Syncope Neurocardiogenic with Neuropathy
I have my Biotronic Edora 8 DR-T for almost 2 years now, due to SSS using it a 100%.
After a tilt test they found that I also have Syncope NeuroCardiogenic, which causes blackouts if I stay to long on my feet. Walking is/was fine
2 weeks ago I collapsed having a Syncope and ended up catching a ride to the ER booking a bed for 1 week for observation.
Of course the PM was working fine, but something is there that they can't find.
I got a Holter for 1 day without finding any Arrythmia, I was lying in bed all day without physical activity.
I also have neuropathy in my right leg, thanks to the catheterism they used to look for any arythmia during the implantation to do a ablation right away.
They somehow managed to touch/damage my fermoral nerve. Of course they do deny everything. uncontrolled movement in my right leg started the night after the surgery. So it's a no brainer what caused it.
Anyway I went to Neurologist having bunch of test, all they said was , that's there for life and doubled my dosis of Gabapentin to 1800 mg a day.
I feel like a farmacy just using everything myself.
Back to my issue. After 2 weeks getting back home I started walking again. I used to walk 6 km in the morning without getting out of breath, now after 500 meters I get headlighted and dizze, out of breath.
Anyone has experienced something similar or is aware of someone?
I don't know what else to do, so do the doctor's reaching a point of losing hope to be able to live a normal life.
Let me know your thoughts. We have some great people here that should be doctors, or at least consultants.
You know you're wired when...
Airport security gives you free massages.
My muscles are very sore but each day it gets better and my range of movement is improving.