Insulation break of lead & antibacterial envelope
i Recently underwent my 5th generator change.
this one was different in so many ways:
1. My pacemaker went into battery power save mode: this is terrible! I started feeling crappy on a Friday and come Monday I got a call from the doctors that my pacemaker changed into this mode on Friday.
2. I then had an urgent generator change on Tuesday (the following day from finding out about the battery save mode being on) By urgent I showed up at 11:30am (as told too) but didn't get taken into the ER until 6pm! Ugh it was a loooong day.
3. I specifically asked the EP/Surgeon for the antibacterial envelope to be used ; has anyone had one of these? Since each generator change you are at higher risk of an infection.
well I just got the procedure notes and found NO mention of the antibacterial envelope used. What would you do/say? I know nothing can change now... but it's so frustrating.
4. I also saw via the procedure notes: "Upon explanation of the device, the right atrial (RA) and right ventricular (RV) leads were disconnected from the device header and visually assessed for damage. There was mild insulation break on the atrial lead, and this was repaired by placing a suture sleeve over the damaged area and securing it to the lead"
any experience or knowledge of this? I'm a bit surprised and upset the doctor made no mention of this to me post procedure. My one week follow up was with a nurse (I was expecting it to be with the Doctor)
5. Then I had a neurotoxic reaction to the antibiotics they put me on post procedure. Wound up in the ER they tho it he I had a stroke due to my symptoms (slurred speech, trouble finding correct words when speaking, feeling very drugged, fuzzy headed, nauseous, just really out of it)
this was a rough on for me and just a generator change... makes me nervous about this doctor being the person who may have to extrac four leads in the future (2 are 25 years old) and the 2 functional ones (one of which has "minor" damage now) are 15 years old.
the health industry is really having a hard time providing the type of care patients need and deserve.
You know you're wired when...
You have rhythm.
Yesterday I moved to a new place in my mind and realized how bad I felt 'before' and the difference my pacemaker has made.