St. Jude Medical Pacemakers & ICDs

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Messages in Coping Forum



Posted by davidjb on 2014-05-03 08:03. 6 comments. 344 reads
 
I have had a pacemaker for a year. I have been feeling exhausted and dizzy most the time. I am content Rate Response and all other tweaks are OK, so please read on.

I had a thought whilst gardening. I literally ran out of air whilst gardening. I realised I was exerting myself but not moving my left side so the Rate Response didn't pick up I was exercising and nor should it. It was as if someone had put a plastic bag over my head. It was easy to recover but made me think -- If you use the oxygen in your blood and your pulse doesn't go up to compensate that would cause dizziness (brain gets no oxygen) and likely exhaustion.

I then thought the same must be the case for stress. If stressed the heart rate goes up because ...


Posted by imatos on 2014-04-28 12:39. 6 comments. 341 reads
 
Hi Everybody,

I am really glad I found this forum. A really wonderful forum member suggested I share my PM experience and I think that is a great idea.

Back in 2002, I was having a lot of palpitations so I decided to go see a cardiologist. An EKG was done and it showed a First Degree AV Block and my cardiologist also found my heart rate was too low, so he decided to send me to the emergency room.

I was admitted and during my stay lots more tests were done and among those tests an EPS (Electrophysiogy Study, I think that is how is spelled) and they did see the first degree av block but no treatment was necessary. Upon discharging the hospital doctor did say that way in the future I might need a pacemaker,...


Posted by imatos on 2014-04-28 11:06. 8 comments. 253 reads
 
Hi There,

I am 48 years old and just got a PM implanted on 4/22/14. It was the most scariest thing to go through. I hope to find support and information on this forum.

So far, I have been feeling fine, the only thing is that I do get really warm when talking, especially on my face and I can tell my heart rate is elevated. Has anyone felt anything like that?



Posted by labor99 on 2014-04-27 22:47. 6 comments. 135 reads
 
Hi folks,,,,got my ICD 01/30/14. Aftering having a bit of a time getting the right med's I am doing A-OK. I worked my butt off outside today,,,,,actually several days consecutively. Lifting, pulling and just working very hard. No problems. Think I am going to be around for awhile. Jim

Posted by HK on 2014-04-27 17:34. 9 comments. 632 reads
 
I have been coming to this site since I got my pacer 7/29/13 after 10 long days close to death in CCU. The support here was terrific and exactly what I needed. Thank you again to all who helped me I will never forget. That being said and I do not want to upset anyone here but whenever I reads a response to a new PM insertion it makes my skin crawl at the suggestion that someone is depressed, bipolar, or some other psychological disease. How can it be anything but natural to feel badly when your life is turned upside down in an instant. I will tell you my family, friends and physicians all thought I was nuts when I kept complaining about being short of breath on exertion. I had my pacer checked several times and every time I was told it was...


Posted by ahuett23 on 2014-04-27 00:34. 4 comments. 316 reads
 
Im 23 yrs old and had a pacemaker put in april 11, 2014 I didn't know where else to turn. I have so many mixed feelings. I feel different than everyone else, wishing I didn't need this but of course im so fortunate as well. Everyone thinks now that im supposed to be okay since I have a pacemaker and like its not a big deal. Since I've had the pacemaker except the last 2 days I feel like an energizer bunny, seriously lol it feels so good though to be able to do things now. Several months before thet finally found out what was wrong after being hospitalized on and off for about 8 years it got so bad where I couldn't get out of bed when I did I always felt light headed and even had to stop going to college doctors always said oh nothing is wr...


Posted by jimcummi on 2014-04-25 14:04. 8 comments. 260 reads
 
I had a pacemaker fitted 10 days ago after my pulse rate had dropped to 30. I had passed out a couple of times so was hoping this is the solution. The only difference I feel is that I no longer pass out. Still very tired most of the time and do not feel safe to go any distance. People tell me that after a week or so I should feel much better, but that is not the case. CanI really expet to be my old self in time and play bowls again and go away on holiday? Something I can only dream about at the moment.

Posted by Shannonside on 2014-04-25 10:45. 0 comments. 71 reads
 
Thanks to those people who responded to my recent request for help and advice. Most helpful - thanks.

Posted by Shannonside on 2014-04-24 06:22. 3 comments. 167 reads
 
Following an anagram and stent mid December 2013 because of multiply fainting episodes I had Medtronic Advisa MRI SureScan dualcore Pacing System inserted mid February '14. I left hospital a became quite ill with the flu (three weeks). Then had a lung infection which is not great due to my COPD for eight years now.
I am finding it difficult to cope with PM. Any advice please.

Posted by Anne53 on 2014-04-23 20:26. 2 comments. 281 reads
 
I have a Medtronic Consulta CRT for four months and am doing well with it. It still needs more tweaking for hills, I wish that an aircraft mechanic had been involved in the design and put an altimeter in so it could kick in when I am doing stairs or hills but I guess that will come in the next model. Perhaps I should take out a patent for it!
My question is that being paced 100 % how does the flight or fight effect of adrenalin work. I understand that it is only horizontal movement/arm movement will increase the pacing rate. I am curious as I have been in a few situations where previously my rate would have increased but nothing changes now. Stress fright, and anger seem to affect differently. Previously I was able to do relaxati...


Posted by daynanestor1 on 2014-04-23 20:11. 1 comments. 279 reads
 
I had my pacemaker put in 10/22/2013 (going on 6 months now) for 3rd degree heart block only. Had a St. Jude Pace maker put in under the skin and I am on no medications and no other heart issues or health problems.

However, I have been struggling with shoulder/neck pain from the procedure and still in PT for it and am gaining my range of motion back slowly. Last week I experienced a heavy chest and sore feeling more on the left side and that of course, scared me, so off to the ER and they did the usual tests and the heart/pacemaker are fine, blood work--fine, X-rays fine and sent home with muscle relaxers(which I did not take because I am not into all these meds).

My Cardio doctor wants me to have my pacemaker...


Posted by Tony G on 2014-04-20 23:47. 11 comments. 487 reads
 
Hello, I recently had a second echo cardiogram (a year after my first which lead to me getting a pacemaker.) my ejection fraction in my left ventricle went from 40 - 50 to 30-35. I have gained weight but my blood pressure has been 130/80 or so. I am scheduled to see an electro-physiologist. Have you heard of a PM being related to this?

Thanks, Tony

Posted by Bramlore on 2014-04-19 15:38. 12 comments. 413 reads
 
Hi everyone, I am a 59 year old female and after having dizzy spells and palpitations for about six years I have been diagnosed with complete heart block and had a pacemaker fitted three days ago. I got really scared today when I had another dizzy spell and I just feared that it has not worked. I am really scared of pulling the wires out of my heart. I know it all sounds silly but if someone could please give me some reasurance I would be so grateful. I just need other people who had problems when they had theirs fitted to help me please xxx



Posted by naplesbear on 2014-04-18 14:06. 2 comments. 128 reads
 
Thank you for the positive words of encouragement. Each day I am getting a bit stronger and feeling more at ease with my new heartbeat. I had my post op visit monday staples removed and all looked and went well. The doc did turn on a second lead that wasn't activated at time of implant, no issue at the office. It was that night when laying down that the strong thump thump that rocked my body and i must say freaked me out a bit. The technician did tell me that i may experience something like this, i was just not prepared for it to be so powerful i went back the next day where the tech was soooo wonderful, understanding and did dial the impulse back a bit. I am now able to sleep at night and that is most def improving my mental and physical...


Posted by PacingGranny on 2014-04-16 13:05. 9 comments. 495 reads
 
Hi, I am a new member as of today, had my pacemaker/ICD put in two months ago. This was my new year's surprise. I definitely feel better, but am having a hard time coping with the fatigue. I have good days and probably over do things, like errands or chores, then I am knocked off my feet and fall into a hole of fatigue and it takes days of climbing back out again. Yesterday was the worst. On Saturday I had energy and did errands, cooking, etc. Sunday I fell into the hole and could hardly do anything. Monday I took off from work to do things I had appointments for, but asked myself all day, should I really be doing this? Well, I did it anyway. Yesterday I went off to work tired, then shortly after that I became sweaty, pale and just wanted ...


Posted by koolaid on 2014-04-15 22:46. 9 comments. 457 reads
 
Hello all,
Here's my story: Since February (for 3 mo), I've been experiencing sporadic shortness of breath. I was told it was a lung virus. Then, a month later and seemingly unrelated, the chest pain started, scaring me enough to go to the ER. There, they told me I had chest wall irritation and sent me home. The EKG and blood tests were fine.

A week later the chest pain got even worse, and I went to the ER again. What followed were: 3 EKGs 1 ECG, a treadmill stress test, blood work, and 24-hour monitoring. ALL TESTS showed nothing wrong. However, the nurses seemed concerned that my heart rate would beat irregularly, first rapidly then slowly, dropping as low as 40 one time. They released me telling me I was fine and to fol...


Posted by daynanestor1 on 2014-04-15 19:36. 4 comments. 213 reads
 
I am halfway through my PT for my shoulder/neck area. I was doing all the exercises (maybe too much--because I want to get better quickly) and my chest started hurting really bad so I called my doctor and of course, GO TO THE ER and get checked. Did that yesterday and everything is well with the Pacemaker/heart(not on any meds except Advil). I had a bad muscle spasm in my upper back which caused the chest pain and was given muscle relaxers and sent home. I followed up with my doctor and he said to try Celebrix and gave me some samples to try for the inflamation in the shoulder/back. I read the side effects and they are not too good--do I take this or not? I will discuss it with my PT and see what he says. Any other advice?


Posted by Duke Heart Patient on 2014-04-15 12:17. 11 comments. 379 reads
 
Do any of you ever ask yourself "Why Me?" ... I have lived all my life with CHD. I was born September 3, 1974. I had open heart surgery when I was 2 months old. I have lived dealing with the constant concern of my heart and life. Back in 2012 I was refereeing basketball and my heart rate shot up to 240 for over 3 hours. I ended up back at Duke , 7 days , packermaker implanted. Now I take 3 pills twice a day. I just don't understand why I was picked to live this way ? What does God want me to do ? I am a Christian and saved. I wonder what my purpose in life is sometimes. I am a good husband and father of 2 kids. I just get depressed sometimes thinking about it. I am in good shape and walk and run alot. How do you cope ? Do you talk to anyon...


Posted by jimb on 2014-04-14 15:58. 4 comments. 278 reads
 
I suffered sudden cardiac death feb 6th, Thank god there was a gentleman there that performed cpr on me untill the rescue squad got there. The rescue squad zapped me 4 times on the way to the hospital, the hospital put me into an induced coma for 5 days to lower my body temp, had internal brain bleed from the fall. I woke up feb 11th to be told I had to get a pacemaker or I would die, that was quite a shock because I did not have any symptoms prior to this. I am since doing much better, even back to work, but having some trouble dealing with the enormity of it all. Any suggestions would be appreciated.
Jim

Posted by Cupcake40 on 2014-04-14 11:18. 6 comments. 342 reads
 
Hi At 43 I learned that I had congenial third degree block and was told I needed a pacemaker. Before the pacemaker I was so much happier. I felt good, had more energy and was very active. It has only been 4 weeks since the surgery but I feel crappy and worse. My back hurts and I have nausea everyday. I have gained 5 pounds and tell the doctors that I feel terrible. They tell me everything looks fine. Right now I will take any advice. Thank You.
Cupcake40



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