St. Jude Medical Pacemakers & ICDs

Read Messages




Messages in Batteries & Leads Forum



Posted by Datamaiden on 2016-03-06 14:43. 3 comments. 451 reads
 
Hello everyone,
I came across this forum by happy accident - which I had found it years ago! I just wanted to post a short introduction and hello to everyone before I jump into the pond. I have SSS, 100% pacemaker dependent. Was misdiagnosed or undiagnosed all of my life until heart failure nearly killed me. That was 2003 when I got my PM. I had the battery/PM replaced once in 2009 and am now laying abed waiting for the next one. The first time I kept asking my MD to check me, I was not feeling well. (All in my head, I'm fine, bla, bla, bla). When they finally did check me the put me straight in the hospital for surgery. It amazes me that they let me get to feeling so bad before they would do anything, but when they did, they...


Posted by Sharon321 on 2016-03-02 19:59. 3 comments. 450 reads
 
Hi I'm on my third icd I have been told that one of my leads is fractured and needs replacing. Any one else had a lead replaced ? And how was it and the recovery time.

Posted by athlete735516 on 2016-02-28 07:52. 2 comments. 373 reads
 
Hi! I have had my pm for 4months last Tuesday and an about to go in to try to get my ventricle lead moved. It stimulated my diaphragm from the beginning so they turned my voltage down and my rate down to 35 to keep me from feeling it. They wanted to do surgery right after they found the problem but I convinced them to wait until after my basketball season was over. Well now it's over but they said they might not be able to extract it but will have to put another lead in.

I have a few questions... First, if they leavi it in does it stay in forever?? And second, how many more leads can I get before no more fit? If I have to have a pm for the next 70 or 80 years how many times do leads need replacing?

Posted by annie21 on 2016-02-26 10:06. 2 comments. 380 reads
 
On 18/1/16 had broken heart syndrome - PM checked, said all ok, attack had nothing to do with PM... Since then, i have been woken up several times by an alarm, very faint, no alarms in room. When i told hubby about it he said he has heard it to, Could it be coming from my pm, never had this with first pm. I have a st judes duel lead.

Posted by manduf on 2016-02-25 18:53. 4 comments. 339 reads
 
Thankyou for your replies.This is my first pacemaker and believe it or not I have had it in 29 years.It is due for changing, I am scared they dont know if I will need a new lead aswell.I wonder if any of the leads will be any good after all those years.I had it put in because I had a fast pulse, then after 5 years it went slow and missed beats.I only had bradycardia for a week then they put the pacemaker in . Sometimes I wonder if I ever really needed one.I have probably just been using one lead for some years then.

Posted by manduf on 2016-02-25 16:02. 3 comments. 296 reads
 
Hi I am a new member
I have a dual lead pacemaker. Years ago o was told the atrial lead was not working 100 percent, but as I felt ok they would leave it. Now I have been told that it seems like the atrial lead is just sensing Does anyone know what this means.Thankyou


Posted by Gama2Mac on 2016-02-24 10:23. 2 comments. 344 reads
 
My pacemaker was implanted in October 2015, so fairly new. I was told it would be the size of a quarter but it is as big as the palm of my hand. I have the PM because my heart was "pausing" for 6-7 seconds at a time when I was sleeping. During the day it would only be for 1-2 seconds but it has dome the short pauses all my life.
When I sleep, the PM seems to get pushed away from my shoulder so the muscle around it is always sore. But my real problem is pin prick pain at the points on the pacemaker which I assume are the leads - there are 5, I can feel them. It happens many times a day and after a few of them in any one one spot, the area is very sore for hours. It happens at one point more than the others but they are all affecte...


Posted by marlene602 on 2016-02-24 06:20. 4 comments. 448 reads
 
Hi all,

I am 29 going on 30 who will need my old leads to be removed since I've had some really old leads in me since the age of 5.

My new doctor who just replaced my pacemaker 2 weeks ago said there are leads in there that are no longer in use and would need to be removed due to having 5 leads in me and have reached my max.

This is or was my 4th surgery, and he is telling me that he has removed leads before but that there is a 50/50 chance...?? I mean how scary is that... I'm not even 30 and he wants me to do this soon before I get any older.... so for my piece of mind... what should I do? Get it done soon or wait till my next replacement which will be another 9 years... and I will be 39 than.


Posted by EricWein54 on 2016-02-18 04:03. 2 comments. 331 reads
 
St Jude ICD Had battery check in early February, third week in February ICD made a high speed vibrating noise. Went to doctor to have battery checked found out battery needs to be replaced within the next four weeks. No know way to measure the length of battery to within a month.Battery use can very depends on person and if the defibrillator is used and how often the person depends on pacemaker, activity,readout storage is also a contribulating, factor that can attribute to usage

Posted by patmellis on 2016-02-11 10:53. 1 comments. 288 reads
 
I had my pm implanted on 1/28 then the one lead moved and they did a lead revision on 2/9. After going in the doctor said the pm was flipped wrapped with leads and some leads were on my right side. Basically he said this twiddlers syndrome is caused when the patient is playing with the pm - turning or moving it. I know I never did that consciously. Maybe while sleeping at night as I am a restless sleeper. Anyone else experience this?

Posted by aug2012 on 2016-02-06 11:59. 5 comments. 319 reads
 
A quick question - I had a crt-d put in 8 days ago and my left arm has felt achy each day. In the last 3 days though my left arm changes colour to a dusky red colour as well as ache. Will this likely settle down or should I report it to the pacing clinic first thing next week?

Posted by mchokozi on 2016-01-30 20:39. 16 comments. 659 reads
 
Hi Everyone,

I was puzzled when I did not locate a thread regarding pain medication after battery replacement.

I had my battery replacement yesterday and was directed to take Tylenol or Ibuprofen for discomfort.

*I was disappointed that they did not prescribe a day or two of Vicodin (as needed for postop pain.)


(Vicodin was just an example of a milder prescription pain medication.)

This was not offered as an option instead discharge instructions stated:

Notify your Primary Care Practitioner for:

"Pain unrelieved by Medication."

How is my Primary doctor going to direct postop pain management for battery replacement? What?
<...


Posted by gstripling on 2016-01-26 05:52. 1 comments. 249 reads
 
I checked into the hospital on New Year's Eve for a pacemaker atrial lead replacement & the EKG revealed I was back in AFib (I was cardioverted in early December and I'm 5½ months post-OHS). So I had an atrial ablation right before my "little zipper" incision was reopened (for a 3rd time) for the atrial PM lead replacement. The surgeon said he "found a home" for the lead and, hopefully, it'll stay put since this is the 3rd atrial lead I've had in 13 months.

My pacemaker site is very sore & I'm in a sling at night, but my heart is once again in sinus rhythm & both PM leads are firing. Here's to a healthy, 100% battery-operated new year!

Posted by freddyv on 2016-01-23 15:12. 8 comments. 350 reads
 
I just had the wires in my pacemaker extracted & new ones put in but I have noticed that since the surgery & I have been home that near & at the bottom of some of the steri strips I am getting what appears to be blisters with fluid in them has this ever happened to anyone else or have you heard about this happening

Posted by JuPage on 2016-01-21 19:37. 4 comments. 346 reads
 
I am due a new box and am very nervous as I have had only the one and am in my seventh year.

Anyone had a positive exchange of box as most postings are of problems

Posted by holtd3 on 2016-01-19 19:48. 1 comments. 326 reads
 
Hello Im new to the website.
I was wondering if anyone had experience with their pacemaker running out faster than it use to. I am on my 3rd pacemaker and in the past they have last 5-7 years. my last PM was put in two years ago. this was supposed to be a pacemaker change but I ended up waking up with to find they had opened my entire chest as well ( there were complications). now my cardiologist is saying the battery life says 3-9 months more. so now I think my new normal might be every 2 years. does anyone else have this problem?

Posted by freddyv on 2016-01-13 19:15. 2 comments. 389 reads
 
I had my original pacemaker about 6 years ago when I 1st got it the lead came loose in Sept of 15 I got my 2nd P.M. and the day after I got it I know my DR did a chest xray to make sure all was OK I on occasion have lifted heavy stuff & also as of late have been having the heaviness in my chest worst then usual that it effects my walking it gets me so winded but now I went to a specialist & he seen the wire was loose again so he sent me to get a echo cardiogram & they confirmed the wire is loose again so now I have to go get surgery next week again to fix the problem has anyone else had issues ever with the leads

Posted by Helotail on 2016-01-13 17:01. 3 comments. 535 reads
 
Hello-
I am a 46 year old female with a St. Jude dual chamber pacemaker that was implanted last August. After an initial normal interrogation in September, I was called in for a second interrogation in early December because of a sharp drop in impedance (down to 70), that was picked up my Merlin unit. They decided to monitor me for another month and I had a third interrogation yesterday. In short, the impedance has continued to drop in both leads and I had a couple of dips that went under 175. Both leads now have an impedance around 220 ohms - down from original highs of 445/650. My understanding is that a low impedance is usually due to an insulation break and that readings below 300 are abnormal. My interrogation report shows 5 al...


Posted by BaldLilFairy on 2016-01-13 10:55. 4 comments. 372 reads
 
A little history:
Inappropriate sinus tach due to lymph node pushing heart to side lead to 2nd ° heart block. Heart block lead to PM, allowing for two ablations to my sinus node. Pace 90% in atrium and only 0.8% in ventricular. Have had bad lead in lower chamber for last 4-5 years, impedance getting worse. Looking at new leads and generator in next 6 months. My EP is leaving it up to me to decide which of three options I want.
(1) leave bad lead and not insert new as rarely use it.
(2) leave bad lead and thread a new one in.
(3) remove bad lead and replace it.

I currently have 6 mths to 2.5 years on my generator.

I'm leaning towards leaving the bad lead in place and not adding a thir...


Posted by Dougel on 2016-01-12 22:02. 4 comments. 398 reads
 
Does anyone know of a list of Doctors that preform this procedure? Trying to find a good, experienced doctor. Thanks,



Member Login
email:

password:



Who's Online?
We have 6592 visitors online.

Members online:
  phyllandrew
  donr
  DampDog
  Artist
  billyxoc1@gmail.com
  Lurch
  Barnes42
  marylandpm
  Megan
  PatCan
  GoodDog
  Sunnystives
  Lucinda1406
  Grilor
  bambis11
  Tattoo Man
  Woodsey
  paulc1950
  Bionicwoman
  theverch
  BrynaR
  gojack
  becky1958
  TraceyE
  Cally90

You're Wired When...
You play MP3 files on your pacer.

Member Quotes
Think positive and go out and take on the world.

Bra Strap Comfort for Pacemaker Patients



Site content and design © 2000-2016 Pacemaker Club Inc.
All rights reserved.