St. Jude Medical Pacemakers & ICDs

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Messages in Batteries & Leads Forum



Posted by austin on 2016-05-30 02:35. 1 comments. 88 reads
 
My son Austin is 24. Had pacemaker inserted when he was 7. Removed pacemaker 10 yrs later as didn't need it. Rhythms are good. Heart function good. But the leads are still there. His treatment for chronic infection is ongoing and not very successful. Will lead extraction give him help? He's been unwell for so long. The heart is repaired and strong, but the immune system is weak. Chronic Fatigue, serious food sensitivities, migraines. Poor baby.




Posted by Artist on 2016-05-29 17:17. 3 comments. 147 reads
 
I just returned from the hospital at the University of Alabama. The procedure took 3 and 1/2 hours. It was surreal--I was surrounded by computer monitors, numerous technicians, nurses and the EP. They had to give a general anesthetic to make sure that I did not move. My body was covered with various stickers and defib pads etc. All I know right now is that they say it went well. It takes time for my heart tissue to heal from the radio frequency ablation It is common to continue to have some arrythmias while the heart heals. It will be wonderful if it is so effective that I can stop medications and have more energy. I will post updates as time progresses. The most difficult part was lying on the hard OR table for 3 1/2 hours and then ...


Posted by JuPage on 2016-05-29 06:23. 1 comments. 66 reads
 
Hi had a new box fitted Tuesday, the new box was larger and pocket had to be enlarged. When getting off bed I commented that my chest felt stretched. Two days later and Icant lay flat,back to hospital and the box on one side is so tight my skin is white where it is stretched. I am going back on 7th June for them to assess it, anyone else had this as I am slightly nervous

Posted by jpope5 on 2016-05-29 03:10. 2 comments. 77 reads
 
Re: St. Jude Riata lead litigation :

My lead was replaced when it malfunctioned. I am part of the lawsuit. The settlement is in limbo as of 5/29/2016.

Anyone in the same situation?

Please respond if you want to chat.

Jpope5

Posted by christy99 on 2016-05-26 20:03. 2 comments. 140 reads
 
Hi everyone, newbie here. Just had first box change a week ago and just my luck things went wrong... has anyone else heard of this happening. After removing the box the surgeon was unable to release the screw from the lead he tried for an hour then called for another surgeon to try he also failed to release it, I was freaking out by this time but they had no choice but to leave it in cap it off and insert another lead. Afterwards I was told this had never happened before which was no consolation I am still heavily bruised and left feeling a bit dizzy from time to time not sure if this should have worn off by now a bit scared to go out as legs feel a bit rubbery still, any thoughts appreciated thanks.

Posted by joannlee7DD on 2016-05-24 19:29. 2 comments. 100 reads
 
My Nanostim leaderless pacemaker implanted June 2015. The projected 10 year battery life is now down to 5 remaining years. I hoped to outlive need for a new one but here we are. I'm highly annoyed. Anyone out there have similar experience??

Posted by pcuser on 2016-05-22 17:30. 2 comments. 143 reads
 
Can anyone give me information on Leadless Pacemakers.

Posted by Xjx on 2016-05-21 06:25. 8 comments. 224 reads
 
I just had my surgery 4 days ago. I wore a sling for the first few days. I was wondering about the possibility of pulling the leads out. I slept without the sling on and woke up with tremendous pain in my shoulder. I don't know if I moved wrong in my sleep. But I was concerned about pulling the leads out.

Posted by RunnerGirl on 2016-05-17 15:23. 7 comments. 273 reads
 
Hello,

I am new to this site, but have had a pacemaker since 1999. Diagnosis is SSS and 2nd degree heart block. I have a dual chamber rate responsive device which I had replaced in 2007. I feel I am getting close to another replacement as I am finding that I have lost my running stamina/endurance. I have led a very active life doing marathons/half marathons, but now I can't run for more than 10 min. and I have to take walk breaks. My last check up was in April and was told I have rising lead thresholds. Can anyone explain that? I can't seem to exert myself like I usually do. I have been a runner for 18 yrs, so this is unusual. Since Dec I am going for a check up every four months which I never did before. I am due for a...


Posted by Sparkplug on 2016-05-16 22:16. 5 comments. 239 reads
 
I've been so careful to not move my arm too much but went for my follow up today and one of my leads has came out and I have to have surgery again to place it back in position


Posted by jpope5 on 2016-05-16 01:51. 8 comments. 330 reads
 
I have chosen not to have my device replaced. I have about 1.5 years of battery life remaining
I will have the defibrillator functions turned off prior to battery failure to allow natural death.
I'd like to know, since I am 100%paced, what to expect.
Will the pacer just shut off or will it slowly get weaker?


Posted by MedEditor on 2016-05-15 21:28. 2 comments. 163 reads
 
I have had my pacemaker since July 2013. My device checks have all been normal. In the last few weeks, however, I have had a distinct feeling that a lead is out of place in my heart/chest. This does not resemble anything that I have felt before. It literally feels like a wire is just hanging around in my chest! Many thanks for your insight! (MedEditor)

Posted by Lauram! on 2016-05-12 13:20. 2 comments. 230 reads
 
I've had a pacemaker for 10 years now! 2 years ago my original wires broke down and I had 2 more added and a new System put onto my right side. These were active wires and only latest for 10 months before they failed. I had these removed and another active wire put into my ventricle, this perforated my heart so this was again removed and a passive wire put in. The Drs believe my heart didn't react well to the active wire. I haven't felt right though since my orginal wires, I'm still getting symptoms which all seem very positional, I seem to get a pause which jumps into my throat when I'm bending, turning my head or sometimes moving my arm, I also sometimes get a strong beating feeling near my ribs when lying down, sometimes breathing in wi...


Posted by AitorPomposo on 2016-05-06 22:34. 2 comments. 212 reads
 
https://m.facebook.com/groups/6220852980?view=permalink&id=10153770163557981

( Copy and paste link on to googgle to view image)

What is the clip next to the pacemaker suposed to be?

Posted by dot on 2016-05-04 01:39. 2 comments. 323 reads
 
Today, I was told I have 2 fractured leads. I had my ICD implant in 2009 and just had the generator replaced in Nov 2015.
I had Rotator Cuff surgery about a month ago on my left shoulder, the same side as my ICD implant. My cardiologist suspects that's how the leads got broken - during that procedure. I see the Cardiac Electrophysiologist in a week.to see how to fix this. I was told this is a big problem to handle and that there are high risks involved.
How serious are broken leads? I wasn't aware that this could even happen!! I'm so upset/scared/worried!!! Anyone facing same situation?


Posted by Raphe on 2016-05-02 14:00. 2 comments. 238 reads
 
Had my first pacemaker fitted nearly three weeks ago. Apart from some remaining bruising and irritation around wound and pain in upper left arm all seems O.K. My check up is not for another four weeks. My pulse rate is pretty constant at 60. Is there any way I can check that the two leads are working well and are on there way to being embedded?

Posted by Tygrant95 on 2016-04-30 04:58. 4 comments. 241 reads
 
Hi I've had a icd for nearly 5 years now and recently I've been wondering about the longevity of the lead, I've asked my doctor about the icd life but not the lead. I'm 20 years old, will my lead last me the rest of my life or will it need to be replaced. I plan on asking my doctor during my next check up however if someone here could help me that would be awesome!
Thanks

Posted by rickbeatz on 2016-04-27 22:51. 4 comments. 210 reads
 
I have a huge pain on my upper shoulder can it be that I pulled a kead just had surgery like 3 weeks ago

Posted by Sunnystives on 2016-04-27 15:37. 4 comments. 310 reads
 
Hi everyone, I have just had my 6 week check at 8 weeks and have been told that one of my leads have been displaced and they may have to operate and correct it. I feel like I have been through a lot and I'm worried again as I am a natural worrier. Can anyone set my mind at rest and tell me what this involves. Many thanks to all. Karen

Posted by MTnest1951 on 2016-04-26 23:32. 1 comments. 134 reads
 
My granddaughter (9yrs old, HLHS, Complete AVSD, 7 yrs post Fontan) has had a PM for 2 1/2 yrs. She started out at a very low voltage of .25. Five months ago, they had to increase the voltage. She's had increases at each check up since then, and today they increased her another .25 for a total now of 1.5. She has two leads, but they are just doing atrial pacing. She is paced 50% of the time.
My question is, does this just sound like a bad or misplaced lead, or could it possibly be that her heart is just not responding as it should and getting progressively worse?
The doctor doesn't want to go over 2 volts because of her age. He has mentioned the possibility of replacing the lead.



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I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.

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