 years ago as Paroxsymal Afib and have had a...


Posted by jericho on 2014-07-05 20:00. 4 comments. 305 reads
 
I have had a pacemaker fitted 2 weeks ago, quite a shock emergency situation, I think I am coping but keep checking and rechecking all the information I am given

I am a carer for my husband who on the same day had a knee replacement without knowing I was in hospital. However although he is 74 and a farmer who only wants to work full time again and I am 66 and want to go cycling in Vietnam and Cambodia which I did last year and India the year before - we have decided enough is enough and we aim to live life as full as possible.

However I still find myself wondering how I am going to cope I have sinus node disease and the consultant mentioned tachybracycardia I keep reading your comments and they are inspiring. ...


Posted by pblabore on 2014-07-04 21:38. 8 comments. 376 reads
 
Can someone share with me if it is normal to feel depressed, scare and just not yourself after having your heart stop and the defibrillator restart your heart. Had it since 2009 , yes it is the first time. I was born with a v s d which is a long story.

Posted by boysmom on 2014-07-04 06:09. 2 comments. 246 reads
 
For the responses from my last post, especially Donr grateful heart and angry sparrow. You all pretty much agreed what I should do, I will be taking your advice. Just making the decision had made me feel better. Thank you for the support and understanding.... And the"dork" as Donr called him sent me a email apologizing to me. You know that is going into the saved folder! I am so glad to have found such wonderful caring folks on this site. Keep up the good work!!!

Posted by jetson52 on 2014-07-03 19:49. 5 comments. 424 reads
 
I have had my pacemaker/defibrillator since June 23rd. I am still sore and have been having a hard time sleeping. I always slept on my right side and can no longer do so. I feel like I have a brick in my chest. It sticks out a lot. Will I ever get to the point where it doesn't feel so heavy, that I can sleep on my side again and that I will forget that it is there? I am 61 years old.

Posted by boysmom on 2014-07-03 06:32. 7 comments. 503 reads
 
I would have a breakdown at work... Well yesterday my regional manager was visiting, and he was upset about some budget stuff. I have not seen him since my pm 6 weeks ago. He walked into my office and immediately got on me about the budget. Now mind you, I never let anyone at work see me upset, and have always gone right back at them. Well, that didn't happen this time. I became a basket case, tears rolling down my face, and I just could not stop! I finally had to walk out of my office to the nearest restroom and just fell apart. When I returned he informed me that in his opinion I needed counseling. I ignored the comment and the rest of the day went fine. Later my assistant told me when I left she went in and blasted him for ups...


Posted by howdoyoumendabrokenheart on 2014-07-01 21:25. 3 comments. 354 reads
 
Hello all. I've been a member of this site for some time now and I have posted a few messages, but now with time passing I think I have a better understanding of what questions to ask. I need some help with some issues.

I have CHF and COPD. I am on the following: Symbicort, Spiriva, Lisinopril, Carvedilol, Furosemide and Digoxin. Oh yes, an aspirin. I have a St. Jude ICD.

Now, I have been feeling just awful lately. About March of this year I was shocked about 6 times due to SVT's and they have adjusted my ICD accordingly. I visited the cardiologist last month and he noted 37 "events". These events are times when my heart goes into the 150 plus zone. Now while at the cardiologist my heart went from 86 to...




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