Pacemaker lead tethered to tricuspid leaflet
Hi, I haven't been on here in ages. 45yo Aussie, 100% PM dependent since my second valve replacement 18 years ago.
I'm on my 3rd generator, but the original leads are still good. Unfortunately one of the leads became tethered to a leaflet of my tricuspid valve at some point early on, and it interferes with the function of the tricuspid valve. As a result I live with heart failure, and after years of being fairly stable the right side of my heart is becoming enlarged.
I have not encountered anyone else with this complication, but I thought I would ask in here. I am an active person, I make pottery and ride horses and maintain an extensive garden. I am finding it hard to maintain good energy levels, but I also wonder how much of that is related to having Covid six months ago, and how much is my recently diagnosed and treated anemia, and how much is perimenopause.
I know I will most likely end up having surgery, but my memories of my two valve replacements in my 20s still haunt me and I am frankly terrified of the prospect of going through it again.
Has anyone else ended up with a tethered lead? How was it resolved, or was it left in situ?
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