Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of whether or not they experienced post op pain, are welcome to participate, since this will help to provide a balanced, unbiased survey result.  The survey should take no more than 5 minutes to complete.  The survey data will be collected by a trusted member of the Pacemaker Club who has experience in this area and the results will be analysed carefully and reported as soon as possible.

What is the purpose of the survey and what are we going to do with the results? 

If we can get sufficient numbers to participate in the survey to make it a worthwhile study (say around 300 members), it is our aim to try to get the results published in a well respected cardiology journal, so that these results are available to the medical profession.  Any paper accepted would have an acknowledgement to the Pacemaker Club.  Results of our survey will help us to better understand and acknowledge the complex range of pain and other symptoms many of us may experience post implant and how we might best manage these.  This will help to improve patient outcomes now and in the future, particularly since most of us will expect to go through several battery/lead changes in our lifetime. 

I will continue to “re-post” this message from time to time to try to reach as many members as possible.  I apologise in advance for my persistent, unwelcome intrusion on your “Most Recent Messages page” and I thank you for all your patience and help with this.

The survey link is:-




by Gemita - 2021-08-29 12:26:08

We are up to 64 Survey responders as of yesterday. 


by prettylady - 2021-08-30 18:42:32

cannot access survey

Survey link

by Gemita - 2021-08-30 19:28:41

Dear Prettylady,

So sorry you are having difficulties.  There has only to my knowledge been one other member who has reported having the same problem, otherwise I believe the 64 respondents so far have had no difficulty accessing the link (provided again above).

It is important that the link is pasted into the https main upper search bar not a lower general search bar if that makes sense.  Don't know what else I can suggest.  Have another try?  

survey link

by new to pace.... - 2021-08-30 20:24:37

i put the survey link in by hand as could not get it to move to the upper search bar.

  i have not  gotten the hang of copy and paste.

Survey link

by Gemita - 2021-08-31 00:23:27

Thank you new to pace for that tip.  Several members kindly tried the link extensively for me using different computers, browsers and search engines and the link seemed to work well, although clearly not for everyone 

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