St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by lizzy3 on 2014-06-26 06:35. 7 comments. 256 reads
 
Hello all,sorry i have another problem.
I had my CRT fitted 5 weeks ago and i started back at work on Monday,but today i don,t know why i just burst into tears and could not stop every thing just seemed to much is that normal?, i was sent home and told not to come back until i am ready but i thought i was.
my CRT is working well and i was so happy now i am feeling so down and stupid for this to happen at work.
I am usually happy and can cope. does anyone else feel like this?
thank you all for your help it's great to talk to someone who knows what you are going through.

Posted by Teijee on 2014-06-25 12:04. 6 comments. 248 reads
 
Well after allot of testing, CT and MRI and ECHO, my EP said your right and left ventricle are slightly dilated but still in the normal limits.

He said only your heart rate for some strange reason is very slow and sometimes fast.

He said a pacemaker wouldn't fix my symptoms but with both heart rates I don't feel fine at ALL.

With slow I mean 39 bpm well awake and It always comes out of the blue and I get throat pain forgetfulness can't concentrate and I forget allot. Shortness of breath and chest pain.

What are your opinions?

Should I push them to do it because I can't take it any second longer and I have been to ER so many times and they always send me home with a normal EKG.


Posted by Jeanie0506 on 2014-06-24 04:18. 0 comments. 103 reads
 
Has anyone with an artificial mitral valve received a Bi-ventricular ICD. What has your experience been like?

Posted by johnnyc on 2014-06-23 21:54. 3 comments. 211 reads
 
I had the pacemaker operation about 4 months ago. It is set on demand for when my heart beat goes below 40 beats per minute. It is only working about 2% of the time.This has been a wet spring and I am cutting a large lawn at least twice per week with a small push gas lawnmower. The pacemaker site becomes tight and uncomfortable. Has anyone else had this experience? I am contemplating getting a self propelled lawnmower if the conditions continue.
Thank you,
John

Posted by Kjmcbryde on 2014-06-23 00:18. 2 comments. 316 reads
 
I have some concerns about my PM. I received my PM on June 28th of 2013. When it was first integrated, it was pacing 33% of the time. Then each time tested thereafter, it was dropping in the amount of time my PM paced. It got down to 5%. and had been climbing back up now. It is now at 12%. My doctor says this is normal and that I will continue to be more dependent as time goes by. Here are my concerns. One, I think I can feel it each time it goes off. What I feel is like a bunch of marbles rolling around in a tight place, almost taking my breath away. Then I think I know when my heart stops. Because I feel faint. As if I am going to pass out. This is normally followed by my heart beating fast (marble feeling). Also, emotionally I am concer...


Posted by KAG on 2014-06-21 11:58. 8 comments. 314 reads
 
I just posted this comment in another message and I thought I'd put it out as a post since we've gotten many new members and maybe it will help them. You are not alone and there is light at the end of the tunnel with persistence and being your best advocate.

My experience:

Shock, what the heck happened

Fear, I could die from this

Pain, you've been cut open and foreign objects installed

Discomfort, as the incision and bruises heal

Anxiety, as you realize how close to death you were and there's this tiny electronic battery operated thing keeping you alive

Acceptance, that you've got this amazing electronic battery operated device that was designed to help you live ...


Posted by mandyh on 2014-06-20 17:47. 3 comments. 203 reads
 
I went to the hospital for a check up after 5 weeks of having a Reveal fitted and was told I wasn't allowed home because I needed a PM fitted urgently to say I was in shock was an understatement. I came home the next day still in shock and a lot of pain I had it done under a local and no sedation, what I am finding hard now is just coming to terms with what has happened and all I seem to be doing is sleeping or crying which isn't like me.

Posted by Orba615 on 2014-06-17 17:46. 9 comments. 349 reads
 
Does anyone know if it's a no no to sleep on the pacemaker side?
Seems I remember the nurse telling me not to but am not sure as that was 10 years ago.

Posted by rubywooby on 2014-06-17 14:46. 5 comments. 238 reads
 
Hello! My name is Ruby. I'm 45 years old and I recently experienced dizziness , shortness of breath, and fatigue at work. I went to my doctor and he told me to see a heart doctor. I was told that my left ventricle was working at 33%, that it was weak and needed a CRT device. Since I work at a high school I took a break for summer to get this done before I start in August. But, now I find myself scared and wanting to opt in not having it done! If anyone in this chat room has gone thru what I'm going thru, could you please tell me your experience with this device. I would greatly appreciate your comments.


Posted by Leeanne on 2014-06-17 04:35. 1 comments. 130 reads
 
I recently had an epicardial pacemaker implanted not quite a month ago. Does anyone know when you are able to sleep on your sides again? I am a very busty 58 yr old woman I have had considerable pain because of this...I tried to lay on my right side using a pillow between my breasts, dozed off for a few minutes, the pacemaker started pounding like it was going to jump out. so...I am still sleeping in my recliner. I layed on my right side because I had a left mini theracodamy which by the way was horrible, worse than my open heart surgerys. Is there an end in sight , or am I going to be sleeping in my chair for much longer.

Posted by keo on 2014-06-17 03:06. 5 comments. 240 reads
 
now 2 weeks post op.. why is it that everyone around me is expecting me to be full of energy and like some bionic woman. It is making me feel awful... I still feel really tired (not sleeping well) I am very sore, everything is hard to do as doing everything one handed so not to pull wires out!!! Am I not coping well or is this normal? How much could you all do 2 weeks post op? my husband says I am expecting too much but everyone around me seems to have high expectation of me!!!!!


Posted by boysmom on 2014-06-16 19:25. 2 comments. 177 reads
 
I convinced myself four weeks out I would feel wonderful. Well, today is four weeks and I am still having pain. The pm site feels like its hot sometimes, and When I sleep on my right side I still wake up in pain. My skin still feels like it is pulling... XmI am hoping that because I caught some nasty germ right after implant I am just "running behind" in the healing process. I have lost an additional 4 pounds (total of 16 now). The top of my pm sticks out so much further than the bottom. I have a check scheduled for next week. My heart races while I am just siting, sometimes getting up to 110 bpm. I never had this before. Sorry I am whining but I just want to feel normal again, or I guess learn to accept what my new normal May be...


Posted by Noel on 2014-06-15 10:47. 4 comments. 274 reads
 
Hi all - have just joined the club and hoping to get some feedback on my decision dilemma.

By way of history - have had Atrial Flutter for 12 years which was treated with Flecinade and Bisopropol for most of that period. Stopped drinking alcohol entirely. Had 1 ablation attempt 5 years ago (unsuccessful due to having diagnosis of atypical flutter (many scar tissues sites in right atrium causing rogue electrical signals). Further attempts at ablation are assigned a low chance of success due to the multiple scar tissue sites in the right atrium.

On Soltalol now but it is not effective enough. So now considering using Amiodarone (side effects are scary) or getting a PM (which if the PM would result in complete PM depende...


Posted by Ruesado on 2014-06-14 15:22. 3 comments. 235 reads
 
54 y/o, 300lb , I have a-fib, but I see my cardiologist in 2 weeks. I want a PM installed. Have some concerns.
Can i still use viagra after the PM is installed?
I get a real head and Chest Rush when I climax, nothing like when I was normal.
I am thinking about having gastric Bypass done. should that happen before or after?
I use to enjoy working outside, gardening, chopping wood. I get real tired real quick, any thoughts?

Posted by Johnboy on 2014-06-14 13:35. 1 comments. 128 reads
 
Hi to you all from the UK. I have just had a second implant in as many years due to complications with the left side of my heart. The quire is that I'm 3 weeks post opp & am feeling really down & sort of detached ? Is this normal I know I should be feeling great full which I indeed am but I just can't seem to shake these feelings off. Has anybody else felt this way ???? Or is it just me? I would be great full for any feed back as I have found great comfort whilst lurking on this forum. Kind Regards. Johnboy

Posted by StorminNorman on 2014-06-13 23:26. 6 comments. 235 reads
 
Thanks everyone for the comments on my prior post. very helpful...here's another-how long does it take (generally) for the device to feel like it is part of your body rather than something that has been added on ? Maybe , again, I'm being impatient- had my pm put in on 4/25.... it still seems "always there"....a bit uncomfortable to move my left arm across my body; no sleeping on my left side, skin feels "stretchy" over the lump etc etc does this stuff tend to diminish over time and, if so, how long did it take until you "forget it's there"?? Thanks!

Posted by lizzy3 on 2014-06-13 07:39. 2 comments. 173 reads
 
I am 53 years old had a pm fitted 4 weeks ago and i found this site yesterday thank you all for answering my questions they were very helpful and i did sleep a bit better last night. it's feels like you are the only one going through this and my family can't understand my worries.
. since's i had this done i have been worrying about the leads how do i know if they are still in the right place? I have my checks on the 2 July then i will know if all is as it should be but it seems a long wait.
just by reading every ones comments has been really helpful because they show me that once i have got through the next few months things will get better thank you.


Posted by keo on 2014-06-08 08:17. 6 comments. 260 reads
 
just had pacemaker fitted 5 days ago but feel exhausted. I didn't get good sleep in hospital and expected to feel tired for a couple of days.. 5 days on, still really tired. did anyone have same? am I expecting too much???

Posted by frances on 2014-06-07 12:43. 2 comments. 144 reads
 
The doctors and manufacturer say it can't be happening because my model doesn't have a "patient notifier" feature, i.e. it can't beep, which was my complaint. This AM, I listened carefully when it woke me up and they're right, it's not a beep, it's a very soft, rhythmical "coo" sound. Yes, I've eliminated every other possibility. Every one. I only hear it when either ear is pressed against the pillow and even then, only when it wakes me up, which is a few times in the last 3 wks. It's internal, its beat matches my pulse. I'm hearing something! Anyone out there have the same problem? If it doesn't stop, even though I have 1-1/2 yrs to go, I'm going to have to replace it because I'm losing sleep!

Posted by Lablover on 2014-06-05 12:04. 2 comments. 231 reads
 
I am trying to decide on whether or not to undergo an av ablation with placement of a pacemaker. My EP has explained that it is an extreme measure but after years of treatment with medications, multiple cardio versions and two ablations I am running out of options. I would appreciate any opinions from others who have had similar experiences.



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