St. Jude Medical Pacemakers & ICDs

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Messages in Batteries & Leads Forum



Posted by rickbeatz on 2016-04-27 22:51. 3 comments. 51 reads
 
I have a huge pain on my upper shoulder can it be that I pulled a kead just had surgery like 3 weeks ago

Posted by Sunnystives on 2016-04-27 15:37. 3 comments. 105 reads
 
Hi everyone, I have just had my 6 week check at 8 weeks and have been told that one of my leads have been displaced and they may have to operate and correct it. I feel like I have been through a lot and I'm worried again as I am a natural worrier. Can anyone set my mind at rest and tell me what this involves. Many thanks to all. Karen

Posted by MTnest1951 on 2016-04-26 23:32. 1 comments. 46 reads
 
My granddaughter (9yrs old, HLHS, Complete AVSD, 7 yrs post Fontan) has had a PM for 2 1/2 yrs. She started out at a very low voltage of .25. Five months ago, they had to increase the voltage. She's had increases at each check up since then, and today they increased her another .25 for a total now of 1.5. She has two leads, but they are just doing atrial pacing. She is paced 50% of the time.
My question is, does this just sound like a bad or misplaced lead, or could it possibly be that her heart is just not responding as it should and getting progressively worse?
The doctor doesn't want to go over 2 volts because of her age. He has mentioned the possibility of replacing the lead.

Posted by verne8 on 2016-04-25 18:17. 2 comments. 124 reads
 
Since implant my pm has had to be cranked up high in order for it to capture. They have no idea why. They had considered, about 6 weeks post implant, going back in to check to see if the leads were up against a wall of my heart. They opted against that (I didn't know then what I know now which is moving those leads is dangerous.) So, I'm scheduled to have my battery replaced just 3 years after implant. I suffer from panic disorder and, though I shouldn't, I read far too much and it's all confusing. Some articles say that every time you have the battery replaced your longevity decreases. Others say the opposite. The other "scare" is I've read there is a high incidence of endocarditis even 2 yrs post procedure. That's a long time to fret. I ...


Posted by holtd3 on 2016-04-23 01:45. 5 comments. 188 reads
 
Hello ,
I just went to the doctor last friday and I was told I am going to have to have surgery within the next 2 months (this is somthing I was expecting). The surgery is for a pacemaker replacment the problem is my output on my leads is super high which is why the battery ran down so fas (I've only had it 3 years). I have a choice: I can either just get the battery replaced and deal with haveing that surgery every 2-3 years or I can elect to have a open chest/heart proceedure where they MAY be able to find a better place on the heart to attach the leads (theres a lot of scar tissue) - the hopeful result of that surgery is that I wouldtn have to have another surgery for 5-7 years. the second option is a biger surgery but a potential...


Posted by Cabg Patch on 2016-04-22 15:33. 4 comments. 139 reads
 
Anybody out there with Epicardial lead(s) who cares to share recent information on how they perform? This is for me not a research project. I'd like to know how well they perform, whether they have a high failure rate, and whether they have to crack your chest or can they go another route

Thanks

Posted by Kelly on 2016-04-17 06:23. 7 comments. 250 reads
 
Just got a device check Friday & they saw what they think is "noise" from my atrial lead. I have a dual lead pm but mine only fires in the AV node b/c I have complete heart block. They sent me for a chest x-ray to see if the atrial lead moved or is damaged.

Has anyone ever had this happen before? I'm a little worried b/c my pm recorded events from last September & I had gone to an amusement park & rode every roller coaster. I checked with my dr beforehand & he said its fine for me to ride them as long as the restraints weren't pressing against my device, which none of them were. My pm recorded "noise" from the atrial lead 41 times over a span of few days in Sept...but nothing since then. I was just there for a routine device ch...


Posted by AitorPomposo on 2016-04-16 21:40. 2 comments. 225 reads
 
https://youtu.be/5VVih0U6peY (copy and paste the link on to google to watch)

Coment below!

Posted by Padden71 on 2016-04-16 15:04. 5 comments. 216 reads
 
I have a biotronic pacemaker and get frequent episodes of feeling faint. The consultant told me that sometimes the battery is turned of to save the battery. I have a monitor box by my bed. Is this true about the batteries being turned off?

Posted by kayb5170 on 2016-04-10 23:49. 3 comments. 225 reads
 
Had PM implanted Sept 2015. 2nd degree AV block. Ended up in ER and catheterization as they thought I was having a heart attack. No blockage but noticed lower chamber not firing - up to 23 second intervals. Things had been fine until a week ago when starting experiencing same symptoms as prior to PM - short of break, weakness, etc. Progressed quickly to point I ended up in ER. BS rep came in and did interrogation. When she checked the lower chamber something happened and all symptoms went away. Rep said nothing was wrong but I don't think she was being truthful. Didn't get any report but had previously scheduled (before ending up in ER) interrogation for this week. Will they be truthful with me??

Posted by 007kitty007 on 2016-04-10 15:43. 2 comments. 202 reads
 
Hi! I am new to the club . I meet with my surgeon this week to discuss the changing of my first battery. I'm a little nervous. Unlike me most of you that I have research, my pacer is gastric because I have gastroparisis. I've had a lot of abdominal surgery and I am concerned about this one because I don't know what to expect. I appreciate your insight. Thank you!

Posted by M151-A2 on 2016-04-09 15:35. 3 comments. 248 reads
 
Hello, My 88 year old mother had a dual chamber pacemaker implanted 4 weeks ago. I do not know the make and model yet but I will. She is happy and doing well and that's a blessing I wont forget. But she mentions to me that if she places her hand over the pacemaker she can fell that it is warm. Not warm like it bothers her but just warm. She even says she likes it when sleeping because she can warm her hands. All I said to her was to inform her doctor during her next visit and see if this is normal. I have also asked my sister who goes with Mom to insure the question is asked. I then joined this club to ask and research myself. Any information will be greatly appreciated. Mom lives three states away. Thank you for taking the time to read my...


Posted by FriscoFloyd on 2016-04-03 14:26. 2 comments. 179 reads
 
Hello all, I wanted to introduce myself. I have had a pacemaker since March of 2008 and a defib since Jan 2009. I just had my batter/gen change done on Wednesday and since I feel so much better. Its hard to explain but I don't have shaky legs, I don't get bobble headed.. My mind feels more clear and I have more focus. I was wondering if anyone else had this feeling after a battery change. I been feeling pretty bad overall the last 3-4 months and overnight I am doing like I was 4 months ago which was basically living a normal life. Thanks so much for your comments.

Posted by mariamachin987 on 2016-03-28 18:11. 9 comments. 515 reads
 
if I choose not to change my battery of my pacemaker and die naturally . How many years or months will I live.

Posted by snorko on 2016-03-20 04:57. 4 comments. 338 reads
 
Hi all,

I got my second pacemaker about 2 weeks ago. Have had what they thought was a pocket hematoma, but they were treating with antibiotics just in case.

Today, a bunch of infection started to drain from a tiny hole in the top of my incision. I called, and the cardiologist says that I will need to have the whole system taken out.

I am terrified, because I understand that the lead removal requires a trip to the cardiac OR, not just cath lab. My leads have been in for just over 11 years.

Any comforting words and/or experience with the same procedure would be great.

Posted by JuPage on 2016-03-14 18:36. 4 comments. 293 reads
 
Hi,I am due to have a new box put in my first since being placed. I am scared stiff as I had such a bad experience when I had my pacemaker implanted.

Do they give you a sedative to keep you calm?

Posted by memme on 2016-03-10 00:16. 5 comments. 448 reads
 
I had a Medtronics pacemaker/defibulator/synchronizer implanted June 2015. After getting up the next day from the hospital bed I felt an internal thumping or hiccup. The technicians and doctor tested all of the signal points and determined to turn off this part and let the lead settle. In September I was tested and the final signal point tried did not give me any thumping. I was happy. Now, in March 2016 I had a couple of days of returned thumping. I went in earlier this week to be tested and it was determined that the lead would have to be relocated. It seems that it has moved and the signal points that don't have thumps did not hit the correct chamber of my heart for correct synchronization. They turned that part off and I am slat...


Posted by DiannM on 2016-03-08 15:20. 4 comments. 319 reads
 
will be 4 weeks post op from pacemaker placement. Last week I started gently moving my arm more and noticed that at the end where the leads were attached to the pacemaker, it was poking out and very visible during certain movements. is this normal?
I am very small framed, so I wondered if that maybe the reason it is showing through.

Posted by Datamaiden on 2016-03-06 14:43. 3 comments. 437 reads
 
Hello everyone,
I came across this forum by happy accident - which I had found it years ago! I just wanted to post a short introduction and hello to everyone before I jump into the pond. I have SSS, 100% pacemaker dependent. Was misdiagnosed or undiagnosed all of my life until heart failure nearly killed me. That was 2003 when I got my PM. I had the battery/PM replaced once in 2009 and am now laying abed waiting for the next one. The first time I kept asking my MD to check me, I was not feeling well. (All in my head, I'm fine, bla, bla, bla). When they finally did check me the put me straight in the hospital for surgery. It amazes me that they let me get to feeling so bad before they would do anything, but when they did, they...


Posted by Sharon321 on 2016-03-02 19:59. 3 comments. 448 reads
 
Hi I'm on my third icd I have been told that one of my leads is fractured and needs replacing. Any one else had a lead replaced ? And how was it and the recovery time.



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